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FALL 2019 imagine A LEGACY OF COMPASSION The Anderson family’s generosity—including a recent $50 million gift—touches the lives and futures of all our patients, including the five pictured here. Every patient who visits Children’s Hospital Los Angeles benefits from philanthropists who support the hospital.
WE CREATE HOPE AND BUILD HEALTHIER FUTURES. Founded in 1901, Children’s Hospital Los Angeles is the top-ranked pediatric hospital in California and among the top five in the nation, according to the prestigious U.S. News & World Report Honor Roll of children’s hospitals for 2019-20. The hospital is home to The Saban Research Institute and is one of the few freestanding pediatric hospitals where scientific inquiry is combined with clinical care devoted exclusively to children. Children’s Hospital Los Angeles is a premier teaching hospital and has been affiliated with the Keck School of Medicine of USC since 1932. CHLA.org/DONATE
A LETTER FROM THE PRESIDENT AND CHIEF EXECUTIVE OFFICER Children’s Hospital Los Angeles has been ranked by U.S. News & World Report as the No. 1 children’s hospital in California, No. 1 in the Western U.S., and No. 5 in the nation. The CHLA Board of Directors and senior management fully appreciate that our ability to continue serving the health care needs of the most vulnerable children in the region and achieve national rankings for clinical services, academic training programs and research endeavors results from the generosity of all CHLA supporters—donors such as the Anderson Stewart Family Foundation and others like them featured in this issue of Imagine. When the late Marion and John E. Anderson were honored for their philanthropic efforts, they would often repeat four simple words: “Do the right thing.” The couple’s mantra reverberates throughout the city and community they loved, especially for those who support the care delivered by CHLA’s experts. Faculty and staff remember Marion as a deeply engaged member and Chair of the Board of Trustees who connected with patients and had an unbridled passion for supporting the hospital’s family-centered care. Today, Marion and John’s legacy of improving lives endures through the Anderson Stewart Family Foundation. There are no adequate words to thank the family for CONNECT being steadfast partners in creating healthy, hope-filled futures for the children WITH PAUL we serve—with no better example than their recent $50 million gift. This is an investment in advancing pediatric medical care and a commitment to children and Go to CHLA.org/PaulViviano families experiencing some of the most challenging moments of their lives. to find out more about Paul and connect with him on LinkedIn, Every story chronicled in the following pages connects CHLA’s ability to provide where you can read articles transformative, compassionate and life-enhancing care to the power of philanthropy. he’s written on issues related to The generosity reflected in each gift received by our institution helps ensure that we pediatric health care. are able to conduct pioneering research, train the next generation of pediatricians and provide world-class clinical care, while also continuing to proudly serve as the safety- net provider for all those in need. Ultimately, every philanthropic partner helps do the right thing by supporting this vital work. On behalf of all of us at Children’s Hospital Los Angeles, please accept my profound gratitude for your continued, invaluable support. Warmest regards, U.S. News & World Report ranks Children’s Hospital Los Angeles: Paul S. Viviano President and Chief Executive Officer No. 1 in California No. 1 in the Western U.S. No. 5 in the nation Imagine Magazine
Imagine A LETTER FROM THE PRESIDENT AND CHIEF EXECUTIVE OFFICER Paul S. Viviano CHIEF DEVELOPMENT OFFICER SENIOR VICE PRESIDENT AND CHIEF DEVELOPMENT OFFICER Alexandra Carter, MBA, CFRE At Children’s Hospital Los Angeles, our mission to create hope and build SENIOR VICE PRESIDENT AND healthier futures is fueled by philanthropy. We are so grateful for the generous CHIEF STRATEGY OFFICER support—and true dedication—of each and every one of our donors who share Lara M. Khouri, MBA, MPH our commitment to improving the lives of children and families. VICE PRESIDENT AND CHIEF MARKETING AND COMMUNICATIONS OFFICER This issue’s cover story, about a transformative gift from the Anderson Stewart Deborah A. Braidic, MABC Family Foundation, is an extraordinary example of one family’s generation- spanning legacy of philanthropic engagement with CHLA. Their visionary EXECUTIVE DIRECTOR, STRATEGIC CONTENT investment will help ensure that all our patients have access to the lifesaving Kelly Carolipio, MS care they need. We also hear from Betty Porto of Porto’s Bakery and Cafe about her family’s EDITOR Marla Lehner longstanding relationship with Children’s Hospital, which dates back to 1976. EXECUTIVE EDITOR Sarah T. Brown Whether delivering treats to patients and staff at the hospital, creating signature PROJECT MANAGER Rachael Humphries CHLA butterfly cookies for our annual Make March Matter fundraising campaign or making financial donations, Porto’s has been a true community DESIGN Jessica Kucinskas partner. You can also read about the John Stauffer Charitable Trust, which, like CONTENT Sarah T. Brown, Marla Lehner, Porto’s, began supporting CHLA in 1976. The trust has donated more than Owen Lei, Sara Nafie, Eunice Oh, $9 million throughout the years. Katie Sweeney and Jeff Weinstock PHOTOGRAPHY In addition, we feature the inspiring story of JP LeVeque, a grateful uncle who Bobby Quillard Photography, ran the Los Angeles Marathon and raised more than $115,000 for CHLA to Linda Bradley, Bronson Photography, honor the care his nephew received. Finally, we share the story of one young Keats Elliott, Brian Feinzimer, Jared Green, father, Eszylfie Taylor, who was inspired to support CHLA and is committed to Jillian Green, Marnie Gruen, Kelly LeVeque, ensuring healthier futures for children. Maryly LeVeque, Claudia Linh, Marc Glassman Photography, Vanessa Preziose, Monica Rizzo, It is an honor to share these stories of kindness and generosity. With the support Alberto E. Rodriguez/Getty Images for of the philanthropic community, we can give every child the best possible chance Children’s Hospital Los Angeles, Karine Simon, for a healthy future. Kelly Walsh and Walter Urie Sincerely, Make sure to visit CHLA.org for more great content! Alexandra Carter Senior Vice President and Chief Development Officer Follow us on social @ChildrensLA CHLA.org/DONATE
In this issue Fall 2019 12 D E PA R T M E N T S 3 Calendar of Upcoming Events 18 CHLA Happenings 10 16 30 Anonymous Donor Gives $25 Million Gift F E AT U R E S 30 Honor Roll of Donors 2 THREE OF A KINDNESS 61 Board of Directors and The trio of trustees behind the John Stauffer Charitable Trust Foundation Board of Trustees continues the charity’s 40-plus years of support for CHLA. 4 A LEGACY OF COMPASSION Through three decades of giving, including a recent $50 million gift, the Anderson family has helped to cement CHLA’s position as a leader in pediatric health care. On the Cover 10 PORTO’S BAKERY: WHY WE GIVE Learn more The beloved local eatery has been supporting Children’s Hospital about these Los Angeles and sharing its sweet treats with patients incredible kids and families for more than 40 years. on page 8. 12 BEST UNCLE EVER Grateful for his nephew’s life-changing care, JP LeVeque raised an impressive $115,000 to support CHLA—and all he had to do was run the L.A. Marathon. 16 A FATHER’S GIFT Clockwise from top: Jia, 12; Jordan, 7; Michelle, 4; Even before his twins were treated at Children’s Hospital, Eszylfie Taylor Lex, 3; and Max, 15, pictured in front of the Marion was committed to making a difference in the lives of kids in the community. and John E. Anderson Pavilion Imagine Magazine | 1
Q+A With the John Stauffer Charitable Trust THREE OF A KINDNESS The trio of trustees behind the John Stauffer Charitable Trust continues the charity’s 40-plus years of support for Children’s Hospital Los Angeles. By Jeff Weinstock In the very conference room where Why has the Stauffer Trust What influences you to support one they regularly meet to pore over grant consistently chosen to donate institution over another? applications submitted to the John Stauffer to Children’s Hospital Los Angeles? Charitable Trust, Tim Gosney is reading Bradley: We pick ones we have faith aloud to John Bradley and Michael Whalen Whalen: We learn a lot in and figure they’ll make good use of from the list of donations the trust has made about hospitals. The fact their money. They report back to us to Children’s Hospital Los Angeles. The that we have a continuing what they’ve done with it. Children’s three men, all attorneys, preside over the association with Children’s Hospital gives us reports on every trust, established in 1974 by the will of John Hospital says a lot. Over the years, fund we’ve established. Stauffer Jr., onetime director of the Stauffer they have really selected good Chemical Co. Children’s L.A. has been a management. That’s what has been Gosney: That’s certainly a big factor. frequent recipient of the trust’s philanthropy, important. Children’s is always If they don’t report back and tell us which goes exclusively to hospitals rethinking their management to make what they’ve done, the next time they and universities. sure it is working. come in with a request, that might make the difference. As Gosney reads from the earliest Bradley: They’re ultra- contributions to CHLA, Whalen, who has competent. They’ve shown the closest connection with the hospital— the ability to raise large Do you make regular visits to CHLA having served on its Board of Trustees sums of money and to to see where the money goes? throughout the 1990s and into the early invest it well … into doing a lot of original research. They’re not simply Whalen: Oh, sure. We visit every 2000s—is interested to hear that the first a hospital; they’re a research hospital, site we give money to. I saw the donation was made in 1976. “What did we and to me that has great appeal. Stauffer Conference Room before it give the grant for?” he asks. was built out. I also inspected it as it was being completed. “Prenatal equipment for critically ill newborns,” Gosney answers. “50,000 bucks.” What funding proposals are most likely to make you say yes? Gosney: We get to know the doctors, too. “What was the next one?” Gosney: We’re not real big on “general support” Whalen: After a day of seeing “December ’78. Carbon dioxide labor kinds of things. The way children sick in so many ways, you equipment for 50,000.” I’ve said it to hospitals and understand you are seeing money universities is: “Pick your need and used well to save lives. Gosney continues down the list, through tell us what it is you want, and why.” the most recent, a $3 million gift to the Then we make our decision when we Cancer and Blood Disease Institute to sit down in this room. fund research. In all, the donations total $9.4 million. The Stauffer name adorns Whalen: We are willing to be multiple parts of the hospital, including surprised. On the hospital side, we the John Stauffer Conference Room and start with equipment and facilities, the John Stauffer Lobby. and then as the relationship expands we look at broader programs, In a recent conversation, Gosney, Whalen laboratories—things we can track. and Bradley discussed what has sustained the trust’s relationship with CHLA for over 40 years. Left to right: Stauffer Trustees John Bradley, Michael Whalen 2 | CHLA.org/DONATE and Tim Gosney ►
UPCOMING EVENTS STAY IN THE LOOP With so many fun ways to support Children’s Hospital Los Angeles, which event will you attend? Make March Matter raised $2 million March 2020 for CHLA in 2019. Men’s Guild Poker Tournament Join the Men’s Guild for its 15th annual Texas Hold ’Em tournament benefiting CHLA. For information, visit MGCHLA.com. April 20, 2020 Seahorse Classic Golf Tournament March 2020 Tee up in the South Bay at the Peninsula Make March Matter ® Committee’s 31st annual Seahorse Classic Golf Tournament benefiting Children’s L.A. During the month of March, local businesses and the community work together to raise funds for Children’s Hospital Los Angeles. For information, visit PCCH.net. To find out how you can get involved, visit MakeMarchMatter.org. May 3, 2020 The Great Chocolate Race 2.5K/5K Join the Flintridge Guild and more than 500 participants at this sweet event in La Cañada Flintridge to raise funds for CHLA. For information, visit FGCH.la. Summer 2020 Oct. 3, 2020 Walk and Play L.A. The Children’s Hospital Join the fun at CHLA’s fourth annual 3K walk Los Angeles Gala and family fun festival at the Los Angeles Memorial Coliseum. The event features sports Save the date for the hospital’s activities, performances and more. signature biennial event. Stay tuned for more information about this For an official date announcement and registration unforgettable evening. information, keep an eye on WalkandPlayLA.org. Imagine Magazine | 3
Learn more about these incredible patients and 4 | CHLA.org/DONATE their experiences at CHLA on page 8.
Anderson Stewart Family Foundation FEATURE A LEGACY OF COMPASSION Through three decades of giving, including their most recent $50 million gift, the Anderson family has helped to cement CHLA’s position as a leader in pediatric health care. By Katie Sweeney, Marla Lehner and Jeff Weinstock During her life, Marion Anderson says CHLA President and CEO Paul S. But the family’s contributions extend even loved being a part of tours of Children’s Viviano. “We are honored and humbled further. Marion served as a member of Hospital Los Angeles. “Every time I visit to receive this gift that will continue their the CHLA Board of Trustees from 1989 Children’s Hospital, I want to reach out legacy of creating a better future for the until 2017. She co-chaired the Board from and help,” she once said. children of this world.” 1999 to 2012, leading the hospital during its most successful fundraising campaign Reach out and help is exactly what Marion The Anderson name is one that is familiar to date and through a period that saw and her husband, John E. Anderson, did to every patient, parent, team member landmark shifts and significant expansion at CHLA. Their extraordinary dedication and visitor at the hospital. In 2011, the in the institution’s ability to deliver care. over the course of three decades left a family made a $50 million gift to complete legacy of incredible philanthropy and construction of a new, state-of-the-art John was the Founder and Chairman of leadership. And while both Marion and hospital building: the Marion and John E. Topa Equities Ltd. and a role model of John have passed away, their family’s Anderson Pavilion. corporate and community leadership. history of compassion not only lives on— “Success,” he often said, “is living a life it’s growing. you can be proud of.” “The entire Anderson family This year, Children’s Hospital Los Angeles The family’s latest gift is one more was honored to receive a visionary has always demonstrated example of John’s humble philosophy. investment from the Anderson Stewart Family Foundation—a $50 million gift to true generosity of spirit by “The Anderson family is honored to advance CHLA’s commitment to world- sharing ideas, inspiring continue our family’s dedication and class, family-centered pediatric care and support of the important work of further the hospital’s goal of providing a others and leading by Children’s Hospital Los Angeles,” says safety net for the most critically ill. With Judy Munzig, the Andersons’ daughter and this gift, the family is the greatest single example, and for that Chair of the Anderson Stewart Family benefactor in the hospital’s history. reason we are so grateful Foundation. “The hospital’s steadfast devotion to its mission to provide world- “Philanthropically, the Anderson family is for this gift.” class care to critically ill children inspires devoted to improving the lives of others. us and makes us very proud to be among Their years of support and leadership its supporters.” helped Children’s Hospital Los Angeles —Jeffrey Worthe save hundreds of thousands of lives,” Chair of the CHLA Board of Directors (continued on next page) Imagine Magazine | 5
FEATURE Anderson Stewart Family Foundation ▲ Children’s Hospital Los Angeles opened in 1901 in a seven-room house The Extraordinary Impact The hospital’s legacy of providing the best and saw 14 patients in its first year of care is matched only by its commitment to operation. Today, it is a world-class of Philanthropy pediatric academic and research medical treating underserved children. A safety-net center conducting more than half a hospital, CHLA treats the most vulnerable million visits each year. The Anderson family is an integral part members of the community, including of the history—and future—of Children’s critically ill children and those covered Hospital Los Angeles. The family’s by Medi-Cal (California’s Medicaid transformational philanthropy, which program). Last year, half of all children Children and families rely on CHLA includes more than $100 million to the hospitalized in Los Angeles County with a during some of the most difficult hospital over the past 30 years, has been complex condition or a severe illness were times of their lives. The Anderson essential to the institution’s ability to fulfill admitted to CHLA. Stewart Family Foundation’s latest its mission of creating hope and building healthier futures. gift helps Children’s Hospital to: Many of the vital services delivered at Children’s Hospital are not reimbursed or During its 118-year history, Children’s fully reimbursed by government or private Save and improve the lives of Hospital has evolved from a two-story insurance. Philanthropy helps make it more children house on Castelar Street that was a labor possible for all CHLA patients to access Conduct research that has of love for dedicated volunteers and civic the lifesaving care they need, and equips ripple effects across the field leaders into one of the country’s premier the institution’s physicians, researchers, of medicine pediatric academic medical institutions. nurses and other team members with the Invest in innovative ideas appropriate resources to provide that care. Today, CHLA is ranked No. 1 in the and technology Western U.S., No. 1 in California and a Expand capacity at the Building healthier futures top-five children’s hospital nationwide Sunset campus In 2011, CHLA opened the Marion and by U.S. News & World Report. But John E. Anderson Pavilion, a gleaming Build a network of caregivers CHLA has not accomplished this alone: facility that greatly expanded the hospital’s in the community The institution’s history is an ongoing capacity to care for children. Now, the story of exceptional clinicians, scientists, Educate pediatric care leaders Anderson Stewart Family Foundation is philanthropists, leaders and community who will extend our mission making another investment in CHLA members coming together to ensure for generations to come during a crucial time of rising demand for world-class care for children and families. high-quality care. 6 | CHLA.org/DONATE
Anderson Stewart Family Foundation FEATURE “The Anderson family is honored to continue our family’s dedication A NEW ERA OF CARE and support of the important work of Children’s Hospital Los Angeles. The hospital’s steadfast devotion to its mission to provide world-class care to critically ill children inspires us and makes us very proud to be among its supporters.” —Judy Munzig Chair of the Anderson Stewart Family Foundation and the Andersons’ daughter In the eight years since the Anderson Pavilion opened, CHLA’s total patient visits have risen from 393,000 a year to nearly 568,000, which includes close to 100,000 visits to an Emergency Department that was built to handle 65,000. Philanthropy contributes to every aspect of the unique care provided at Children’s L.A. Whether a child is undergoing lifesaving surgery, participating in a leading-edge clinical trial, receiving around-the-clock treatment in an intensive care unit, or having a follow- up visit at a CHLA specialty care center, that care has been impacted by the generosity of the hospital’s supporters. The institution is deeply grateful for the Anderson Stewart Family Foundation’s partnership and dedication to the community’s most precious resource: children. “The entire Anderson family has always demonstrated true generosity of spirit by sharing ideas, inspiring others and leading by example, and for that reason we are so grateful for this gift,” says Jeffrey Worthe, Chair of the CHLA Board of Directors. “It vividly reflects the same heart and devotion for children that guided Marion and John as they supported our hospital over the years, and it allows Children’s Hospital Los Angeles to continue exemplifying that conviction of purpose for years to come.” (continued on next page) Imagine Magazine | 7
FEATURE Anderson Stewart Family Foundation Every patient is touched by your generous gifts ... LEX JORDAN ▲ After undergoing a liver transplant as an infant, Lex is now thriving. Philanthropy supports complex cases like Jordan, who was born Philanthropy supports organ transplants for kids like Lex, who at 6 weeks old was with several serious conditions, found to have biliary atresia. Blocked ducts were preventing the outflow of bile to his including Rubinstein-Taybi small intestine, compromising his liver. He underwent the Kasai procedure, where syndrome, a genetic disorder surgeons remove the bile ducts and connect the small intestine directly to the liver. characterized by crooked thumbs; Afterward, however, Lex’s liver still wasn’t functioning, and doctors determined he nearsightedness so extreme he was needed a liver transplant. He was admitted to CHLA’s Liver Transplant Program, which designated legally blind; and severe has performed more than 370 liver transplants in children. On July 25, 2017, after breathing and feeding difficulties. celebrating his first birthday in the hospital, Lex received his new liver. The transplant The combined efforts of doctors in was a success, and today Lex is back home, a happy and healthy boy. CHLA’s Children’s Orthopaedic Center, Division of Medical Genetics, The Vision Center, Aerodigestive Program and more addressed Jordan’s medical issues. Surgery corrected the shape of his thumbs, eyeglasses helped his vision, and removing the enlarged tonsils and adenoids that were obstructing his airway helped his breathing—which improved his eating, sleep and performance in school. ◄ Jia, pictured at JIA ages 12 and 2, has had nine surgeries at CHLA. Philanthropy supports life-changing care for patients like Jia, who came to CHLA as a toddler for a cleft lip and palate repair. Now Jia, 12, meets annually with specialists in reconstructive surgery, pediatrics, speech and hearing, dentistry and orthodontics, otolaryngology and psychology. Her mother, Kathy, who brought Jia home from China at 17 months old, is a prolific hospital supporter. She is a founding member of the CHLA fundraising team called the Ambassadors, and a founding co-chair of the Care Ambassadors, a group that supports the Institute for Nursing and Interprofessional Research. Kathy has helped raise more than $1 million for the Institute. 8 | CHLA.org/DONATE
Anderson Stewart Family Foundation FEATURE Born with a heart defect that has required a dozen procedures, Max has become an influential health advocate for children. ► MAX Philanthropy supports children with congenital heart disease like Max, who was born with a cardiac defect called tetralogy of Fallot, which required replacing his pulmonary valve and implanting a pacemaker. He has undergone more than a dozen procedures, but throughout he’s been a resolute advocate for CHLA, raising funds for the hospital while serving as a Junior Ambassador. A child actor who had a longtime role on “The Young and the Restless” and starred as a mini Darth Vader in the 2011 Volkswagen Super Bowl ▲ Several CHLA physicians ad, Max travels annually with his family to Washington, D.C., to participate in Family collaborated on the treatment of Advocacy Day, urging lawmakers to pursue policies that benefit children’s health. In 2019, Jordan’s multiple health issues. the Children’s Hospital Association honored his family with the Mighty Advocate Award. “As philanthropists, the Anderson family is steadfastly devoted to improving the lives of others. Their years of support and leadership helped Children’s Hospital Los Angeles save hundreds of thousands of lives.” —Paul S. Viviano, President and CEO of Children’s Hospital Los Angeles Philanthropy supports clinical trials for kids like Michelle, who at age 2 was found to have a cancerous tumor blocking her airway and endangering her life. The results of a genetic test called OncoKids®, developed by the hospital’s Center for Personalized Medicine, showed that Michelle might benefit from treatment with larotrectinib, an oral cancer drug under evaluation in a CHLA clinical trial. Within 24 hours of being enrolled in the trial, Michelle, who was in critical condition on a Saturday, responded to the medication; she returned home MICHELLE the following Tuesday. Her tumor has since shrunk to the point where it wasn’t detected on her last three MRIs. ▲ Thanks to specialized genetic testing and a clinical trial available at CHLA, Michelle received ... from the bottom of our hearts, lifesaving medication. we thank you! Imagine Magazine | 9
WHY WE GIVE Porto’s Bakery Porto’s Bakery founders Raul Sr. and Rosa Porto (center) with their three children and seven grandchildren Porto’s Bakery Each time Betty Porto attends an event at Children’s Hospital Los Angeles, she witnesses something special. “There will be a boy or girl who’s crying and a little cranky. But give The beloved local eatery has been them a cookie and you’ll see those tears turn into a smile from ear supporting Children’s L.A. and to ear,” says Betty, who often personally delivers donated goods for CHLA parties. “For a sick kid in the hospital, a little sweetness can sharing its sweet treats with patients go a long way.” and families for more than 40 years. As Vice President of Community Relations for Porto’s Bakery By Eunice Oh and Cafe, Betty has been bringing her family’s famous pastries to cheer up patients and thank staff members for years, upholding a partnership that dates back to 1976—the year her parents, Rosa and Raul Sr., opened the doors to the first Porto’s storefront less than 2 miles from the hospital. More than four decades later, Porto’s still gives generously to CHLA. These days, the partnership is more formalized. The business has been an ardent supporter of the hospital’s annual Make March Matter fundraising Margarita (left) and campaign, donating a portion of sales from specially designed CHLA Betty Porto at the bakery’s first location butterfly cookies; it hosts another fundraiser the week after Thanksgiving in the late ‘70s ► featuring its best-selling cheese rolls; and recently Porto’s made a sizable donation to fund a renovation project in the hospital. 10 | CHLA.org/DONATE
Porto’s Bakery WHY WE GIVE Here, in her own words, Betty explains why philanthropy has always been important to Rosa and Raul Sr., outside her family—including siblings Raul Jr. and Margarita, who now operate and co-own five the family’s first storefront Porto’s locations with her—and why it remains a fundamental pillar of the bakery today. on Silver Lake and Sunset Boulevards in 1976 ▼ At Porto’s, our customers are like family, and we have some relationships as old as 40 years. We’ve made wedding cakes for couples whose children are now adults, and baby-shower cakes for parents who are now grandparents. When you’re a family-owned and family-run business, it’s not about making money. It’s about relationships that last a lifetime. The more I think about it, we’ve been connected to Children’s Hospital in one way or another for quite some time. It started at a grassroots level, with nurses stopping by or calling me about a party they were throwing for some patients, wondering if we could donate some treats. Or I’d talk to customers who had kids at the hospital. Even right now, we have 1,200 employees, and I can guarantee nearly all of them have either had a child treated at Children’s Hospital or know someone who has. Porto’s is all about family and making memories, so it just makes sense to share a journey with CHLA. Children are everything in our family, and our customers are all about their kids. There are a lot of wonderful charities and causes out there, but I can’t imagine aligning ourselves with something other than Children’s Hospital. Giving is natural for us because it all started with my parents. They are simple, humble people. Even when they “Porto’s supports Children’s Hospital were living in Cuba, under communist rule and without much, they always made sure to share whatever they had because ... we want to give back and with our grandparents, aunts, uncles—everyone. That continued when they came to the United States. They support our community. For our family, we believed in helping others, often giving people money so give because it comes from the heart. It’s in that they could start their own businesses, too. We were taught early on this is what you’re just supposed to do— our makeup. It’s who we are. It’s what we do.” help anyone who needs it. —Betty Porto We’re passing this on to the next generation in our family. There are seven grandchildren, and we want them to be aware of their role in society. My brother, Raul, is always telling them that if they really want to make a difference in this world they need to work hard and stay focused so that they are in a position to give later on. But there are many, many other ways to help, not just through money. I’ve brought my children to the hospital to volunteer with me. I want them to know it’s their social responsibility to make any kind of improvement, big or small. For us, it can be as simple as donating our treats for different events. We have to keep in mind that even though they are hospitalized and f ighting some tough battles, at the end of the day they are ▲ Raul Sr., decorating the bakery’s still kids. festive holiday cakes in the mid-’90s Porto’s supports Children’s Hospital because we believe in the CHLA patient Kairi Ramirez holds hospital’s mission. We also support CHLA because we want a CHLA butterfly cookie designed to give back and support our community. For our family, we by Porto’s for the Make March give because it comes from the heart. It’s in our makeup. It’s Matter campaign. ► who we are. It’s what we do. Imagine Magazine | 11
JP LeVeque and his nephew, Sebastian, spend some quality time together. BEST UNCLE EVER In thanks for his nephew’s life-changing care, JP LeVeque raised an impressive $115,000 to support CHLA—and all he had to do was run the L.A. Marathon. By Marla Lehner 12 | CHLA.org/DONATE
JP LeVeque DONOR PROFILE Early on the morning of March 24, 2019, A rush to CHLA Critical Care Unit (NICCU), Sebastian JP LeVeque sprinted through the starting JP was a few blocks away waiting for word was cooled to 92.3 degrees. Due to the line of the Los Angeles Marathon full of of his nephew’s birth when he received therapy, no one could hold him—they excitement. After about an hour of running, a text saying something was wrong. He could simply sit beside him and hope. his energy started to flag—until he was rushed to the hospital, and when Sebastian “We were in purgatory from the moment reinvigorated by the sight of Children’s and Chris were put into an ambulance we were told HIE was a possibility,” says Hospital Los Angeles’ Sunset campus. headed for Children’s Hospital Los Angeles, Kelly. “Living with the unknown was JP jumped in his car to follow them. so hard.” “It was really nice to see Children’s,” says JP. “It was an emotional experience.” “When I got to the hospital, my brother Children with HIE can suffer from a He had decided to run the marathon a said, ‘The doctors think Sebastian might variety of brain-related conditions and couple of months earlier—not enough have brain damage, but we don’t know,’” have lifelong disabilities. Hypothermia time to properly train—but JP was JP recalls. “But Chris’ response was so therapy minimizes the chances and committed to doing it to raise money for positive to the worst possible news. He severity of potential health issues, but CHLA, where his nephew, Sebastian, had said, ‘No matter what happens, I’m here doctors could not accurately predict received life-changing care. for him.’ I felt like Chris really became a Sebastian’s prognosis until he had grown-up in that moment. It was the first undergone 72 hours of cooling. Running by the institution where time I’d seen him as a parent and I could “Bash,” as his family calls him, had been not have been prouder.” “At CHLA, the doctors and nurses were hospitalized flooded JP with memories exceptional and gave Bash amazing care,” of that difficult time—and gratitude that The next few days were agonizing for the says JP. “But it wasn’t just the doctors: Bash is now a happy, healthy baby. family. In CHLA’s Steven & Alexandra Every person who worked there, top to Cohen Foundation Newborn and Infant bottom, was exceptional. They made my whole family feel comfortable. It felt like An unexpected complication everyone had a common purpose.” It started Oct. 16, 2018: Chris and Kelly LeVeque were at Providence Saint John’s After three days, Bash was slowly Health Center in Santa Monica preparing rewarmed and underwent an MRI to look to welcome their first child. Kelly, a for signs of brain damage. To everyone’s nutritionist and wellness expert, had gone relief, he received a clean bill of health: into labor nearly 24 hours earlier, when Aside from a small brain bleed that finally she gave birth to an 8-pound, occurred during delivery and would resolve 9-ounce boy. The doctors brought baby on its own, he was perfectly healthy. Sebastian to his thrilled parents—but whisked him away moments later. “It was the best and worst moment of my (continued on next page) life,” says Kelly. “He was laid on my chest for seconds, then he was transferred to a baby warmer and someone hit an alarm.” At birth, Sebastian displayed signs of “At CHLA ... every person hypoxic-ischemic encephalopathy (HIE), who worked there, top to a condition that occurs when a baby is deprived of oxygen during pregnancy or ▲ After Sebastian was given a clean bottom, was exceptional. They made my delivery. Babies suspected of having HIE need to be treated with hypothermia bill of health, his parents could whole family feel comfortable. It felt like therapy—an intervention that reduces the finally hold him. everyone had a common purpose.” risk or extent of brain injury by lowering the overall body temperature—but it must be administered within six hours of birth. —JP LeVeque Imagine Magazine | 13
DONOR PROFILE JP LeVeque “An unremarkable brain MRI, along with “If I couldn’t finish the race normal EEG findings, are the optimal or raise the money, I’d feel results,” says Tai-Wei Wu, MD, the embarrassed,” says JP, who had neonatologist who oversaw Sebastian’s set a $20,000 fundraising goal. care. “It was a pleasure to give the LeVeque family this good news.” As it turned out, he had no reason to fret. Within two days, he had Sebastian remained in the NICCU for raised nearly $15,000. He was another two weeks, and went home on astonished by people’s generosity: Oct. 31 as a healthy newborn. Many gave larger gifts than he ever expected, donating $100, “Childbirth is a miracle,” says Chris. $250 or even $500. “Between the incredible care we received at CHLA, the results of Bash’s MRI, JP works in commercial real and finally getting the green light to go estate, which he describes as a home, we felt like we’d been blessed with generous community. He had sent miracles two, three, four and more.” his solicitation to many industry contacts, including Jeffrey Worthe, whom JP had known But how to give back? for years and who is Chair of the JP LeVeque (third from left) after finishing the L.A. Chris, Kelly and Sebastian quickly settled Board of Directors at CHLA. Marathon, surrounded by his family, including wife Marisa, son Henry, nephew Sebastian (on JP’s lap), into life as a new family. Everyone was Although JP thought Worthe brother Chris, son Everett, and sister-in-law Kelly grateful for Bash’s good health—but JP might support his efforts, he could not shake the feeling that he should never anticipated his generosity: honor their good fortune. At CHLA, he “Jeff said he and his wife, Kristin, would JP says the journey—from his successful had seen countless families coping with match whatever I raised.” fundraising to completing the marathon— their own children’s health crises, and he was more rewarding than he had imagined, knew many of them were still there facing As the date of the marathon neared, JP but he is modest about his achievement. critical diagnoses. surpassed his goal, raising more than $50,000. As promised, the Worthe family “It’s not about me,” he says. “All I did was “You can’t help but put yourself in their matched the funds, ultimately helping JP send out an email and go running. It’s all shoes,” says JP. “I wondered, ‘Why did we raise a whopping $115,603. about the generous people who donated. get so lucky?’ I felt like I had to somehow There were 200 individuals and families give back.” who stepped up and gave. I think that’s The bow on top what’s so impressive.” Searching for an idea, JP landed on About 2 miles from the marathon’s finish one that would lead him through a little line, a group of JP’s friends and family— As for the future, look for JP at the more than 26 miles. Calling himself including Chris, Kelly and Sebastian— Los Angeles Marathon in 2020. “I’m going “a regular person who runs,” he had never gathered to cheer him on. to run again to raise more for CHLA,” he considered running more than his usual says, “and try to beat my time.” 3 to 5 miles—until he got the idea to do “We made huge signs and rallied our the marathon to celebrate Sebastian and friends,” says Kelly. “We were tracking Chris—who plans to join his big brother support CHLA. him on the app and knew when he was in the marathon—is touched by JP’s going to run by. We were all screaming. dedication to his family. “My brother Before he could change his mind, Chris even dropped his poster and started has shown us the true meaning of love, JP began telling people about his plan. running with JP. I started crying. It was sacrifice and selflessness,” he says. “Bash is He set up a fundraising page at really emotional for us.” beyond lucky to have him in his life. He’s CHLA.org/FUNDRAISE and sent the best uncle, ever.” an email to friends, family and peers Later that day, the group gathered at JP’s announcing his intentions. As soon as home to celebrate. “It felt like the bow on Children’s Hospital Los Angeles is proud to he hit send, though, JP began to worry. the gift of Sebastian’s health,” says Kelly. be a featured charity partner of the 2020 “We all needed that positive experience to Los Angeles Marathon. To register, go to: wrap it up.” bit.ly/LAMarathonCHLA. Join as a charity runner for CHLA and do more with your race. 14 | CHLA.org/DONATE
CREATE A LASTING LEGACY OF CARE You can create hope and build healthier futures for our children. When you leave a gift to Children’s Hospital Los Angeles in your will or trust, you create a legacy that ensures future generations can benefit from CHLA’s lifesaving clinical care, innovative research and education. For your gift, you will be recognized as a legacy donor in the Emma Phillips Society. We invite you to become a member of the Children’s Hospital Los Angeles family of supporters. To discuss including CHLA in your estate plans, please contact the Gift Planning Office at 323-361-2308 or visit CHLA.org/PlannedGiving for more information. Imagine Magazine | 15
DONOR PROFILE Eszylfie Taylor Eszylfie Taylor with his daughters (from left to right) Shae, Nya and Zoe A FATHER’S GIFT TO HELP MORE CHILDREN IN NEED Even before his twins were treated at Children’s Hospital, Eszylfie Taylor wanted to make a difference—a commitment he’s now solidified through a planned gift. By Eunice Oh For Eszylfie Taylor, it was never a This reality—that children are some of A few years ago, the Pasadena-based matter of if he would support Children’s the most vulnerable members of the financial adviser began giving to CHLA, Hospital Los Angeles. It was simply a community—has motivated Taylor to inspired by the hospital’s work helping matter of when. focus his philanthropic efforts on kids’ families to navigate an incredibly difficult causes. He’s donated to and served on the time—their child’s hospitalization. “I’ve always had a soft spot in my heart for boards of several children’s charities and children,” says the father of three. “They launched his own nonprofit, Future Stars, “I’m always drawn to things where, if I don’t choose to be healthy or unhealthy. which awards scholarships to local kids to were in that person’s shoes, I would want They don’t choose their environment. attend its youth basketball camp, as well as the same,” he explains. They’re just dealt a hand.” academic scholarships. 16 | CHLA.org/DONATE
Eszylfie Taylor DONOR PROFILE Still, it never crossed Taylor’s mind that “What I like most about this program is he would one day find himself in need of that it puts children’s minds in a different CHLA’s expertise. place,” he explains. “Child Life can help kids get into a headspace where they’re positive, informed and empowered and A devastating diagnosis won’t be as fearful about what they’re Taylor’s twins, Shae and Zoe, had been going through. I think that’s often the picture of perfect health. Then, half the battle for them.” seemingly out of the blue, they both started having seizures. Confusion and Taylor is now more passionate than ever fear quickly set in. about giving back and raising awareness about CHLA, often encouraging clients “What is going on? Why is this to support the hospital, a place he says happening?” Taylor remembers thinking embodies two key elements: hope at the time. and encouragement. After undergoing multiple tests and “At Children’s Hospital, you will find seeing different specialists, his daughters hope. You’ll find answers. You’ll get Today, Zoe and Shae are were eventually diagnosed with an healthy, happy 10-year-olds. support,” he says. “And you will see there’s epileptic disorder. Though their condition a light at the end of the tunnel.” is under control today and the girls, 10, are thriving, the ordeal left an indelible mark ‘A light at the end of the tunnel’ on Taylor and reinforced his decision to With his gift, Taylor aims to make support Children’s Hospital. CHLA’s mission of creating hope and building healthier futures a reality for “Before you have kids, I don’t think you more kids. Specifically, he has allocated his truly appreciate how precious it is to be donation to CHLA’s Child Life Program, given a child, a healthy one,” says Taylor. which specializes in helping patients “I’m grateful my daughters are OK, but and families cope with the stress and I realize other parents endure a lot more. uncertainty of an illness or hospitalization. If I’m able to help other kids and families who are going through something similar, I will do whatever I can.” “I’m grateful my daughters Taylor, the founder and President of Taylor Insurance and Financial Services, are OK, but I realize other began thinking about how he could make parents endure a lot an even greater impact and immediately gravitated toward planned giving, an area more. If I’m able to help in which he has extensive experience. He renewed his commitment to CHLA other kids and families through an estate gift that will continue who are going through to grow over time and evolve into a much larger donation than one he could something similar, provide today. I will do whatever “Right now, I have a growing family and I can.” I can’t necessarily afford to give away a million dollars,” says Taylor, 41, who also —Eszylfie Taylor has an older daughter, Nya. “By doing this, one day I will.” Imagine Magazine | 17
Throughout the year, philanthropists, community leaders, corporate sponsors, and grateful friends and families come together to benefit Children’s Hospital Los Angeles. The enthusiasm and generosity of our supporters inspire everything we do and ensure the hospital’s ability to create hope and build healthier futures. It is an honor to showcase some of the recent celebrations and fundraising events on the pages that follow. Mann Family Foundation Dedication ▼ A reception on June 12, 2019, recognized the Alfred E. Mann Family Foundation’s transformative $6 million gift to support leading- edge research in the fight against childhood cancers and other diseases. Half of the donation establishes the Alfred E. Mann Family Foundation Chair in Cancer Research—with Alan S. Wayne, MD, Director of the Cancer and Blood Disease Institute (CBDI), as the inaugural chair holder. The gift also provides $3 million to invest in a 3,000-square-foot aquatic research facility on CHLA’s Sunset campus: The Alfred E. Mann Family Foundation Zebrafish Facility. Led by James F. Amatruda, MD, PhD, the research lab will support scientists in their discovery of new therapies for cancer, diabetes, heart disease and more. ◄ Left to right: James F. Amatruda, MD, PhD, Sarcoma Research Chair for the CBDI; Anoosheh Bostani, Secretary and Treasurer of the Alfred E. Mann Family Foundation; Mike Dreyer, President of the Alfred E. Mann Family Foundation; Robert E. Shaddy, MD, Pasadena Guild Chair, Pediatrician-in-Chief and CHLA Senior Vice President of Academic Affairs; Alan S. Wayne, MD, the inaugural Alfred E. Mann Family Foundation Chair in Cancer Research and Director of the CBDI; and Paul S. Viviano, CHLA President and CEO Reception attendees included Yvonne Higgins Family Charitable Foundation Niami, founder of n:Philanthropy and Trustees Samantha and Harvey Moss a member of the CBDI Leadership with their son, Caleb Council, and Preston Blankenship. ► 18 | CHLA.org/DONATE
CHLA HAPPENINGS Helinet Aviation Dedication ► Kathryn Purwin (center) with team members of the On May 1, 2019, CHLA leaders gathered CHLA Alan Purwin Emergency Transport Program on the hospital’s main helipad to celebrate the life and philanthropy of former Trustee Alan Purwin, who passed away in 2015. The ceremony included a ribbon-cutting in front of the hospital’s new Sikorsky helicopter as the helipad was officially re-designated the Purwin Family-Helinet Aviation Helipad. The Purwin family’s company, Helinet Aviation, has covered the costs of transporting critically ill children to and from CHLA on nearly 9,000 missions over the past two decades. During the event, Lauren Cosentino, with husband Marco by her side, shared her family’s personal story of their infant son, Max, who was transported to CHLA during the Woolsey fire in 2018. ◄ A photo of the late Helinet Aviation founder and philanthropist Alan Purwin was displayed at the dedication event. Helinet Aviation has covered the costs of transporting Left to right: Lauren Cosentino; Marco Cosentino; Alexandra critically ill children Carter, CHLA Senior Vice President and Chief Development to and from CHLA on Officer; and Becky Lythgoe, a member of the CHLA nearly 9,000 missions Foundation Board of Trustees over the past two decades. CHLA’s new Sikorsky helicopter flying over downtown Los Angeles ▲ Left to right: Jeffrey Worthe, Chair of the CHLA Board of Directors and a member of the CHLA Foundation Board of Trustees; Arnold J. Kleiner, a member of the CHLA Foundation Board of Trustees; CHLA President and CEO Paul S. Viviano; Kathryn Purwin, Helinet Aviation CEO and a member of the CHLA Foundation Board of Trustees; Kevin Brogan, Chair of the CHLA Foundation Board of Trustees; and Alexandra Carter, Senior Vice President and Chief Development Officer at CHLA Imagine Magazine | 19
CHLA HAPPENINGS Jeffrey Worthe, President of Worthe Real Estate Group and Chair of the CHLA Board of Directors, with Worthe Real Estate Group Worthe Real Estate Group’s Doreen Lahav employees Desirée Gonzales (left) and Melissa Tindall giving a toy to CHLA patient Valerie Prado ◄ Spring Carnival On May 23, 2019, the Worthe Real Estate Group hosted a spring carnival for CHLA outpatients and their families. Held in the Joyce and Stanley Black and Family Healing and Meditation Garden, the festivities included carnival games, prizes, a magic show and concession stands. More than 60 employees from the Santa Monica-based real estate company volunteered at the event alongside Worthe Real Estate Group President Jeffrey Worthe, who serves as Chair of the CHLA Board of Directors and is a member of the hospital’s Foundation Board of Trustees. ▼ Hyundai Hope on Wheels Handprint Ceremony CHLA patient Joselyn Prado Since 1998, Hyundai and its dealers have donated more than $160 million for pediatric cancer research through the Hyundai Hope on Wheels program. This year, Jesse Berry, MD, Associate Director of Ocular Oncology at Children’s Hospital Los Angeles, received a $300,000 grant to support her research on retinoblastoma, the most common type of eye cancer in children. Left to right: Alan S. Wayne, MD, Director of the Cancer and Blood Disease Institute; The award—which was recognized at a check presentation on Jesse Berry, MD; Thomas C. Lee, MD, Director Sept. 17, 2019—will further her work developing a safer, more of The Vision Center ▼ effective way to biopsy tumors without having to remove the eye. CHLA patient Ruby Chan places her handprint on Dr. Berry’s white coat during Hyundai Hope on Wheels’ signature Handprint Ceremony. The colorful markings represent patients’ journeys, hopes and dreams. 20 | CHLA.org/DONATE
CHLA HAPPENINGS Jimmy Choo Fundraiser ► CHLA supporters Amy Darvish, Nilay Celik and Nadia Zaman co-hosted a fundraiser at Jimmy Choo’s Rodeo Drive boutique in Beverly Hills on Aug. 22, 2019. The fashion house donated 20% of sales during the special shopping event to CHLA’s Children’s Fund. The fund enhances all areas of the hospital, from lifesaving medical care to groundbreaking research. Left to right: Aishwarya Jain, Nehal Lakhani and Rajita Patil ▲ Left to right: Event co-host Amy Darvish; Jillian Green, Assistant Vice President, Corporate Partnerships at CHLA; Alexandra Meneses Simpson, a member of the CHLA Foundation Board of Trustees; Dawn Wilcox, Vice President, Corporate Partnerships at CHLA; and event co-host Nilay Celik Our spider-senses are tingling. It’s your friendly neighborhood Spider-Man cast at CHLA! Zendaya, Jake Gyllenhaal and Tom Holland sharing a laugh with patients Spider-Man Cast at CHLA ► CHLA received a surprise visit from the cast of “Spider-Man: Far From Home” on June 27, 2019. Dressed in character, Tom Holland, Jake Gyllenhaal and Zendaya—who play Spider-Man, Mysterio and MJ, respectively—treated patients to an advance screening of the film, followed by a Q&A and plenty of high-fives, selfies and autographs. The visit was organized in partnership with Sony Pictures Entertainment by the hospital’s Hollywood Cares for Kids™ Program, Edgar Barrerra, the brother which develops opportunities for the entertainment community to of a CHLA patient, with Jake Gyllenhaal and Tom Holland support patients, their families and CHLA through special events, philanthropy, campaigns and other initiatives. Imagine Magazine | 21
CHLA HAPPENINGS ◄ Walk and Play L.A. The third annual Walk and Play L.A., presented by Disney, took place June 22, 2019, at the Los Angeles Memorial Coliseum and included a 3K walk, sports clinics led by professional athletes and a family festival with games, food and live music. Los Angeles Dodgers third baseman Justin Turner and his wife, Kourtney, were the honorary hosts, while KABC-TV anchor Coleen Sullivan served as emcee and CHLA Foundation Trustee Mary Hart presented honors to the leading fundraising teams. Paws for a Cause, the top team, raised more Left to right: Alexandra Carter, CHLA Senior Vice President and Chief Development Officer; than $43,000, helping to bring the total Mary Hart, a member of the CHLA Foundation Board of Trustees; Paul S. Viviano, CHLA amount raised to more than $350,000. President and CEO; and members of the Viviano family kicking off the 3K walk NFL veteran Kerry Rhodes led a sports clinic for kids. Los Angeles Dodgers third baseman Justin Turner and his wife, Kourtney (both in red), with CHLA Junior Ambassador Julie Rose Osumi-Cabaya and her family Presented by Celebrity trainer Dion Jackson (center) and Troy Titus- Barrow (right) led participants in a dynamic warm-up with support from Los Angeles Kings mascot Bailey, members of the LA Kings Ice Crew, the Los Angeles Chargers Girls, Los Angeles Rams cheerleaders and Ontario Fury mascot Stryker. ► 22 | CHLA.org/DONATE
CHLA HAPPENINGS Representatives of the Ontario Fury indoor soccer team at the team’s welcome table Musical guest Camryn entertained the crowd. The top fundraising Disney Village was a team was Paws for a popular new attraction at Cause, which benefited this year’s event. the Amerman Family Foundation Dog Therapy Program at CHLA. LA Kings mascot Bailey with CHLA Dog Therapy volunteer Shelley Buck and therapy dog Yogi The enthusiastic crowd cheered as Disney VoluntEars (in blue) crossed the finish line. ▲ Left to right: One of the event’s top fundraisers, Michael Anthony, former Van Halen bass player, and his granddaughter, Nina Becerra, onstage with Elissa Margolis, Disney Senior Vice President of Enterprise Social Responsibility; CHLA Senior Vice President and Chief Development Officer Alexandra Carter; CHLA President and CEO Paul S. Viviano; and CHLA Foundation Board of Trustees member Mary Hart Imagine Magazine | 23
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