2021 Chicago Congenital Heart Walk - Virtual Walk Participant Guide
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Welcome and Thank You! Thank you for participating in the 2021 Chicago Congenital Heart Walk! The Children’s Heart Foundation is the leading organization solely dedicated to funding congenital heart defect (CHD) research. Our mission is to advance the diagnosis, treatment, and prevention of CHDs by funding the most promising research. To date, you’ve helped fund nearly $14 million in CHD research and scientific collaboration, leading to dramatic increases in survival, longevity, and quality of life for Heart Warriors, and honoring every Heart Angel. Thank you. In 2021, we’re observing our 25th Anniversary, and will look back at the amazing research that you’ve helped to fund, showcasing some of the incredible research breakthroughs and the investigators behind them. We’ll also look ahead to important advances on the horizon you are helping to drive. Last year, despite the circumstances, you raised more than $1,050,000 for CHD research at our Congenital Heart Walks! Nearly 25,000 supporters tuned into our very special virtual events, bringing us all closer together, as we shared exciting research and mission updates, and many beautiful moments with our Heart Warriors and Heart Angels. This year, every Congenital Heart Walk will again include virtual components, with a plan for in-person & virtual hybrid events in the coming months. Our 2021 events include: • A dynamic two-day virtual Walk Week program, including updates on the science you’re funding, videos from more of our strong and brave Heart Warrior and Heart Angel families, and engaging games, activities, and live gatherings. • On Walk Day, join us live for our Mission updates, Moment of Silence and Heart Angel Remembrance, Research Remarks, Acknowledgments, Awards and Entertainment! Then, walk where you are, and share your photos! • This guide outlines the event schedule, where to tune in, and includes an official event bib to customize and wear on Walk Day! Thank you for participating, walking and fundraising! If you have questions, or to email us a photo or remembrance of your Heart Angel to be shared on Walk Day, please email us at WalkForCHDResearch@ ChildrensHeartFoundation.org! The Children’s Heart Foundation 2
Fundraising Ideas! In honor of the child born every 15 minutes in the U.S. with a congenital heart defect (CHD), we’ve got 15 fundraisers you can hold virtually or with physical distancing, to support you in raising critical research funds for our mission. You can access the full Virtual Fundraisers Guide here. Food and Feasts Food can bring us all together, and you can share CHD and Children’s Heart Foundation information while collecting donations or participation. Some ideas include: • Neighborhood Lemonade, Bake or Garden Sale, Cookie Exchange, Cooking for CHDs, Online Ice Cream Social, Virtual Wine Tasting Fun and Fitness We’re physically distancing, but you can close the social distance with online parties, hangouts and get-togethers. Charge admission fees, or encourage donations and pledges for: • Online Game Night, Karaoke Night, Take A Pledge/Make A Pledge, At -Home or Drive -In Movie Night! Scavenger Hunt or Road Rally Family, Friends and Fans Every year our walkers and teams generate generous support from family, friends, co-workers, neighbors and more. Tried and true, these techniques never go out of style! • Facebook Fundraiser, Neighbor Knock, Workplace Fundraiser and Match, Work Your Network, Let’s Take Out CHDs dine-and-donate programs As always, publicize your event widely across your networks! Fundraising Incentives! We’ve got great new incentives to inspire and reward you for your fundraising success, and we’ll ship direct to your home! $25+ $75+ $150+ $500+ $1,000+ CONGENITAL HEART WALK 2021 Placing Children at the Heart of Research CONGENITAL HEART WALK 2021 Placing Children at the Heart of Research Luggage Tag Adult Raglan Aluminum 12-can, PEVA-lined 25th Anniversary Baseball Jersey Sports Bottle Cooler Quarter Zip Up and Youth Standard Tee 3
Walk Week – Day 1 – Thursday, 6.10.2021 Content at www.facebook.com/ChicagoCongenitalHeartWalk unless Zoom is designated. 9:00 AM – President and CEO’s Welcome! Tune into your Walk’s Facebook page for a Welcome message from the President and CEO of The Children’s Heart Foundation, Gail Roddie-Hamlin. 9:30 AM – Our CHD Journey Join us to hear some amazing stories of Courage, Heart, & Determination (CHD) as local Heart Angel and Heart Warrior Families share about their journey with congenital heart disease. 10:00 AM and 1:00 PM – Research Grants Uncovered – Your Impact! You’ve read all about the incredible research grants and scientific collaboration you’re helping to fund! Hear our Medical Advisory Council members and other researchers explain the differences these grants stand to make for Heart Warriors! 11:00 AM – Getting To Know Our Warriors and Angels Join us for some short video reels as we introduce some of our Heart Warrior and Heart Angel families. In this segment, Your Special Heart, Warrior and Angel siblings share about their heart defects and a bit about themselves. 2:00 PM – Heart Heroes Join us for some short video reels as we introduce some of our Heart Warrior and Heart Angel families. In this segment, When I Grow Up, Warrior and Angel siblings tell us about whether they want to be a doctor, a teacher, a mechanic, or another role! 5:00 PM – Family Focus Join us over Zoom* for these family gatherings. Dance Party with Hearty! Calling all young Warriors and Angel siblings to the dance floor! Hearty’s back for our dance parties, and you’re invited! Join us at www.zoom.us, Meeting ID: 360 224 2950. 6:30 PM – Family Focus Join us over Zoom* for these family gatherings. Heart Angel Luminary Lighting. Our Heart Family includes Heart Angels, Heart Warriors, their families, and all of our supporters. Please join us, with a candle or luminary, to honor and remember our Heart Angels. Join us at www.zoom.us, Meeting ID: 360 224 2950. 8:30 PM – Day One Recap – Just Getting Started! Check your Walk’s Facebook page for a daily recap, a preview of tomorrow, and an event progress update! www.facebook.com/ChicagoCongenitalHeartWalk Thank you for joining us today! See you tomorrow! * Please note: Our Zoom Hangouts will include waiting rooms and adult supervision. 4
Walk Week – Day 2 – Friday, 6.11.2021 Content at www.facebook.com/ChicagoCongenitalHeartWalk unless Zoom is designated. 9:00 AM – Volunteer Committee Welcome! Tune into your Walk’s Facebook page for a Welcome message from your volunteer Congenital Heart Walk Committee! 9:30 AM – Our CHD Journey Join us to hear some amazing stories of Courage, Heart, & Determination (CHD) as local Heart Angel and Heart Warrior Families share about their journey with congenital heart disease. 10:00 AM and 1:00 PM – Research Grants Uncovered – Your Impact! You’ve read all about the incredible research grants and scientific collaboration you’re helping to fund! Hear our Medical Advisory Council members and other researchers explain the differences these grants stand to make for Heart Warriors! 11:00 AM – Getting To Know Our Warriors and Angels Join us for some short video reels as we introduce some of our Heart Warrior and Heart Angel families. In this segment, Warrior Show, Tell, Share, we hear about some of the activities, talents, and possessions of our Heart family kids! 2:00 PM – Heart Heroes Join us for some short video reels as we introduce some of our Heart Warrior and Heart Angel families. In this segment, Your Super Hero, Warrior and Angel families tell us about their favorite fictional or real life super heroes! 5:00 PM – Family Focus Join us over Zoom* for these family gatherings. Local B-I-N-G-O. Join us for a family-friendly, locally-themed BINGO game, with lots of laughs and new, special prizes! Join us at www.zoom.us, Meeting ID: 360 224 2950. Download a card here! 6:30 PM – Happy Hour! Join us over Zoom* for some serious fun! What’s Up, Doc? Join us for a fun, heart-themed scavenger hunt, followed by a different style of Q&A session with a local medical professional or researcher! Join us at www.zoom.us, Meeting ID: 360 224 2950. 8:30 PM – Day One Recap – Tomorrow We Walk! Check your Walk’s Facebook page for a daily recap, a preview of tomorrow, and an event progress update! www.facebook.com/ChicagoCongenitalHeartWalk Thank you for joining us today! See you tomorrow! * Please note: Our Zoom Hangouts will include waiting rooms and adult supervision. 5
Walk Day! Will broadcast live on www.facebook.com/ChicagoCongenitalHeartWalk 9:00 AM The Magic of John Kinney 9:10 AM Remarks Program • Welcome, Mission, and Foundation Update • Moment of Silence – Led by local Angel Family • Angel Remembrance • Research Remarks • Acknowledgements • Top Team Announcements 9:45 AM Final Announcements and instructions Walk kick off countdown Walk Starts • Neighborhood Walk for CHD research • Take a team photo to post as your status, don’t forget to carry your flag and post at www.facebook.com/ChicagoCongenitalHeartWalk! • Celebrate your accomplishments and thank you for raising funds for CHD research!!!!! 6
Downloadable Bib – Print, Personalize, Pin and Post! Our 2021 Virtual Congenital Heart Walks will cover more ground than ever before! You can customize your bib number below with a meaningful number then print and wear for your neighborhood Walk. Please post an individual or team photo to your Walk’s Facebook page, www.facebook.com/ChicagoCongenitalHeartWalk. I walk for: 000 www.WalkForCHDResearch.org 7
Thank You Chicago! You are helping to fund critical CHD research to increase survival, longevity, and quality of life for all Heart Warriors, and to honor all Heart Angels. Photo Credits Cover – Nicole Vlahos; Page 4 – Amber Lingenfelter, Anna Mary Wenzel; Page 5 – Elisa and Derek Wu, Keoni Paraz; Page 6 – Simon Family 8
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