2021 Cleveland Congenital Heart Walk - Walk Participant Guide

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2021 Cleveland Congenital Heart Walk - Walk Participant Guide
2021 Cleveland
Congenital Heart Walk
Walk Participant Guide
2021 Cleveland Congenital Heart Walk - Walk Participant Guide
Welcome and Thank You!
Thank you for participating in the 2021 Cleveland Congenital Heart Walk!
The Children’s Heart Foundation is the leading organization solely dedicated
to funding congenital heart defect (CHD) research. Our mission is to advance
the diagnosis, treatment, and prevention of CHDs by funding the most
promising research. To date, you’ve helped fund nearly $14 million in CHD
research and scientific collaboration, leading to dramatic increases in
survival, longevity, and quality of life for Heart Warriors, and honoring every
Heart Angel. Thank you.

In 2021, we’re observing our 25th Anniversary, and will look back at the amazing
research that you’ve helped to fund, showcasing some of the incredible
research breakthroughs and the investigators behind them. We’ll also look ahead
to important advances on the horizon you are helping to drive.

Last year, despite the circumstances, you raised more than $1,050,000 for CHD
research at our Congenital Heart Walks! Nearly 25,000 supporters tuned
into our very special virtual events, bringing us all closer together, as we shared
exciting research and mission updates, and many beautiful moments with
our Heart Warriors and Heart Angels. This year, every Congenital Heart Walk will
again include virtual components, with in-person & virtual hybrid events in the
coming months.

Our 2021 events include:
• A dynamic two-day virtual Walk Week program, including updates on the
  science you’re funding, videos from more of our strong and brave Heart
  Warrior and Heart Angel families, and engaging games, activities, and live
  gatherings.
• On Walk Day, join us live for our Mission updates, Moment of Silence and
  Heart Angel Remembrance, Research Remarks, Acknowledgments, Awards
  and Entertainment! Then, walk where you are, and share your photos!
• This guide outlines the event schedule, where to tune in, and includes an
  official event bib to customize and wear on Walk Day!

Thank you for participating, walking and fundraising! If you have
questions, or to email us a photo or remembrance of your Heart Angel to
be shared on Walk Day, please email us at WalkForCHDResearch@
ChildrensHeartFoundation.org!

The Children’s Heart Foundation

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2021 Cleveland Congenital Heart Walk - Walk Participant Guide
Fundraising Ideas!
In honor of the child born every 15 minutes in the U.S. with a congenital heart defect (CHD), we’ve
got 15 fundraisers you can hold virtually or with physical distancing, to support you in raising
critical research funds for our mission. You can access the full Virtual Fundraisers Guide here.

Food and Feasts
Food can bring us all together, and you can share CHD and Children’s Heart Foundation information
while collecting donations or participation. Some ideas include:
• Neighborhood Lemonade, Bake or Garden Sale, Cookie Exchange, Cooking for CHDs, Online Ice
  Cream Social, Virtual Wine Tasting

Fun and Fitness
We’re physically distancing, but you can close the social distance with online parties, hangouts and
get-togethers. Charge admission fees, or encourage donations and pledges for:
• Online Game Night, Karaoke Night, Take A Pledge/Make A Pledge, At -Home or Drive -In Movie Night!
  Scavenger Hunt or Road Rally

Family, Friends and Fans
Every year our walkers and teams generate generous support from family, friends, co-workers,
neighbors and more. Tried and true, these techniques never go out of style!
• Facebook Fundraiser, Neighbor Knock, Workplace Fundraiser and Match, Work Your Network, Let’s
  Take Out CHDs dine-and-donate programs

As always, publicize your event widely across your networks!

Fundraising Incentives!
We’ve got great new incentives to inspire and reward you for your fundraising success, and we’ll
ship direct to your home!

    $25+                 $75+                         $150+                            $500+                         $1,000+

                          CONGENITAL
                         HEART WALK
                             2021
                                                             Placing Children
                                                         at the Heart of Research

                                        CONGENITAL
                                       HEART WALK
                                           2021

                                                                                             Placing Children
                                                                                         at the Heart of Research

  Luggage Tag          Adult Raglan                   Aluminum                      12-can, PEVA-lined              25th Anniversary
                      Baseball Jersey                Sports Bottle                       Cooler                      Quarter Zip Up
                         and Youth
                       Standard Tee

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2021 Cleveland Congenital Heart Walk - Walk Participant Guide
Walk Week – Day 1 – Thursday, 9.9.2021
Content at www.facebook.com/ClevelandCHW unless Zoom is designated.

9:00 AM – President and CEO’s Welcome!
Tune into your Walk’s Facebook page for a Welcome message from the President and CEO of The
Children’s Heart Foundation, Gail Roddie-Hamlin.

                                            9:30 AM – Our CHD Journey
                                            Join us to hear some amazing stories of Courage, Heart, &
                                            Determination (CHD) as local Heart Angel and Heart
                                            Warrior Families share about their journey with congenital
                                            heart disease.

10:00 AM and 1:00 PM – Research Grants Uncovered – Your Impact!
You’ve read all about the incredible research grants and scientific collaboration
you’re helping to fund! Hear our Medical Advisory Council members and other
researchers explain the differences these grants stand to make for Heart Warriors!

11:00 AM – Getting To Know Our Warriors and Angels
Join us for some short video reels as we introduce some of our Heart Warrior and Heart Angel
families. In this segment, Your Special Heart, Warrior and Angel siblings share about their heart
defects and a bit about themselves.

               2:00 PM – Heart Heroes
               Join us for some short video reels as we introduce some of our Heart Warrior and
               Heart Angel families. In this segment, When I Grow Up, Warrior and Angel siblings tell
               us about whether they want to be a doctor, a teacher, a mechanic, or another role!

5:00 PM – Family Focus Join us over Zoom* for these family gatherings.
Local B-I-N-G-O. Join us for a family-friendly, locally-themed BINGO game, with lots of laughs and
new, special prizes! Join us at www.zoom.us, Meeting ID: 360 224 2950. Download a card here!

               6:00 PM – Family Focus Join us over Zoom* for these family gatherings.
                Heart Angel Luminary Lighting. Our Heart Family includes Heart Angels, Heart Warriors,
                their families, and all of our supporters. Please join us, with a candle or luminary, to honor
                and remember our Heart Angels. Join us at www.zoom.us, Meeting ID: 360 224 2950.

8:30 PM – Day One Recap – Just Getting Started!
Check your Walk’s Facebook page for a daily recap, a preview of tomorrow, and an event progress
update! www.facebook.com/ClevelandCHW

Thank you for joining us today! See you on walk day!

* Please note: Our Zoom Hangouts will include waiting rooms and adult supervision.                          4
2021 Cleveland Congenital Heart Walk - Walk Participant Guide
Walk Week – Day 2 – Friday, 9.10.2021
Content at www.facebook.com/ClevelandCHW unless Zoom is designated.

9:00 AM – Day 2 Welcome!
Tune in on Facebook to see the day’s agenda and more great activities, including our live
Zoom gatherings.

                                  9:30 AM – Our CHD Journey
                                  Join us to hear some amazing stories of Courage, Heart, &
                                  Determination (CHD) as local Heart Angel and Heart
                                  Warrior Families share about their journey with congenital
                                  heart disease.

10:00 AM and 1:00 PM – Research Grants Uncovered – Your Impact!
You’ve read all about the incredible research grants and scientific collaboration
you’re helping to fund! Hear our Medical Advisory Council members and other
researchers explain the differences these grants stand to make for Heart Warriors!

            11:00 AM – Getting To Know Our Warriors and Angels
            Join us for some short video reels as we introduce some of our Heart Warrior and Heart
            Angel families. In this segment, Warrior Show, Tell, Share, we hear about some of the
            activities, talents, and possessions of our Heart family kids!

2:00 PM – Heart Heroes
Join us for some short video reels as we introduce some of our Heart Warrior and Heart Angel
families. In this segment, Your Super Hero, Warrior and Angel families tell us about their favorite
fictional or real life super heroes!

8:30 PM – Day Two Recap – This Weekend We Walk!
Check your Walk’s Facebook page for a daily recap, a preview of tomorrow, and an event progress
update! www.facebook.com/ClevelandCHW

Thank you for joining us today! See you tomorrow!

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Walk Day!
Program updates on www.facebook.com/ClevelandCHW

8:30 AM        Guest Check-In and Activities

10:00 AM       Remarks Program
               • Welcome, Mission, and Foundation Update
               • Moment of Silence – Led by Heart Angel Family
               • Angel Remembrance
               • Research Remarks
               • Heart Warrior Remarks
               • Acknowledgements
               • Top Fundraiser Announcements

10:45 AM       Final Announcements and instructions

               Walk kick off countdown

               Walk Starts
               • Neighborhood Walk for CHD research
               • Take a team photo to post as your status, don’t
                 forget to carry your flag and post at
                 www.facebook.com/ClevelandCHW!
               • Celebrate your accomplishments and thank you
                 for raising funds for CHD research!!!!!

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Downloadable Bib – Print, Personalize,
 Pin and Post!
 Our 2021 Congenital Heart Walks will cover more ground than ever before!
 You can customize your bib number below with a meaningful number then print and wear for your
 neighborhood Walk. Please post an individual or team photo to your Walk’s Facebook page,
 www.facebook.com/ClevelandCHW.

I walk for:
                                    000
               www.WalkForCHDResearch.org

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Thank You
Cleveland!
You are helping to fund critical
CHD research to increase survival,
longevity, and quality of life for
all Heart Warriors, and to honor all
Heart Angels.

Photo Credits
Cover – Nicole Vlahos; Page 4 – Amber Lingenfelter, Anna Mary Wenzel; Page 5 – Elisa and Derek Wu, Keoni Paraz,
Stephanie Mayack; Page 6 – Simon Family

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