TERMS OF REFERENCE - Job in Rwanda
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Situation Analysis in Gender Equity and Inclusion using The Fred Hollows Foundation’s GAPSED+ Equity Framework TERMS OF REFERENCE 1. Relevant Background Information The Fred Hollows Foundation (The Foundation) is a secular non-profit public health organization based in Australia, founded in 1992 by eminent eye surgeon Professor Fred Hollows. The Foundation focuses on strengthening eye health systems and the treatment and prevention of avoidable blindness caused by Cataract, Trachoma, Diabetic Retinopathy, and Refractive Error. The Foundation operates in more than 20 countries across Australia, The Pacific, South and South East Asia, and Africa. The Fred Hollows Foundation (FHF) began working in Rwanda in 2007 in Rubavu district in Western Province. This followed results of a Rapid Assessment of Avoidable Blindness (RAAB) conducted in Western province of the country in 2006 which found that 83.9 per cent of people living with blindness had avoidable causes, primarily cataract. The Fred Hollows Foundation Rwanda (FHFR) works with the Government of Rwanda in strong partnership through Ministry of Health (MOH), who leads implementation in 44 district public hospitals, together with the Rwanda International Institute of Ophthalmology (RIIO), other professional bodies such as Rwanda Ophthalmology Society (ROS), Rwanda ophthalmic clinician Officers and Cataract Surgeon Society (ROCOCS) and other eye health stakeholders including CBM, One Sight and Del Vecchio. FHFR, together with the Government and its partners, have been working closely to implement national policies and strategies to restore sight and eliminate avoidable blindness in Rwanda by increasing access to comprehensive eye health services, with a focus on cataract treatment, through a health system strengthening (HSS) approach for sustainability. From 2007 to 2013 FHF projects were focused on eye health service delivery in one rural district in the Western Province. During 2014 – 2016, FHF and other international organizations active in the Eye Health sector supported the Ministry of Health to expand service delivery to several rural districts of the country. In 2017, FHF launched the “Rwanda Integrated Eye Health Sector Development (July 2017- December 2021) with the aim being to support government in ensuring good quality eye care is available to all people as an integral part of the wider health system in Rwanda. With challenges experienced of inadequate number of ophthalmologists in rural areas, the modality for cataract services delivery shifted to an outreach approach, delivered in partnership with the Rwanda Ophthalmology Society (ROS). This saw a significant increase in cataract surgeries. From 2019 the Foundation approach evolved to working in partnership with the Ministry of Health by integrating cataract and eye care service indicators into the Performance Based Financing (PBF) scheme (through the Integrating Eye Health into Rwanda Performance Based Financing (PBF) Project (July 2019 to June 2023). The Foundation was the pioneer NGO to support this innovative model. The PBF project is complemented by a health system strengthening (HSS) component to enhance human resources for eye health, strengthen equity, demand and uptake for eye care services; strengthen national level supply chain management; build strategic partnerships with key stakeholders for comprehensive eye health care and undertake critical research to inform eye health programming. 1
2. Rationale for conducting the Gender Equity and Inclusion Analysis: The Foundation is committed to ensuring that our programs consider the needs of the poorest and most marginalised in the places where we work, including the complexities relating to issues of inequity in access to eye health care and appropriate responses. To fulfil this commitment, we have adopted the GAPSED+ equity organising framework. GAPSED+ stands for gender, age, place of residence, socio-economic status, ethnicity/indigeneity/race, disability, or any other factor. The GAPSED+ organising framework is used to understand who is most marginalised and excluded in terms of access to eye care and ensure that our work targets the needs and respects the human dignity of these specific groups and communities. The Foundation is committed to actively engage with those groups and communities, and their representatives, in decisions about their eye health to support their empowerment. This analysis will inform the development of the Health System Strengthening (HSS) project, and it is also hoped that the findings could inform the PBF project and the Country Strategy, more broadly. Equity barriers to eye health: Rwanda is one of the few countries where males experience more of the burden of vision impairment and blindness than females.11 According to the RAAB 2015, the main barriers to accessing cataract surgeries included: inability to reach the hospital, lack of awareness that treatment is possible, inability to afford operation (due to lack of Community Based Health Insurance (CBHI), but also due to additional costs even where one had CBHI). The lack of awareness is attributed to inadequate community engagement and weak primary eye care services. Comprehensive eye care services are not adequately available and affordable especially for people in remote areas of Rwanda. The direct and indirect costs of accessing services are often not affordable by the poorest and marginalised. People living with disability are not fully integrated, so a further strategy for inclusion is needed. Also noted were high leakages in the referral system between the primary eye health system and the secondary and tertiary levels, and lack of a system to track the referrals. Since July 2019, eye care data has been captured in the national health information system (HMIS) – a significant step in having single source data. Key challenges remain around the lack of disaggregated data, particularly by sex and age (which PBF project seeks to address); limited research to inform eye health; and information flow not clearly defined between levels of service provision. 3. Gender Equity and Inclusion Analysis Objective: The purpose of this analysis is to gather and analyse data about the barriers faced by disadvantaged groups in accessing eye care services and propose recommendations to address those barriers and challenges. The analysis will examine the intersectionality between gender, disability, age, and other marginalised groups and how these intersections of inequities can create more barriers to accessing and uptake of eye health services. The analysis will also explore opportunities to integrate eye health within existing community-based organisation health promotion initiatives, for increased community engagement and ownership. The findings and recommendations from this study will inform The Foundation in Rwanda on what interventions and partnerships it would need to forge, to comprehensively address the barriers and challenges faced by these disadvantaged groups in accessing eye care services, when designing new eye health projects. It is envisaged this study will help Rwanda team to: 1. understand the trends of women and men, the elderly and persons with disabilities accessing eye health services from health facilities from 2016 to December 2021; 2. understand patients’ perceptions on available eyecare service provision and barriers and enabling factors of accessing the service, their satisfaction with regard to quality and accessibility to the services. 2
3. identify the eye health needs and priorities for women and men, the elderly, people with disabilities, and other disadvantaged groups. 4. identify the areas of greatest need for women and men, the elderly, people with a disability and other disadvantaged groups and prioritise interventions 5. understand how well these groups are able to utilise the community-based health insurance (CBHI) to access eye health services 6. understand the proportion of women, men, the elderly, people with disability in the eye health workforce; and 7. understand the experiences of men and women, the elderly and people with a disability within the eye health workforce. 8. Define what partnerships to enhance gender equity and disability inclusion in eye health would look like. 9. Define what success would look like for gender equity and disability inclusion in eye health 10. Determine the key community-based organisations engaged in health promotion activities at community level; and opportunities to integrate eye health and enhance community engagement in eye health. 4. Findings Audience and utilization: The key audience for this gender equity and disability inclusion analysis is the FHF program team, who will use the findings to further refine the project design of the Health Systems Strengthening project. In addition, information may also be shared with key partner organisations and where possible be used to form base line data against which to measure project progress. Key partners will include Ministry of Health, Ministry of Gender and Family Promotion, Organizations for people with a Disability and the elderly, Gender Equity Organisations and other eye health NGOs including CBM, One Sight and Del Vecchio. 5. Information Needs: To complete the gender and disability analysis information sources will include: • Review of any past similar analysis to eye health and health more broadly • 2020 eye health data disaggregated by sex from key eye health stakeholders (private and government sectors) • Qualitative information from patients on their experiences disaggregated by gender, disability and age • HMIS data from 2016-2021 • Stakeholders’ data or studies on people with a disability, and the elderly access to eye health (CBM, NUDOR, HelpAge International) • Information on policies and processes within the eye health workplace regarding gender and disability • Data disaggregated by gender and disability on eye health personal at different levels or cadre’s • Data disaggregated by gender and disability on who is attending training • Qualitative information from eye health personal of their experiences within the eye health workplace The key questions to be addressed in this study are as follows: 1. What are the different challenges faced by women, men, elderly, people with disability and other disadvantage groups in accessing eye care services? 3
2. What are eye health initiatives currently doing to address those challenges? What more needs to be done? 3. What changes due to COVID-19 have women, men and elderly experienced in eye health service access & uptake? 4. To what extent has community-based health insurance (CBHI) enabled access to eye health services for women, men, elderly, people with disability and other disadvantage groups. What is working well and what are the gaps? What more needs to be done? 5. What actions can eye health programmes implement to address gendered, aging and disability barriers for patients? 6. What gender discrepancies exist in the eye health workforce and why? 7. Has COVID -19 exacerbated any gender discrepancies in the eye health workforce and how? 8. How can gender discrepancies in the eye health workforce be mitigated? 9. Who are the gender, disability and aged organisations that we could potentially work with at local level and other levels? 10. What referrals exists for people who are irreversibly blind? Who are the community rehabilitation disability services in the areas that the project works in; and which ones could FHF potentially work with? 11. Which are the key community-based organisations engaged in health promotion activities at community level? What are the opportunities to engage with community-based organisations for eye health promotion? 12. How could the health system function more effectively to promote gender and disability inclusion/ equity in Rwanda? 13. Where do the opportunities or entry points for change exist along the continuum of care from a supply and demand side perspective? 6. Data Collection Methodologies: Data sources: • Primary data from FGDs and KIIs with participants • Secondary data from HMIS data from partners disaggregated by sex and age; and other literature as discussed below. Methods: QUANTITATIVE DATA – this methodology will provide a baseline understanding of the current climate around GAPSED+ in Rwanda Desk Review Consolidating of existing peer-reviewed, national/regional prevalence and community surveys, grey literature and other information on barriers to accessing eye care services, including review and analysis of the 2016-2021 eye health data from HMIS disaggregated by sex and age; and data from key partners (private and government sectors) and available disability and elderly data. Review of any past similar analysis to eye health and health more broadly. The desk review will also review information on policies and processes within the eye health workplace in regard to gender and disability and review data on eye health personnel at different 4
levels or cadre and data on who is attending the residency training started in 2018. Information from desk review will inform any information gaps. QUALITATIVE DATA – this research methodology is intended to meet the study objectives by addressing any information gaps remaining after Desk Review Focus Group Discussions (FGDs) FGDs will be conducted with key stakeholders, partners and beneficiaries to gain a deeper understanding of the equity issues they face. The discussion should be semi-structured and provide a safe space for participants to provide their perspectives around topics discussed. A guide for FGDs is provided in the Gender Equity Analysis Toolkit. Key Informant Interviews (KIIs) These interviews should be on to one with participants. KIIs will be able to provide more in-depth qualitative data from people who are ‘experts’ in their field. KIIs for this study can include health care staff, health offices etc. Generally, interviews are ‘semi-structured’ – that is, they are guided by a set of questions but allow for probing and exploration where appropriate. A guide on semi-structured KIIs is provided in the Gender Analysis Toolkit. Case studies of patients: Potentially ‘walk along’ methodology where researcher meets patient(s) at home and goes on the journey with them to the health facility and records what they see and what the patient(s) says. This would be observational NOTE: The Fred Hollows Foundation understands the research approach will be informed by above mentioned steps, and particularly the Desk Review and so design may change during this project. Changes are to be made in consultation with FHF. Conduct Research: Research undertaken. a. A. - Data Collection Plan Methodology Data Source Participants Other notes Desk review Secondary Data – HMIS data server statistical; available relevant literature/reports (qualitative) FGDs Primary Data • Women from community • Men from community • Elderly men and women from community • Men and women with a disability • People who have undergone eye treatment/cataract surgery KIIs Primary Data • Ophthalmologists from owned Private owned hospitals, • Ophthalmologists from Gov-owned provincial, district hospitals, • District Health Officers Case studies of Primary data • Patients screened for cataract (access patients through health facility records) 5
7. Data Analysis: Please refer to the Gender Analysis Rough Guide developed by The Foundation and endorsed by the International Agency for the Prevention of Blindness (IAPB). This Rough Guide provides detailed guidance about how to carry out a gender analysis, with much of the guidance being equally applicable to disability. The Guide includes tips for carrying out interviews, observational investigation, guiding questions etc. It is recommended this document be referred to at the outset and used during the duration of the study. Also refer to the Rough Guide to Disability Inclusive Eye Health Programming developed by The Foundation. The consultant(s) will propose the data analysis plan and software used to The Foundation to ensure sex disaggregated data of women, men, the elderly, and people with disabilities is generated answering all research questions above and meet the objectives set. 8. Participants: Engagement with participants for this study will be conducted in a COVID safe manner which may include remote data collection and/or virtual interviews, and will include but not limited to: • Sample eye health facilities (including key eye health personnel) • Gender and DPO agencies/CBOs/NGOs (gender organisations including Profemmes/Twese Hamwe, Rwanda Men’s Resource Centre (RWAMREC)) • HelpAge International & in country partners • Social Protection agencies • Community members (male and female and elderly) • Community members (male and female and elderly) who have accessed cataract surgeries using CBHI • Community health workers • MOH (Directorate implementing PBF and National Eye Health strategic plan) • RIIO, CBM, One Sight etc (need to have specific questions for each NGO/partner based on their level of engagement around gender and disability inclusion e.g CBM doing a lot on disability inclusion so questions should be tweaked to take this into consideration) 9. Timeframes, Activities and Deliverables: Timeline Activities Deliverables 26 November 2021 Terms of Reference for Gender Analysis & Term of Reference & Scope of Work Inclusion Research Development finalized 29 November -19 Publish EOI. Select consultant/research team Contract for consultants/Research January, 2022 and preparing paperwork for consultants who institution conduct the research Researchers obtain Ethical Clearance Ethical Clearance to conduct research 21 January -2nd obtained. February 2022 Researchers undertake Desk review Consolidated report on existing information/research findings Research plan with methodology, data collection tools, and data collection plan. 6
Researchers develop and submit plan and Presentation of desktop review and draft By 2nd February 2022 methodology for the collection of additional of research plan to FHF. necessary data Completed primary & secondary data sets Data collection as per research plan Draft Report of Analysis 14 - 24 February 2022 Research Team prepares 1st Draft Report of 4 March 2022 Analysis detailing key findings implications & recommendations (an initial presentation by consultant may be requested by FHF) 14 March 2022 FHF provides feedback to Research Team on Feedback on Draft Report Draft Report 23 March 2022 Research Team prepares and submits Final Final Report Report 31 March 2022 Research Team presents findings to FHF and Presentation FHF partners 10. Ethics approval It is the responsibility of the research team to gain appropriate ethics approval with support of FHF for this study. 11. Budget: Detailed itemised budget to be provided by consultants as part of EOI. Any proposed changes to the budget would need to be negotiated between Researcher Team and The Foundation. 12. Reporting and Dissemination of Findings: The Research Team will provide a brief presentation of desk review focused on relevant findings and identification of gaps. At this presentation, research team will provide a draft of research plan for primary data collection (specifically research questions, approach, methods and analytical approach) to FHF. The Research Team will prepare and share a draft report of key findings of the analysis and implications for future programming with The Fred Hollows Foundation. FHF may request consultant to conduct an initial workshop for presentation of findings based on this draft report. 7
After the report has been reviewed (and initial workshop held), the Research Team will incorporate the feedback and prepare final report to be submitted to The Fred Hollows Foundation. Research team will also submit all data collected to FHF foundation. Lastly, the Research Team will present the findings to the Fred Hollows Foundation and its Partners in a dissemination workshop 13.Management team (FHF and Consultant) Name Responsibility Moses Munyamahoro Overall project focal person, provide all project information Country Manager FHF Rwanda and data to the selected consultant, help support organize meetings and field data collection. Ensure implementation of the assignment. Finance and Operations Coordinator Contract management/ Financial and administrative related functions Lead Consultant Evaluation Plan development based on data, report and secondary information shared by FHF Rwanda. Development of Data collection tools Data collection, Analysis, Synthesis, Report writing, reviewing, and finalizing the report Gender and disability technical Technical support, review evaluation plan, tools, and report. advisors Guide the consultant about FHF GAPSED framework, , guidelines and sharing examples (samples) for effective completion of GAPSED analysis. Monitoring & Evaluation Review of data collection tools, study protocol, and final Coordinator, CSN FHF Rwanda report. PD Partner, CSN Africa & Middle East Technical Support, review TORs, evaluation plan, data collection tools and report 14. Consultant Key Selection Criteria: Essential • Well experienced in mixed-methods research design, implementation and analysis (Experience in equity studies, preferred) • Demonstrated ability to lead consultative stakeholder processes and prepare quality reports in English • Strong ability to translate research evidence into programmatic and advocacy recommendations. • Understanding of Rwanda and the health system; and ability to work in Rwanda context, including ability to speak French and English. The consultancy team must also include Kinyarwanda speakers. • Research Team are resident in Rwanda • Able to conduct data collection remotely and/or virtually through local networks or if possible to travel domestically for data collection. As there are current WHO recommendations and FHF organisational restrictions limiting international and national travel, we are seeking proposals that outline innovative and rigorous methodological approached to digital and/or local data collection to ensure the research is conducted in a COVID-19 safe manner. • Availability to deliver project from 14th January to March 2022. 8
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