SUPPORTING FAMILIES IN THE POST-COVID WORLD - AUCD
←
→
Page content transcription
If your browser does not render page correctly, please read the page content below
8/3/2020
SUPPORTING FAMILIES IN
THE POST-COVID WORLD
PROJECT ECHO FOR FAMILIES TO IMPROVE
CAPACITY IN RURAL COMMUNITIES
1
POST COVID-19
• Very few DD services
• Potential for HUGE service cuts
• Minimal opportunity for best practices
• ABA / ESDM
• AT
• Behavioral supports
• Isolation abounds
• Need for more telehealth and distance services
2
1
8/3/2020
WHAT ABOUT
WYOMING?
• Unique environment
• Large geographic area
• Small population relative to
size
• More frontier than rural
3
HRSA Designated Provider Shortage Areas
Dental Health Mental Health Primary
PROVIDER SHORTAGE
County
Albany Yes Yes Yes
AREAS
Big Horn No Yes Yes
Campbell Yes Yes Yes
Carbon Yes Yes Yes
Converse Yes Yes Yes
• HRSA 2016
Crook Yes Yes Yes
Fremont Yes Yes Yes
Goshen Yes Yes Yes
• >3500 individuals Hot Springs Yes Yes Yes
per provider Johnson
Laramie
No
Yes
Yes
Yes
Yes
Yes
Lincoln No Yes Yes
Natrona Yes Yes Yes
Niobrara Yes Yes Yes
Park Yes Yes Yes
Platte Yes Yes Yes
Sheridan Yes Yes Yes
Sublette No Yes Yes
Sweetwater Yes Yes Yes
Teton No Yes Yes
Uinta No Yes Yes
Washakie Yes Yes Yes
Weston Yes Yes Yes
4
2
8/3/2020
WHAT IF
CHILD NEEDS
A SPECIALIST? • Problems facing individuals with autism and their
355 miles families living in WY
5
PROFESSIONAL
DEVELOPMENT:
ECHO
• Develops expertise over time
• 30 minute didactic • Health Affairs 2011
• Case presentation • As safe/effective as specialist
• Expert advice • NEJM 2011
• Co-learning • Demonopolizes knowledge
• Ongoing case consultation
• Academic Medicine 2014
6
3
8/3/2020
GLOBAL
MOVEMENT
7
ECHO FOR EDUCATORS
8
4
8/3/2020
9
10
5
8/3/2020
IMPACT
11
IMPACT: WEEKLY EVALUATIONS
• Teacher impact
• Average session attendance: 25.65 (12.4)
• Satisfaction
• Weekly Knowledge Change
• Pre: M=3.06 (.91); post: M=3.63 (.78)
• Weekly Skill Change
• Pre: M=2.97 (.92); post: M=3.45 (.81)
12
6
8/3/2020
IMPACT: PRE/POST ASSESSMENT
• Teacher impact
• Knowledge/skills
• Pre to post
• Baseline knowledge deficit:
• pre: M=3.2 (1.04), ideal: M=4.3(1.2), t(556) =
24.0, p
8/3/2020
PARENTS & IEP MEETINGS
15
VALUE OF FAMILY SUPPORT
• Tons of family stress
• Social support is a protective factors
• Maternal mental health (Benson 2012; Weiss 2002; Zaidman-Zait et al. 2017),
• increased sense of competency (Benson 2012; Ekas et al. 2010; Weiss et al.
2016)
• service utilization (McIntyre and Brown 2018)
• Emotional quality of life and satisfaction with child’s care (Moody, et al, 2019)
16
8
8/3/2020
BIOECOLOGICAL
THEORY OF
HUMAN
DEVELOPMENT
-Bronfenbrenner
Moody, E.J., Sturges, H., Zlatkovic, S., Dahl, E., Root-Elledge, S. (In Press). A
Public Health Approach to Family Supports: Empowering Families of
Children with Autism Through the ECHO Model, International
Review of Research in Developmental Disabilities: Family-Focused
Interventions, 59.
17
DISTRIBUTED
INTERVENTION
• UW ECHO for Family:
Autism
• Blend ECHO and Wy Family
Mentorship
• Provide
• Basic information
• Emotional support
• Case presentation with
experts
• Behavioral strategies
18
9
8/3/2020
UW ECHO
FOR FAMILY:
AUTISM
19
20
108/3/2020
TOPICS
• Behavioral supports
• Interventions
• Financial planning
• IDEA / IEP
• QOL
• Home school ala COVID
• Distance IEPs
• Etc.
21
22
118/3/2020
IMPACT
• Weekly attendance
• M = 25 attendees
• Increased understanding: 94%
• Satisfaction: 96%
• Useful: 92%
• Improve family life: 89%
• Increased connection to other
families: 84%
23
24
128/3/2020
25
OTHER PROGRAM COMPONENTS
• Parent mentorship
• Distance based
• Trained mentors
• Ongoing TA
• Regional leadership network
• Local advocacy
• Ongoing training
26
138/3/2020
WHAT ECHO FOR FAMILIES DOES:
• ECHO adaptation works
• Families, educators & healthcare
• Leverages technology
• Highly acceptable
• Knowledge/skills
• COVID and rural needs
27
PROGRESS & FUTURE DIRECTIONS
• Refine delivery to families
• Time, content, disabilities
• Student level outcomes
• Cases and classes
• Diversify topic areas
• Alignment with community needs
• Adaptation to ongoing COVID needs
28
148/3/2020
ACKNOWLEDGMENTS
• Sandy Root-Elledge • Reshmi Singh • R40MC022643 (HRSA)
• Canyon Hardesty • Victoria Estrada • T73MC11044-04-00 (HRSA)
• Family mentors • Elyssa Smith • UL1 RR025780 (NIH)
• Regional leaders • Shira Kern • U10DD000180 (CDC)
• All Families in WY • Haley Sturges
• Kristen Kaiser • Rachel Freedman
• Wendy Warren • All WIND Staff
• Sarah Zlatkovic • MCHB Partners
29
15You can also read
