HOW CAN GOOD RESULTS BE EVEN BETTER? - (Part 1) - RCPCH
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THE SAHLGRENSKA ACADEMY HOW CAN GOOD RESULTS BE EVEN BETTER? (Part 1) NATIONAL PAEDIATRIC DIABETES AUDIT ANNUAL CONFERENCE 2020, JANUARY 17 HOLIDAY INN, REGENTS PARK GUN FORSANDER, ASSOCIATE PROF THE QUEEN SILVIA CHILDRENS HOSPITAL SAHLGRENSKA UNIVERSITY HOSPITAL GOTHENBURG SWEDEN
THE SAHLGRENSKA ACADEMY DISCLOSURE I HAVE RECEIVED LECTURE HONORARIES FROM LILLY, NOVO NORDISK, SANOFI, RUBIN-MEDICAL
THE SAHLGRENSKA ACADEMY Examples of ongoing work to improve quality of pediatric diabetes care … • Internationally; Sweet Study, ISPAD • Nationally; Swediabkids, IQ-project • Locally; Policy paper, the Angered project Picture: Edvard Munch
THE SAHLGRENSKA ACADEMY Common treatment targets for a child with diabetes • A high quality of life - both now and for the future • Normal mental and physical growth • No DKA and severe hypoglycaemia • No long-term complications
THE SAHLGRENSKA ACADEMY Were all the problems solved one hundred years ago when the access to insulin treatment appeared? • A lack of insulin is still globally the most common reason behind death in children with diabetes • Insulin is no cure, only a life-supporting treatment • During the decades after introducing insulin treatment 1922, the complications of the disease were shown • The question araised: does the way how the insulin treatment is implemented influence the risk for cardiovascular complications?
THE SAHLGRENSKA ACADEMY Complications must be avoided- also of monitary reasons: • Diabetes complications causes at least 80 % of the diabetes related costs in society … must more than insulin, CGM, insulin pumps etc…
THE SAHLGRENSKA ACADEMY ) Summary of consensus definitions Diabetes Care 2017 Dec; 40(12): 16221630. https://doi.org/10.2337/dc17-1624 Outcome Definition Level 1: glucose 250 mg/dL (13.9 mmol/L) Percentage of readings in the range of 70–180 mg/dL Time in range (3.9–10.0 mmol/L) per unit of time Time in target 3.9-7.8 mmol/l (70-140 mg/dl) Elevated serum or urine ketones (greater than the upper DKA limit of the normal range) and serum bicarbonate
THE SAHLGRENSKA ACADEMY Well and insufficiently controlled patients all centres, 01/01/2018 - 31/12/2018 - the width of the bubble represents the size of the centre - yellow bubble: your center - minimum requirement: 50 patients 8
THE SAHLGRENSKA ACADEMY HbA1c: standard, median of patients’ medians T1DM, 0-18y, 01/01/2018 - 31/12/2018 STANDARDIZED: mathematical correction of the HbA1c-values: HbA1cSTANDARDIZED = (HbA1c-RAW / mean HbA1c of your lab- method) x 5 Median of patients’ medians: first calculate the median per patient per period, then the median of these medians Number of patients must be at least 20 for being displayed. 9
THE SAHLGRENSKA ACADEMY BMI-SDS: T1DM, patients 0-18y, WHO 2007reference 01/01/2018 - 31/07/2018 10 N = number of patients with a calculated BMI standard deviation score(SDS) Based on the mean of the patient’s medians (every patient with a calculated SDSvalues contributes with onemedian.
THE SAHLGRENSKA ACADEMY Some national Swedish diabetes quality initiatives and results Painting by E Munch
Swedish National Pediatric Diabetes Registry • Incidence of type 1 diabetes is 45/100 000 in children below 18 years of age • Second highest incidence in the world • Almost everyone diagnosed with diabetes is included in the registry • All 42 pediatric clinics that treat children with diabetes report data
THE SAHLGRENSKA ACADEMY https://swediabkids.ndr.nu
THE SAHLGRENSKA ACADEMY The Button A push of a button for improvement work NDR.nu ”Knappen” The Button with results from all of Sweden
HbA1c ≤ 6.5% HbA1c ≤ 6.6-6.8% HbA1c ≤ 6.9-7.3% HbA1c ≤ 7.4-8.6% HbA1c > 8.6% ISPAD 2019 Karin
ISPAD 2019 Karin Åkesson % Proportion CGM users, % Age
Proportion pump users, % % Age
THE SAHLGRENSKA ACADEMY Effective team work Study of Swedish pediatric diabetes clinics via • Higher compliance with guidelines • SWEDIABKIDS Clear message of lower HbA1c-goal • Well functioning teams Five centers were selected: • Lower proportion of diabetes specialist educated team members … • lowest/ Shorter highest/largest professional working time … decrease center regarding mean value • of HbA1c Engaged team members with a positive attitude • Higher mean insulin dose Team members were asked to fill out questionnaires: • Larger diabetes center Structure, Process and Policy • “Team members’ policy and approaches affect glycaemic control in children and adolescents. Team members need to be aware of their approach and of the importance of using resources within the team”. L Hanberger, Diabetes Res Clin Pract, 2012
THE SAHLGRENSKA ACADEMY Insulin dose Compliance to guidelines at HbA1c levels Process above target value Centre size Team size Structure Years of diabetes experience Specific diabetes education HbA1c target value Policy The national Swedish HbA1c target at the time of the study was
THE SAHLGRENSKA ACADEMY Effective team work with lower HbA1c values were characterized by: • Higher compliance with guidelines • Clear message of lower HbA1c-goal • Well functioning teams • Shorter professional working time (!) • Engaged team members with a positive attitude ISPAD 2019 Karin Åkesson L Hanberger, Diabetes Res Clin Pract, 2012
THE SAHLGRENSKA ACADEMY As a consequence of this study, a new national project was launched … … The IQ-project!
THE SAHLGRENSKA ACADEMY Improving the quality of Swedish pediatric diabetes care • Initiative taken by the steering group of SWEDIABKIDS • Improvement would be reached by changes in work processes and not by an increased work load Peterson A, PLoS One 2014;9:e97875.
THE SAHLGRENSKA ACADEMY Improving the quality of Swedish pediatric diabetes care • Initiative taken by the steering group of SWEDIABKIDS • Improvement would be reached by changes in work processes and not by an increased work load • Learning sessions included lectures on improvement methods, teamwork and learning, and sharing data and ideas • In the intervals between the learning sessions, the team identified problems and improvement areas at their centres, created action plans, tested effect of changes, and followed up on the results Peterson A, PLoS One 2014;9:e97875.
THE SAHLGRENSKA ACADEMY Improving the quality of Swedish pediatric diabetes care • Initiative taken by the steering group of SWEDIABKIDS • Improvement would be reached by changes in work processes and not by an increased work load • Learning sessions included lectures on improvement methods, teamwork and learning, and sharing data and ideas • In the intervals between the learning sessions, the team identified problems and improvement areas at their centres, created action plans, tested effect of changes, and followed up on the results • Outcome variables were clinical, and included HbA1c, severe hypoglycemia (unconsciousness, seizures) and DKA • The process measures were documentation of smoking habits and the degree of physical activity Peterson A, PLoS One 2014;9:e97875.
THE SAHLGRENSKA ACADEMY IQ project LM = Lunch Meeting, PM = Phone Meeting ISPAD 2019 KARIN ÅKESSON Peterson A et al, PLOS, 2014
THE SAHLGRENSKA ACADEMY Tools • Problem inventory • 5P (Purpose, Patients, People, Process, Patterns) • Clinical value compass Changes that lead to • Flow charts improvements • Activity plans • PDSA-wheel (Plan, Do, Study, Act) • 12-14 diabetes teams at each course Ideas, theories
THE SAHLGRENSKA ACADEMY Fishbone diagram used in the IQ project External collaboration Staff Structure of team meetings Day care / School Attitudes to the team work Social service Large turnover of dieticians Child Psychiatry Vague guidelines from the team Pharmacy Update of local policies and guidelines Insufficient education of the staff Decrease HbA1c Different ability to cope The patients with the disease lack tools 100 /500-rule Unmotivated to meet Education about Clarify the leadership of with dietitian late complications the team Forgets insulin More pumps Revise the care plan? doses Clarify the care plan for the patient Talk about blood glucose, Adherence to Too few blood not HbA1c! the care plan? glucose tests Age Group meeetings Patient Self-care Care plan Patient education
THE SAHLGRENSKA ACADEMY What were the project ideas of the individual teams about? Examples: • Frequent visits if high HbA1c • Carbohydrate counting from onset • Increased use of CGM and pumps • Increase the proportion of patients with HbA1c < 57 mmol/mol • Reduce proportion HbA1c > 70 mmol/mol • Lowering target HbA1c to < 52 mmol/mol • No increase in severe hypoglycemia Peterson A, PLoS One 2014;9:e97875. Samuelsson U. Pediatric Diabetes 2016
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