TULIP TALKS - Parkinson's New Zealand

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TULIP TALKS - Parkinson's New Zealand
TULIP TALKS      THE QUARTERLY NEWSLETTER FOR
                      THE PNZCT SOUTHERN REGION

                                       ISSUE 2            |   JUNE 2021

Parkinson's Red Tulip Walks
Raise Funds and Awareness
in April
Promoting health, wellbeing, and exercise
with a strengthened sense of community
and family.

Ron Wallbank is a WW2 veteran who served in the
NZ Navy on the famed Achilles warship. On his
return to New Zealand after the war ended, he was
granted a rehab dairy farm east of Te Puke where
he stayed for most of his life, with his wife Mary.
After raising their four children, they sold their farm
and retired to Mount Maunganui.                                Ron and his daughter walking Mount Maunganui in April this year.

His wife was diagnosed with Parkinson’s and Ron               Ron has always been fit and attributes his wellbeing
involved himself in exercise classes and fundraising          to a Naval Officer who forbade him from smoking
events such as the 24-hour sponsor circuit walks in           and a host of other theories. He’s quick-witted and a
Queen Elizabeth Park. He continued helping                    very jovial character. Ron walked around Mount
Parkinson’s New Zealand where ever he could,                  Maunganui using a tramping stick and as the above
even after Mary passed away. He was awarded a                 photo depicts, he was happy doing it. Not a bad feat
Life Membership at PNZCT for his tireless service.            for a man who will turn 99 in July!

Recently, his daughter was also diagnosed with                Ron's walk raised over $2000 for his local region.
Parkinson’s and he continues to help her in any               Following other Red Tulip Walks around the
way possible. His son-in-law, Alan Birley, was                country, it is hoped that there will be more walking
discussing the up-and-coming Red Tulip Walk's - a             events in the year ahead.
new initiative introduced this year by PNZCT. When
Ron overheard a friend saying “they wished they               Red Tulip Walks can be hosted by individuals,
could participate but had another engagement                  families, and businesses, or social groups to raise
that day”, Ron offered to walk for him but laughed            funds and awareness for Parkinson's New Zealand.
and then said, "but you will have to pay me first!”.
                                                              If you wish to have your own Red Tulip Walk then
And thus, it took off like that, only a week out from         please get in touch. We'd love to hear from you.
the event date. Ron is a local identity in the area, so        Email Angela Cayford, Community Engagement
he gained sponsors with ease. Friends and family              Advisor for the Southern Region -
also got it out there.                                        angela.cayford@parkinsons.org.nz
TULIP TALKS - Parkinson's New Zealand
TULIP TALKS – SOUTHERN REGION                                                       ISSUE 2 – JUNE 2021

Red Tulip Appeal 2021                                                          UPBEAT 2021
In support of people living with Parkinson's, New Zealand saw                  Rotorua | July 30 & 31, 2021
volunteers on the streets and at supermarkets across the country in
April 2021.                                                                    This year's UPBEAT conference for
                                                                               people with early-onset
The Red Tulip Appeal was a great opportunity to raise the profile of our       Parkinson's will take place in the
charity as well as vital funds for essential Parkinson's services. Thank you   geyser city of Rotorua.
to all that volunteered their time and energy, raising $59,500 for PNZCT.
                                                                               Anyone with early-onset
Organising a street appeal is no easy feat. Our Action Groups work hard        Parkinson's and their carers,
in the regions to ensure the Parkinson's community is represented. It is       partner, or support persons are
also a great opportunity to get out and about in the community and             invited to register.
have friendly conversations. The Tulip Bulb packs that we sold alongside
the appeal proved to be very popular, with many people purchasing              The event will run over two days
multiple packs.                                                                and you'll be joined by some of
                                                                               New Zealand’s top Neurologists,
                                                                               researchers and performance
                                                                               coaches to explore how to live your
                                                                               best life ever with Parkinson’s,
                                                                               during this interactive weekend.

                                                                               Tickets for the event are priced at
                                                                               $135 and include afternoon tea and
                                                                               welcome drinks on Friday 30th
                                                                               July, as well as tea and lunch on
                                                                               Saturday 31st July. Accommodation
                                                                               costs are not included.

                                                                               Tickets available on iTicket.co.nz

                                                                               Powhiri by local Iwi at UPBEAT 2019

                                                                               UPBEAT 2019 was held in Whangarei

                                                                               Geysers at Rotorua, the 2021 UPBEAT
                                                                               Conference destination
TULIP TALKS - Parkinson's New Zealand
TULIP TALKS – SOUTHERN REGION                                        ISSUE 2 – JUNE 2021

Parkinson's Wanaka Conference Retreat
(May 1 & 2, 2021)
This May, Carol and a hundred clients and carers attended the
Parkinson's Wanaka Conference held at the beautiful Edgewater
Resort in Wanaka. Carol has written a short story about her
experience during the weekend.

"We had a great time at Wanaka’s Edgewater Resort for the first-ever
Parkinson's Wanaka Conference on May 1 and 2. Over 100 people
attended the day and a half event which included wonderful speakers,
including Dr.Barry Snow, a well-known neurologist, Gilly Davy, a
renowned physiotherapist from PD Warrior, Dr.Glenda Wallace, a
clinical psychologist, Ellen Smoothy, a physiotherapist dealing with
breathing methods, Ashley Booth, a physiotherapist and tutor of the
Wanaka exercise group, and Geoff Woodcock, an author speaking
about the power of joy.

All of these people presented a clear and concise lecture with lots of
fun and laughter, bringing new knowledge of the condition to sufferers
and carers alike. Oamaru, Balclutha, Clyde, Alexandra, Wanaka,
Queenstown, and Dunedin were all represented by people linked with
one thing in common – Parkinson's - and it was amazing, informative,
and, at times, humbling to be part of this wonderful conference.

Utmost thanks to our wonderful Parkinson's Nurse, Paula Ryan, and to
The Michael and Kate Sidey Charitable Trust for their generous support.
Well done Otago, and looking forward to a repeat in the future!"
TULIP TALKS - Parkinson's New Zealand
TULIP TALKS – SOUTHERN REGION                                                          ISSUE 2 – JUNE 2021

                                                                                Southern Area Contacts

                                                                                      Local Action Groups

                                                                                        Andrew Dunn - Otago
                                                                                   andrew.dunn@parkinsons.org.nz

                                                                                    Don Morris - South Canterbury
                                                                                     donandgwenda@xtra.co.nz

                                                                                     Janeane Summerfield - Nelson
                                                                                janeane.summerfield@parkinsons.org.nz

                                                                                       Parkinson's Nurses

                                                                                         Paula Ryan – Otago
                                                                                    Phone: 03 262 7040 or Email:
                                                                                    paula.ryan@parkinsons.org.nz

                                                                                    Fiona Dyne – South Canterbury
                                                                                    Phone: 027 214 4226 or Email:
                                                                                    fiona.dyne@parkinsons.org.nz

                                                                                          Claire Fisher – Nelson
                                                                                     Phone: 027 216 5581 or Email:
                                                                                    claire.fisher@parkinsons.org.nz

Parkinson's Nurse for Otago attends Outward
Bound 2021                                                                      Parkinson's New Zealand
                                                                                     PO Box 11 067, Manners Street,
Otago's Parkinson's Nurse, Paula Ryan, attended the Outward                                Wellington 6142

Bound adventure in February 2021. Here is a story about her                            Phone: 0800 473 4636
fantastic experience.                                                                Email: info@parkinsons.org.nz
                                                                                     Web: www.parkinsons.org.nz

Oh my goodness the Outward Bound adventure, where do I start?

Spending a fun 7 days in stunning Anikiwa, with 11 inspirational people who
have early-onset Parkinson’s is the absolute highlight of my year.
                                                                                        Thanks to our
It was my fourth year attending the UPBEAT course as a support person                  recent funders
and, yet again, I was blessed with amazing weather, three fantastic
instructors, and an awesome coworker for company, the Clinical Services
Team Leader, Claire Fisher. Watching the participants grow in confidence
and push their personal boundaries with the aim to reach their full potential
is humbling and a privilege to be part of. The participants very quickly
realise that the week is action-packed and that working together as a group
is really important. They are often surprised that they are capable of a lot
more than what they envisaged and return home with a renewed mindset.

I attend OB with an open mind and know that every year I will learn
something new. Living with the participants 24/7 gives me a tiny snippet of
what it may be like to live with Parkinson’s. Outward Bound is a journey with
challenges but an experience that most, including myself, will carry forever.
                                                                                 THE MICHAEL AND
                                                                                 KATE SIDEY TRUST
Contact National Office on info@parkinsons.org.nz if you are up for this
amazing adventure that will be running again in February 2022.
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