RESPONDING TO CHANGE DONOR IMPACT REPORT 2020 2021 - Alzheimer Society of Canada
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By the numbers THE URGENCY TODAY 2030 Canadians living with dementia 500,000+ 912,000 Cost of dementia to the Canadian economy and healthcare system $10.4 BILLION $16.2 BILLION Of those living with dementia aged 65+ 65 % ARE WOMEN THE PROGRESS 2 in 5 Canadians have experience caring for someone living with a form of dementia 56 % $64 MORE THAN of Canadians are concerned about being 2 in 4 affected by Alzheimer’s disease Of greatest concern is their Canadians admit MILLION fear of being a burden to they would feel invested to date in 87% others, and of losing their of caregivers wish that ashamed or independence and the more people understood embarrassed if research through the they had dementia ability to recognize the realities of caring for Alzheimer Society someone with dementia family and friends Research Program Cover Photo: Ngozi Iroanyah and her father, Felix, who lives with dementia, share a moment together.
Working together for a brighter future It’s a devastating reality that most of the heart of everything we do, engaging in all us have been touched by dementia, aspects of our work. For example, the Alzheimer whether living with a diagnosis or Society of Canada’s Advisory Group of People with watching someone we love experience Lived Experience of Dementia is a community of the disease. While the world’s attention people living with dementia and care partners turned to the global pandemic in early 2020, who provide critical input on our work and people living with dementia in Canada were participate actively in education, advocacy and enormously impacted. Across the country, crucial awareness-building. home and community support services for Kevin O’Shea people living with dementia and caregivers were We also listen to the needs of people living reduced, leading to social isolation and increased with dementia through the many letters, emails caregiving burden. and calls we receive. Their voices help guide our advocacy efforts, shape what resources we Because of you, Alzheimer Societies across develop, and push us to keep fighting for a better Canada quickly responded to the increasing need future for all people impacted by dementia in for services by shifting many programs, services Canada. and ´ sessions online and over the telephone. At the same time, the Alzheimer Society of Canada Because of your support, we will continue to shine advocated that the unique needs and challenges a light on the experience of living with dementia Ronan Ryan of people living with dementia be at the forefront and ensure that the voices of people living with of the national pandemic response. dementia are heard. With our continued commitment to investing in dementia research, the Alzheimer Society of Canada has invested more than $64 million since our research program began in 1989, focused on Kevin O’Shea research areas including improving quality of life, Board Chair, Alzheimer Society of Canada early diagnosis and prevention, as well as big, bold and new ideas from emerging researchers across the country. To achieve our mission, it’s critical that people touched by dementia are heard. That’s why Ronan Ryan people with lived experience of dementia are at CEO, Alzheimer Society of Canada ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT 3
CHANGE THROUGH POLICY COVID-19 and dementia Across Canada, people COVID-19 Task Force living with dementia In response to the pandemic, we convened a COVID-19 and Dementia Task Force that included leading researchers, clinicians, dementia specialists and people with and caregivers were lived experience of dementia to identify and address gaps in the healthcare system enormously impacted for people living with dementia and caregivers throughout the pandemic. by the pandemic, no Key initiatives included matter whether they lived in a care setting or 1. Introducing guidelines for acute care settings to allocating scarce resources to people with dementia during a pandemic (provided to all acute care hospitals in Canada) at home. The Alzheimer Society of Canada introduced a series 2. Providing recommendations for family physicians on virtual cognitive and behavioural assessments of supports and took action to support people 3. Recommendations on improving end-of-life care in long-term care homes for people living with dementia. living with dementia, as The task force presented its recommendations to the Dementia Policy Secretariat at well as their families and the Public Health Agency of Canada, the Federal/Provincial/Territorial Coordinating Committee on Dementia (one of the governance tables attached to the national professional caregivers. dementia strategy) and to the Chief Science Advisor to the Government of Canada. Work continues in this area to improve healthcare for people living with dementia now and beyond the pandemic. 4 ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT
COVID-19 tips for caregivers & people living alone with dementia Living well with dementia through a pandemic Pearl lives with Alzheimer’s disease and vascular dementia in a retirement home in Prince Albert, Saskatchewan. Though Pearl’s daily routine and social connections were drastically altered at the beginning of the pandemic, her daughter Kim found ways to support Recognizing that many community her mom, and introduced her to adult and support services were colouring. “Although art was not paused due to the pandemic, we something [Mom] ever did, she fell in introduced tips for both caregivers love with colouring. The tremor in her and people living alone with hand seemed to disappear, each piece so dementia. These online and print neatly completed with evidence of care resources provided ideas on how and pride,” shared Kim. “Her future still to stay safe, incorporate activity holds possibility—possibility for personal and connection into daily life, and satisfaction, possibility to enrich others’ how to take care of both physical lives with joy, and the possibility to and mental health. discover something new.” Read Pearl’s story at alzheimer.ca/pearlsstory ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT 5
CHANGE THROUGH RESEARCH Our research will change the future of dementia— because of your support. Dementia is not a normal THERE ARE NO CURES. To ensure projects that receive our funding part of aging. It is causing will truly make a difference, we engage We are not certain what causes dementia. world-renowned experts in dementia Canadians to die early after We do not know how to prevent it along with people with lived experience of enduring poor quality of from occurring or how to stop it from dementia in our peer review process. These life and deteriorating for progressing. And for over 16 years, there “citizen reviewers” offer unique, first-hand many years. Every year, have been no treatment breakthroughs. perspective on dementia to help guide us about 76,000 Canadians are to areas of greatest impact. diagnosed with dementia, all destined to slowly ELIMINATING DEMENTIA lose themselves while WILL SAVE LIVES. their family and friends helplessly watch. This is our vision for the future. But it will take time. That is why we also support projects that help people with the disease But the devastation does now to live the best and longest life not stop there. Families possible. We fund research in eight are put under tremendous priority areas: strain with immense mental, physical, and financial BIG, BOLD, NEW IDEAS ARE NEEDED. Prevention and Cures stresses that last long after • Cause their loved one is gone. The Alzheimer Society Research Program is • Risk and prevention one of Canada’s leading hubs for dementia By 2031, there will be • Diagnosis and detection research and is laser focused on funding nearly one million high-impact projects to unlock innovative • Epidemiology Canadians living with solutions. dementia and two million Living with Dementia Canadians supporting them Only dementia researchers with the best • Therapy ideas receive our funding so they can as caregivers. • Improving care for people figure out which new areas show promise with lived experience and deserve further investigation. • Translational • Developing treatments 6 ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT
Translating research into support 100+ new online and Some recent projects we funded print materials created by the were aimed at: Alzheimer Society of Canada to support people living with dementia, caregivers, and • Restoring memory front-line staff across the country • Understanding genetic risk factors 2,000 Subject Matter • Reducing falls Experts, including people living with dementia, engaged to review materials • Reducing disease progression Diagnosing dementia earlier, Nearly 1,000,000 materials printed slowing its progression, and and delivered to local Alzheimer Societies in maintaining ability improve the quality of life of people living We urgently the last year with the disease and ease the need your 300,000 downloads of dementia resources from help. stress and strain on families and our website, alzheimer.ca caregivers. Every step makes a difference. To make sure the potential of the best ideas and brightest new PROMISING RESEARCH IS researchers are realized, we must GOING UNEXPLORED. double our research funding over the next five years. And we can’t It is imperative that we continue do it without you. to fund high-impact research to unlock solutions, but there are Your investment in Alzheimer more qualified projects than we Society research will touch can fund. And one of them just the lives of millions across may contain a discovery that Canada. Learn more at will make the progress that is so alzheimer.ca/research. desperately needed. ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT 7
CHANGE THROUGH KNOWLEDGE Knowledge is power When faced with a dementia diagnosis, having the right information can help you feel connected and empowered. When you and your loved ones have a meaningful understanding of your condition, and support along every step of the journey, you can truly live well with dementia. Your support enables the Alzheimer Society of Canada to research, produce and update our website—Alzheimer.ca—as well as print resources at local societies across the country. People living with and affected by dementia count on these educational resources to help them understand and navigate the disease. These tools are used daily by people living with dementia and caregivers, as well as our front- line teams. After hearing feedback from people across Canada—people living with dementia, families, caregivers, researchers and our staff—we’ve relaunched alzheimer.ca with a new look and ease of navigation. If you visit our website today, you’re likely looking for support with a challenge you’re facing right now, so we’ve created quick access to topics that speak to you if: • You’re worried you might have dementia • You’re worried someone you know might have dementia • You have recently been diagnosed or are living with dementia • You are caring for someone with dementia Visit alzheimer.ca for the latest facts and news about dementia; to access help and support close to you; to take action on stigma and raise awareness; or to learn more about dementia research. 8 ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT
CHANGE THROUGH ADVOCACY Advocating for change OUR VISION across Canada A world without Alzheimer’s disease and other dementias. OUR MISSION The Alzheimer Society of Canada continues to advocate for the rights To alleviate the personal and social consequences of of people living with dementia and Alzheimer’s and related diseases and to promote the caregivers through several federal search for causes, treatments and a cure. advisory roles. We won’t stop until people living with dementia are represented at every table where care and policy OUR VALUES decisions are made. COLLABORATION This year, the Society’s Chief Science We work together and with partners to fulfill our Officer, Dr. Saskia Sivananthan, was mission and achieve our goals, to ensure Canadians appointed to the Ministerial Advisory receive personal and responsive services throughout Board on Dementia, which provides their dementia journey. advice to the Federal Minister of Health on Canada’s first national dementia strategy, A Dementia Strategy for Canada: Together We Aspire. ACCOUNTABILITY She also spoke on unpaid work from a caregiving perspective at the We measure our performance and follow a process of Status of Women Standing Committee. continuous improvement. We are wholly accountable for our actions and must account to our stakeholders As the national dementia strategy is in its second year, we continue for our use of the financial and human resources to push for full and sustainable funding so that the strategy may fully available to us. realize its goals. Along with many other national health organizations, the Alzheimer Society of Canada has recommended that RESPECT the federal government increase its initial investment of We set for ourselves the highest standards of $50M over five years to $150M to ensure measurable and timely honesty, trustworthiness and professional integrity in progress of the strategy. all aspects of our organization and carry out our work with the utmost respect for the dignity and the rights Investment in dementia research in Canada falls well below that of of the people we serve. other G7 nations. Through the Society’s pre-budget submission and several meetings with federal representatives, we continue to advocate EXCELLENCE for more funding for dementia research. We strive to engage stakeholders in meaningful ways. To inform, listen and be attentive to those we work with: people living with dementia, families, community partners, donors, volunteers and staff members. ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT 9
CHANGE THROUGH PARTNERSHIP Dementia does not stop and neither do we The IG Wealth Management Walk for Alzheimer’s breaks records When the global pandemic was declared on March 11, 2020, just weeks away from the annual IG Wealth Management Walk for Alzheimer’s, it was unclear if the Alzheimer Society would be able to deliver the event. Most national organizations and charities opted to cancel their fundraising events. The IG Wealth Management Walk for Alzheimer’s is Canada’s biggest event in direct support of people living with dementia. In 2019, the event raised more than $6 million, enabling Alzheimer Societies to provide vital programs and services for hundreds of thousands living with a diagnosis and their caregivers. It was clear the need for those services would not diminish in a pandemic. Dementia is an isolating disease, and people living with a diagnosis and their caregivers were already enduring mental and emotional isolation. The pandemic had already started to add to their isolation, with widespread stay-at-home orders issued across the country, and many support services suspended. Because dementia doesn’t stop, neither do we. Alzheimer Societies quickly reacted to the pandemic and found new ways to provide services. Funds were needed to continue those shifts, so cancelling or even postponing the Walk was not possible. The decision was made—the Walk would go on. With thanks to our committed partner, IG Wealth Management, the Alzheimer Society was poised to move forward. 10 ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT
The 2020 IG Wealth Management Walk for Alzheimer’s was one of Canada’s first mass Watch the national celebration of fundraising events held under pandemic restrictions. For the first time, the Walk the 2020 IG Wealth Management landed in the top ten list of peer-to-peer fundraising events in Canada. The event Walk for Alzheimer’s at youtube. raised more than $5 million so that the Alzheimer Society could continue providing com/alzheimercanada urgent support to people living with dementia and caregivers. Because we couldn’t gather together in communities like we normally do for this event, we instead asked supporters to “walk their way”—and that they did! Fundraisers across the country walked, ran, biked, swam, stood on their head, baked cookies, sang songs and even walked their neighbourhood in costume; and on May 31st the country came together through a nationwide broadcast which celebrated the creativity, generosity and remarkable support of all who participated in the Walk. ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT 11
CHANGE THROUGH AWARENESS Bringing dementia out of the s Lance Henriksen (L) plays the role of Willis in the movie Falling. Viggo Mortensen (R), who wrote and directed the film, portrays Willis’ son, John. 12 ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT
e shadows and onto the big screen Viggo Mortensen discusses his personal connection to dementia and his latest film Oscar-winning actor Viggo Mortensen, like many of us, By offering a true portrayal of a family’s struggles with has been personally impacted by dementia. “Both my dementia, Mortensen highlights some of the stumbling parents, my stepdad, grandparents, aunts, uncles, both blocks many people experience with trying to engage sides. I’ve seen it a lot, up close,” he shared when sitting with a loved one with dementia, such as trying to correct down to talk about dementia and his latest film, Falling, their observations and behaviour instead of adapting to with the Alzheimer Society of Canada. their experiences. Mortensen wrote, directed and starred in the award- “It’s about communication,” said Mortensen. “Whether winning film. Falling depicts a caregiver’s struggle to you have dementia or not, it’s important to be flexible connect with his father, who lives with dementia. In with anybody that you care about.” his ASC interview, the acclaimed actor discussed his thoughts behind his new film, including the importance of getting an accurate portrayal of dementia on screen and how to show compassion and understanding when communicating with a person living with the disease. In the film, conflict and frustration arise as father and son navigate how to effectively communicate their feelings to each other and mend their relationship. It was vital to Mortensen to depict these challenges accurately and to reflect a reality he and millions around the world live every day. He shared that dementia isn’t always shown authentically on screen. Watch the interview at youtube.com/c/alzheimercanada/videos ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT 13
CHANGE THROUGH ACTION Changing how we see, discuss and learn about race and dementia At the Alzheimer Society of Canada, we work to change the lives of people living with dementia. However, we need to do more to combat systemic oppression. Here is how we are changing. 1 3 The Dementia Journey Survey We are changing how we hire our people, manage our business, and Physicians are insufficiently equipped to manage deliver our work dementia, especially for Black, Indigenous, and People of Colour (BIPOC) who experience the • To accelerate change within our organization, a healthcare system differently. We conducted a major portion of our professional development national survey to identify the experiences of people budget will be dedicated to inclusivity and anti- living with dementia, with an intentional focus on racism training. This development will remain a BIPOC communities. The data we captured will key, long-term component of our professional shape and deliver new resources to ensure family development budget and processes for our physicians are equipped to support all Canadians existing team, new hires, and our board. living with dementia. • We will implement new recruitment standards to identify and remove any traces of bias, and to 2 actively deliver a team and board that looks like Our Advisory Group of People with Canada, and where marginalized people are not Lived Experience just safe, but can thrive and grow. Knowledge of how BIPOC experience dementia • We will build specific, formal relationships with and the healthcare system in Canada is woefully diverse community groups and build partnerships inadequate. Our first step to changing this is to requiring engagement by staff at all levels so grow the Alzheimer Society of Canada’s Advisory we can listen, understand and be accountable Group of People with Lived Experience of Dementia. for developing programs and services that are This group is vital to our work but is almost entirely inclusive to all. white. We will grow the group with a specific focus and target to BIPOC communities. 14 ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT
CHANGE THROUGH GIVING Remembering Claude “My wife’s father, Claude (pictured), was diagnosed with a rare form of dementia whereby the initial symptoms presented as difficulties in communication. As his condition progressed and his mobility faded, his joyful, silly and upbeat personality never stopped shining through. He still managed to make us laugh and cry in a single moment. Since his passing at the age of 69 in 2018, he left an immense hole in our hearts. Though that void can never be filled, Angela and I are expecting our first child and found out just this week that we are having a boy! His due date is April Fool’s day, April 1st, and we know Claude would have seen the humour in telling people the due date, thinking that it might be a prank. To pay tribute to his memory, we began donating to the Alzheimer Society of Canada. Our hope is that our donation can contribute in some small way to educating, supporting, and funding research on Alzheimer’s disease and other forms of dementia. We miss you, Claude!” —Dan Barker ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT 15
CHANGE THROUGH GIVING Thank you! Your generous support is helping us to find a cure and identify potential new treatments for Alzheimer’s disease, understand the different forms of dementia, and enhance quality of life, care and support for all those who are affected by dementia. $500,000 – $999,999 $10,000 – $24,999 Archibald and Lavina Knight Fund Remedy Holdings Inc. Richard A. Austin David Britt Mike & Valeria Rosenbloom AGF Management Ltd. Arnold, Allie and Sandra Wilson Erica Richler Gary and Cristy Babcock Broccolini Construction Inc. Foundation Alastair & Diana Gillespie Foundation Roman Catholic Episcopal Michel Baby Laurie Bronson Foundation ATB Financial Harold G. Schnaier Pauline Badeau Jeffrey and Charlene Brooke $250,000 – $499,999 Anonymous (2) Joseph Basaraba Sheilah Scrocchi Jean-René Badeau Carolyn J. Brooks Roy C. Parmelee* Edward E. Artelle* E. Shirley Bowles Sunrise Juices Ltd. David Bailey John Brophy Association of Canadian Port Russell A. Bruce Sysco Canada Kenneth Baker Michelle Brown $100,000 – $249,999 Authorities Carerx Corporation The Barber Family Charitable Heather Ballon Mel Bruce Constance Ryan Fund Robert and Wendy Atkinson CN Employees’ & Pensioners’ Foundation Gail S Bamber Florence N. Brunelle Toby Danchig* William E. Barnett Community Fund The Jim and Betty Anderson Fund Charles G. Banks Michel Brusset Marcel A. Decock* Bob Collier Foundation Nancy Cohen The Philip Smith Foundation Lloyd and Marie Barbara Malcolm Burford Brenda Gibson Ernest Bradshaw* Mary and John Crocker Thomas Large & Singer Inc. Jane Barley Steven Butler Alan M. Graham* Kate Burnett Neil Cunningham Martin Thrasher Jeannette Baron Calgary Foundation Groupe PharmEssor Inc. Crist Family Foundation Bernice Dekker Judith Weeks Keith Barrett Simon Cameron Ledcor Industries Inc. Darlene Decook Noreen Devine Michele Wilson BB-Gutmann Social Justice Fund Arlene Campbell RFA Mortgage Corporation Terence M. Heaps* Mary Dixon* Sonja Bean Bruce Cappel Robert G. Lemon Leo E. Dubé* $1,000 – $4,999 Denise Beauregard Paul M. Casey $50,000 – $99,999 Lynda H. Marks* Farmer Family Foundation 5014144 Ontario Ltd. Francois Begin Charles A. Casey Achieva Health Joan McCaw Wendy Gardiner 7236085 Canada Inc. Belron Canada John Catherwood Alexander Beaton* Basil F. McDonald Clement Giovanatti* Abundance Canada Donald Bennett Cavalieri & Associates Bireswar Bose* Bruce Mitchell Goremutual Insurance Chad Adams Remi Benoit Frank Chalk Robert Ogilvie Company Foundation Gino Alberelli Kerry Benson Andrée A. Champagne Yolande Boyer* Margaret Pearsall* Henrik Gutle Aldis, Millitz, Voros Mpc. Bernard and Thelma Cain Chancery Pacific Trade Corp. Harold K. Campbell* Rudolph F. Peltzer George T. Harrap* Erik Allas Charitable Fund Lucille Crégheur* Paul Charette Lorne Peters Horn Family Fund Allen Family Foundation Jim Bird Benjamin Levy* Charities Campaign Manitoba Popeyes Supplements Canada/ James R. Irwin Francis Allwood Bison Transport Inc. Finance Wilhelmina K. Marshall* The Ferbey Family J. Erle Jones Alma Mechanical Eugène Blanchart Paul Chevalier Margaret J. Oldham* RBC Foundation Dorothy Kerr Alpema Foundation Debbie and Roger Bloom Cynthia J. Chevens Victor A. Sibley* Bill and Linda Saul Laurie A. King* Alpha Pi Phi Gamma Chapter Barbara Jean Bluteau Robert Child Peter Stubbs* Alois Schoen and Daisy Lorraine Kirby Alton Holdings Inc. William Bota Chimp Charitable Impact William and Odna McCarlie Foundation Haie-Schoen Leon’s Furniture Ltd. Godfrey Amo Noella Bouchard Foundation (Canada) The Warren Y. Soper Charitable James Strachan Margaret McKee* William J. Anderson Danielle Boulianne Roderick Chisholm Trust Virginia A. K. Strachan Almanzor Michaud Steven Andres Walter M. Bowen and Lisa Balfour Wong C. Choo The Barrett Family Foundation Lillian Liu Mok Bowen Roger Choquette Anonymous (110) $25,000 – $49,999 The David Hearn Foundation J. Montgomery Lisa Bowes Mark Claman Joe Anthony Linda Torrance Christina Mulcahy Wallace Bradley Helen E. Clark Medical Pharmacies Anthony McNally Dental Office James Wray Ralph Murray Peter Bradshaw Audrey G. Clark Katherine C. Millins* Jacques Archambault Mary Pasquale Joseph Brazier Yvon Clouette Lucky Polidori* Georgia Ashline $5,000 –$9,999 Pharmasave David Breda David Colby Warren Rhodes* Richard Ashman 1760438 Ontario Inc. Margaret Polan William H. Bremner George Collins Shorcan Brokers Ltd. Laura Asp E. Mary Albery* Rosemary Pollock Patrick and Tracey Brennan William B. Collins Sienna Senior Living Corp. ATCO Gas Denny Andrews Praxair Canada Inc. David Brennan Jean S. Comfort Andrew G. W. Turner* ATCO Ltd. Anonymous (7) Joan Reid Brian and Susan Thomas Heather Connelly Re/Max Ontario Atlantic Canada Foundation * denotes donors whose giving includes an estate gift 16 ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT
Cathy Cope Melville Elliot Sam Galineas Anna Harhay Warren Jones Lohn Foundation George Cope James E. Ellis Paulette A. Galipeau Harold Harkes Thecla Jorna Ing-Shang Look-Yee Robert Cordell Peter W. Ellis Shawn Gallagher Grant Harland Frank Joyce Paul Loposhinsky Brenda Corkhill Equitable Bank Alistair Garden David Harquail Ira T. Kagan Jack Lucas Ingrid C. Cosio Joe Essaye Heather Gardiner Patricia Harriman J. Kalmoni Mona Ludmer Cotton Family Charitable Armindo Estrela Gary Bluestein Charitable Maura Harrington Robina Kaposy Fred Luk Foundation Janyce Evans Foundation Ruth J. Hart Chris Karambatsos Mary A. Lukachko Raymond Coulombe Peter Ewanchyna Véronique Gauthier Hilda M. Harvey* Keith Macdonald Charitable Jean-François Lussier Jessica Courcy Nicol Family Foundation Millie Gauthier Ruth R. Hawkes Foundation R. Theodore Lutz William Covert Nicole Farmer Gerry Myziuk Charitable Trust Shirley Heath* Diane E. Keller Antonio S. Luz Sheila Croft Rosemarie Farquhar Edward D. Ghent David Heike Stephen Kennedy Keith Macdonald Jane Cronin Louise Fast Janet Gibson Sara Heron R. T. Kenny Gary H. MacDonald CURO Financial Techonlogies Gordon Feeney Robert C. Gibson Glenn Heshka Audrey Kenny Stuart Macdougall Corp./Cash Money Moïse Fefer Raymond Gillespie Thomas Hicks Bonnie Kerwin Christie Macinnes Mary Beth Currie and Jeff Rintoul Daniele Fiacco Kim M. Girtel Roy Hintsa KJH Cares Corinne K. MacLaurin B. Kathleen Curtis Thalia S. Field Debra L. Glaister HME Ltd. Gary Klassen H. Philip MacLennan Madeleine Dagenais Jean C. Finch Kenneth Glover Nancy Hobin Anetta Kleinert Barbara Macphie Eric Dahlin Russell Finch Irène Godbout Richard Holden Holger Kluge Yan Yan Grace Man Sarah D’ambrosio George Fink Jennifer Godfrey Barbara J. Holding E. Knight Burgundy Asset Management Ltd. Marie-Eve D’amours Catherine Finlay Frank Goodman Robert Hole Cathie Koehnen Abhi and Tracey Manerikar Paul Dasilva Michael Fiorino Patrick Gosselin Holland & Area Donor’s Choice Courtney Koga Gordon J. Manion Mamie Dawson Joyce B. Fleming Grace Graham Charles Holt Saul Koschitzky Deborah Mansell André De Bellefeuille Betty Foley Gordon Grainger Fred Hosking Alina Kozycz* John T. Mappin Jean-François De Grandpré Fondation Céline et Jacques Trudy Grant Margaret J. House James Krushelniski Sylvain Marcotte Sophie Delage Lamarre Grantech, Inc. Pamela Houwing Raymond Kwong Marie and Fred Kernaghan David Demers Fondation Denise et Robert Mike Green Bruce and Janice Howe Labourers’ International Union Family Fund Brian Demone Gibelleau Green Market Services Que G. Hsiung of North America Nancy Marshall Rita Desjardins Fondation Lise et Richard Fortin Company Inc. Liette Hunter Denise Laforge Tony Masella Jacques Desnoyers Fondation Famille Briere Bonnie Greer Brian A. Hurley Roland Laird Mary Maselli Atwell DeSouza* Fondation WCPD Bianca Marcus and Greg IA Financial Group Sarah L. Lamourie* Carolyn A. Mason Jean Desrosiers Jay Forbes Cumming Mhairi Lang Alex Massi IBM Employees Ann D. Devitt-Thiel Beverley Forester Grenadier Foundation Donald Langill Masters Insurance Ltd. IBM Employees - ON Barbara Dhoedt Patricia A. Fortier Regine Gries Marielle Laporte Rick Matheson Intuit Roger A. Dixon Raymond Fortin Janet Griffin Roger M. Laporte Charles B. Matheson Investment Planning Counsel Inc. Peter Dombrowe Kenneth R. Fowler Willimin Griffiths Jean Larmour Mary M. Maude Investors Group Financial Dompol Enterprises Inc. Geoff Francis Groupe Morzaco Inc. (Les Services Inc. Donald R. Latham John McCallum Donald and Elaine Triggs Frank and Azniv Lochan Family Marronniers) Mona Lavoie Irving L. Rosen Foundation Jeffrey Mccarthy Foundation Foundation Christian Guay Beverley Leaman Isberg Charitable Trust James McCormick Emily Douglas Elizabeth Franklin Ciro Guida Edward Lee Italform Ltd. Margaret H. Mccullough Nancy L. Tuttle Richard Fraser Paul Gunter Huguette Legare J. E. Panneton Family Foundation Maria Z. I. McDougall Dream Asset Management Corp. Barbara Fraser Jacqulin Guthrie Bernard Lemaire J. M. Forbes & Co. LLP Mary A. McDowell Wayne E. Dresser Wendy Freischer Nathan Hall Francine Letoureau Maruja Jackman Ada E. McEwen Donald Drinkwalter Philip Freischer Winnifred Hall Eric P. Levy Jalima Holdings Ltd. Monica McGahey Yvonne Dumas Frank Friesen Halton Honda - A Division of Sigrid Lewicki Janet Ingraham Personal Real Faye R. McGillivray Josée Dupont Harvey Fruitman 805658 Ontario Inc. Estate Corporation Janice M. Ley Robert McGrath Steve Dustin Anne Gagné Clayton Haluza Marika Janitsary Christine I. Link Catherine S. McKay EA Francoise Gagnon Susan Hansen Ruth Janz Shirley Lloyd Robert J. McKay Roger Eamer Gregory Galardo Elaine Hanson Edmund L. Jardine* IATSE Local 891 Keith McLarty Ross Edgett Amber Galbraith Bev Harden Audrey Johnson Dale Lockie Janet McLean Adam Egberts Robert and Irene Gale Hargrave Ranching Co. Inc. Charlotte Jolicoeur Mary S. Loforte I. P. M. McLeod * denotes donors whose giving includes an estate gift ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT 17
CHANGE THROUGH GIVING Joyce McMurray Craig O’neill George Read Scott Sinclair The Cote Sharp Family Foundation Louis Wadsworth David Mcwhirter Ontario Power Generation Inc. Alan Redway Thomas C. Singer The Doug and Gloria MacDoanld Maxwell Wagg Mdet Development Inc. Chris P. O’reilly Edward Y. Reid Chad A. Singleton Foundation Douglas Wagner Medline Canada Corp. Loretta J. Orlecky Sandra Reid Six Words Foundation The Henriette and Leonard White Michael and Lilianne Walker Steve Meehan Irene Ouellet Roy Rennie Ernie Skinner Endowment Fund Caroline Walker Lana Merhej Reginald Outhouse Michael V. Richardson Joyce E. Smith The Magaluk Foundation Ian L. Walker Michael Allan Johnson Alain Ouzilleau Barbara V. Ritchie Douglas Smith The Mennie Foundation Lisa Wallace Foundation Marie José Overweel John Roberts Michael Smus The Mundy Family Foundation Victoria Watkins Beverley Miller Johanne Paiment Martha Robertson Frances Smyth The Newall Family Foundation John Watson Brian Mills Trust Laurie Palamar Pat Robertson-Corner Snell Family Foundation Robert D. Watters* Michael Milosevic The Primrose Charitable Park Health and Research Jacques Robichaud Robert Somerset WCPD Foundation Foundation Susan Mingie Foundation Cumine Robin Tyrone Soodeen Jean K. Weber* The Ryckman Trust Marcelle Mitchell John C. Parker Margaret Robinson* Joan Souch Joan Weber The Sheila and George White MNP LLP Heidi Pattenden Martin Rodgers Luz Sousa Calvin Wenzel Foundation Modern Niagara Group Inc. Paul Boucher Family Fund Sandeep S. Rodhey Margaret E. Southern Penny Werle The Sixty Three Foundation Craig Moore David Pauli Joanne F. Rogusky Robert J. Spence P. Mary White The United Church of Canada Doris J. Moore Ian and Michelle Pearce Ken Rohrer Brahm Spilfogel Foundation James Whiteaker Bozena Moravec Ronald Edward Pearlman Margaret Roland Gordon Srdoc The Willowool Foundation Karyn D. Whitlum Ksenia V. Morgan Louis Pelletier Stephenson B. Rombaon David Stacey The Woods Foundation Philip Whittall V. Louise Morley Allen Penney Paul Rosen Sonya Stadus-Soo The Yona and Zev Frishman John Wiens Nelida Morneault Kenneth Penonzek Gordon Ross Roger Stalsberg Endowment Caroline Wight John Morris PepsiCo Lucella C. Ross* James Stanford Larry Theall Peter Wilkinson John H. Morrish Malcolm H. Perlman Danielle Roswell Paul A. Steele Gilles Therrien Crystal Willie Christine Morrison Dennis Perry Ghislaine Roy Sandra Steeves Judith Thiessen Jason Wills Ralph Morrison Betty Pettigrew Jean Paul Ruel Gary Stefan Sharon C. Thomas Roy Wilson Mother Parkers Tea and Coffee John Phelan Barbara Ruta Steven Stein Timothy Thompson Annabelle Wimmer Mary Mowbray Richard Philion Rachid Saad Herbert G. Stephenson* Maggie Thompson Winners Merchants International Sharon Mullaly Carol Phillip Janet G. Saddler Michael Stephenson Jeremy Thompson Tom Winton Larry Murphy Dorothy Phillips Giovanni Santoianni Susan D. Stevenson Gordon R. Thordarson Jeremy D. Wiseman William Murray Eileen Philp David W. Saslove Troy Stevenson R. John Todd Kimberly Woima Curtis A. Murray Philpot Fund Peter Scholefield Liliane St-Pierre Karine Trak Albert Wong Murray Kitchen Pickering Islamic Centre - Zakat/ John Schubert Zachary Sturgeon Ada Trak Deborah Woods Siva P. Muruganathan Sadaqah Fund Duncan Scott Dax Sukhraj Michel Tremblay Christopher J. Woodward National Mah Jongg League Inc. Shirley Piers Shannon F. Seabrook Sundance Foundation Carmen Tremblay Henley Donna Woolcott James C. Nesbitt Julie Pinkney Secteur Comptabilite Surge Learning Inc. Edward D. Trewin Peter Worth Margaret Newall Mary Plesko Serad Holdings Ltd. Robert Sutherland Kevin Trickett Joan Worthington Nexen Energy Chris R. Podolsky SFI Medical Equipment Solutions Roger D. Sweeny Trisura Guarantee Insurance Arlene Wright Marie L. Nichols Margaret Pollard Carlo T. Sguassero Fidus Systems Company Herbert D. Wyman David L. Nichols Cynthia M. A. Potts Phyllis Sharpe Nicholas Tapp Trust Eterna Xactly One Foundation D’arcy Nordick Pierrette Poulin Bruce Shepherd Edna R. Tarlo* Victor Tucker Paulyn Pao-Tjan Yao Lindsay Norton Giselle Poulin-Scallon* Robert Sherrin Barbara Tate Betty Ruth Tuckett Patricia Yeates Margaret Nutt Dianne Prah Ellen F. Shields Scott Taylor Robert Tully F. Joyce Young Brian Oberback Provincial Employees Community Dong Min Shin TD Canada Trust Susan D. Tumback Aafke Ypma Kenneth Ogston Services Fund Robert Turnbull Richard Shulman Robert H. Teskey Zita and Mark Bernstein Family Marion F. O’Keefe Ralph Pyle Jeffrey D. Vallis Foundation Sid Lee Toronto Sapna Thakur Ruth O’Leary Carol and Brian Quinn Eugene Veinotte Maria Zumpano Carmen Siegel The Barbara and Harvey Wolfe Patricia O’malley Raschkowan Foundation Charitable Foundation Isaac Verge Deborah Zwicker Ken Silver Omers Ventures Investment Najma Rawjee The Boiler Inspection and Shirley I. Vine Silver Hotels (Pantages) Inc. Management RBCA CFBRC Insurance Company of Canada Matthew Vorstermans Lori Simurda * denotes donors whose giving includes an estate gift 18 ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT
CHANGE THROUGH GIVING Thank you, Valeria! For Valeria Rosenbloom, caring about one another and “It is my pleasure to be a part of Alzheimer Canada’s society at large is a family priority. She and her family mission. Dementia is one of the most critical health are focused on helping improve the lives of people who problems we face not just as a country, but as a society. We experience the challenges of health conditions through want to see the Alzheimer Society of Canada succeed in its both professional practice and philanthropy. exciting new areas of research.” In her career as a physical therapist, Valeria often worked Because of Valeria’s generosity and support of the with patients who struggled not only with physical Alzheimer Society Research Program, projects are being disabilities, but also with neurological issues. And her undertaken by the best and brightest researchers in the daughter works as a speech therapist, continuing the field of dementia to uncover knowledge that will lead to family tradition of caring and supporting others. Valeria ways of preventing the disease, and eventually, cures. remains active on the board of the Unicorn Children’s Foundation that was started by her late husband, Mike, and his family to serve families with neurodiverse children from diagnosis through to adulthood. Valeria also has seen firsthand the challenges of supporting a loved one with dementia. “Dementia impacts the whole family. That’s why I choose to support the Alzheimer Society. So that there can be hope for the future.” Through the Mike & Valeria Rosenbloom Foundation, Valeria is privileged to continue Mike’s focus on philanthropy, especially in medical research. ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT 19
CORPORATE AND FINANCIAL INFORMATION Your dollars at work supports services to enable provincial Societies in improves lives delivering programs through national research 3% isgovernance spent on and administration helps us raise much % 7% 4 needed dollars to assist people living 1 with dementia and their caregivers 1% is to undertake national health 19% programs funded by the government support to provincial Societies to deliver local programs and services 6 % 5 20 ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT
Board of Directors Alzheimer Society of Canada/Société Alzheimer du Canada 2020 – 2021 Statement of Revenue and Expenses David Anderson For the year ended March 31 2021 2020 Director at Large Revenue Support from the public Charlene Callander Individual giving and direct marketing $ 12,762,424 $ 10,212,462 Saskatchewan Bequests 1,708,574 4,261,800 Corporate and foundation giving 2,074,248 1,937,790 Reverend Fay Forbes Director at Large Total support from the public 16,545,246 16,412,052 Nelson Hagerman Government 223,718 114,421 Prince Edward Island Partner charities (Note 10) 10,760,938 10,981,589 Investment and other income (Note 3c) 1,360,081 693,753 Andre Halley Government subsidy (Note 16) 432,273 - Director at Large Total revenue 29,322,256 28,201,815 Robert Kennedy Manitoba Expenses Programs Chris Lane Services 1,988,897 3,138,177 Alberta & Northwest Territories Research 3,814,912 3,758,742 Partner charities (Note 10) 15,524,570 15,283,986 Andrew MacIsaac Government health programs 223,718 114,421 Nova Scotia Total program expenses 21,552,097 22,295,326 Kevin O’Shea Newfoundland and Labrador Support Fundraising 5,301,476 4,910,830 Christine Penney Administration (Note 14) 768,108 497,928 Director at Large Total support expenses 6,069,584 5,408,758 Robert Piasentin British Columbia Total expenses 27,621,681 27,704,084 Luc Pinard Excess of revenue over expenses before Quebec unrealized investment losses 1,700,575 497,731 Farhad Sethna Unrealized investment losses (Note 3d) (53,541) (696,725) Ontario Excess (deficiency) of revenue over expenses $ 1,647,034 $ (198,994) Shelly Shillington New Brunswick Dale Goldhawk Honourary Director ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT 21 The accompanying notes are an integral part of these financial statements. 4
Learn more Take the pledge Take action Give generously Visit alzheimer.ca for I PLEDGE TO: Join in your local Visit alzheimer.ca/donate helpful resources and IG Wealth Management to give online, or phone BE VOCAL if I hear a joke or Walk for Alzheimer’s to locate the Alzheimer 416-488-8772 to speak with other conversations that Society in your community us about your goals create stigma. Join our Advisory Group of People with Lived BE PATIENT if I encounter Experience. someone with dementia. To get involved and learn BE SUPPORTIVE to people about other opportunities living with dementia and at the Society, please email their families. us at info@alzheimer.ca Alzheimer Society of Canada 20 Eglinton Avenue West, 16th floor Toronto, Ontario, M4R 1K8 Phone: 416-488-8772 Toll Free: 1-800-616-8816 Email: info@alzheimer.ca Website: alzheimer.ca Charitable registration number: 11878 4925 RR0001 22 ALZHEIMER SOCIETY OF CANADA 2020-2021 IMPACT REPORT
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