North Dakota Early Hearing Detection and Intervention - ndcpd

Page created by Francis Vazquez
 
CONTINUE READING
North Dakota Early Hearing Detection and Intervention - ndcpd
Quarterly Newsletter WINTER 2019

North Dakota Early Hearing Detection and Intervention

Join us in Kansas City!
It is almost time to start preparing for the 19th        You will have the chance to hear how other states
annual Early Hearing Detection & Intervention            EHDI systems are progressing, what is happening
(EHDI) conference to be held March 8 – 10, 2020 in       federally, and how the work you do affects families
Kansas City, MO. The conference is organized by the      and individuals. The annual EHDI conferences are not
American Academy of Pediatrics, National Center for      only educational, but also inspirational experiences!
Hearing Assessment & Management at Utah State
University, Hands & Voices, and U.S. Department of       We hope you make every effort to attend the
Health and Human Services: Health Resources and          conference! If you have questions, visit the
Services Administration. This is a great opportunity     conference website at https://ehdimeeting.org, or
for anyone with a stake in hearing health. The annual    contact ND EHDI program staff at 800-233-1737. We
EHDI conference provides an opportunity to go            hope to see you there!
beyond our individual focus and understand the                               — Submitted by Jerusha Olthoff, MSM,
breadth of what hearing health is as a system of care.                                 ND EHDI Program Director

                                                                                                               1
North Dakota Early Hearing Detection and Intervention - ndcpd
What the Hands & Voices Leadership
Conference Did For Me
by Leslie Halseth, President, North Dakota Hands & Voices

On the day I was voted as President of North Dakota
Hands & Voices I can tell you that I walked out of the
meeting thinking, “OH MY GOODNESS!
What have I gotten myself in to now?” I can
tell you that the next few weeks felt like I
                                                                                                 L-R: Hayley Kaffer (GBYS Parent Guide),
was consistently walking into New York City
                                                                                                 Leslie Halseth (ND H&V, President), and
traffic. I felt like everything was going so                                              Natasha Haugen (GBYS Parent Guide). Missing:
fast and I was lost and confused. Thankfully              I                                     Ken Frederick (ND H&V Board Member.)

was quickly reminded that this new journey
I was on was not something I had to do
alone. Not only did I have my other board
                                                    Natasha Haugen (GBYS Parent
members, I was lucky enough to be attending
                                                        Guide) and Leslie Halseth
the Hands & Voices Leadership Conference.                    (ND H&V, President)
This would be my first leadership conference since
joining the board.

I was not sure what to expect upon my arrival and I can
only describe it as that feeling of being with family for
Thanksgiving. That first morning and that first plenary
                                                                                            Hands & Voices Chapter Management Session.
session I knew that the position I was elected in to was
                                                                                           North Dakota chapter pictured with Region 7/8.
exactly where I was supposed to be. I had found “my
people”. Parents just like me who have literally walked a
mile in my shoes. Are our stories the same? NOPE! Do we               At the conference, I was able to sit through a session that
have something in common? ABSOLUTELY! I wasn’t “just                  focused on the process a military family goes though on
a parent of a deaf/hard of hearing child”; I was a “Parent            their journey. How exciting is that? I could take all this
of a Deaf/Hard of Hearing Child.” I met parents from all              new information back to my state chapter and help to
over the U.S. who shared similar stories, who understood              implement new programs that focused on a demographic
why I still cry after 10+ years when I tell my son’s story. I         of families that we have in our state. I also had the
met parents who understand why I feel like I’m holding                pleasure of sitting in on a session where Dr. Karl White,
my breath every time we go into the audiologist’s office              who is the founding Director of the National Center
for an appointment. I met a group of people, both                     for Hearing Assessment and Management (NCHAM),
parents and professionals, who have the same goal of                  discussed the importance of parent engagement in
providing and creating the best support for families on               systems. The conference was helpful in developing my
this deaf/hard of hearing journey.                                    skills in becoming a leader in my state and it reminded
                                                                      me why I decided to join Hands & Voices. It gave me an
This year’s conference was held in Washington, D.C. at                opportunity to meet many parents and professionals and
Gallaudet University. If you have never been to Gallaudet             make connections for my family and the families in the
University, I highly recommend it. The history of the                 state of North Dakota. These are connections that I will
university, the atmosphere and the location are amazing.              carry with me every day and reach out to when I need
                                                                      guidance or advice navigating through this new journey.
                                                                      I am so thankful to have had the opportunity to attend
                                                                      Hands & Voices Leadership Conference.

                                   “Always do your best. What you plant now, you will harvest later.” –Og Mandino                      2
North Dakota Early Hearing Detection and Intervention - ndcpd
CDC’s Progress in Detecting
Infant Hearing Loss
CDC’s Early Hearing Detection and Intervention (EHDI) is
making clear progress in supporting the early identification of
deaf and hard of hearing (D/HH) children. The earlier children
are identified with hearing loss and start getting intervention, the
more likely they will reach their full potential.

98 percent of U.S.-born infants             Since 2005 over 58,000                    $200 million in education
 are now screened for hearing loss           D/HH infants in the U.S. have          costs are saved each year in the U.S.
usually before leaving the hospital1.            been identified early.             due to newborn hearing screening2.

  Hearing Professionals Use                    Identifying hearing loss early is important
  These Important 1-3-6
                                               Hearing loss is one of the most common birth defects.
  Benchmarks
                                               • When left undetected, a hearing loss can delay a child’s speech and
                                                 language development as well as his or her thinking, learning, and
    1 Before one month                           social skills.
    mo of age: Hearing Screening
                                               • CDC-supported research show meeting the 1-3-6 Benchmarks
                                                 results in better vocabulary development for children who are D/HH3.
    3 Before three months
    mo of age: Hearing Evaluation
                                               How CDC is making a difference
    6 Before six months                        • The CDC EHDI program provides assistance to all states and
    mo of age: Early Intervention                territories to support the early identification of all D/HH infants.
                                               • CDC is responsible for collecting and analyzing EHDI data from
                                                 across the United States.
  Hearing screening is the first hearing
  service to determine if a baby               • CDC funds the development and use of systems and data tools
  may have a hearing loss.                       that help states and territories ensure D/HH children receive
                                                 essential services
  Hearing evaluation is
  a comprehensive test                           » Newborn Hearing screening, which is usually done soon after birth.
  to determine if a baby
  has hearing loss and                           » Diagnostic hearing evaluation, which involves
  the severity and type                            tests to confirm if a child is D/HH.
  of hearing loss.                               » Early intervention services help D/HH children with
                                                   learning language and other important skills.

                                                                                                      CS294435-A   November 30, 2018

                                   “Believe you can and you’re halfway there.” –Theodore Roosevelt                                     3
North Dakota Early Hearing Detection and Intervention - ndcpd
Caring for Our Community
                                                                             Our own Sue Routledge, ND EHDI Follow-up/Data
                                                                             Coordinator, along with NDCPD co-workers, spent their
                                                                             time one Friday morning helping pack bags of food to
                                                                             support growing local kid through the Backpack Buddies
                                                                             Minot program. Backpack Buddies is a program that
                                                                             provides food for elementary age students that may
                                                                             otherwise suffer from hunger over the weekends. Great
                                                                             job giving back to the community!
ND School for the Deaf/Resource Center for Deaf and Hard of Hearing
staff (L–R): Nicole Swartwout, Denise Marback, Carol Lybeck, Linda Ehlers,
Ashley Martin, and Lana Zimbelman.

The North Dakota School for the Deaf/Resource
Center for Deaf and Hard of Hearing has expanded
its mission to include that of a resource center on hearing
loss with responsibility to serve all citizens in North
Dakota who are deaf and hard of hearing. Through offices
in Devils Lake, Fargo, Bismarck, Underwood, Minot, and
Grand Forks the Outreach department strives to support
adults and children who are deaf and hard of hearing,
their families and the schools/agencies involved. As
per legislation (ND Century Code 25-07-12), the school
for the deaf may collaborate (not compete) with public
and private entities for the provision of services to adult
                                                                                        “The Dream Team” (L-R): Kevin, Zoey, Lori, Vanessa, Korie,
individuals who are deaf or hard of hearing.                                                                             Hilory, Sue, and Jessica
www.nd.gov/ndsd/outreach-services

                                         The ND EHDI program successfully submitted a grant proposal to
                                         HRSA Maternal & Child Health Bureau for continued funding the
                                         Early Hearing Detection and Intervention (EHDI) Program.

                         “The goal of this funding opportunity is to support the development of state/
                         territory programs and systems of care to ensure that children who are DHH
                         are identified through newborn, infant, and early childhood hearing
                         screening and receive diagnosis and appropriate early intervention
                         to optimize language, literacy, cognitive, social, and emotional
                         development” (HRSA NOFO FY 2020). Thanks to all our partners
                         for helping us with the process!

                                                 “Try to be a rainbow in someone’s cloud.” –Maya Angelou                                         4
North Dakota Early Hearing Detection and Intervention - ndcpd
Dakota Fas t Facts 2018
              North
                                                                           North Dakota Department of
                                                                          Health Division of Vital Records

                 Babies born                         Average daily
                in ND in 2018                       number of births                  Most popular
               10,630                                      29                         baby names in
                                                                                       ND in 2018
                  Day with highest           Day with lowest
                    # of births                # of births

                    Aug. 31                     Dec. 23
                       46 births                 10 births                          Oliver            Emma
                                                                                      &                 &
                                                                                    Owen              Olivia

                                                 Information from: www.ndhealth.gov/vital/pubs/ff2018.pdf

NCHAM WEBINAR:
The Path to Successful Collaboration Between                                                   Webinars &
EHDI Systems, Parents, and Professionals —
January 21, 2020                                                                               Resources
Presented by: Daphne Miller, Deepali Sanghani, Irene Schmalz, and Terese Urban
https://usu.co1.qualtrics.com/jfe/form/SV_ahfloBqAXsVRA0t

Hear to Learn WEBINARS:
http://www.heartolearn.org/
communities/learning-together.html

What DoesListening Look Like? Stage of Auditory Development                            Visit Hands and Voices Family
January 11, 2020 Presented by: Jeanette Smoot, MS, CCC-SLP, LSLS Cert. AVEd            Leadership in language and
                                                                                       learning cooperative (FL3) to
Integrating Listening and Spoken Language Strategies for Daily Living
February 28, 2020 Presented by: Claire Annis, M.Ed.                                    explore past webinars and
                                                                                       trainings on topics about
Count Down to Mainstreaming: How to Prepare for the Next School Year                   Family Leadership, Deaf and Hard of
March 27, 2020 Presented by: Kaytie Cook, M.Ed.                                        Hearing Adult Involvement, Family-to-
                                                                                       Family Support, and Language, Literacy
Focused Conversations
April 27, 2020 Presented by: Sarah Law, M.Ed.                                          and Social Development.
                                                                                       https://www.handsandvoices.org/fl3/
                                                                                       resources/trainings-webinars.html

                                                                                                                                5
North Dakota Early Hearing Detection and Intervention - ndcpd
We hope you will find the newsletter
                     Early Hearing Detection                               provides a broad picture of hearing
                                                                           healthcare in North Dakota.
                     Upcoming Events                                       Through collaborative efforts,
                                                                           streamlined processes and consistent
                                                                           communication, ND can assure a strong
                                                                           system of hearing health care for every
19th Annual Early Hearing Detection                                        child birthed and/or residing in
and Intervention Meeting                                                   North Dakota.
March 8 – 10, 2020 • Kansas City, MO
https://ehdimeeting.org                                                    We look forward to being a resource
                                                                           for quality improvement and working
                                                                           with you!

CMV Public Health & Policy Conference
                                                                           Sincerely,
August 30 & September 1, 2020 • Ottawa, Ontario, Canada                    The ND EHDI Staff
https://www.facebook.com/CMVPublicHealthandPolicyConference
                                                                           To subscribe ND-EHDI Newsletter, email
                                                                           christine.brigden@minotstateu.edu.

5th Annual North Dakota
                                                       2020 North Dakota
Power Up Health Conference
September 11, 2020
Bismarck Event Center, Bismarck, ND
www.facebook.com/PowerUpHealthConference
                                                 Health Conference
                                                                           North Dakota Early Hearing Detection
                                                                           and Intervention Program
                                                                           North Dakota Center for Persons
2020 Hands & Voices Leadership Conference                                  with Disabilities
Sep. 18 – 20, 2020 • Tennessee                                             Minot State University, Memorial Hall
                                                                           500 University Ave. West
www.handsandvoices.org
                                                                           Minot, ND 58707
                                                                           (800) 233-1737

                                                                           FOLLOW US!
                                                                              www.facebook.com/NDEHDI

                                                                              @NDEHDI_NDCPD
Save the date!                                                             Website: www.ndcpd.org/ehdi
20th Annual Early Hearing Detection and Intervention Meeting
February 28 – March 2, 2021
Duke Energy Convention Center in Cincinnati, Ohio
https://ehdimeeting.org                                                    ND EHDI is funded by the U.S. Department of
                                                                           Health and Human Services, Health Resources
                                                                           and Services Administration; Award No.
                                                                           2H61MC000281700

                                                                                                                         6
North Dakota Early Hearing Detection and Intervention - ndcpd North Dakota Early Hearing Detection and Intervention - ndcpd North Dakota Early Hearing Detection and Intervention - ndcpd North Dakota Early Hearing Detection and Intervention - ndcpd
You can also read