Motor Symptoms Co-Management: Occupational Therapy and Neurology - Symptom Management
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Season 12 - Winter/Spring 2021 Symptom Management: Is it PD, Medication or Aging? Motor Symptoms Co-Management: Occupational Therapy and Neurology Michael Okun, M.D. Lisa Warren, MHS, OTR/L Gretchen Rosswurm February 9, 2021
Meet the Presenters Lisa Warren, MHS, OTR/L Michael Okun, M.D Gretchen Rosswurm Occupational Therapist Adelaide Lackner Professor and 2020 Chair Rehabilitation Manager Chair of Neurology Parkinson's Foundation Norman Fixel Institute for Executive Director, Norman Fixel Institute for People with Parkinson's Council Neurological Diseases Neurological Diseases University of Florida Health Medical Director, Parkinson's Foundation 1
NIH Grant Support • R25NS108939 University of Florida R25 Early Research Program for Neurology and Neurosurgery Residents • R01NS096008 The Human Thalamocortical Network in Tourette Syndrome • R01NR014852 Mobile Decision Support System for Nurse Management of Neuromodulation Therapy 1NS072897 • R34MH080764 Scheduled and Responsive Brain Stimulation for the Treatment of Tourette Syndrome
Learning Objectives 1. Participants will learn the 4 motor symptoms most often associated with Parkinson’s. 2. Participants will learn strategies for managing Parkinson’s motor symptoms. 3. Participants will learn how the physician, the therapist and the PWP can integrate the recommendations for better function and improved quality of life. 3
4 Cardinal Motor Symptoms of Parkinson’s Tremor: Shakiness of hands, legs, chin Bradykinesia: Slowness Rigidity: Stiffness Postural Instability: Balance changes 4
Poll What is your most challenging motor symptom? Tremor Bradykinesia Rigidity Postural Instability 5
Tremor Typically affects one side of the Shakiness of hands, legs, body, initially chin SYMPTOMS OF TREMOR Majority of people May fluctuate throughout the experience tremor at rest day & from day to day 6
Tremor • What will the neurologist do to help? • How will the OT help you manage your tremor? • What does tremor feel like to someone with Parkinson’s? 7
Coping with Tremors: Take Home Tips Remember 20% or more PWP may have medication resistant (or partially medication resistant) tremor; in these cases, consider DBS. Tremors fluctuate; manage emotional and physical stressors to the best of your ability. Manage stress. Meditation, exercise, talking with friends and taking time for your hobbies can lesson tremor. 8
Bradykinesia Difficulty Daily tasks may initiating take longer movements SYMPTOMS OF BRADYKINESIA Stillness or decrease in Slowness facial expression 9
Bradykinesia • How does the neurologist help you with bradykinesia? • What does the OT say about managing bradykinesia? • What does bradykinesia feel like when you have Parkinson’s? 10
Coping with Bradykinesia: Take Home Tips Plan to take your medications an hour before tasks that require fine dexterity. Allow extra time to accomplish tasks Improve slowness and dexterity by shuffling and dealing cards and tracing a design with a friend. 11
Rigidity Stiffness throughout the body Can occur in one or both sides of the body SYMPTOMS OF RIGIDITY May cause pain or cramping (dystonia) 12
Rigidity • How can the neurologist help you with rigidity? • What suggestions can the OT offer to manage rigidity? • What does rigidity feel like to someone with Parkinson’s? 13
Coping with Rigidity: Take Home Tips Medication on time every time. Warm up then stretch the muscles before putting them to work. Stretch frequently, try seated yoga, focus on gait and arm swing and frequently practice handwriting. 14
Postural Instability Can lead to falls Reluctance to participate in activities POSTURAL INSTABILITY Balance changes 15
Postural Instability • What can the neurologists do to address my postural instability? • What tips does the OT have to manage my postural insta • What does postural instability feel like to someone with Parkinson’s? 16
Coping with Postural Instability: Take Home Tips Do not depend solely on medications but integrate consistent, year-round therapy. Minimize multitasking when you are walking; focus on walking and moving safely. Use a balance board, walk with big steps & with confidence. 17
Thank You and Q&A Lisa Warren warrlr@shands.ufl.edu Michael Okun @MichaelOkun okun@neurology.ufl.edu 18
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This Expert Briefing is made possible through the generous support of 20
Post-Webinar Details & CEUs CEUs For Health Professionals interested in 1 free CEU from the American Society on Aging click on the link in the chat. Valid until March 9th, 2021. RECORDING This webinar is recorded for on-demand viewing and will be available within a week of the live event. These Recordings will be available in Spanish a few weeks post-webinar. SLIDES Download webinar slide deck via link in the chat. 21
Expert Briefing Winter/Spring Series 2021 Symptom Management: Is it PD, Medication or Aging? Tuesday, March 9th Tuesday, April 20th 1pm ET 1pm ET Exploring Non-Motor Symptoms: Mental Wellbeing and Memory Neuropathy, Fatigue, GI Issues Gregory Pontone, MD, MHS Ellen Walter, NP Steven Swank, PharmD, BCACP These EBs will be available in Spanish on: ‘Canal en Español’ YouTube channel Register at Parkinson.org/ExpertBriefings
Related Resources Apply Now! Fact Sheets People with Parkinson’s Get the resources and information Council you need to start living a better Composed of people with Parkinson’s life with Parkinson’s. who advise and collaborate with the Parkinson.org/Library Foundation on pivotal decisions and steps. Applications are open until 2/26/21. Parkinson.org/PPAC Podcast: Substantial Medications: A Treatment Matters Guide to Parkinson’s Disease New episodes every other Available for download, Tuesday featuring Parkinson’s physical copy or purchase on experts, treatments, Kindle. Episode 5: How to techniques and research. Parkinson.org/Library Manage Parkinson’s “Off” Time Parkinson.org/Podcast Parkinson.org/Store Kindle.com
Other Resources Aware in Care Kit National Helpline Specialists answer calls about all The Aware in Care kit is filled with life aspects of Parkinson’s in addition to saving tools and information to help a helping you locate your local PD person with Parkinson’s during a trained allied health professional planned or unplanned hospital visit. therapist. Find kit options at Parkinson.org/AwareinCare 1-800-4PD-INFO Helpline@Parkinson.org Mon- Friday 9 am to 8 pm ET PDGENEration PD Health @ Home The Aware in Care kit is filled with life Parkinson’s Foundation’s national saving tools and information to help a initiative that offers genetic person with Parkinson’s during a testing for relevant Parkinson's- planned or unplanned hospital visit. related genes and counseling at Find kit options at no cost. Parkinson.org/PDHealth Parkinson.org/PDGeneration 24
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