The 100 year life The role of housing, planning and design 5 September 2018
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Welcome and context Ewan King Director of Business Development and Delivery Social Care Institute of Excellence (SCIE) ewan.king@scie.org.uk www.scie.org.uk
Context 1 in 3 children born today can expect to live to 100 Baby boomers retiring More people with disabilities living into old age By people’s late 80s, more than 1 in 3 people have difficulty with 5 or more day to day activities Leads to increased pressure on individuals, communities, health and care systems
The opportunity Reason to innovate – not just celebrate To ensure more people enjoy a good later life, changes need to be made Policy context: • Grand Challenge on Ageing • Green Paper on Care for Older People: role of housing, technology and design • Focus on prevention SCIE, Design Council and Centre for Ageing Better workshop: policy recommendations
Today’s session 1.30 Welcome and context Ewan King, SCIE 1.40 Role of mainstream housing in Rachael Docking, Centre improving later life for Ageing Better 1.50 Making life better by design Ellie Runcie, Design Council 2.00 Family carer perspective Dame Philippa Russell 2.15 Table discussions 3.15 Wrap up Ewan King 3.30 Close
The role of mainstream housing in improving later life Rachael Docking Senior Evidence Manager, Centre for Ageing Better rachael.docking@ageing-better.org.uk www.ageing-better.org.uk
Homes headed by someone aged 85 and over are the fastest growing household* By 2025 there are projected to be 1.5 million households headed by someone aged 85 or over – an increase of 54% from 2015* *Source: Ageing Better calculations based on: Department for Communities and Local Government (2016), ‘2014-based Household Projections: England, 2014-2039’. 7
More than 90% of older people live in mainstream housing Only 3.2% of those aged 65 and over live in care homes* 80% of the homes we need by 2050 are already built** 8 *Source: ONS, 2014; **Source: Boardman et al, 2005
A large proportion of people do not intend to move Source: Ipsos MORI survey of 1,389 people aged 50 and over. Later life in 2015 Centre for Ageing Better 9
The % of people who have difficulty with activities of daily living increases with age 475,000 By people’s late 80s, more than 1 in 3 people have difficulty with 5 or more day to day activities 10
Current UK housing stock is not suitable, adaptable or accessible for people in later life Only 7% of homes meet basic accessibility features* *Source: DCLG (2016), English housing survey 2014 to 2015: adaptations and accessibility of homes report 11
Home adaptations improve people’s quality of life £7000 V £29,000 Home adaptations have been shown to improve the quality of life for 90% of recipients *Source: Heywood, F. and Lynn, T. (2007). ‘Better outcomes, lower costs. “Implications for health and social care budgets of investment in housing adaptations, improvements and equipment: review of the 12 evidence”’. London: Office for Disability Issues/Department of Work and Pensions.
Key findings on the role of home adaptations Minor adaptations Repairs and home improvements Person oriented Timeliness (system delays and putting off installation) People delay adapting home due to clinical appearance of adaptations and their association with vulnerability System delays caused by lack of resource Process so complex professionals struggle to navigate
What is happening externally? Last spending review the DFG was increased DHSC commissioned a review of the DFG CLG Select Committee report on housing for older people Social Care Green Paper due 2018 Industrial Strategy Grand Challenge: Healthy ageing Improving health and care through the home: MoU Government commitment to building new homes
Making life better by design Ellie Runcie Director, Growth and Innovation, Design Council ellie.runcie@designcouncil.org.uk www.designcouncil.org.uk
Practice into policy? Economic growth Planning as a balance of conservation and growth Teaching and learning Housing numbers Economic Employment Green belt versus brownfield Infrastructure Demographics digital and physical People living alone and later Place Societal access to home ownership Health and wellbeing inactivity in society Ageing population Impact on the built environment Inclusivity and community engagement © Design Council 2018
DESIGN COUNCIL SPARK Inclusively designed products ➢ Getting up & dressing for every day living ➢ Moving around ➢ Keeping active ➢ Easier bathing ➢ Kitchen support Tru-Unity Workey Elba ➢ Managing health needs Door Handle A key turning London An ergonomic tool that eases A well-fitting bra handle which grasping and that is supports a turning to aid comfortable and natural grip and dexterity. easy to put on twist motion. and take off DRINK A wheelchair accessory that carries a variety of glass Ezi-Plug TickleFLEX sizes and attaches to Handy Fasteners A mains plug Place on the almost An adaptive and socket end of an insulin anything. magnetic designed for pen to make alternative to people with self-injecting traditional buttons dexterity safer and more issues. comfortable.
System design or problem redefine? © Design Council 2018
Shaping solutions…. Problem Definition
….before we explore the problem
A framework for innovation Discover Define Develop Deliver Insight into the The area to Potential Solutions problem focus upon solutions which work Being people centered Communicating visually Collaborating & Co-creating Iterate, iterate, iterate Problem Problem definition Solution The design process This is a clear statement of The solution is an output begins with a problem, the problem to be solved that meets the requirement question or hypothesis of the problem definition
Reducing Trips and Fall: Teignbridge? - East Teignmouth has a higher than average ageing population, with 7% of residents aged over 85-years- old - Trips and falls are the most common cause of death in the over-65s in the area - Existing prevention solutions not working
1. Being people centred? Capturing real stories Improving understanding Evidence that a new approach was needed focusing on prevention.
Extreme users Range Core Range (Majority)
2. Communicating (visually) 2. Communicating (visually)
3. Collaborate & Co-create?
4. Iterate, iterate, iterate…? ADD IMAGEs OF PROTOTPYING
Outcome 1. Three service areas identified for development: • Online photo submission • Home assessment service • Volunteer support pack 2. Relationships between various health agencies resulted in greater collaborative working 3. Joint funding bid to embed this way of working
The value of the design approach • Putting people at heart of this Key challenge: process 1. Scale up • Collaboratively exploring the 2. Embed capabilities problem with multiple stakeholders • Supports new ways of effective engagement • Testing alternative approaches early and often to manage risk • Breaking down complexity
Scale up
Six innovation briefs 1. Steps to a positive future 2. Mobility & Transport 3. Life Transitions 4. Caring about carers 5. Right information, right time 6. Making connections 37
2. Embedding capabilities Epping Forest To reduce the volume of unnecessary A&E attendances District by the frail elderly ie. over 75s Council Islington To understand the needs of frail individuals and identify/ Council test new solutions to support their independence 13 teams Bexley Council To create a co-production model to design and fund Better Care Fund prevention and early intervention projects Southwark To tackle undiagnosed heart disease, which drives Council premature death, health inequalities and healthcare costs Doncaster To redesign services to support self-management 30 organisations Public Council across an integrated health and social care system Health North Tyneside To utilise design principles that will facilitate the focus Council engagement of inactive adults into physical activity at scale Stockport To find a new way of collaborating with VCSE partners Council to coproduce social connection, reduce isolation and build resilient communities City of Creating a healthy, strong district harnessing the built Bradford environment to support wellbeing across our New call for applications open – Metropolitan communities for the future deadline midday 21 September! District Council
Are we ready for the 100 year life? Partnership, Participation or Purdah? A family carer perspective Dame Philippa Russell DBE Vice-President, Carers UK philipparussell118@gmail.com l118@gmail.com
The 100 Year Life: Transitions from institutional solutions to family life: Simon’s story and a personal journey
‘The ‘big conundrum’ – Why family carers matter: ‘We need mature conversations’ about ‘co-producing’ 2lst century care and support’. • 1 in 10 of the population will become a family carer - 4 million carers (840,000 dementia carers) – but anxiety amongst many families about sustaining care with personal and economic well- being and their own developing care needs. LSE/University of Newcastle (The Lancet Public Health, August 2018) notes that increasing long-term disability and care needs could ‘be unsustainable for family carers’. • Increasingly complex and long-term nature of care – Major developments in past three decades around deinstitutionalisation and community participation – how can we sustain the progress and think ‘out of the box’ , learning from the families about what good care and support looks like.
The ‘Age-Old Question’ – a 2lst century perspective on the challenges ahead and a reflection on solutions • The challenges for Simon and his family – we need to change our negative expectations of longer lives! [Royal Society for Public Health/Calouste Gulbenkian Foundation survey, 2018] – 24% thought ‘all older people will get dementia sometime’. – 25% thought ‘it’s normal for older people to be depressed and sad’. – 24% thought that ‘’older people can never be really attractive’. – 64% of respondents did not have any friend with a 30 year age gap from their own [general feeling that older people ‘not really part of society] – ‘It’s a young world now, no place for older people. Social media has changed all that, I don’t know we can bridge the gap.’ [quote from respondent]
We need a ‘New Narrative on Ageing’ – a new narrative for ALL generations moving older people from ‘problems’ to ‘citizens’ • The ‘l00 Year life needs a new narrative on ageing – and one which can only be developed in partnership with older people themselves. In effect we need all our citizens to be ‘activists’ in reshaping the agenda – and reflecting on their own futures decades into the future. – Ageing is an inter-generational issue ‘ ‘We need to plan it like a space mission not see older people and their families as ‘a demographic time bomb’! – We need a personalised approach to ageing, not the ‘collective lumping’ of older people into negativity and problems – Older people are active citizens AND a vital part of our ‘care and support system’ with assets to share – IF we ‘co-produce’ a different future.
‘Why we need to talk about caring - One in ten of us can expect to become a carer during out life-time – will we be able to carry on caring in a 100 Year Life’? • PSSRU (2017) A reminder that carers are a scarce resource! Demand for family carers for people over 65 expected to increase by over 1m in next three years. • 1.3million carers are over 65 (often for more than one person). The number of carers over 65 is increasing more rapidly than in the wider population (the percentage of older carers has risen by 35% since 2011 as compared to 11% in general population). • 45% of disabled people in the UK are over 65 – major implications for complex health needs.
Managing complexity in an ordinary life – understanding what makes a difference! • Family carers people face increasingly challenging roles – number of people with 3 or more long-term conditions predicted to rise from 1.9 million to 2.9 million by 2018. Increase in dementia and ‘new survivors’ of younger people with very complex disabilities. • ‘But WE did it!’ – Barbara and Malcolm’s story: Managing the ‘web of care’ and meeting the challenges of the 2lst century ‘100 Year Life’ and ‘making home work’.
Managing the Web of Care Out-of- Consultant Continence Hours Adviser (Last 7 yrs) Doctors/ Paramedics Speech & District Nurses Language Adviser GP Care team 2 live-in carers (alternating weekly) Dementia Dietician Replacement carer Advisory [Some night nursing Nurse? – Health] Community Emergency carers Dentist & Barbara Malcolm & Barbara Occupational Social Therapist Worker Equipment Oxygen Service Wheelchair Direct service Service Payments Team; Alzheimer’s Physiotherapist Rowan Soc outreach Alternating Org. worker Mattress technician
‘We need to rebrand social and residential care and recognise housing as the ‘third pillar’ alongside health and social care; We need a range of options for housing with care – for ALL generations. [Professor Paul Burstow, Commission on Housing with Care, 2017] • THINKING OUTSIDE THE BOX – WE NEED TO PERSONALISE CARE’ ‘Most of the residents in my mother’s nursing home are really frail and ill – I worried, would they get the healthcare they really needed, would their medication, their dressings be sorted properly. But with telehealth AND telecare, we all ‘sing from the same song-sheet’. Best of all, our mother says that she hasn’t gone into care (horrid phrase’, she has just changed her address for a place with a better garden!) The most important thing is that we talk about a HOME LIFE and where we an best enjoy it (and that can mean staying put with support or going away!)’
And looking into the crystal ball! Bridging the Inter- generational gap and creating more inclusive communities. • ‘We need some myth-busting about ageing and caring’; Creating all-age partnerships (eg volunteering, mentoring, buddying) • ‘ASK THE PEOPLE TOO! It’s going to be us one day!’ – Encouraging debates, discussions in across the age range about what creates inclusive communities. • ‘It’s lonely out there sometimes but young people get lonely too!’ (eg Jo Cox Foundation initiatives to create peer support and improve community access for young and older people in today’s very mobile and often hurried communities)
Location, Location, Location – Recognising the importance of older people/carers as partners in change • Creating accessible communities together! Older people and carers as a priority group in local/district plans – and involved as active citizens NOT demographic burdens! • Thinking outside the box! Japanese town with oldest population in country reversed the trend after local consultation by putting housing for older people in the town centre and moving younger people to more expensive suburbs! • Developing the market! Remembering the ‘grey pound’ – why must aids and equipment look so clinical and drab (and can we think social inclusion – seats in shops and please more accessible buses and toilets!).
And creating Digital Inclusion, the gateway to participation • Care Act assessment and support for people needing support and for carers: we need to ensure that carers know about the possibilities of full range of assistive technology and who can give advice and offer ‘whole system support’ to local authorities and others (eg Carers UK). • Using Personal Budgets and Personal Health Budgets more creatively (and not forgetting self funders). • Work proactively with community and other groups to improve digital connectivity. We need to end the assumption that older people (and some disabled people) will never embrace technology. They can and do!
And some reminders….a new generation of adults like Simon with learning and other disabilities who for the first time are outliving their parents and surviving into later life. • ‘New survivors’ – ADASS (2018) identifies improved survival rate of people with learning disabilities as major pressure point for the future. • But is the new longevity a problem if we adopt a ‘whole community’ approach to future planning, co-production and inter- dependence?
And a reminder about well-being, relationships and the experiences that enable us to find creative solutions and develop new shared approaches to the 100 Year Life!
Table discussions 2.15 - 3.15pm
Recommendations (1) 1. Align housing, health and social care plans: • Green Paper should highlight a common goal to align health, housing and care systems around a shared objective of helping people to live independently at home that is suited to their needs as they age. Include inter-generational solutions to enable family members to support each other (as full-time or part-time residents) • Local leaders should work together to have a shared objectives and single plan and budget for housing, health and social care.
Recommendations (2) 2. Increase finance options • Make it easier for older people to access funding to support themselves, and encourage innovation in the marketplace. • Led flexibly to people in later life: Increase age limit for lending • Extend personal health care budgets to allow for cost of adaptations • Use Disability Facilities Grant innovatively to drive new ideas to market: e.g. remove means test for low-cost adaptations, repairs and improvements • Use Regulatory Reform Order that allows use of DFG for wider purposes • Extend terms of equity release: increase age limit for mortgage/remortgage
Recommendations (3) 3. Make communities age friendly and inclusive • Set space standards e.g 90% of new homes to be built to accessibility standards (accessible and adaptable dwelling) and 10% to be ‘wheelchair user dwellings’ (eg London) • Include design principles that create age-friendly environments (e.g. planning authorities could make this a requirements in new developments) • Invest in skills and learn from age-friendly community approaches: Government could invest in training on co-designing • Apply evidence: housing developers should apply evidence of what works to make homes adaptable and accessible as people age.
Recommendations (4) 3. Use inclusive design and co-production • Government should use the Industrial Society Challenge Fund to ensure everyday products and services are designed to inclusive design principles in areas such as independent living, home adaptations, transport and mobility. • Embed the principles and practice of co-production in the design of products, services and places. • Develop the knowledge and skills of policy-makers, commissioners, planners, designers and housing professionals in the practice of co- production
Table discussions Discuss each of the 4 key recommendations: 1. Align housing, health and social care plans 2. Increase finance options 3. Make communities age-friendly and inclusive 4. Use inclusive design and co-production Agree on: • One positive that recommendation (Rose) • One negative – or it could be a barrier to the recommendation (Thorn) • One area of opportunity that could be explored/accelerate progress (Bud) Present back your Rose/Thorn/Buds for one of the four recommendations. Respond to each table’s feedback.
Report available at www.scie.org.uk
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