SPRING 2021 - THE HALL FAMILY STORY FEATURED INSIDE - RONALD MCDONALD HOUSE OF DELAWARE
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From Leadership Chair Perry S. Beberman Vice Presidents David Hancox Allison E. Micich Stephen J. Mottola Perry S. Beberman Lance Sabouni Chair, Board of Directors Vice President/Secretary Kenneth C. Manne Treasurer Chris Marshall Board of Directors Dear Friends of the Sissy Dent Aerenson Ronald McDonald House of Delaware, Ryan Brazell James F. Burrows The Ronald McDonald House of Delaware is looking forward to 2021 with hope and optimism. Dominic C. Canuso, CFA After the challenges we faced in 2020, we are planning for a great year. Already, we are working to Pauline M. Corso re-engage our dedicated community with exciting events; both virtually, and in-person later in the Rich Doane year when we hope the promise of a vaccine will once again let us gather together. Barbara Dukart Last year, your support never wavered for our House. While we were unsure what 2020 would Joel E. Dukart mean for our resources to continue to stay open for families, you never let us down. In fact, you Tony Hill stepped up in a remarkable way. You made the events that we were able to hold ones to remember. Our first ever Virtual Run/Walk raised over $90,000 and while very different, our Golf Event was a Vijay Iyengar, M.D. success, far exceeding our expectations given the pandemic and raising enough to cover 12,000 Keith Kepplinger overnight family stays. Notably, you made sure our families were fed. Your support of our Meals Christopher S. Marshall for the House program meant that our families had a hot meal every single day of the year- even Michele Meixell when our volunteer groups were no longer allowed to cook. Katie Migliocco We recognize 2020 was a tough year for many businesses and individuals in our community and David A. Paul, M.D. continues to be. Which makes the support we have received that much more meaningful. I can’t say Mike Pfeifer this enough: THANK YOU for supporting our families through what was the House’s toughest year. Hank Rosenberg Please keep up your support. While we are optimistic, 2021 will continue to be a challenge. Bob Trostel I would like to thank our dedicated team of staff for keeping the House open and running. While Marichu C. Valencia our volunteer program was suspended due to COVID-19 visitor restrictions, our staff kept things running smoothly and made sure our doors never closed to families who needed us. Special Advisory Council recognition goes to our team of Relief Managers who stepped up to take on extra work hours and R.R.M. Carpenter, III, Chairman duties when we needed them most. Perry S. Beberman The family story featured in this issue of Our House highlights Zoe Hall, who has fought sickle cell Mary E. Bowler disease for years. This painful condition has brought her to Nemours/Alfred I. duPont Hospital for Joseph Carbonell Children many times for treatments, sometimes for weeks or months at a time. Zoe and her family Nick Cerchio have stayed at the Ronald McDonald House both during her treatments, and when her sister was Joseph G. DiPinto diagnosed with sickle-cell at just four years old. The Hall family has found a “home-away-from- home” many, many times at the Ronald McDonald House over 14 years. Zoe is a strong, smart, and Stanley M. Diver accomplished young woman who the House has been privileged to watch grow up. I invite you Les Dukart to read their story and learn more about sickle cell disease, about which Zoe is passionate about Tom Ferry educating her community. Richard J. Gessner, Jr. The collective effort our staff, volunteers and community enables us to achieve our mission to Shaila Kapur serve families with seriously ill children by enabling access to medical care and providing a place that offers Lynn Miller comfort, hope and togetherness. Stephen Nelson With sincere gratitude and hope, Michelle A. Pena Dr. David Pensak Louis Rosenberg Richard D. Rowland Perry Beberman Chair, Board of Directors Michael D. Waite Ronald McDonald House of Delaware Anne J. Wright
Our Mission Our Vision The Ronald McDonald House of Delaware serves Supporting families to reach the hope of families with seriously ill children by enabling tomorrow from the challenges of today. access to medical care and providing a place that offers comfort, hope and togetherness. Staff A House Update and Reflecting on 2020 President and CEO In our first issue of Our House each year, we typically highlight statistics that show how we Pamela W. Cornforth impacted families in the previous year. However, this time around, when we began looking at numbers such as families served, the average length of stay, and occupancy rates, a very Operations Director different story about 2020 emerged. This was, of course, expected. 2020 was a much different story for us all. Katie Soja Johnson So this time, instead of highlighting numbers with a jazzy infographic, I want to take a moment Social Worker to tell a different narrative. Erica Davis In 2020, 599 families stayed at the Ronald McDonald House of Delaware. For those 599 Southern Delaware Advancement families, our doors never closed. Officer and Grant Writer Jan Shallcross When we ask guest families what they would do if they didn’t have the Ronald McDonald House as a lodging option during their child’s medical treatment, we often hear things such as: Resident Manager Chris Shifflett “We would have depleted our family’s savings to pay for a hotel.” Special Events Manager “We would have had to drive four hours round trip every day to and from the hospital.” Dawn Brooks “We would have slept in our car.” Volunteer Manager In 2020, for 599 families, we were able to make sure none of those scenarios were faced. 599 Sara Funaiock families had warm beds, hot meals, and a safe space to be together. And most importantly, they did not have to delay or miss medical care for their child. Marketing & Communications Manager This is thanks to you. Your support through fundraisers, providing meals, and donating Wish Erin McGrath List items made it possible. Volunteer Program Assistant As we move through 2021, we are hoping to tell a new story. We are still in the process of following our reopening phases as we make sure we can provide the safest, healthiest Sarah Sommer environment for families. We look forward to moving forward and welcoming more families, Guest Services Coordinator volunteers, and staff home as soon as we can. Monica Villicaña You can always find the latest updates on our Development Assistant reopening on our website at rmhde.org. Ivey Helmick See you soon. And thank you. Family Room Program Coordinator Barbara Bonk Administrative Coordinator and Pam Cornforth, President and CEO Marketing Support Haley Belcher Maintenance Assistant Harry Cross
“The House Has Been a Blessing to Our Family” The Hall Family Story 19-year old Zoe Hall is a CNA (certified nursing assistant). She you’re in high school- you know- you just want to spend that day enjoys caring for patients in a way that she is intimately familiar having fun with your friends. And I was sad that I spent it in the with- because she can empathize with them. hospital.” Zoe has sickle cell disease The Hall family lives in Dover, (SCD)- an inherited red blood Delaware, just under an cell disorder. In patients with hour from duPont Hospital SCD, red blood cells become for Children. Zoe is part of hard and sticky and look a large, loving family, with like a C-shaped farm tool seven siblings, a niece, and called a “sickle”. The sickle a nephew. Although Zoe cells die early, which causes started receiving sickle cell a constant shortage of red treatment at 14, the Halls blood cells. Also, when they are no strangers to duPont travel through small blood Hospital for Children and the vessels, they get stuck and Ronald McDonald House of clog the blood flow. This can Delaware. cause pain and other serious problems such as infection, The Hall family’s first stay acute chest syndrome, and at the Ronald McDonald stroke.1 House was in 2007 when Zoe’s younger sister Zondra When Zoe experienced her started receiving treatment, first pain crisis at age 14, she also for sickle cell disease, spent weeks at Nemours/ at age four. Zoe remembers Alfred I. duPont Hospital for Children. Over the last five years, staying at the House with her parents and siblings. Her mom she has been back many times. As Zoe grew through her April shares “all of the siblings would always be excited to come teenage years, she discovered that certain things triggered her to the House and play.” pain crises, and she recognized a pattern. When it started to get Zoe’s family made every effort cold outside, she would have a to be by her side during her long crisis, end up in the hospital, and hospital stays. And driving every miss school. day from Dover wasn’t practical- especially for her large family. Zoe’s junior year of high school That’s why they have called the was particularly tough; she had a Ronald McDonald House “home- full course load of eight classes. away-from-home” over the years. Her schoolwork caused a great deal of stress- another known “The House has been a blessing trigger of sickle cell crises. That to our family,” shares April. February, she had a pain crisis “Staying here relieves the tension and was admitted to the hospital for three weeks. Although financially. It also brings the comfort of knowing we don’t have she was in pain, Zoe’s sharpest memory of this hospital stay to worry about what to eat. It takes one more thing off the list.” was that she missed spending Valentine’s Day with her friends. She adds that remaining close to the hospital means a great “I didn’t have a boyfriend or anything,” she shared “but when deal.
she needs emergency care. She is passionate about educating Being close to others about sickle cell disease and hopes to spread awareness the hospital about a disease that not many people know much about. became even more important in 2020. Zoe and April would like to direct anyone interested in learning After many years more about sickle cell disease to the William E. Proudford battling painful Sickle Cell Fund. The fund supports treatment and research at recurring sickle cell hospitals in the Mid-Atlantic, including duPont Hospital for crises, Zoe began Children. You can learn more at wepsicklecell.org. the journey to receiving a bone 1 Centers for Disease Control and Prevention. 2021. What Is Sickle Cell marrow transplant. Disease? | CDC. [online] Available at: [Accessed 7 January 2021]. which included a lonely 3-week hospital stay while her family faced Photos from 2007, when the Halls began several diagnoses of COVID-19, finally led to a successful visiting the House. transplant in October. She felt overjoyed that her older sister was a match and she became her donor. After her transplant, Zoe and April came to the Ronald McDonald House while Zoe recovered. “The House is giving me a place to stay safe while we wait for my immune system to get stronger,” she shared. Because getting COVID-19 would likely be devastating for Zoe’s weakened immune system post- transplant, she is grateful to find respite in a safe environment. Because of visitor restrictions at the House, Zoe’s other siblings are not able to stay with them. Zoe and April miss their family dearly but share that they have discovered a new, deep bond as mother and daughter. “It’s provided a unique opportunity,” says Zoe, laughing “I feel kind of like I get her all to myself for once!” April adds that over the years, the family has also found support through their community. Members of their church have volunteered to cook meals for families in need because as April states, they know that “the organization is just awesome.” Since her transplant, Zoe has been symptom- free and finds peace knowing they are right across the street from the hospital in case
Upcoming Events House Calls Character Choices: Orders accepted March 20 - April 5 Personalized video messages from your favorite princess or superhero! Choose from the characters below to record an exciting 2-3 minute personalized video message! $20 per child Order videos online at: give.rmhde.org/housecalls Princesses provided by Superheroes provided by Proceeds benefit the House! August 28 - September 18 Statewide Hybrid 5K Event! In-person events (Dependent on restrictions in place at time of event) Participants have the opportunity to create their own team or sign up as an Saturday, August 28 – Wilmington, Delaware individual. Saturday, September 18 – Lewes, Delaware You can walk/run in Wilmington, Virtual option - anytime, anywhere Lewes (or both) or Virtually! Check our website in early May for more information: give.rmhde.org/5K2021
Event Highlights Go The Distance Virtual Run/Walk Our Wilmington 5K Run/Walk for Kids and Lewes 5K Run/Walk for Kids joined forces for our first ever virtual run/walk in 2020! Raised O Over 700 participants and 52 teams! ver Top Fundraising Team (as of 8/14/20): Team George $90,000 Top Overall Fundraising Team: Devon’s Wild Cards Second Place: Winnie’s Winners Third Place: Gmoneystrong Committee: Top Fundraising Individual: Waldo Keesee (four-legged friend Peter Bailey, Dawn Brooks, Barbara Brown, Dawn Burbage, Emily participant!) Cunningham, Les Dukart, Joe Gallagher, Victoria Glenn, Don Second Place: Ashley Toner Gouge, Patti Hastings, Debbie Janocha, Wayne Kursh, Barbara Third Place: Gina Myers Loeslein, Katie Migliocco, David Paul, Wendy Palmero Rogers, Team with the Most Participants: GMoneyStrong: 57 participants Lance Sabouni, Doug Schell, Jan Shallcross and Monica Wheatley Thank You to our Sponsors Gift of Hope & Presenting Sponsors: Gift of Love: Gift of Care: Gift of Courage: AAA Law Offices of Doroshow, Jack Lingo Realtor Races2Run Breakthru Beverage Pasquale, Krawitz & McCarter & English Wilmington University Delaware Bhaya Morris, Nichols, Arsht DEXSTA Donald Gouge, & Tunnell L.L.P Johnson Controls Inc. Attorney at Law Mountaire
Golf Event 2020 160 Golfers, Donors, and Friends Raised $185,000 32ND ANNUAL for Our Families. GOLF EVENT This year’s event was hosted at two locations – Wilmington Country Club and Fieldstone Golf Club. We celebrated with a virtual evening event featuring a live video interview with Jim Nantz of CBS Sports! Thank you to our Golf Event Committee: Co-Chairs: Perry Beberman and Joel Dukart. Ryan Brazell, Dawn Brooks, Brad Cornforth, Pam Cornforth, Mark Dellose DMD, Rich Doane, Mark Doughty, Barbara Dukart, Jeff Hammond, Dave Hancox, Tony Hill, Barbara Loeslein, Ken Manne, Chris Marshall, Bob Trostel and Cabot Williams DIAMOND SPONSORS PLATINUM SPONSOR GOLD VEHICLE SPONSORS GOLD SPONSORS
Share A Night THANK YOU to everyone who made our Share A Night campaign possible. Over $145,000 was raised for our families. A special thank you to everyone who tuned in to our virtual lighting ceremony on December 10- and to Adreanna and her mom Katie who helped us switch on the lights! Thank You to Our Share a Night Sponsors Presenting Sponsors Gift of Love Mr. and Mrs. Ben S. Smith III Gift of Devotion Gift of Kindness Bank of America Diver Chevrolet Inc. Nickle Electrical Companies Patterson-Woods & Associates Gift of Friendship Beacon Pediatrics Wilmington University Megan Gorelick Interiors Willis Law Edgewell BAYADA Pediatrics Dover Downs Chris and Sara Cooper Del-One Matthews Dental Associates Willis Chevrolet Dover Capital Rotary Pratt Insurance Mallard Financial Partners Willis Ford L&W Insurance Shout out to Smyrna School District for supporting SAN since 2004!
Spirit of the Community Since 1996 First State Health and Wellness has conducted a yearly Wish List drive for the House. COVID didn’t stop them this year as they held a socially distant drive and delivered a truck full of items. Thank you for your many years of support! Kids 4 Kids from Garnet Valley, PA, When COVID-19 hit, our held their annual lemonade and snack community stepped up to stand in memory of Gordon Krysiak (Gordie) and delivered proceeds and help. You responded in a pop tabs to the House. Family, friends, huge way- providing meals and neighbors continue to support the for families, donating items House and honor the memory of Gordie. from our Wish List, and fundraising to help us keep our doors open for families who need us. Bank of America On this page and the Bank of America has gone above and beyond by providing meals since our following, we’ve highlighted volunteer meal program has been just a few of the groups who suspended since March 2020. In went above and beyond in total, their associates have provided service to the House in 2020. 30 meals in 2020. They have also fundraised to support our Meals for the House fund, which supplements For more information on how our meal costs on nights when a your group can support the catered meal is not donated. House trough fundraising, contact Dawn Brooks at d.brooks@rmhde.org or 302-428-5315. Barclays has supported our meal For information on how program by providing 22 meals. They you can provide a meal also add a personalized touch by for families staying at the sending thoughtful greeting cards to House, visit our families. rmhde.org/meals.
The Mease Family stayed at the House Our House when their son, Riley, was born and needed to spend time in the NICU at Wish List Nemours/Alfred I. duPont Hospital for Children. Knowing how much items like snacks, towels, and paper products are needed by families during their stay, the family makes an annual donation of Wish List items. We love seeing families helping other families to stay close when the comfort of family is needed the most! Thank you to our friends at Ferguson and McCann for donations of toys to help stock our Holiday Workshop and decorations for our Christmas trees. Support like this from the community helped us to bring the holiday spirit to the families who spent the holidays with us. Thanks to a community of generous donors, we are able to operate a House that serves up to 50 families nightly. We use the same items you utilize to run your house! Our families use these items while they call Thank you to the Brothers Brunch the Ronald McDonald House their “home-away-from-home” to keep who provided a beautiful holiday themselves safe and comfortable. lunch for our families on Christmas Eve! We are currently in need of: Clorox or Lysol brand disinfectant wipes Clorox or Lysol brand disinfectant sprays Lysol brand disinfecting floor cleaner Frozen breakfast sandwiches Autism Delaware’s Productive Individually wrapped plastic utensil sets Opportunities for Work & Recreation program (POW&R) program Napkins participants used to volunteer three Paper Towels days a week at RMHDE until the Paper plates (not plastic or Styrofoam) pandemic hit. Since they haven’t been Ziploc Gallon size bags able to visit the House since March, Craig (pictured on the right) and the We also have an Amazon Wish List. rest of the POW&R crew have been Visit: making toiletry kits from the Autism Visit rmhde.org/wish-list Delaware offices. for a clickable link to our Amazon Wish List!
Introducing Our New Monthly Giving Society! As a society, many of our needs and commitments occur on a monthly basis – from gym memberships to Netflix subscriptions; from phone bills to that Coffee of the Month Club. We are excited to launch Partners in Hope, a recurring, monthly giving society at RMHDE. Partners in Hope establish an automatic monthly donation through our safe and secure website in an amount that fits within your budget. Now you can support the House in the same way in which you pay many of your monthly commitments! Learn more at give.rmhde.org/partnersinhope In Our Hearts... How very softly you tiptoed into our world, but only a moment you stayed. What an imprint your footsteps have left among our hearts. Mason Gordy Aspyn Soto Gabrielle Mills Amaya Tucker Bella Moore Joseph Vena Marcellus Slocumb Ashley Yoder (Monay’s Boy Green) Martina Zamora Moncayo Beau Biden Foundation for the Protection of Children Shield of Protection® The Ronald McDonald House of Delaware was selected on October 18, 2019 by the Beau Biden Foundation for the Protection of Children as one of the organizations invited to implement the Foundation’s Shield of Protection® initiative. The initiative provided a holistic assessment of the House’s organizational policies, procedures On January 12, 2021, the Ronald McDonald and practices as well as its training for staff and House of Delaware was awarded the Shield volunteers and resources for families and children. of Protection® designation. The House has committed to participate in an annual review and After the assessment, the Foundation created ongoing staff and volunteer training to ensure an action plan and worked with the House to continued compliance with the Foundation’s implement best practices and policies that better standards and to ensure ongoing progress in its protect children from abuse. efforts to protect children.
Teen Troop Volunteer Updates Volunteers A big THANK YOU to all of our volunteers for their continued support Although our teen volunteer opportunities of the House and our families during this time, including those who are virtual-only, our student volunteers have promoted and contributed to our Meal Program. In part to your have been busy helping the House! Since contributions, we have continued to be able to provide our families March 2020, RMHDE Teen Troop members dinner each night. A special thank you also goes to our volunteer van have helped with many projects such as drivers who have helped so greatly with socially-distanced House assembling Meal Kits, coordinating Wish List errands, including pick-up of Meal Program dinners, and our flower Collections, and fundraising projects. Thank donations. We miss you all so very much and look forward to the day you to our dedicated teens for helping us to we can begin welcoming volunteers back to the House. fulfill this need, and for their commitment and flexibility. Adopt A Room 2020 Thank you to the individuals, corporations, foundations, and community groups who have made a gift of $5,000 to help defray the operating costs of a guest room for one year. Agilent Energy Transfer Solutions LLC David & Carol Sheats Alpha Kappa Pi Harrington Raceway & Casino (2 rooms) The Shephard Family Patsy and George Amlin – in honor of our Incyte Terry and Ben Smith grandchildren Jack, Lucy, Penelope and Dr. Vijay and Ms. Sucharita Iyengar Herbert and Kathryn Sweeney Cora Amlin Masonic Charities of Delaware (5 rooms) TD Charitable Foundation Anonymous Motorcycle Santa Wilmington University Anonymous Angel Motorcycle Santa in memory of In memory of Heidi Jill Winters Meg and Dave Aument – in memory of Dave “Dtro” Troise Anne Wright - In memory of Rick Wright Robert J. Peirce Dr. David Paul and Kathy Klein In memory of Xavier Perry and Tracey Beberman The Pulaski Legion of Delaware, Inc. The Paddock in memory of Coldwell Banker Cares Christine and John Randolph Anya Linnea Salus Mr. and Mrs. Bruce Dolby Devon, Lauren and Brian Reed DuPont (2 rooms) Deborah, David, Bennett & Carter Ross DuPont Capital Management Rick and Cindy Rowland Starting with this issue of Our House, all meal donors and memorial and tribute gifts will now be presented in our Impact Report, beginning with the 2020 edition, which will be published this summer.
Facility Improvements Our House has served many thousands of families over the last 30 years, and our facilities certainly get a lot of use! Making continuous improvements to the House is key to maintaining a safe and comfortable environment for families. Keeping up with needed improvements helps prevent the facility and the program from going into disrepair and possibly causing for fewer families to be accommodated. We are thrilled to share that in 2020, we were able to upgrade and improve our House to greater Kitchen Renovation meet our families’ needs. These projects were Lead Donors: completed thanks to community foundations and Welfare Foundation grants. Anonymous Oriental Lodge 27 A.F. & A.M. Masonic Charities of Delaware Guest Room Floors Highmark Blue Cross Blue Shield of Delaware Donor: Highmark BluePrints for the Community A special thank you to Giorgi Kitchens for securing significant in-kind contributions for the project, the Thanks to a grant from Highmark BluePrints for wonderful design work, and ensuring the project was the Community, we were able to upgrade the completed on time and on budget. flooring in 24 of our guest rooms. The floors were converted from traditional carpet tiles to luxury Thank you to the many other individuals and groups vinyl planks (LVP) wood look flooring. The upgrade who supported the project financially. allows for easier cleaning and sanitizing, and makes the room feel more like home for guest 15 years after their original construction, our Family families. One guest remarked that she liked the Kitchens were in need of significant upgrades, “nicer” room and was happy that it would be so repairs and replacement of equipment and much easier for her to keep her room clean during appliances. her stay. The following improvements were made: • Re-purpose of the pantry area serving the dining room and family kitchens • Improved Family Kitchens layout to follow kitchen safety planning guidelines • A modified cook station that can accommodate guests in wheelchairs, and those of shorter stature • Visual clues to help the cook find everything in the space • Design and layout to enhance ease at which volunteers keep the kitchens organized and eliminate food waste • Improved signage in appearance and Before After effectiveness
• A trash/recycling area that is out of the way and needs. The program also supports training for staff manageable for staff and volunteers and volunteers to learn best practices in sensory • Redesigned family food lockers inclusion and how to support families during their stay at the Ronald McDonald House of Delaware. • Improved serving station with commercial grade The room is a certified Sensory Room, and staff are equipment certified in Sensory Inclusion through KultureCity. • Higher quality products that will provide better service and increased longevity The Multi-Sensory Room opened on February 25, 2020. Unfortunately, soon after, it was closed due • A design that creates a welcoming environment to the COVID-19 pandemic. We are lucky to have that families will enjoy using and dining in welcomed a handful of families into the room before the closure. All families who used the room reported that it helped them to feel supported during their stay here at the Ronald McDonald House, and helped to alleviate their child’s stress about being away from home. Below, read a couple of responses these families reported on the survey: “Thank you for such a wonderful gift to our family and all of the other families that use it. It was truly a life saver for us.” “It was amazing how much it really helped. You could see the anxiety subside. Thank you so much for such a wonderful gift.” Multi-Sensory Support Program Donors: Ronald McDonald House Charities Remarkable Grant (funded by AbbVie) and Chase The Multi-Sensory Support Program has two components. First is a multi-purpose room for guests with sensory processing needs including guests with Autism Spectrum Disorders. The room provides a place for play, stimulation, and respite depending on the person’s individual
NON-PROFIT ORG. U.S. POSTAGE PAID PERMIT NO. 9 WILMINGTON, DE 1901 Rockland Road ♥ Wilmington, DE 19803 www.rmhde.org Check if appropriate My name is misspelled My address is incorrect I received more than one copy I no longer wish to receive Our House Please clip your request and mail to us, noting your request. Address Service Requested For more information on events, including times and registration/ Mark Your tickets, visit rmhde.org or contact Special Events Manager Dawn Brooks (302-428-5315 or d.brooks@rmhde.org). Calendars March 20 - April 5 House Calls: Personalized Messages From Your Favorite Princess or Superhero May 13 Virtual Bingo August 28 – September 18 Go the Distance 5K Run/Walk September 20 33rd Annual Golf Event Wilmington Country Club October 28 Wine, Women & Shoes DuPont Country Club November 18 12th Annual CBS3 Telethon For information about our special events or to sign up for our E-newsletter, visit rmhde.org
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