ONTARIO RETT SYNDROME ASSOCIATION STRATEGIC PLAN - 2022 to 2024 Achieving our Mission by adhering to our Vision and Values
←
→
Page content transcription
If your browser does not render page correctly, please read the page content below
ONTARIO RETT SYNDROME ASSOCIATION
STRATEGIC PLAN
2022 to 2024
Achieving our Mission by adhering to our Vision and ValuesTABLE OF CONTENTS This Document.......................................................................................................................................................................... 3 Our Mission .............................................................................................................................................................................. 4 Our Vision................................................................................................................................................................................. 5 Ontario Rett Syndrome Association Statement Of Values .......................................................................................................... 6 SUPPORT ............................................................................................................................................................................................. 6 INTEGRITY ........................................................................................................................................................................................... 6 OUTREACH .......................................................................................................................................................................................... 6 RESPECT .............................................................................................................................................................................................. 7 Going Forward: Things to Consider ............................................................................................................................................ 8 Strategic Outcome Areas To 2024 .............................................................................................................................................. 8 Family Networking and Support ......................................................................................................................................................... 8 Health System Relations ..................................................................................................................................................................... 8 Awareness Strategies .......................................................................................................................................................................... 8 Organizational Transition and Stability ............................................................................................................................................... 8 Key Result Area: Family Networking and Support ...................................................................................................................... 9 Key Result Area: Health System Relations ............................................................................................................................... 10 Key Result Area: Awareness Strategies .................................................................................................................................... 12 Key Result Area: Organizational Transition and Stability .......................................................................................................... 13 Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 2
This Document Due to the ongoing Covid 19 pandemic the Ontario Rett Syndrome Association’s Board of Directors, on November 16, 2021, voted to extend and adjust, as necessary, the 2017-2022 O.R.S.A. Strategic Plan to the year 2024. This refreshed 2022-2024 plan is a high-level guide that lays out the Governance policies (Mission, Vision and Values) and the key priority areas for the Board’s work. Action and operational plans will be created or revised by Committees including the Executive to achieve the stated strategic result requirements. This document is intended as a bridge document. It is an update, by the O.R.S.A. Board and staff, of the 2017-2022 strategic plan. It is the hope of the Board that by 2024 there will be an opportunity to return to a more comprehensive process for the creation of a 2025-2030 strategic plan. Celebrating Our Past – Looking Forward Despite functioning in a Covid 19 environment since March 2020 O.R.S.A. has continued to be true to its Mission and to those it exists to serve. O.R.S.A.’s accomplishments, since the onset of the Covid pandemic, are remarkable and well documented on our website at: https://www.rett.ca/news/2021-year-in-review/2021/ As directors of the O.R.S.A. Board we stand on the shoulders of a remarkable collection of leaders who have preceded us. The Ontario Rett Syndrome Association (O.R.S.A.) was incorporated on July 26, 1991. Launched from a small group of parents, the organization has grown tremendously over the past 30 years. O.R.S.A. has funded and supported 3 Rett syndrome clinics, has awarded over $600,000 in research grants, organizes educational events, runs the Canadian Rett Syndrome Registry and provides resources for families. https://www.rett.ca/news/o-r-s-a-turns-30-2/2021/ What will the next 30 years hold for individuals with RETT, their families, friends, and caregivers? What will O.R.S.A.’s accomplishments be from 2022 – 2024 Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 3
Our Mission The Ontario Rett Syndrome Association exists to ensure that individuals with Rett syndrome are enabled to achieve their full potential and enjoy the highest quality of life within their communities. Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 4
Our Vision
The Ontario Rett Syndrome Association is a sustainable, dynamic, caring and professional organization.
• It builds on its history and experience in serving as a lead resource for information, research, advocacy, and support to all those
affected by Rett Syndrome.
• It is committed to constant growth and ensuring the provision of a diagnostic and care clinic to every family, promoting research.
Our vision is assured because:
• The direction of The Ontario Rett Syndrome Association (O.R.S.A.) is provided by strategic and business plans. These plans are
based on our values and our current bylaws. Our plans are monitored and refreshed regularly for results and desired impact.
• We are knowledge based and informed by our members and partnerships through conferences and regional workshops.
• A professional approach to organization management exists.
• All members of the organization are actively involved.
• We ensure that resources are available to provide exceptional care and service for individuals with Rett syndrome and their
families.
• We celebrate contributions and successes related to the achievement of our Vision with clients, partners, and each other.
• We have effective relations with medical and research communities, governments, media, community partners and the general
public.
Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 5Ontario Rett Syndrome Association Statement Of Values In fulfilling our mission, we value those we serve, volunteers, Board members, partners, and funders. We constantly strive to demonstrate our values of: SUPPORT • Provide emotional support and guidance in a nurturing environment. • Be sensitive to the well-being of others. INTEGRITY • Ensure that our actions match our values and take responsibility for our actions. • Interact with others in a fair and honest manner. OUTREACH • In a positive and assertive manner, provide education and awareness to our families and other stakeholders. • Strengthen our connections with government and the medical/research communities. COMMITMENT • Constantly strive to achieve our vision. • Establish relationships with a long-term perspective. Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 6
RESPECT • Foster an environment where the needs of Rett families are met with care and consideration. • Work to ensure that individuals with Rett syndrome are able to find their place in society and achieve their full potential. Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 7
Strategic Outcome Areas To 2024 Our Strategic Areas for measured results and outcomes, by 2024, remain: Family Networking and Support To ensure clarity for the organization on means to empower and support caregivers and their loved ones with Rett syndrome Health System Relations To ensure that our families are supported through the health system Awareness Strategies To raise profile and visibility of O.R.S.A. nationally and internationally Organizational Transition and Stability To ensure that the foundation, support, and oversight of all O.R.S.A. activities and practices are in place and reviewed regularly. Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 8
Key Result Area: Family Networking and Support
To ensure clarity for the organization on means to empower and support caregivers and their loved ones with Rett syndrome
Responsibility and
Measurable Outcome Timeframe
Possible Activities Report/Update
Required 2022-2024
Schedule
To create and provide • New member package with resources 2022-2024 Executive Board and
educational resources • Conference educational sessions Conference Chair
• Webinars
• Podcast
• Accessing existing resources outside of O.R.S.A.
• Checklists
• Quality of life and advance care planning
resources and support
Access and utilizing Research • YouTube video clips posted Facebook page and 2022-2024 Executive (as required)
Advisory Committee to website
update and clarify research • Webinars
developments • Podcasts
Family-to-Family Networking • Reportage of these activities by Outreach 2024 Committee and Event
• Cracker barrel discussions at Conference Chair at least two
• Committee chairs provide Outreach with ideas for weeks prior to event
parent and family engagement (start of conference
• Social events planning for input and
after conference to
report on outcomes)
Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 9Key Result Area: Health System Relations
To ensure that our families are supported through the health care system
Responsibility and
Measurable Outcome Timeframe
Possible Activities Report/Update
Required 2021-2024
Schedule
10% of Ontario doctors have • Build network with existing doctors 2024 Executive
an understanding of Rett • Target dev. Peds and ped neuro
syndrome • Establish contact list of diagnosing physicians and
(total of 80,000 doctors in specialists
Ontario) • Contact College of Physicians and Surgeons of Ontario
• Conference (College of Physicians and Surgeons of
Ontario)
20% of families are aware of • Web content 2024 Communications
suggested medical services in • Email Blasts Committee
Ontario • Social posts
• Mail (for aging population)
Raise $100,000/year for • Hope Fund yearly Fundraising
research grants
300 patients registered on • Ask other provincial groups 2024 Communications
registry (CRSR) • Web content Committee
• Social Media
• E-Blasts
• Webinars
Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 10Responsibility and
Measurable Outcome Timeframe
Possible Activities Report/Update
Required 2021-2024
Schedule
• Clinicians
Rett syndrome included in 2024 Executive/Outreach
complex care clinics London clinic to accept patients over 18 years of age
Navigating the Health care system
Clinic satisfaction survey action plan
Centre of excellence (COE) for Canadian clinics by O.R.S.A.
and IRSF
Clinical Trials Facilitate the conduct of Clinical Trials in Canada 2022 Executive
Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 11Key Result Area: Awareness Strategies
To raise profile and visibility of O.R.S.A. nationally
Responsibility and
Measurable Outcome Timeframe
Possible Activities Report/Update
Required 2022-2024
Schedule
Increase number of engaged • Conferences (ours and speakers) 2022 Conference
medical professional involved • Hosting Medical Symposiums 2024 Lobbying
with O.R.S.A. by 100% • Hosting Webinars 2022 Medical Advisory
• Medical Website / Lobbying Committee 2024 Committee
• Medical advisor as a board member 2022 Executive
Increase active donor list by • Stewardship improvements (donor recognition) 2022 Communications
15% • New parent package (schools) and fundraising kit 2022 committee
(tips to engage with media)
• Change website to have recurring donation option 2022
Increase website traffic by • Use Social Media more effectively 2022 Communications
50% • Additional content for parents 2022 committee
• Additional content for medical 2022
Establish procedure for • October Rett Awareness Month 2022 Communications
provincial and municipal • National Proclamation poster committee
proclamations (Rett • Maintain list of municipalities who have 2022
Syndrome Day) proclaimed 2022
Increase membership to • Redefine membership and incentives 2022 Family Networking and
sustain conference level Support Committee
support
Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 12Key Result Area: Organizational Transition and Stability
To ensure that the foundation, support, and oversight of all O.R.S.A. activities and practices are in place and reviewed regularly.
Responsibility and
Measurable Outcome Timeframe
Possible Activities Report/Update
Required 2022-2024
Schedule
O.R.S.A. has formal Explore groups that have already started formal Initiate Executive
partnerships and/or partnerships (Canadian Organization for Rare Disorders 2022
representation at 3 ), umbrella organizations, Imagine Canada (for contacts
government committee and training)
tables • Actively pursue through Autism Ontario, etc.??
• federal health committee via Neurological Health
Charities Canada
O.R.S.A. undertakes staffing • Deal with current staffing situation (roles and 2022 Executive
initiative and plan responsibilities to be defined – job description and
required competencies; executive/staff limitations)
• Actively encourage volunteers to join the Board or Initiate
committees 2022
• Conversation with a Human Resource Practitioner
(such as Investing in Neighbourhoods,
Management Advisory Services)
Annually
• Trillium Grant
• Review policies and procedures
Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 13Responsibility and
Measurable Outcome Timeframe
Possible Activities Report/Update
Required 2022-2024
Schedule
A schedule of Board policy • Finalize procedure 2022 Governance Chair?
review and updating is in • Annual training Annually
place • Develop mentorship program 2022
A comprehensive • Establish options for consideration 2022 Executive
orientation/reorientation • Determine materials required
plan and schedule exists for • Establish execution plan
all Board and Committee • Training material
members • Mentorship program with rotating schedule
O.R.S.A. has defined, • Dedicated Board discussion required 2022 Family Networking and
purposeful membership • Research what others do (Imagine Canada, Support Chair?
categories in its bylaws McConnell Foundation, Volunteer Toronto) – it’s
(including donor about benefit of membership
(relationship) management) • Update Bylaws
Ontario Rett Syndrome Association Strategic Plan 2022-2024 - FOR DISCUSSION ONLY 14You can also read
