NEWSLINK JUNE2021 - Ben's road to medicinal cannabis - Spire

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NEWSLINK JUNE2021 - Ben's road to medicinal cannabis - Spire
NEWSLINK
                                                            JUNE2021

PAIN FEATURE:
Ben's road to
medicinal cannabis

  FRUSTRATED WITH TICKETEK?   SEIZING ADVENTURE   MORE THAN A CAR
  THESE TIPS MIGHT HELP       WHENEVER I CAN
NEWSLINK JUNE2021 - Ben's road to medicinal cannabis - Spire
AQA VICTORIA LTD
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                                                            NEWSLINK JUNE2021
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    ADDRESS
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    T 1800 999 128
                                                             04. The UK has an app that helps you refuel. We should adopt it too
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                                                             04. Learn to fly!
    E admin@aqavic.org.au
                                                             05. Frustrated with Ticketek? These tips might help
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    BOARD OF DIRECTORS                                       07. Dance & Roll turns two in style

    CHAIRPERSON:                                            FEATURES
    Michelle O’Sullivan
    TREASURER:                                               08. Ben's long and winding road to medicinal cannabis
    Alasdair McMillan                                        14. More than a car
    COMPANY SECRETARY:
    David Schreuder                                         RESEARCH AND TECHNOLOGY
    DIRECTORS:                                              13. Walking with an exoskeleton
    Dave Jacka
    Kylie Thitchener                                        ACCESS AND INCLUSION
    Joe Rose’Meyer
    Brydie Quinn                                            16. National building code to enforce wheelchair access
                                                            17. Your new accessible parking scheme
    NEWSLINK
    EDITOR:
    Nazim Erdem
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Spire NewsLink is the official newsletter of AQA Victoria Limited (AQA), and is published bimonthly. Spire NewsLink seeks to publish material of interest
to people experiencing issues in life arising from a spinal cord injury or other physical disability, their family and social networks, clinicians, professionals
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2                .org.au                                                                                                             NEWSLINK JUNE 2021
NEWSLINK JUNE2021 - Ben's road to medicinal cannabis - Spire
C E O M E S S AG E

                     Thank you
                     for sharing
                     Welcome to NewsLink, presented
                     in this issue with a refreshed look
                     and feel. As always we welcome
                     your feedback, suggestions and
                     contributions.

                     For many years, Newslink has taken
                     a What, So What, and Now What
                     approach to content.

                     We believe the value of Newslink is
                     to include all kinds of Information
                     (the What) that is likely to be of real     In a candid and measured account, Ben shares his
                     interest to many in our community,          personal experience of chronic pain and a path via
                     but then to make sure we give it            various medications and therapies to eventually
                     Context (the So What), often through        commencing medicinal cannabis. For Ben, and
                     the lived experience of people, and         clearly also for his wife, Christine, this has been a
                     finally to include wherever we can          game changer.
                     a comment about where to find out
                     more, how to get involved, or more          We were pleased that as we sought to add context
                     generally, where a topic might be           for Ben’s story, Dr Andrew Nunn at Victorian
                     headed (the Now What).                      Spinal Cord Service was available to share his
                                                                 own considered response, including some of
                     With this in mind I’d like to highlight a   the challenges arising from the application of a
                     feature story in this issue connected       substance where the law in Victoria, now more
                     with pain management, as it’s a great       than five years old, has in some ways got ahead of
                     example of what we hope is of real          the science.
                     value to our community.
                                                                 Andrew illuminates the Now What well, observing
                     The information is brought to life          that people’s personal experiences can serve to
                     by AQA Peer Mentor Ben Gruter,              necessarily and importantly open up an issue, even
                     who shares his lived experience of a        if it’s tricky.
                     common issue following an SCI that
                     can affect people’s living well, that       These are the kinds of conversations that move
                     being chronic neuropathic pain.             things forward, so thanks to Ben and Christine for
                                                                 sharing this aspect of their lives, and thanks to
                                                                 Andrew for additional context and his interest in the
                                                                 question.

                                                                      PETER TRETHEWEY
                                                                      CEO AQA VICTORIA

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NEWSLINK JUNE2021 - Ben's road to medicinal cannabis - Spire
C O M M U N I T Y N E W S A N D U P D AT E S

LEARN TO FLY!                                 THE UK HAS AN APP THAT HELPS YOU REFUEL.
                                              WE SHOULD ADOPT IT TOO
                                              By downloading an app, people who use wheelchairs could convince petrol
                                              station operators to make refuelling easier, writes VICTOR BIBBY.

                                              People living with disability can
                                              access filling assistance at many
                                              petrol stations in the UK, thanks to
                                              an award-winning phone app that is
                                              available in Australia.
                                              While we can get the app here,
                                              it won't do much for us without
                                              support from our fuel companies. I'd
                                              like everyone who needs help with
                                              refuelling to download the app, so
                                              that we can show fuel suppliers that
Wheelies with Wings is a non-profit           people want them to use it.
group that offers people with lower
limb impairment the opportunity to            The app, called fuelService, was
learn how to fly aeroplanes.                  developed and launched about 2019
                                              by Niall El-Assaad, who lives with
Their next training program starts            spinal cord injury. In countries where       companies here. But none had yet
on 26 September, and goes for two             it has been adopted, it helps service        shown significant interest.
weeks, in Temora, NSW.                        station attendants provide driveway          He said the best way to get their
To be eligible for the program you            service to disabled drivers.                 attention would be to demonstrate
must be able to drive a modified car.         Mr El-Assaad says people in the UK           strong interest from your community.
The price is significant, at $5250, but       can now use the app at 29 per cent           The app helps you find the nearest
you are strongly encouraged to apply          of petrol stations, including outlets        registered service station, and make
for their Suzi Duncan Scholarship.            operated by Shell and other major            an appointment for refuelling at a
If you qualify, accommodation and             suppliers. The app is also used in           convenient time. You arive confident
meals are covered, as well as the             Ireland, Canada, and the USA.                they will be able to help you, and you
fifteen hours of flight time in a two-        My son has been living with spinal           simply enter your pump number. The
seater Foxbat aeroplane, and the              cord injury from an accident early           attendant comes and fills your tank,
preparatory training.                         last year. He brought the difficulties       and you pay from your car.
An alternative would be to fund the           of refuelling close to home after he         I would like to contribute to my son by
program through the NDIS, via your            made a journey from Bendigo to visit         encouraging people here to download
Capacity Building Supports budget.            me recently.                                 the app and register to use it.
To learn more about this option, visit        I recall how his face fell at what a trial   Search for fuelService at the app
their website at:                             it had been getting fuel, and his later      Store (for iPhone users) or on Google
www.wheelieswithwings.com.au.                 remark that being so close to fuel           Play (for Android phone users), and
Applying for the program, and for             fumes nearly gave him a “fix”.               download it. Both methods ask for
the scholarship, is a quick and easy          I had learned about this app from            your phone number, so as to minimise
process. Visit the website listed above       a Shell promotional video. I asked           fraudulent use.
to get started, or to find out more.          myself why it wasn’t used in Australia,      There would be nothing more
                                              and contacted Mr El-Assaad.                  powerful than thousands of voices
                                              He told me that anybody in Australia         saying to the fuel suppliers: “Give us
Wheelies with Wings                           could download the app, and that last        fuelService - we are ready, when are
                                              year he had shown it to major fuel           you going to be?”
is a non-profit
group that offers
people with lower
limb impairment
the opportunity
to learn how to fly
aeroplanes.
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C O M M U N I T Y N E W S A N D U P D AT E S

      Frustrated with Ticketek? These tips
                  might help
AQA Peer Mentor Geoff Dossetor is a keen fan
of AFL team the Hawks - and a club member.
But this year, getting to see them play at the
MCG has been a frustrating process.

Ticketek manages the ticketing for AFL games
at the MCG. Buying an able-bodied ticket
through Ticketek is an automated, online affair.
Buying a wheelchair accessible ticket is not.

Ticketek’s website advises you to fill out and
submit an Accessible Seating booking form,
and wait for a phone call. Alternatively, you can
phone Ticketek’s Accessible Seating booking
line.

After submitting the Accessible Seating
booking form, how long should you expect to
wait for a call-back? Geoff says that in one
case, he waited more than two weeks.

He tried the Accessible Seating booking line,                    For Geoff (right), getting tickets to see his beloved Hawks
and spent an hour on hold. But after a missed call-back,         play this year has been a trial.
and emails to customer care, Geoff did get accessible
seating for all the games he wanted to see.                      A Ticketek spokesman noted that the agency had been
                                                                 managing more AFL bookings than usual due to Covid-19
When AQA/Spire staff raised the question of booking with         related restrictions on venue entry.
Ticketek in an online SCI forum, they got similar feedback.
Steven Ribarich, booking for AFL and soccer games at the         However he stated: “We have secured accessible seats for
MCG and AAMI park, reported that "In approx 20 games,            every customer who has requested them since the new
they have not got it right once". Sue Stevenson shared that      Government requirements.”
when calling Ticketek's Accessible Seating line, she is on
hold for no less than 30 minutes, every time.                    Here are six tips Ticketek offered for a smooth booking
                                                                 experience:
The NewsLink team got in touch with Ticketek and asked
if they could offer any advice on how our community might        • We recommend that customers with accessibility needs
better navigate their booking process. It turned out they        complete a form over calling because the customer can
could, and their response offers some insight on how to          receive a call back at their convenience instead of spending
reduce the frustration.                                          time on hold.
                                                                 • Keep an eye on your club’s emails and social media feeds
Perhaps the key tip is this: use the Accessible Seating          for the date and time that your tickets go on sale.
booking form, but resist the urge to submit it before tickets    • As with ticket sales for all customers, our Accessible
to your event are officially on sale.                            team will prioritise the first customers that get in touch
                                                                 once the tickets go on sale, so that is the optimum time to
Ticketek say they can’t secure you a ticket before the on-       fill in the form.
sale date, and their accessible booking team prioritises         • But regardless of that, every customer who filled in an
people who submit an Accessible Seating booking form             accessible seating form WILL be contacted by us to arrange
after the on-sale date.                                          a booking.
                                                                 • We have secured accessible seats for every customer
However, Ticketek says that even if you submit the form          that has requested them since the new Government
early, they will still call you back - after the tickets go on   requirements.
sale. It’s just that you won’t necessarily be at the front of    • Please be patient once you have contacted us. We WILL
the queue.                                                       get back to you before the event to book your seats.

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L E I S U R E A N D T R AV E L

                                  Seizing adventure
                                   whenever I can
               JOHN OSMOND has been seeing friends and family this year, and going on adventures.
              While it's required some nerve to make plans that could be covid-cancelled at any minute,
                                    John has found the payoff more than worth it.

Being a quadriplegic is limiting
enough without having to deal with
Covid. Being a resilient, optimistic
person, I decided not to let the threat
of a lockdown scare off my travel
plans for 2021.
Let me start by saying these plans
have only been made possible by a
very supportive wife, and an excellent
carer network.
Our first trip was in early March. We
went to Adelaide to visit our son and
his wife, and our two grandchildren.
We had not seen them for 16 months.
We decided to play it safe by driving
there and back, just in case Dan
pulled one of his quick border
shutdown tricks. We had a very good
drive, both ways. My wife and my          John and Aileen on a previous trip to Mossman Gorge - Daintree Forest.
carer shared the driving.
We always stay at the Stamford            have ever stayed in. The first bedroom   Later in April we went back to stay
Grand hotel in Glenelg, as my son’s       had two king single beds and the         a couple of nights at the Provincial
house does not have an accessible         bathroom was huge, it had a great        Hotel, and had an excellent time. We
bathroom. Stamford has a number of        shower, room enough to hold a dance      found that as well as the facilities
accessible rooms on the third floor, so   party, and a spa bath that my wife       being really well suited, the owners,
we have always been able to book the      enjoyed. The second bedroom had a        Gorgi and Michael, and their staff,
dates we request. As usual we hired       queen size bed and an en suite. The      were excellent hosts. They provided
the equipment we required locally,        unit itself was 82 square metres and     us with a local map and showed us
and they set it up before we arrived,     included a dining room and lounge.       what to do in the immediate area.
and removed it when we left.
                                          John couldn't reccomend the Provincial Hotel in Ballarat highly enough.
Having driven across we had access
to the vehicle, which gave us the
freedom of going on day trips and
visiting some of the wine regions.
Considering this benefit, we will
probably drive in the future when the
distance is manageable.
In early April we went up to Ballarat,
to visit our friends. We had lunch with
them at the Provincial Hotel. It was
an excellent meal, reasonably priced,
and no problem with accessibility for
me. When we were there we asked if
they had accessible accommodation,
and it turned out that they had two-
bedroom apartments. The unit was
the best accessible accommodation I

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L E I S U R E A N D T R AV E L

I cannot recommend the Provincial               DANCE & ROLL TURNS TURNS TWO IN STYLE
Hotel highly enough.
That night we went to dinner at the
historic Craig’s Hotel, well suited to
a wheelchair, with a delicious meal,
at pub prices. The next day we went
to Daylesford, where we enjoyed
pottering around before going out
to dinner back in Ballarat at a lovely
tapas restaurant called Meigas,
around the corner from our hotel.

When the weather
warms up again we
are going back to my                       Dancers don't need wings to fly. We
                                           just need our wheelchairs, and the
favourite resort.                          desire to express not impress.
                                           The para-dance club Dance&Roll
                                           celebrated a second anniversary in
On the way home the next day,              March with a Gala Night at Darebin Art
we called into Ballan to get some          Centre.
materials for my wife’s quilting
exploits. When I was enquiring about       It was a night of joy and gratitude, and a perfect opportunity to thank the
my hire equipment requirements I           generous people who have contributed in so many ways over the past two
came across ILS, Independent Living        years.
Systems, and was able to hire a king       The journey started at Royal Talbot Rehabilitation Centre, when Salvatore
single bed with five functions, which      Dema, Manager of Leisure and Creative Therapies, kindly allowed three
is equivalent to my own bed. This was      passionate girls to use a meeting room as a dance studio.
the first time I’ve had a great sleep in   This was the space where we started the first para dance club in Victoria
a hire bed.                                run by, and for, people with physical disabilities. The Latin music and
For our next trip we'll be going to        good vibes brought many patients from the spinal and amputee wards
Hamilton in Sydney, at the end of          onto our makeshift dance floor each Thursday.
July. We will be staying at a hotel        After six months the group had grown, and in October 2019 we moved to
just around the corner from the Lyric      a beautiful accessible studio at Darebin Arts Centre - with the support of
Theatre. We will make a weekend            Darebin City Council, VicHealth and “This Girl Can” Victoria.
out of it, not exactly sure what we'll
do, but I’m sure we'll find something      In 2020, due to the Covid 19 lockdown, D&R delivered dance sessions
worthwhile.                                online – dancing apart in our homes but together as friends and sharing
                                           our challenges.
When the weather warms up again we
are going back to my favourite resort      Incredibly, during that time the group grew. The online sessions provided
in Port Douglas, probably sometime         opportunities for those living in regional areas or other states to join in.
in September. We'll be flying Qantas,      We now have members from Geelong, New South Wales, Tasmania and
as I always find them the easiest. This    Queensland.
time we are flying in an A320, which       For some of us, the Gala Night was extra special as it was the first time
is new to me so I hope the accessible      we’d met in “real-life”. It was very emotional to meet and hug.
seating is as good as the 737. We also
                                           Among our guests were many of the helpful people who’ve supported
hire an accessible van (Kia Carnival)
                                           D&R, including representatives from AQA/Spire, Independence Australia,
while we’re away, as it's just easier
                                           DSR, and AAAPlay.
to have it there rather than relying on
accessible hire taxis.                     Of course, the evening concluded with a performance. We included our
                                           favourite choreographies, danced to “We are Family” by Sister Sledge,
I hope that this has motivated you to
                                           ”The Nutbush” by Tina Turner, and “Celebration” by Kool&the Gang.
plan something over the next year, it
can still be done. Good luck.              Rocca Salcedo
John Osmond

NEWSLINK JUNE 2021                                                                                         .org.au        7
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F E AT U R E

    Ben’s long and winding road
      to medicinal cannabis
    After years of awakening early and in pain, Ben Gruter swallowed some cannabis and slept for 10 hours. The
                    former policy advisor to government now takes cannabis daily - and legally.

It is 85 years since an American film       Persistent pain                            mentor with AQA/Spire.
warned parents about the reefer             One such Australian is former              “It feels like the most intense pins and
madness that lay in wait for their          academic and state government              needles you’ve ever felt. Some people
children.                                   policy adviser Ben Gruter, 65, who has     describe it as burning.
It is nearly 30 years since former          been living with paraplegia from an
                                                                                       “It’s constant from the moment I wake
US president Bill Clinton denied he         incomplete T5 spinal cord injury since
                                                                                       up until the time I go to bed. Stress will
inhaled the marijuana he had admitted       2012.
                                                                                       make it worse; being relaxed makes it
to trying.                                  When he resolved to try medicinal          better.”
And it is a little more than five years     cannabis, Ben had spent seven years
                                                                                       Surveys indicate that more than half
since the Access to Medical Cannabis        experimenting with other treatments
                                                                                       of people living with spinal cord injury
Act 2016 passed in Victoria, making         for his persistent neuropathic pain,
                                                                                       live with neuropathic pain.
it the first Australian state to legalise   which arrived with his injury. He
therapeutic use of the controversial        experiences the pain as located in his     Prior treatments
drug. Other states have followed.           right leg, extending from his hip to his
                                                                                       Ben spent 16 months in treatment
In Victoria, any doctor may apply to        foot.
                                                                                       and rehabilitation after his injury,
prescribe cannabis for any condition.       “It’s pain caused by damage to the         which arose from a bleed in his spinal
However, it is not likely that your         nerves,” explains Ben, who is a peer       column. Initially he was given Panadol
local GP will do so, and for three main
reasons.
First, almost no cannabis preparations
have been registered as prescription
drugs. Second, little is established
about what ailments cannabis might
help with, and how.
Third, a common ingredient of
medicinal cannabis, THC, is classed
as a Schedule 8 poison and a drug of
addiction, like morphine, methadone
and amphetamine. Therefore a
doctor must seek authorisation
before prescribing it for you, and may
perceive the approval process to be
very onerous.
Nevertheless, a Senate inquiry
was told early last year that more
than 19,000 Australians had been
prescribed medicinal cannabis, and
there is evidence that the number has
risen rapidly since.
                                            More relaxed: Christine and Ben.

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F E AT U R E

Wonderful time: At the Botanic Gardens in Singapore.

for his pain, and when he sought more      “The partner or other family members        slow-release formulation.
relief he was prescribed an opioid,        of someone with a spinal cord injury        “When Ben did go off all the drugs, it
Oxynorm, and a pregabalin based anti-      are also severely affected by it,”          wasn’t living,” Christine says.
anxiety drug, Lyrica.                      Christine observes.
                                                                                       “The pain is so consuming he just can’t
“By 12 months it was pretty clear that     “I think for me, the worst of it has been   do anything. He doesn’t want to go out.
not only weren’t these drugs working,      Ben’s pain. Seeing him in pain has just     He doesn’t want to communicate with
but I was having terrible side effects,”   been horrific.                              anyone. He can’t stand the grandkids
Ben reports.                               “And the effects of a lot of the            coming in because they’re noisy.”
Under the care of a pain team at the       medication he was given have been           It was Christine who suggested to Ben
Austin Hospital, he tried alternative      awful.”                                     that he might try cannabis. The topic
opioids, three anti-depressants, and       Memory loss is a recognised side-           had come up in conversation with
ketamine, an anaesthetic. He says his      effect of pregabalin. Christine says        a friend whose husband also had a
pain remained very troubling, except       conflicts arose at home from Ben’s          spinal cord injury.
when the ketamine put him to sleep.        memory lapses.                              “My friend said it had been helpful,”
Subsequently, Ben was treated by a         “We would have a specific                   Christine recalls. “And her husband
multidisciplinary team at the hospital’s   conversation about something, and the       said it was helpful.
outpatient pain clinic, finding some       next day Ben would deny that we even
relief in hydrotherapy and in the                                                      “So we met up and had a discussion,
                                           discussed it,” she reveals. “I actually     the four of us.”
cognitive behavioural therapy offered      just thought he was being difficult.”
by the team’s psychologist.
                                                                                       Absolutely fantastic
“Unfortunately they could only have        I know a friend
                                                                                       “I’d seen the press reports,” says Ben,
me as a patient for six months,” he        Ben says he sought to reduce side-          who like Christine had been exposed
explains, “because it’s a high demand      effects and cut his risk of addiction       to the recreational use of cannabis
service.”                                  by decreasing his consumption of            when he was younger.
                                           painkillers, in consultation with his GP.   “Some medical practitioners said it’s
Marital conflict                                                                       very helpful. Other practitioners said
                                           For a few months he took no drugs
When he was injured, Ben had been          at all. Today he takes no pregabalin        it’s not helpful, and all the evidence
married for just four and a half years,    and no Oxynorm, instead using an            isn’t in.
to Christine.                              alternative opioid, tapentadol, in a        “I went into it with an open mind.”

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F E AT U R E

 Soothed: Christine and Ben embark on their overseas adventure.

About bedtime one evening, Ben used          believed to have therapeutic value       “My understanding is that a typical
a dropper to administer himself a small      (some THC may be present).               joint is about 10 milligrams of THC,”
dose of black-market cannabis oil,           After interviewing Ben and reviewing     Ben says, referring to the recreational
orally.                                      his history, the clinic prescribed him   user’s cannabis-infused cigarette. “I
“For years I’d been sleeping about           CBD, advising him to increase the dose   take 6.25 milligrams of THC. So this is
three hours each night before I woke         each week until it was effective.        probably a little bit more than half a
up in pain,” he says of the result.                                                   joint.
                                             “When I wasn’t getting a good enough
“That first night when I took cannabis, I    effect, they added THC,” Ben reports.    “On the dose that I take, I don’t get
slept for 10 hours.                                                                   high. If I was taking a lot more I would.

“It was absolutely fantastic.                                                         “It does make me drowsy - both the
                                                                                      CBD and the THC make you drowsy. It
“I got a little high, and I got a dry        "The way I would                         tastes terrible. And I have a dry throat.
throat. I didn’t get munchies.”
Christine adds: “And he woke up like a
                                             describe it, it’s like                   “I don’t know what would happen if I

human, instead of a pain unit.”              the pain has been                        tried to really suppress the pain and
                                                                                      take a lot more of it. I don’t want to try
Obtaining medicinal cannabis                 moved a bit away                         that, because I think I’d just fall asleep.
                                                                                      So what’s the point of that.”
About the beginning of 2019, Ben             from you."
sought a prescription from his GP                                                     Hello Singapore!
for medicinal cannabis. He says his                                                   From Christine’s perspective, the
doctor told him he would help, but                                                    therapy has been transformative.
then concluded that the approval and         The cannabis comes from a Melbourne
follow-up requirements would be too          compounding pharmacy in tablet-          “I would say within two or three
burdensome. Instead, the GP wrote a          sized resin lozenges, by registered      weeks, Ben was engaging,” she says.
referral to the specialist clinic that had   mail. The lozenges are packed in small   “He was engaging with me, where he
treated Ben’s acquaintance.                  plastic containers that carry Ben’s      had been quite withdrawn before. He
                                             prescription details. (The medication    was engaging with the grandchildren.
Medicinal cannabis typically comes                                                    He was engaging with friends. We
                                             is available in other forms.)
in two forms, only one of which relies                                                were going out. We were socialising.
on THC - the component credited              He takes half a CBD lozenge orally,
with producing euphoria. The active          twice a day, and then a THC lozenge at   “Within six weeks of him starting it, we
ingredient of the other form is CBD,         bedtime.                                 had our first overseas holiday. Our first
which does not produce a high but is                                                  in seven years!”

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F E AT U R E

                                                                                         A drug is a drug
                                                                                         Medicinal cannabis is not subsidised
                                                                                         under the Pharmaceutical Benefits
                                                                                         Scheme, and Ben’s prescription costs
                                                                                         the couple about $500 a month. That’s
                                                                                         significant for them, and they’re
                                                                                         aware it would be out of reach for
                                                                                         some people.
                                                                                         They would like to see medicinal
                                                                                         cannabis become available more
                                                                                         cheaply and more readily. Ben would
                                                                                         also welcome changes to traffic law.
                                                                                         Driving under the influence of THC
                                                                                         is illegal, and unlike alcohol no
                                                                                         threshold is specified. “I’ve heard
                                                                                         stories of people who won’t take
                                                                                         THC because they’re afraid for their
                                                                                         licence,” Ben says.
                                                                                         He adds: “I take a very, very small
                                                                                         dose, and that’s also worth saying.
                                                                                         It is possible that I will need a higher
Ben takes the cannabis orally, via lozenges.                                             dose in the future. But I don’t need it
                                                                                         now.
The couple spent a week in Singapore,     And he says the benefits have                  “And I’ve gotta say that although I’m
testing Ben’s capacity to make a flight   continued.                                     a fan of cannabis - it’s probably the
twice as long to The Netherlands,         “The way I would describe it, is that          most benign of the drugs that I take
where he was born.                        it’s like the pain has been moved a bit        for pain - it would be nice to get to a
“We had such a wonderful time. We         away from you. So you’re not focused           stage where I didn’t have any drugs,
were out every day. We couldn’t take      on the pain any more.                          and could just rely on physiotherapy
the cannabis with us, but it took four                                                   and psychological pain management
                                          “The pain’s still there, perhaps level
days to wear off and then Ben still had                                                  systems.”
                                          four rather than level six on a scale of
his opioids.”                             10, but it’s better. It’s not in your face.”   Ian Baker
Prior to starting his cannabis therapy,   “And it’s not on his face,” Christine
Ben says, “I wouldn’t have dreamt of      says. “He’s a lot more relaxed.”
doing that trip.”

    Personal account opens up a can of worms
 Commentary on Ben's story from Dr Andrew Nunn, Medical Director, Victorian Spinal Cord Service, Austin Health.

Thank you Ben for your measured           The legislation on medicinal cannabis          however there is a critical lack of
personal insight on your careful use      seems to be ahead of the science and           evidence that it provides a consistent
of cannabis for pain following spinal     a spectrum of issues and views.                benefit for any type of chronic non-
cord impairment.                          Here is some commentary on the                 cancer pain.
Your personal account raises some         topic from the Australian Pain                 More than 90 per cent of Special
issues for us all - and maybe very        Society, a multidisciplinary not-              Access Scheme – Category B (SAS-B)
necessarily opens up this can of          for-profit organisation that seeks             approvals have been for chronic pain
worms.                                    optimal access to pain prevention              of various types.
It is important that we do this, but      and management for all people (date            The evidence available is either
it is also tricky. We need to develop     reviewed: 19 March 2021):                      unsupportive of using cannabinoid
a balanced view so that people            Cannabis-derived products are now              products in chronic non-cancer pain
with spinal cord injury, and those        available for use with therapeutic             (CNCP) or is of such low quality that
prescribing and funding the use           intentions in Australia and New                no valid scientific conclusion can
of medicinal cannabis, are well           Zealand. By far the most common                be drawn. Cannabidiol-only [CBD]
informed.                                 reason for their use is chronic pain           formulations have not been the

NEWSLINK JUNE 2021                                                                                                 .org.au       11
F E AT U R E

Personal account opens
a can of worms
CONTINUED

subject of a published randomised
controlled trial (RCT) for pain
indications, yet they are the most
prescribed type of product.
In addition, evidence of harms does
exist, particularly in relation to sedative
effects, interactions with other
medications, and neuropsychiatric
effects (for products which contain
tetrahydrocannabinol [THC]).

Ben, I believe we
need to bring fresh
eyes and an open
mind as we consider
the many views that
are out there, and
your thoughts as
well.
Given the above, the clinical use of
cannabinoid products cannot be
ethically recommended outside a
properly established and registered
clinical trial environment until high-         Concern about overprescription is legitimate, Dr Nunn believes.
quality evidence for specific indications
is published.
                                              ▬ P hysiology is complex. There                    and resist the assumption that we
I see in this cautious approach                  are many receptors in every                      can procure a “quick fix”.
legitimate concern about the                     body system, hence multiple              ▬   Commercial drug costs and
possibility we will create a new                 applications (pain, spasticity, sleep,        marketing are becoming a major
problem relevantly similar to the over           and so on).                                   influence.
prescription of OxyContin and other           ▬ Cannabis can have many positive          ▬    Prescribing cannabis is tricky, and
opioids for pain management in the               and negative effects, so a balance             is subject to laborious follow-up
United States, if less deadly. So we             is needed.                                     requirements.
must think broadly.                           ▬ Smoking is clearly not the best          ▬     Use of medicinal cannabis has
Here are 12 points that deserve our              way to administer, and other                    functional considerations for
attention:                                       options such as oral, nasal or skin             driving and work.
                                                 absorption contribute variability, in    ▬      Research trials show varied results
▬ T here are well over 1000 cannabis
                                                 both absorption of the medication                and for limited numbers.
   strains available plus now many
                                                 and duration of action.                  Our Spinal Cord Service explored
   plant hybrids.
                                              ▬ There are many types of spinal cord      evidence and trial protocols with
▬ Production methods for
                                                 injury, so the optimal dose will be      industry pre-covid, and hope to
   therapeutic use are variable, with
                                                 very individual and time of action       understand this better through
   many derivatives for each plant
                                                 variable - plus placebo effects must     starting a trial on therapeutic use for
   depending on fractionation method
                                                 be considered.                           spasticity.
   - and even synthetic THC available.
                                              ▬ Cannabis would often be used in
▬ Cannabis formulations usually                                                          Ben, I believe we need to bring fresh
                                                 combination with other agents. As
   combine CBD and THC, and these                                                         eyes and an open mind as we consider
                                                 Ben has recognised, it is important
   can be supplied in many different                                                      the many views that are out there, and
                                                 that we look at eclectic approaches
   proportions.                                                                           your thoughts as well.

12            .org.au                                                                                          NEWSLINK JUNE 2021
RESEARCH AND TECHNOLOGY

                 Walking with an exoskeleton
   Brad Axford has been working with a team of graduate students at The University of Melbourne to develop an
                                  exoskeleton. He spoke with DAN NATHAN.

The last edition of NewsLink carried a story on the
journey of Team ALEX (Advanced Lower-Extremity
Exoskeleton), from research and development to
frustrated hopes of competing internationally in a
recent contest known as CYBATHLON.
So, what are exoskeletons like to use? And what
benefits might they offer?
Chief pilot for the project Brad Axford offers some
insight.

Who is Brad?
Brad has been living with a T12 complete spinal
injury for the past two years.
He's worked as a massage therapist for most of the
last 20 years, working with the human body and
learning how to heal it. Brad is also interested in
technology, so when it came to a project like this,
he jumped at the chance to be involved.

What are exoskeletons?
Exoskeletons are wearable electromechanical
devices that can enhance the strength or stamina
of an able-bodied user, or allow people with limited
                                                              Brad controls the exoskeleton via a trigger on one of the crutches.
mobility to simulate walking.
While the technology has been rapidly improving,
exoskeletons are a long way from being accessible and              "It felt good, but very foreign. It was an interesting
effective mobility aids. They're very expensive ($40,000 -         sensation, being up without any feeling in my lower body.
$100,000), slow moving (average speed of 0.26 metres per
                                                                   "It felt very unsafe, very unstable. But I had the crutches
second, compared to average walking speed of 1.2 m/s),
                                                                   and the spotters around me. Once I got used to the
and they struggle to move across uneven or sloping terrain.
                                                                   sensation of moving it was more comfortable."
As tools for rehabilitation, though, promising results are
                                                                   To pilot the exoskeleton, Brad selects one of three modes
emerging.
                                                                   - walk, stand up, or sit down - via a switch on one of the
What are they good for?                                            crutches. Once a mode is selected, he pulls a trigger to
                                                                   execute the movement - a single step in the case of walk
"Obviously there are lots of health problems that come             mode.
from sitting so much of the time - using an exo can help
with some of them," says Brad.                                     The trick, according to Brad, was anticipating the way in
                                                                   which the exoskeleton would move.
"The weight bearing is great for bone density and
strengthening. Your muscles and ligaments are all going to         "Once I could do that, I could stay balanced throughout the
benefit from getting that kind of movement and stretching,         movement, rather than trying to catch myself afterwards.
and from the different load patterns on the body.                  The result was a much more rhythmic and fluid gait.
"Having limbs moved for you, or moving them with                   "It was a great feeling when I first started hitting that
assistance, also has great implications for neuro rehab -          rhythm."
for the body relearning what to do after injury."
                                                                   What's next?
What do they feel like?                                             Brad is looking forward to competing with the rest of
"It was quite weird initially", says Brad, describing the first    team in a Melbourne competition in 2022, and hopefully,
time he stood up in the exoskeleton. It was nine months            internationally in 2024.
post-injury.

NEWSLINK JUNE 2021                                                                                                 .org.au       13
F E AT U R E

                                   More than a car
                               What matters most when you’re choosing a car?
               Wayne Bradshaw reflects on nearly 30 years of driving an allegedly unsuitable vehicle.

My 1983 One Tonner Holden ute was my car back in 1992,            Another guy we’d been in rehab with, Hue Yew, was staying
when I had my accident. I had converted her to gas, and at        in supported accommodation in Shepparton. With much
300,000km she was on her second motor.                            trepidation from Zac’s parents, both our chairs were loaded
                                                                  on the back of the ute and Zac and I headed for Shepparton.
I had been strongly advised that driving a single-cab ute
while living with paraplegia from a complete T4 spinal cord       When we got there, we rang the staff to help us unload the
injury was not practical, because it wouldn’t give me much        chairs. We had a great day catching up with Hue. On the
space for storing stuff in the cabin.                             way home, we managed to get some gas after prompting
                                                                  the operator at a service station to come out and help us.
I remember thinking: Just let me see if I can make it work.
I didn’t take long to become comfortable driving my
Tonner. I loved the anonymity I had behind the wheel.
                                                                  In the early 2000s, after
Of course there were challenges. Getting the chair in
beside me was tricky, but I worked out a way.                     580,000km, I reconditioned the
Before my accident I was restumping houses. When I                second motor.
went back to work, I would drive the boss around while
we quoted. I loved this because it fast-tracked my driving
skills.                                                           It was a lot of fun. I often felt a sense of accomplishment
In the early 2000s, after 580,000km, I reconditioned the          when I went on a road trip.
second motor. It never entered my head that I would               With frequent solo drives to Echuca to see my son Ben, I
sell her. About the same time, I left my quoting and              was racking up the kilometres. The tonner continued to
bookkeeping role with the restumping business and                 purr, and rarely let me down.
started work at AQA.                                              There was one let-down that I will mention. Zac’s parents
I had struck up a friendship with a quad from Mickleham           brought Zac and his brother Michael to my place on a
who I’d met in rehab, Zac Carr. We both supported the             Saturday, to watch the footy and stay the night. I was to
Tigers, and would catch up every Saturday at the footy.           drive them both home the next day. I left my chair at home,

 CAR MODIFICATIONS                         The NDIS says that vehicles less            Especially as it can take months
 AND THE NDIS                              than five years old, and having             before you get a response.
                                           travelled fewer than 80,000km, are          In my experience, getting an
                                           generally considered suitable to            assessment from an NDIS registered
 Noha Elhanafy                             modify.
 AQA NDIS SUPPORT COORDINATOR                                                          occupational therapist who
                                           But it adds: “However, older vehicles       specialises in car mods really helps.
 Wayne will need to have his new           and those with higher mileage may
 ute modified, so that he can drive it                                                 Reports from the OT need to include
                                           still be considered where there is          justification for why the expenditure
 without using his feet. Given that he     evidence that their modification
 is an NDIS participant, how would                                                     is reasonable and necessary. If that’s
                                           would be cost effective.”                   not clear, your application might be
 he go about seeking funding for
 that?                                     You can see that the NDIS wants             delayed or refused.
                                           your modified car to give long and          It also helps to follow up an inquiry
 You’ll find an overview on the NDIS       reliable service. How do you know
 website at its Vehicle Modifications                                                  regularly with your NDIS planner.
                                           whether the older car you have your
 page, which is here:                      eye on would be acceptable?                 A participant I have assisted applied
 www.ndis.gov.au/participants/                                                         in advance for vehicle modification,
                                           It can be tricky to decide whether          and received approval from his
 assistive-technology-explained/           to purchase the car first and hope
 vehicle-modifications                                                                 NDIS planner last month. He is now
                                           for the best, or to seek approval           confident about purchasing the car.
                                           from your planner before you buy.

14           .org.au                                                                                      NEWSLINK JUNE 2021
F E AT U R E

The vertical exhaust stacks were a signature part of the Tonner's look .

and Michael put Zac’s chair in the tray.                          truck-style vertical exhausts behind the cab was raising a
                                                                  rude middle finger to the parking rules. But then I'd unload
I dropped off the brothers and headed home the back               my chair, and push into the shops.
way. As I crossed a a single-lane bridge heading into
Hurstbridge, a bolt fell from the hand controls and left me       When I was jumping back into my ute, sometimes someone
without an accelerator. I rolled off the bridge and pulled        - usually an older man - would run over and try to grab my
over.                                                             chair from me.
I asked a bloke walking past to help me reattach the bolt,        I would say, “Mate, what are you doing?”
but he was not having a bar of it. If I was a paraplegic, he      “I am putting the chair on the back for you!” he’d reply.
asked, where was my chair? He didn’t believe it was at
                                                                  “Ok mate, are you going to follow me home to get it off as
home in my carport.
                                                                  well?”
“Look at the size of you! I don’t know what you’re going to
                                                                  “No.”
do to me!” he said. I had to call the police, who came and
helped.                                                           “Well leave it then, because I have to pull it apart and drag
                                                                  it in beside me.” My would-be helper would stand and
                                                                  watch before walking away and leaving me to it.
If I was a paraplegic, he asked,                                  I became very attuned to her noises. Driving home from
                                                                  work one Friday, I got anxious about a developing clunking
where was my chair? He didn’t                                     sound from the chassis.
believe it was at home in my                                      As I was backing into my carport, a front wheel fell off.
carport.                                                          She’d made sure I got home before letting go.
                                                                  The Tonner was fast approaching 800,000km when I drove
                                                                  with my son Ryan to attend the wedding of my son Ben, at
The car was getting old, but it rarely broke down. The            Echuca. She purred all the way up and did not miss a beat
interior was very damaged, but I didn’t care. I just loved her    on the way back.
and felt lucky to have such a reliable car.
                                                                  Soon afterward she started to run really rough, so I booked
I only ever topped up the oil and made sure she had water.        her in with Chris, a mechanic I knew. That night was the
Eastland was my preferred shopping centre for groceries.          opening round of the 2021 footy season, and I was going
I would be amused by the glares I often got as I drove into a     to see the Carlton-Richmond game with Bill, a bloke who
disability bay. Surely this rough looking ute with its with its
                                                                                                             continued on p.16

NEWSLINK JUNE 2021                                                                                               .org.au       15
AC C E S S A N D I N C L U S I O N

National building
code to enforce
wheelchair
access
Builders of new housing may be forced for the first time to
meet access standards for people who use wheelchairs,
under revisions to the National Construction Code released
for public comment last month.
The result is a big win for the Building Better Homes
campaign, a coalition of groups who have argued that
existing voluntary accessibility standards have been too          IT REQUIRES:
often ignored.
                                                                  ▬ A continuous and step-free path from the street or
The inclusion of mandatory minimum standards in the draft            car park, and at least one step-free entrance to the
2022 code follows a favourable majority vote from federal,           dwelling.
state and territory building ministers at a meeting in April.     ▬ Minimum widths for entrance doors, passages and halls.
The public comment period ends in July, and it is expected        ▬ Toilet on ground-level, with spatial requirements.
the code will come into force in September next year.             ▬ A shower with step-free entry.
It is up to state governments to decide when and how to           ▬ Reinforcement of walls to toilets, baths and shower for
enforce compliance with the national code.                           future installation of grab rails.
The 2022 code’s minimum standards are based on the                Building Better Homes has argued that only 5 per cent of
Silver standard for which builders can currently seek             new homes built in Australia comply with Liveable Housing
accreditation under Liveable Housing Australia voluntary          Australia guidelines. Australians living with mobility
guidelines. Silver is the most basic level; the others are        impairment make up 12 per cent of the population - a figure
Gold and Platinum.                                                set to grow as our population ages.

More than a car
CONTINUED

got around on a mobility scooter. Chris adjusted the gas
mixture and I headed off to get ready for the footy.
It was sadly the last time I drove her. Before I’d got far I
heard BANG BANG BANG! A tow truck was called, and
Chris put me onto a backyard mechanic friend, Tim. I told
Tim to pull out the old motor, recondition it, and put it back
in.
Tim pulled the motor and called me. He said I could throw
$10,000 at it and still not fix it. The power steering was
shot, the suspension was shot, and the pistons were
rounded off and couldn’t be machined.
OK, I thought, it’s time to get another car.
I sold the tonner to a friend who was looking for a car to
restore, and who had the resources.
Two weeks later I bought my new car. It’s a 2010 Holden
Ute.
                                                                 Wayne with the Tonner's successor.
Wayne Bradshaw

16            .org.au                                                                                  NEWSLINK JUNE 2021
AC C E S S A N D I N C L U S I O N

                                             YOUR NEW
                                     ACCESSIBLE PARKING SCHEME

       The accessible parking permit scheme in Victoria
       has been revised for the first time in 26 years.       ONLINE APPLICATION
       There are three permits under the new scheme:          The application is now an online process on the
       the Australian Disability Parking (ADP) Permit, for    VicRoads website.
       individuals and organisations, and the Victorian       ▬ S tart your application online at www.
       Double Time Permit.                                       accessibleparking.vic.gov.au
       Disability advocates have welcomed the changes,        ▬ You will receive an application reference
       expecting a significant increase in the fairness and      number via SMS
       effectiveness of the scheme.                           ▬ Take your reference number to your GP or
                                                                 Occupational Therapist
                                                              ▬ GP or Occupational Therapist will complete an
       THE IMPROVEMENTS TO                                       online assessment and submit application
       THE SCHEME INCLUDE:                                    ▬ Your local council will review the application
       ▬ Y ou are now able to receive a permanent            ▬ If your application is successful, your permit
          classification, instead of having to provide           will arrive in the mail. Otherwise, you will
          an assessment from your GP confirming your             receive a letter explaining the reasons for
          disability when you renew your permit.                 declining your application.
       ▬ In addition to your GP, Occupational Therapists
          are now authorised to be assessors.
       ▬ Permit length will go from three years to five.
       ▬ The eligibility for permits is now determined       PAPER-BASED APPLICATION
          by state-wide criteria, removing the previous
          inconsistencies across councils, and reducing       A paper-based version of the application is
          misuse of permits.                                  available for people without access to a mobile
       ▬ You'll only need to apply for one permit, from      phone or the internet. Paper-based applications
          one source, instead of applying to each council     are slower than online permit applications or
          you want to park in.                                renewals. The forms are available from your local
       ▬ Temporary permits will be introduced, for 6, 12     council.
          or 24 months.                                       ▬ Enter your personal details
       Alongside the streamlining of the scheme, Roads        ▬ Take the application form to your GP or
       minister Ben Carroll has assured disability               Occupational Therapist
       advocates that the government is also increasing       ▬ They will enter their own medical practitioner
       numbers of disabled parking spaces across the             details and complete the medical assessment
       state.                                                 ▬ Take the completed form to your local council
                                                              ▬ You can expect an update about your application
       Councils are in the process of moving towards             once it has been processed by the council
       the new system, with statewide implementation          ▬ Once the council determines the outcome, you
       by December 2021. Existing permits are still valid        will receive a letter within 7 to 10 days.
       until their expiry date, or the 30th of June 2023,
       whichever date occurs first.
                                                              FOR MORE INFORMATION CONTACT:
                                                              P. 1300 965 677
                                                              E. accessibleparking@roads.vic.gov.au
                                                              Or speak to your local council.

NEWSLINK JUNE 2021                                                                                         .org.au   17
COMMUNITY NETWORKS

Community Networks
– Mornington and Gippsland
It was fantastic to see in May, a couple of our community        Thanks also to Gerard Jarvis who made sure everyone was
networks coming together and taking the lead in bringing         engaging and spoke about the reason the group exists. It
their communities together.                                      was also great to see Darren and Barb take the drive all the
 As with all of our networks, the aim is to be directed by the   way from Bairnsdale.
members. Our aim is to facilitate and support all networks
to establish themselves and become self-sustaining over          JOIN ONE OF OUR
time.                                                            COMMUNITY NETWORKS:
Thanks to the support of Jeanette Warner, the Mornington         ▬   Ballarat
group met at Stella’s Dromana Hotel in Dromana and               ▬   Bendigo
enjoyed a great lunch.                                           ▬   Geelong
 It was fantastic to see some new faces join the group. It       ▬   Mornington
was a great opportunity to network and discuss issues            ▬   Gippsland
important to them. It was great to see how the regulars and      ▬   Shepparton & Echuca
the newcomers actually got on with each other.                   ▬   Melbourne
The Gippsland group met at Nilma North Hall for a great          ▬   Family & Friends of SCI
lunch put on by Colin Gray and his wife, Jenny. Both Colin       ▬   Professionals with SCI
and Jenny are local committee members, and thought               ▬   Women with SCI
the location would be an ideal venue, as it was eighteen
                                                                 Contact us on 03 9489 0777 or info@aqavic.org.au
months ago when we were last there.
                                                                 to find out more or to get involved.

Members of the Gippsland Network met in May and had lunch at Nilma North Hall.

18            .org.au                                                                                   NEWSLINK JUNE 2021
CLASSIFIEDS

WHEELCHAIRS FOR SALE                                2017 MERCEDES BENZ VALANTE 116                      APOLLO RESIDENTIAL HYDRAULIC LIFT
GLIDE CENTRO MID WHEEL                              BLUETEC
                                                                                                        Apollo lifts are a brilliant concept that makes
DRIVE POWERCHAIR                                    04/2022 Registration; Auto; 2.1L Turbo              installation a very simple project; It comes
In excellent condition; Purchased in 2019           Diesel ; 24,000 kms; RWC Supplied; Service          complete with its own prefabricated shaft;
for $17000 - Receipt attached; Rarely went          History; Flint Grey Metallic; This Mercedes         Only needs a recess of 80 mm; It is very easy
outside and was used in the aged facility;          Benz van has been meticulously looked after         to plumb in with the supplied control cabinet
Many additional extras.                             and fitted with a long list of factory options      to be installed close by; It only requires a
                                                    and safety options (see below) and most             single phase 20 amp power supply and is
Price $ - Reasonable Offer Accepted                 importantly a Fiorella Wheelchair Lift with         suitable for internal or external installation.
PHONE 0436 010 284                   (02/21#a)      seatbelt and 4 Q’straints secure retractors         The lift is a few years old but has never
                                                    in 2017 by Mobility Plus in Fairfield (VIC) (O      been installed or used; It was fabricated
QUICKIE EXPLORE - ELECTRIC WHEELCHAIR               Tax invoice for $20,855.00 and instructional        to travel 2850 floor to floor but that can be
                                                    manual supplied) and legally classified as a        increased by the addition of material from the
Height adjustable; Tilt in space function;          wheelchair accessible vehicle and a seating         manufacturer.
Comes with backpack; Very good condition.           capacity for 6 passengers plus wheelchair           PRICE $5,500
PRICE $6,000                                        passenger. Link to Fiorella YouTube video:
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PHONE                                (07/20#a)      options include: Blind Spot Assist; Reverse
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2019 HYUANDAI SANTA FE + SMART LIFTER +             Assistance Package; Lane Keeping Assist;
MERITS MAVERICK 10 POWERCHAIR                                                                           tested to all Australian specifications and
                                                    Intelligent Light System; LED Tail Lamps,           approvals; Virtually brand new - Used for 1
                                                    Brake Lamps; Electrical Operation of Sliding        week only; Suitable for indoor and outdoor
Top of the range Hyundai Santa Fe Highlander        Doors (RHS & LHS); Roof Rails; Becker MAP
MY19; 2.2 Diesel; 4x4; Auto/manual gearbox;                                                             use - fully waterproof; 240V plug in - no hard
                                                    PILOT (Sat Nav); Alloy Wheels fitted with           wiring or hydraulics required; Suitable for
Build date 11/18; First Reg April 2019; Newly       225/55 R17; Heavy Duty Tow Bar; Includes
fitted with top of the range Smart Lifter                                                               a max. lift height of 830mm, or any required
                                                    3rd Row Seats; Rear Passenger Privacy Black         height in between, maximum lift weight of
valued $5,800 and new Merits Maverick 10            Glass; Any queries please call. Located in
Powerchair $4,200; Comfortable suspension;                                                              300kg, user and attendant capable; This lift
                                                    Coburg (VIC)                                        can be packed up and moved in less than 10
Easy to lifter - so no physical effort required;
The vehicle is fitted with genuine dealer           PRICE $59,500 ONO                                   minutes! The unit was $12,000 brand new.
extras; Roof Racks; Tow bar; Capable of             PHONE 0419 884 106                      (07/20#a)   PRICE $5,500
towing a decent size caravan; Key boot
opening and button on inside of tailgate;           EQUIPMENT FOR SALE                                  PHONE 0438 008 584                    (06/19#a)
Many features: Sidesteps for easy entry; Seat       ELECTRIC BED – ICARE 333 - KING SINGLE              FREEBIES
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All comforts; Warranty is still current on Lifter   Capacity; King Single; Lowers to floor; Raises
and Powerchair; Car still under warranty                                                                Mobility Plus Manual Wheelchair; 16’ x 17’;
                                                    to 810cm; Selling due to mother in-law going        24 Inch wheels; Can use for Lawn Bowls;
till 2024; Rego till June 19th; Asking price        into nursing home; Paid $3,500 in November
$54,500 – The lot includes the Vehicle,                                                                 Pick up from Mansfield or ring and arrange
                                                    2020.                                               somewhere to meet.
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PRICE $54,500
                                                    PHONE 0425 734 873
PHONE 0404 125 621 (Madeline) (05/21#a)                                                                 WYMO CAR HOIST
                                                    ELECTRIC BED - JOMOR QUEEN
CHRYSLER VOYAGER VAN - LX 6                         SIZE                                                WYMO Car Hoist; Works well; Includes all
SP AUTOMATIC 4D WAGON                                                                                   parts for installation; Pick up from Mansfield
                                                    14 Years Old; In good working order; Does not       or ring and arrange somewhere to meet.
A rare opportunity to purchase this deluxe          come with mattress.
wheelchair accessible vehicle; Low kms;                                                                 PHONE 0477 011 153                    (09/20#a)
Automatic; 2.8 L Turbo Diesel; Has incredible       PRICE $500 ONO                                      WANTED
power and yet is extremely economical. This         PHONE 0408 329 136                 (05/21#a)
is the Rolls-Royce of wheelchair accessible                                                             MOBILITY EQUIPMENT/AIDES/
vehicles; Chrysler Voyager, 1 of the last           RAZ – TILTING SHOWER                                ACCESSIBLE VEHICLE
ever sold in Australia; Fully imported car,         COMMODE
only a few ever brought to Australia; Over                                                              If you have any mobility equipment / aides
$200,000 has been spent on this vehicle to          With Headrest; In good condition; They sell         that you no longer need, we would love to
make it arguably the most exclusive car in          for $3,900 - $5,000 new.                            hear from you - AS WELL AS - a wheelchair
Australia; Self-drive fully computerised with       PRICE $1,500                                        accessible vehicle with a minimum of 4
electronic operation. No airbags; Full electric                                                         regular seats.
                                                    PHONE 0432 566 930                  (03/21#a)       Great Ocean Stays offers 4 purpose built
lowering with twin electric doors and boot;
Front passenger and driver seat have full                                                               accessible homes known as Bell Air. These
                                                    MONARCH HAND CONTROLS                               are in Ocean Grove, Vic. We are NDIA
access to car controls including stereo and
air conditioning; Both front seats are easily       Used; Very Good Condition; Purchased and            providers. To assist our clients have a
removable and are fitted with wheelchair            fitted at Franks Engineering.                       seamlessly accessible holiday, we source 2nd
docking stations; This car has done only                                                                hand mobility aides to store at the complex
                                                    PRICE $600                                          for our guests to use free of charge. At this
62,000 km and is in almost new condition; It is
finished in a gorgeous deep navy blue paint;        PHONE 0402 204 992                (01/21#a)         stage we do have enough shower chairs and
Can be supplied fully registered anywhere                                                               stools, but would be interested in wheeled
in Australia; Finance and insurance can be          CORAILLE – TILT MOBILE AGED CARE CHAIR              commodes, princess chairs, and most other
arranged; A warranty can be arranged at                                                                 aides. Secondly, we are also looking to
                                                    Excellent Condition; Used only for a short          enhance our guest experience by offering
additional price.                                   time; Seat width 48cm / Head rest; Double           tours to the Great Ocean Road and need to
PRICE $ - P.O.A.                                    footplate; Located in Reservoir.                    purchase a wheelchair accessible vehicle with
PHONE 0450 920 834                    (04/21#a)     PRICE $1,500 Negotiable                             a minimum of 4 regular seats. Many thanks,
                                                                                                        Regards, Christine Smith - Owner.
2014 CANAM SPIDER STS                               PHONE 0403 597 477                   (11/20#a)
                                                                                                        PHONE 0403 515 605                    (05/20#a)
Purchased in 2015; Gold; Kms 6350; Has hand         STANDING FRAME – EASY STAND
controls (RH brakes); Wheelchair lifter; Very                                                           For a full list of classifieds and items for
                                                    Comes with strap; Excellent condition; Hardly
reliable bike.                                      used.                                               free, please visit:
PRICE $16,000 Negotiable                            PRICE $2,500
                                                                                                        www.spire.org.au/community/classifieds
PHONE 0434 449 457                  (04/21#a)                                                           or contact us on 9489 0777 or info@
                                                    PHONE 0449 881 200                  (07/20#a)
                                                                                                        aqavic.org.au

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