Introduction to NDIS Individual Living Options (ILOs)
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Our History • Founded in 2015 by people with a disability and families • Founders saw the NDIS as an opportunity for people with a disability to play a greater role in designing and delivering services • This can lead to more end-user focused, innovative NDIS My Supports office lunch 2015
What makes us different? • We bring the lived experience into designing, delivering (1) We are a DPO/FO* services – helping shape the NDIS market place Provider • Making Disability Rights central to all we do • Local people, bringing local connections and contacts – community inclusion (2) All supports delivered by small, local • Choice of support worker via Meet & Greets Neighbourhood • On-the-ground team supervision – full quality and safeguarding Teams • A regular house, on a regular street – living inclusively in their own community (3) Focus on inclusive, • ILOs – Hosts, Co-Resident/Live in SW, Living Together, Living Alone in-community living (ILOs) • Connecting to SDAs – connecting our clients with SDA options * NDIA Definition: Disabled Persons Organisation / Family Organisation (DPO/FO). An organisation that has 50% of people with a disability and/or their families making up the organisation’s board or staff (or both)
Our Services • Core Supports • Assistance with Daily Life via Neighbourhood Teams • Assistance with Social and Community Participation via Neighbourhood Teams • Design and Delivery ILOs and SIL Arrangements • Individual Living Options (ILO) • Client Centred Supported Independent Living (SIL) • Capacity Building • Connection, Coordination & Specialist Coordination (or working with partner COSs) • Independence and skill building supports • Exploring housing options • Finding and keeping a job (or exploring starting a small business) • All disabilities - complex physical, intellectual/developmental, psycho-social & behavioural challenges
My Supports has emerged as an innovative and growing new NDIS service providers • The choice of 2,000 NDIA participants around Australia • >75 Neighbourhood Teams across the major states – and adding new teams a months: • NSW • Victoria • Queensland • Western Australia • South Australia • Wherever the NDIS has launched, My Supports is aiming to be an option – we will be everywhere • Nationally Q&S Commission audited
Developments in the NDIS – some observations • Developments being driven by disability rights, namely “living independently – and being included in the community” (UN Convention Rights of Persons with a Disability) • The NDIA looks increasingly to be working to enable NDIS participants the opportunity to choose where they live, with whom they live, and have access to supports to make that happen • No person with a disability should have no choice but to live with their parents, family for support • NDIS funding developments • Individual Living Option (ILOs) – individualized supports, designed around client • Specialist Disability Accommodation (SDAs) – funding of the physical dwelling for very high and extreme complex clients • Supported Independent Living (SILs) – support funding in a group setting/home Source : Independent Advisory Council to the NDIS (Council) – Pathway to Contemporary Options of Housing and Support (May 2018)
NDIS Price Guide 2020/2021 – new! Great new for Coordinators of Supports! – hearing 20/50/100 hours available
NDIS Price Guide 2020/2021 – new! This is what we do – we welcome working with Coordinators on an exploration journey!
ILOs on NDIA website
Other living arrangements
What needs can an ILO meet? People exploring ILOs can have different backgrounds and needs • >18 and entering new independent life phase Moving from Family Home • Aging parents looking to the future • Parents have health issues • Living in larger groups not suited to person Leaving a Group Home • Wanting more control over how live • Wanting more control on who live with • Moving around - often in temporary or emergency arrangements Unsettled – looking for a place • Looking for own place and a sense of belonging to call home • Can be threat of homelessness • Moving to a new area Moving and life changes • Changes in personal situation
The ”Six principles” of Shared Living - a useful starting point for assisting people explore ILOs Does the ILO build the following?
ILO Options HOSTS 1. Hosts – living with a family or individual in their home • Note: When support is provided in your own home and is not running a commercial enterprise, the tax department treats as a cost-reimbursement (not payment for work done) and in general the payment can be made tax free CO-RESIDENTS 1. Co-resident – a support worker lives with a person needing support and receives free or discounted rent and paid hours of support (if needed) LIVING ALONE 1. Friendly Neighbours – a person who lives nearby a person with a disability provides support 2. Circle of Support/Micro-boards (Housing goal) – people volunteer to support a person with a disability and this can include a living arrangement LIVING TOGETHER 1. Living Together Supporting Friend – sharing with a friend who provides some paid support (if needed) 2. Living Together Sharing NDIS Participants – 2 or more NDIS participants live together and share paid supports 3. Living Together Sharing NDIS Participants with Co-resident – as above, but a Co-resident lives in house to provide support 4. Living Together Supporting Families – families who live with and provide support (unpaid as families can’t be paid in NDIA), but get additional ILO Supplementary Support and the assistance of ILO Maintenance and Monitoring to make things sustainable
ILOs common elements 1) Built on the “6-principles” • Belonging and connection, independent living, self-determination, flexibility, choice and trust 2) Strengthens informal connections – building meaningful relationships • Build on informal networks – where formal supports, they assist building meaningful relationships 4) Can work to change perception of need for 24/7 support • Many people with perceived need for 24/7 supports better supported by informal supports, on-call or more targeted formal supports 5) Oversight – quality and safety • Strong oversight and monitoring role to support arrangement from experienced ILO provider 6) Some supports are paid different • Some supports paid not on per hour calculations, but on a retainer-type basis or different tax treatments 7) Increases the possibility to access mainstream housing • Sharing arrangements and hosts can make housing more affordable, which opens up more housing options
ILOs basics – structure of funding ILO Arrangement – the 3 parts: Other Supports in Plan – could include: • 1) Primary supports • Core Supports • Varies greatly per option: • Assistance with Social and Community • Host payments, co-resident payments, Participation friendly neighbour, living together payments • Transport, Consumables • 2) Supplementary supports • Capacity Building Supports – Coordination, • Supports to make arrangement sustainable – can Other Capacity Building include: • Assistive Technology 1. Daily Living • SDA (where applicable) 2. Taking a Break – Weekend and Holiday • SDA support is in general restricted to Weeks extreme complex needs (including 3. Emergency on Call physical and/or multi-disability support • 3) Design, facilitation, maintenance and monitoring needs) arrangement • Quality and Safeguarding • Putting in place, including agreements
Getting and ILO in an NDIS plan and implemented 1. Engage with a ILO provider • Participants – talk to your coordinator, or find a ILO provider who can assist • Coordinators – a ILO provider is a great discussion partner around housing options – collaborate to agree a proposal, get approvals and implemented 2. Involvement client and family in discussion of options • Create the discussion around ”how I want to live” – structure arrangement to fit needs, wants and that builds capacity • The NDIS will look to see a good, broad exploration of mainstream, non ILO options 3. Drafting a proposal – ensure arrangement meets needs, wants • My Supports has developed a ILO Starting Questions (on website) document – that helps ask the rights questions, and also collects information will need for ILO proposal/quote 4. Approvals • ILO Provider and Coordinator work on this step together – via ILO Team and planners/LAC 5. Implementation – post approvals • Need a clear plan to implement the different supports – Primary, Supplementary & visits • Key – selecting the right ILO person (host, co-resident, sharing friend and more) – leave time to do right
Host arrangements - introduction • Some questions to ask when considering a Host arrangement • Host must have a suitable home • Host arrangements are generally longer term – does this match? • A willingness to share your life? • Open to being part if routines and personalities that make up a family? • Background of hosts can vary • Can be an individual or family • Can come from network of person – family friends, connections via activities • My Supports identifies via recruitment program • Other important points • Matching process vital – people/people, check and clearances, open interview/feedback process • Well design implementation process – meet and greets, trial stays, trial periods and open feedback, leading to a positive mutual decision • Importance of training and supporting arrangement – quality and safeguarding • Hosts are not employees – they are engaged in a similar way to foster carers. Tax rulings mean the payment to hosts could be a tax-free reimbursement
Host arrangements – some examples Situation ILO Arrangement A child is unable to stay with their biological family Child lives with a Host Family as a regular part of family A teenager/younger person is not able to be Person lives with a Host Family as a regular part of supported by biological family family An older person is looking to move out from Person lives with friends of the family (for example), parents, but prefers to live in a more family perhaps where children have moved out and space environment is available An older person is looking to move out from Person lives with a individual who has space and parents, but in general unable to spend nights alone time to provide support and companionship Note: My Supports can assist finding the right host family or individual – these can often come from extended network of the individual
Co-resident arrangements - introduction • Some questions to ask when considering a Co-resident arrangement • Participant must have own home • A willingness to share your life and build companionship? • Can afford to give free or reduced rent? – or do I need Co-resident paying rent to afford an apartment/house? • Background of Co-residents can vary • Can come from network of person – family friends, connections via activities • Often young people – University students, people working part-time • My Supports identifies via recruitment program – targeting youth groups, organisations • Other Important points • Participant has more control – as lives in own home • Matching process vital – people/people, check and clearances, open interview/feedback process • Importance of training and supporting arrangement – quality and safeguarding • Co-residents are employees – paid as salary and liable for tax
Co-resident – discussion starter/examples Situation ILO Arrangement A younger person wants to move out of family An apartment with two rooms is rented by a younger home and be independent – but living alone is person, and a Co-resident (“house mate”) moves in maybe too big a step in one go and provides companionship and some support, in return for a modest payment and reduced rent A person wants to live with more freedom, but in As per above, but Co-resident assists with daily general cannot spend nights alone, and has more routines intensive support needs Note: A key challenge may be access to affordable housing and ability to offer discounted rent – this can be discussed with COS or ILO provider
Living Alone arrangements • Some questions when considering a Living Alone arrangement • Can I spend nights by myself? – with on-call as a back-up • Do I like to have my own space, do not mind periods by myself? • Can I afford to live alone – can I pay rent/home? • Do I have other income/financial resources/access to a home or apartment? • Do I have a SDA package that pays for apartment/house? • Is public housing an option? • What are some Primary Support options? • Friendly Neighbour – a local person who can pop-by and assist create connections in community • Mentors – a person who shares a good connection, who can assist in connecting • Important points • Isolation/loneliness a risk – importance of connecting with community, create networks • Can use technology – mobiles, alarms and remote communications playing an important role • Can us on-call – where required
Living Alone – discussion starter/examples Situation ILO Arrangement A younger person wants to move out of family An apartment is rented by a younger person who home and be independent and prefers to live by then lives alone – the ILO Provider identifies a person themselves. in same building who can pop by and assist with Would benefit from building connections. connection in the neighbourhood (Friendly Neighbour) and provide confidence of someone close at hand A person feels they will be happiest if they can live ILO Provider identifies a person with similar interests alone, with their own space. and passions (Mentor), who lives not too far away Would benefit from building connections. and can pop by and assist with skill building, building connections (or other supports) Note: Living Alone arrangements by necessity require a person to spend nights by themselves – Friendly Neighbours or Mentors and/or On Call service can provide confidence and security to make this step.
Living Together arrangements • Criteria to be a Living Together arrangements • Home of participant – own/rent • Person(s) sharing must come from participants own network • There can be no payments for support to intimates/family • Some common examples – see next slide further information • 1) Two NDIS participants who are friends may live together • ILO supports can be shared where applicable to make best use supports • Primary support can be • Often not required – sharers provide own companionship / mutual support • Co-resident – where more complex needs • Friendly Neighbour or Mentor – where pop-by support • 2) An NDIS participant shares with their friend(s) • 3) Living with partner/spouse or family member
Living Together – NDIS participants and friends – discussion starter/examples Situation ILO Arrangement Two NDIS participants are friends and want to live Friends sharing together – mutual companionship and together as housemates – can spend overnights alone. support. (e.g, may have met in SIL house) Supplementary supports can be shared to make best use ILO funding. Two NDIS participants are friends and want to live ILO Provider identifies a person with similar interests and together as housemates – can spend overnights alone. passions (Mentor) or someone who lives in same street Would benefit from building connections. (Friendly Neighbour) who can pop by and assist with skills building, building connections. Support can be shared to make best use ILO funding. Two NDIS participants are friends and want to live Living Together with Co-resident an option. together as housemates - may have more complex A Co-resident moves in and provides companionship, needs and need overnight support. personal assistance, in return for a payment (for engaged hours) and/or reduced rent. Support can be shared to make best use ILO funding.
Living Together – Supporting Friend(s) – discussion starter/examples Situation ILO Arrangement A person wants to share with a friend(s) – in some Living Together – Supporting Friend(s) cases may require some assistance with daily An ILO can assist give clarity on what supports are routines required in a way that respects friendship. In some cases where more intense support is required, a payment for time and/or rent discounts may make arrangement more sustainable. Note: In Supporting Friend arrangements the “friendship” remains central.
Living Together – partners and families – discussion starter/examples Situation ILO Arrangement A person is in an intimate relationship and partner Living Together – Partners is providing intense and continuing support All partners support each other – this mutual support must be sustainable. An ILO can assist via providing advice / coaching where required and ensuring reasonable and necessary Supplementary supports. A person shares with a family member who is Living Together – Partners providing intense and continuing support Families support each other – this mutual support must be sustainable. An ILO can assist via providing advice / coaching where required and ensuring reasonable and necessary Supplementary supports. Note: Under NDIA rules, Partners and Family Members cannot be paid for support provided.
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