Impact Report 2019 / 20 - The Terry Fox Foundation

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Impact Report 2019 / 20 - The Terry Fox Foundation
2019 / 20

Impact Report
Impact Report 2019 / 20 - The Terry Fox Foundation
A DREAM AS BIG
AS OUR COUNTRY
Eighteen-year-old Terry Fox of Port Coquitlam, BC never saw
himself as remarkable. Granted, he displayed an unusual
determination to achieve the goals he set for himself but
his orbit was local – family, school, sports and friends. But
Terry’s cancer diagnosis of osteogenic sarcoma just above the
knee, the subsequent amputation of his leg and experience
in the children’s cancer wards changed all that. A newly
nurtured reservoir of compassion, combined with a fierce
determination to bring an end to the suffering cancer causes,
set Terry on a path that, quite simply, changed the world.
Terry’s personal experience led him to a simple conclusion
– more money was needed for cancer research. And so, in
the modest but motivated style that would prove to be his
trademark, Terry started training and planning for his cross-
Canada run to raise funds for cancer research. He dipped
his artificial leg in the Atlantic Ocean on April 12th, 1980 and
proceeded to unite Canadians in a way never before, nor
since, seen. The only thing that could have stopped Terry
from reaching the Pacific Ocean did. Cancer returned in his
lungs and he was forced to stop on September 1st, 1980 after
having run 5,373 kilometres.
Before his death on June 28, 1981, Terry had achieved his
once unimaginable goal of $1 from every Canadian. More
importantly, he had set in motion the framework for an
event, The Terry Fox Run, that would ignite cancer research
in Canada, raising more than $850 million since 1980, and
bring hope and health to millions of Canadians.

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Impact Report 2019 / 20 - The Terry Fox Foundation
IMPACT BEYOND NUMBERS
For thirty-nine years the Foundation has raised funds for cancer research based on the passion of our volunteers,
supporters and staff.
We are proud to share with you this report which highlights the ongoing success of our fundraising programs at a time when other
peer-to-peer fundraising is in decline. Our 39th Terry Fox Run in September 2019 attracted over 160,000 participants; our school
program encouraged more than 3,300,000 students to think outside themselves by helping others; more than 250,000 donors
trust us to make the best decisions with their gifts.
We want to draw your attention to pages 4 and 5 of this report where every dot represents Canadians of all ages and abilities who
believe in Terry’s mission: to help fund a cure for all cancers. Our recent investments in digital transformation, new and enhanced
marketing channels and better online tools for teachers have led to an increase in our overall revenue.
The COVID-19 pandemic will challenge us all during our 40th Anniversary. However, we are confident that our staff, our volunteers
and our researchers will meet this challenge with the same tenacity, hope and self-sacrifice that Terry demonstrated on his Marathon
of Hope forty years ago.

Yours Sincerely,

                        Bill Pristanski		                                       Ara Sahakian
                        Board Chair                                             Executive Director (Interim)
                        The Terry Fox Foundation                                The Terry Fox Foundation

NEW INITIATIVES LAUNCHED TO
ADVANCE PRECISION MEDICINE
We celebrated two major achievements in 2019-20 that will help us to accelerate precision medicine for Canadians over
the next five years.
First, TFRI was awarded $150-million from Health Canada to establish the Marathon of Hope Cancer Centres Network. These funds
will be matched by the network partners, resulting in $300-million new dollars for cancer research. We are now engaged with
partner hospital centres and organizations across Canada to create this big data network.
Additionally, TFRI along with its artificial intelligence partner Imagia, based in Montreal, was awarded $49-million from Innovation,
Science and Economic Development Canada to build the Digital Health and Discovery Platform (DHDP). The platform will enable
DHDP members from participating institutions across the country to collaborate to apply artificial intelligence and other imaging
technologies to advance progress in cancer in ways never done before. You can read more about both new initiatives on page 18.
Our funded teams made important research advances and breakthroughs during the fiscal year and you can read more about
those on pages 14 and 15.
In early 2020 our research programs were affected by COVID-19 as labs and centres across the country pivoted in response to
the virus -- and the pandemic continues to challenge us all. We are excited by the challenges and opportunities ahead as we
collaborate to achieve Terry’s dream of a world without cancer. Thank you for your continuing support.

Yours Sincerely,

                       Dr. Victor Ling, O.C., O.B.C., PhD
                       President and Scientific Director
                       The Terry Fox Research Institute

                                                                                                                                    3
Impact Report 2019 / 20 - The Terry Fox Foundation
TERRY’S LEGACY LIVES ON
FAR AND WIDE
Every dot shown on this map represents a city
or town that hosts a Terry Fox Community Run,
School Run, or both.

                    1:400                                           YK                               NT
                       Staff to
                   Volunteer Ratio
                                                                           1,659                    1,643

                                                                                    BC                  AB

          10,200                    3.6M+
           School and                 Annual
         Community Runs             Participants

BC / YK           AB / NT /NU                SK               MB                 ON               QC
       118              89                    53               39                207               47
COMMUNITY RUNS     COMMUNITY RUNS        COMMUNITY RUNS   COMMUNITY RUNS     COMMUNITY RUNS   COMMUNITY RUNS

     1,533            1,541                  549              522              4,250              310
    SCHOOL RUNS     SCHOOL RUNS           SCHOOL RUNS      SCHOOL RUNS        SCHOOL RUNS      SCHOOL RUNS

4
Impact Report 2019 / 20 - The Terry Fox Foundation
NU

3
           625           571
              SK          MB

                                                                             215
                                          4,564        347         NL
                                              ON       QC

                                                             315             NL
                                                                   PEI

    NB / PEI             NS               NL
         49               45               45                NB         NS
    COMMUNITY RUNS   COMMUNITY RUNS   COMMUNITY RUNS                         405
        265              345              193
     SCHOOL RUNS      SCHOOL RUNS      SCHOOL RUNS

                                                                             5
Impact Report 2019 / 20 - The Terry Fox Foundation
SCHOOL RUNS
Look What 3.3 Million Students Can Accomplish
If you are ever in need of a “feel good” story then the Terry Fox School Run is the place to turn. Every September more
than 3.3 million students from coast-to-coast-to-coast come together to make a difference in the lives of people they might never
meet. They walk millions of kilometres, inspire tens of thousands of donors, sell everything from popsicles to cookies to t-shirts, all to
make a difference in the lives of cancer patients. We owe an enormous debt of gratitude to our educators who had made Terry’s story
an important part of the curriculum and in doing so helped our children see their own potential to help others. What an inspiring way
to start the school year!

A Big Thank You to Our                                                     Fun Facts

                                                                           Raised over $11,000
                                                                           St. Anthony’s School in Drumheller, Alberta, the school with
                                                                           the youngest Be Like Terry team (kindergarten – grade 3)
                                                                           Relay Run
                                                                           Schools in Terry’s hometown of Port Coquitlam, British
                                                                           Columbia completed a relay style run event to bring their

    9,508                               3.3M
                                                                           funds to the TFF office.

    Schools That                      Students and
     Host Runs                         Educators

Ontario School Gets Creative to Reach Milestone
Fundraising Goal
For their 20th year of fundraising,
Lambton Kingsway Junior Middle
School in Etobicoke, Ontario
pulled out all the stops to raise an
impressive $27,300.74. This pushed
them past the monumental grand total of
$500,000 fundraised to date for
The Terry Fox Foundation. Their incredible
2019 student leadership Be Like Terry
crew fundraised all year long, planning
several fundraising activities, including a
lemonade stand, bake sales, raffle nights,
donation jars, and a pajama day. Using
several incremental challenges, they were
able to reach their goal!

6
Impact Report 2019 / 20 - The Terry Fox Foundation
Fredericton Schools
Join Together to Unlock
Matching Donation
Twenty-two schools in Fredericton, New Brunswick took their Terry
Fox School Run fundraising to a new level in 2019 after joining
forces to unlock a generous matching donation from the JT Clark
Family Foundation. The students were challenged to collectively raise
$17,500, and if that goal was reached, the Clark family pledged to match that
incredible total, an initiative that motivated thousands of students to fundraise
for cancer research, while also getting active. The students, teachers, and
their communities rose to the occasion, and together raised a stunning
$22,680.82. Once the JT Clark Family Foundation added their matching
funds, this collaborative effort contributed a grand total of $40,180.82
towards innovative cancer research.

A Whale of a Terry Fox Run
There are just 37 students at Sea View School in Port Alice, British
Columbia, but it was home to one of 2019’s most unique Terry Fox
School Run fundraisers. Port Alice is on the northwestern shore of Vancouver
Island, an area visited by a humpback whale referred to by marine researchers
as BCX1100. The whale has an injured right fluke, meaning his tail is limp on
that side. Despite this injury, he had made his way to Port Alice from Hawaii.
When given the opportunity to come up with the nickname for this whale, Sea
View students settled on Terry, drawing parallels between stories of hope and
perseverance. The small but mighty group of students ran their annual Terry
Fox Run along the shore with a view of the whales, and raised an impressive
$1,445.20, almost 3 times their original goal!

$12,966,165
2019 School Runs (Canada) Fundraising

                                                                                    7
Impact Report 2019 / 20 - The Terry Fox Foundation
COMMUNITY RUNS
Keeping Terry’s Dream Alive from Coast to Coast
2019 saw Canadians from coast to coast participate in the 39th annual Terry Fox Run, in communities big and
small, urban and rural. As people gathered to honour Terry’s legacy and fundraise for cancer research, a number of runs
across the country found themselves joined by members of the Fox Family. They were touched to see people of all ages and
backgrounds honouring Terry, as well as the thousands of volunteers who make these runs possible.

Terry’s nieces are just three of the Fox Family member’s who were spread out across the country this year. (From left to right:
Jessie in Nova Scotia, Erin in Manitoba, Kirsten in New Brunswick.)

Will Dwyer: The Million Dollar Man
94 year old Will Dwyer’s goal was
to raise $1 million for The Terry Fox
Foundation, and in September
2019 he officially did it! Over the past
39 years (he has never missed a Run) Will
has raised over $1,000,000 for cancer
research. Will has cancer, but like Terry
that did not slow him down. Will was
out almost daily around Barrie, Ontario
to canvas different neighbourhoods
on foot. He went door-to-door, visiting
almost every house. He has even fallen
several times, but just got right back up
and kept going. Like Terry indeed. Will’s
mission also touches home, having
lost two sons and his mother to cancer.
“What keeps you going?” Will’s son
asks, “To find a cure for cancer” has
always been his reply.

                                            Alexandra Fox thanked Will on behalf of the Foundation and Terry Foxers everywhere!

8
Impact Report 2019 / 20 - The Terry Fox Foundation
A Big Thank You to Our

 87,500                                10,000                                  3,100                              6,514
   Participants                            Run Day                    Corporate, Dedication Registered Terry’s
                                          Volunteers                    and Family Teams    Team Members*
 *Cancer Survivors

 Team Galen

 Team Galen was formed in August 2019 just a few weeks after Drew and Jane McNichol lost their son to melanoma.
 With the 2019 Terry Fox Run falling on what would have been Galen’s 34th birthday, there was no question where the McNichol
 family would honour his final wish that the family celebrate his memory through fundraising for cancer research. Long time Terry
 Fox Foundation supporters, the September 2019 Run also marked Drew’s 39th year of participation and Jane’s 37th. As their family
 grew, their children joined the annual Run and, like their parents, participated not only in Alberta or across Canada but wherever
 their international travels took them on Run Day. Over a 4-week period in August and September, the McNichol family gathered
 over 130 friends and family to run alongside them in Calgary. Many friends and colleagues flew from across Canada and one from
 Israel to join the family for the 39th Terry Fox Run. Their fundraising efforts in Galen’s memory stretched coast-to-coast-to-coast in
 Canada with participants running at eight sites from Newfoundland to British Columbia to Northwest Territories. Drew’s company,
 Canada Life, provided a community matching donation of $10,000. In just four short weeks, Team Galen raised an astounding
 $82,975 for cancer research.

 $8,098,523
 2019 Community Runs (Canada) Fundraising

                                                                                                                                      9
Impact Report 2019 / 20 - The Terry Fox Foundation
OTHER FUNDRAISING
When people think of Terry Fox events it is understandable that their minds go right to the “Run.” But more and
more we are seeing other fundraising events come forward, bringing with them a new sense of fun and energy.
Terry wanted Canadians to “go crazy with fundraising” and that is exactly what these supporters do, even if it means climbing
mountains or running from Montreal to Vancouver with your six best friends. There is no limit to what people can accomplish
when your inspiration is Terry Fox.

                         $438,700                                                    317
                                 in non-run                                          monthly
                                   events                                            donors

Project Kili Climb: Fundraising at New Heights

Douglas Jack is a long time Terry Foxer, proud of his perfect attendance in all 39 Terry Fox Runs. In 2018, he began
planning his “Project Kili Climb” fundraiser for The Terry Fox Foundation, in anticipation of his 60th birthday the following year.
Douglas and his teammates, Ewen Ferguson, Ken Lennox, and Andrew Zyp, planned to ascend and summit Mount Kilimanjaro,
the highest single mountain peak in the world. In September 2019, after much preparation, they did exactly that.
In the months leading up to the climb, they trained extensively, and shared their progress with their friends and family as they
worked towards their goals, physical and fundraising alike.
On the journey up Mount Kilimanjaro, the thought that Terry ran a marathon a day, on one leg, brought Douglas inspiration and
encouragement during particularly challenging stretches of terrain and incredibly long days. The group summited as a team on
Run day. Project Kili Climb raised over $63,000 for cancer research, proving that Terry’s legacy lives on in those who continue to
carry his unconquerable spirit in the quest to find a cure for cancer.

$3,081,983
2019 Other Fundraising

10
BEQUESTS AND MEMORIAMS
When Terry dipped his artificial leg in the Atlantic Ocean he had one goal: to raise a million dollars for cancer
research. Humble but determined, he chose to live a life of action, a life of change, a life of purpose. And now that purpose lives
on in our supporters. Our shared commitment to his dream of a world free of cancer is exactly what Terry was hoping for when he
was forced to end the Marathon of Hope. It was the end of his journey, but the beginning of ours.
When our supporters leave a legacy gift to the Foundation, they are secure in the knowledge that family and friends will benefit
from the Foundation’s commitment to driving cancer research forward.

                                     8                                         $259,822
                            bequest gifts                                                 security
                              received                                                      gifts

Supporting Cancer Research Through
Securities Donation
Arlene and John Walker have been donating to The Terry Fox Foundation for around 30 years. Arlene recalls
participating in the very first Terry Fox Run in Winnipeg, and Terry’s story continues to inspire the couple to this day. Due to John’s
health, the couple is no longer able to travel as they used to, so they are directing what they would have spent travelling towards a
donation to support cancer research. In 2019, they made their first donation of stocks, and plan to continue to contribute this way
in the years to come. They encourage everyone who has been affected by this awful disease, and those who love what Terry Fox
stood for, to do their part to support important cancer research.

$704,838
2019 Bequests and Memoriams

                                                                                                                                      11
INTERNATIONAL

                35                                     23
         Countries World-Wide                   Funded International
                                                    Programs

                                 108
                           International Runs

$1,287,727
2019 International Fundraising

12
STATEMENT OF OPERATIONS
For the year ended March 31, 2020
Revenue                                             2020           2019
                                                        $             $

Community Runs                                  8,098,523      7,569,193
School Runs                                    12,966,165     12,650,846
Sale of Merchandise                              950,266        740,325
Bequests and memoriams                           704,838        528,597
Other Fundraising                               3,081,983      2,360,663

International                                   1,306,190      1,462,512
                                              27,102,815     25,312,136
Investment Income & Gains                        (501,976)     3,734,027
                                              26,600,839     29,046,163

Expenses
Fundraising                                     4,482,733      4,700,013
Administration                                  2,310,034      1,531,858
Cost of merchandise sold                          674,756        612,660
                                               7,774,143      7,185,063
Excess of revenue over expenses
before distribution of funds                  18,826,696     21,861,100

Distribution of funds and other
charitable activities
The Terry Fox Research Institute               23,566,010     28,334,082
International cancer research organizations     1,785,043      1,322,855
                                              25,351,053     29,656,937
Deficiency of Revenue
Over Expenses / Distributions                 (6,524,357)    (7,795,837)

                                                                           23%

    Research Investment
                                                                                 77 cents of every
   Admin and Fundraising Costs                                                    dollar goes to
                                                                                     research

*Based on a 3 year average.
                                                                                                     77%

                                                                                                           13
RESEARCH HIGHLIGHTS
Our funded teams make an impact from coast to coast
We are pleased to provide this summary of research conducted in 2019-20 by TFRI-funded
researchers at partner institutions across the country. The advances described here
have been published in a wide range of national and international journals and provide
a snapshot of the how donor dollars are making a difference in advancing our goal of
eradicating cancer. TFRI funds the top 5% of Canadian researchers and their science.

Dr. Paul Sorensen                                                            Dr. Stephen Lam

Sarcomas (Osteosarcoma)

A new finding by researchers at BC Cancer could help
block metastasis in two types of childhood sarcomas, including
osteosarcoma, which claimed Terry Fox in 1981. “What we have
discovered is that if we use a type of drug known as a Class 1
HDAC inhibitor, we can hinder a cancer cell’s ability to adapt to
stressors that are common in metastasis,” said Dr. Poul Sorensen,
                                                                             Lung Cancer
project team lead. “If the cells can’t adapt to these stressors they         A new algorithm created by a pan-Canadian research team,
can’t metastasize.” The team is now looking forward to testing               led by Dr. Stephen Lam (BC Cancer), can help determine who
their finding in clinical trials.                                            is at a higher-risk of developing lung cancer, up to three years
                                                                             before the disease ever forms. The algorithm can be used to
Brain Cancer                                                                 determine when patients get their next CT scan. This increases
                                                                             the chances of early detection, while decreasing the financial
Terry Fox-funded researchers have created a new                              burden that unnecessary CT (example shown above) scans
immunotherapy that shows great promise in treating                           place on health care systems.
glioblastoma (GBM), an aggressive form of adult brain cancer.                Also in summer 2020 the Government of BC announced
The immunotherapy involves genetically modifying cells                       a new lung screening study for patients at high risk to be
from a patient’s immune system and placing them back in the                  introduced in 2022. Research conducted by TFRI’s former
body. These cells are “wired” to find and exploit a specific                 pan-Canadian Early Detection Lung Study contributed
vulnerability present in some GBM cells. The team is now                     significantly with clinical and scientific evidence that early
looking forward to moving the discovery into clinical trials.                detection screening saves lives.

14                                           * Information provided by The Terry Fox Research Institute
Dr. Paul Schaeffer                                                         Dr. Kerstin Kaufmann

Pancreatic Cancer                                                          Breast Cancer

BC-based researchers studying pancreatic cancer                            A study by researchers in Montreal has revealed how HER2-
identified four new subtypes of pancreatic ductal                          positive breast cancer cells hijack metabolic pathways
adenocarcinoma based on metabolic pathway alterations.                     to produce the energy they need to grow and spread. This
“This finding provides a new avenue to search for biomarkers               finding has allowed them to identify a protein that could be
of treatment response while also identifying potential targets             targeted to stop the cells from getting this vital energy.
that could be explored for the creation of new cancer
treatments,” said Dr. Paul Schaeffer, a gastro-intestinal                  Blood Cancers
pathologist and team leader. Also this year, the team found
a small subset of patients with pancreatic cancer that could               Researchers in Toronto studying leukemia are targeting
potentially benefit from some form of immunotherapy.                       genes and isolating cells to improve outcomes for
These patients exhibit a T-cell inflamed profile, a hallmark of            patients diagnosed with acute myeloid leukemia (AML)
immunotherapy response.                                                    and acute lymphoblastic leukemia (ALL). Stopping leukemia
                                                                           in its tracks or preventing relapse in patients who have
                                                                           already received treatment might be achieved by targeting
Prostate Cancer                                                            INKA1, a gene that has never been studied before in the
TFRI’s prostate cancer project teams and investigators                     context of cancer, they found. The team also isolated and
published numerous scientific findings this past year. One                 profiled a group of cells that cause relapse in ALL which
team discovered two new biomarkers that can help                           are genetically unique and also survive therapy, acting
predict the aggressiveness of prostate cancer, findings                    as reservoirs for relapse. The finding opens the door for
that may one day lead to personalized treatments for men                   opportunities to devise drugs to target these resistant
with this disease. A second group conducted a clinical                     cells and to prevent relapse from ever occurring.
trial where a more effective way to treat aggressive
prostate cancers was identified. And a third team
determined that measuring the loss of a specific protein
(PTEN) in patients after surgery will provide clinicians with a
clear indication of whether a patient should be monitored
for relapse or proceed to adjuvant radiation. PTEN plays an
important role in disease progression.

                       Visit www.tfri.ca to learn more about these and other stories.

                                           * Information provided by The Terry Fox Research Institute                                15
OUR RESEARCH

2019-20 Funding by Cancer Type

• Blood                                        $4.2M                                         12.5%
                                                                                                               19.9%
• Prostate                                     $2.6M
                                                                                 3.0%
• Pediatric & Young Adult                      $2.5M
• Brain                                        $1.8M
                                                                           4.1%
• Ovarian                                      $1.6M
• Pancreatic                                   $1.5M
• Breast                                       $1.5M                    5.7%                  $21.3M                      12.1%
• Rare Cancers                                 $1.2M                                          TOTAL INVESTMENT
• Lung                                         $868K
• Colorectal                                   $644K                        7.0%
• Other*                                       $2.7M
                                                                                                                  11.6%
                                                                                    7.2%

*This category includes our investment in projects
                                                                                                 7.7%   8.5%
 that have non-specific cancer types as well as a
 cumulative total of our investment in cancer types
 that received less than 4% of our annual funding,
 including cervical cancers, gastrointestinal cancers,
 head and neck cancers, melanomas and sarcomas.

By The Numbers

      472                                                       98                                              46
       Funded                               Collaborative Institutions                                         Funded
     Researchers                                 Across Canada                                                 Projects

16                                        * Information provided by The Terry Fox Research Institute
SNAPSHOT OF TFRI INVESTMENT
BY REGIONAL NODE

                                    2019/20 snapshot of TFRI and
                              partner investment by regional node
                                  based on excellence and impact

          * Information provided by The Terry Fox Research Institute   17
NEW PAN-CANADIAN PRECISION
MEDICINE INITIATIVES ANNOUNCED

Left to right: Alexandre Le Bouthillier (Imagia), Hon.                   Gail Falconer-Klinck with student and Terry Fox supporter
Minister Navdeep Bains (Innovation, Science and Industry)                Mia Tetreault
and Dr. Victor Ling (TFRI) at DHDP announcement.

Marathon Of Hope                                                         Digital Health And
Cancer Centres Network                                                   Discovery Platform First
Investment Announced                                                     Of Its Kind In Canada
In Moncton in July 2019, the federal Minister of Health Ginette          “Cancer is a really personal, emotional rollercoaster kind-of-a-
Petitpas Taylor announced an investment of $150- million                 journey-and it touches all of us,” says Gail Falconer-Klinck, a 25-year
over five years by the Government of Canada to the Terry Fox             teacher and singer-songwriter who is a 15 year Terry Fox Run
Research Institute (TFRI). This funding will create the Marathon         Organizer at Massey-Vanier High School in Cowansville, Quebec.
of Hope Cancer Centres network to help accelerate precision              “So when there’s a breakthrough that opens endless possibilities
medicine for cancer patients across the country. It will be              to improving the quality of life and survival rates for people facing
matched by the network partners.                                         cancer, it really is a reason to celebrate.”
The Marathon of Hope Cancer Centres Network’s goal                       The “breakthrough” Gail refers to is the creation of the Digital
is to accelerate the adoption of precision medicine for                  Health and Discovery Platform (DHDP), a state-of-the-art Artificial
cancer through the creation of a pan-Canadian network                    Intelligence (AI) platform that will be able to sift through Big Data
of designated cancer centres. This network represents a                  made up of clinical and genomic information from thousands of
powerful collaborative platform that will embed research in              cancer patients across Canada to determine the unique genetic
the cancer clinic, uniting the top-tier cancer researchers and           mutations that cause cancer in each patient and match them to the
clinicians in Canada and allowing them to share their data and           best possible treatment.
apply exciting new technologies such as artificial intelligence
to deliver the best outcomes for each cancer patient in                  The DHDP, which is led by the TFRI and AI partner Imagia, was
Canada, no matter where they are.                                        launched in May 2019 thanks to an investment of $49-million
                                                                         dollars from Innovation, Science and Economic Development
“We are committed to supporting innovative and                           Canada as part of its Strategic Innovative Fund. The platform
collaborative cancer research to improve health outcomes for             will help make precision medicine for cancer a reality and will
Canadians who are living with, or may one day be affected
                                                                         empower the Marathon of Hope Cancer Centres Network.
by, cancer,” said the Honourable Minister of Health. “I want
to thank the Terry Fox Research Institute for its ongoing                “For patients like me, these new initiatives will improve a doctor’s
commitment, leadership, and innovation in cancer research                ability to identify predictors, to provide faster and more precise
across Canada. Your dedication is invaluable and is a source             diagnoses, and to deliver treatments unique to each person’s
of hope to cancer patients and their families and friends.”              cancer,” said Gail. “It is my hope that the impact of this platform will
                                                                         soon be felt in every oncologist’s examining room in Canada.”
Five regional consortia, representing cancer research and
care institutions in British Columbia, Ontario, Quebec, the              “Signing this agreement with the Government of Canada is an
Prairies and Atlantic Canada, are expected to participate                important step towards our goal of working together, sharing
in the network once it is fully operational. A key network               data, resources and knowledge to achieve our - and Terry’s - goal
deliverable is the creation of a high-quality shareable dataset          of ending cancer through research,” said Dr. Victor Ling, TFRI
of 15,000 cancer cases completed by 2024.                                President and Scientific Director.

18                                        * Information provided by The Terry Fox Research Institute
TERRY FOX PROFYLE
Diagnosed at age 5 with neuroblastoma, Kathryn
Stewart, now 16, has been through multiple rounds of
chemotherapy, radiation, immunotherapies and surgeries.
She has relapsed seven times.
“I’ve been through so many rounds of different kinds of therapies
and multiple relapses that when doctors took a biopsy of a tumour
on my leg, I asked to get it sequenced. I wanted to find out what
treatments could work for me as an individual,” says the Grade 11
student from Georgetown, Ontario. Through Terry Fox PROFYLE,
doctors found her cancer had a high number of genetic mutations,
leading to a new treatment course. Kathryn started this treatment
recently and her latest scans show her cancer has not progressed.
“Now, we have a new and hopeful path forward,” she says.
“Kathryn’s story demonstrates what is possible by using
molecular profiling to determine the best treatment for
patients with these hard-to-treat or rare cancers. By profiling
these tumours in real time, gathering pediatric cancer experts
together weekly from coast to coast to assess the results and
using that information to inform a medical decision, we are
developing what we believe is the cancer therapy of the future               Kathryn and her bravery beads. Each bead represents
– molecular profiling for precision medicine,” says Dr. David                a procedure or event every time she visited the hospital
Malkin, who is a clinician scientist and pediatric oncologist at             sharing her unique and special journey.
Sick Kids Hospital in Toronto.

LOOKING FORWARD
What can we say in a “Looking Forward” section when the year is 2020? We were in the midst of preparing for
an exciting fundraising and commemorative year, marking the 40th Anniversary of Terry’s Marathon of Hope when a global
pandemic occurred. Exciting plans for a cross-Canada bike ride, Confederation Bridge Run, musical concert and merchandising
opportunities were all cancelled when it was clear COVID was here to stay. But Canadians responded to the funding crisis as one
would expect: with kindness and generosity. Terry once said, “Anything is possible if you try. In 2020, a year where we all learned
to live life differently, there was only one way forward for The Terry Fox Foundation: Terry’s way. We had to try.

                                           * Information provided by The Terry Fox Research Institute                                 19
THANK YOU
to all of our generous and amazing                           “It’s got to keep going without me.”
                                                             - Terry Fox
Terry Fox supporters. Including
those who contributed by:
• Making a Donation                                           The Terry Fox Foundation
• Volunteering                                                150-8960 University High St.
                                                              Burnaby, BC V5A 4Y6
• Hosting their own fundraising event
                                                              terryfox.org
• Participating in or donating to a Run
• Becoming a monthly donor
• Donating securities
• Leaving a gift to The Terry Fox Foundation in their will
You can also read