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12/16/2019 Cultural & Linguistic Considerations: Communicating with Families about their Young Children’s Development Tawara D. Goode Georgetown University National Center for Cultural Competence Georgetown University Center for Excellence in Developmental Disabilities Center for Child and Human Development Department of Pediatrics Georgetown University Medical Center December 16, 2019 OBJECTIVES Participants will: 1. Define culture and differentiate culture from race and ethnicity. 2. Examine cultural characteristics of families seeking or receiving WIC services. 3. Cite examples of cultural differences in expectations of developmental norms for young children. 4. Examine socio‐cultural and contextual barriers in screening and early identification. 5. List considerations for communicating with culturally and linguistically diverse families about their young children’s development. Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence 1
12/16/2019 Culture is the learned and shared knowledge that specific groups use to generate their behavior and interpret their experience of the world. It includes but is not limited to: rituals roles communication languages values relationships thought courtesies practices beliefs customs manners of expected interacting behaviors Culture applies to racial, ethnic, religious, political, professional, and other social groups. It is transmitted through social and institutional traditions and norms to succeeding generations. Culture is a paradox, while many aspects remain the same, it is also dynamic, constantly changing. Data Source: Gilbert, J. Goode, T., & Dunne, C., 2007. Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence CULTURE IS … Comprised of beliefs about reality, how people should interact with each other, what they know about the world, and how they should respond to the social and material environments in which they find themselves. Reflected in religion, morals, customs, politics, technologies, and survival strategies of a given group. It affects how groups work, parent, love, marry, and understand health, mental health, wellness, illness, disability, and end of life. Data Source: Gilbert, J., Goode, T. D., & Dunne, C. (2007). Cultural awareness. From the Curricula Enhancement Module Series. Washington, DC: National Center for Cultural Competence, Georgetown University Center for Child and Human Development. Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence 2
12/16/2019 Culture … is applicable to all peoples is value laden & rooted in belief systems is active & dynamic is multilayered & multidimensional exists at conscious & unconscious levels is often viewed as thick, thin, or compartmentalized provides group member identity structures perceptions & shapes behaviors varies in expression both among and between individual group members permeates every aspect of life Goode, T. & Jones, W. Cultural Influences on Child Development: The Middle Years. In T. Gullotta T. & G. Blau (Eds.) Family Influences on Childhood Behavior and Development: Evidence‐based Approaches to Prevention and Treatment Approaches. New York: Routledge, Taylor & Francis Group, 2008. Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence What the literature is telling us Culture is not the same as race or ethnicity. Race is a social construct used to separate and divide the world’s peoples. There is only one race, the human race, comprised of individuals with characteristics that are more or less similar to others.1 Race is a construct of human variability based on perceived differences in biology, physical appearance, and behavior. The traditional conception of race rests on the false premise that natural distinctions grounded in significant biological and behavioral differences can be drawn between groups.2 Ethnicity is defined as how one sees oneself and how one is seen by others as part of a group on the basis of presumed ancestry and sharing a common destiny … common threads that may tie one to an ethnic group include skin color, religion, language, customs, ancestry, and occupational or regional features. Persons belonging to the same ethnic group share a unique history different from that of other ethnic groups. Usually a combination of these features identifies an ethnic group. For example, physical appearance alone does not consistently identify one as belonging to a particular ethnic group.3 1 National Center for Cultural Competence. Key definitions. (2011). 2 Haynes, M. & Smedley, B. (1999). Institute of Medicine, Committee on Cancer Research among Minorities and the Medically Underserved. Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence 3
12/16/2019 Who are families seeking or receiving WIC services in your state? Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence ACS 2018 United States Demographic Estimates One Race or Latino or Hispanic and Race Total Population = 327,167,439 RACE NUMBER Percent of POPULATION One Race 315,887,408 96.6% White 236,173,020 72.2% Black or African American 41,617,764 12.7% American Indian or Alaska Native 2,801,587 0.9% Asian 18,415,198 5.6% Native Hawaiian & Other Pacific Islander 626,054 0.2% Some Other Race 16,253,785 5.0% Two or More Races 11,280,031 3.4% HISPANIC OR LATINO AND RACE Hispanic or Latino of any Race 59,763,631 18.3% Data Source: Source: U.S. Census Bureau, 2018 American Community Survey (ACS), Slide Source:© 2019 - Demographic & Housing Estimates, Table DP05, 1-Year Estimates. Georgetown University National Center for Cultural Competence 4
12/16/2019 Population Self-Identified by Race & Ethnicity Categorical Listings White and Black or African American White and American Indian and Alaska Native White and Asian White and Native Hawaiian and Other Pacific Islander White and Some Other Race Black or African American and American Indian and Alaska Native Black or African American and Asian Black or African American and Native Hawaiian and Other Pacific Islander Black or African American and Some Other Race American Indian and Alaska Native; Asian American Indian and Alaska Native and Native Hawaiian and Other Pacific Islander American Indian and Alaska Native and Some Other Race Asian and Native Hawaiian and Other Pacific Islander Asian and Some Other Race Native Hawaiian and Other Pacific Islander and Some Other Race Three or more races Data Source: U.S. Census Bureau, American Fact Finder, Slide Source:© 2019 - Georgetown University National Center for Cultural Competence Top 10 Countries of Birth of Lawful Permanent Residents in the United States in 2017 Total 1,127,167 Mexico 170,581 China, People’s Republic 71,565 Cuba 65,028 India 60,394 Dominican Republic 58,520 Philippines 49,147 Vietnam 38,231 El Salvador 25,109 Jamaica 21,905 Haiti 21,824 Data Source: U.S. Department of Homeland Security, Yearbook of Immigration Statistics: 2017 Lawful Permanent Residents, Supplemental Table 1 – Persons Obtaining Legal Permanent Resident Status by State or Territory of Residence and Region or Country of Birth: Fiscal Year 2017 Slide Source:© 2019 - Georgetown University National Center for Cultural Competence 5
12/16/2019 Children under age 5 years comprise 6.1 of the U.S. population. N = 19,957,213 Estimates for July 1, 2018 Data Source: U.S. Census Bureau, United States Quick Facts retrieved on 12/12/19 from https://www.census.gov/quickfacts/fact/table/US/AGE135218#AGE135218 Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence Child Poverty by Age, Race, and Ethnicity in 2017 Under 5 Years White Black Hispanic/Latino Asian, Native Hawaiian American Indian (non‐Hispanic) Pacific Islander Alaska Native Number Percent Number Percent Number Percent Number Percent Number Percent 1,130,00 11.7 928,000 33.7 1,346,000 26.2 171,000 15.6 63,000 36.2 Data Source: Children’s Defense Fund, Child Poverty in America in 2017: National Analysis. Retrieved on 12/12/19 from https://www.childrensdefense.org/wp‐content/uploads/2018/09/Child‐Poverty‐in‐America‐2017‐National‐Fact‐Sheet.pdf Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence 6
12/16/2019 POLLING QUESTION Do you know the top five languages spoken in your state? □ yes □ no □ I thought I did! Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence Languages Spoken at Home in the U.S. in 2018 Estimated Total Population 5 years and over 307,521,124 Speak only English 78.1% Speak a language other than English 21.9% Speak Spanish 41,460,427 (13.5%) Speak Indo European languages 11,285,467 (3.7%) [French (Patois, Cajun), French Creole, Italian, Portuguese, Portuguese Creole, German, Yiddish, Other West Germanic languages, Scandinavian languages, Greek, Russian, Polish, Serbo‐Croatian, Other Slavic languages, Armenian, Persian, Gujarathi, Hindi, Urdu, Other Indic languages] Speak Asian and Pacific Island languages 10,945,719 (3.6%) [Chinese, Japanese, Korean, Mon‐Khmer, Cambodian, Miao, Hmong, Thai, Laotian, Vietnamese, Tagalog, other Pacific Island languages] Other Languages 3,577,055 (1.2%) [Navajo, Other Native American languages, Hungarian, Arabic, Hebrew, African languages, other unspecified languages] Data Source: U.S. Census Bureau, American Fact Finder, 2018 American Slide Source:© 2019 - Georgetown University Community Survey-1 Year Estimates, Table DP02 National Center for Cultural Competence 7
12/16/2019 Limited English Speaking Households Limited English Speaking Households formerly (linguistic isolation) refers to households in which no member 14 years old and over: (1) speaks only English or (2) speaks a non‐ English language and speaks English “very well.” Limited English Speaking Households in the Unites States in 2018 All households 4.4% Households speaking‐‐ Spanish 21.3% Other Indo‐European languages 15.0% Asian and Pacific Island languages 24.2% Other languages 15.9% Data Source: U.S. Census Bureau, American FactFinder, Slide Source:© 2019 ‐ Georgetown University 2018 American Community Survey‐ 1 Year Estimates, Table S1602 National Center for Cultural Competence What do these demographics look like in your state? A quick look at Arkansas, Massachusetts, Nevada Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence 8
12/16/2019 ACS 2018 Arkansas Demographic Estimates Total Population = 2,977,944 One Race or Latino or Hispanic and Race RACE NUMBER % of POPULATION White 2,302,141 77.3 Black or African American 459,969 15.4 American Indian or Alaska Native 19,476 0.7 Asian 42,368 1.4 Native Hawaiian & Other Pacific Islander 7,062 0.2 Some Other Race 75,106 2.5 Two or More Races 71,822 2.4 HISPANIC OR LATINO AND RACE Hispanic or Latino of any Race 213,246 7.2 Data Source: Source: U.S. Census Bureau, 2018 American Community Survey (ACS), Slide Source:© 2019 - Demographic & Housing Estimates, Year 1 Estimates Table DP05 Georgetown University National Center for Cultural Competence Languages Spoken at Home in Arkansas in 2018 Estimated Total Population 5 years and over 2,825,733 Speak only English 92.3% Speak a language other than English 7.7% Speak Spanish 154,946 (5.5%) Speak Indo European languages 19,618 (0.7%) [French (Patois, Cajun), French Creole, Italian, Portuguese, Portuguese Creole, German, Yiddish, Other West Germanic languages, Scandinavian languages, Greek, Russian, Polish, Serbo‐Croatian, Other Slavic languages, Armenian, Persian, Gujarathi, Hindi, Urdu, Other Indic languages] Speak Asian and Pacific Island languages 38,302 (1.4%) [Chinese, Japanese, Korean, Mon‐Khmer, Cambodian, Miao, Hmong, Thai, Laotian, Vietnamese, Tagalog, other Pacific Island languages] Other Languages 3,852 (0.1%) [Navajo, Other Native American languages, Hungarian, Arabic, Hebrew, African languages, other unspecified languages] Data Source: U.S. Census Bureau, American Fact Finder, 2018 American Slide Source:© 2019 - Georgetown University Community Survey-1 Year Estimates, Table S1601 National Center for Cultural Competence 9
12/16/2019 Limited English Speaking Households Limited English Speaking Households formerly (linguistic isolation) refers to households in which no member 14 years old and over: (1) speaks only English or (2) speaks a non‐ English language and speaks English “very well.” Limited English Speaking Households in Arkansas in 2018 All households 1.5% Households speaking‐‐ Spanish 5.1% Other Indo‐European languages 1.1% Asian and Pacific Island languages 1.3% Other languages 0.2% Data Source: U.S. Census Bureau, American FactFinder, Slide Source:© 2019 ‐ Georgetown University 2018 American Community Survey‐ 1 Year Estimates, Table S1602 National Center for Cultural Competence ACS 2018 Massachusetts Demographic Estimates Total Population = 6,902,149 One Race or Latino or Hispanic and Race RACE NUMBER % of POPULATION White 5,335,175 77.3 Black or African American 537,523 7.8 American Indian or Alaska Native 16,198 0.2 Asian 472,403 6.8 Native Hawaiian & Other Pacific Islander 2,775 0.0 Some Other Race 303,331 4.4 Two or More Races 234,744 3.4 HISPANIC OR LATINO AND RACE Hispanic or Latino of any Race 846,780 12.3 Data Source: Source: U.S. Census Bureau, 2018 American Community Survey (ACS), Slide Source:© 2019 - Demographic & Housing Estimates, Year 1 Estimates Table DP05 Georgetown University National Center for Cultural Competence 10
12/16/2019 Languages Spoken at Home in Massachusetts in 2018 Estimated Total Population 5 years and over 6,544,926 Speak only English 75.7% Speak a language other than English 24.3% Speak Spanish 615,909 (9.4%) Speak Indo European languages 596,805 (9.1%) [French (Patois, Cajun), French Creole, Italian, Portuguese, Portuguese Creole, German, Yiddish, Other West Germanic languages, Scandinavian languages, Greek, Russian, Polish, Serbo‐Croatian, Other Slavic languages, Armenian, Persian, Gujarathi, Hindi, Urdu, Other Indic languages] Speak Asian and Pacific Island languages 284,692 (4.3%) [Chinese, Japanese, Korean, Mon‐Khmer, Cambodian, Miao, Hmong, Thai, Laotian, Vietnamese, Tagalog, other Pacific Island languages] Other Languages 93,467 (1.4%) [Navajo, Other Native American languages, Hungarian, Arabic, Hebrew, African languages, other unspecified languages] Data Source: U.S. Census Bureau, American Fact Finder, 2018 American Slide Source:© 2019 - Georgetown University Community Survey-1 Year Estimates, Table S1601 National Center for Cultural Competence Limited English Speaking Households Limited English Speaking Households formerly (linguistic isolation) refers to households in which no member 14 years old and over: (1) speaks only English or (2) speaks a non‐ English language and speaks English “very well.” Limited English Speaking Households in Massachusetts in 2018 All households 6.1% Households speaking‐‐ Spanish 28.5% Other Indo‐European languages 18.5% Asian and Pacific Island languages 26.1% Other languages 15.9% Data Source: U.S. Census Bureau, American FactFinder, Slide Source:© 2019 ‐ Georgetown University 2018 American Community Survey‐ 1 Year Estimates, Table S1602 National Center for Cultural Competence 11
12/16/2019 ACS 2018 Nevada Demographic Estimates Total Population = 3,034,392 One Race or Latino or Hispanic and Race RACE NUMBER % of POPULATION White 1,924,976 63.4 Black or African American 280,385 9.2 American Indian or Alaska Native 44,666 1.5 Asian 250,137 8.2 Native Hawaiian & Other Pacific Islander 19,612 0.6 Some Other Race 358,786 11.8 Two or More Races 155,830 5.1 HISPANIC OR LATINO AND RACE Hispanic or Latino of any Race 881,145 29.0 Data Source: Source: U.S. Census Bureau, 2018 American Community Survey (ACS), Slide Source:© 2019 - Demographic & Housing Estimates, Year 1 Estimates Table DP05 Georgetown University National Center for Cultural Competence Languages Spoken at Home in Nevada in 2018 Estimated Total Population 5 years and over 2,849,853 Speak only English 69.1% Speak a language other than English 30.9% Speak Spanish 606,278 (21.3%) Speak Indo European languages 70,082 (2.5%) [French (Patois, Cajun), French Creole, Italian, Portuguese, Portuguese Creole, German, Yiddish, Other West Germanic languages, Scandinavian languages, Greek, Russian, Polish, Serbo‐Croatian, Other Slavic languages, Armenian, Persian, Gujarathi, Hindi, Urdu, Other Indic languages] Speak Asian and Pacific Island languages 172,176 (6.0%) [Chinese, Japanese, Korean, Mon‐Khmer, Cambodian, Miao, Hmong, Thai, Laotian, Vietnamese, Tagalog, other Pacific Island languages] Other Languages 33,204 (1.2%) [Navajo, Other Native American languages, Hungarian, Arabic, Hebrew, African languages, other unspecified languages] Data Source: U.S. Census Bureau, American Fact Finder, 2018 American Slide Source:© 2019 - Georgetown University Community Survey-1 Year Estimates, Table S1601 National Center for Cultural Competence 12
12/16/2019 Limited English Speaking Households Limited English Speaking Households formerly (linguistic isolation) refers to households in which no member 14 years old and over: (1) speaks only English or (2) speaks a non‐ English language and speaks English “very well.” Limited English Speaking Households in Nevada in 2018 All households 5.8% Households speaking‐‐ Spanish 20.7% Other Indo‐European languages 9.9% Asian and Pacific Island languages 17.6% Other languages 18.1% Data Source: U.S. Census Bureau, American FactFinder, Slide Source:© 2019 ‐ Georgetown University 2018 American Community Survey‐ 1 Year Estimates, Table S1602 National Center for Cultural Competence POLLING QUESTION What do you know about the literacy levels of the families seeking or receiving WIC services in your state? □ not at all familiar □ slightly familiar □ somewhat familiar □ moderately familiar □ extremely familiar Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence 13
12/16/2019 A Word About Health Literacy Some families may be able to read, however, they may be unfamiliar with certain concepts and words on the Learn the Signs Act Early Checklist such as: Babble Gurgling Vowels Gestures This may be even more challenging for families whose first language is not English or who are monolingual in their language of origin. Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence POLLING QUESTION Of the families seeking or receiving WIC services, how much do you know about the cultural expectations of typical child development ages (birth ‐ five years)? □ not at all familiar □ slightly familiar □ somewhat familiar □ moderately familiar □ extremely familiar Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence 14
12/16/2019 CULTURE MATTERS “Cross‐cultural comparisons show that virtually all aspects of infant development and parenting are informed by culture: Culture influences who, when, and how to care for children, what parents expect of children, and which behaviors parents should encourage and reward or discourage and punish.” Bornstein, M. H. Culture, Parenting, and Zero‐to‐Threes. Zero Three. March; 35(4) 2‐9. Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence CULTURE INFLUENCES DEVELOPMENT & DEVELOPMENTAL EXPECTATIONS The literature tells us there are cultural difference in expectations of developmental norms for infants and young children. “Culturally informed research suggests that psychomotor development infants is not driven exclusively by biological forces but rather is shaped systematically by childrearing practices that vary by culture.”1 While there is variance in expectation for development of social interaction and behavioral skills across racial and ethnic groups, there is greater concordance in expectations related to motor development. 1 Bornstein, M. H. Culture, Parenting, and Zero‐to‐Threes. Zero Three. March; 35(4) 2‐9. Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence 15
12/16/2019 CULTURE INFLUENCES DEVELOPMENT & DEVELOPMENTAL EXPECTATIONS “Be mindful of cultural differences. Not all cultures place the same emphasis on particular developmental milestones.”1 Some families may not have a shared understanding and acceptance of the milestones that are used to assess infants and young children. Their perceptions of when young children develop certain skills and abilities may be based on cultural norms or family experience. “My brother didn’t speak until he was three years old and he turned out OK.” “Boys are always slower. Its nothing to worry about.” “Her grandmother babies her and does everything for her. She hasn’t had to do anything for herself.” This begs the question, who are credible voices within some cultural communities? 1 CDCLearn the Signs Act Early. Tips for talking with parents about developmental concerns. Retrieved on 12/12/19 from https://www.cdc.gov/ncbddd/actearly/pdf/CDC_LTSAE_TipsForTalkingWithParents_AppBadge‐508.pdf Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence CULTURAL EXPERIENCES INFLUENCE TRUST IN HEALTH PROFESSIONALS Even though the American Academy of Pediatrics endorses the LTSAE checklists, some families may or may not have trust in these tools. This may be based on their experiences (past and current) or those of extended family members and friends. Distrust may also be based on experiences of stereotyping, disrespect or discrimination (actual or perceived), marginalization, and the hoops low income people have to jump through to receive public benefits. Bias in assessment and testing is well‐documented in the literature. No screening instrument is culturally neutral. LTSAE tools are based on the unique cultural norms of U.S. and western societies. 1 CDCLearn the Signs Act Early. Tips for talking with parents about developmental concerns. Retrieved on 12/12/19 from https://www.cdc.gov/ncbddd/actearly/pdf/CDC_LTSAE_TipsForTalkingWithParents_AppBadge‐508.pdf Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence 16
12/16/2019 POLLING QUESTION Of the families seeking or receiving WIC services, how much do you know about culturally-defined beliefs of families about what it means for a child to have developmental delay or disability? □ not at all familiar □ slightly familiar □ somewhat familiar □ moderately familiar □ extremely familiar Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence WHAT DOES HAVING A DEVELOPMENTAL PROBLEM MEAN IN A CULTURAL CONTEXT? Cultural beliefs and experiences (historical and present day) influence what it means to be suspected of or have a developmental delay or disability. Factors include: Race Ethnicity particularly as it relates to speaking a language other than English or ASL. Socio‐economic status Immigration status Stigma Religion and spirituality Disparities in diagnoses Information dissemination including what and how information about developmental delay or disability and particularly autism is conveyed and understood within diverse communities. Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence 17
12/16/2019 Cultural Considerations in Communicating with Families about their Young Children’s Development 1. Your own self‐awareness. Consider asking the questions: Who is uncomfortable with the conversation you or the parent? Do you convey your own anxiousness to the family? Do you tend to make assumptions about the WIC population in your state? Are you aware of your own biases? 2. Put yourself in the parent’s/family’s place. How hard is it for any parent to hear that something may be wrong with their child? Consider the range of reactions that any parent may have from shock, denial, anger, sadness, and relief (because they knew instinctively something was not right). Also consider culturally what it means to have a developmental problem and the associated historical issues. 3. Biases go both ways. Because of past or present day experiences, some families may feel biased toward public benefits. Some providers of public benefits may have implicit biases about the populations they serve. These biases may manifest in screening encounters and compromise communication. 4. Building trust takes time. Engendering trust among families who have been labeled and marginalized in a long‐term effort. Concentrate on being your authentic self as a public health practitioner committed to serving all communities. Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence Cultural Considerations in Communicating with Families about their Young Children’s Development 5. Know the law and know your role when using an interpreter. Interpersonal dynamics change when you are using an interpreter Some families will require screening and all information to be in their language of origin. As a recipient of Federal funds, your agency is responsible for ensuring language access for individuals and families who have limited English proficiency. You should be familiar with your agency’s or program’s policy (Language Access and Implementation Plan) and how to work effectively with an interpreter (practices). 6. All communication is cross‐cultural. As humans, we are all cultural beings. When we interact with others it is a cross‐cultural experience even if those who are communicating are from the same race, ethnicity, gender, or culture. Since we are human, mistake making is a fact of life. Learn to accept that all of us make mistakes in cross‐cultural communication. Learn from mistakes and leave the guilt behind – avoid getting stuck. Families need, depend upon, and appreciate your best self. Slide Source:© 2019 ‐ Georgetown University National Center for Cultural Competence 18
12/16/2019 As a culturally competent _________ I am capable of interacting positively with people who do NOT look like, communicate like, move like, think like, believe like, act like, love like, live like, Source: Multnomah County Department of Health. ME!!! Slide Source:© 2019 Modification from Mike Magy, Massachusetts Department of Mental Georgetown University National Center for Cultural Competence Health, November 2005 . CONTACT US Georgetown University National Center for Cultural Competence http://nccc.georgetown.edu cultural@georgetown.edu The content of and this PowerPoint presentation are copyrighted and are protected by Georgetown University's copyright policies. Permission is granted to use this PowerPoint presentation in its entirety and/or individual slides for non‐ commercial purposes if: the material is not to be altered and • proper credit is given to the author(s) and to the National Center for Cultural Competence. Permission is required if the material is to be: • modified in any way • used in broad distribution. To request permission and for more information, contact cultural@georgetown.edu. 19
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