BREAKING BAD NEWS: GUIDELINES TOWARDS BEST PRACTICE - "TRUTH LIKE MEDICINE, CAN BE INTELLIGENTLY USED, RESPECTING ITS POTENTIAL TO HELP AND TO HARM"
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BREAKING BAD NEWS: GUIDELINES TOWARDS BEST PRACTICE “TRUTH LIKE MEDICINE, CAN BE INTELLIGENTLY USED, RESPECTING ITS POTENTIAL TO HELP AND TO HARM” Approved by Clinical Guidelines Steering Group – May 2003 To be reviewed by Leads – May 2006
Why use this guide? The purpose of this guide is to support all healthcare professionals involved in the process of Breaking Bad News and to improve practice. It contains a simple model for Breaking Bad News and a framework for auditing current practice. Why it is important Breaking Bad News is essential to maintain trusting relationships. Honesty allows open discussion regarding future management, reduces uncertainty, prevents inappropriate hope and facilitates appropriate adjustment. Who is the guide for? The guide has been designed to enable relevant healthcare professionals to communicate effectively and compassionately when delivering bad news. The model is transferable to all settings and can be used by all professionals across the Trust. It is also hoped that the guide will support managers, enabling them to empower staff to increase their skills and therefore improve practice. WHEN TO USE THESE GUIDELINES • To assist you in your practice of Breaking Bad News • To audit current practice • To assist you with reflection on your current practice • To generate ideas for improving your practice and encourage further education • To promote and support discussion between managers and clinical staff to improve practice
10 STEPS TO BREAKING BAD NEWS 1. Preparation Know all the facts before the meeting. Find out who the patient wants present, and ensure privacy and chairs to sit on. 2. What does the patient know? Ask for a narrative of events from the patient (eg “How did it all start?”) 3. Is more information wanted? Prepare the Ground Test the waters, but be aware that it can be very frightening to ask for more information (eg “Would you like me to explain a bit more?”) 4. Give a warning shot eg “I’m afraid it looks rather serious” – then allow a pause for the patient to respond. 5. Allow denial Denial is a defence mechanism and a way of coping. Allow the patient to control the amount of information they receive. 6. Explain (if requested) Increase the patient’s information to match the professional’s to the appropriate level. Details of this information may not be remembered, the way you offer the information will. 7. Listen to concerns Ask “What are your main concerns at the moment?” and then allow space for expression of feelings. 8. Encourage ventilation of feelings This is the KEY phase in terms of patient satisfaction with the interview, because it conveys empathy. 9. Summary and plan Summarise concerns, plan treatment, foster appropriate hope. 10. Offer availability Most patients need further explanation (the details will not have been remembered) and support (adjustment takes weeks or months) and may benefit greatly from a family meeting. KEY RULES - Peter Kaye 1996 1. Ask questions first. What is known? What is wanted? Should relatives be involved? 2. Elicit concerns and encourage ventilation of feelings.
Appendix 1 AUDIT TOOL Section 1 Communication process Section 2 The people involved Section 3 The environment
The Communication Process Appendix 2 Factors to Stage 1 Stage 2 Stage 3 consider Inappropriate practice Basic practice Best practice Positioning Physical barriers created by distance, Where physical barriers The professional breaking height etc. exist, steps are taken to the bad news positions eg giving patient bad news from the reduce the effect of these. themselves at same level as foot of the bed. person receiving the news. Non-verbals Eye contact is avoided. ‘Closed’ Limited or intense eye Appropriate use is made of defensive body language is used. contact; body language or eye contact, voice tone, body No helpful non-verbals offered. tone of voice is perceived as language and touch. aggressive or lacking in confidence/credibility, rather than knowledgeable and caring. Assessment There is no assessment of what the A partial assessment is made An assessment is made of patient understands and no of the patient’s the patient’s understanding assessment of what the patient wants understanding, needs and of situation, of what they to know and the timing of this. preferences regarding timing want to know and the of information given. preferred timing of information. Ownership of Information is withheld from person Information is given to Information given to person information to whom it relates, eg due to pressure another person before patient it relates to. Consistent from relatives OR news given to OR one or more parties get information given to all. other people is inconsistent in detail. different messages OR All treatment/care options options regarding future discussed. treatment/care are missed. Style/Manner Disrespectful manner, inappropriate Caring, respectful style. The professional breaking and insensitive remarks used. Unclear and inappropriate the bad news is gentle, Medical jargon used. language. respectful and uses clear Style patronising. language. Style is appropriate to patient’s age and understanding. Timing of News is withheld from the person to News is withheld from News is communicated to information whom it relates. person to whom it relates, the person to whom it relates until it is too late to tell the at the earliest appropriate patient, eg telling a patient opportunity. they have cancer when they are about to die. Supporting No relevant information given. Verbal information only is Verbal information is given information given and/or standard supported by written given information only. information that is tailored to the individual’s needs. Information is given regarding relevant professionals and supportive teams. Understanding/ News broken quickly. Patient’s News broken appropriately. Patient’s understanding is follow-up understanding not checked. No opportunity for checked and clarified if No follow-up offered. clarification or follow-up needed. Opportunity given appointment. Patient’s for questions. Follow-up understanding is scant. and support offered. Communication Either no communication with GP or GP and/or Primary Health GP and/or Primary Health events have superseded it. Care Team informed. Care Team informed No written record of consultation. Information given regarding promptly (within 2 working facts. Partial or inconsistent days). Given full and clear information is recorded. information regarding patient’s diagnosis, prognosis, understanding and treatment plan. Written record is full, accurate and includes words and phrases used with the patient.
Appendix 3 The People Involved Factors to Stage 1 Stage 2 Stage 3 consider Inappropriate practice Basic practice Best practice Relatives/friends Relatives/friends present whom The patient is given no The patient receiving the present patient does not want present. opportunity to have a bad news is given the Presence of inappropriate people, relative/friend present. opportunity to bring along eg maintenance staff. another person of their choice. Continuity of There is a different professional Well briefed team members A named professional, who people involved involved on each occasion. (who have been present is the same person on each Poorly briefed team members are previously) are involved patient visit, is responsible involved with follow-up. with follow-up. for follow-up. Responsibility No clear responsibility for breaking There is clear responsibility The Consultant is seen as for breaking bad bad news exists, resulting in for who will break the bad lead person, but does not news (within confusion. news. Communication necessarily have to be hospital) with Primary Health Care person who delivers the Team poor. bad news. There is clear consensus regarding what patient will be told. When Primary Health Care Team is involved, responsibility is clear. Training Professionals are assumed to possess Minimal training but no Professionals have skills which are, in fact, non-existent. supervised practice. undergone specific training and have had adequate practice, supervised by an expert. Person giving The professional giving the bad The professional giving the The professional giving the the bad news news is not known to the patient. bad news is not known to bad news is known to the No introduction made. There is the patient, but somebody patient OR new nobody available whom the patient who is known is either professional makes knows. present or available. appropriate introduction. Professional has knowledge and skills to break bad news and to answer questions. The Environment Factors to Stage 1 Stage 2 Stage 3 consider Inappropriate practice Basic practice Best practice Environment No designated area available. Area available – but this Designated non-clinical Inappropriate public setting used. has dual use, eg Ward area available. office. Number of uninvolved people likely to be present. Privacy No privacy given. News given in a Privacy is compromised by No disturbances. public setting eg hospital corridor. environment eg curtains Soundproof room available used in busy, noisy ward. with appropriate door sign. Interruptions by other staff Time allowed for patient eg office. and relatives to use private area.
Appendix 4 Suggested Reading Breaking Bad News Peter Kaye, 1996, EPL Publications How to Break Bad News Rob Buckman, 1992, Papermac Talking to Cancer Patients Faulkner A & Maguire P, 1994, Oxford Medical Publications Education Breaking Bad News Training Calderdale & Huddersfield NHS Trust Telephone: Bev Foden Huddersfield Royal Infirmary 01484 347142 Margaret Hipwood Calderdale Royal Hospital 01422 224756 For further discussion regarding use of guidelines and audit contact: Huddersfield Palliative Care Team Calderdale & Huddersfield NHS Trust Huddersfield Royal Infirmary Tel: 01484 342965 References Kaye, P Breaking Bad News (1996) EPL Publications Breaking Bad News Guidelines Lincoln & Louth NHS Trust
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