Accessing Care from Anywhere - Arthritis Society

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Accessing Care from Anywhere - Arthritis Society
Accessing Care from Anywhere
Dr. Brent Ohata, Rheumatologist
Clinical Assistant Professor, UBC

Jocelyne Murdoch
Occupational Therapist, Advanced Clinician Practitioner in Arthritis Care

Moderated by Dr Siân Bevan
Chief Science Officer, Arthritis Society

April 22, 2021

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Accessing Care from Anywhere - Arthritis Society
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                                                               question                      2
Accessing Care from Anywhere - Arthritis Society
Overview

         [1]                  [2]                   [3]
   Obtaining an       Making the most of   The future of arthritis
arthritis diagnosis     your medical               care
                        appointments

                                                                 3
Accessing Care from Anywhere - Arthritis Society
With thanks to our partners
        Diamond Sponsor

          Gold Sponsors

         Bronze Sponsors

         Friend Sponsor

                              4
Accessing Care from Anywhere - Arthritis Society
I suspect I have arthritis but I’m having challenges with
         getting diagnosed. What should I do?

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Accessing Care from Anywhere - Arthritis Society
Challenges Obtaining Arthritis Diagnosis

Difficult Diagnosis                   Barriers to Appropriate Care

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Accessing Care from Anywhere - Arthritis Society
Arthritis = Joint Pain

    Osteoarthritis                                        Viral Arthritis

Reactive Arthritis                                   Rheumatoid Arthritis
                                                              Lupus
Ankylosing Spondylitis

       Gout                                            Psoriatic Arthritis
     Sarcoidosis                                         Hemochromatosis

 Sjögren syndrome                                 Calcium Pyrophosphate Disease

                                                                             7
Accessing Care from Anywhere - Arthritis Society
Physician Supply in Canada

                    Canadian Institute for Health Information. Physicians in
                    Canada, 2019. Ottawa, ON: CIHI; 2020.                      8
Accessing Care from Anywhere - Arthritis Society
Distribution of Rheumatologists in Canada

                            Optimal
                            Rheumatologist to
                            Population Ratio:
                            1:75,000

                            Most
                            Rheumatologists in
                            Urban South
                            Barber CEH et al. Stand up and be counted: measuring and mapping
                            the rheumatology workforce in Canada. J Rheumatol 2017;44:248–57
                                                                                    9
Accessing Care from Anywhere - Arthritis Society
Social Determinants of Health
    Social, economic, cultural and political inequities that
      impact the health of individuals and communities

Income and Social Status                   Healthy Child Development
Social Support Networks                    Biology and Genetic
Education and Literacy                     Endowment
Employment/Working                         Health Services
Conditions                                 Gender
Social Environments                        Culture
Physical Environments                      Racism
Personal Health Practices and              Social Exclusion
Coping Skills

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                                                  Courtesy of C. Barnabe
Canadian Rheumatology Access: Neither Equal Nor Equitable

                                    Interaction Institute for Social Change. Artist: Angus Maguire.
                                    https://interactioninstitute.org/illustrating-equality-vs-equity/   11
How can I prepare for my virtual rheumatology
               appointments?

                                                12
How to prepare for a virtual visit

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Tips and tricks for virtual visits

   Test       Turn off        Choose         Wear       Sit away      Wear          Have            Email
Test your    Turn off all    Choose a     Wear a       Sit away     Wear a      Have these       Email photos
internet,    devices that                 headset or   from                     available: a     of rash,
                             quiet and    earphones
                                                                    tank top
device and   use wifi,                                 windows                  helper,      m   swollen
             other than      private      with a                    and loose   edication        joints or nail
ability to                   location     microphone   to ensure    pants to
             the device                                                         list, tape       changes that
connect to                   and          to improve   even         allow a
             you are                                                            measure,         are hard to
the video    using.                       the audio    lighting                 pad and          see, or
platform
                             position     quality
                                                                    good
                             your                                   physical    pen. Keep        documents
ahead of     On your                                   Sit an
             device, close                                                      the original     that you
time                         device so                 arm's        exam        virtual visit    want to
             all apps, and   that it is                length
             ensure your                                                        email handy      share ahead
             device is       stable.                   away from                in case you      of time
             fully                                     the device               get dis-
             charged.                                  and place                connected.
                                                       it at eye
                                                       height.
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Preparing for in-person appointments
Before your appointment                                                                                            After your appointment
                                                     During your appointment
  Prepare yourself                                                                                                   Take notes on your appointment
                                                       Give the full story
  Track your symptoms                                                                                                Note any follow ups, referrals, and tests
                                                       Bring a trusted friend or family member
  Take advantage of available resources                                                                              Utilize self-management strategies when possible
  Ask if travel assistance funding is available in     Don’t be afraid to speak up, and make sure you understand
  your area                                            Partner with your treatment team                              Don’t be afraid to follow up
  Plan your appointment day carefully allowing         Ask what is the best way to communicate between visits
  for travel and rest

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I feel like I’m pulled in many different directions when it comes to
    my arthritis care, and I don’t know how to navigate it all. What
                               should I do?

Learning to advocate for yourself and your needs can be one of the most powerful
things you can do

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What can I do to manage my arthritis at home, while
                 waiting for care?

                                                      18
We will get through this
       together
Are there things I can do to self-manage my arthritis?

                   Practice good
                     self-care

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Are there things that I can do online to help manage my
                         arthritis?

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Register to receive the Arthritis Society’s
          flourish e-newsletter

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Where can I find reliable information?

                                         23
What’s being done across the country to improve
                arthritis care?

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Current Rheumatology Model of Care
           You

              Rheumatologists

                                     25
Current Rheumatology Model of Care

           You

             Bears,
             Wolves,
             Snow!

              Rheumatologists

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Telemedicine = Virtual Health

                     Patient alone          Scheduled
                                            appt.
                     Patient +
Arthritis            family
doctor                                      Or on-
                     Patient +              demand,
                     RN/PT/OT               real-time
                                            service
                     Patient + GP

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BC RheumVision

                 Improving access to
                 care for indigenous,
                 rural and inner-city
                 patients
                 Instant rheumatology
                 access at the click of a
                 button

                 Yukon rheumatology
                 initiative coming soon!

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How are allied health providers being used across the
         country to improve arthritis care?

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ACPAC

ACPAC= Advanced Clinician
Practitioner in Arthritis Care
10-month post-licensure
interprofessional certificate
program for physiotherapists,
occupational therapists, nurses and
chiropractors
100 graduates across Canada
Designed to increase access to
arthritis care and promote an
interprofessional approach to care

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Ideal MOC in Northern Ontario for Rheumatology?

                        Sudbury

     Elliot                                  Espanola
     Lake

                         HUB
                       SITE with
                         Local
                        ACPAC
                       Therapist
                                              Sturgeon
  Mindemoya                                     Falls

      Hub-Spoke Virtual Care model with an ACPAC-
                    Rheumatologist

Recruited 4 new rheumatologists to help in Sudbury starting   Courtesy of Sahil Koppekar, University of Toronto   31
                       July 2021
Comprehensive model for Timmins, Ontario

       December                      January

    Traditional in-person clinics in Timmins

    Half-day OTN ‘Direct-to-Home’ Virtual Consults     Annual Capacity of this System
    E-consults from GPs and NPs                         (2 rheumatologists, 1 ACPAC)

    Virtual Case Conference and Educational Rounds    ~300-350 patients in person clinics
                                                         144 patients in virtual clinics
Drs. Koppikar and Soowamber                                30-40 Case discussions
                                                             Variable E-Consults            32
ACPAC – Lynn Richards
Pediatric Rheumatology in Ontario – Bensen Models of Care Project

                                                                  Improve efficiency by partnering
Pediatrician (local)                                              with AHP (ACPAC) colleagues
                                                                  Evaluate key drivers of optimal care:
                                                                     • No show rates
                       ACPAC and                                     • Referral volumes from under resourced
                       Patient                                         areas
                                                                     • Best practices metrics
                       (remote)                                      • Disease outcome measures
                                                                  Increase knowledge and skills of
                                                                  ACPAC and PCPs via pediatric-
                                                                  focused education at distant sites
                              Telemedicine Link                   Collect evidence that sustained
                                             Rheum                public funding can lead to cost
                                                                  savings by supporting high quality
                                             (tertiary site)      care delivered locally

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                                                               Courtesy of Deborah Levy, University of Toronto
Any final thoughts or recommendations?

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How can I help make arthritis a priority?

                        Ask and advocate for similar endeavours in your
What YOU                province

 can do                 Advocate for ongoing telemedicine support
                        with your local government

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Questions

            36
Tell us what you think…

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May is Leave a Legacy Month

Help us create a future free from arthritis.
Much of our funding comes from people who leave a gift in their Will. Legacy gifts help
ensure the continuation of our education, programs and services to support Canadians
living with arthritis.

There’s never been a better time to learn more about planning your legacy.

                                                 For more info, visit
                                                 www.arthritis.ca/plannedgiving

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Upcoming Events

 May           Arthritis Talks:
               Eat Smart for Arthritis
 19            Lalitha Taylor, Registered Dietitian, Alberta

6 p.m. ET

               • Why is having a balanced diet so important for people living with arthritis?
Learn about:   • Are there any recommended diets to follow?
               • What small changes can people make to make a difference to their overall
                 arthritis management?

Register at:   Visit arthritis.ca/arthritistalks or click the link in your email inbox
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