Vision problems after stroke - Stroke Association
←
→
Page content transcription
If your browser does not render page correctly, please read the page content below
Vision problems after stroke Stroke Helpline: 0303 3033 100 or email: helpline@stroke.org.uk About two thirds of people have vision problems after a stroke. This guide looks at the different ways your vision can be affected, and how you can get treatment and support. Vision loss after a stroke can affect Assessing vision your daily life in many ways. You You should have your vision assessed could find it more difficult do things before leaving hospital, and any sight like reading, shopping or watching problems should be treated. When you television. You may need support for have an assessment, the healthcare returning to work, such as help with team should ensure you have your travel or new ways of doing your job. glasses or other aids you may use with you. If you notice new vision Sight loss is linked to an increased problems after you go home, tell risk of emotional problems like your GP, or local optician or specialist anxiety and depression, and this stroke nurse. They can refer you to the can affect your ability to take part in hospital eye clinic for an assessment. rehabilitation. Sometimes the practical and emotional difficulties that sight If you had sight problems before your loss causes are not apparent in stroke, it is important to carry on with hospital, and you may only become any treatment like eye drops, and aware of them when you return home. keep having regular sight checks. This includes conditions like cataracts, age-related macular degeneration, diabetic retinopathy or glaucoma. Your vision, and the effects of a stroke, can change over time, so it’s important to get advice if you notice any changes in your sight. For more information visit stroke.org.uk 1
Vision problems after stroke Eye tests for people with Reduced central vision and communication or cognitive other visual field loss problems Depending on someone’s Your visual field is everything you can communication difficulties, some see, including straight ahead (central opticians are able to conduct eye tests vision) and out to the side (peripheral using pictures, symbols or numbers. vision). If this isn’t possible, there is a tool called a retinoscope that uses light Visual field loss means that you are reflections to determine someone’s unable to see a section of your field of prescription, without the need for vision, usually because the vision areas language. See ‘Other sources of help of your brain have been damaged by and information’ for organisations that the stroke. The eyes themselves work can help you find an eye professional normally, but the brain can’t process with experience in this area. the images from one area of vision. Where the visual field loss happens depends on where the stroke occurred How can a stroke affect in your brain. It almost always affects my vision? the same side of the visual field in both eyes (this is called ‘homonymous’ Like the other effects of stroke, vision visual field loss). How much visual field problems can improve over time, is lost varies between people. The as the brain recovers. How you are most common type is homonymous affected depends on exactly where the hemianopia, which means losing the stroke occurred in your brain. There left or right half of the visual field of are four main areas of visual problem, both eyes. A less common type is and you may have one or more: scotoma, when there is a small patch of vision loss, often near the centre of • Reduced central vision and other vision. visual field loss. • Eye movement problems. Often people think that the vision in • Visual processing problems. one eye has been affected, but it is • Other sight problems. usually one side of the visual field of both eyes. If just one eye is affected, often with combined central and peripheral vision loss, it may be due to damage to the blood supply to the eye itself (see ‘Retinal vessel occlusion’ at the end of this section). 2 Call the Stroke Helpline on 0303 3033 100
Vision problems after stroke How do I know if I have visual Visual scanning training field loss? This encourages you to look to your Some people with visual field loss may left and right sides in a systematic not be aware of the missing area of way. It is used to help you be more vision. People with hemianopia often aware of your visual field loss and have difficulty reading, and may bump reminds you to look into your blind into things on the affected side. You side. Eyesearch and Readright are might only notice the field loss if you free online therapies designed to look in a mirror and can only see one improve the speed and accuracy of side of your face. When reading, it eye scanning and reading (see ‘Other can be difficult to locate the start of sources of help and information’ for a line if you have left-sided field loss. further details). Other options include If you have right-sided field loss, it’s using line guides when reading, having harder to see ahead along the line of good lighting, and using edge markers text. It can be difficult to get around, on books and newspapers. particularly in unfamiliar or crowded places. Widening your field of view with optical aids Will visual field loss recover? This involves using a plastic prism on Visual field loss can improve, usually your glasses. The prism is worn on within the first month after a stroke. either one or both lenses). It creates Around 15% of people recover an image of part of the side of visual completely and 30% have a partial field loss (your blind side) and reflects recovery. For about half, the field it over to your good side. This acts as a loss will be permanent but there are prompt or cue for you to look towards techniques to help you make the most your blind side or may help you to of your remaining vision. notice things on that side. Techniques for better vision Vision restorative treatment An eye specialist can assess your eye There are some treatments available problems and advise you on what will privately that aim to restore part of work best for you. The missing area the lost area of visual field, using of vision can’t be restored, but you computer-based therapy. These are can get help to make the most of your not available through the NHS, but vision. The technique that seems to if you wish to try this treatment it’s help most is visual scanning training. a good idea to get advice from your Using special lenses and optical aids stroke nurse or eye specialist first. may help some people. For more information visit stroke.org.uk 3
Vision problems after stroke Making the most of your sight They can improve over time, and may Ask your orthoptist or optometrist eventually stop. They can return or (optician) about low vision aids such as get worse if your sight gets worse or magnifiers. An eye health specialist or if you are unwell due to an infection. GP can give you a referral to the local Hallucinations can be caused by other low vision service, where you can get conditions affecting the brain, so if low vision aids and advice. you start having them tell your GP, optician or specialist stroke nurse. You may be given magnifiers for There is no medication or treatment use with near objects and reading, for visual hallucinations, but you or telescopes for distance. You can can find organisations that support try anti-glare glasses or overlays, to people with hallucinations in ‘Other reduce excessive glare. You can try sources of information’ at the end of using brighter lighting, and using this guide. RNIB publishes a guide to colours to make household objects Charles Bonnet Syndrome available at easier to find. rnib.org.uk and Esme’s Umbrella is a campaign group raising awareness of You might need someone to help the condition. you get around in the early days and weeks after the stroke. With Retinal vessel occlusion support, and by learning techniques Retinal vessel occlusion is due to a like visual scanning, people can blockage in one of the blood vessels regain confidence and become more to the retina (retinal arteries). It is independent. also called an ‘eye stroke’ but unlike a stroke, it does not affect the brain. Visual hallucinations Visual hallucinations happen when the The retina is a light-sensitive area of brain generates images in the missing nerves at the back of your eye. If the area of vision. The images appear in blood supply is blocked, it can cause your blind area. You might see simple sudden loss of sight. Some people patterns, or more complex images of have brief periods of sight loss before people and places. For some people, it having permanent vision loss. is the only time they notice the area of vision loss. It is also known as Charles It’s possible to treat a blockage in Bonnet syndrome. a retinal artery if you are seen at a hospital within four hours. However, Visual hallucinations are caused by the retina is very sensitive to loss sight loss, and they are not a symptom of blood supply, and it may not be of a mental health problem. They often possible to avoid permanent sight start after a sudden loss of vision. loss. 4 Call the Stroke Helpline on 0303 3033 100
Vision problems after stroke If you notice any sudden loss of vision, Inability to move both eyes together you should visit your local hospital If the nerve control to your eye emergency department straight away. muscles is affected, one of your eyes may not move correctly. This With a blockage in a retinal vein may cause you to have blurred (vessel carrying blood away from the vision or double vision (diplopia). retina), your sight can become dim or This is sometimes called a squint or blurry over a few days. strabismus. Retinal vessel occlusion shares many Eyes move constantly, or wobble of the risk factors for stroke, so you This can make it hard to focus on will be given tests and checks for objects, or cause double vision. This conditions like high blood pressure, condition is called nystagmus. diabetes and high cholesterol. You should be advised on taking steps to Impaired depth perception and improve your health such as stopping difficulty locating objects smoking, maintaining a healthy weight For example, when making a cup of and eating a balanced diet. tea, you may misjudge the position of the cup, and pour water over its edge rather than into it. Eye movement problems How are these problems treated? A stroke can lead to a variety of There are a number of treatment problems with the fine nerve control options. Exercises can help if you have that is needed to move your eyes. We difficulty moving your eyes to look at have listed the main ones below: objects held close to your face. Prisms can improve double vision or allow Impaired eye movements you to see things to one side if you are These may affect your eyes’ ability unable to look in that direction. Like to move from looking at one object glasses, prisms are prescribed for each to another or to follow a moving individual after a sight test. object, like someone walking past. These problems can make reading A patch over one eye can also be used more difficult and can also affect your to avoid double vision. This makes it general mobility. For example if you easier to see, but using only use one are unable to look around quickly, eye (monocular vision) can also cause walking outside is likely to be more some difficulty. You can work with challenging. an orthoptist to choose which option works best for you. For more information visit stroke.org.uk 5
Vision problems after stroke Visual processing problems How are visual processing problems treated? Some vision problems after stroke Many people recover well from are due to the brain having difficulty visual neglect. If you have neglect processing the information received you might be able to learn scanning from the eyes and other senses. This and awareness strategies. If you have can happen in many ways, for example problems such as difficulty recognising difficulty recognising objects or people colours, faces, objects, complex by sight, or recognising colours. It scenes or text, you may be taught to can cause difficulty when you try to use your other senses (for example reach for objects or make it harder to touch or hearing) to process the see more than one object at the same information in a different way and to time. help you to improve your awareness of the affected side. Visual neglect The commonest type of visual processing problem is visual neglect, Other sight problems which means that you are unaware of your surroundings to one side. You Dry eyes may not realise that you are missing If you have weakness in your facial things around you. For example, you muscles and eyelid muscles, you may may be unaware of objects and people have difficulty closing the eyelids fully, on your affected side, and may ignore or your eyes could stay open when you people or bump into things without are asleep. This can lead to a dry eye realising they are there. Visual neglect and irritation. It is important that this is can reduce your ability to look, listen treated early with lubrication drops or or make movements towards part of ointment to prevent more serious eye your environment. complications such as ulcers. Taping the lid closed at night is also very Neglect is more common in people important if the eye does not always who have had a stroke on the right close fully. side of the brain, which affects their awareness of the left side. The person Light sensitivity is not aware that they are missing Light sensitivity is common after part of their vision. When neglect is a stroke. You might be bothered severe it may be impossible to draw by bright light, or glare from light someone’s attention round to their coloured surfaces. Some people find affected side. Visual field loss and that a yellow or orange tinted overlay neglect can occur together, which can helps reduce glare. make it harder to use strategies like visual scanning or patches. 6 Call the Stroke Helpline on 0303 3033 100
Vision problems after stroke Eye health professionals You might have a full vision assessment in an outpatient clinic. You • An orthoptist can assess and treat a may be referred to a low vision clinic range of eye problems, particularly where you can have an assessment eye movements. and advice on using magnifiers or • An ophthalmologist is a medical other visual aids. You can ask your GP doctor who specialises in or local optician for a referral. diagnosing and treating diseases of the eye. Only a consultant If you have sight problems, there is a ophthalmologist can certify people wide range of specialist equipment partially as sight impaired. and household items available to help. • An optometrist (optician) tests These include clocks and watches with sight, prescribes and dispenses large numbers, big button telephones glasses or contact lenses and can and large print books and calendars. screen you for eye disease Contact the Royal National Institute • Support workers and eye clinic of Blind People (RNIB) for more liaison officers (ECLOs) can give information (see ‘Other sources of additional support. They can provide help and information’ at the end of you and your family or carer with this guide). information on practical aids and emotional support. ECLOs provide a bridge between the eye care Driving professionals in hospital and other organisations that can provide you After a stroke or TIA, by law you with support at home. cannot drive for one month. Whether • Visual rehabilitation officers help you can return to driving depends on you make use of your remaining the type of stroke you had and the vision and other skills to increase vehicle you drive. your independence. If your vision was affected by the Accessing an eye specialist stroke, you must get a proper visual After a stroke, you should be referred assessment before attempting to to an orthoptist or ophthalmologist return to driving, even if you think your specialising in stroke and brain injury. vision has recovered. This can take They can assess you and arrange place in a hospital eye department. treatment for poor vision, double You should be given clear information vision or visual field loss. Ideally this about your condition and offered assessment should happen before treatment if it is appropriate, which you leave hospital, as visual problems may help improve your vision to the can affect daily life and rehabilitation level needed for driving. of other problems after stroke. For more information visit stroke.org.uk 7
Vision problems after stroke The DVLA (DVA in Northern Ireland) A consultant ophthalmologist can state that you cannot drive with: complete the request to issue you with a certificate and referral for support • Double vision. services. In England and Wales this • Blurred vision. certificate is called the Certificate of • Visual field loss, particularly central Vision Impairment (CVI). In Scotland vision. this is called the CVI (Scotland) form, and in Northern Ireland it is called For information and advice, read our A655. guide ‘Driving after stroke’ or call our Helpline. To register your sight loss, contact your local social servicesor hospital eye clinic, and they will add you to the Employment and sight loss register. RNIB has more information on the benefits of registering your If you are having problems with your sight loss and how to do it (see ‘Other work because of your vision, you can sources of help and information’). ask your employer to make reasonable adjustments to help you. You can get information on your rights at work and Tips for coping with vision how to return to employment after a problems stroke in our guide ‘A complete guide to work and stroke’, and The Royal • If you have double vision, try using National Institute of Blind People a patch when reading or watching (RNIB) has advice and resources on television. sight loss and work. • If you have lost your vision to one side, it is important to move your eyes and head towards the weaker Should I register my sight loss? side, for example on entering a room. The more you scan and move If you are assessed as being sighted your eyes and head to that side, impaired (partially sighted) or the quicker you will detect objects severely sight impaired (blind), you on that side and reduce your risk of can choose to register your sight bumping into objects or tripping. loss. This can make it easier to get • When reading, use rulers and practical help from social services, as markers to highlight the beginning well as entitling you to concessions and end of sentences and to help such as council tax reduction, the you keep your position along a line Disabled Person’s Railcard and local of text. travel schemes. It can also help when claiming certain state benefits. 8 Call the Stroke Helpline on 0303 3033 100
Vision problems after stroke • Make sure your lighting is good and My Stroke Guide where possible, have it positioned to The Stroke Association’s online your side and not behind you, as this tool My Stroke Guide gives you free causes shadows. access to trusted advice, information • Reduce the number of objects and support 24/7. My Stroke Guide that are on your surfaces at home, connects you to our online community, particularly in the kitchen. If there to find out how others manage their is too much clutter, it can be more recovery. difficult to pick out individual items. • Vision problems are not always Log on to mystrokeguide.com today obvious for other people to see. You might find it helpful to explain your sight problems to friends, family and Other sources of help and colleagues to help them understand information the support you need. • If you lack confidence in going out Help with finding an optician for and about, a visual rehabilitation people with communication or officer can help you to learn cognitive difficulties strategies for safe travel on foot and using public transport. British Association of Behavioural Optometrists (BABO) Website: babo.co.uk/find-a- Where to get help and behavioural-optometrist/ information Seeability – Find an Optometrist From the Stroke Association Website: seeability.org/find-an- optometrist Helpline Our Helpline offers information and Visioncall support for anyone affected by stroke, Website: vision-call.co.uk including family, friends and carers. Free online therapy for vision Call us on 0303 3033 100, from a problems textphone 18001 0303 3033 100 or email helpline@stroke.org.uk. Eye Search Website: eyesearch.ucl.ac.uk Read our publications A website from University College Get more information about stroke London Institute of Neurology. online at stroke.org.uk, or call the Provides free online therapy for people Helpline to ask for printed copies of with visual search problems due to our guides. hemianopia and spatial neglect. For more information visit stroke.org.uk 9
Vision problems after stroke Read Right Audio books Website: readright.ucl.ac.uk Free online practice-based therapy Calibre to improve reading speeds in people Website: calibreaudio.org.uk with hemianopia from the University Tel: 01296 432 339 College London Institute of Neurology. Free postal lending library of unabridged books. Membership is Organisations offering information, open to children and adults who are support and equipment blind or partially sighted, or have dyslexia. Esme’s Umbrella Website: charlesbonnetsyndrome.uk Listening Books Helpline: 020 7391 3299 Website: listening-books.org.uk Support and information for people Tel: 020 7407 9417 with visual hallucinations due to sight Postal audio library service with a loss (Charles Bonnet syndrome). small annual membership fee. Nystagmus Network Playback Website: nystagmusnet.org Website: play-back.com Information and support for people Tel: 0141 776 3395 with nystagmus. Provides a free service recording text to audio for people with sight loss. Partially Sighted Society Also has an audio publication library. Website: partsight.org.uk Tel: 01302 965 195 Professional bodies Resources, products and support for people with sight loss. British and Irish Orthoptic Society Website: orthoptics.org.uk Royal National Institute of Blind Tel: 020 3853 9797 People (RNIB) Provides information on the eye Website: rnib.org.uk problems that occur following brain Helpline: 0303 123 9999 injury, including stroke. Search the site Information about all aspects of sight for ‘Stroke and neuro rehabilitation’ loss and an emotional support service. for useful resources. Visionary College of Optometrists Website: visionary.org.uk Website: college-optometrists.org Helpline: 020 8090 9264 Tel: 020 7839 6000 Email: visionary@visionary.org.uk Professional body for optometrists in UK network of local charities for blind the UK. and partially sighted people. 10 Call the Stroke Helpline on 0303 3033 100
Vision problems after stroke Royal College of Ophthalmologists Optometrist (optician): a specialist Website: rcophth.ac.uk who tests sight, prescribes glasses and Tel: 020 3770 5327 contact lenses and screens people for Professional body for eye doctors. eye disease. Offers a range of information on eye conditions. Orthoptist: an eye care specialist in eye movement problems. Driving licensing agencies UK Photophobia: abnormally high Driver and Vehicle Licensing Agency sensitivity to light. (DVLA) England, Scotland, Wales Website: dvla.gov.uk Prism: a plastic membrane which is applied to a person’s glasses and Driver and Vehicle Agency (DVA) which moves the position of objects Northern Ireland when they are seen through the prism. Website: nidirect.gov.uk/motoring Ptosis: drooping of the upper eyelid. Glossary Retinal vessel occlusion: a blockage in a blood vessel to the eye. Depth perception: the ability to see the world in three dimensions. Scotoma: area of visual field loss. Diplopia: seeing two images of a Strabismus: the two eyes do not line single object (double vision). up together (squint). Hemianopia: loss of vision on Visual field: the whole of your vision. one side. Visual neglect/inattention: the Homonymous hemianopia: losing inability to notice things to one side. half of the field of vision in both eyes. Visual perception: how the images Monocular vision: vision in only received by the brain are processed. one eye. Visual scanning: training which Nystagmus: a condition where the encourages you to look in a systematic eyes move constantly, or ‘wobble’. way to the right and left sides. Ophthalmologist: a medical doctor specialising in eye conditions. For more information visit stroke.org.uk 11
Vision problems after stroke About our information We want to provide the best information for people affected by stroke. That’s why we ask stroke survivors and their families, as well as medical experts, to help us put our publications together. How did we do? To tell us what you think of this guide, or to request a list of the sources we used to create it, email us at feedback@stroke.org.uk. Accessible formats Visit our website if you need this information in audio, large print or braille. Always get individual advice This guide contains general information about stroke. But if you have a problem, you should get individual advice from a professional such as a GP or pharmacist. Our Helpline can also help you find support. We work very hard to give you the latest facts, but some things change. We don’t control the information provided by other organisations or websites. © Stroke Association 2020 Version 3. Published July 2020 To be reviewed: September 2022 Item code: A01F37 Every five minutes, stroke destroys lives. We need your support to help rebuild them. Donate or find out more at stroke.org.uk. JN 2021-089.7 The Stroke Association is registered as a charity in England and Wales (No 211015) and in Scotland (SC037789). Also registered in the Isle of Man (No. 945) and Jersey (No. 221), and operating as a charity in Northern Ireland. 12 Call the Stroke Helpline on 0303 3033 100
You can also read