The role of communities and the use of technology in mitigating loneliness during the Coronavirus pandemic - www.wcpp.org.uk
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The role of communities and the use of technology in mitigating loneliness during the Coronavirus pandemic www.wcpp.org.uk
Our Mission The Wales Centre for Public Policy helps to improve policy making and public services by supporting ministers and public service leaders to access and apply rigorous independent evidence about what works. It works in partnership with leading researchers and policy experts to synthesise and mobilise existing evidence and identify gaps where there is a need to generate new knowledge. The Centre is independent of government but works closely with policy makers and practitioners to develop fresh thinking about how to address strategic challenges in health and social care, education, housing, the economy and other devolved responsibilities. It: • Supports Welsh Government Ministers to identify, access and use authoritative evidence and independent expertise that can help inform and improve policy; • Works with public services to access, generate, evaluate and apply evidence about what works in addressing key economic and societal challenges; and • Draws on its work with Ministers and public services, to advance understanding of how evidence can inform and improve policy making and public services and contribute to theories of policy making and implementation. Through secondments, PhD placements and its Research Apprenticeship programme, the Centre also helps to build capacity among researchers to engage in policy relevant research which has impact. For further information please visit our website at www.wcpp.org.uk Core Funders Cardiff University was founded in 1883. Located in a thriving capital city, Cardiff is an ambitious and innovative university, which is intent on building strong international relationships while demonstrating its commitment to Wales. Economic and Social Research Council (ESRC) is part of UK Research and Innovation, a new organisation that brings together the UK’s seven research councils, Innovate UK and Research England to maximise the contribution of each council and create the best environment for research and innovation to flourish. Welsh Government is the devolved government of Wales, responsible for key areas of public life, including health, education, local government, and the environment. • 2 •
Contents Summary 4 Introduction 6 Loneliness and the role of place 8 Summary of research methods 12 Findings 18 Overview of the community action reported on 18 1. Steppingstones and purpose: addressing loneliness in communities 24 Summary and recommendations 31 2. Blended spaces: using online and offline technology to address loneliness 32 Summary and recommendations 39 3. Networked action: enabling, sustaining and enhancing community activity 40 Summary and recommendations 51 Recommendations 53 Conclusion 56 Appendix 1: Research methods 58 References 64 Report Authors Rosie Havers – Research Assistant, Wales Centre for Public Policy Dr Hannah Durrant – Senior Research Fellow, Wales Centre for Public Policy Laura Bennett – Research Associate, Wales Centre for Public Policy • 3 •
Summary » Tackling loneliness was a priority for » In using technology to help Welsh Government and public services address loneliness, findings before the Coronavirus pandemic. emphasised the importance of Much work focused on the role of blended approaches, where online communities and their physical and interaction supported or enabled offline digital infrastructures in building connection and activities. Fundamental and maintaining social connections. to this, were inclusive digital and The pandemic both increased the physical environments, shaped and importance of exploring these, while maintained by participatory design providing new opportunities to do so. processes. » This report explores the experience of » For enabling, sustaining and 71 members and coordinators of over enhancing community action, the 50 community groups across Wales research identified the importance during the pandemic. It identifies key of: collaboration based on ‘strength lessons for: addressing loneliness; the in difference’; place-based skills, use of online and offline technologies; networks and governance roles; and enabling, sustaining and and funding and support structures enhancing community action. accessible to informal and small-scale community groups. » Participants came from communities within every Welsh local authority area. » Findings highlight the presence and Using National Survey for Wales data, importance of the wider networks, we ensured that these areas reflected infrastructures and governance national variation in socioeconomic structures underpinning community and geographic characteristics. action and connection. These have The sample also focused on groups been both developed and decimated identified to be at higher risk during the pandemic. Supporting, of loneliness. sustaining, and strengthening these will be key to promoting community » Interviews adopted a storytelling connection through the pandemic approach, allowing participants to recovery and beyond. share their experience and expertise in their own words, focusing on aspects of » Recommendations are provided based community action that they considered on ‘what worked well’ for: addressing important. loneliness in communities; blended approaches to addressing loneliness » The research found that, for both with technology; collaborating with building community networks and community groups; and optimising addressing loneliness directly, having community resources. a sense of purpose was paramount. This was enabled by meaningful ‘things to do’, and a broad spectrum of opportunities and means to engage with them (beyond ‘joining a club’). • 4 •
Introduction Tackling loneliness was a priority for The purpose of the research undertaken Welsh Government and public services by the Wales Centre for Public Policy across Wales before the Coronavirus (WCPP) was to identify key learning on pandemic and has become a greater the role of communities and the use of concern since. In February 2020, Welsh technology in addressing loneliness, Government released their loneliness based on the experience of members strategy ‘Connected Communities’, and coordinators of community groups which raised the need for services and across Wales during the pandemic. infrastructures that support and enable The research focused on: the effect community connection. This reflected that community group activity had an increased focus on the role of local on experiences of loneliness; the role places, their communities and their that technology played in facilitating physical and digital infrastructures in group functions and reaching those the research on loneliness mitigation. most at risk of loneliness; and how Lockdowns and social distancing such community action could be policies imposed in response to the sustained, enabled and enhanced Coronavirus pandemic have intensified into recovery. This research forms part the impact of our physical and social of a wider WCPP programme of work surroundings; contributed to a flourishing on loneliness in Wales, including our of community connections in some recent report, Designing technology- places; and increased the importance enabled services to tackle loneliness of digital connections for some people. and podcasts, Tackling loneliness The conditions created by the pandemic, and social isolation during lockdown, and our response to it, have created and and Tackling loneliness in and deepened inequalities, and challenged out of lockdown - the role of good policy ambitions around tackling communication. More information loneliness, while simultaneously creating can be found on our project page. the conditions for new ways of achieving them (e.g., Blundell et al 2020; British Red Cross 2020a). • 6 •
This research involved in-depth In doing so it contributes to a breadth interviews with 71 individuals from over of studies, and a significant body of grey 50 different community groups and literature, that have sought to understand organisations, representing geographic this complex landscape from different and socioeconomic diversity across angles (e.g., Borowska 2021; Coutts et al every local authority area in Wales. 2020; Kaye and Morgan 2021; Lloyd-Jones The groups involved were loosely divided and Holtom 2021; O’Dwyer 2020; Tiratelli into Place-Based Groups/PBGs - those and Kaye 2020). that were established primarily on the basis of shared locality (e.g., a village This report begins with a brief introduction COVID-19 response group), and Interest- to loneliness: how it is experienced; its Based Groups/IBGs - those that were causes and consequences; approaches established primarily on the basis of to tackling loneliness; and the role shared interest, experience or identity of place. Following an outline of our (e.g., a fishing group, or single parents’ research methods, we then present group). These are collectively referred key findings and recommendations. to as ‘community groups’. The majority were informal groups (not legally constituted) or small-scale formal 1 Most legally constituted participating groups groups (legally constituted but working fell under the National Council for Voluntary either at a sub-regional level, or with Organisations’ (2020) definition of a ‘micro’ voluntary organisation (income under £10,000), specific communities across wider with some falling under the definition of ‘small’ areas, falling under the NCVO (2020)1 (income under £100,000). Two groups with definition of ‘small’ or ‘micro’ voluntary higher incomes were included due to their representation of specific minority communities organisations). As such, the research identified by research as being at higher risk of reflects a specific set of experiences loneliness. from one part of a complex and multi-layered community response to COVID-19 (e.g., Lloyd-Jones and Holtom 2021). • 7 •
What is Loneliness? Who is lonely? Loneliness is defined as ‘a subjective While most people will likely experience and unwelcome feeling which results loneliness at some point in their lives, from a mismatch in the quality and the research suggests that certain quantity of social relationships we have groups are at greater risk of loneliness and those that we desire’ (Perlman than others. These include both older & Peplau 1982, in Campaign to End people and young people. The National Loneliness 2020a). It is a widespread Survey for Wales (2019-2020) showed issue, complicated by stigma, that has that those aged 16-24 were twice as been exacerbated by the Coronavirus likely to be lonely than those aged pandemic (British Red Cross 2020a). 65+ (National Survey for Wales 2020a; It can have severe mental and physical 2020b). Risk groups also include people health implications, increasing risk of with long-term illness; disabled people; a range of conditions from depression Black, Asian and Minority Ethnic people; and cognitive decline, to coronary people who are Lesbian Gay Bisexual heart disease and high blood pressure Transgender and other sexualities or (Campaign to End Loneliness, n.d.). gender identities; refugees; asylum The literature on loneliness often seekers; carers; single parents; and differentiates between emotional, many more (e.g., British Red Cross 2016). social and existential loneliness. Diverse definitions broadly describe emotional loneliness as lacking close relationships, social loneliness as lacking a sense of belonging to a wider group, and existential loneliness as a sense of separation from other people, even if they are there (commonly associated with trauma, disability or terminal illness) (Campaign to End Loneliness 2020a). • 9 •
Why do people get lonely? How is loneliness tackled? A range of different factors can make Much of the research on how someone become lonely or worsen loneliness is experienced, and by feelings of loneliness. For example: whom, comes from social psychology, trauma, illness, bereavement, life perceiving and addressing loneliness transitions, unemployment, material at an individual level. This is often deprivation, or social isolation reflected in responsive approaches (describing a lack of social contact, to tackling loneliness that involve which is just one possible cause, brokering connections between ‘lonely and consequence, of loneliness). people’ and their wider communities The experience of loneliness can be (supporting them to ‘get out’, join transient (connected to a particular groups/clubs, take part in activities) experience or phase of life), or it (e.g., Victor et al 2018; Campaign to can be chronic and deep-rooted, End Loneliness 2020b). While critically associated with a self-perpetuating important, there are people for whom cycle, where the psychological these approaches may not work, such impacts of feeling disconnected can as carers who are restricted in terms further entrench that disconnection of when and for how long they can be (Campaign to End Loneliness 2020a). away from those they care for, and challenges that they may not address, such as barriers to social interaction that can both cause and result from loneliness (Campaign to End Loneliness 2020a). • 10 •
What does ‘where’ have to do with it? Loneliness, place and COVID-19 Increased attention to how ‘place’ Disruptions to our experiences of space relates to loneliness is reflected in brought by the COVID-19 pandemic recent loneliness policy strategies have increased both the importance, across the UK (Department for Digital, and the possibilities, of exploring the Culture, Media and Sport 2018; Scottish role of place in addressing loneliness. Government 2018; Welsh Government Lockdowns imposed in response to 2020). These shift emphasis from ‘the the pandemic made space feel more individual’, towards the place-based absolute (or ‘stuck’) while, at the structures enabling and strengthening same time, more fluid and relational social connections, through community (for many), due to the increased networks, infrastructures and public prevalence of digital communication. services. They reflect a body of primary This seemingly conflicting combination research focusing on the role of has sometimes caused and intensified physical and digital infrastructures loneliness (British Red Cross 2020a; (e.g., greenspace and broadband 2020b) while sometimes increasing the connection) as well as social kind of ‘community cohesion’ described infrastructures of place (e.g., community by policy approaches to tackling it networks, services and hubs) (e.g., (Kaye and Morgan 2021). It has also Bagnall et al 2018). In the above policy led to a new emphasis on the role of strategies, rather than focusing on technology, raising opportunities and these infrastructures as purely a challenges in terms of understanding means for facilitating interventions how this plays into experiences of both for ‘lonely people’, they become part isolation and connection. of a preventative landscape of ‘social connection’, opening potential for more structural, holistic approaches to tackling loneliness and improving community wellbeing, alongside responsive work. While an appealing policy solution, identifying tangible measures that might help to achieve this in practice presents a key challenge. • 11 •
Summary of research methods Sample Approach This research involved 71 people (aged 18-85), with varying levels of involvement in We developed an informal, loosely structured, storytelling method for interviews, community groups in Wales (from coordination, to occasional participation) between enabling participants to take control of the conversation, to focus and reflect on March and December 2020. Each participant took part in a remote, in-depth interview what they considered important, and to communicate this by telling a story (rather between December 2020 and February 2021, over video call or telephone (depending than having topics imposed through a typical, structured question format). Our aims on preference), lasting approximately one hour. The participants represented over 50 of shifting emphasis onto the voice, experience and expertise of participants and different community groups (either as coordinators or members) across every local ‘handing over’ control, also shaped the nature of our wider communications with authority area in Wales. Many participants (particularly group members) were involved community groups. Our approach was personal and informal, avoiding any generic in more than one group, and the distinction between ‘member’ and ‘coordinator’ was content (e.g., recruitment emails or ‘sign-up’ forms), and took place on participants’ sometimes arbitrary, given the size of some groups, and their often flexible, multiple own terms, including extensive, pre-interview communication through phone calls, and shifting leadership structures. email, and Facebook messaging. Scope Ethics We ensured that the research sample reflected geographic and socioeconomic The research was subject to a full ethical review by Cardiff University and strong diversity nationally, by using 2019-2020 National Survey for Wales data (NSfW) emphasis was placed on safeguarding and wellbeing throughout. Informed consent to map groups and participants against demographic and geographic variables was provided by all participants, their contributions were anonymous, and their at local authority (LA) and lower super output area (LSOA) levels. These variables data was stored according to GDPR regulations. An Equality Impact Assessment included age, ethnicity, rurality, internet access, general health, Welsh speaking was also carried out, involving detailed consideration of potentially detrimental and deprivation. Sampling involved a continuous process of reflection against impacts in relation to any protected characteristic of the Equalities Act (2014), and this data (using an interactive heat-map developed on Tableau), and subsequent the development of specific measures to ensure equality in participation. Notably focused recruitment where representation was lacking. Figure 1 below illustrates the however, we were not able to ensure equal opportunities for those without digital geographical spread of participants, and various characteristics of their local areas. access, given the national restrictions at the time of research. Efforts were made to reduce these barriers, wherever possible, such as by offering interviews and Representation surveys over the phone. Most initial contact did however, require email access, excluding a few cases of ‘snowballing’ where participants shared others’ phone Rather than relying on ‘first to respond’, or a singular means of identifying and recruiting numbers, with their permission. participants, we used a combination of approaches, including web searches and cold contacting (over email and Facebook), ‘snowballing’ through existing contacts, and a process of actor-network mapping. This enabled the purposive sampling of groups Full methodology can be found in Appendix 1. identified by research and NSfW (2019-2020) data as more likely to be lonely (e.g., those who are: aged 16-24; aged 65+; disabled; Lesbian, Gay, Bisexual, Transgender and other sexualities or gender identities; and Black, Asian and Minority Ethnic people). The sample also included group members as well as group coordinators, recognising this as key to a comprehensive understanding of the breadth of community activity. Characteristics of the groups involved in the research are illustrated by Figure 2 below. • 12 • • 13 •
Figure 1: Map of research participant locations, % Internet access % Aged 65+ and their demographic and geographic characteristics 94% 29% This infographic was created using LA level data from the National Survey for Wales 2019-2020. The different shades of blue on the map correspond to the percentage of people reporting feeling lonely in each local authority area. Each spot on the map corresponds to the location from which National average 21.9% participants took part in an interview. The surrounding graphics show the extent to which these locations differ from the Wales national average on a range of socioeconomic and geographic area characteristics. National average 88% These are a selection of a wider set of variables used to ensure that our research involved diverse communities across Wales. We are confident that we have a broad representation of communities, which reflects the fact that higher percentages of Welsh speaking and Black, Asian and Minority Ethnic people are concentrated in a smaller number of local authority areas. 84% 14% % Lonely % Rural 21% % Lonely 90% % reporting feeling lonely through their response to six statements indicating loneliness- see National Survey for Wales (2020b) for more details National average 45% National average 15.2% % Internet access % of households with internet access 12% % Rural 0% % living in settlements of less than 10,000 people % Community belonging % Community belonging % Welsh speaking % agreeing that they belong to their community 62% 80% Deprivation Number of LSOAs from a list of the 10% most deprived LSOAs in Wales National average 52.6% National average 30.4% 10% 38% % Black, Asian and Minority Ethnic people Deprivation 21% 24% National average 8.8% National average 4.4% % Lonely by Local 1% Authority Area 0% 12% 21% • 14 • • 15 •
Figure 2: Characteristics of community groups involved in the research esponse -19 r gr ID ou V CO ps Place-Based Groups 80% informal 20% formal 25 Interview participants Coordinators Gar Bridge g d lkin enin 24 Members Wa Re ng g lig hi St io Fis or n yt el ng 22 lin g Si ng i Coordinators Foo ing tba mm ll Swi Interest- based Groups 50% informal h Bere Yout 50% formal avem ent Re le fug op ee pe s nic Eth As y lit rity yl bi no um sa i s Do dM es Di se Care n ma m a illn and other sexualities or gender identities Lesbian Gay Bisexual Transgender s t los e ian Sigh es ke s Trau nic r ,A ti s rs k y cv lac lit ro bi B ism sa iol Ch di Aut n- en Pa ce • 16 • • 17 •
Findings Overview of the community activity reported on Communities’ pre-existing For example, participants in rural areas networks often described strong social ties due The groups involved in this research were to smaller, more static populations, while loosely divided into Place-Based Groups/ in urban areas, infrastructures, services PBGs - those that were established and cultural activity were identified as primarily on the basis of shared locality promoting cohesion. Local connections (e.g., a village COVID-19 response group), were also stronger or weaker, according and Interest-Based Groups/IBGs - those to a range of wider factors, such as the that were established primarily on the prevalence of commuting or moving basis of shared interest, experience or for work (prior to the pandemic), the identity (e.g., a fishing group, or single ability to work from home (during parents’ group). The COVID-19 response the pandemic), and investment in that we report on is just the tip of the community infrastructures (which iceberg of community interaction. Key sometimes reflected greater affluence, to our findings, was what this visible sometimes targeted initiatives in more part revealed about communities’ base deprived areas). Further, the strength of of pre-existing networks: the places pre-existing networks did not neatly map where they are more or less established onto community group activity during and why; how they might emerge in the pandemic. While often facilitating the first place; and how they might be an organised COVID-19 response, strong strengthened, expanded, or mobilised existing networks sometimes negated elsewhere. This illuminated the role of the the need for it. Conversely, in a few cases, broader systems that these community groups appeared precisely because of a networks formed part of – involving lack of existing community relationships, diverse sectors (voluntary, third, public, creating crucial new support networks. private) across multiple scales (local, Notably, in contrast to examples of regional, national and international). It community activity flourishing during also indicated the varied and complex the pandemic, some participants role of socioeconomic and geographic emphasised the opposite, as vital factors, in shaping the extent to which networks, resources, and infrastructures these ‘base’ networks were present or had been decimated by the impact absent before the pandemic, and were of lockdowns and social distancing enhanced or weakened throughout it. measures. • 18 •
Place-Based Groups When this icon appears alongside the I had kids home and work text in the sections below, it indicates decided actually they were that the findings being discussed relate doing work, then it felt like to data collected from PBGs. The PBGs a bit of a juggle and I involved in this research were largely thought, “I don’t know what ‘COVID-19 Response Groups’, that were I’ve done. I’ve taken on too established in geographically-based much. This is awful.” I guess communities across Wales from March the challenge is about the 2020, in response to (or anticipation sudden expansion and of) the first national lockdown. We use the unknown timescale the general term ‘COVID-19 Response and the working in Group’ (CRG) to include both those who constantly shifting sands. identified with the concept of ‘mutual aid’ and those who did not (see box PBG coordinator below). While these CRGs were ‘new’ groups, many grew from existing groups, networks or organisations, formed around shared interests, experiences or identities. As such, there was rarely a clear line distinguishing PBGs from IBGs, with many of the former often established by concerned community members PBGs’ activities centred on meeting from the latter, who were able to mobilise need in the local community, primarily their existing networks in order to support by delivering food and prescriptions people in the local area (e.g., members to those shielding, but also through of a swimming club, who worried about activities directly targeting emotional what the older leisure centre ‘regulars’ wellbeing, such as telephone support and would do when lockdown began). CRGs befriending. Many groups also developed were often described as ‘accidental’ a range of wider activities like delivering creations, that ‘took on a life of their activity packs to young people or setting own’, with the scale of need exceeding up bus stop bookshelves, as well as expectations (and often capacity), in offering more targeted support like its breadth, depth and longevity. emergency financial assistance. • 19 •
PBG’s activities changed (in nature, intensity, and frequency) throughout Mutual Aid the course of the pandemic. Demand ‘Mutual aid’ describes the for shopping and prescription collection concept that reciprocity/solidarity fell significantly through June/July/ (as opposed to self-interest/ August 2020, as shops, pharmacies competition) is the ‘innately and individuals established delivery human’ foundation of society, systems and national lockdowns eased. and an associated commitment Around half of the groups in this research to horizontal/non-hierarchical, ‘wound down’ or finished at this point and community-led organisation (most having already gone ‘above and (Springer 2020). Coined by anarchist beyond’ what they set out to do, and philosopher and naturalist Peter facing challenges such as returning to Kropotkin (1902), ‘mutual aid’ has work and securing longer-term funds). been a foundational concept of Groups that were able to continue, much community organising for over often shifted their activities towards a century, championed, in particular, addressing deepening emotional and by Black and ‘multiply-marginalised’ financial challenges, e.g., through the people (Zuri 2020- founder of UK establishment of food banks or wider Mutual Aid). wellbeing support activities. Several of these groups had plans to remain active While many of these PBGs/CRGs beyond the pandemic, with a smaller were registered as ‘mutual aid ‘core’ of volunteers expressing a desire groups’ (e.g., on covidmutualaid.org), to continue in the long-term (often 10- few groups or participants used 20, in contrast to 50-100 during the first the term ‘mutual aid’ to describe national lockdown). Crucially however, their activity. Fewer still, identified those groups that were unable to with mutual aid as a concept, continue had not ‘disappeared’, with the which was often entirely absent networks that they were created from, or from participants’ narratives and that they created during the pandemic, the way groups were organised. often remaining active in the community. Participants from only three groups (in south-east and urban parts of Wales) brought up the historical context of mutual aid, and its role in shaping the aims and structure of their activities. The majority of groups were deliberately and outwardly ‘apolitical’, so association with mutual aid was sometimes considered controversial, and sometimes explicitly rejected, due to perceived political associations. • 20 •
Interest-Based Groups IBGs’ activities also changed throughout the course of the pandemic, as groups When this icon appears alongside the shifted from short-term approaches text in the sections below, it indicates to ‘remote’ functioning, to the that the findings being discussed relate development of more sophisticated to data collected from IBGs. The IBGs approaches that many intended to involved in this research were largely sustain in the long-term. The latter existing groups (but some new) that often involved complex combinations had shifted their focus to supporting of online and offline activities and their interest/experience/identity-based opportunities for social connection, communities through the pandemic with a range of digital technologies (rather than forming dedicated CRGs). used to facilitate both action and For example, a group established interaction. Further, as many of these by members of a minority ethnic IBGs were run by, and/or for, minority community to celebrate shared religious and marginalised groups, new or festivals, invested in technologies to increased focus was often placed on involve people remotely: from filming efforts to mitigate the deepening of music, dance, cooking (then delivering inequalities and challenges faced by the food), to offering online yoga, these communities, resulting from the storytelling sessions, and emotional unequal impact of the pandemic and support. Many IBGs also engaged in its likely long-term implications. This activities like delivering shopping or involved a wide range of activities, prescriptions, but their primary focus from direct support for individuals, to was usually centred around sports, lobbying and campaigning to ensure leisure, arts or culture – either as the that new and existing policies, services focus that brought the group together and infrastructures recognised these (e.g., a folk choir), or providing the basis challenges. However, IBGs’ future for social interaction/support in groups plans were, like PBGs, often dictated brought together by shared experience by questions of funding and capacity, or identity (e.g., a pan-disability social albeit in slightly different ways. Many group). Some were forced to entirely anticipated difficulties in sustaining abandon their ‘normal’ activities, like their activities, due to concerns around a football club that shifted to supporting the future availability of grants, and the its community by running events wider financial impacts of the pandemic and fundraising on team Facebook across the third and voluntary sectors, groups. Others were able to adapt their sports, leisure, arts and culture. activities, such as a youth group running their creative arts sessions online. • 21 •
Figure 3: Black and The intersectionality Minority Ethnic of loneliness people Lesbian Gay Bisexual Transgender It’s being able and other to speak freely, sexual/gender not just being Community activity and loneliness identities able to speak the language Separation Many participants shared insight and from family/ Nobody stories relating to the experience of expects older home loneliness, and how involvement with people to be gay LGBT life isn’t Stuck somewhere Refugees seen as part Communication community groups had addressed of Welsh I can’t be and asylum is a constant myself seekers struggle this (or not) during the pandemic and culture Services, beyond. Fundamental here, and the infrastructures and policies focus of the findings below, was not just People can be don’t recognise group involvement, but the means by unwelcoming my experience Lockdown is or abusive nothing new which participants had been involved Can’t afford Trapped in the to do things (the sorts of activities and interactions Welsh present speaking they took part in). Specifically, how these means helped to address a pervasive challenge - that the sense of Loneliness is feeling Things have got much Older exclusion and disconnection that results excluded worse since the pandemic Material from loneliness is also often a cause deprivation of it. If barriers to ‘getting out’, ‘joining a club’ or ‘joining in’ are at the roots of loneliness, addressing it through these Loneliness Loneliness is is feeling emptiness means becomes difficult. Participants’ forgotten Exclusion from experiences highlighted some of the Loss of routine/ Loneliness is not about Loneliness is a trap- you information diverse and intersecting factors that structure being alone shrink into yourself might contribute to this ‘loneliness trap’ You fear being a for different groups identified as being Loneliness ‘I’m okay’ rarely means burden to Loneliness others more at risk of loneliness. These are is feeling is failure I’m okay illustrated in Figure 3 and emphasise, different Loneliness is Challenges in particular, experiences of physical insidious- are often Disabled invisible nobody talks and emotional exclusion, as well as Single about it the insidiousness of loneliness – the parents Loneliness It’s hard to People are is feeling stigma, shame and misunderstanding scared communicate how you feel scared to ask us that create barriers to communicating Isolation from how it feels, and how people can help. other adults The central, orange circles in Figure 3 Intensity represent themes raised across the of care relationships groups involved, while the peripheral, It’s easier Social pressure not to bother blue circles represent themes specific won’t let you admit it to different groups, which also often overlapped. This graphic does not Carers intend to represent every dimension Young or experience of loneliness, or all Nobody asks groups at greater risk of being lonely. young people if they’re lonely It summarises key themes from the experiences described by participants Bereaved in this research only. The emptiness People can is compounded make you when they’ve lonelier gone • 22 • • 23 •
1. Steppingstones and purpose: addressing loneliness in communities Can't see the video? Watch online at: youtu.be/bxFnDDeh5fg • 24 •
Providing a Way In If you try to contrive social As outlined above, none of the PBGs interaction because you think in this research set out specifically to that person isn’t getting any, the tackle loneliness – most set up with the likelihood is that they will just be first national Coronavirus lockdown in shy or run a mile. If you’ve got March 2020, to meet emergency need some other practical purpose, by delivering food and prescriptions to which means you’ve got to have those shielding. Alongside this, many a chat, and you’ve got to chat for groups carried out wider activities, from some time about when they need dog walking to doorstep yoga, and a their prescription picking up, how majority developed dedicated wellbeing many items there are, what’s support systems, such as ‘buddy calls’ their date of birth in case the and befriending services. While the latter surgery ask and you’re forced were considered important in tackling by practical circumstances to loneliness, overwhelming emphasis was have broader chats, then you’re placed on the impact of practical, task- much, much more likely to be based activities (particularly delivering successful in drawing that shopping and prescriptions). These person out a bit and creating a provided a simple, accessible ‘way in’ to meaningful social interaction. social interaction, by shifting focus away from it – key, given that people who feel PBG coordinator lonely can find social interaction difficult, both as a cause or a consequence of that loneliness (Campaign to End Loneliness 2020a): “We found people generally didn’t want shopping. They just wanted to speak to somebody, you know, and the shopping was not a lie, but it was their way of starting a conversation” (PBG coordinator). Phoning a helpline about shopping or prescriptions provided an opportunity for a low pressure, transactional interaction, with the option to engage socially, but not the obligation. This practical focus also reduced the stigma surrounding loneliness and wider mental health issues, and associated barriers to both asking for, and offering, help: “I guess it’s a different thing to say, “I need some help with my shopping because I’m not physically allowed out,” than it is to say, “I’m really lonely and I feel really depressed and fed up.”” (PBG member). • 25 •
Building Community Networks Many participants emphasised that these relationships and networks remained, In many cases, as practical interactions even where groups that initiated them around shopping or prescription had wound down or finished. delivery were repeated, they shifted from transactional to more emotional. This process built new connections and relationships around people, rather than requiring them to fit into I made some quite deep existing, often inaccessible, networks connections with some of (like joining a club or group which, for those families, especially some, was physically or emotionally elderly people that we were challenging, worsening the experience helping, and I help them of loneliness as a result). Participants now on a weekly basis not highlighted the benefits of focusing necessarily… I don’t see on the tangible ‘means’ of relationship myself as a volunteer for and network building – physical things that, I’m just doing it and a mobilising sense of purpose – because they’re now my rather than the elusive ends of social friends, you know. connection itself (echoing research PBG coordinator finding that focusing on well-being, or being happy, is not necessarily an effective way to achieve well-being, or happiness (Fritz and Sonja Lyubomirsky 2017)). Many described logistical tasks, like delivering furniture, finding hot cross A key and widespread question is for buns at Christmas, or some yellow roses how long these networks might sustain on a shopping list, leading to genuine themselves, and how they might be friendships: helping someone get a job, enhanced, or replicated elsewhere, sharing a cancer all-clear, supporting now that the shared emergency someone through bereavement. purpose that was mobilising them has Rather than isolated, ‘helper-helped’ largely diminished. Findings from IBGs relationships, these interactions built highlighted possibilities for addressing (and built on) wider networks, or ‘a this challenge, illustrating how the same sense of community’ – the feeling, not model of network building (physical just among the ‘vulnerable’, of having a things + mobilising sense of purpose support structure and being thought of, = connections) works outside of a or known about. crisis context, with a different (more sustainable) mobilising purpose, based on meaningful ‘things to do’. I learnt that I’m not on my own. I know I felt like I was on my own….but now I feel like we have a community. It just needed somebody to say, “Hello, I’m here” PBG coordinator • 26 •
Meaningful things to do These were still networks built around and the power of purpose physical things and a mobilising sense of purpose but, rather than coming As outlined above, IBGs’ activities from a collective need to respond to were primarily centred around sports, an emergency, this purpose came leisure, arts and culture, either as the from shared interests, experiences or focus that brought the group together, passions. For groups in this research, or as providing the basis for social the networks built as a result were interaction/support in groups brought often considered better at tackling together by shared experience or loneliness, due to their sustainability, identity. These kinds of activities – and a greater sense of mutuality, not meaningful ‘things to do’ – and the being premised on a helper-helped physical and digital infrastructures divide: “It is not a case of I am this that facilitate them (e.g., community healthy, well superman and how can buildings, transport, sports and arts I help you? It is a real, yes, camaraderie facilities, broadband connection, or or connection” (IBG member). a community Facebook page), were emphasised as key in building the base A strong theme in this research was community networks that, in many the power of ‘purpose’, not only for cases, provided the foundations for activating community connection, effective response to crisis. but for addressing loneliness more directly: the importance of feeling part of something ‘bigger’, of not feeling bored or empty, rather than a need for social interaction per-se. While this, I would say that the social for some, was temporarily provided networks were already by the pandemic response, it was also well entrenched in the town. achieved through diverse IBG activities. Not just as a result of things Participants highlighted the critical like obviously the [community importance of meaningful things to do, action plan]. They were like campaigning, activism, or activities entrenched as a result (whether writing, swimming or sewing) of strong cultural activity connected to a wider goal. This, in in the town… There is a lot turn, highlights the critical importance going on in this place. of attention to the dimensions of They all contribute to inequality surrounding the presence, or creating a network that absence, of community activities and makes us stronger. infrastructures, and the extent to which these infrastructures and inequalities IBG and PBG coordinator have been impacted by the pandemic (as outlined in the ‘overview’ section on page 18). • 27 •
Accessible steps to engagement These may (or may not) be longer term goals but, as suggested by findings Many participants discussed loneliness from PBGs, there is a need for more as a sense of disconnection, separation accessible ‘steps’ to engagement and and emptiness (existential loneliness), connection. This was echoed by many that could not be addressed by participants across IBGs, who described social contact alone (and, in some difficulties associated with joining circumstances, could be intensified groups or clubs, bound in complex by it). This was a recurring theme ways to experiences of loneliness, both across diverse groups, from someone prior to, and during, the pandemic: with a physical disability to someone “When you’re in a good place you don’t experiencing bereavement, but realise how hard it is to come in, do was particularly emphasised by you? You know, the amount of mental young people: “I’m probably one and physical energy it takes to brace of the busiest people ever and I’m yourself to just join in and be part of surrounded by people but yet there something” (IBG member). A sense is still that loneliness because it’s of isolation was often intensified by not about the fact that I’m physically expectations to ‘fit’ into networks which isolated, it’s the fact that there’s were (or felt) inaccessible, the contrast kind of a disconnection between of returning to being alone after group stuff” (IBG coordinator). This feeling interaction, and the deep, negative was addressed by opportunities to impacts of challenging interactions: connect with a cause, rather than to “I suddenly felt terrible afterwards simply connect with people. It not only and I was like, “I don’t want to do that highlights the need for opportunities again, it was awful.” It made me feel to do things that feel significant so lonely” (IBG member). In addressing (which might be gardening for some, such challenges, participants outlined or activism for others), but also the the potential of meaningful, practical potential for approaches to addressing activities (such as writing, or making, loneliness that do not necessarily something purposeful) with the option, require ‘getting out’, joining a club and but not the requirement, of social socialising. interaction. • 28 •
For example, activities coordinated online, offering the possibility of taking part without leaving home or even I think that being switching on a camera or microphone: proactive and giving “To walk into a space, like a youth club people the pathway to or something, is terrifying when you how to be involved, and don’t know anybody, doing that online not leaving it to them. can be a bit easier” (IBG member). Not hectoring them, not Key alongside this purposeful action, pestering them, but just was having structured spaces for social having practical things interaction (digital or ‘in-person’), so that it’s clear how to in order to lessen social anxieties be involved and it doesn’t and break down barriers to getting take much effort. involved or speaking openly (while simultaneously respecting these by IBG member removing any expectation to take part): “You know, it’s a thing to log in but you don’t have to be prepared to give anything so it’s nice.…it doesn’t take much to be part of it” (IBG member). This involved setting routine structures and norms for open discussion, ‘bringing people in’ by providing a clear framework for engagement, both within and beyond the session. • 29 •
Looking forwards Many more were very active in the community prior to the pandemic, and The pandemic responses of the different felt frustrated at being asked or expected groups involved in this research have to come up with something new: “What provided an insight into the building are you doing? What are you going to do blocks of community relationships next?” I thought, “Well hang on. We are and networks, revealing lessons for already doing so much in this town. Do we tackling loneliness, and for supporting now need to come up…?” I found myself a community connection more broadly. bit defensive about that” (PBG coordinator). They highlight the potential of focusing on the means of connection (practical Our research suggests that essential to activities and a mobilising sense of moving forwards, will be celebrating the purpose), rather than the ends (the pandemic response, but letting it melt connection itself), as a tangible basis away. Crucially, ensuring that, as it does for building and sustaining relationships so, it reinforces communities’ existing and networks. They also emphasise the networks with the new ones that have importance that these ‘means’ present been generated, and by learning from their a range of accessible opportunities for experience: the potential of meaningful engagement, in light of diverse barriers ‘things to do’ and a sense of purpose to participation. In terms of sustaining in facilitating relationship and network and promoting community connection, building, and the benefits of providing these findings suggest the need, and accessible steppingstones to ensure opportunity, to shift attention from the that these networks are inclusive. The pandemic response, to communities’ recommendations made below are based ‘base’ networks- and their foundations: on what worked well for the community community infrastructures, clubs, groups in this research, relating to these culture, religion, sports, activism. key areas of learning. Ultimately, these These ‘things to do, and the ‘places findings emphasise the importance of both to do them’, have sometimes been responsive and preventative approaches decimated by the pandemic, yet have to addressing loneliness working alongside also been highlighted as essential one another: infrastructures that promote/ to building the community networks facilitate connection, and more directed outlined as key to both past response approaches that provide a ‘way in’ for and future recovery. Many of the CRGs those who, for diverse, complex, often in this research have wound down or structural reasons, might be, or feel, finished (having done what they set disconnected (as illustrated in Figure 3). out to do, and much more). Those that remain have already shifted their focus towards longer-term purpose – libraries on wheels, community gardens, food banks – becoming part of communities’ base networks. • 30 •
Recommendations: Addressing loneliness in communities These recommendations are based on ‘what worked well’ for the informal and small-scale formal community groups involved in our research, and are relevant to policy, public services, local authorities, third and voluntary sector organisations, and community groups. Utilising the power of practical tasks • Providing a ‘way in’ to social interaction through transactional activities (e.g., shopping delivery), and supporting and sustaining opportunities to engage in such activities beyond the pandemic context, e.g., through neighbourhood ‘odd jobs’, micro volunteering, delivery services, etc. Utilising the power of purpose • Mobilising social interaction and addressing feelings of emptiness and boredom associated with loneliness by creating opportunities to ‘find’ a sense of purpose, e.g., through investment in meaningful ‘things to do’ in communities, and the physical infrastructures that facilitate them. Accessible steps to engagement • Providing a spectrum of opportunities to engage in these meaningful ‘things to do’, from joining a club, to more accessible steps, such as activities that can be done alone or online (with no expectation of using cameras or microphones). • Providing structured frameworks for optional degrees of social interaction alongside this activity (e.g., discussion with clear norms and expectations set around format and content). • 31 •
2. Blended spaces: using online and offline technology to address loneliness Can't see the video? Watch online at: youtu.be/UdU9l8xdvkg • 32 •
Digital equality Groups addressed this gap, not simply by offering alternative, offline, forms Throughout the pandemic, many of engagement, but by using offline different technologies have been technologies to ground online networks. used by different groups, for different They ensured that these were not coordination purposes. Most participants separate or exclusive, but that those emphasised these as ‘low tech’: primarily offline felt part of them and could benefit leaflets, telephone, email, Facebook and from them. For example, by collating WhatsApp groups; sometimes Google information from social media and Drive features and video conferencing posting it through doors, or bringing platforms; and, occasionally, specifically a laptop to someone’s window to designed websites or applications. do a yoga class. Consistently, the internet was considered essential to facilitating group functions through the pandemic – something that could not have been done without. What has happened, that However, for PBGs, reaching those I think has been very noticeable, most at risk of loneliness (often older is that social media usage has people), overwhelmingly involved offline increased very dramatically, technologies: leaflets, phone calls, and particularly for the shops and door knocking. Leafletting, in particular, restaurants, cafés and things like was fundamental to groups’ success that, also by the county council in ‘bringing in’ those not part of existing and all of the quasi-government networks or engaged with services. This organisations. What we became important role of offline technology was very aware of from feedback and not paradoxical to the simultaneous just talking to people is that a importance of online technology large proportion of the population throughout the pandemic, but a direct are still disenfranchised by that… reflection of it. Many participants A lot of my time for this is simply emphasised the amplified scale and getting on to all of the social impact of digital exclusion through media feeds from as many people lockdown, and the consequent criticality as I can, and then harvesting, of digital equality as well as access: cutting and pasting and editing reducing the exclusion of those who stuff from that to go into the cannot (or choose not to) go online, from news, so that activity has information, services, support, and social increased considerably. connection. Exclusion from information, in particular, was thought to contribute PBG coordinator significantly to a sense of loneliness and alienation and raised wider questions around rights and responsibilities: “How are they finding out information? Who is telling them? It is me and their families, they are passing over the information. They pay rent, they pay their council tax, why are they not being informed like everyone else is?” (PBG coordinator). • 33 •
Inclusive digital environments Bridging the online and offline world had the additional impact of breaking down I think what is important is a key barrier to online engagement by that there is that local making the internet feel safer, more connection. This building familiar and appealing. This relates to a resilient communities idea particularly strong theme that emerged again, you know, it’s got to from discussions around digital access. feel very different from, I don’t Aside from the prerequisites of devices, know, switching on Netflix and data and connection, participants watching a broadcast, you emphasised a need to look beyond what know, on the BBC or whatever. skills and confidence individuals need to It’s got to feel different, to feel gain to access digital spaces, towards connected with something that how the online spaces themselves you normally would be doing can be changed to become more whether it’s going to the pub accommodating and inclusive. For older or going to a local theatre people, safe, trusted, navigable online to see something. spaces were considered critical to PBG coordinator enabling (and motivating) access, as well as to addressing loneliness. Yet the need to focus on the environment not just the individual was emphasised, in particular, by younger groups in the research, where the nature of an online space could cause those with certain disabilities, experiences or identities to feel alienated or overwhelmed, regardless of their The functionality of Facebook was widely level of skills and confidence. Factors considered to be important in facilitating considered key in creating accessible, this kind of ‘grounded’ online connection, welcoming online environments, were often accompanied by a sense of conflict peer/user-led design and moderation and surprise: “I know it is a bit of demon and, crucially, connecting people that and a bit of a multi-headed monster, were known (or could become known), but I do think that actually social media and places that were familiar (or could and Facebook in particular has been become familiar), in the ‘real’ world. a huge help” (IBG coordinator). While a The digital space had to feel connected perhaps biased sample, given the use of in some way to a physical space that Facebook to recruit some participants, participants could recognise, picture, many commented that they did not use and feasibly visit in real life. For example, Facebook at all prior to the pandemic, the local bridge club moved onto a self- and/or had held negative attitudes designed online platform, a peer-led towards it, which they still felt conflicted by. network for disabled young people who met regularly in the local community centre, or the football club fundraising event on Facebook. • 34 •
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