WELLBEING FIRST QUEENSLAND ALLIANCE FOR MENTAL HEALTH JULY 2021
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Wellbeing First imagines a future state where everyone has access to locally designed wellbeing supports and where the nation’s growth is measured not just in economic terms but also in its mental wellbeing. 2 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
QUEENSLAND ALLIANCE FOR MENTAL HEALTH Queensland Alliance for Mental Health (QAMH) is the peak body for the Community Mental Wellbeing Sector in Queensland. We represent more than 100 organisations and stakeholders involved in the delivery of Community Mental Wellbeing Services across the state. Our role is to reform, promote and drive community mental wellbeing service delivery for all Queenslanders, through our influence and collaboration with our members and strategic partners. At a federal level, we collaborate with Community Mental Health Australia. We work alongside our members to add value to the sector and act as a strong advocate on issues that impact their operations in Queensland communities. ACKNOWLEDGEMENTS DISCLAIMER This report is informed by eight months of The views or opinions in this report do not research and exploration. The research was necessarily reflect all the stakeholders that led by CEO Jennifer Black with guidance from were consulted during the life of the project. Jose Ramos (Action Foresight) and Helen Glover Many of the service examples that have been (Enlightened Consultants). showcased throughout the document have been The work was supported by the staff of the chosen because their values and frameworks Queensland Alliance for Mental Health. align with the vision articulated. QAMH has not formally evaluated the efficacy of these A range of workshops and consultations were approaches but has provided references for held with QAMH members and key stakeholders the further interest of readers. across the mental health system within Queensland and across the nation. We thank Every effort has been made to ensure this all of those who participated. document is accurate, reliable, and up to date at the time of publication. QAMH does not accept AVAILABILITY any responsibility for loss caused by reliance on this information and makes no representation or The report is available online at warranty regarding the quality or appropriateness www.qamh.org.au. of the data or information. QAMH CONTACT DETAILS Address: 433 Logan Road, Stones Corner QLD 4120 For any further information please contact: Jennifer Black Chief Executive Officer Email: jblack@qamh.org.au Tel: (07) 3394 8480 WELLBEING FIRST 3
GLOSSARY ACRONYMS: QAMH Queensland Alliance for Mental Health CMHA Community Mental Health Australia ABS Australian Bureau of Statistics HHS Hospital and Health Services MBS Medicare Benefit Schedule NDIS National Disability Insurance Scheme LGBTIQ+ Lesbian, gay, bisexual, transgender, intersex, and queer/questioning, and the + represents other identities not captured in the letters of the acronym PHN Primary Health Network MHCT Mentally Health Cities Townsville WHO World Health Organisation KEY TERMS A model that emphasises medication-based treatments and Biomedical model monitoring to reduce mental illness symptoms. A state of high wellbeing. Flourishing states have a high presence Flourishing of psychological, emotional and social wellbeing indicators. A state of low wellbeing. Languishing states have low levels Languishing of emotional, social and psychological wellbeing indicators. An approach that places the person experiencing mental ill-health Person-centred at the centre of the service. An approach that responds to the person as the leader of their life in ways that foster personal agency and the capacity to Person-led manage challenges. Person-led approaches require providers to be accountable to the person. Individualised supports that create opportunities for people Psychosocial to better respond to their needs, such as social connection, supports relationships, self-care and economic participation. Also called “wellbeing supports” for the purposes of this report. 4 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
CONTENTS Queensland Alliance for Mental Health 3 Acknowledgements 3 Glossary 4 Foreword from the CEO 6 Executive Summary 7 Part 1: The mental health crisis 8 1.1 The current public mental health crisis 8 1.2 The impacts of COVID-19 10 1.3 The response required 12 Part 2: The argument for change 14 2.1 Personal experience and outcomes 14 2.2 The Economics of mental wealth 16 2.3 Reduce the burden on acute services 16 2.4 Culture and stigma 17 2.5 Limitations of the current mental health ecosystem 17 2.6 The identity of the Community Mental Wellbeing Sector 18 2.7 The challenge of actioning reform 20 Part 3: Emerging opportunities for the Community Mental Wellbeing Sector 21 3.1 A focus on mental wealth 21 3.2 Pivot from mental illness to wellbeing 22 3.3 The potential of the Queensland Community Mental Wellbeing Sector 24 3.4 Use of technology 25 Part 4: The preferred future 26 4.1 The future scope of the Community Mental Wellbeing Sector 26 4.2 The characteristics of community wellbeing service design 29 4.3 Mental wellbeing program characteristics to be resisted 33 Part 5: QAMH leading into the future 34 5.1 Lead and influence the unique value of the sector 34 5.2 Modelling service design 34 5.3 Strengthening workforce wellbeing capability 35 5.4 Build a collection of mental wellbeing resources 35 Methodology 36 References 38 WELLBEING FIRST 5
JENNIFER BLACK FORWARD FROM THE CEO Since the global pandemic hit, we have all been faced with significant disruption to our lives and a prolonged period of uncertainty. It has been a blow to the mental health of the nation. For those of us who work in the mental health This vision is not a wish list, but the result of sector, it has once again shone light on a system deep consideration by the members of QAMH desperately in need of change. and key representatives of the broader mental health system. You may notice this report refers The pandemic came just after the release of to the community managed sector as the the draft report of the Productivity Commission’s Community Mental Wellbeing Sector. This inquiry into Mental Health (2019). While there is deliberate, in that it underlines the unique has been a plethora of reviews and reports contribution of the sector and the preferred over the past two decades, the Productivity change of direction articulated in this report. Commission - the nation’s key economic advisory body - confirmed that the mental health system Our preferred future has been formulated using is in crisis. Compellingly, it stated that the right strategic foresight thinking, processes and services are often not available when needed, scanning mechanisms. It is set within the leading to wasted health resources and missed political, economic, social, technological, legal, opportunities to improve lives. At the beginning and environmental horizons of the next five of 2020, a new Human Rights Act also came to ten years. into force in Queensland and the idea that our system was failing to improve the lives of the “Strategic foresight is the ability to create people it was set up to help, was hard to absorb. and sustain a variety of high-quality forward The Queensland Alliance for Mental Health views and to apply emerging insights in (QAMH) is the peak body for community organisationally useful ways.” managed mental health organisations - those (Slaughter, 2018, p 11) organisations that provide much practical support to people in mental distress in our community. We know integration within the system and During the pandemic, we witnessed a surging across systems is crucial and that the Community need for these services. In response, the sector Mental Wellbeing Sector needs to embrace rapidly developed innovative models of care, its unique offering in the context of the broader showing strength, resilience and agility. system to be most effective. We also acknowledge that a range of responses will always be required It struck the QAMH team that this crisis could to meet community needs. While the preferred be the burning platform to finally effect real future outlined in this report has been configured change in the system. largely for the Community Mental Wellbeing To this end, QAMH has collaborated with futurist Sector, we believe many of the ideas could have Jose Ramos (Action Foresight) and mental broader application. health innovator Helen Glover (Enlightened Wellbeing First is a call to fundamentally shift Consultants), to paint a vision for the future. the focus of our sector from managing illness to actively supporting wellbeing. Jennifer Black 6 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
EXECUTIVE SUMMARY This report examines the urgent and compelling • For decades, people with lived experience need for change in the mental health system. have been calling for new approaches, and many report their most positive experiences This is based on three key points: have been with community mental wellbeing • The current system has been repeatedly services. identified as one which is struggling with • In this report, QAMH argues that only when demand, fragmented, siloed and difficult for a range of alternatives to medical intervention the public to navigate. can be accessed, will the system be truly • This vexed system is now facing unprecedented trauma informed and recovery oriented. pressure from the mental health impacts of the The vision outlined in Wellbeing First would COVID-19 pandemic. have life-changing benefits. • Human distress does not always need a For the individual, this approach will build social medical response. For this reason, we need and economic participation. For clinical mental to move beyond current models of care, and health services, it will alleviate many of the current pivot to a contemporary whole of community demand pressures. It will increase community approach that places Wellbeing First. resilience to life challenges. And for the nation, In this report, the Queensland Alliance for Mental it will foster mental wealth. Health (QAMH) calls for fundamental changes to Mental Wealth is defined as the collective the way we fund and position community mental cognitive and emotional resources of citizens. wellbeing services in Queensland. It includes people’s mental capital, their mental There are several clear reasons to do this: health and wellbeing which underpins the ability • The Community Mental Wellbeing Sector is to work productively, creatively and build and an under-utilised element of the mental health maintain strong positive relationships with others. ecosystem with huge potential to provide a Wellbeing First imagines a future state where practical, early intervention approach. everyone has access to locally designed well- • The pandemic has taught us that mental being supports and where the nation’s growth wellbeing supports are no longer considered is measured not just in economic terms but relevant only to a small proportion of people also in its mental wellbeing. living with disadvantage. There is growing demand to recognise them as economic, social and health necessities for everyone. ” In this report, the Queensland Alliance for Mental Health (QAMH) calls for fundamental changes to the way we fund and position community mental wellbeing services in Queensland. WELLBEING FIRST 7
PART 1: THE MENTAL HEALTH CRISIS KEY POINTS • The COVID-19 pandemic has raised • People are demanding a different public discourse about the importance experience from mental health care. of wellbeing. • The Community Mental Wellbeing • The pandemic will have significant Sector is ready to provide broader impacts on the mental health of a wellbeing services. broad sweep of the population. • The responses so far to the mental health crisis focus on acute treatment rather than wellbeing supports. The COVID-19 pandemic has significantly 1.1 The current public mental health crisis disrupted our lives, fundamentally changing Our mental health models are principally the way we live, work, love, and play. For many designed to be reactive, crisis-driven and focus people, the impact on their mental health has on those with severe and persistent mental ill been significant and the notion of actively health. Care is often experienced as coercive, working on their own wellbeing has been traumatising or re-traumatising, creating a new experience. unintended harm to those who most need help. Never have we seen such widespread public The mental health system is notoriously difficult discourse about the importance of our collective for people to navigate, particularly when in wellbeing. The prevalence of diagnosed mental distress, leaving no alternative but to go to a health issues such as depression and anxiety hospital emergency department. In 2018 the have been steadily increasing and COVID-19 Australasian College of Emergency Medicine has increased all the known risk factors. The concluded that the current mental health enormity of the situation has identified the gaps system fails individuals, families, and health in available supports and highlighted the services, and that the strain on emergency challenges for traditional mental health services departments as well as patients and families to adapt to the rapidly changing needs of the is unsustainable (Duggan, 2020). People with population. There is an urgent and compelling lived experience have outlined the distress of need to change how we design, access, and overcrowding, noise, long waits and the use of provide mental wellbeing supports that are restrictive practices in emergency departments. responsive and meet a whole of population need. Despite this, emergency departments are still the primary access point for people in distress and will remain so until sustainable community alternatives are established and supported. 8 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
Alarmingly, there is also a large number of people Although well intended, many community mental the Productivity Commission calls the ‘missing health services have simply transposed a middle’. This cohort is considered to be too unwell biomedical model of care into community to be treated in the primary care system but are settings. The Community Mental Wellbeing not deemed sick enough to be treated by acute Sector is well-placed to provide an alternative services. They fall between the cracks of federal but is often limited by a lack of resources and and state funding and cannot necessarily afford by prescribed models of care designed to reduce to access private support (Australia. Productivity the burden on the medical system. Commission, 2020). Post COVID-19, they are likely to be left languishing in greater levels of distress. Even if the ‘missing middle’ are eventually found, it is likely to be through a medical model. The Existing Mental Health Ecosystem Most primary mental health care is provided Mental health services in Queensland are by GPs and the most common intervention funded at both a federal level through primary is medication. In 2019-20 there were 40.7 care initiatives and the National Disability million mental health-related prescriptions Insurance Scheme (NDIS), and at a state provided to 4.4 million people, with an level by Queensland Health through the average of nine prescriptions per person Hospital and Health Services (HHS) and (Australia. Australian Institute of Health and community-based services. Additional Welfare, 2021). In the preceding year, services can be accessed through the 1.3 million people received MBS-rebated private health system but primarily by those psychological therapy and the PHNs com- who can afford the out-of-pocket expenses. missioned 70,000 sessions. 60,000 young people received help through headspace Primary Care centres and about 4,000 used supported Primary health services such as GPs, health online treatment (Australia. Productivity nurses and allied health professionals often Commission, 2020). act as the entry point into the mental health In addition to these services there are a system and provide services to those range of online and telephone-based sup- not requiring emergency care. These may ports, for example: Lifeline, Kids Helpline, be people seeking help for the first time, Sane Australia Helpline, Beyond Blue, receiving assistance for mild to moderate Parent line, PANDA and Diverse Voices. mental illness, or managing their serious mental health issues with support. Hospital-Based Care and Specialist Mental Health Services Funding primarily comes from the Federal Government through Medicare rebates and The state funds specialist mental health at a local level through the Primary Health services or clinical services, either as Networks (PHNs), which have a major role outpatient or residential and bed-based in developing and commissioning a range acute services. These are provided by the of mental health and suicide prevention HHS and are designed to provide support services within their local regions. to those with a more severe or complex mental illness or those in crisis. WELLBEING FIRST 9
...Continued from previous page Psychosocial Programs The 1300 MH Call access line is another The non-government or not-for-profit key entry point into public mental health sector, supported by a mix of state and services. This mental health telephone federal funding, has been the main source triage service: “can provide support, of psychosocial services in Queensland. information, advice and referral; provide However, the psychosocial support landscape advice and information in a mental health shifted significantly with the introduction of emergency or crisis; is staffed by trained the NDIS. The NDIS now funds support for and experienced professional mental health thousands of people who have a significant clinicians; will provide a mental health triage psychosocial disability through individual and refer to acute care teams where support packages.NDIS statistics indicate appropriate” (Queensland Government, that in the July to September 2020 quarter, 2020). there were 7,067 participants with psy- Emergency Care chosocial disability in Queensland, who had an individually funded plan under the The entry point into the clinical mental NDIS (NDIS, 2020). Since its introduction, health system is often through hospital the scheme has been criticised about its emergency departments. Due to the lack accessibility and its ability to respond to of alternatives available in the community, participants with mental illness. people in crisis either turn up themselves or are brought in by emergency services The Queensland government continues and the police. There are some interesting to fund other local supports through the programs, providing community triaging non-government sector. Many of these points with an element of lived experience, operate in conjunction with clinical services but they generally lack the resources to and often require a clinical referral. This provide effective 24-hour assistance. In means they are not readily available to Queensland there are eight new crisis support the public as an early intervention or spaces being trialled which are in various self-management option. stages of development. 1.2 The impacts of COVID-19 Forecasting the lasting impacts on the nation’s mental health is particularly challenging without The problems of the system are not new, but the knowing the duration of the pandemic, and pandemic has amplified them. The full impacts without any similar scenarios to draw upon. of COVID-19 have not yet been realised and are What is clear, is that in the long term there is likely difficult to predict. What we do know is that the to be a significant increase in the number and psychological distress is widespread, stemming severity of mental health issues requiring a largely from the immediate impacts of the virus response from the mental health system. and the consequences of physical isolation and separation from and/or death of loved ones. The Black Dog Institute reports up to a 40 In addition, many people have lost or are at risk per cent increase in calls to support lines like of losing their income and livelihoods, creating Beyond Blue and Lifeline and online supports. uncertainty about the future. We know that there In a recent Australian study 78 per cent of is strong evidence that employment has a respondents indicated their mental health had positive relationship with mental health and that worsened since the beginning of the pandemic, with every 1 per cent increase in unemployment, with a significant impact on the mental health there is a comparable increase in suicide rates of those with a pre-existing mental health issue. (Christensen, 2020). 10 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
Given that loneliness, social isolation, and (Christensen, 2020). Australian Bureau of financial stress are significant risk factors for Statistics data released in May 2020 suggested mental distress and suicidal ideation, it is that 76 per cent of Australians with children particularly concerning that 80 per cent of in their household kept them at home during people have reported moderate to extreme that period. In order to care for their children loneliness and worries about finances (Newby, 38 per cent of people worked from home, 22 2020). The onset of COVID-19 has also led per cent worked reduced hours or changed to an increase in alcohol consumption with their working hours and 13 per cent took leave 55 per cent of Australians reported to be (Australia. Australian Bureau of Statistics, 2020). drinking at levels hazardous to their health The added stress within relationships and the (Christensen, 2020). restrictions on movement has correlated with a 30 per cent increase in violence towards women, In the past year, investment into acute mental adding yet another level of consequence to health services has increased to deal with surging the public health actions (Christensen, 2020). demand, suggesting more people are asking for help for the first time. In its December 2020 Older people are also at increased risk not only budget, the Queensland government allocated from the life-threatening complications of an extra $743,488 million to the state’s health COVID-19 but also from the stress of accessing budget. The detail of this was closely linked to care for other physical and mental health issues. hospital demand with the announcement of new Loneliness is a major risk factor for mortality hospitals, ambulance stations and health facilities. in older adults and they are more likely to be impacted by social isolation while physical The demand has come from a broad sweep restrictions are in place. of the community. The health workforce is likely to be adversely Emotional difficulties among children and young affectedby the stress of heavier workloads, people have been exacerbated by increasing the risks of becoming infected, of passing the stress and anxiety, including within their families. infection to their own families and communities, The pandemic has led to social isolation, more as well as observing higher rates of death in family violence and disrupted schooling at their care. critical points in the emotional development of young people. Research from headspace The economic fallout is also likely to exacerbate indicates 74 per cent of young people have existing health care disparities. This will result experienced poorer mental health than before in a disproportionate impact on those already the pandemic. Many feel that COVID-19 has socially disadvantaged including those with had an adverse impact on their confidence in serious mental illness, disabilities, Aboriginal achieving future goals. Interestingly, their most and Torres Strait Islander people, the LGBTIQ+ frequently used coping strategy has been talking community and those from culturally diverse to family and a reliance on natural supports backgrounds. (see headspace, 2020). In Queensland, there are additional difficulties The mental health impacts experienced by associated with the state’s size and geographical women are expected to be harsh, judging by diversity. In regional and remote areas, the employment figures alone. Almost 200,000 known risk factors include isolation as well women have lost their jobs and 110,000 have as recurring natural disasters such as bushfires, left the workforce altogether since March floods, and drought. Very few mental health 2020. At the peak of the COVID-19 restrictions services are available, leading to long waiting more than one million women had no work at times and significant travel to receive treatment. all. Women in the workforce are more likely to Sadly, suicide rates in very remote regions are be doing most childcare and household work, more than twice the national average (Australia. as well as home schooling during lockdowns Australian Institute of Health and Welfare, 2021). WELLBEING FIRST 11
In 2019, suicide rates in Queensland were With a philosophy and approach that focusses significantly higher than the national average on wellbeing rather than illness, community (Australia. Australian Bureau of Statistics, 2020). organisations could support people experiencing It is the primary cause of death in Queenslanders mental health difficulties before they reach aged between 15 and 44 and the rate of suicide crisis point, early in the trajectory of their in Queensland’s Aboriginal and Torres Strait distress. Access points and entry pathways Islander population is double that of the general to these wellbeing supports away from clinical population (Queensland Mental Health gateways must also be created. Commission, 2019). For the individual, early intervention will build Without timely and active responses to distress social and economic participation. For com- the rates of mental illness and suicide will munities, it will increase resilience to common inevitably rise. life challenges. For clinical mental health services, it will alleviate many of the current demand 1.3 The response required pressures. And for the nation, it will foster This widespread impact has prompted demands mental wealth. for more help across the population. This requires Governments around the globe are considering a whole of government approach to put the ways to foster mental wealth, in part prompted mental wealth of the nation at the forefront by the effects of the pandemic. The final report of all decision making. from the Productivity Commission Mental There is a better way to provide mental health Health Inquiry outlined an economic argument care in the community. for investment in the mental wellbeing of the nation (Australia. Productivity Commission, In September 2020, QAMH consulted key 2020). It found the economic benefits from stakeholders including CEOs of prominent following its recommendations would amount mental health organisations. There was to as much as $18 billion a year. consensus that not all distress needs a medical intervention. Prioritising mental wealth would reap significant economic and societal rewards. But it requires We know that the most successful public health investment in the mental wellbeing of everyone strategies in times of crisis have been highly – a whole of population wellbeing approach. practical in nature, as exemplified by responses to various natural disasters. The Community Mental Wellbeing Sector is ready to deliver practical support in this crisis. 12 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
Individual benefits Mental health ecosystem benefits • Improved mental wellbeing due to earlier • Reduced demand on emergency intervention departments and acute bed-based • Increased satisfaction that services can services respond to needs • Reduced need for more expensive • Decreased friction points to access support crisis intervention responses • Reduced number of people using the Community benefits Health and Hospital System to access • Increased community wellbeing and support mental wealth • Reduced demand on assessment • Increased economic engagement and and treatment services productivity • Free up space within clinical systems • Increased liveability of care to focus on those that require • Access to services are normalised and clinical interventions encouraged, helping to reduce stigma • Reduced number of referrals from clinical • Increased levels of community access, to community mental wellbeing services engagement, and participation • Improved clarity about the unique • Meet community expectations of acces- contribution of the Community Mental sibility and locally designed initiatives Wellbeing Sector • Reduced duplication and competition between services Mentally Healthy City Townsville groups to build local wellbeing capacity to create, improve and grow community Townsville was the first city in Australia to resources. The MHCT website offers take up the Mentally Healthy Cities challenge information about local mental health and to support population-wide wellbeing. wellbeing supports, including online sites Mentally Health Cities Townsville (MHCT) and apps. Similar approaches have been is auspiced by the Tropical Brain & Mind successfully implemented in London and Foundation to take action to support the Philadelphia. communities within the Townsville City Council area to achieve a balance of mental Find out more: health and wellbeing that enables our citizens to cope with the normal stresses of life, https://www.mentallyhealthycitytowns- realise their abilities, participate in, and ville.com.au belong to community, and work productively. MHCT engages with the Townsville City Council, Townsville Hospital and Health Service, the MHCT Champions, the corporate and business sectors, community mental health sector and broader community WELLBEING FIRST 13
PART 2: THE ARGUMENT FOR CHANGE KEY POINTS • Despite multiple calls for change in • Poor mental health has broad the mental health ecosystem, there economic costs has been no significant reform • The Community Mental Wellbeing • The system is fragmented, siloed, Sector can foster wellbeing outcomes difficult to navigate and designed to that help build the mental wealth gatekeep demand for clinical resources of the nation • A focus on early care in an episode or illness is crucial to ease the pressure on acute services 2.1 Personal experience and outcomes Alarmingly, at a time when there is emerging discourse around the protection of human For decades, the voice of lived experience has rights, the mental health system has been told us they want services that help them stay described by the very people who seek help well and regain control of their lives. The voice within it as traumatising and retraumatising. of lived experience has driven much of the contemporary reform agenda, articulating the The Community Mental Wellbeing Sector has need for a focus on wellbeing, greater self- provided a welcome point of difference. People determination and less restrictive care. with lived experience of our sector, often report their best experiences as those which challenge People with lived experience of care have them to try new things, learn new skills and described a system which is coercive and engage in full community life (Biringer, 2017; entrenched in a culture of discrimination leading Myers et al., 2016). Services that adapt to meet to stigmatised responses from health care the needs of participants rather than offering professionals. This implicit discrimination leads a one-size-fits-all approach can achieve even to low expectations placed on those accessing greater results. services and dependence on the system, limiting their own ability to manage distress, drive their The Community Mental Wellbeing Sector would care, and lead contributing lives (Carrotte, 2019; benefit by continuing to challenge itself to work Edwards, 2017). People with lived experience with people in different ways and ensure its have detailed the power imbalance in the current workforce is equipped to help individuals mental health system; how they have limited drive their own care and outcomes. choice and control of their own treatment; how that treatment relies heavily on medication to alleviate distress, but which, in some cases, impairs their quality of life. 14 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
Gift of Gallang to each week’s session. The program was developed by Mission Australia’s The Gift of Gallang ‘Healing of the Mind, Cultural Connect worker Roxanne Ware, Body & Spirit’ is a suicide prevention school a Bundjalung woman of Northern NSW, -based program specifically developed for who was born and raised in the community Aboriginal and Torres Strait Islander children of Inala. Ms Ware consulted with community, in Brisbane’s Inala region (grades 4-6). The key indigenous organisations, and experts program is also currently delivered in the over a three-year period. The Gift of Gallang Logan and Beaudesert regions. is community-driven, developed and owned The program aims to provide children with by the Aboriginal and Torres Strait Islander tools to support and nurture their resilience community. Training was also undertaken while providing a safe environment. Its to ensure the appropriate and sensitive development was prompted by several components of the program would meet the deaths by suicide of Aboriginal and Torres needs of young ones and youth, delivering Strait Islander children and young people in the core message of healing and resilience. the community. The community recognised the significant impact of these deaths on Find out more: the well-being of individuals, families and https://www.facebook. communities. com/434251400094091/vid- Children are immersed in cultural age-old eos/904179850055259/ traditional ceremonies, practices and https://www.missionaustralia.com.au/pub- spirituality to strengthen their identity lications/research/children-and-families and give them a sense of belonging and connection. These are seen as crucial factors in enabling the children to weather obstacles and adversity in life. Children The program aims to provide are provided and taught strategies using children with tools to support different mediums to manage their own and nurture their resilience while social and emotional well-being. Aboriginal providing a safe environment. and Torres Strait Islander members of the community or those with strong cultural ties to the area facilitate the 11-14 week program, with a psychologist attached WELLBEING FIRST 15
2.2 The Economics of mental wealth Given we know that 1 in 5 Australians already experience mental ill health in any given year Poor mental health has economic consequences (Australia. Department of Health, 2021), we beyond health care, with costs incurred in the can safely assume that this ratio will increase justice system, aged care, housing, and the longer the pandemic continues. A response education. which simply strives to get more people into The Productivity Commission indicated that in face-to-face care with health professionals 2018-2019 the annual cost to the economy of is expensive and not necessarily accessible, mental ill health and suicide in Australia was as relevant, responsive, or effective. much as $70 billion. This is made up of direct expenditure of $16 billion on mental health care, 2.3 Reduce the burden on acute services calculating the annual cost of lower economic The mental health ecosystem is designed to participation and lost productivity at $39 billion respond to the impacts of mental illness, and and $15 billion in replacing the support provided the most resource intensive systems of care by family and/or friends. It went on to say that are in the crisis space. While there is widely the cost of disability and premature death due accepted evidence that early intervention is the to mental illness, suicide and self-inflicted way of the future, much of the focus to date has injury was equivalent to a further $151 billion been on early intervention in life, rather than ear- per year (Australia. Productivity Commission, ly intervention in illness or episode. This means 2020). These numbers make a compelling the system has been geared towards acute economic argument for change. care providing mainly biomedical solutions. Between November 2006 and June 30, 2019, It is well recognised that busy emergency general practitioners wrote 31 million mental departments are over-stimulating and unsuitable health care plans costing $2.75 billion, clinical environments for people in mental distress, but, psychologists provided sessions costing without realistic alternatives, they remain the $2.45 billion and registered psychologists primary entry point for receiving care (Duggan, provided sessions costing $2.6 billion 2020). Mental health presentations to emergency (Rosenberg, 2020). These figures would be far departments have increased by 70% over the greater if all those who needed these services past 15 years (Commonwealth of Australia, 2020). could afford them and were able to access The acute system is consequently struggling them. Even so, there is little evidence to suggest with demand. The hospital has to act as this investment has decreased the prevalence gatekeeper of its limited resources and many are of mental illness. left without care. Those who do make it through The system is costly for the taxpayer and simply the doors are at greater risk of untimely or not producing the outcomes desired for the unplanned discharge and relapse, subsequently health and wellbeing of the nation. Many increasing hospital readmission rates. countries, such as the United Kingdom and There must be a pivot towards mental wellbeing. New Zealand, have begun to realise the impact of wellbeing on the economy and are moving The Community Mental Wellbeing Sector could to a policy language which articulates the value play a crucial role in reducing this burden on the of mental wealth and a stronger emphasis on acute system, by delivering services which early intervention in both life and episode or focus on wellbeing and flourishing and provide illness (New Zealand. Ministry of Health, 2020). active intervention early in an episode of mental distress. This will provide better outcomes for 16 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
the individual and provide alternative avenues 2.5 Limitations of the current mental for help other than the local hospital emergency health ecosystem department. We are not suggesting that there is no need for acute services. But enlisting Many of the reports into the mental health the Community Mental Wellbeing Sector to system in Australia describe a system which provide early interventions would enable acute is fragmented, siloed, difficult for the public to services to concentrate on those who absolutely navigate and designed to gatekeep the limited require them. resources at the clinical end. This is a considered economic and wellbeing Many people in distress miss out entirely. Those strategy to provide the right resources, at the who do not meet the entry criteria for accessing right time in the right place. State Funded Mental Health Services or the National Disability Insurance Scheme but require 2.4 Culture and stigma more support than can be accessed through a GP or PHN, are often referred to as the The overwhelming barrier to change within “missing midle”. the mental health ecosystem is its own culture. Culture is formed by the explicit and implicit The Productivity Commission estimated a values and customs of how we collectively do staggering 690,000 people would likely benefit things. The mental health system’s culture is from access to psychosocial support services the ‘elephant in the room’ when examining the if they were available. However, only 34,000 failure to embrace reform. people currently receive NDIS psychosocial support (which is only just over 50% of those The current culture stems from a paternalistic expected to be eligible when the scheme is fully model of caring which ultimately values the rolled out). In addition, 75,000 people receive expertise of the clinical professional over the support directly from other government-funded experience of the person living with an illness. programs. The gap is massive. The report also People with lived experience of the system acknowledged that many others without a talk about a culture that promotes fear and formal diagnosis may benefit from psychosocial powerlessness and low expectations placed support but would currently need to enter a on their recovery. medical pathway to receive any. It surmised that A similar power imbalance is experienced by as many as one million Australians are missing different services in the mental health ecosystem, out (Australia. Productivity Commission, 2020). stemming from entrenched beliefs about what Despite the significant efforts of PHNs to promote different parts of the system can and should a mix of community services to people, they are contribute. For the Community Mental Wellbeing regularly undersubscribed. Activities include Sector, there are low expectations from other peer support and services with a focus on elements of the system of its professionalism building resilience and wellbeing. However, one and ability to manage risk and support com- of the most difficult challenges for these services plexity. This is due to its evolution and limited is a lack of awareness and recognition of the resources, and despite the positive outcomes value of these supports by GPs. The Productivity being achieved by many community services. Commission states that it is common practice for GPs in Australia to prescribe medication for mental distress (Australia. Productivity Commission, 2020). Referral to existing services is limited and when they do, they continue to refer people to clinical supports. This is through a Mental Health Care Plan for people to access Medicare-funded clinical services, though most will be required to pay a “gap”. WELLBEING FIRST 17
This “gap” payment can sometimes mean The public knows very little about the Community the difference between receiving help and Mental Wellbeing Sector. Most mistakenly languishing without. believe community mental health care is actually private therapy accessed through a GP. The Despite many reports articulating the need for public is largely unaware about the support person-centred care, there is still limited focus that could be provided by the Community Mental on personal recovery and wellbeing models Wellbeing Sector and is therefore unable to with early intervention at the episode or illness advocate effectively for this. level. Trauma-informed care and recovery- oriented practice are widely used concepts that Although some providers run multimillion dollar describe a human centred way to work with national organisations, the sector is made up individuals in distress. But despite pockets of of many small and large organisations that good practice, the reality is that the change have often grown around a unique offering in in language has not deeply altered the methods a particular region. This evolution has resulted in practice. Many people still report experi- in inconsistent expectations of what the sector encing care as coercive and traumatising and its workforce can deliver. As such, the or retraumatising. specialisation and unique contribution of the Community Mental Wellbeing Sector to 2.6 The identity of the Community Mental individuals, communities and the wider mental Wellbeing Sector health ecosystem is not well articulated and The Community Mental Wellbeing Sector has undoubtedly underutilised. largely emerged and grown in response to the Traditionally, wellbeing services are regarded by high demands placed on acute services. It has people receiving care as a welcome alternative been funded primarily to provide aftercare to to clinical intervention, because they offer people diagnosed with a moderate to severe practical support, coaching and life skills. Many mental illness with a focus on preventing services have developed models based on relapse or readmission. consultation with participants. An artificial tension has developed between clinical and non-clinical settings, with an historical misconception that the Community Mental Wellbeing Sector can provide support only under the guidance of clinical services. This keeps the wellbeing sector firmly in the realm of managing illness rather than supporting mental wellbeing. The sector also suffers from limited funding and short funding cycles, creating barriers to attracting, retaining and developing a skilled workforce. Despite this, some services have shown expertise in providing clinical services themselves – and often with a wellbeing and early intervention framework. 18 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
Toowoomba Clubhouse, During their time with Momentum Mental now Momentum Mental Health Health, participants are coached, either online, over the phone or in person. Among Toowoomba Clubhouse provides a the many group activities and programs supportive environment for its members participants can join, are sessions which to develop valuable life skills and receive offer practical help with budgeting, sleep mental health support. The clubhouse hygiene and exercise, and a Job Club. was established 25 years ago, after its Momentum takes a collaborative, inclusive founders noted a shortage of community approach, ensuring there is less of a power -based assistance for those living with a imbalance than in most traditional mental mental illness in the area. CEO Deborah health services. It also uses a number of Bailey describes the service as “not a methods to receive feedback from members, traditional clubhouse” as it offers one- using that feedback to ensure Momentum on-one coaching to meet the needs of remains relevant in its community. individuals. Given the dynamic nature of the service, the organisation is adopting a Find out more: https://www.toowoom- new name – Momentum Mental Health. baclubhouse.org.au Along with the new name, the service has significantly changed the way it offers support. One change that has won strong community backing is that Momentum Mental Health will no longer require a diagnosis to access its services. “If someone wants to work on their mental health and they can access the service how it’s intended, they are welcome,” said Deborah. Another change is that participants will set out their goal on entry, plan how they want to achieve it, how they will celebrate when they reach their goal, and what their situation will look like when they are ready to exit the service. WELLBEING FIRST 19
2.7 The challenge of actioning reform The Productivity Commission acknowledges the findings of its report are not new and that Why have we been unable to effect the many reform documents release earlier have change recommended by multiple inquiries? failed to trigger change. The publication Croakey Unfortunately, the system is stuck in a cycle, provides an insight into the system’s stagnation, holding on to the core belief that medical stating that there is thirty years of evidence intervention is the main solution to the problem. that official inquiries into mental health have While medical responses can be valuable for rarely led to major change; there were thirty-two many, it is not the only strategy to manage of these reports between 2006 and 2012 alone distress and mental wellbeing. (Doggett, 2020). The Productivity Commission suggests that its recommendations would address cultural There is a myth that drives many change barriers to change. initiatives into the ground: that the organisation needs to change because However, the reality is that enacting the rec- it is broken. The reality is that any social ommendations would require shifting resources system is the way it is because the people from acute care to alternative co-designed in that system (at least those individuals models. This would be expensive in the short and factions with the most leverage) want term, until the value of these alternatives could it that way. In that sense, on the whole, on be evaluated and proven. To date, it has seemed balance, the system is working fine, even cheaper and easier to tweak the current system though it may appear to be dysfunctional or invest in more of the same. in some respects to some members and There is a role for a range of services to make outside observers, and even though it faces up the mental health ecosystem. Providing danger just over the horizon. There is no practical early intervention responses early such thinking as a dysfunctional organisation in distress, would allow the more expensive because every organisation is perfectly medical interventions to be used where they aligned to achieve the results it currently are most needed and most effective. gets. (Heifetz, 2009) Human distress does not always need a medical response. 20 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
PART 3: EMERGING OPPORTUNITIES FOR THE COMMUNITY MENTAL WELLBEING SECTOR KEY POINTS • Focus on the sector’s ability • Develop prevention and early to contribute to Queensland’s intervention frameworks to become mental wealth the main entry point to the system • Pivot to a wellbeing framework • Further embrace technology to expand acknowledging the wellbeing service reach and reduce stigma continuum 3.1 A focus on mental wealth Mental wealth is an emerging concept that is A nation’s Mental Wealth is defined as the gaining traction across Australia and the world. collective cognitive and emotional resources Nations have been challenged to use mental of citizens. It includes people’s mental capital, wealth as an indicator of economic and social their mental health and well-being which prosperity (Beddington, 2008). The economic underpins the ability to work productively, benefits of pursuing policies that are driven creatively and build and maintain strong by wellbeing include increased individual positive relationships with others. productivity, reduced mental illness related How a nation nurtures mental capital, mental Disability Adjusted Life Years1, increased health and wellbeing, through adequate economic security, greater economic prosperity, education, economic security, housing, and increased collective community resilience. healthcare, psychological and cultural safety, It is only through harnessing citizens’ cogni- and through equal access to opportunity, tive resources that nations will prosper both will have a significant effect on its economic economically and socially. Early interventions competitiveness and prosperity, and the are key to this endeavour. collective wellbeing and resilience of communities. 1 One Disability Adjusted Life Year represents the loss of the equivalent of one year of full health (WHO, 2000). WELLBEING FIRST 21
3.2 Pivot from mental illness to wellbeing The mixed language often places mental wellbeing and mental illness opposite each The United Nations has called for countries other on a single continuum. However, good around the world to use the current focus on mental health or mental wellbeing is not simply mental health to propel reforms that finally the absence of mental illness and is not shift care away from institutions towards a necessarily achieved through the treatment community approach. The United Nations of mental illness alone. says resources should be made available for community-based initiatives to activate and The wellbeing continuum strengthen local and natural supports and Mental wellbeing and mental ill-health are two encourage a spirit of community self-help. different constructs, which move along two (United Nations, 2020). discrete but related continuums with clear This time of crisis represents an opportunity valid indicators articulating their differences for community-managed mental health ser- (Keyes, 2005). vices to embrace a wellbeing approach. This would provide a distinct yet complementary response to the crisis, that would also be At any given time, you can have: sustainable. • Low, moderate, or high levels Now is the time to finally redesign the sys- of mental wellbeing, AND tem, with a real understanding that respond- ing to mental illness does not automatically • None, some, or all the symptoms create states of wellbeing. of a particular mental illness. Wellbeing can only be achieved within an ecosystem, that is underpinned by a flour- ishing framework responsive to all levels of Mental wellbeing exists on a continuum, ranging human distress. Three critical and central from floundering to flourishing [figure 1]. A dual tenets are necessary to guide the design and focus on both the mental illness continuum delivery of contemporary community mental and the wellbeing continuum will ultimately wellbeing programs; (i) wellbeing opportu- provide the best outcomes. The mental illness nities, (ii) strengthening capacity to function continuum requires the expertise of the clinical well, and (iii) promoting community wellbeing sector, while the Community Mental Wellbeing (Westerhof & Keyes, 2010). Sector provides the expertise along the flour- ishing continuum. The terms ‘mental illness’, ‘mental health’ and ‘mental wellbeing’ are used interchangeably The impact of languishing or poor mental but they are significantly different constructs. wellbeing is as expensive and detrimental as The World Health Organisation (WHO) de- the experience of serious mental illness. Keyes clares mental health as, “a state of well-being (2005) stresses that only 20 per cent of the in which the individual realizes his or her own population experience states of flourishing at abilities, can cope with the normal stresses of any one time, making early intervention key life, can work productively and fruitfully, and to improving quality of life and economic and is able to make a contribution to his or her social participation. community” (WHO, 2004). A mental illness is a health problem that significantly affects how a person feels, thinks, behaves, and interacts with others. It is also diagnosed according to standardised criteria (Australia. Department of Health, 2021). 22 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
High presence and experience of wellbeing indicators Mental Health & Wellbeing Continuum SS CO NE MP ILL LE AL TE E NT M High presence of mental illness symptoms Low presence of mental illness symptoms EN M TE TA LE L HE MP ALT INCO H STRUGGLING FLOURISHING Mental Illness Continuum FLOUNDERING LANGUISHING INCO ESS N M ILL PL AL TE E NT M E EN M TA E T L LE P HE ALT COM H Low presence and experience of wellbeing indicators Figure 1: Dual Mental Illness – Mental Health Continuum (adapted from Keyes, C 2005) We can all experience mental wellbeing Many of the wellbeing challenges that people challenges. A mental wellbeing challenge should experience, including those with an existing not be considered any less distressing than a mental illness, are not necessarily symptoms mental illness. Left unaddressed, challenges of a mental illness, yet often are responded to our mental wellbeing will leave most of us to as such. languishing, severely impacting our ability to A mental wealth approach which values the live well, work productively, and contribute wellbeing of citizens will take seriously all levels positively to community life. of human distress, addressing it early with the Mental wellbeing challenges usually result from expectation that will prevent chronic and costly loss, poor liveability, social disconnectedness states of languishing. The dual continuum of and inequity. This impact is compounded when mental illness and mental health clearly articulates we have exhausted our personal resources: the valued and diverse contributions necessary a loss of opportunities, loss of roles, changes within the mental health ecosystem. Reducing in relationships, loss of purpose, experiencing the burden of mental ill health and maximising racism or sexism, discrimination, loss of economic the potential of people’s mental wellbeing are means, economic instability, inability to con- essential service responses required to attain tribute, loss of autonomy, and personal agency. high levels of community mental wealth. WELLBEING FIRST 23
3.3 The potential of the Queensland than its historical role of providing aftercare Community Mental Wellbeing Sector and should be repositioned as a vital adjunct to clinical treatment. Creating mental wellbeing requires a different design with a different endpoint in mind. Services We know that just one per cent of public health that lead to a connected and contributing life funding is spent on prevention (Christensen, in the community are more likely to produce 2020). In the mental health context, most of this the outcomes articulated by the Productivity goes to early intervention in life as opposed Commission. to early intervention in illness or episode. However, early intervention in episode would The Queensland Community Mental Wellbeing ensure better outcomes for people with severe Sector is an underutilised resource. There are and complex issues and for those described a range of organisations, employing wellbeing as the “missing middle”. It would also prevent specialists, adhering to a mental wellbeing the bottle necks and demand that currently philosophy, that could play a much greater role plague the acute system (Table 1). in our communities. The sector can do far more FLOUNDERING LANGUISHING STRUGGLING FLOURISHING Moderate to low Moderate to low Moderate to high Moderate to high states of wellbeing states of wellbeing states of wellbeing states of wellbeing with moderate to with moderate to with moderate to with moderate to high mental Illness low mental Illness high mental Illness low mental Illness symptoms symptoms symptoms. symptoms In the current system In the current system In the current system This is a small these people are these are the people these people are percentage of the most likely that are most likely likely to be managing people who are to be admitted to be accessing their own mental living well are resilient to acute mental primary care or no illness symptoms group but have health services services. They may well and getting on incorporated and accessing be experiencing with other aspects wellbeing strategies community-based early-medium in of their life. They into their daily mental health episode distress may be experiencing lifestyle. They services. levels. The lan- early-in episode are unlikely to guishing group distress levels. be accessing any could be considered Likely only to access formal helping some of the ‘missing minimal treatment services. middle’ that current for mental illness. programs are not designed for (largest % of population) Table 1: Describing “Floundering” to “Flourishing” cohorts of people across the wellbeing continuum. 24 QUEENSLAND ALLIANCE FOR MENTAL HEALTH
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