Still left behind: Pathways to inclusive education for girls with disabilities - June 2017
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Acknowledgements This report was prepared by a Leonard Cheshire Disability team led by Ola Abu Al-Ghaib (Deputy Director), Karen Andrae (Consultant) and Rachel Gondwe (Learning Impact and Quality Manager). The team is grateful to the UN Girls’ Education Initiative (UNGEI) for their support and guidance, in particular Nora Fyles (Head of the UNGEI Secretariat) and Paula Pönkänen (Intern). Photography credits Hamish Roberts, Planet Caravan, Arjun Kohli/Arete Stories/GCE UK
Still left behind: Pathways to inclusive education for girls with disabilities Executive summary Girls with disabilities are among the world’s out, more than boys, and often due to gender- most marginalised groups of society, resulting related challenges. There needs to be more from social norms and cultural bias around in-depth analysis of the interaction between gender and disability. Those agencies gender and disability, and more attention to committed to gender equity in education power relations on which gender roles are overlook the specific situation of and added based. Child protection issues are recognised barriers faced by girls and women with and addressed but need more rigorous disabilities, and those who are committed monitoring of how policies are developed to disability inclusion and equity fail to apply and implemented. a gender perspective. As a result, girls with disabilities have limited educational Inclusive teaching methods are shifting to opportunities. more child- and learner-centred approaches and classroom adaptations. However, girls The aim of this research was to provide a with intellectual and profound disabilities synthesis of the understanding of barriers continue to be marginalised due to a lack to education for girls with disabilities and of policy clarity on how to provide education bring together evidence of effective or for children with more severe disabilities, and promising programme approaches that the gaps in resources and teacher capacities address these barriers. to support these children. There needs to be more in-depth impairment-specific and Despite growing commitment to gender and gendered analysis, with documentation and disability inclusive education by governments, sharing of applied and effective inclusive donors and (inter)national development education practices. organisations, there is still very little in the way of documentation and robust evidence Collaboration among non-state actors is on research and programmes that address important in reviewing and submitting the intersectional marginalisation of girls recommendations on adaptations to legislation with disabilities in education. and policies. It is especially critical to review policies on inclusive education with a gender The majority of the inclusive education lens and align policies on inclusive education programmes on which documentation was and girls’ education. The intersection between available were implemented by disability- gender and disability and the gendered focused organisations. This may account for nature of marginalisation for children with the greater emphasis on disability inclusion, disabilities needs to be analysed in depth with gender as a secondary factor to exclusion. to help formulate and monitor policies While there has been evidence of greater and programmes. numbers of girls with disabilities enrolled and retained in school, there is also consistent reference to girls with disabilities dropping 3
The key findings and recommendations from the report are: • The development of gender- and • Governments should develop national disability-sensitive indicators will provide education policies to protect children from a more consistent picture of educational abuse, neglect, violence and exploitation inclusion and allow for comparison across both within and outside the school setting. programmes. • The integration of research and • The application of an equity-focused gender documentation of good practice on and disability lens to budgeting and resource education interventions for girls with allocation will support (hidden) costs that disabilities into education plans and disproportionately affect girls robust processes to monitor the impact of with disabilities. interventions on girls with disabilities will help build a much needed evidence base. • Greater efforts to embed gender equality principles in teacher training on inclusive • Greater collaboration between mainstream education will promote more positive and disability-specific organisations and attitudes towards girls with disabilities. Disabled People’s organisations (DPOs) is indispensable in order to bring all relevant • Donors and other development partners expertise together towards greater impact. that invest in education programmes should ensure programmes are both disability inclusive and gender sensitive. 4
Contents Introduction: the context 6 Section I: Background 8 Section II: Barriers to education for girls with disabilities 11 Section III: International frameworks and policies/position papers 21 Section IV: Programmes and practices addressing barriers 28 to education for girls with disabilities Section V: Conclusions 39 Section VI: Recommendations 44 Bibliography 48 Annex 1: Organisations contacted 50 Annex 2: Guidelines and toolkits 51 Endnotes 52 5
Introduction: the context Girls with disabilities are among the world’s most marginalised groups of society, resulting from social norms and cultural bias around both gender and disability. Yet their needs, and the double discrimination they face, have largely been neglected and overlooked in education dialogue and practice. This greatly limits their educational opportunities.1 Those committed to gender equity overlook the specific situation of and added problems faced by girls and women with disabilities, and those who are committed to disability inclusion and equity fail to apply a gender perspective.2 Both disability and gender are significant factors for exclusion and are often treated separately. Sustainable Development Goal (SDG) 4 focuses on ensuring inclusive and quality education for all and promoting lifelong learning. Gender equality has been recognised as crucial for achieving the right to education for all. It is also a critical element of a broader perspective on equity and inclusion where gender inequality is heightened through additional factors of exclusion, for example in situations of conflict, in rural areas, among the poorest households and for children with disabilities and members of ethnic minorities.3 This report explores the challenges faced by girls with disabilities in relation to education, and what can be done to address them. Section I explains the purpose and methodology of the desk research, and clarifies the most important terminology. Section II starts from the gender perspective and explores the additional layer of barriers added by disability for girls. Section III gives a brief overview of relevant international frameworks that relate to gender and disability in education. It also looks at policies by government development departments, civil society networks and organisations that seek to address gender and disability in submissions to duty bearers, or in organisational strategies. Section IV describes selected programmes or projects that have addressed or are addressing the education of girls with disabilities, analysing their effectiveness and highlighting gaps and challenges in tackling barriers. Section V provides conclusions and recommendations based on the findings. 7
A. Purpose of the progress review This progress review aims to contribute to and bring disability into discussions around SDG 4 by: • providing a synthesis of the understanding of the additional barriers that girls with disabilities face in education • highlighting effective or promising approaches and programmes addressing these barriers, including policies and legislation • pointing to gaps in evidence • providing recommendations on a way forward B. Methodology The research was broad in scope, aiming to interventions that were implemented since provide a global perspective. An Internet the enactment of the UN Convention on the search of relevant grey and academic literature Rights of Persons with Disabilities (CRPD) on gender-responsive inclusive education was in 2008. In the absence of, or in addition to carried out. A search of websites of (inter) available documents that could be shared, national non-governmental organisations, a number of interviews with relevant staff donors, and research institutions on the were held to clarify details and/or elaborate subject of gender-responsive inclusive verbally on education interventions aimed education was conducted. In addition, requests at girls with disabilities. for information on gender-responsive inclusive education interventions were submitted to Academic articles were included when they platforms such as the Pelican Initiative and explicitly explored or referred to interventions the Gender and Development Network UK. for girls with disabilities. Grey literature Subsequent referral to contact persons was consists of case studies, summary brochures of followed up via email and phone with requests studies, and mid-line and end-line evaluations. for sharing of studies, evaluations, progress Information on organisations’ websites may be reports, and other relevant documents of mentioned but is not considered evidence. 9
C. Clarification of terminology Disability is defined by the CRPD as ‘an Special education is when children with evolving concept and that disability results disabilities are educated separately from their from the interaction between persons with non-disabled peers, usually in special schools impairments and attitudinal and environmental or institutions. barriers that hinders their full and effective participation in society on an equal basis Integrated education is when children with with others.’ This definition is based on the disabilities are educated in mainstream schools social model of disability, which highlights but either separately from other children in the importance of interaction and the fact special classes or alongside non-disabled peers that society is the main contributory factor in mainstream classes that have not been in disabling persons. This contrasts to the adapted and/or modified to meet their needs. medical model of disability where the focus is on an individual’s impairment. Inclusive education refers not only to disability but also to the concept that Gender refers to the social attributes and education systems must include and serve all opportunities, roles and responsibilities children effectively with the commitment to associated with being male and female, and leave no one behind. All factors of exclusion the relationships between women and men must be tackled by ‘addressing and responding and girls and boys. Gender determines what to the diversity of needs of all learners through is expected, allowed and valued in a woman inclusive practices in learning, cultures and or a man in a given context.4 However, these communities and reducing exclusion within and concepts are learned and can change over from education.’ 7 Inclusive education covers time and vary within and between cultures. a variety of hard-to-reach and marginalised children e.g. street children, working children, Gender sensitivity refers to the ability to children from ethnic, religious and linguistic recognise the impact of gender roles and minorities, nomadic and displaced children expectations. A gender-sensitive programme and those living in informal settings. This takes these roles, norms and relationships means that a variety of targeted interventions into account. with attention to each child’s specific context is necessary to ensure that the education Gender-responsive policy and programming system is inclusive, ideally providing goes beyond the identification of gender choices for parents and children to find the issues and working with the specific needs educational environment most suited to each under a ‘do no harm’ principle. Instead, it helps child’s needs. address and overcome historical bias, actively seeks to reduce harmful effects of unequal gender roles and norms, and works towards gender equality.5, 6 10
II Barriers to education for girls with disabilities 11
The World Report on Disability (WHO, World Bank, 2011) estimates that between 93 million and 150 million children up to the age of 14 are living with disabilities. They are less likely to enrol in education, and education for girls with disabilities, especially have lower rates of attendance and completion, compared to boys with disabilities, and girls making disability one of the most prominent without disabilities, reflects this. This makes factors in educational marginalisation. This it difficult to clearly identify the intersectional needs to be seen not only in the context of bias of gender and disability.12, 13 access but also with regards to the quality of education in an enabling environment that is Barriers to girls’ education and gender conducive to learning.8 parity in education are deeply entrenched in social norms and reflected in institutional Adding a gender dimension, the analysis of constraints and inadequate legislation and 51 countries included in the World Bank/ policies. Schools tend to mirror patriarchal WHO report shows that ‘50.6% of males with structures and reinforce traditional gender disabilities have completed primary school, roles and stereotypes. This perpetuates compared with 61.3% of males without gender inequalities in each generation disabilities. Females with disabilities report of school-going children.14 41.7% primary school completion compared to 52.9% of females without disabilities, a • Inadequate legal frameworks and lack difference of 8.9% between males and females of policy enforcement mean that girls are with disabilities.’ 9 often not registered at birth. They are therefore not eligible for school enrolment or Comprehensive research conducted by Harilyn examinations.15 Rousso for UNESCO found that the literacy rate • Families often resist sending their daughters for adults with disabilities is 3%. For women to school for fear of their safety and with disabilities the literacy rate is even lower, protection from sexual violence, or because at 1%.10 However, overall there is a dearth of they don’t see the value of education for girls education statistics on women and girls with who are meant to marry and focus on care disabilities. for home and families.16 • Other social norms around traditional It is recognised that whilst the education division of labour expect girls to take on of girls and women is of significant and far- unpaid care (e.g. for siblings) and domestic reaching benefit for women, their families and work. communities, barriers to education for girls in • School-related gender-based violence developing countries remain. Interventions on is a major reason for children dropping girls’ education have often concentrated on out of school, with girls experiencing enrolment and attendance, and less on their predominantly sexual violence, and boys meaningful participation and empowerment.11 more often physical violence from teachers, staff and peers. School-related gender based Both disability and gender are significant violence can occur during travel to and from factors for exclusion, yet the focus of attention school and at school (empty classrooms, (and this is reflected in the available literature) toilets, playgrounds).17 has mostly been on either one or the other. • The lack of appropriate sanitation, especially Internationally, little attention has been paid to in the context of menstruation, accounts for exploring and addressing gender issues among girls dropping out or regularly interrupting children with disabilities in education sector their education. plans. The lack of research and literature on 12
• The consequences of sexual violence and Enrolment harmful practices such as early marriage and Cultural bias and rigid gender roles are the most Female Genital Mutilation/Cutting (FGM/C) frequently mentioned barriers to education for coupled with an inflexible curriculum prevent girls with disabilities. It is often assumed that girls from returning to education, especially girls with disabilities will not marry. This can when they are pregnant or have small children. contribute to further devaluation of a family in • Teachers’ expectations are often gendered societies where girls are clearly of lesser value. and reinforce gender stereotypes and As a result, girls with disabilities are often hidden patriarchal structures. Curriculum material and to avoid the associated shame and ostracism.22 learning and teaching processes reflect male- A study in rural Iran, where farming is the centred perspectives and power hierarchies.18 primary activity, emphasises the intersection • Learning outcome differences (numeracy, between gender, disability and rurality where literacy) between girls and boys are dependent educational opportunities are limited to begin on location, poverty/wealth level, type and with, and traditional patriarchal gender beliefs severity of disability, and ethnicity. Disparities further reduce educational chances for girls are often reinforced by gender stereotyping. with disabilities. Education is seen as having • In some countries girls’ education is the purpose of getting a job. As girls in general, deliberately targeted, e.g. in Afghanistan, and girls with disabilities in particular, are not Nigeria, and Pakistan. This results in girls being expected to work, there is no perceived need physically harmed or removed from school for for education. Their role will be entirely focused their safety.19, 20 In regions of conflict and where on unpaid care and domestic work while being people are displaced and separated from their financially dependent on fathers and brothers.23 homes and families, girls are at even higher risk of losing out on an education. Economics are therefore connected to gender roles. In impoverished families, resources have It is well accepted that gender interacts with to be carefully managed. The value of education other factors based on, for example, age, (and subsequent investment) is most often ethnicity, location (rural/urban), and disability. reserved for boys as they are expected to return All of the above barriers apply to girls with the investment at some point by supporting the disabilities. However, the disability bias adds family. Boys with disabilities may still be expected another layer of obstacles and risks, thereby to marry and become breadwinners, and are intensifying their exclusion. Furthermore, therefore more likely to be sent to school than the community of girls with disabilities is girls with disabilities (and sometimes girls without not a homogenous group. Different types of disabilities).24 impairments carry different levels of stigma and diverse needs, which require a variety of A study in the Middle East found that with accommodations and modifications. more resources available at family level, and precisely because they are not expected to marry Research findings from Education for All (EFA) and fulfil the traditional roles of mothers and in 2003 into the educational opportunities and wives, girls with disabilities are given greater outcomes for girls with disabilities come to freedom and have therefore greater access to the conclusion that little is known about how education and vocational training. Because of the girls with disabilities have fared. What can be perceived lack of traditional value, there is no fear extrapolated from the research points to rather for her safety as it is assumed that the disability disappointing results.21 Unfortunately, it seems renders her invisible or undesirable.25 However, that almost 15 years on, there is still scarce there is not enough global research on how and research into girls with disabilities in education, in which contexts wealth influences the freedom and many barriers remain in place. of girls with disabilities to establish if the study is an isolated finding or representative of access to education for girls with disabilities from middle and upper class families. 13
In (post-) conflict areas, girls with disabilities Distance and transport often do not access education. In Northern In rural areas, schools are more likely to be Uganda, for example, women with physical at a considerable distance from home, which disabilities said that during the conflict they would either require boarding, long walks or were never sent to school by their parents. This costly transport. Overprotection of girls with was because of long distances from rural homes disabilities often means that they are kept at to schools without transport, inaccessible WASH home because parents want to keep them facilities, and the constant threat of violence. close by. Adolescent girls with disabilities who have remained in camps for internally displaced In some countries, such as Tanzania and people – because they have been separated Uganda, girls with Albinism are at high risk from families and have no means or further of violence based on the myth that a body connections to return to their homes – are often part from a person with Albinism can bring forced to choose a relationship with a man good fortune. Residential settings are often not for protection and financial support, thereby trusted because of the high risk of abuse; or forfeiting opportunities to get an education.26 there may not be enough affordable boarding facilities that are available and accessible for A study on education and disability in countries girls with disabilities. affected by conflict found that in Darfur, non- formal education structures and child-friendly Even transport to schools close to home may spaces such as children’s clubs function both be necessary for a girl with limited mobility to protect and educate children through play, or a visual impairment. Gender bias in access learning and socialisation. In some cases clubs to rehabilitation and assistive devices such as also provided extra food and information e.g. wheelchairs, prosthetic and orthotic devices, vaccination campaigns. Girls were more often means that women and girls with disabilities enrolled than boys because the latter were are referred and fitted out less often than expected to help with agricultural chores and men and boys. Girls are dependent on family minding cattle. However, few children with members to carry them, or provide escort for disabilities were reported to attend, most often safety and cultural reasons, which is prohibitive because of parents’ lack of understanding, in regard to time investment and costs, shame over disability, ill health of children, lack especially when parents are poor, and need of transport etc. These clubs were seen as a first to pursue livelihoods. step to school, and UNICEF and other INGOs were involved in lobbying the government of Research from Latin America found that boys Sudan to formalise the clubs into official pre- with disabilities are more likely to ask for help school education structures. At the time of the from friends e.g. being lifted into buses, or study’s publication (2011) it was of particular use more dangerous forms of transport such concern that no efforts were being made to as adapted motorcycles. Girls with disabilities make these clubs inclusive so that children are seen as fragile and dependent and unable with disabilities would not miss out on pre- to rely on peers, or find creative solutions to school opportunities in preparation for problems of transport and support. This results formal education.27 in girls being kept safe but isolated.28 14
Inaccessible infrastructure, toilet facilities In addition, the myth (in many African and assistance countries) that having sex with a girl with a The absence of accessible school buildings disability who is a virgin will cure AIDS puts and classrooms is a barrier for all children with them at an especially high risk of HIV infection, disabilities. Lack of accessible and/or separate pregnancy and other consequences of sexual toilets and washing facilities place a particular assault and rape – particularly in situations of burden on girls with disabilities who may need conflict and displacement. Research conducted assistance with toileting, and menstruation in the USA found that girls with disabilities management. A girl’s need for help with had higher rates of adolescent parenting than such personal tasks is of concern especially non-disabled girls, and that sexual abuse in societies where modesty is emphasised. was often the cause for the pregnancy.33 Lack of provisions that may help girls with Girls with disabilities are also at risk of being (and without) disabilities to manage trafficked or sold into prostitution because their their periods in a safe way may reinforce impairments are assumed to limit their chances stereotypical and negative attitudes about of escape.34 girls’ inability to function as students.29 A recent global study on school-related Violence and harmful practices gender-based violence found that, especially Whilst sexual violence is a potential risk for in sub-Saharan Africa, violence against girls by all girls, and to some degree boys, girls with (older) male peers and teachers is common, disabilities experience violence at much higher with sexual abuse by male teachers more rates, and at more severe and chronic levels often in regions that experience conflict and than their non-disabled peers within the in refugee settings. Children with disabilities, family, institutions, and the community. Girls those from ethnic minorities and orphans with disabilities are perceived as helpless, are at higher risk. School-related violence asexual and powerless and are therefore at is often referred to in the context of, for particularly high risk, especially in residential example, bullying, and gang violence, without school settings.30 Girls with disabilities lack attributing violence to gender.35 Similarly, there general education and sexual health education. is increased recognition that students with They may not recognise risks or know how to disabilities face disability harassment. There respond to sexual harassment or violence. is little attention to the combined sexual and Girls with intellectual and hearing disabilities disability harassment that girls and young are the most at-risk groups of girls to women with disabilities face. However, pilot experience sexual violence. Girls with studies from the USA suggest that girls with disabilities are less likely to report abuse, disabilities face higher rates of abuse than boys and if they do they are often considered not who are disabled or girls without disabilities.36 credible, especially if they have a sensory, When violence is reported to management, intellectual, or psycho-social impairment. institutional status and reputation take The disability and gender bias exhibited by precedence over the rights of girls with (and authorities, e.g. police and community leaders, without) disabilities.37 does not afford the girls enough importance to take complaints of sexual violence and other forms of abuse seriously.31, 32 15
Early marriage Assistive devices, rehabilitation and special Early marriage is both a cultural expectation education services linked to gender roles, and a potential coping Girls with disabilities have less access to strategy for economic survival. Many poor assistive technology and rehabilitation, and families will try to marry their daughters with are less likely to receive additional educational disabilities as soon as possible to transfer the support than boys.42 In industrialised countries, burden of care and be assured that someone where school personnel identify ‘special will take care of their daughter. This puts these educational needs’, boys tend to be on girls at higher risk of ending up in abusive teachers’ radar with behavioural issues and relationships and prevents them from accessing are subsequently identified with perceived education.38 learning difficulties. Girls often don’t act out at school due to cultural pressures. A study Lack of positive representation and role models from Great Britain noted that particularly girls Educational materials used by students with with emotional disabilities had limited access disabilities show either a stereotypical or to education services. Girls with disabilities under-representation of women and girls with in the USA often only received services after disabilities. The lack of role models, i.e. women they showed behaviours typical for boys who (and men) with disabilities, in educational were already receiving special education and/ material, in the media, and as educators and or presented with more significant levels of mentors, underline their invisibility. Positive disability than boys.43, 44 Special education role models are needed to shift attitudes and schools are most often located in urban areas encourage girls with disabilities (and their and are less accessible to rural children with families) to pursue education.39 disabilities, specifically to girls with disabilities. In India, eight out of ten schools for blind Teacher training and attitudes students in New Delhi are boys-only schools, Girls with disabilities can remain invisible even though there is a much higher rate of in a competitive classroom climate when blindness among girls than boys.45 teachers have low expectations of children with disabilities in general, and girls with disabilities Vocational training and careers advice in particular. Even in special educational schools, Vocational training and careers advice teachers may be more trained in teaching life for adolescent girls with disabilities are skills and vocational skills to children with often gender stereotyped, guiding them disabilities (for example embroidery for girls towards lower paying jobs with fewer career or carpentry for boys) and don’t focus enough advancements, or are discouraging them to on academic achievements.40 Teachers often continue education beyond the most basic don’t have the skills to adapt their lessons levels. The lack of adequate and more diverse and material to specific impairments and vocational training contributes to the higher different levels of severity of disability. In unemployment rate among young girls with developing countries, the move to universal disabilities after they have left school.46 free primary education has meant that the number of enrolled children in classes has not been matched by teaching staff. In classrooms where the teacher- children ratio can be 1:100, and education assistants or other support are not usually available, there is little time and opportunity for teachers to support children with disabilities. Girls with disabilities are most likely to be overlooked. Experiences of bullying, being outnumbered by male peers and being discouraged to succeed all contribute to low self-esteem and a high drop-out rate.41 16
Costing A 2016 report #Costing Equity – the Case for The report states that child-friendly inclusive Disability-Responsive Education Financing, education contributes to gender empowerment coordinated by IDDC and Light for the World, and that gender-responsive budgeting has calls for substantial additional investment in been crucial in understanding the impact of systemic reform to achieve inclusive education. budgets on girls and boys. However, there is This would mean governments taking into no further emphasis on making budgets both consideration the higher costs associated disability- and gender-responsive. with the additional needs of some learners. However, investments in teacher training Barriers to education have multiple and and child-friendly, safer, and accessible complex layers, all of which are interrelated in, infrastructures would benefit all children. at times, complex ways. These include social Adapted learning materials such as Braille, norms, attitudes and value systems, political large print, audio and easy-read books, along will, institutional capacities and resources, with improved and accessible Information and technical knowledge and skills, and attitudes. Communication Technology, are often not The table on pages 18-20 summarises the available in developing countries. This would barriers to education faced by girls with and significantly increase educational opportunities without disabilities. The first column shows the and achievements of children and young people shared obstacles that girls with and without with various impairments. Assistive devices are disabilities both encounter. The second column often not affordable for families of children describes the additional barriers for girls with with disabilities, especially when they have disabilities. The last column encapsulates the to be regularly adjusted for growth. Inclusive root causes of the barriers. budgeting with an equity-focused gender and disability lens is essential to ensure that funds are available and appropriately allocated.47 17
Shared barriers Additional for girls with Issue and without + barriers for girls Root causes with disabilities disabilities Enrolment, Boys prioritised + Priority of non- Social norms/attitudes that girls with completion when resources disabled siblings, disabilities have less value, based on including are scarce. and boys with both gender and disability; resource- costs disabilities poor families make choices based on Early marriage, over girls with perceived return on investment and harmful disabilities. gender roles. practices; unpaid care Hidden away due Misconceptions and stigma attached and domestic to shame or fear to disability isolate families and girls work over for safety; forced with disabilities; low status of girls value of marriages. with disabilities and male dominance education. don’t afford girls with disabilities Refusal of schools decision-making power. to enrol. Attitudes and stigma extend to the school authority and confirm the bias at institutional level. Distance of Safety concerns + No accessible Resource gap both at family and schools and during travel transport – at institutional level – government transport to and from depending subsidies often don’t cover real costs; school related on availability transport infrastructures are not to safety of of parents to designed with disability in mind. transport and provide transport; protection diminished access Lack of political will and resources to from abuse, to mobility aids. provide adequate school places for especially girls with disabilities. sexual violence. Fewer secondary schools for girls Gender inequality and power with disabilities imbalances between men and or accessible women put girls at high risk of boarding schools, sexual violence. This is exacerbated especially in by the even lower status of girls with remote areas. disabilities, and the frequent lack of consequences for perpetrators. Higher risk of sexual violence in Institutional gaps in providing residential special protection and redress are based on schools and higher a combination of lack of capacity in risk of sexual understanding disability and negative violence during attitudes towards girls (and women) school journeys. with disabilities. 18
Shared barriers Additional for girls with Issue and without + barriers for girls Root causes with disabilities disabilities Teaching/ Girls + Poor learning Social gender norms that place learning overlooked in outcomes result higher value on boys and lower methods and classrooms, in girls pushed expectations on girls reflected in material gender to repeat classes male perspective in pedagogy and stereotypes beyond age- curricula. reinforced appropriateness. through Social norms on gender appropriate curriculum and Limited availability behaviour in interaction with peers male-centred of reasonable and teachers, and on perceived pedagogy. accommodations suitable professions for women, or learning reflected in unequal resource Girls not materials. allocation and limited diversity in included in professional offers for girls in higher classroom No encouragement education. discussions to transition and pushed because of Teachers not motivated/not trained into non- perceived lack of to adapt teaching material and professional labour productivity, pedagogy, or don’t believe in courses, pushed into low- inclusive education. This is based on limited skill vocational poor incentives by government and/ transition to training. or limited resources, and attitudes secondary that children have to adapt to the education or Limited referral for school and fit into the education vocational assistive devices system. training and to and rehabilitation. work. Misconceptions over capacity of Lack of health/ girls with disabilities (including their sexual education ability to learn), compounded by and increased risk social norms that attribute low-paid of HIV infection jobs to women, especially women and pregnancy. with disabilities. Resource gaps at government service level compounded by attitudes that prioritise boys over girls in the provision of services. Negative attitudes and misconceptions that girls with disabilities are asexual, should not have sex and are not capable of taking care of children compounded by lack of understanding of how to communicate health and reproductive information to girls with intellectual or hearing disabilities. 19
Shared barriers Additional for girls with Issue and without + barriers for girls Root causes with disabilities disabilities Inflexible Competing + Health-related Social norms that prioritise the structures demands with interruptions reproductive role of girls over household without education reflected in lack of work/care. opportunities supportive policies. given to catch up. Girls who are Institutional capacity and political will pregnant or No resources to understand and accurately cost have small (budget plans) and allocate the resources needed to children are provided to support special needs. not allowed to support special return. needs. Poor quality Modesty + Health issues Institutional capacity and prioritisation environment, related issues around lack based on lack of understanding including for sanitation, of accessible of accessibility needs, and lack of WASH including WASH facilities, understanding or giving equal weight facilities menstruation especially during to gender-sensitive infrastructures. management. menstruation; inaccessible Capacity gaps in supporting girls with Overcrowded buildings/ disabilities according to impairment classes favour classrooms (incl. and gender specific needs; negative more vocal and light, sound). attitudes based on disability bias assertive boys. (incapable of learning) and gender Girls with bias (no value). Girls called disabilities out of class for ignored; higher Social gender norms that emphasis cleaning, or risk of abuse by reproductive roles for girls. fetching water. teachers, peers, volunteers. 20
III International frameworks & policies/position papers 21
Governments and international agencies have recognised the importance of developing frameworks and policies to respond to the barriers experienced by girls with disabilities in accessing education. The following table gives an overview of international frameworks and initiatives that provide pathways towards education for girls with disabilities, with key statements related to inclusion. Table A: International frameworks and initiatives supporting inclusive education and girls’ education Consideration of gender Framework Article(s) on education and disability UN Convention Art 10 refers to the elimination of The original treaty text does not on the discrimination against women, and to refer to or mention girls and women Elimination of ensuring equal rights and opportunities with disabilities. However General Discrimination with men in the field of education Recommendation No 18 by the Against throughout the entire education cycle. Committee on the Elimination of Women Discrimination Against Women calls (CEDAW) 1981 for measures to ensure girls and women with disabilities have equal access to education and employment among other services.48 UN Convention Art 23 refers to the rights of mentally Within the definition of children on the Rights or physically disabled children to access with disabilities, the gender-neutral of the Child (among other services) education in lens provides no perspectives on the (CRC) order to achieve the fullest possible specific situations of girls (and boys) 1989 social integration and individual with disabilities. development. Art 28 recognises the right to education for all children on the basis of equal opportunity. Salamanca The framework encourages In this framework, special Framework for governments to stop segregating educational needs are not just Action 1994 educational provision for children with related to children with disabilities. special educational needs (including The framework makes it clear that children with disabilities) and to ensure a range of vulnerabilities, such as schools ‘...accommodate all children poverty, ethnicity or language, could regardless of their physical, intellectual, affect any child’s ability to learn. social, emotional, linguistic or other Inclusive education is therefore condition.’ conceived as a way to ensure that the needs of all children are being properly accommodated. The framework calls for education to become child-focused and to acknowledge the heterogeneity of children, even within their ‘assigned’ vulnerable groups, e.g. gender, disability, ethnicity.49 22
Consideration of gender Framework Article(s) on education and disability Education Goal 1: Expanding and improving Throughout the framework, the for All comprehensive early childhood care emphasis lies on gender-sensitive/ (EFA): Dakar and education, especially for the most responsive measures to ensure Framework vulnerable and disadvantaged children. quality education for all with for Action 2000 a focus on primary education, Goal 2: Ensuring that by 2015 all including out-of-school and the children, particularly girls, in difficult most disadvantaged/vulnerable circumstances and those belonging to children. There is no direct mention ethnic minorities, have access to and of disability in the framework, only complete free and compulsory primary reference to special needs in the education of good quality. context of the first two goals. The 2001 EFA Flagship on the Right to Education for Persons with Disabilities states that ‘the goal of Dakar will only be achieved when all nations recognise that the universal right to education extends to individuals with disabilities, and when all nations act upon their obligation to establish or reform public education systems that are accessible to, and meet the needs of, individuals with disabilities.’50 UN Convention Art 6 recognises the multiple The general principles explicitly on the Rights discriminations that girls and women with refer to gender equality. This applies of Persons with disabilities face and calls for measures to all articles of the CRPD and Disabilities to ensure full and equal enjoyment of therefore provides a framework (CRPD) 2006 all rights, and the full development and with a consistently gender-sensitive empowerment of women. approach to disability inclusion. Art 9 sets out obligations to identify and eliminate barriers to accessibility, including education systems, so that persons with disabilities can live independently and participate fully. Art 24 calls for measures to ensure an inclusive education system at all levels directed to: • The full development of human potential and sense of dignity and self- worth. • The development of their personality, talents and creativity, as well as their mental and physical abilities to their fullest potential. • Enabling persons with disabilities to participate effectively in a free society. 23
Consideration of gender Framework Article(s) on education and disability Sustainable Goal 4: Ensure inclusive and quality SDG4 reflects a strong commitment Development education for all and promote lifelong to education that goes beyond Goals (SDGs) learning. academic basics and skills but also 2015 looks at cultural diversity and values Two targets specifically mention disability associated with global citizenship. and gender together: This concept draws attention to the need to tackle social inequalities in Target 4.5: By 2030, eliminate gender and through education by aligning disparities in education and ensure equal school education with other access to all levels of education and policy areas (early childhood care, vocational training for the vulnerable, vocational training, adult learning, including persons with disabilities, etc), economic measures (e.g. indigenous peoples and children in scholarships, cash transfer schemes) vulnerable situations. and recognising particular needs and situations of children due to Target 4.8: Build and upgrade education gender parities, disability, ethnicity facilities that are child, disability and and other at-risk groups.51 All of gender sensitive and provide safe, non- these aspects and the emphasis violent, inclusive and effective learning of learning along life cycles are environments for all. reflected in the targets. A recent systematic literature review of The other is the EFA approach, in which education systems in low and middle income inclusive education was not part of the original countries makes the point that the Salamanca agenda but rather emerged from debates Framework for Action, and Education for All within the special education sector. The study (EFA) developed two education agendas from argues that despite the many benefits that EFA different starting points and with a lack of brought, there has been a slow uptake on the alignment. inclusion of children with disabilities, alongside the promotion of a broad concept of inclusive One is the conceptualisation of inclusive education for children from a wide range of education emerging from Salamanca, on: circumstances. This has led to an inconsistent implementation of educational provisions for 1. How to move away from assumptions that children with disabilities, with a gap in quality the needs of children with disabilities were assurance and/or monitoring over academic entirely impairment-based and that children outcomes.52 needed to be placed into special education based largely on medical reasoning; and The different interpretations of special 2. How to transform mainstream education needs and inclusive education are reflected systems so that they become aware of the by an overall lack of clarity in literature learning needs of all children. This should and programme documentation, which is help to establish education systems that are particularly absent of clear references to girls barrier-free. with disabilities. The SDGs, therefore, with clear mentions of disability and gender in targets and with specific indicators, represent a real opportunity to move towards programmatic approaches in which gender and disability inclusion are evidenced. 24
Policies and position papers Equality and Inclusiveness in Teaching and Learning Materials in 2015 gives practical advice on gender and disability in on representation, illustration, language and roles to promote gender equality and inclusion education of various marginalised groups such as children with disabilities. Resulting projects that are Based on government ratification of and available on the website as examples still seem commitment to international frameworks, to focus on either disability or gender. This a number of policies and position papers have raises the question to what extent guides are been developed to adhere to the principles taken on board and are seen as binding in the of inclusion. development of projects. I) Multilateral/bilateral agencies/donors The UK Department for International A review in 2010 of recent policies of major Development’s (DFID) revised Disability multilateral and bilateral agencies regarding Framework (2015) commits to addressing disability inclusion indicates that disability has gender and disability disparities, especially become a part of international cooperation and in the context of gender-based violence, and development aid. International cooperation more work in the fields of education and policies have often linked disability to the livelihoods. Guidance notes that accompany Millennium Development Goals (MDGs) (which the grant application processes include preceded the SDGs) – even though the MDGs definitions of marginalised population, what did not mention disability. The interest in is meant by gender and how to measure disability seems to have a strong focus on the disability. On a practical level, it means, for link between disability and poverty, and more example, all new schools built with DFID specifically, the link between disability and funding have to be fully accessible - although poor education, low employment rate, loss on its own physical accessibility is insufficient, of income and Disability-Adjusted Life Years and should be but one of many interventions (DALY). However, out of the 31 agencies and to address the educational needs of boys and organisations reviewed, only the Council of girls with disabilities. Since July 2016 a new Europe, AusAid, Austrian Development Agency funding initiative within DFID’s Girls’ Education (ADA), and NORAD specifically referred to the Challenge, Leave No Girl Behind, calls for interaction of gender and disability in either organisations to deliver quality education their priorities or guiding principles.53 AusAid’s interventions for highly marginalised girls 2015-2020 Development for All Strategy including girls with disabilities. These should continues to include the gender and disability improve literacy, numerical and life skills and intersectionality in its guiding principles. tackle harmful social and gender norms that contribute to girls being out of school. Following the signing of the CRPD by the USA in 2009, USAID published a guide on how to The Committee on Women’s Rights and Gender integrate disability in gender assessments, Equality at the European Parliament in 2013 recognising additional issues based on presented a report on women with disabilities disability that impact on the equitable access with the motion for a resolution. This included to development programmes.54 The USA stressing the importance of adopting a government’s Let Girls Learn initiative, launched gender-sensitive approach to disability in in 2015, recognises compounding barriers the post-2015 agenda and addressing the for hard-to-reach girls including those with intersectional discrimination of women disabilities. In its Global Strategy to Empower and girls with disabilities in all spheres of Adolescent Girls (2016) USAID states its life including education, vocational training intention to focus on extending interventions and employment.55 and programmes to these girls. The publication of USAID’s Guide for Strengthening Gender 25
II) UN agencies At the NGO level, there is a mixed picture of The East Asia Pacific UN Girls’ Education explicitly linking gender and disability related Initiative released an e-publication reviewing barriers to education in policy briefs and issues around education for girls with position papers: disabilities. This found that in the majority of • ActionAid published a model national reviewed countries in the EAP region special policy for the prevention, management education schools are more widely in use. and elimination of violence against girls at However, even where there are efforts to school. This included a section dedicated include children with disabilities in mainstream to girls with special needs, including girls schools, there is rarely a gender perspective with disabilities, outlining responsibilities of applied. Traditional teaching methods of schools and governments to prevent violence whole-class and rote learning and/or lack and assist survivors.60 of allocated resources to support specific • Plan International conducted research on academic and social needs of boys and girls the inclusion of children with disabilities in with disabilities pose major obstacles to quality child protection. This confirmed high levels inclusive education.56 of violence experienced by boys and girls with disabilities and made recommendations UNGEI, together with UNAIDS and EFA Flagship to organisations and government, and for on the Right to Education for Persons with research. Disabilities, piloted and published a manual • CBM presented a submission to the expert on tools for education sector planning in 2010. committee on CEDAW on Art 10. This This manual aims to support governments, highlighted the specific barriers of girls development partners and other stakeholders with disabilities. It called on state parties to address equity and inclusion in education to CEDAW to consider Art 24 and Art 9 sector planning.57 of the CRPD when implementing and monitoring Art 10, and to include disability III) NGOs and networks disaggregated data when reporting on the In preparation for the Oslo Summit on implementation of Art 10. Education in Development in 2015, an international expert group (consisting of In their policy papers, a number of specialists from DFID, World Bank, UNICEF, international development organisations Global Partnership for Education and INGOs) refer to issues around education for children prepared a paper on mainstreaming disability with disabilities without adding a gender in education. They provided recommendations perspective. For example, a call for Education to address the specific situation of girls For All initiatives to consider and monitor the with disabilities with regard to costs, data implementation of various CRPD articles left collection and analysis, sensitisation and out reference to Art 6. This therefore failed safe school routes.58 to acknowledge girls with disabilities as a particularly marginalised group of children. The Girls’ Education Working Group of the Others, despite naming gender as an important Gender and Development Network (GADN) UK principle in their strategy, don’t go much published a paper in response to the UN’s High beyond a quantitative dimension of gender Level Panel report on the post-2015 agenda. inclusion in projects. Other mainstream They suggested post-2015 gender-sensitive and organisations that specifically address responsive education goals, explicitly including marginalised and most vulnerable girls don’t children with disabilities.59 seem to include disability in important issues around girls’ education, despite the very distinct barriers that girls with and without disabilities share and additional barriers that girls with disabilities face. 26
Considering these examples, it is clear that there are efforts to pay greater attention to girls with disabilities in education. However, there is little evidence of the uptake of guidelines, position papers, and toolkits that would translate into implementation of interventions targeting girls with disabilities. In the next section we look at the few organisations that have implemented practical initiatives using the above frameworks and policies to support girls with disabilities into education. 27
IV Programmes and practices addressing barriers to education for girls with disabilities 28
The findings show that not to share documents, or projects are ongoing and documents were not yet available) this much has changed since the section provides an overview of the input of programmes to: achieve access to schools; 2003 research with regards provide child-centred, inclusive and gender- to the quantity of available sensitive teaching and learning; and to contribute to the protection of girls with research and evidence on the disabilities from violence and harmful practices effective inclusion of girls with that affect retention and learning outcomes. disabilities in education. Some projects were designed to explicitly include or focus entirely on girls with This is in spite of the introduction of the CRPD disabilities. Others were designed for children and the post-2015 discussions on disability and with disabilities with a limited gender lens, gender inclusive education. This is not to say i.e. certain aspects of the project addressed that programmes do not exist. However, there the situation of girls with disabilities but did is little documentation and robust evidence, not systematically analyse and respond to the especially in terms of educational outcomes specific intersectional barriers for girls with comparing disabled and non-disabled peers. disabilities. Published research on interventions that tackle specific barriers was also included This chapter describes selected project when it directly related to girls with disabilities interventions addressing barriers to education or distinguished between experiences of boy for girls with disabilities.61 The selection was and girls with disabilities. based on records and/or oral accounts of interventions explicitly aimed at girls with Projects that did not distinguish between girls disabilities. Given the incomplete availability and boys with disabilities in their records were of records (because there was no permission not included. Description of interventions addressing barriers to education Identification and enrolment identified children with disabilities, including All reviewed interventions employed extensive some who were kept hidden at home. The sensitisation campaigns involving families of success of identifying and enrolling children children with disabilities, communities, school (including girls with disabilities) through this staff and local government officials. These approach was attributed to the assumption that campaigns raised awareness of the rights of children do not have the gendered perspective all children to education, including girls with that girls should not go to school. Allowing them disabilities, and made the case for inclusive to take the lead on identification with support of education in mainstream local schools to address programme staff helped persuade parents of girls social justice and equality. with disabilities to enrol them.63 Plan International in Sierra Leone and Leonard Sightsavers’ project on youth employment for Cheshire Disability in Bangladesh used radio young people with disabilities in Uganda made advertising, billboards and promotional videos a radio appeal to adolescent and young women depicting girls with disabilities, which helped with disabilities to enrol for vocational training. raise awareness around their rights and their Recognising their disadvantaged educational ability to be at school and learn.62 situation, a point quota system was applied to enable them to pass the enrolment criteria in AbleChild Africa employed a child-to-child (CtC) Vocational Training Institutes.64 approach in which primary school children 29
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