Rising to the challenge: the speech and language therapy profession responds to COVID-19 - RCSLT

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Rising to the challenge: the speech and language therapy profession responds to COVID-19 - RCSLT
THE OFFICIAL MAGAZINE OF THE ROYAL COLLEGE
     OF SPEECH & LANGUAGE THERAPISTS

                        May 2020 | www.rcslt.org

                                                   Swallowing Awareness
                                                     Day: 2020 round-up
                                                                      ¬

                                                         Introducing the
                                                      new ‘Research and
                                                       Outcomes Forum’

      Rising to the challenge: the speech and language
      therapy profession responds to COVID-19

01_Cover_Bulletin May 2020_Bulletin 1                               30/04/2020 12:39
Rising to the challenge: the speech and language therapy profession responds to COVID-19 - RCSLT
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BUL.05.20.002.indd 2                                             27/04/2020 11:57
Rising to the challenge: the speech and language therapy profession responds to COVID-19 - RCSLT
Contents                                                                                                                                    ISSUE 817

                                                                                                                   4     Letters

                                                                                                                   5     The SLT COVID-19 response

              29                                                                                                   7     Opinion by Caz Barnett and
                                                                                                                         Lorna O’Kane

                                                                                                                   8     Pauline Downie shares her
                                                                                                                         trust’s response to the start
                                                                                                                         of the COVID-19 outbreak

                                                                                                       7           12    Dr Sally Archer and
                                                                                                                         Claire Twinn on building and
                                                                                                                         sustaining a COVID-19 response

                                                                                                     12            16    Swallowing Awareness Day
                                                                                                                         2020

                                                                                                                   20    Research and Outcomes
                                                                                                                         Forum

                                                                                                                   23    In the Journals

                                                                                                                   25    Jois Stansfield:
                                                                                                                         RCSLT 75th anniversary

                                            16                                                                     27    Obituary

                                                                                                                   29    My working life:
                                                                                                                         Scarlett Tozer-Milne

                                                                                                       8
                CONTACTS

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        May 2020 | www.rcslt.org                                                                                                                Bulletin                  3

03_Contents_Bulletin May 2020_Bulletin 3                                                                                                                        30/04/2020 12:39
Rising to the challenge: the speech and language therapy profession responds to COVID-19 - RCSLT
Bulletin thrives on your letters

                                                Victoria                         MY
                                                                                 WORKING
                                                                                                                and emails. Write to the editor,
                                                                                                                RCSLT, 2 White Hart Yard, London
                                                                                                                SE1 1NX. Email: bulletin@rcslt.org

                                                Briggs                           LETTERS                        Please include your postal address and
                                                                                 LIFE                           telephone number. Letters may be edited
                                                                                                                for publication (250 words maximum).

                                                EDITORIAL

                                                                                   Bulletin’s
          Seismic shifts                                                           youngest

          C                                                                        reader
                   hange, even of the moderate kind, can feel disruptive
                   and disorienting. When change arrives suddenly,
                   is global in nature, and possesses such profound                As a proud SLT to one-
          consequences for the health and wellbeing of millions, then              year-old baby girl Alaya
          those feelings—greatly amplified—can become overwhelming.                 (pictured), I thought I would
             Since social distancing measures were implemented in                  share a photo of her holding
          March, it has been work—carried out remotely, facilitated by             February’s Bulletin. She has
          technology—that has provided us with reference points and the            been dragging the magazine
          comfort of routines: the familiar production cycle of a monthly          around with her ever since
          publication; the contact with members whose contributions                we received it. She loves the
          make Bulletin the magazine it is.                                        cover, and naturally I used it
             We know that, for many of you, the world as you knew it               as an opportunity to provide
          has shifted beneath your feet. That might be because you’ve              some language stimulation!
          been redeployed to the frontline of the COVID-19 response, or            Thanks for this.
          you’ve had to radically rethink how to deliver therapy to service        Yaksha Makan, SLT
          users you’re unable to see in person. For some, the pandemic
          has brought job insecurity and financial concerns. For many
                                                                                   Anniversary
                                                                                   reflections
          of our #SLT2bs, study programmes have been disrupted and
          placements cut short. And then there is the coronavirus itself,
          and the resulting safety concerns many of you have around
          personal protective equipment (PPE).                                     This anniversary year gives
             In the last few weeks, the RCSLT has been working around the          opportunity to reflect on the early
          clock to address your concerns. On p6, Kamini and Della share            growth of our profession, and I am
          an overview of the efforts being made to influence at the highest          reminded of some of the unusual
          levels in support of members, and to draft new guidance that             accommodation issues of the
          aims to keep you, your families and service users safe.                  1950s and 60s.
             Our communication with you has also been subject to some                 After qualifying, my post included
          changes. The situation brought about by the pandemic has been            setting up the speech therapy service
          so fast-moving that we’ve placed a greater focus on digital              in two hospitals! I recall being given
          communications: we built a COVID-19 hub on the website                   unsuitable accommodation within
          (www.rcslt.org/learning/covid-19) that we’re adding to daily,            a hospital for the elderly—totally
          and implemented a more frequent enewsletter schedule to keep             unsuitable for treating children—
          you abreast of developments far quicker than is possible in print.       and so service was suspended and
             As such, we’ve had to deviate a little from the standard Bulletin     ultimately resumed in the maternity hospital.
          format this issue. You will notice that the news pages have been            Joining school health services produced unlikely challenges:
          scaled back (news brought to you in a monthly publication is             one school expected me to treat in my car; at another I was
          at least four weeks old by the time it drops through doors), and         assigned the cloakroom (with that obnoxious smell of drying
          we’ve pushed back the magazine production schedule by a                  coats, and curious pupils en route to the toilets!). A village school
          couple of weeks, too.                                                    proved a greater challenge—we had the head teacher’s house,
             Other changes concern the content. This issue, we’re grateful         across the road and down a muddy lane. Then there was the school
          to Pauline Downie, the RCSLT’s Scotland representative, for              where I was assigned the staff room, filled with staff members on
          sharing NHS Lanarkshire’s insights and response to the early             their breaks, making therapy impossible.
          days of the pandemic (see p8). And to Dr Sally Archer and Claire            Unsurprisingly I soon found clinic accommodation for children
          Twinn from Guy’s and St Thomas’ NHS Foundation Trust, who                to be brought to me! I also arranged joint meetings with teachers
          sent us an account of their department’s heroic efforts to ready          to establish mutual understanding. We were, after all, a relatively
          themselves for the coronavirus impact (see p12).                         new profession.
             Bulletin will be back with you next month. Do keep sending               Thirty years later, I was invited to meet HRH Princess Anne
          us your submissions in the meantime, and keep an eye on our              when she opened the new rehabilitation building at one of the
          website and social media channels. New guidance, resources,              very hospitals where I set up the speech therapy service so many
          updates and announcements will be posted there first.                     years ago.
                                                                                   Barbara Hull, retired SLT manager, Oxfordshire
          Victoria Briggs,
          editor
              bulletin@rcslt.org                                                     FOLLOW THE RCSLT ON                        AND
             @rcslt_bulletin                                                            VISIT: WWW.RCSLT.ORG AND FOLLOW THE LINKS

      4             Bulletin                                                                                                     May 2020 | www.rcslt.org

04_Editors Lette_Bulletin May 2020_Bulletin 4                                                                                                        30/04/2020 12:40
Rising to the challenge: the speech and language therapy profession responds to COVID-19 - RCSLT
News
        The SLT COVID-19 response
        At RCSLT HQ, we've been inspired by the       their care pathways. “COVID-19 has seen
        way the speech and language therapy           our service provision challenged like never
                                                      before, but the one tool that gives hope for
        profession has risen to the significant
                                                      continuing qualitative patient-centred care
        challenges brought about by the pandemic.     is technology,” Kathy says. Pictured: Emma
          Social media has been awash with SLTs       Hodgson at Bishop Auckland Stroke Unit.
        sharing incredible images and messages of
        support, creating resources, and offering      3. Head and neck SLT Sarah Harris gears
        their skills and services wherever they've    up for her ENT clinic (@LPTAdultSpeech
        been needed most.                             @SarahHa55171110).
          Here are just a handful of photos that
                                                      4. SLTs at Imperial College Healthcare NHS
        show how members (and their families)         Trust have fit tested PPE masks for over 500
        have been adapting to new ways of working.    staff. Pictured: Justin Roe and Zasha Mauger
                                                      practising their technique.
        1. Three-year-old Jenny Cronin fits her
        surgical mask before treating some patients   5. SLT Steph Burgess (@StephFBurgess)
        at home (@DrCiaraOToole).                     from the Airedale NHS Stammering Project
                                                      showcases the use of telemedicine: “I’ve been
        2. Kathy Cann (@KathyCann1) and the SLTs      using telemedicine for therapy sessions for
        at Country Durham and Darlington NHS Trust    many years now, but it feels as though it’s
        have started integrating technology into      finally come into its own,” she says.           1

                                                                                                2

                                                                                                                       3

         4                                                                 5

        May 2020 | www.rcslt.org                                                                          Bulletin         5

05_Covid Members_Bulletin May 2020_Bulletin 5                                                                        30/04/2020 12:41
Rising to the challenge: the speech and language therapy profession responds to COVID-19 - RCSLT
DELLA
            MARIAMONEY
                  LUSCOMBE
                  LUSCO
                    SCO
                      OMBE
                       & KAMINI
                           & KAMINI
                                GADHOK
                                    GA
                                    GADHOK                                                    RACHEL PURKETT

          FULL IMPACT                                                                         Stronger links
                                                                                              For me, and many others I suspect, crisis has
                                                                                              brought with it a steep learning curve.
                                                                                                 In just a few weeks, I’ve learned a lot of new
                                                                                              terminology, words I’d never needed before:
                                                                                              aerosol generating procedures, viral shedding,
                                                                                              fluid-repellent surgical face mask. Concepts
                                                                                              previously unknown to me have become critical to
                                                                                              the profession, matters of life and death.
                                                                                                 I’ve also learned a bit more about my friends
                                                                                              and colleagues, by seeing them under new
                                                                                              pressures and in different environments, as
                                                                                              videoconferencing transports me into their homes.
                                                                                              I suspect that when this is over, we’ll be left with
          ‘Unprecedented’ must be a contender                                                 stronger links and better ways of working.
          for the word of the year. Indeed,           “...we continue to                         But the learning that impresses me most? It’s the
          nothing else quite describes the
          position we all now find ourselves in.
                                                       pull together as                       insight I’ve had into the character of the speech
                                                                                              and language therapy profession.
             At the time of writing, in early           a profession”                            When our lives suddenly transformed in March,
          April, the Prime Minister has been                                                  one of the projects I had to put on hold at work was
          admitted into intensive care.                                                       a survey of RCSLT members.
             While we have yet to understand                                                     In common with other professional associations,
          the full impact of the coronavirus         Allied Health Professions Federation     we conduct one of these every year or two, with
          outbreak, what we do know is that          to lobby and ensure our collective       the aim of understanding what your values are,
          the country and the world will not be      voice is heard.                          what makes you tick, and what the RCSLT can do to
          the same after it has passed.                 We would like to thank all the SLTs   support the profession.
             For us, what is critical is that,       who have been involved and given            The survey will go ahead when life is more
          throughout this crisis, we continue to     their time and expertise.                normal, but in the meantime, your actions in crisis
          pull together as a profession.                As a result of the lockdown,          have told me a few things about you. Here are
             We have been impressed and              many of the events and services we       my takeaways:
          grateful for the strong leadership that    would normally provide have been
          the profession has demonstrated,           disrupted, and so we are pleased         1. You are fast. At the first sign of need, SLTs came
          rising to the challenge and using its      that we can use the full breadth of      together, working at a pace we didn’t previously
          expertise and skills wherever              communications to engage you, our        think was possible, to develop guidance that would
          they’ve been needed most, from             members, including more frequent         keep members safe and keep them in work caring
          playing our part in new developments       newsletters and social media posts.      for patients.
          such as Operation Nightingale, to             While we have had to cancel
          maintaining a wide-range of other          the RCSLT study day and awards           2. You are innovative. When social distancing rules
          priority services.                         ceremony this year, we are looking       came in, SLTs rapidly came up with new ways to do
             The RCSLT has been working              ahead to what we know will be a          their work safely, bringing in telehealth at a rate of
          alongside members to help respond          period of rebuilding in the months to    knots to ensure service users wouldn’t be let down.
          to the challenges. Together we have        come. An important part of that will
          developed guidance, shared training        be celebrating our achievements, and     3. You are a community. SLTs have taken to social
          resources, and built our networks          we are thinking about how we can         media like never before throughout the crisis,
          and resilience.                            use the RCSLT Honours and Giving         sharing what they are doing, asking for advice and
             We have also worked together            Voice awards to do this. Please look     shoring each other up through difficult times.
          to influence on behalf of SLTs and          out for details.
          service users, informing government           We hope that you are all keeping        I know as SLTs you’re always reflecting on your
          guidance on PPE, developing the role       safe. Please do keep engaging with us,   practice, and on life. Do let me know what you’ve
          of SLTs as part of the multidisciplinary   raising issues that are of concern and   learned about the profession and about yourself.
          team caring for COVID-19 patients,         sharing your achievements.               Tweet @RCSLT
          ensuring continuity of services for
          other groups, and securing the future      Dr Della Money, RCSLT chair
          education and training of students.        Kamini Gadhok, MBE, RCSLT                Rachel Purkett, RCSLT director of engagement
             Through it all, we have worked in       chief executive                          and communications
          partnership with colleagues from the       Email: kamini.gadhok@rcslt.org           Email: rachel.purkett@rcslt.org

      6            Bulletin                                                                                               May 2020 | www.rcslt.org

06_Columns_Bulletin May 2020_Bulletin 6                                                                                                        30/04/2020 12:41
Rising to the challenge: the speech and language therapy profession responds to COVID-19 - RCSLT
COLUMN

                                          & O’Kane Opinion
        Caz                                        Lorna
        Barnett
        Caz Barnett and Lorna O’Kane ask: why aren’t we                            collected data that found that, on   lack of clinical guidelines and the
        talking about functional neurological disorder?                            average, one patient with            fact that FND was not mentioned
                                                                                   functional neurological              on any pre-qualification courses.
                                                                                   symptoms was referred to speech      However, all SLTs who were
                                                                                   and language therapy each week.      interviewed believe we have a role
                                                                                   Despite the fact that SLTs come      in caring for patients with FND.
                                                                                   across these patients regularly,        A multidisciplinary group is
                                                                                   there is no mention of FND in the    currently developing consensus
                                                                                   RCSLT’s clinical guidelines, and     guidelines for speech and language
                                                                                   very limited literature exists on    therapy. Given that patients with
                                                                                   the topic. So why aren’t we, as a    FND are being referred to us and
                                                                                   profession, talking about it?        we are listed as core members of
                                                                                       One reason may be that there     the multidisciplinary team, we
                                                                                   is a huge variety of terminology     believe it is time for SLTs to start
                                                                                   surrounding the diagnosis,           talking about FND in order to
                                                                                   for example: ‘psychogenic’,          identify gaps in current evidence
                                                                                   ‘conversion disorder’, ‘medically    and practice, improve consistency
        Opening the                                                                unexplained symptoms’,
                                                                                   ‘dissociative disorder’, etc. This
                                                                                                                        in our management and ultimately
                                                                                                                        improve outcomes of patients

        conversation
                                                                                   wide variety of diagnostic labels    who present with functional
                                                                                   can create inconsistencies in both   neurological speech, language or
                                                                                   clinical and research practice.      swallowing symptoms. ■
                                                                                   The use of the term ‘functional’
                                                                                   has been favoured over previous      Caz Barnett, SLT, University
                                                                                   labels in recent years because       Hospitals Birmingham NHS
                                                                                   it represents a biopsychosocial      Foundation Trust and committee
                                                                                   model of aetiology rather than       member of UK Functional
                                                                                   assuming a psychological             Neurological Forum
                                                                                   aetiology, which previous labels     Email: caroline.barnett@
                                                                                   such as ‘psychogenic’ suggested.     heartofengland.nhs.uk
                                                                                                                        Lorna O’Kane, SLT, The National
                                                                                                                        Hospital for Neurology and
                                                                                   “It is time for SLTs                 Neurosurgery in London
                                                                                     to start talking                   Email: l.o’kane@nhs.net

                                                                                     about FND…”                        For further information, visit
                                                                                                                        www.fnforum.org

                                                                                                                                    References
                                                                                      Speech, language and
                                                                                                                        American Psychiatric Association.
                                                                                   swallowing symptoms are
                                                                                                                        Diagnostic and Statistical Manual of
                                                                                   common in FND (Barnett et            Mental Disorders. 5th edition. Arlington:
                                                                                   al., 2019). Despite this, there      American Psychiatric Publishing, 2013.
                                                                                   is a lack of literature specific to   Barnett C, Armes J and Smith C. Speech,
                                                                                   speech and language therapy          language and swallowing impairments in
                                                                                                                        functional neurological disorder: a
                                                                                   and FND. However, SLTs are           scoping review. International Journal of
                                                   ILLUSTRATION BY Sara Gelfgren   still listed as core members         Language & Communication Disorders
                                                                                   of the multidisciplinary team        2019; 54, 309-320.
                                                                                   for the care of patients with        Gargalas S, Weeks R, Khan-Bourne N,
                                                                                                                        Shotbolt P, Simblett S, Ashraf L, Doyle C,
                                                                                   FND (Healthcare Improvement
                                                                                                                        Bancroft V and David A. Incidence and

        F
                   unctional neurological   (American Psychiatric                  Scotland, 2012). Caz Barnett         outcome of functional stroke mimics
                   disorder (FND) is when   Association, 2013). FND is             recently interviewed SLTs with       admitted to a hyperacute stroke unit.
                   patients present with    common across healthcare               experience of working on stroke      Journal of Neurology, Neurosurgery and
                                                                                                                        Psychiatry 2017; 88, 2-6.
                   motor or sensory         settings, and functional stroke        units; all those interviewed
                                                                                                                        Healthcare Improvement Scotland (2012)
        symptoms that would usually be      mimics comprise up to 8.4% of          reported that they are regularly     Stepped Care for Functional Neurological
        under their control (such as        admissions to stroke units             involved in the care of patients     Symptoms. A New Approach to Improving
        talking or swallowing) in a way     (Gargalas et al., 2017). The           with FND. Challenges were cited      Outcomes for a Common Neurological
                                                                                                                        Problem in Scotland: Report and
        that is discordant with known       hyper-acute stroke unit at             when it came to managing this
                                                                                                                        Recommendations. Available from:
        neurological conditions             Birmingham Heartlands Hospital         patient group, namely due to the     bit.ly/2JIb6H9 (accessed 6 April 2020).

        May 2020 | www.rcslt.org                                                                                                           Bulletin                  7

07_Opinion_Bulletin May 2020_Bulletin 7                                                                                                                    30/04/2020 12:42
Rising to the challenge: the speech and language therapy profession responds to COVID-19 - RCSLT
FEATURE
          COVID-19

          Be calm. Stay wise.
          Be kind
          Pauline Downie shares the response of NHS
          Lanarkshire’s speech and language therapy
          service to the start of the COVID-19 outbreak

          ILLUSTRATION BY Cat Finnie

          B
                               y mid-March, NHS         ■ On Monday 16 March, we were advised             key workers was advised to stay at home
                               Lanarkshire speech       to cancel all non-essential meetings and          (apart from to undertake food shopping and
                               and language therapy     training.                                         other essential activities).
                               service had received     ■ On Wednesday 18 March, we were told                As head of speech and language therapy,
                               its first referral of a   to cancel all routine patient activity and an     my role in this situation has been to provide
                               patient with suspected   announcement was made that schools were           leadership and co-ordination, to look
                               coronavirus, and our     to close on Friday of the same week.              after staff wellbeing, and to provide clear
                               first member of staff      ■ By Thursday 19 March, a decision was            communication to staff, stakeholders and,
          was also off with symptoms.                    made to use some of our clinic rooms as           via line management structures, to the AHP
             Since then, we have been working           Community Assessment Hubs. SLT staff spent         director and into the command structure.
          at speed to make the service changes          Wednesday to Friday retrieving records and           At the time of writing on Thursday
          necessary to combat the spread of             IT equipment from schools, and clearing           26 March, all routine management functions
          COVID-19, and to ensure all NHS staff and      out the clinic rooms. At the same time, we        have been suspended: we are only dealing
          resources are used to best effect. To give     started carrying out clinical triage so that we   with issues around staff pay or absence.
          you an idea of the pace of change, I have     could focus on high-risk patients and clients.    All our energy is going into caring for our
          documented how the next few days in           ■ On Monday 23 March, the government              high-risk patients and preparing our staff to
          March played out:                             announced a lockdown and everyone except          move to new roles.                            ↘

      8             Bulletin                                                                                                   May 2020 | www.rcslt.org

08-11_Cover feat_Bulletin May 2020_Bulletin 8                                                                                                      30/04/2020 13:51
Rising to the challenge: the speech and language therapy profession responds to COVID-19 - RCSLT
FEATURE
                                                    COVID-19

        May 2020 | www.rcslt.org                Bulletin         9

08-11_Cover feat_Bulletin May 2020_Bulletin 9              30/04/2020 13:51
Rising to the challenge: the speech and language therapy profession responds to COVID-19 - RCSLT
FEATURE
         COVID-19

         Leadership
         It was clear from the outset that our current
         team and leadership structure would need                 “Every single person is
         to change in response to COVID-19. Each
         service already had a business continuity
         plan and a pandemic flu plan in place,
                                                                   playing a vital part”
         but due to the severity and speed of this
         pandemic, it was clear that a radical
         restructure would be required.
            In normal times, our structure comprises
         an adult service with three general hospitals
         and community services; the children and
         young people’s service with 10 locality
         teams and a specialist pre-5 complex needs
         team; and a small board-wide adult learning
         disability team.
            On Friday 13 March, we started holding
         a daily speech and language therapy
         teleconference with our usual leadership
         team. By Monday we had pulled in other
         leads as back-up in case we were ill, as
         well as our union representative, to help
         with issues regarding staff mobilisation in        to help with the wider NHS response to            24-hour helpline. It has now been expanded
         particular. I am also taking part in a daily      COVID-19. Everyone was asked to volunteer         to include staff from the psychological
         AHP conference call, and our AHP group is         for other roles and their response has been       service, SLTs and other AHP staff. This
         linked to strategic command via our               amazing—every single person is playing a          service will be very much needed by all of
         AHP director.                                     vital part.                                       us working in the NHS. Many of our SLT
            Our new structure is now three teams              For the duration of the crisis, their new      staff are trained counsellors already or have
         (critical care, SLTs mobilised to the wider NHS   roles will be:                                    excellent counselling skills. They have also
         workforce, and the working from home team)                                                          had training in trauma and possess excellent
         with oversight from the SLT critical leadership   Health care support worker                        communication skills when it comes to
         team, including the head of service, team         Staff in this role are currently preparing         helping people in distress. Training is being
         leads and administrative support.                 themselves to be on the frontline of patient      provided wherever it is needed.
                                                           care. As well as completing some hastily
         Critical care                                     arranged training, they are also busy             Wellbeing
         This involves everyone currently providing        making childcare plans, organising cover          Our wonderful psychological service
         speech and language therapy to urgent/            for other caring duties, and building their       colleagues have produced guidance for staff
         high-risk adults, children and adults with        network of support for the months ahead.          on coping with the coronavirus, which was
         a learning disability—either directly in our         A small group of our staff are already          shared by one of our other health boards in
         hospitals, or remotely through the ‘Near Me’      health care support workers (HCSWs) or            Scotland. Here in the speech and language
         video consultation service. I have asked my       have specific skills such as phlebotomy,           therapy service we have adopted the mantra
         adult team lead to temporarily oversee the        or experience working as a NHS 24 call            ‘Be calm. Stay wise. Be kind.' (from the
         clinical leadership of this team, particularly    handler. They will be able to work wherever       organisation Action for Happiness:
         around clinical decision-making, safety,          their skills are most needed in the               www.actionforhappiness.org). Our staff
         infection control and the use of personal         COVID-19 response.                                care and wellbeing team is there for us, and
         protective equipment (PPE).                          Many other AHPS will take on the role of       soon our staff will be part of that team.
            We have been advised by ear, nose              HCSW. In the interim period, many of them            In my daily updates to staff, I have started
         and throat (ENT) colleagues to cease              are also taking on these duties:                  to share information about my network of
         any nasendoscopy or valve changing                ■ Patient care; ie the provision of personal      support and this has resulted in colleagues
         procedures. So far, we have not seen any          care for patients in our hospitals.               sharing their funny stories with me, too. One
         patients in the community directly as we          ■ Domestic services: these staff will be           of them has now started a blog, which is very
         have been able to meet their needs through        working in challenging conditions, perhaps        private and offline, and the humour in that
         Near Me. These are also our most vulnerable       using unfamiliar PPE and following Control        is helping most of us through. It is incredible
         patients and are self-isolating at home.          of Substances Hazardous to Health (COSHH)         how humour can be used to support others,
                                                           guidance. They will be on the frontline too,      even in a situation such as this.
         SLTs mobilised                                    and will be vital to ensuring the hospital           We have expanded our team
         This involves all staff in the speech and          environment is clean and safe.                    communication to include stories from the
         language therapy service: SLTs, SLTAs and                                                           frontline, and to hear about the experience
         administrative staff (approximately                Staff support                                      of staff working in other jobs, as well as from
         70 individuals who usually carry out routine      This service is usually staffed by our spiritual   home. There is no pressure to contribute or
         functions). They will be taking on new roles      care and wellbeing colleagues and has a           read these, as we realise that some people

      10            Bulletin                                                                                                      May 2020 | www.rcslt.org

08-11_Cover feat_Bulletin May 2020_Bulletin 10                                                                                                         30/04/2020 13:52
FEATURE
                                                                                                                                                            COVID-19

         are in a different headspace. But we hope in                This team will also start to look at recovery            I have been trying to make my own
         doing this that it will help to relieve some               of the speech and language therapy service            communication as clear as possible. As well
         staff anxieties and uncertainties, and that                 once this unprecedented situation is over.            as taking part in daily teleconferences with
         it will help us to stay together as an SLT                                                                       AHP and SLT leadership, I am writing a
         family—until we can all be together again.                 Communication                                         daily update for our staff as part of the NHS
            We plan to keep in light touch with                     As SLTs, we are naturally thinking about              Lanarkshire daily briefing. This is also part
         speech and language therapy staff as their                  what this situation is like for our service           of caring for the wellbeing of our staff—in
         focus has to be on their new roles and                     users. What is it like for parents trying to          this time of uncertainty, they too share
         teams, but we want them to know they are                   explain to their children the need for hand           the same worries of everyone else in this
         still ‘ours’. When we have come through                    washing, physical distancing, or why they             country, as well as those that come with an
         this, all of them will be coming back to us—               cannot visit their grandparents?                      NHS role.
         certainly with new skills but also, possibly,                What is it like for people with                        I am sure a lot of speech and language
         needing support.                                           communication difficulties trying to                    therapy services are having similar
                                                                    understand all the information they are               experiences to us. And while we haven’t
         The working from home team                                 being told about what to do if they become            got it all sorted yet, and are certainly not
         Our third and by no means final team is                     unwell? How are they handling being tested            calm all of the time, I do hope we continue
         made up of staff from all care groups within                and treated by people who are (quite rightly)         to remain wise and kind. We have all had
         our service who MUST stay safe at home                     wearing masks? How is someone with                    our tears and wobbles these last few weeks,
         for medical reasons. Their function is to                  comprehension difficulties, or someone who              and I am sure there are more to come, but
         assist with staff mobilisation and to support               relies on lip reading, going to cope?                 everyone is pulling together and supporting
         the critical speech and language therapy                     And what is it like for people in our               one another so that we can give the best
         clinical and leadership teams. These staff                  hospitals who are ill and dying and trying to         help to the people who need us. ■
         have compiled a list of our IT resources,                  express their fears and love to their families?
         (eg tablets and laptops) and are organising                  I have seen an amazing amount of
         remote access for anyone who needs it.                     communication supports being shared by
         Once staff are mobilised, the working from                  SLTs and others all around the world in an            Pauline Downie, head of speech and
         home team, with the leadership team, will                  attempt to help people with communication             language therapy, NHS Lanarkshire;
         be responsible for supporting the SLT critical             problems in this situation.                           chair of the Scottish SLT managers
         leadership and clinical functions. They will                 I also know that the RCSLT is collating             and leaders network; RCSLT Country
         also support people who are in crisis due                  resources to help with this as well as                Representative – Scotland
         to their communication needs, and where                    generate professional guidance in                     Email:
         our intervention can reduce impact for that                response to COVID-19 (www.rcslt.org/                  Pauline.Downie@lanarkshire.scot.nhs.uk
         person, their family and on other services.                learning/covid-19).                                     @paulinedownie

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        May 2020 | www.rcslt.org                                                                                                                       Bulletin            11

08-11_Cover feat_Bulletin May 2020_Bulletin 11                                                                                                                       30/04/2020 13:52
FEATURE
        COVID-19

        When a sprint
        becomes a marathon

        Dr Sally Archer and Claire Twinn on the race
        to build and sustain the COVID-19 response at
        Guy’s and St Thomas’ NHS Foundation Trust

           ILLUSTRATIONS BY Louise French

        I
                 t seems like a lifetime ago that         Now, at the end of a week in which we           or virtual appointments using specific
                 our trust put out a statement on       have reached a milestone at St Thomas’,           online software. This is a completely
                 its social media platforms that it     where all of our adult inpatient referrals to     new way of working and not without its
                 was treating its first patient with     SLT were COVID-19-positive or suspected of        challenges, both technical and clinical;
                 coronavirus. It reassured the public   being so, we have taken stock of how far we       it has taken a huge amount of work to
                 that all of our services remained      have come and what it has taken to get here.      implement this change so quickly and
                 open as usual. That was on                                                               efficiently. Partnerships between clinical
        6 February, and, since then, the hospital       Moving mountains                                  and administrative staff have been key, with
        and our ways of working have changed            The trust has moved mountains to increase         the admin team being integral to ensure
        almost beyond recognition.                      capacity and meet the challenge presented         the correct coding of appointments, as well
           We work at Guy’s and St Thomas’ NHS          by coronavirus; the speech and language           as dealing with huge volumes of telephone
        Foundation Trust in central London; at          therapy department has been working flat out       queries from patients.
        the time of writing (early April), London       on this cause, too. Our outpatient services,         Our inpatient service has been subject
        reportedly has almost double the number         as well as voice, cancer and general, have        to significant change on a daily, if not
        of cases of COVID-19 than any other             completely transformed—an enormous piece          hourly, basis. Not only have we seen many
        part of the UK, and our local boroughs          of work involving careful clinical triaging and   new wards opening, we have also seen a
        of Lambeth and Southwark have been              the development of robust systems and risk        dramatic increase in the number of critical
        hit hard (www.gov.uk). Having been an           assessments to ensure that all patients are       care beds, with plans for more discussed
        early high consequence infectious disease       accounted for and managed safely.                 daily. Patients with COVID-19 or suspected
        centre (HCID) with a large critical care           All outpatient appointments in the             COVID-19 are being cohorted within
        department, it is unsurprising that the         voice service, and the majority of our            dedicated wards and we have had to flex
        number of patients with the virus at our        cancer and general outpatient services,           our usual speech and language therapy
        trust has increased rapidly.                    have been converted to either telephone           ward allocation accordingly. This means a

      12             Bulletin                                                                                                May 2020 | www.rcslt.org

12-14_Feature2 A_Bulletin May 2020_Bulletin 12                                                                                                  30/04/2020 13:55
FEATURE
                                                                                                                                       COVID-19

         “PPE takes its toll.
                                                                                                      guidelines in line with RCSLT advice (see:
                                                                                                      bit.ly/RCSLTCovidGuidance), but building
                                                                                                      close working relationships with ward staff

      Wearing it is exhausting…”
                                                                                                      has still been central to avoid resistance in
                                                                                                      response to our requests.
                                                                                                         Keeping on top of the changes in guidelines
                                                                                                      and the availability of types of PPE has been a
                                                                                                      daily task and a source of anxiety in the team.
                                                                                                      Having weekly huddles to openly discuss our
                                                                                                      worries, review the guidelines and videos, and
        significant change for all therapists, with      advice provided by the RCSLT and our          practise ‘donning and doffing’ has helped.
        many working in unfamiliar areas as             trust guidance on what constituted an         Having a named infection control SLT who is a
        a result.                                       aerosol generating procedure (AGP).           local point of contact, providing expertise and
           Our trust has been very efficient and          SLTs would arrive on a ward to conduct a      a link between us and the infection control
        thorough in issuing guidance on personal        clinical swallowing assessment and request    team, has also been invaluable.
        protective equipment (PPE) and has              respirator masks to protect us from AGP, to      An emerging challenge with PPE is
        produced action cards and online training       the confusion of our multidisciplinary team   the effects of wearing it for several hours
        videos to support staff. The infection control   (MDT) colleagues who are working long         in a row as patients with COVID-19 are
        team, which has been working flat out,           shifts, including feeding patients            cohorted; masks, visors and ‘base layer’
        has still made time to respond to our many      who were coughing, while wearing              PPE do not necessarily need to be changed
        queries. This has been hugely helpful but       surgical masks. Collaboration with our        between patients.
        still challenges have been encountered,         infection control team has removed this          PPE takes its toll. Wearing it is
        eg when there was a mismatch between            mismatch leading to an update in trust        exhausting—you overheat and your face →

        May 2020 | www.rcslt.org                                                                                                  Bulletin          13

12-14_Feature2 A_Bulletin May 2020_Bulletin 13                                                                                                 30/04/2020 13:55
FEATURE
        COVID-19

           “Conducting assessments
            behind a mask, when the
             only facial expression is
           what you can convey with
           your eyes, is a challenge”
        gets damp (at best) and at worst, very          it is unrealistic to expect this to continue      times. As a team, we have identified that the
        sore. We have been thinking about how to        without referrals being missed. We have           current lockdown and the relentless focus
        introduce more breaks and fresh air into        therefore increased our presence at board         on coronavirus across the media and social
        our working pattern as a result, and accept     rounds and hand-over meetings, while              media—as well as our own immersion in it at
        that it may be difficult to see the numbers of    linking in more closely with AHP colleagues       work—makes it very difficult to give ourselves
        patients in a session we normally would.        to ensure we find out about patients in a          headspace. We see patients with the virus
                                                        timely fashion so that we can assist with safe    with whom we resonate, and the relentless
        All hands on deck                               and effective patient management and flow.          flow of cases takes its toll. There is a quote by
        None of the adult acute speech and language                                                       the author Dr Rachel Remen that sums this
        therapy team has been redeployed due to         Learning and adapting                             up: “The expectation that we can be immersed
        the ongoing demands on our service from         In terms of how we actually manage our            in suffering and loss daily and not be touched
        the COVID-19 response. However, our adult       inpatients, we are learning and adapting here     by it is as unrealistic as expecting to be able to
        service has been a hive of activity as teams    too. Conducting assessments behind a mask,        walk through water without getting wet.”
        prepare to deliver training that enables staff   when the only facial expression is what you          We are very lucky in our trust as there
        to transition into different clinical areas as   can convey with your eyes, is a challenge. We     are many systems of support available,
        and when the need arises (we are training       are noticing increased delirium, which could      including new wellbeing zones and access
        our colleagues in the voice, cleft, and         be for a number of reasons and needs careful      to psychological support. In the immediate
        paediatric acute teams to enable them to        management, not helped by a lack of loved         team, we have agreed to have a set ‘wellbeing
        join us in the adult acute team, as needed).    ones visiting and patients being greeted by a     hour’ each week in which we can do whatever
        We are excited about the cross-pollination of   sea of unrecognisable ‘bots’ in PPE.              we need to refresh mentally (without alcohol,
        expertise that will no doubt arise from this        Videofluoroscopy and fibreoptic endoscopic      obviously!). We have frequent check-ins with
        and have also trained up a large proportion     evaluation of swallowing (FEES) are normally      each other, as well as team huddles. We take
        of acute SLTs to join our well-established      integral to our routine management of             regular breaks too and focus on ‘parking’ the
        critical care team to meet the increased need   dysphagia, with FEES playing a particularly       day before going home via an end-of-day
        there. Staff who were seconded to research       crucial role in critical care. However, with      debrief with a buddy, and going through a
        fellowships have rejoined the clinical fold,    the increased risks associated with the           ‘going home checklist’.
        so it is all hands on deck.                     procedures, they are not currently in our            At a time when our social lives are restricted
           For the first time in our trust’s history     toolkit, so we’ve had to be even more focused     by coronavirus, our work family has become
        we are offering a seven-day and bank             in our clinical assessments. We are also seeing   an even more important source of support.
        holiday service. This has been set up within    patients in critical care who have had multiple   These strategies are essential as we need
        a fortnight’s notice and is from our existing   intubations, with the likely associated           to focus on our own mental and physical
        resource on an overtime model. The success      damage this causes, and are working hard          health in order for us to last the distance of
        of this is based on the dedication and team     to create a risk assessment and protocol to       COVID-19. There is no doubt that our response
        spirit of the therapists themselves, and its    enable us to safely restart our FEES service      to this virus is going to be a marathon, not a
        announcement was met with a round of            when appropriate. The next stage in the           sprint, but it has required a sprint start to get
        applause from the wider critical care MDT.      management of this virus will be the huge         us on track. ■
           The way we receive referrals has had to      rehabilitation needs these patients will have—
        change. We normally receive them centrally      it feels like we’re seeing the tsunami on the
        when the MDT make a request through our         horizon, and the speech and language therapy      Dr Sally Archer, consultant SLT and
        electronic patient record system. However,      team will need to be ready and adequately         Claire Twinn, head of speech and language
        the profile of staff covering all of the new      resourced to meet this demand.                    therapy, Guy’s and St Thomas’ NHS
        wards has changed dramatically, with new            A final but vital observation has been the     Foundation Trust, London
        ‘surge’ team members supporting existing        importance of needing to look after ourselves     Email: sally.archer@gstt.nhs.uk
        staff, and MDT colleagues are so busy that       through these strange and unprecedented              @SallyArcherSLT

      14           Bulletin                                                                                                     May 2020 | www.rcslt.org

12-14_Feature2 A_Bulletin May 2020_Bulletin 14                                                                                                        30/04/2020 13:56
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       May 2020 | www.rcslt.org                                                   Bulletin        15

BUL.05.20.012.indd 15                                                                        30/04/2020 13:53
FEATURE
        SWALLOWING AWARENESS DAY

                                                                                  1

                                                                                                           2

        Swallowing
        Awareness Day
        2020

                                                                              3

        O
                                n 18 March the RCSLT
                                celebrated the fifth
                                                       1. SLT Angela Penny teamed up with local cafe
                                annual Swallowing
                                                       owner Christine to include dysphagia-friendly
                                Awareness Day; a       foods on the menu, including crustless quiche,
                                day dedicated to       smoothies and pureed soup. The RCSLT’s
                                raising awareness of   dysphagia factsheets were also available for
                                dysphagia and how      customers to read. “Our aim was to provide
                                                                                                          3. After realising how many conversations
                                                       [local] residents with swallowing difficulties a
        SLTs support people with eating, drinking                                                         revolve around food, SLT students Laura
                                                       friendly welcome at a cafe where they can enjoy
        and swallowing difficulties.                                                                        Sunnucks, Bethan Hill and Cat Choate from
                                                       the social side of eating out,” Angela said.
           SLTs, students and other healthcare                                                            University College London took up the IDDSI
                                                       @AngelaPenny11
                                                                                                          level 4 eating and drinking challenge. For a week
        professionals across the UK took to social                                                        they swapped solid foods for thickened tea,
        media to celebrate the day with passion and    2. Danielle Mulligan and colleagues armed with
                                                                                                          porridge, soups, purees, smoothies and even
                                                       promotional swallow awareness materials, a
        creativity. We saw an inspiring range of       biscuit challenge, a presentation on wheels and
                                                                                                          beer, taking to Twitter to share images of their
        activities and events—catering staff taking                                                        #thickenerchallange.
                                                       thickened water, head to the wards of the Royal
                                                                                                          @UCLGivingVoice
        to wards to treat patients to modified tea      Manchester Children's Hospital. @DMullNutri
        parties; SLTs in schools talking to children
        at snack time about dysphagia; training
        sessions for modifying food; students           SLTea Party Challenge
        taking part in thickener challenges; and
        even a bespoke, dysphagia-friendly               This year we launched the ‘SLTea Party Challenge’
        restaurant menu.                                 to find the best recipe for a texture-modified
           While some of your Swallowing                 afternoon tea. We’re pleased to announce
                                                         that the winner was the Marjon Giving Voice
        Awareness Day events could not go ahead
                                                         Society. Their tasty-looking contribution came
        due to COVID-19, we were glad to see
                                                         complete with sandwiches, cheesecake and trifle.
        so many people around the world were             Congratulations to them and a big thank you to
        engaging with the campaign on social             our judges: associate professor and IDDSI board
        media, including those in New Zealand,           member Dr Ben Hanson; RCSLT director of
        Ghana, Japan and 20 other countries.             professional development Judith Broll; and Oak
           Some of our favourite Swallowing              House Kitchen’s Preston Walker.
        Awareness Day activities are featured here—      You can find the winning recipe here:
        search #swallowaware2020 on Twitter to           bit.ly/3dLM5Zt
        see them all. ■

      16           Bulletin                                                                                                      May 2020 | www.rcslt.org

16_Feature3 SAD_Bulletin May 2020_Bulletin 16                                                                                                         30/04/2020 13:56
ADVERTORIAL

        Starch-based                                                                                     found that repeated oral intake of up to
                                                                                                         214 mg per kg of body weight per day
                                                                                                         (approximately 12.8g xanthan gum per

        thickeners vs gum-                                                                               day for a 60kg individual) for 10 days was
                                                                                                         well tolerated among most adults. While
                                                                                                         some individuals experienced ‘undesirable

        based thickeners                                                                                 abdominal discomfort’, this was not
                                                                                                         considered to be an adverse effect. The
                                                                                                         EFSA concluded that there are no safety
                                                                                                         concerns for the use of xanthan gum as a
                                                                                                         food additive at concentrations reported by
                                                       Downsides of gum-based

        T
                   hickening agents are often                                                            the food industry (6).
                   used in the treatment of            thickeners                                           The table below provides an estimation of
                   dysphagia to improve bolus          It’s important to recognise that gum-based        how much thickening agent a patient would
                   control and prevent swallow         thickeners are widely used in clinical practice   consume at different IDDSI levels. It is not
        aspiration. They bind with water to            and are tolerated by the majority of patients.    possible to accurately estimate how much
        increase bolus viscosity, slowing the          However, there may be some clinical               xanthan gum a patient would consume from
        entrance of thickened fluids into the          contraindications in a minority of patients.      the thickening agent, as manufacturers do
        pharynx, which may reduce the risk             This article focuses on evidence relating         not provide this information. However, it’s
        of aspiration (1).                             to xanthan gum, as it is one of the main          likely that patients on higher IDDSI levels
          Commercially produced starch- and            ingredients in most gum-based thickeners.         could be consuming more than the amounts
        gum-based thickening agents have an                                                              of xanthan gum used in the trials above.
        important role in clinical practice.           Digestive problems                                Given its laxative effects at high doses, this
        Gum-based thickeners represent a               Animal studies have found that large doses        could be problematic for patients with loose
        newer generation of thickening agents          of xanthan gum can induce soft stools             stools due to a pre-existing condition such
        and are increasingly popular among             with increased frequency (3,4). However,          as irritable bowel syndrome (that affects
        healthcare professionals (HCPs) due to         findings from animal studies cannot be            around 10-20% of the general population
        their clarity, stability, and resistance       applied directly to humans. Additionally,         (7)) or lactose intolerance.
        to amylase.                                    these studies used extremely high doses of           The dosage of xanthan gum should also
          However, there are certain clinical          xanthan gum, which humans are unlikely to         be carefully considered in those taking
        contraindications for gum-based                consume from an oral diet alone.                  medications and supplements which are
        thickeners, supported by clinical                 One small human trial found that               known to have a laxative effect. These may
        research. Additionally, there is a             moderate doses of xanthan gum (15g/               include (but are not limited to) magnesium
        percentage of patients who will benefit        day) caused similar digestive symptoms in         (8), laxatives, metformin (9), certain
        from and/or prefer starch-based                humans over 10 days in 18 healthy men (5).        antibiotics (10), chemotherapy drugs (11),
        thickeners. Finally, it’s important to give    The researchers concluded that xanthan            cholesterol-lowering agents (12), and
        patients autonomy when it comes to             gum has a “highly efficient laxative effect”      specific thyroid hormones (13). If there are
        choosing their thickening agent.               as it significantly increased stool output,       contraindications for using xanthan gum, a
          This article is written from a dietitian’s   frequency of defecation, and flatulence,          starch-based thickener may be more
        perspective and has been sponsored by          while having variable effects on gut transit      appropriate.
        AYMES International. It aims to                time. The same study found that healthy              NICE Clinical Guideline CG32 (Nutrition
        encourage HCPs to think about their            volunteers were asymptomatic if they              Support for Adults) states that: “People
        own clinical practice when working with        consumed less than 15g of xanthan gum per         with dysphagia should have a drug review to
        patients who use commercially produced         day, suggesting that at small doses, xanthan      ascertain if the current drug formulation,
        thickening agents for dysphagia.               gum is unlikely to cause adverse effects.         route and timing of administration remains
                                                          The European Food Safety Authority             appropriate and is without contraindications
        Similarities and differences                   (EFSA) re-evaluated the safety of xanthan         for the feeding regimen or swallowing
        Studies comparing the effectiveness of         gum as a food additive in 2017. They              process” (14).                               →
        both groups of thickeners on swallowing
        function and therapeutic outcomes                Property              Starch-based                         Gum-based
        are limited. It is important to reiterate
        that both starch-based and gum-based             Viscosity             High viscosity across a range        High viscosity across a range
        thickeners are clinically effective. A                                 of temperatures                      of temperatures
        comparative study of starch-based and
        gum-based thickeners in the treatment            Stability             May continue to thicken              Stable viscosity over time
        of post-stroke oropharyngeal dysphagia                                 over time
        (OD) concluded that “both starch-based           Clarity               Cloudy appearance                    Translucent
        and gum-based thickeners strongly
        and similarly improve the safety of
        swallow in chronic post-stroke OD by a           Consistency           Susceptible to amylase               Amylase-resistant
                                                                               digestion
        compensatory mechanism" (2).

       May 2020 | www.rcslt.org                                                                                                      Bulletin         17

17-19_AYMES ADVE_Bulletin May 2020_Bulletin 17                                                                                                   30/04/2020 13:57
ADVERTORIAL

                                                                                                             References
                                                                                                             1. Cichero JAY. Thickening agents used for
                                                                                                             dysphagia management: Effect on bioavailability of
                                                                                                             water, medication and feelings of satiety.
                                                                                                             Nutr J. 2013.
                                                                                                             2. Vilardell N, Rofes L, Arreola V, Speyer R, Clavé P. A
                                                                                                             Comparative Study Between Modified Starch and
                                                                                                             Xanthan Gum Thickeners in Post-Stroke
                                                                                                             Oropharyngeal Dysphagia. Dysphagia. 2016.
                                                                                                             3. Woodard G, Woodard MW, McNeely WH, Kovacs
                                                                                                             P, Cronin MTI. Xanthan gum: Safety evaluation by
                                                                                                             two-year feeding studies in rats and dogs and a
                                                                                                             three-generation reproduction study in rats. Toxicol
                                                                                                             Appl Pharmacol. 1973.
                                                                                                             4. Edwards CA, Eastwood MA. Caecal and faecal
                                                                                                             short-chain fatty acids and stool output in rats fed
                                                                                                             on diets containing non-starch polysaccharides.
                                                                                                             Br J Nutr. 1995.
                                                                                                             5. Daly J, Tomlin J, Read NW. The effect of feeding
                                                                                                             xanthan gum on colonic function in man: correlation
                                                                                                             with in vitro determinants of bacterial breakdown.
                                                                                                             Br J Nutr. 1993.
                                                                                                             6. Mortensen A, Aguilar F, Crebelli R, Di Domenico A,
                                                                                                             Frutos MJ, Galtier P, et al. Re-evaluation of xanthan
                                                                                                             gum (E 415) as a food additive. EFSA J. 2017.
          Amount of thickening agent consumed in 2 litres of fluids at different IDDSI levels*               7. National Institute for Health and Care Excellence
                                                                                                             (published date: 2008 last updated: 2017). Irritable
                                                 Level 1    Level 2          Level 3           Level 4       bowel syndrome in adults: diagnosis and
                                                                                                             management. Clinical guideline [CG61]. Retrieved
                                                                                                             from https://www.nice.org.uk/guidance/cg61/
          Number of scoops                          1           2               4                    6
                                                                                                             chapter/introduction
          added (scoop size: 1.2g)
                                                                                                             8. Izzo AA, Gaginella TS, Capasso F. The osmotic
                                                                                                             and intrinsic mechanisms of the pharmacological
          Amount of thickening                    12g         24g              48g               72g         laxative action of oral high doses of magnesium
          agent consumed in                                                                                  sulphate. Importance of the release of digestive
          2 litres of fluid                                                                                  polypeptides and nitric oxide. Magnes Res. 1996.
                                                                                                             9. Foss MT, Clement KD. Metformin as a cause of
          *Calculated using a market-leading gum-based thickening agent (Resource ThickenUp Clear)           late-onset chronic diarrhea. Pharmacotherapy. 2001.
                                                                                                             10. Barbut F. Managing antibiotic associated
                                                                                                             diarrhea. BMJ. 2002.
                                                                                                             11. Stein A, Voigt W, Jordan K. Review:
        Patient choice                                     popular amongst HCPs and patients, there
                                                                                                             Chemotherapy-induced diarrhea: Pathophysiology,
        The Francis Report highlighted the                 may be some clinical contraindications in         frequency and guideline-based management.
        importance of giving people food and               a minority of patients. Research suggests         Therapeutic Advances in Medical Oncology. 2010.
        fluid in a form they can safely consume,           that xanthan gum may have a laxative effect       12. Fernandes R, Shaikh I, Wegstapel H. Possible
                                                                                                             association between statin use and bowel
        and of delivering care based on the needs          when consumed in large amounts (>15g/
                                                                                                             dysmotility. BMJ Case Rep. 2012.
        and choices of patients (16). It forms part        day), which could be problematic in patients
                                                                                                             13. Brechmann T, Sperlbaum A, Schmiegel W.
        of NICE Clinical Guideline CG32 (14).              with pre-existing digestive conditions or         Levothyroxine therapy and impaired clearance are
           Anecdotal reports from HCPs suggest             those who take certain medications or             the strongest contributors to small intestinal
        that some patients, particularly those             supplements.                                      bacterial overgrowth: Results of a retrospective
                                                                                                             cohort study. World J Gastroenterol. 2017.
        with a learning disability, prefer starch-           It is important for speech and language
                                                                                                             14. National Institute for Health and Care Excellence
        based thickeners in the long-term.                 therapists and dietitians to work together        (published: 2006 update: 2017). Nutrition support
        Additionally, patients who are used to             as part of a wider multidisciplinary team         for adults: oral nutrition support, enteral tube
        taking traditional starch-based thickeners         to establish which type of thickener would        feeding and parenteral nutrition. Clinical guideline
                                                                                                             [CG32]. Available at: https://www.nice.org.uk/
        may find it difficult to cope with switching       be most appropriate for the patient.              guidance/cg32/chapter/1-Guidance#oral-nutrition-
        to newer gum-based products after                  Regularly reviewing patients is important         support-in-hospital-and-the-community
        long-term usage. It all comes back to              to monitor for any adverse effects relating
        patient choice—giving patients autonomy            to their thickening agent. In some instances
        and empowering them to make their own              switching to a starch-based thickener may
        decisions (where appropriate) about their          be most appropriate. Finally, this article has   AYMES International brings a fresh
        choice of thickening agent.                        reiterated the importance of giving patients     and innovative approach to delivering
                                                           autonomy when it comes to choosing a             delicious and cost-effective oral
        Conclusion                                         thickening agent that meets their individual     nutritional supplements and clinical
        In conclusion, both gum-based and                  requirements.                                    nutritional products.
        starch-based thickeners have important
        roles in clinical practice. While gum-based        Harriet Smith, registered dietitian
        thickeners are becoming increasingly               and health writer                                www.aymes.com
     18           Bulletin                                                                                                            May 2020 | www.rcslt.org

17-19_AYMES ADVE_Bulletin May 2020_Bulletin 18                                                                                                                  30/04/2020 13:58
ADV0320-005
                                                     Dysphagia Series

                       Although clear gum-based thickeners have risen in popularity, research suggests that xanthan gum, one
                       of the ingredients in gum-based thickeners, may have a laxative effect when consumed in large amounts
                       (>15g/day1) : this may be one of the reasons some patients can’t tolerate gum-based thickeners or
                       simply prefer to stay on a starch-based thickener.

                       Thicken Aid is the most cost-effective starch-based                                        IDDSI                     Level 1          Level 2          Level 3      Level 4
                       thickener on the market, and is much more
                       economical than Thick & Easy.                                                              Thicken Aid                  11p              15p             19p         23p

                                                                                                                  Thick & Easy                 20p              24p             28p         32p
                                                                                                                                                            Cost per 200ml drink 2

                                                  Order a free sample of Thicken Aid
                                   Contact customercare@aymes.com or phone + 44 (0) 845 6805 496

                                                                AYMES International Ltd | P O Box 853 | Haywards Heath | RH16 9PL
                                1. Mortensen A, Aguilar F, Crebelli R, Di Domenico A, Frutos MJ, Galtier P, et al. Re-evaluation of xanthan gum (E 415) as a food additive. EFSA J. 2017
                                                                                            2. Based on MIMs, April 2020

BUL.05.20.019.indd 2                                                                                                                                                                             23/04/2020 11:23
Katie                                                 Kathryn
                                                                                             K
                                       Chadd                                                 Moyse
        In our inaugural Research and Outcomes
                                                                                         1. Outcome measurement and
        Forum, Katie Chadd and Kathryn Moyse                                             clinical expertise
        discuss how outcome measurement forms                                            Outcome measurement provides
        an essential component of evidence-based                                         data that assists us with
        practice                                                                         reflecting on our own practice,
                                                                                         evaluating interventions we
                                                                                         provide and learning from
                                                                                         others. It therefore plays a role
                                                                                         in building clinical knowledge
                                                                                         and expertise, and our
                                                                                         understanding of what makes a
                                                                                         quality service.

                                                                                         2. Outcome measurement and
                                                                                         service-users’ preferences,
                                                                                         priorities and values
                                                                                         Outcome measurement is core
                                                                                         to providing person-centred
                                                                                         care. Working in partnership
        Outcome measures                                                                 with service users to identify
                                                                                         meaningful outcomes and

        and EBP                                                                          measures can help us to focus on
                                                                                         the priorities and preferences of
                                                                                         the people that we support. By
                                                                                         monitoring and documenting

        E
                   vidence-based practice           measurement have been                meaningful change over time,
                   (EBP) as a subject is            problematic, but one way of          we are better placed to truly
                   regularly discussed              conceptualising it is: “results or   understand whether we are
                   within this section of           visible effects of interventions…     indeed meeting our service
        Bulletin. But, as the RCSLT’s               part of the quality cycle…           users’ preferences.
        organisational approach shifts              the impact of interventions”                                              may not be included for such
        towards the greater inclusion of            (Enderby, John and Petheram,         3. Outcome measurement and           studies due to particular
        outcomes and informatics into               2006).                               the external scientific evidence      personal, demographic or
        the research team, it is timely for            To remind readers, when we        Outcome measurement data             multi-morbid clinical attributes.
        us to start exploring EBP through           talk about EBP, we are referring     can complement the external             As a result of this and many
        the lens of one form of applied             to an approach to practice           scientific evidence, the third        other contributing factors, it
        data collection: outcome                    that uses information that is        element in the EBP model.            may or may not be feasible to
        measurement. From now on, in                triangulated from different              Routinely collected               implement interventions exactly
        the ‘Research and Development’              sources to guide clinical            outcomes data can assist             as described in a study and
        pages of the magazine (as they              decision-making.                     with contextualising findings         achieve the same outcomes. It
        were called—you will see we                    The model of EBP alludes          from research studies for the        is therefore essential that we
        have renamed them to reflect                 to three core aspects of             local population. Just because       collect data to monitor and
        their new focus), we will be                information:                         something appears to have been       evaluate whether interventions
        thinking about how collecting               ■ Clinical expertise                 effective in a research study         have an impact when we apply
        routine clinical outcomes data              ■ Service users’ preferences,        does not mean it will also be        them in our local context.
        can develop your EBP, contribute               priorities and values             effective for the person you             Furthermore, collecting
        to improving quality of care,               ■ External scientific evidence        are working with. Hence it is        data routinely on all of the
        enrich the evidence base for our               Where does collecting             imperative that we carefully         individuals we work with
        interventions and empower you               outcomes data sit in the model?      monitor the outcomes of the          can generate larger volumes
        to have a role in all of these.             The answer is, essentially, that     work we carry out. Also,             of information about these
                                                    outcomes data adds value to all      the peer-reviewed evidence           client groups than is currently
        Adding value                                information sources required         available to us typically consists   available in the speech and
        In the UK and internationally,              to be an evidence-based              of studies that have carefully       language therapy literature. In
        there is currently no standard              practitioner. We can show this       selected participants, who may       the absence of representation
        definition of outcome                        to be true by taking each part       or may not be representative of      of some of our most complex
        measurement in the context                  of the EBP model in turn and         the individuals we encounter on      client groups in the peer-
        of healthcare (HfMA, 2016).                 identifying how outcomes data        our caseloads. The individuals       reviewed literature, outcome
        Attempts to define outcome                   feeds into each.                     we work with on a daily basis        measurement can help to fill a

      20           Bulletin                                                                                                           May 2020 | www.rcslt.org

20-21_R and O Forum_Bulletin May 2020_Bulletin 20                                                                                                         30/04/2020 13:58
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