Respite care restores energy for patients and their families - Harbour Hospice
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March 2019 Respite care restores energy for patients and their families Dave Bindon lives his life tethered to an oxygen support from Harbour Hospice, and what he has tank. Diagnosed about 19 years ago with chronic valued the most is his visits to the inpatient unit obstructive pulmonary disease (COPD), Dave’s at Hibiscus House – offering him much needed condition has gradually worsened and he has respite. On each stay, the Hospice’s team of nurses, been on fulltime oxygen for several years. doctors, patient and family support team members and volunteers welcome Dave for a change of scene, He considers himself lucky that his health is providing an opportunity to re-evaluate and review reasonably stable and his symptoms well managed; all aspects of his condition and adjust his medication he has little energy but is not in constant pain. But if needed, and giving Anna, his main caregiver, a what he finds frustrating, and often boring, is to be welcome break. confined to a 15-metre radius - the length of his oxygen tube. Dave wishes for more independence. “I would love to be able to go out and do the shopping, or go to the At home in Manly, Dave can walk around his garden library,” he says. “My biggest gripe is not being able but to go any further, he relies on his wife Anna to lift to get out much, and my biggest concern is Anna’s a mobile oxygen tank into the car and drive to their state of health.” desired destination – as long as they are home within the three to four hours allowed by the mobile oxygen Thanks to your ongoing generosity and continued supply. With Anna becoming increasingly frail and no support, we can offer patients like Dave much longer a confident driver, these outings are now rare. needed respite care. These important breaks enable Dave’s condition means he has needed ongoing Dave’s wife Anna to reenergise and be able to p>3 You are part of this caring Hibiscus Coast community. Volunteer, donor, bequestor, staff member, brave story-teller. Thank you.
Hibiscus House Jan Nichols Inpatient Unit July 2017 to June 2018 Caring for your growing Last year at Harbour community at home and in Hospice Hospice’s inpatient unit on the Hibiscus Coast, there were 239 total admissions for symptom management, 2018 was a monumental year which saw the creation of respite or terminal care. Harbour Hospice Trust to serve the communities of North Shore, Hibiscus Coast and Warkworth Wellsford. 85 of these admissions were for respite care. 52 patients The merger of Hibiscus services with North Shore and received respite care over Warkworth Wellsford has been an enormous undertaking and 602 bed nights. I want to thank you for your continued support as we have refined roles within the new organisation, introduced new services and moved shops. All while continuing our everyday mission of providing skilled and compassionate care to more and more people in our local communities. Over the last six months, referrals to Harbour Hospice have increased by close to 9%. This means, with your continued support, we are on track to care for more than 1200 people this year. Among these are people with illnesses other than cancer. In this Respite edition of Your Hospice Matters we introduce you to Dave who Symptom Management is living with chronic obstructive pulmonary disease (COPD). Terminal Care Very clearly people like Dave can receive enormous benefit from the wraparound services our Hospice offers. We are quick to acknowledge that most end of life caregiving is provided by family members in their own homes. Dave’s story is an example of the how short stays in the inpatient unit can help patients relax and restore their energy, while giving family caregivers time to rest, take a holiday break, or catch up on other life demands. Across the Hibiscus and North Shore Hospice Inpatient Units we usually care for three booked respite 602 patients a week from anywhere in our three communities. That you for your commitment to supporting the work of the R E S PI T E B E D nurses and doctors who warmly welcome patients into our NIGHTS inpatient unit for some therapeutic care and social connection. With best wishes 239 Jan Nichols R E S PI T E A D M I S S I O N S Chief Executive Your Hospice Matters Harbour Hospice 2
Trusts’ generosity “It’s good keeps lights on to feel so welcomed and cared for.” Special thanks to the Charitable Trusts that play a vital role in helping meet the challenging funding Continued from page 1 shortfall we face every year. Two trusts that have supported us for decades are Pub Charity Limited continue the caring when he returns home. She can and The Ted and Mollie Carr Endowment Trust feel reassured that Dave is receiving expert and and Estate of Ernest Hyam Davis. Their continuing compassionate care from the Hospice team. generosity has aided the comfort of thousands of patients and their families over the years. “It’s very restful and I certainly feel better while I’m there,” Dave says. “When I’m at Hospice I always feel In the last financial year: that I’m in good hands. I have a room to myself and I Pub Charity Limited helped fund essential can get my trusty trundler out and walk all the way operating costs with a grant of $250,000. around the deck, within the limits of the tubing.” Estate of Ernest Hyam Davis & Ted and Mollie Carr Endowment Trust gave $30,000 to pay the As Dave’s mobility and energy have reduced, his lease on the Whangaparaoa Hospice Shop, so more social circle has shrunk. Dave appreciates the shop income could go directly towards patient care. friendship of the doctors, nurses and volunteers The Kelliher Charitable Trust supported our Family at Hospice providing him with improved quality of Support services. life and enhanced wellbeing. “It’s good to feel so North Shore Presbyterian Hospital Trust helped welcomed and cared for,” Dave says. provide spiritual care for patients and families. Constellation Communities Trust supported With your help, our nurses, doctors, the patient and strong leadership for our nursing team. family support team and volunteers can continue Pelorus Trust paid for syringe drivers that help our to offer patients like Dave respite care. A stay in patients manage pain. the inpatient unit not only gives the medical team Zelda Roberts Charitable Trust supported our a chance to re-evaluate a patient’s condition and counselling services. make any adjustments to their medication that may Dragon Community Trust contributed to the costs be needed, it also gives patients and families a of running our patient day groups. chance to reset and restore physical, emotional and BlueSky Community Trust helped us feed our social energy levels. patients tasty and nourishing meals. You bought new beds! Last November our patient Joanne Ratima shared her story and asked you to help us buy six new beds and mattresses for the Hibiscus Coast inpatient unit, as the beds there no longer provide the comfort we aspire to. Your big-hearted response amounted to a donation total of $13,903. Thanks to you we can now replace two of the old beds and mattresses and give patients like Joanne – and Dave, who shares his story in this newsletter – the most fundamental gift of comfort. Joanne was amazed and excited that her story inspired so much generosity. She is delighted to be part of such a thoughtful community, and to know that her story Thank you will bring comfort to others. Thank you for caring and for helping us give for your people like Joanne and Dave the comfort and relief of a soft, cosy bed. big-hearted response! Your Hospice Matters Harbour Hospice 3
Carols by the Sea / Kathy Manson and the Ukulele players raised almost $800 for Hospice with Carols by the Sea in December. They extended an invitation to the community to celebrate Christmas in a very Kiwi fashion – outdoors at the beach, singing Christmas carols to the strumming of ukuleles! Harbour Hospice CEO Jan Nichols and the Thank you to Kathy and her band Farmers team. Funds raised in Hibiscus of musicians, and to everyone who Coast and North Shore will be used for supported this wonderful event. hospice services in the community in Greek Extravaganza / which they were given. A celebration of Greek culture, food, Trees of Remembrance / music and dance raised over $13,300 for Harbour Hospice’s Hibiscus Coast Christmas is a time for giving, service in November, proving that and you gave with open hearts to bigger is sometimes better. support our gift-wrapping and Trees of Remembrance at local malls, For the second year running, the supermarkets and the Silverdale Rotary Satellite Club of Orewa- Farmers store in December. Millwater hosted the Greek Extravaganza, but moved it to bigger With your generosity, we raised venue – the Orewa Events Centre $18,000 towards care for Harbour – and almost doubled the amount Hospice patients in the Hibiscus raised in 2017. Coast community. We are enormously grateful to Theo Farmers Silverdale assistant store Simeonidis and the Rotary Satellite manager Amber Cleverley and her Club of Orewa-Millwater for their amazing team inspired customers commitment to making this such a to give $11,662, either as donations successful event, and to Hibiscus and or by purchases of the Hospice Bays Local Board and the following All that Jazz / Christmas Bauble. The full $10 of the sponsors for their generous support: bauble purchase price went directly The Orewa Lions Club would never to the store’s local hospice, ensuring Platinum Plus Sponsor - New World blow their own trumpet, but they funds stayed in your community. Whangaparaoa; Gold Sponsors know how to organise a great jazz - Gulf Rise Metlife Care Village, night. At Trees of Remembrance in other InspHire, Silverdale Print and Design; sites around the Hibiscus Coast Community Sponsors – Driveline, The Lions’ annual Jazz and Swing community, shoppers donated almost Raewyn and Karlene of Barfoot Concert, held at Centrestage Theatre $7,000. and Thompson Millwater, Kuzina in October, raised $4,015 for Hospice Mediterranean Café and Bar Orewa, services in the Hibiscus Coast We are deeply grateful to the 84 UProtectNZ Insurance Services community. Hospice volunteers who gave their Millwater, Heathcote Legal, Auckland valuable time, and to Silverdale Mall Garden Services, Total Security Many thanks to our generous sponsor manager Lorraine Gatiss, Coast Group, Stealth Group, Sunrise Forrest Funeral Services and the Plaza manager Kylee Meek and office Electrical, Byrne Homes, ASB Bank Orewa Lions for their commitment administrator Sue Peltz, Orewa New Orewa, Bruce Cameron of Lifetime to delivering fantastic musical World owner Catherine Versalko- Financial Group, JP and Associates entertainment and supporting West, and Whangaparaoa New Chartered Accountants. Hospice care in our local community. World owner Penny Ashton. Your Hospice Matters Harbour Hospice 4
Hibiscus House your Hospice hub When Hibiscus House was built more than 10 years Harbour Hospice’s community teams will need to ago, it was intended that the downstairs would grow to keep pace with population growth and eventually house office space for staff not working demand on palliative care services. directly with patients and families. The project is expected to be finished later this month Storage space in the basement is now being and includes new landscaping, 29 additional carparks converted to an open-plan office for Harbour and a second vehicle exit. In the next phase, the Hospice’s finance, administration, education, HR and inpatient unit will also be upgraded with new carpet, communications teams. curtains and chairs. Hibiscus House will be the hub for our three We are grateful to the companies who are supporting communities of Hibiscus Coast, North Shore and the redevelopment: HiwayGroup, Firth Concrete, Warkworth Wellsford. Amstar Construction, Hutchinson Consulting Engineers, Gideon Contractors Limited, Western ITM, This will improve collaboration and support among Hynds Pipe Systems, Fulton Hogan, Atlas Concrete, staff, and free up offices on the upper level for Opie Contractors, B&A Urban & Environmental, nursing and family support staff. We know that Coastline Markers, and C&R Surveyors Ltd. Farewell Merv Crocker Extraordinary legacy of a humble and generous man Late last year we bid a sad farewell to Merv genuinely kind, personable and great fun,” Jan says. Crocker, a humble and generous man who played an enormous role in advancing hospice care in the As chairman of the Hospice Hibiscus Coast Hibiscus, Auckland and national communities. Charitable Trust from 1996 to 2004, Merv led the hospice service into a more specialised and Merv’s legacy to our local hospice service included sustainable era. He proposed a new financial chairing the board that opened the first Hospice and operational structure and implemented new Shop on the Hibiscus Coast, driving the fundraising, fundraising streams (including shops at Orewa, planning and construction of Hibiscus House Whangaparaoa and Silverdale). and, shortly before he passed away last October, establishing a Nurses Education Scholarship to Merv chaired the capital campaign for Hibiscus honour his beloved wife, Ngaire. House and ensured the plans included room for the service to grow. That foresight is paying Harbour Hospice CEO Jan Nichols says dividends now, as the building is transformed to she first met Merv when he was provide more room for patients and families. a member of the Hospices of Auckland Executive Last year Merv added one more gift to his organising an event to extraordinary legacy, establishing the Merv and benefit Hospices in the Ngaire Crocker Scholarship Fund to further the region. training of Hibiscus Hospice nursing staff. “Not only was he Registered nurse Gwendalyn Castano was the first a hardworking to receive the annual scholarship. For two weeks she and committed worked alongside staff at HammondCare, a leading organiser, provider of dementia and palliative care services in we soon Australia. Gwen returned with a deeper understanding discovered of the needs of patients with dementia and new that Merv was knowledge to share with her colleagues. Your Hospice Matters Harbour Hospice 5
Hospice Awareness Week May 2019 You can help us to help others by lending a hand to raise valuable funds and awareness for Harbour Hospice. Suzanne McFadden has been a regular Hospice Cuppa host and her gatherings have involved many of the women in her Whenuapai neighbourhood. About 60 attended Suzanne’s Whenuapai High Tea for Hospice; aged from 8 to 80, the guests included three sets of grandmother, mother and daughter. A raffle and a fun quiz about women, beautiful food and great company, and a fantastic fundraising total of $1370 for friends, family or colleagues Hospice definitely add up to a successful Cuppa! together to enjoy a ‘comforting cuppa’. We have a fantastic FREE pack Here are a few ways you can show your support this we can send you to help with your fundraising. Awareness Week: - ‘Add a Dollar‘ at the checkout when shopping at - Spare a couple of hours to ‘shake a bucket’ for your your favourite local supermarket. local Hospice. We are aiming to have more collectors than ever before, so please keep an eye out for them To register your support or to receive your and give generously. free Hospice Cuppa pack contact Natalie Taylor - Host a Hospice Cuppa. A great excuse to bring on 09 421 9180 today. Golf tournament good for business and good for charity Golfers who fancy their chances at hitting a hole Organiser Mike Grunsell was motivated to fundraise in one have 25,000 reasons to sign up for the third for Hospice after both his parents, his big brother Hibiscus Golf Tournament on Friday March 29. and three friends received hospice care. Mike will be on the course all day driving the drinks cart, checking A prize package of $25,000 worth of travel there are plenty of sausages on the ninth-hole organised by You Travel is on offer for the first lucky barbecue, and making sure everyone is smiling. (or incredibly accurate) golfer who sinks a ball from the tee in the Ambrose style tournament at the “It’s a social day and good for business; whether Helensville Golf Club. you’re a big corporate or small business, you’re talking, having fun and building relationships,” Mike says. “Golf is serious, but this is a fun day.” Fellow golfer Peter Jones and Hospice Fundraising Coordinator Natalie Taylor are helping Mike organise the tournament, with support from the golf club and the Hospice Women’s Committee. Cabra Holdings, ECC Lighting and Design, Hopper Developments and Huapai Country Club are kindly sponsoring the event. 29 th Register your team today so you don’t miss out. www.harbourhospice.org.nz and look for MARCH Events; Hibiscus Coast Your Hospice Matters Harbour Hospice 6
Open Doors for fun and friendship The incredible support that you give to Hospice is helping us meet the needs of patients through our popular patient day programme, Open Doors. With the aim of providing holistic care for patients, Open Doors runs from 10.30am to 12.30pm every Wednesday in the lounge of Hibiscus House at John Dee Crescent, Red Beach. At every second Open Doors session, volunteers offer patients gentle pampering Run by Day Group Coordinator Pauline Louette and with hand and foot massage. her team of committed volunteers, the sessions offer fun activities and presentations by vibrant speakers even though it costs her a huge effort, as she suffers – along with the Hospice hallmarks of tea, coffee and from shortness of breath. She no longer drives and delicious food. often gets a ride with a volunteer or with Val, another regular who has become a friend. A schedule of varied topics have included armchair travel to India, Africa and Canada; song, dance ‘’We have such a laugh at times and that’s one of the and music-making; breathing and relaxation; floral reasons I go,’’ Letty says. ‘’I like to be among people arrangement and crafts. Every second session is who laugh and enjoy life.’’ a social gathering with pampering by dedicated volunteers who offer gentle hand and foot massage. Pauline says she is extremely grateful to the community for supporting this extension of hospice Pauline believes patients come mainly for the services through their donations of time, goods and fellowship and to talk about concerns and issues funding. “This group wouldn’t be possible without with people in a similar situation. They do not have to the incredible help of the Hibiscus Coast community.” explain themselves, and can express thoughts they may feel reluctant to share with other people. For Open Doors is one of several programmes some, it is the only outing in their week. supporting patients, caregivers and bereaved family members at Hibiscus House. Visit Hospice patient Letty Morris enjoys the company harbourhospice.org.nz and go to How we can help at Open Doors so much that she continues to come you – Programmes. Tax deduction rewards your generosity Nobody understands the importance of time more by ensuring Hospice can continue providing than someone who is nearing the end of life. Time compassionate care; and it will benefit you by taking is also important if you are considering a donation advantage of available tax credits. to Harbour Hospice, as the end of the financial year is approaching and time is running out on tax As the need for palliative care increases in your deductible donations. community, we will help more and more people by providing respite care in the safe and welcoming As an individual you can claim a 33.33% tax credit environment of a Hospice Inpatient Unit – but we for all donations over $5 you make to an approved need your help to make this possible. donee such as Harbour Hospice*. A tax credit reduces the amount of tax you have to pay. Your * Please contact your tax advisor or accountant for donation today will benefit people in your community more information. Your Hospice Matters Harbour Hospice 7
Please donate today so we can continue welcoming people like Dave to the inpatient unit so they, and their families, can relax and restore their energy. You are part of the Harbour Hospice community that makes it possible for Dave to enjoy regular ‘retreats’ in the Hibiscus House Inpatient Unit, where he can be reassessed and connect with other people while Please help us his wife Anna restores the energy needed for her give patients caregiving role. precious time to When someone is ill and can no longer take part relax and revive. in their usual social activities, they can soon feel isolated and lonely. A change of scene, and the opportunity to meet old friends and make new ones, may be as restorative as any medicine. allows precious time to review treatment and to restore energy levels for both patients and family members. The Hibiscus Coast area is growing rapidly and we need your support to care for the growing number Thank you for supporting Harbour Hospice and of patients - more than we have seen before. Most enabling us to care for people in your community of are cared for at home and many, like Dave, have Hibiscus Coast. complex needs that are aided by a stay in the care of the inpatient unit multidisciplinary team. Please make a donation today, to ensure our nurses, doctors and patient and family support team can Jan Nichols continue to offer patients like Dave respite care – which Chief Executive P.S. Last year Hospice Hibiscus Coast was renamed, and is now called Harbour Hospice. However the same Hospice services still provide care and relief as before. Your gift today will directly benefit patients in your local community. Please consider a gift today, of whatever you Please accept my donation of: can afford, to ensure our nurses and doctors $ can continue welcoming patients like Dave. Post this form to: Harbour Hospice Hibiscus House, PO Box 66, Whangaparaoa 0943 HC NEW0319 Name: I wish to make my payment by: Cheque (enclosed) Credit card (see below) Address: Charities Services #CC22413 Card no: Cardholder’s name: Card expiry date: Phone: Signature: Email: Other ways to donate: Phone: Hibiscus House (09) 421 9180 Please send me information about: Online: Safely and securely at www.harbourhospice.org.nz Joining our Friends of Hospice Club through monthly giving Gifts $5 and over are tax deductible. Including Hospice in my Will Your Hospice Matters Harbour Hospice 8
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