QUALITY ACCOUNT 2017-2018 - Peter MacCallum Cancer Centre
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QUALITY ACCOUNT 2017–2018
OUR VISION OUR VALUES To provide the best in cancer Our work is guided everyday by our values of excellence, innovation care, accelerating discovery, and compassion. translating to cures. We strive for excellence, ensuring that clinical practice is evidence- based and patient-centred and is provided by qualified and experienced staff who are accountable and appropriately credentialed. We strive to ensure that innovation is fostered by supporting research and a learning culture. We adhere to the strongest ethical standards to ensure a culture of openness, mutual respect and trust. Compassion is at our core.
ABOUT US 160,000+ 300,000 600 specialist clinic cancer research articles published appointments treatments in prestigious journals $80M 225 41 research active clinical research budget trials laboratories $380M 600 5 hospital research sites across budget employees Victoria World’s Best Cancer Care Quality Account 2017-18 3.
WELCOME FROM OUR INTERIM CHIEF EXECUTIVE. I’m very pleased to present you with as we fine tune the ways we deliver the Peter Mac Quality Account for care, enhance our systems and 2017-2018. processes, and implement new technology. On page seven we We produce this document each profile Graham Comber, a telehealth year as a report to our community, patient who has been able to travel proudly demonstrating the quality of around Australia with his wife our care and the ways we improve Jenny, checking in via his iPad for our service in response to your appointments. And on page eight, feedback. we report on the Virtual Reality Peter Mac is one of the world’s technology we use to help kids deal leading cancer research, education with radiotherapy. and treatment centres and is Understanding that cancer doesn’t Australia’s only public hospital solely discriminate, we work with dedicated to treating people affected individuals and communities who by cancer. may be particularly vulnerable. But not only is clinical excellence Further in this document, we our objective, the way we deliver our outline our focus on LGBTI people, services through a culture of deep describe our staff training around personal care and connection puts family violence and announce the the physical, emotional and social formalisation of a very important needs of patients front and centre. relationship with Victoria’s peak body for the health and wellbeing In this document, we cover some of of Aboriginals, VACCHO (Victorian the ways we do this. As an example, Aboriginal Community Controlled the accessibility audit we conducted Health Organisation). with visitors, staff and patients who have physical and/or sensory Because we are always exploring disabilities has introduced physical models of care that accommodate accessibility aids to help people get patient preferences, we have around the hospital more easily. And, introduced a nurse-led survivorship a recent survey of palliative care breast cancer clinic to help guide inpatients and outpatients will now patients after their treatment with help us improve their engagement in us has finished, and have recently very personal ways. started a program where selected patients are able to give themselves We don’t rest on our laurels. We drive subcutaneous immunoglobulin continuous quality improvement, at home. 1.
We want our patients to be able to participate in their care and treatment as they choose. We are always trying to help improve health literacy for patients, carers and the community, so they come to rely on us as a reputable and trusted source of information. As examples, new information hubs in our treatment wards 2C and 2D are helping us to connect with patients and empower them with the information they need about their cancer. Each one of these initiatives has been researched, planned and carefully considered to not only improve what we do but how we do it. I hope you enjoy reading this Quality Account. Nicole Tweddle Interim Chief Executive World’s Best Cancer Care Quality Account 2017-18 2.
BREAST CANCER SURVIVORSHIP PLANS. As breast cancer becomes more common and survival rates improve, more and more people with the disease are living longer after apparently successful cancer treatment. Most are perfectly well, but many face various physical and psychological consequences of the disease and its treatment. Improving cancer outcomes is Patients who have had early stage fantastic news for the entire breast cancer or the condition known population. Our role and obligation as DCIS (an acronym for ductal to the community and our patients is carcinoma in situ which is a pre- to provide care for our breast cancer cancerous condition) and are 6-12 patients after they complete their months post diagnosis following intensive hospital-based treatments. completion of active treatment are offered Survivorship Care Planning. A breast cancer clinic for survivors, being led by our magnificent breast care nurses, is now offering patients specific Survivorship Care Planning, designed to identify and address any unmet needs, and also develop a long-term care plan. 3.
PLANNING FOR THE FUTURE In preparation for an extended and then led the grant application consultation with a breast care that allowed a version of the nurse, each patient completes a program to be offered to Peter Mac suite of questionnaires. During patients. the consultation, the patient’s He explains that the program works pathology and treatment is reviewed, simply and effectively. the results of the questionnaires are discussed and a summary is generated that includes a health “Most people who have had and wellbeing plan with a follow-up schedule. breast cancer recover extremely Women are then encouraged to well, but many are left with have an extended consultation with the effects of the disease and their General Practitioner (GP) to review the Survivorship Care Plan treatment,” Bruce says. and incorporate it into their on-going care. General Practitioners have a “Patients have a range of things they vital role to play in breast cancer may want to discuss – menopause, survivorship, and therefore follow-up sexual health, mental health, care that is shared between hospital the physical effects of having and GP is ideal. gone through cancer and fear of Professor Bruce Mann is Director recurrence.” of the Breast Tumour Stream at “Having the opportunity for a Peter Mac, as well as at The Royal prolonged consultation with a breast Melbourne and Royal Women’s care nurse at the end of treatment Hospitals. means that we can be sure we are “The involvement of GPs in shared not overlooking any major issues, care follow-up demonstrates a and helps our patients move on with genuine partnership between Peter their lives.” Mac and our specialists and primary carers. These complementary strengths and skills work together in the best interests of our patients,” explains Bruce. He has led similar projects at these hospitals, which have embedded a robust Survivorship Care Planning, World’s Best Cancer Care Quality Account 2017-18 4.
PETER MAC CELEBRATES FIRST VICTORIAN SAME SEX MARRIAGE. In a moving and bittersweet ceremony, Peter Mac patient Cas and her partner of 17 years, Heather, married at our Wellbeing Centre in December 2017. At 53 years old, Cas had breast cancer Along the way, Cas had a double that had metastasised in her brain. mastectomy, her ovaries removed, radiation treatment and chemotherapy. The terminal diagnosis was handed For a time, she thought she had at down only days before Australia had least bought herself a few extra years. voted ‘yes’ for same sex marriage. Cas and Heather were engaged as soon as “Cas tried everything to eliminate Parliament made it official. ‘the intruder’ from her body,” Heather says. “She questioned and accepted Although a one-month notice period every treatment and strived for is typically required for couples a successful outcome with every to marry in Australia, leniency is breath she could until we got the final given for couples in extraordinary heartbreaking news.” circumstances. As Heather says, theirs were the most extraordinary of circumstances. “Peter Mac created a beautiful memory which will be cherished forever.” 5.
CAS AND HEATHER ALWAYS WANTED TO MARRY Long before her diagnosis of Cas passed away eleven days later, terminal illness, Cas and Heather in Peter Mac, where she had been always thought they would legally admitted for further treatment and marry if they could. where she felt comfortable to move on from this life. Because of Cas’ treatment schedule, Heather says that they were relieved “Cas was everything to me and to that the Peter Mac team supported have the chance to call her my wife their wishes. is a feeling I find difficult to explain, except to say it is an honour to And on their wedding day, Heather carry on Cas’ legacy as her wife,” says she experienced the most says Heather. beautiful feeling she’d ever known. “The room was full of pure love,” she says. “By this time, Cas knew her time was limited and had said she actually felt that her vibrational energy had changed, it was such an emotional experience.” This incredibly moving expression of Peter Mac’s holistic approach to cancer care and the love the couple shared culminated in the moment as the Registrar of Births, Deaths and Marriages presented the newlyweds with the first official marriage certificate for a same sex couple in Victoria. World’s Best Cancer Care Quality Account 2017-18 6.
HOW TELEHEALTH HAS MADE MY TRAVEL PLANS COME TRUE WHILE LIVING WITH CANCER. Hi. I’m Graham, a cancer patient More to make light of the bad news under Professor Simon Harrison at than being serious, I told Simon Peter Mac. of our travel plans and asked, “Don’t suppose Peter Mac does I would like to tell all how Peter e-consultations?”. To my delight he Mac’s wonderful telehealth facility said a resounding “Yes!”, provided we and their equally amazing oncology could plan for blood tests at roughly staff have made carrying on a weekly intervals. normal life with cancer not just possible, but almost painless. After a few seconds thought, we In December 2011, I was diagnosed with Multiple Myeloma. However, were introduced to Peter Mac’s after a stem cell transplant and wonderful telehealth facility. an initial recovery period from the procedure, my situation was Having finalised the initial medication thankfully put on the back burner. introduction and planned for the This allowed my wife Jenny and trip with our friends, my oncologist myself to lead a fairly active consultant Simon and his team retirement in between three to four armed us with a heap of weekly and monthly check-ups, including our monthly blood test requests. They wish to travel around Australia. booked us in with telehealth for our first e-consultancy on the road from Things were looking up early in wherever we would be in four weeks. 2018 and so planning for the trip of a lifetime was well under way when, I can attest that the service is on a regular check-up at Peter Mac, extremely easy to use for anybody Professor Simon Harrison gave me who can browse the internet and the news that I had now contracted be contacted by phone or email. a secondary cancer, which could Appointments are usually with your likely be treated with drugs but, for a personal Peter Mac consultant so few months, would require frequent that your continuity and confidence blood tests and consultations. in care is maintained. Since that time Peter Mac telehealth has allowed us, with almost zero Peter Mac’s telehealth services planning and inconvenience, to travel make it possible for their extensively from our home town wonderful medical staff to near Melbourne, to South Australia maintain a very personalised and up through the red centre to Darwin, then down the west coast to and effective continuation Perth and beyond. We have visited of your cancer monitoring, many beautiful and iconic points that diagnosis and treatment. Australia has to discover in between. 7.
TELEHEALTH UPDATE. As part of our commitment to Telehealth is great for many types providing the best care as close of appointments such as a review to home as possible, Peter Mac before chemo, routine follow up, introduced telehealth consultations getting results or planning the next in 2017 for all patients where steps in treatment. All patients need clinically appropriate. is a device with internet, camera and audio functions. Through telehealth, patients can have an appointment with their Peter Find more information at Mac specialist by video from their petermac.org/telehealth. home, with their local GP, from their local health service or, like Graham, on the road! Our telehealth consultations expanded last year and Peter Mac conducted 411 telehealth appointments. “Our son, Connor had radiation at Peter Mac and experienced the wonderful team dedicated to making every part of the radiation ‘experience’ as seamless as possible,” says Liz, founder and CEO of the Robert Connor Dawes Foundation. “We are grateful we can fund the VR goggles in hopes of helping prepare children and reduce stress relating to their radiation treatment.” World’s Best Cancer Care Quality Account 2017-18 8.
VIRTUAL REALITY HELPS KIDS BETTER PREPARE FOR RADIOTHERAPY. Peter Mac treats all children from “It is hoped that by experiencing this the Royal Children’s Hospital who in VR – in a supportive environment require Radiation Therapy as part and well before they arrive for of their cancer treatment. These treatment – that more children can patients range from babies through have this treatment without the need to young adults. for sedation.” “Radiotherapy can be a challenging Participating patients receive a set of experience even for our adult VR goggles loaded with a purpose- patients as they must lay very still created VR video. Young patients on a large machine, usually with a watch this in the comfort and safety mask or other cover to prevent body of their own home. movement,” says Nigel Anderson, They get a treatment-like experience Principal Research Radiation where they can look around the Therapist at Peter Mac. radiotherapy machine, see how it “Many children require general works and learn what to expect. anaesthesia for each treatment Early patient and family feedback session, to ensure they lay still indicates reduced anxiety, and and we can accurately target improved understanding of the their tumour.” radiotherapy process for not only Our young patients are using patients and families but broader Virtual Reality, or VR, goggles to support networks. Some children experience what radiotherapy is have taken their VR googles to like before they come to Peter Mac school to give their classmates a for treatment, as part of a ground- better understanding of what they’re breaking trial funded by the Robert going through! Connor Dawes Foundation. The trial, also involving the Murdoch Children’s Research Institute, is understood to be the first to use VR in this setting and it is already showing positive results in reducing anxiety. 9.
TREATING THEMSELVES AT HOME. Most Peter Mac patients are seen as outpatients in our clinics. Some of them travel great distances and they may be inconvenienced by the time away from work and the expense. But, when it’s possible, we like to give our patients options to be treated where and when they want, ideally in the comfort of their own home. Our Subcutaneous Immunoglobulin There is no cost to the patient for (SCIg) home management program consumables such as delivery is a terrific example. In March pumps, syringes or needles. 2018, we trained our first patient The clinical benefits are hard to to give themselves subcutaneous ignore. Multiple studies have shown immunoglobulin at home. that home-based SCIg improves Immunoglobulin replacement important aspects of health-related therapy is the standard of quality of life, including improvement care for patients with acquired in the perception of general health hypogammaglobulinaemia and wellbeing compared to full secondary to haematological intravenous immunoglobulin. malignancies chronic lymphocytic Treatment satisfaction improves with leukaemia, multiple myeloma, SCIg use. Patients tell us that they non-Hodgkin lymphoma and appreciate the independence, the other relevant malignancies, convenience and less interference and post haemopoietic stem cell with their social, education and work transplantation. activities. There are many benefits to receiving The service has recently allowed immunoglobulins subcutaneously. one patient to travel overseas for The process is ideally suited for 12 weeks with SCIg – something he patients with IV access difficulties was unable to do while on monthly and can be used for patients with intravenous immunoglobulin therapy. previous systemic reactions to intravenous immunoglobulin, known So far, 25 patients are self- as IVIg. administering immunoglobulin therapy in their own homes. More PATIENT TRAINING patients are now being identified and To help patients feel confident and offered the home therapy program, comfortable, they are given as many which means they will not need to training and education sessions as travel to Peter Mac every month for they require by a dedicated SCIg their immunoglobulin replacement Nurse Consultant. therapy. World’s Best Cancer Care Quality Account 2017-18 10.
IMPROVING CARE FOR ABORIGINAL PATIENTS. Peter Mac is committed The MoU reflects our commitment to closing the gap in life to working with our Aboriginal and Torres Strait Islander communities expectancy between to improve cancer outcomes and Aboriginal and non-Aboriginal experience of care at Peter Mac. people, and providing health Some of the other activities we are services and information planning include: in a culturally appropriate, • Development of a culturally welcoming environment. appropriate resource that Our Aboriginal Health Strategic describes cancer care at Framework has been designed Peter Mac and the services to promote better cancer health available for our Aboriginal and outcomes for Aboriginal patients. It Torres Strait Islander people includes establishing collaborations accessing care, including use with key stakeholders to explore of our possum skin cloak ways we can improve appropriate • Working with VACCHO to provide access to care. Aboriginal Cultural Awareness training for Peter Mac staff We were very proud to sign a • The establishment of an Memorandum of Understanding Aboriginal and Torres Strait (MoU) with Victorian Aboriginal Islander Advisory Group that Controlled Community Health will guide us as we ensure Organisation, known as VACCHO, a culturally safe service. this year. This partnership is very important to us and we are privileged to partner with Victoria’s peak Aboriginal health body. 11.
WRAPPED UP IN CULTURE. Traditional cultural practices to Aboriginal patients to request during support spiritual wellbeing are their time at Peter Mac. vital in improving cancer outcomes As culture is connected to wellbeing, for Aboriginal and Torres Strait the cloak – the first of its kind in a Islander people. Victorian health service – means In a joint initiative of the Breast that Aboriginal people are able to be Cancer Network Australia, VACCHO physically wrapped in culture when and Peter Mac, a beautiful possum they use the cloak during their time skin cloak was handmade by 16 in treatment. Aboriginal women who are cancer survivors over three days in our Wellbeing Centre. It is proudly displayed and is available for World’s Best Cancer Care Quality Account 2017-18 12.
A SAFE AND WELCOMING ENVIRONMENT FOR LGBTI PEOPLE. With a deep commitment to Peter Mac is committed to inclusion and diversity, Peter Mac providing a safe, compassionate works hard to promote accessibility and supportive environment for for all Victorians including the all employees and patients and so economically or geographically will continue to explore respectful disadvantaged, Aboriginal and Torres responses to support the health Strait Islanders (ATSI), people with and wellbeing of LGBTI people and disability, and those from Culturally communities. And Linguistically Diverse (CALD) and Lesbian, Gay, Bisexual, Transgender and Intersex (LBGTI) backgrounds. With our LGBTI community, we do this in a range of ways. • We are currently developing an LGBTI Action Plan with input from Lesbian and Gay Health Victoria. • We are also undertaking research to better understand how cancer affects LGBTI people and their experience. • We continue to progress new approaches to support our LGBTI patients and our staff. • And, in recognition and celebration of the International Day Against Homophobia, Biphobia, Intersexism and Transphobia Day, Peter Mac held our inaugural event in May 2018. We plan to do the same in 2019. 13.
Food brings people together People from culturally diverse backgrounds represent a large proportion of cancer diagnoses in Victoria. They may have difficulty navigating unfamiliar services, require additional support, or face discrimination. Peter Mac received a grant from the Health Issues Centre in 2017 to increase the engagement of culturally diverse consumers in the Peter Mac Prevention and Wellbeing Program. Consumers from Chinese, Vietnamese, Italian, Greek and Arabic backgrounds were engaged as co-leads on the project to develop and deliver culturally relevant activities to improve their wellbeing. Activities included traditional cooking sessions, art/ craft, cultural dance and music performances. World’s Best Cancer Care Quality Account 2017-18 14.
ESCALATING URGENT CARE. If a patient, their carer or a We promote PEER in our inpatient family member believes that and outpatient areas, in the form of written and electronic the patient is feeling less well, communication, and also do this PEER (Patient Emergency in five different languages. Peter Escalation Response) is our Mac patients and carers are given care system that connects a brochure, which explains how a them directly and urgently patient or their carer can alert our employees if they feel something has with a senior nurse. worsened. While we have efficient clinical Monitoring of PEER occurs through measures to detect clinical the bedside audit tool and is reported deterioration, our patients and through divisional meetings, families are encouraged to with oversight at the Executive communicate with care teams, as Quality Committee and Acute Care they know the patient best. Committee. As an example, a PEER was recently The PEER is an additional way that called by a patient’s relative about we can connect with patients and a patient while staying at our their families, and gives them the accommodation, which is within the ability to take quick action if they hospital. Following an initial PEER need assistance. review in the accommodation, we were able to hear the concerns. After an assessment, the patient was admitted into hospital. 15.
ENCOURAGING PEOPLE TO PARTICIPATE IN THEIR OWN HEALTHCARE. At Peter Mac, we encourage First, the Cancer Information Hub, our patients to be involved in located at Clinic 2D, has been redesigned into an inviting cancer their care by helping them to information space. It is furnished and understand what is happening stocked with key cancer resources to them and to be as well for patients and others. The hub informed as they choose. We includes sections for patients looking regularly ask our patients for information tailored to ATSI, CALD and LGBTI needs. ‘What is important to you and how can we help?’ Second, to ensure clinic 2C patients have access to information and A recent survey of our patients was resources, we positioned a large undertaken within our Specialist display unit in close proximity to Clinics to explore the importance the waiting area. All written and accessibility of written information on the display unit is information and resources for rotated in accordance to the clinics effective healthcare engagement. Of that are running. the patients surveyed, 94 per cent said it’s important to have relevant, written cancer information available at or near the appointment place. From this feedback, we decided to undertake two key activities to help make information more accessible and understandable. World’s Best Cancer Care Quality Account 2017-18 16.
PARKVILLE INTEGRATED PALLIATIVE CARE SERVICE. Mary was a 74 year old widow, cared These measures were regularly for by her two adult children and recorded in Mary’s medical chart, to supported by her five grandchildren. allow her treating team to be aware of how things were progressing She had been treated for three years while managing Mary’s needs in real for breast cancer, but was becoming time. In addition, these measures more unwell as her disease became were recorded and analysed as part more advanced. The team looking of a system of recording quality after her recognised a range of outcomes for patients receiving ‘triggers’ that led to an early referral palliative care across Australia, to to the palliative care team. allow our clinicians to measure A series of staff education the quality of care we provide in forums teaches our staff about comparison to services across what to look for. The aim is Australia. that we identify patients who It was agreed that Mary wanted to could benefit from palliative be cared for at home as her illness care involvement, particularly reached its final stages. Hospital those with advancing disease. equipment was arranged to be The palliative care team, consisting loaned from the hospital to assist her of doctors, nurses, allied health and care at home. She was then seen in pastoral care workers, met Mary. At hospital by our Rapid Review home her request, a prompt meeting with care palliative care team, who were her and her family was organised. able to see Mary at home the same Mary was supported to make key day as her discharge, to ensure decisions about her future care, with she had a safe and comfortable a focus on her understanding of her transition to home-based care. illness, and her wishes for treatment and the goals she wanted to achieve. A thorough palliative care review was undertaken, and Mary was asked to describe the symptoms she was experiencing such as pain, nausea and anxiety, to guide specific treatments, and respond to both her needs and those of her family. 17.
Mary was able to stay at home with outreach program via community the support of her family and the providers all over Victoria. palliative care team right up until In a recent audit that compared the the end. Whilst every death is sad, characteristics of 100 inpatients the team was proud that they were and 100 outpatients referred to able to provide premium personal the service, it was identified that care to Mary, in the way and place patients were more likely to have that she wanted. their family members present when Palliative care improves the quality they were seen in the outpatient of life of patients and their families services compared with those facing problems associated with life- patients who were assessed in the threatening illness. inpatient setting. We aim to prevent and relieve What this means is that a better suffering by carefully treating pain discussion about end of life and and other problems – physical, dying tends to happen when families psychosocial and spiritual. and carers are involved. The Parkville Integrated Palliative The results of the audit are now Care Service is a partnership between being assessed to determine how Peter Mac, The Royal Melbourne we can refine the service so that Hospital and The Royal Women’s palliative care continues to provide Hospital that provides support for end a better quality of life, engagement of life care and planning. and living. It does this through consultations with inpatients, through ten outpatient clinics per week and an World’s Best Cancer Care Quality Account 2017-18 18.
OUR PEOPLE MATTER. A positive workplace culture staff are required to undertake it has benefits for our staff and within three months of starting their employment. Since January 2018, our patients. more than 300 staff members have Our culture of support and dignity, attended the course. compassion and care isn’t just extended to our patients – it’s the 2017 PEOPLE MATTER way we treat each other as staff STAFF SURVEY members as well. The People Matter Survey is a At Peter Mac, we have a suite of public sector employee opinion professional development and survey run by the Victorian Public training programs, and in-house Sector Commission. The survey policies designed to foster a gives people the opportunity to collegiate professional working express their views on how public environment which translates, in sector values and employment turn, to improved service and care principles are demonstrated within for our patients. their organisation by colleagues, managers and senior leaders. In October 2017 we reviewed and The survey also measures the refreshed staff training to include level of staff engagement and job a section taken from the Royal satisfaction. Australasian College of Surgeons “Operating with Respect” e-learning In the past year, 88 per cent of course. This particular training our staff agreed that they would highlights the importance of building “recommend a friend or relative to a respectful, collaborative culture. All be treated as a patient here.” People Matter Survey 2018 – Patient Safety Questions Question 2018 Patient care errors are handled appropriately in my work area 69% This health service does a good job of training new and existing staff 56% I am encouraged by my colleagues to report any patient safety concerns I may have 78% Trainees in my discipline are adequately supervised 67% My suggestions about patient safety would be acted upon if I expressed them to my manager 74% Management is driving us to be a safety-centred organisation 76% I would recommend a friend or relative to be treated as a patient here 88% The average agreement with the above questions that measure patient safety 72% 19.
ASSESSING OUR PERFORMANCE AGAINST NATIONAL STANDARDS Peter Mac is assessed against the Peter Mac’s overall SAB rate is National Safety and Quality Health marginally above the state target Service Standards to ensure we are of 1/10,000 occupied bed days, continually improving the way we at 1.4/10,000 overall. The result work and the standard of care we has been derived from ten cases provide to patients, families and the identified over the reporting period community. and we will continue to monitor this. The reported rate is within control Peter Mac went through a limits based on comparably-sized comprehensive accreditation review healthcare facilities. in October 2017 and was found to be fully compliant with all requirements A multimodal approach to prevention in the national standards. of SAB is applied across Peter Mac. Specific elements include: Peter Mac is working with its staff and leadership team to ensure the 1. Case review new eight standards are met. These 2. Precautions and isolation new standards came into effect in 3. CVC-associated bloodstream January 2018. infection monitoring and risk reduction 4. Enhanced hand hygiene compliance 5. Aseptic technique 6. Environmental cleaning Quality and Safety Data 2017-2018 2017-18 Target 2017-18 Result Adverse and sentinel events Number of sentinel events Nil Achieved Mortality - number of deaths in low mortality Nil - Diagnosis-Related Group Infection control Rate of patients with SAB occupied bed day < 1/10,000 1.4/10,000 Healthcare worker immunisation Percentage of healthcare workers immunised for influenza 82.5% 92.4% World’s Best Cancer Care Quality Account 2017-18 20.
HOW DO WE RATE? The Victorian Healthcare Experience Survey (VHES) allows a wide range of people to provide feedback on their experiences and features specialised questions. In 2017-18, our VHES scores were very positive and, in key areas, were over the sector benchmarks. Respondents gave us the following scores: Overall Experience of Care at Peter MacCallum Cancer Centre Overall, how would you rate the In your opinion, how clean was the care you received while in hospital? hospital room or ward that you 96% Positive were in? Statewide Benchmark 91% 80% Positive Statewide Benchmark 74% Did you have confidence and trust in the nurses treating you? How would you rate how well 85% Positive the doctors and nurses worked Statewide Benchmark 82% together? 93% Positive How often did the doctors, nurses Statewide Benchmark 83% and other healthcare professionals caring for you explain things in a If you had any worries or fears way you could understand? about your condition or treatment, 95% Positive did a health professional discuss Statewide Benchmark 91% them with you? 71% Positive If you needed assistance, were you Statewide Benchmark 58% able to get a member of staff to help you within a reasonable time? Do you think the hospital staff 91% Positive did everything they could to help Statewide Benchmark 89% manage your pain? 91% Positive Before you left hospital, did the Statewide benchmark 81% doctors and nurses give you sufficient information about Overall discharge experience managing your health and care at Overall Transition Index home? 77% Positive 76% Positive Statewide benchmark 74% Statewide Benchmark 69% 21.
FEEDBACK. At Peter Mac, we provide patients, WE ACCEPT COMPLAINTS their families and carers, and our community with the opportunity to be AND FEEDBACK IN THE involved in making decisions about FOLLOWING WAYS: our services. One of the ways we Call our Consumer Liaison Office do this is by encouraging feedback on (03) 8559 7517. and listening to comments, positive Email patient.liaison@petermac.org or negative, to help us improve our service. ‘Your Voice’ feedback brochures are available in seven different languages The feedback system is integrated into the work of the whole organisation. In person This means that feedback is used Health Complaints to identify gaps in the quality of the Commissioner: service, investigation of feedback https://hcc.vic.gov.au is collaborative and information is Online shared among management teams, Facebook, Twitter, Instagram, administrators and patients. LinkedIn, www.petermac.org Mail Consumer Liaison Office, Locked Bag 1 A’Beckett St, Melbourne, VIC 8006 OTHER ORGANISATIONS, INCLUDING GOVERNMENT More than 450 402 93 80% Compliments Complaints Enquiries/ complaints suggestions resolved within 30 days World’s Best Cancer Care Quality Account 2017-18 22.
ADMIN SERVICES REALIGNED TO PATIENT NEED. Our administrative resources The new patient navigator team were reorganised in 2017-18 is now the first point of contact to ensure alignment of our for all patient queries. The patient administrative workforce within navigators are playing an integral a new operational structure. We role in coordinating and scheduling embedded administrative staff patient care in conjunction with the within the clinical teams with multidisciplinary team required by whom they work, known as ‘tumour each patient’s particular cancer or stream-based administration’, to disease type. improve appointment coordination and system navigation support for patients. The new structure ensures that clinical staff are appropriately supported knowing that they provide a patient experience that is coordinated, safe, personalised and consistent. Caring for Carers Caring for a person with cancer can be difficult, stressful and isolating. Recent discussions with patients and community members highlighted the need for increased support for carers at Peter Mac. In response, our Wellbeing Centre has introduced a one-hour session known as Carers Circle on a twice-weekly basis. Carers Circle offers a dedicated sanctuary for carers to informally meet and chat about carer-specific issues. A staff member is present at these sessions to provide carer-specific information and referrals as required. 23.
INTERPRETERS FOR PATIENTS – SUPPORT IN ANY LANGUAGE. Peter Mac provides a range The most frequently utilised five of information, resources and languages are Chinese (Mandarin and Cantonese), Greek, Vietnamese, programs for patients from Italian and Arabic. These services culturally and linguistically have also experienced the most diverse backgrounds, their growth. Vietnamese interpreting families and carers. grew by 66 per cent. We provide information that In the past year, we extended our addresses the physical, emotional interpreter service to incorporate and social impacts a cancer video conferencing and live diagnosis can bring in more than 10 captioning. We introduced an SMS languages. reminder service in 29 different languages. Interpreters and resources cover topics such as Questions to Ask your Doctor, Advance Care Planning, Our skilled interpreters are Coming to Peter Mac, our Patient available for appointments in most Charter and also include a range of wellbeing/preventative materials. languages at no cost to patients. The Peter Mac Portal is an online Our practical work in the community space provided in a range of is also important. The objective of languages where patients find the Cancer Survivorship in CALD information to support them during Communities project is to develop their stay at Peter Mac. new, culturally appropriate resources Our catalogue of cancer information that meet the unmet informational includes resources developed by our needs of cancer survivors from experts and reviewed by our patient culturally and linguistically diverse representatives. Specially selected backgrounds. This project is working titles from trusted organisations and with survivors from Vietnamese, agencies are displayed. Italian and Arabic-speaking backgrounds to develop relevant Our interpreter service is very information resources in their popular and increased by 46 per cent language. more uses last year. The Supporting Underserved Cancer Interpreters were provided across 71 Survivors project aims to deliver the different language groups for 12,296 resource On the Road to Recovery interactions, both face-to-face and in Arabic, Traditional Chinese, via the phone, across all sites. Simplified Chinese, Greek, Italian and Vietnamese. World’s Best Cancer Care Quality Account 2017-18 24.
TOP 10 INTERPRETER LANGUAGES 2017-2018 26.60% 13.51% 12.53% Mandarin/Cantonese Greek Vietnamese Occasions of Services: 3271 Occasions of Services: 1661 Occasions of Services: 1541 10.43% 7.98% 4.71% Italian Arabic Turkish Occasions of Services: 1282 Occasions of Services: 981 Occasions of Services: 579 3.01% 2.83% 2.12% Spanish Russian Serbian Occasions of Services: 370 Occasions of Services: 348 Occasions of Services: 261 1.94% 86% Croatian TOTAL Occasions of Services: 239 Occasions of Services: 10,533 25.
ACCESSIBILITY AUDIT SHOWS THE WAY. Peter Mac is committed to • A volunteer concierge service supporting all patients, visitors, and is now at the front reception staff with a physical and/or sensory desk from 6:30am to 3:00pm disability to access relevant areas to assist patients as required and move safely around the hospital. upon entering Peter Mac Last year, we engaged an • Permanent signage for independent consultant to conduct Pharmacy, Pharmacy an audit of the hospital to review Collections and Allied Health access to the building. The audit • Installation of an accessible toilet was completed in partnership with pan, handrails and push button a group of patients and staff living release/occupied indicator to with a disability. During 2018, the the ground floor public toilets following actions were implemented: • We installed a bollard near the entrance to the pharmacy side to ensure patients climb the stairs using installed railing. World’s Best Cancer Care Quality Account 2017-18 26.
WHAT IS AN ADVANCE CARE DIRECTIVE? If you were very sick and An Advance Care Directive is the could not talk, how would legal form that outlines an Advance Care Plan. In it, patients write either your doctor know what or both: treatments you want or do • An instructional directive with not want? Does your family legally binding instructions know what you want? Who about future medical treatment will make medical decisions that they consent to or refuse; for you? • A values directive which documents the patient’s values At Peter Mac everyone has the right and preferences for medical to make their own medical treatment treatment decision maker to decisions and to make a plan for consider when making decisions future health care if they lose their for patients when they are decision-making capacity. unable to do so for themselves. This process is known as Advance Patients at Peter Mac are asked if Care Planning (ACP). they hold an Advance Care Directive Designed to capture peoples’ values about their medical treatment and and wishes, ACP enables patients if they have appointed a Medical to continue to influence treatment Treatment Decision Maker. If one decisions, even when they can exists, our team documents this no longer actively participate in and creates a system alert for our decision making. doctors and nurses. Information packs and advance care plan ACP means to think, plan and write documents are available in the wards down your wishes for your future and on our website at https://www. healthcare. Sharing your values, petermac.org/services/treatment/ wishes and choices with your loved advance-care-planning. ones and your doctors helps them to respect your choices. To improve the number and quality of conversations around Advance Advance care planning can also Care Directives, we have established mean choosing someone who would a working group. This working group make medical decisions for you if will coordinate ongoing education to you were too unwell to make them our medical and nursing employees yourself. This person is called a about the new requirements Medical Treatment Decision Maker. under the Medical Treatment and We used to call this person the Decision Making Act. Our priority is Medical Power of Attorney. identifying our ward patients aged over 75 years who do not have an Advance Care Plan and supporting them to develop one. 27.
REINFORCING OUR RESPONSE TO FAMILY VIOLENCE. Family violence is a major managers, team leaders and problem in the community supervisors on how to support our staff and volunteers. The program that affects not only our is compulsory for all staff who have patients and their carers, but people reporting to them and began our staff and volunteers as rolling out in August. Next year, we well. Evidence shows that will focus on extending the outreach early intervention can help to to patients, families and carers. prevent serious harm. Initiatives for staff and volunteers experiencing family violence so Recognising this fact, the far include family violence leave, Strengthening Hospital workplace safety planning, flexible Responses to Family Violence working arrangements and eight project was developed by the Family Violence Contact Officers Royal Women’s Hospital and have been specially trained. Bendigo Health to support those experiencing family violence. In 2019, we will begin to train frontline staff so that they can Peter Mac is one of 88 hospitals support patients and carers. Peter now implementing this work across Mac is committed to doing whatever Victoria in a staged approach, the we can to help members of the first of which will be to support our community who are experiencing staff and volunteers so that they are family violence. appropriately skilled and assisted to support those experiencing family violence. A Family Violence Workforce Support training package has been developed to train our leaders, World’s Best Cancer Care Quality Account 2017-18 28.
WE HOPE THAT YOU ENJOY READING THIS REPORT. Your feedback helps us improve the way we communicate with you and share information about our services. Please, don’t hesitate to contact us to let us know what you think of this document, or what sort of information you would like us to share with you. By telling us your thoughts, you will help to make this report, our other communications and our services best meet your needs. Please send your comments to us at petermacconnect@petermac.org 29.
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