March 2019 - Epilepsy South Eastern Ontario
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March 2019
920 Princess Street Unit 370, Kingston Ontario K7L 1H1 ~
Phone: (613)542-6222 ~ Fax: (613) 548-4162 ~admin@epilepsyresource.org ~
www.epilepsyresource.org
Purple Day 2019
A Month of Epilepsy Awareness
What is Purple Day for Epilepsy?
Purple Day for Epilepsy was founded in 2008 by nine year-old
Cassidy Megan of Nova Scotia. Motivated by her own strug-
gles with epilepsy, Cassidy started Purple Day for Epilepsy in
an effort to educate others about the disorder, and remind
those living with seizures that they are not alone. She named
the day after the internationally recognized colour for epilep-
sy, lavender. Each year, on March 26, people from around
the world wear purple in support of epilepsy.
Why is Purple Day for Epilepsy important?
Epilepsy is one of the most common neurological disorders, affecting approximately 1 in 100
people in Canada and 50 million people worldwide (more than multiple sclerosis, cerebral palsy,
muscular dystrophy and Parkinson’s disease combined). Despite its prevalence, epilepsy is often
misunderstood and people with epilepsy can face social stigma and discrimination. Purple Day will
help epilepsy organizations in Canada and around the world increase awareness, reduce stigma
and empower individuals living with epilepsy to take action in their communities.
Who participates in Purple Day for Epilepsy?
Purple Day was launched nationally and internationally by the Canadian Epilepsy Alliance. The
Anita Kaufmann foundation joined as a partner in 2009. All over the world people organize special
events and wear purple to let those living with epilepsy know they are not alone.
What can Purple Day for Epilepsy achieve?
Purple Day reminds everyone that people living with epilepsy need understanding and acceptance,
and deserve comprehensive care and access to innovative treatment options to effectively manage
their disease. Spreading the word about epilepsy will help dispel myths and remind people affected
by seizure disorders that they are not alone. On March 26, people around the world are
encouraged to support epilepsy by wearing purple or by hosting a Purple Day awareness or
fundraising event.
*Information taken from our official website www.epilepsyresource.org/events/purple-day
Calendar of Events
Celebrate Purple Day All Month Long!
Thank you to all our local partners who are supporting
Epilepsy Awareness in March 2019!
Coffee Way Donuts
Purple Sweet things:
Purchase a limited edition of Purple Sweet Things on every Tuesday of March
and a portion of the proceeds will go towards our direct client support services.
Location: 427 Division St., Kingston ~ Phone: (613) 546-9106
Date: Tuesdays in March 5, 12, 19 and 26.
Purple Day Celebration:
Coffee Way will offer free Purple Sweet Things while supplies last
- and Epilepsy South Eastern Ontario will be having a gift bag
draw. Join the fun!!
Location: 427 Division St., Kingston ~ Phone: (613) 546-9106
Date: March 26, 10am -11am.
City Hall Illumination
In support of “Purple Day” on the evening of March 26th, City Hall
will be lit up purple! Join us on purple day to show support and
spread awareness for all those impacted by epilepsy and sei-
zure disorders. Take a photo outside City Hall and post it to our
Facebook page (@EpilepsyResourceCentre) to be entered in a
draw for a prize!
Location: 216 Ontario St, Kingston, ON K7L 2Z3
Date: March 26 at dusk
Kingston Frontenacs Game
ESEO will be having a Epilepsy Information Kiosk at the Kingston
Frontenacs Game on March 15th at 7pm when the Frontenacs take
on the Oshawa Generals! Tickets are 15$ each and the Kiosk will
help promote Epilepsy awareness month. Order your tickets now!
For more information, contact ESEO staff
(admin@epilepsyresource.org) at 613-542-6222 or Frontenacs staff
Alex (Alex@KingstonFrontenacs.com) at 613-542-4042 ext. 6059.
Online Auction for Purple Blanket
ESEO will be hosting a online auction on our Facebook Page starting in
March to raise awareness for epilepsy! The blanket is handmade by a
local artist and the bid will start at $25. Make sure you check it out!
ESEO Services
All are Welcome!
Group for Those Affected by Epilepsy
Our monthly group for those affected by epilepsy continues to meet the
last Wednesday of every month from 6:30pm-8pm at the Ongwanada
Resource Centre, 191 Portsmouth Ave, Kingston. New members are
always welcome! For more information please contact Emilia Leslie,
Client Services Coordinator at 613-542-6222 or
eleslie@epilepsyresouce.org.
Peer Support
ESEO offers peer support connections to those affected by epilepsy with
shared experiences related to epilepsy or seizures. If you would like to
volunteer as a peer supporter or access this service, please contact Emilia
Leslie, Client Services Coordinator at 613-542-6222 or
eleslie@epilepsyresouce.org.
Emily’s Fund
Emily`s fund, in the honour of Emily McNamee`s family, continue to provide
free transportation services in the Kingston area to those affected by Epilepsy.
Please contact 613-542-6222 or eleslie@epilepsyresource.org if you are in
need of transportation to medical appointments or to any of our services.
Resources
Part of ESEO’s mission is to improve the quality of life for people living
with epilepsy. Brochures, pamphlets and facts sheets are available for
those seeking information to take home. A seizure journal is also avail-
able to print from our website. You can visit our website
(www.epilepsyresource.org) or contact our office for more information
on available resources.
2019
It’s Back!
Save the Date!
Our 7th annual Pull Together for Epilepsy- Fire Truck Pull will be held
on
th
Sunday July 21 , 2019
Confederation Park, Kingston, Ontario
Start Building Your Team of 8 Now!
Call 613-542-6222 or
admin@epilepsyresource.org
Ways to Donate
Your donation to Epilepsy South Eastern Ontario will help transform the lives of people who
struggle to live well with epilepsy. No matter how small or how large, any donation is greatly ap-
preciated. On behalf of everyone who will benefit from your kindness and generosity, thank you
for your support.
By Mail: Please mail your cheque or money order to:
Epilepsy South Eastern Ontario
920 Princess St, Suite 370
Kingston, Ontario, K7L 1H1
K7L 2V6
Canada Helps
Secure donations can be made to Epilepsy South Eastern Ontario online at Canada Helps, by
accessing the link below. An instant tax receipt from CanadaHelps.org will be emailed to you.
Click to donate here: https://goo.gl/FoOpgo
Volunteers Wanted for Charity Bingo
Epilepsy South Eastern Ontario is seeking volunteers to assist with our charity bingo
event that occur monthly. Our aim is to promote epilepsy awareness in partnership
with OLG and Community Spirit Bingo. A portion of the proceeds will also go towards
funding our services. We must have two trained volunteers attend each scheduled two
-hour session. We are looking for dedicated volunteers to attend these sessions and
help raise awareness of epilepsy!
A Season of Change Comes to
Epilepsy South Eastern Ontario
Welcome Colin Slack
New Executive Director
This January we warmly welcomed Colin Slack into the Executive Director
position!
Colin has been assisting communities, organizations and individuals for over 21
years. Colin is passionate about community partnership development, as well
as developing and providing services for persons affected by health or social
challenges. Colin can be reached at cslack@epilepsyresource.org or 613-542-
6222.
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