Program - Pediatric Endocrinology Nursing Society
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Program
Target Audience
The conference is designed for nurses and other health care professionals interested in recent developments in the field of pediatric endocrinology nursing, including pediatric
diabetes.
Program Goals
It is PENS’ goal to promote high quality endocrinology nursing practice through this educational offering. Conference participants receive the latest information in basic to
advanced practice, experience, and research as demonstrated by pediatric endocrinologists and pediatric endocrinology nurses.
Program Objectives
• Develop new skills to improve educational and patient outcomes.
• Provide educational opportunities in pediatric endocrinology for nurses and others with expertise in the area.
• Promote the pursuit of nursing practice and research through a research presentation and poster session.
• Provide educational opportunities in the management and treatment of selected endocrine disorders.
• Provide direction for understanding health care changes.
PENS Conference Planning Committee
Sheri L. Luke, MSN, FNP-C, Chair
Leigh Pughe, RN, MS, CPNP, Vice Chair
Jane Torkelson, MS, RN
Josie Hong, BSN, RN
Christin Morell, RN, BSN
Amanda Patterson, BSN, RN
Catherine Flynn, RN, MSN, APRN, CDE, Board Liaison
Accreditation
This activity will be submitted to the Ohio Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. (OBN-001-
91).
PENS 2020 National Conference Program Page 1 of 16
Networking
The opportunity to develop and continue relationships with your colleagues through networking is one of the key benefits of attending the PENS Conference. Networking offers
many tangible benefits to conference participants, including, but not limited to, validating your experience in providing nursing care and developing a better understanding of
your practice and your role in care delivery by learning from others who are dealing with similar circumstances, solving the same problems, and confronting the same issues.
Take advantage of this national gathering of pediatric endocrinology nurses to learn more about national issues and trends.
Posters
PENS is providing a venue for conference attendees to view and discuss participants’ poster presentations on Thursday evening. Visit with the poster presenters and learn about
current research that will affect your clinical practice!
Wednesday, April 29, 2020
Time Presentation/Event Presenter(s)
12:30 p.m. - 4:30 p.m. Pre-Conference Workshop: Terri Lipman, PhD, CRNP, FAAN
3.75 Contact Hours*javascript:; Evidence to Practice: Preparing Kids with Chronic Endocrine Health Sharron Close, PhD, MS, CPNP-PC, FAAN
Carol Howe, PhD, RN, CDE, FAAN
Conditions to Care for Themselves
This pre-conference brings together all of us to explore the problem of transition
while learning evidence-based practice skills in this interactive, fun workshop. We
will gather, appraise, and synthesize evidence to find collaborative solutions that
can be used with the children we see every day. Each of us will bring our
experience and expertise as we discuss transition, an issue that is central to all of
our practices.
PENS 2019 workshop comments and why we are doing another!
• Loved the hands on practice! Would have loved another hour to discuss clinical challenges
and potential future studies.
• This was an excellent session! I was happily surprised that what I considered to be “dry”
content was presented in a fun way with lots of active participation along with the
information!
• Great session!
• This was one of the best sessions at the conference. I loved the hands on work and the
specificity of the topics.
• Excellent session that provided great information about conducting all aspects of EBP. I
especially liked the hands on work with evaluating strength of journal articles. It was nice to
discuss as a group and with an expert to improve my depth of reading and evaluation in the
future
• This pre-conference workshop was amazing. Carol, Sharron, and Terri did an excellent job.
The workshop was informative and interactive, I greatly benefited from this.
PENS 2020 National Conference Program Page 2 of 16Wednesday, April 29, 2020
Time Presentation/Event Presenter(s)
12:30 p.m. - 4:30 p.m. Pre-Conference Workshop 2:
3.75 Contact Hours* T1D & Me Program: Learn about an Educational Resource for
Children with T1 and Their Caregivers
Being diagnosed with type 1 diabetes may be overwhelming at times. Even when
providers do their best to explain the diagnosis and treatments, many young
patients and their parents are left wondering how they will be able to successfully
manage living with the disease. Families of recently diagnosed children are
mindful of keeping blood sugar levels in range, coping with blood testing and
injections, deciding on which foods to eat, and just managing everyday life. In
many cases, the learning curve can feel overwhelming and leave the families with
“information overload.”
To help with this problem, the T1D and Me Program has been developed by Novo
Nordisk in partnership with JDRF. Using the proven Conversation Map® model,
the program aims to find new and better ways to impart knowledge and build
confidence in the early stages of life after diagnosis. Designed with group
facilitation in mind, the program has been granted a favorable review by the
AADE and can be customized to work in any pediatric diabetes treatment setting.
Join this workshop to be trained on implementation for your center, and to order
your free facilitation kit.
4:30 p.m. - 5:30 p.m. New Member/First Time Attendee Orientation & Past Presidents
Reception
5:30 p.m. - 7:30 p.m. Welcome Reception in Exhibit Hall
Beverages & Appetizers Provided
PENS 2020 National Conference Program Page 3 of 16Thursday, April 30, 2020
Time Presentation/Event Presenter(s)
7:00 a.m. - 8:00 a.m. Ultragenyx Breakfast Symposium: X-Linked Hypophosphatemia – Speaker TBD
Cases of Diagnosis and Management
Breakfast Buffet Provided
Speakers will provide a case-based presentation of patients with X-Linked
Hypophosphatemia describing the path toward diagnosis and disease
management.
8:00 a.m. – 8:15 a.m. Welcome & Opening Remarks Catherine Flynn, RN, MSN, APRN, CDE
8:15 a.m. - 9:15 a.m. Keynote Address Mack Dryden
1.0 Contact Hour* Laugh to the Top – A Hilarious Guide to Achieving Your Goals
This highly entertaining, thought-provoking presentation is packed
with practical, proven techniques for setting, pursuing, and
achieving both professional and personal goals, and will inspire
attendees to attack their objectives with renewed vigor,
determination, and focus. In his Seven-Step Guide--from Controlling
Stress to Identifying a Specific Target to Taking Bold Action--Mack
dramatically demonstrates how far diligent baby steps can take you,
how to maintain a positive attitude and sense of humor during the
direst of circumstances, and how to dissolve that knot of fear when
you’re venturing into unknown and frightening new territory. The
audience will listen, mesmerized by the message and Mack’s magical stage presence,
they’ll laugh, and they’ll learn that nothing can prevent them from making themselves and
their organizations the very best that they can be.
9:15 a.m. - 10:15 a.m. General Session 1
1.0 Contact Hour* Newborn Screening for Adrenoleukodystrophy: Monitoring for and Molly O. Regelmann, MD
Treatment of Adrenal Insufficiency
Adrenoleukodystrophy is a peroxisomal disorder with varying clinical presentations,
variably affecting the adrenal glands, nervous system, and testicular function. New York
State started screening for adrenoleukodystrophy (ALD) on the newborn screening panel
on December 30, 2013. Since that time, it has expanded to 14 states, with many states
mobilizing efforts to add it to their screening panels after ALD was added to the
Recommended Uniform Screening Panel in 2016. Initial experience with early onset
adrenal insufficiency led the Pediatric Endocrine Society to publish guidance for monitoring
newborn males with ALD, and recent publications have suggested adrenal insufficiency is
present in the vast majority of males with ALD.
10:15 a.m. - 10:45 a.m. Refreshment Break in Exhibit Hall
Coffee, Tea, Water, & Soft Drinks Provided
PENS 2020 National Conference Program Page 4 of 16Thursday, April 30, 2020
Time Presentation/Event Presenter(s)
10:45 a.m. - 11:45 a.m. General Session 2 Pisit Pitukcheewanont (Dr. Duke), MD, FAAP
1.0 Contact Hour* TransCon Technology: The New Paradigm Shift for the Treatment
of Unmet Medical Need – TransCon hGH, TransCon PTH, and
TransCon CNP
TransCon technology provides the paradigm shift of long-acting medication to achieve
unmet medical need. The Phase 3 heiGHt trial demonstrated TransCon hGH had superior
efficacy, as well as comparable safety and tolerability to daily growth hormone. It is
believed that these results provide a validation of the TransCon technology platform, which
forms the basis of the endocrinology pipeline, which includes TransCon PTH for
hypoparathyroidism and TransCon CNP for achondroplasia. This presentation will be
helpful for practitioners in the field of pediatric endocrinology.
11:45 a.m. - 12:45 p.m. General Session 3
1.0 Contact Hour* Type 2 Diabetes in Children Alejandro de la Torre, MD
Dr. de la Torre will cover the following objectives, and more, in his presentation.
• Discuss the characteristics of children and adolescents with Type 2 diabetes.
• Identify who should be screened for pre-diabetes and Type 2 diabetes.
• Discuss diagnostic criteria for diabetes and the classification of Type 2 diabetes.
• Identify current treatment goals and options for children and adolescents with
Type 2 diabetes.
12:45 p.m. - 2:15 p.m. Lunch with Exhibitors & Product Theaters
Boxed Lunches Provided
PENS 2020 National Conference Program Page 5 of 16Thursday, April 30, 2020
Time Presentation/Event Presenter(s)
2:15 p.m. - 3:15 p.m. Concurrent Session 1
1.0 Contact Hour*
1A Diabetes Case Studies Michelle Marowitz, RN, CRNP, PNP;
Case Study 1: Medication-Induced Hyperglycemia – Can Acute Pancreatitis Cause Long- Elizabeth Boyce, RN, CPNP
Term, Insulin-Dependent Diabetes Mellitus?
This case presentation compares two patients with oncologic diagnoses that
developed unique secondary diabetes due to peg-aspariginase chemotherapy. Despite
varying presentations, both patients likely developed pancreatitis secondary to
chemotherapy, resulting in diabetes mellitus with long-term insulin requirements.
While steroid-induced diabetes is transient, asparaginase-associated diabetes can be
indefinite. Diabetes as a result of pancreatic injury can be difficult to diagnose and
challenging to manage. Endocrine NPs are vital in providing follow-up care to patients
with unique etiologies of diabetes and must maintain awareness of the potential
sequalae that different medications can have on the pancreas. As the incidence of
childhood leukemia and lymphoma are on the rise, it is important for PENS nurses to
understand how to work with this unique diabetes population in the setting of
associated comorbidities. Current research regarding peg-asparaginase-related
diabetes is limited, and there are no current guidelines for best practice.
Case Study 2: Breakdown in Communication – How Lapse of Teamwork Can Delay Michelle Marowitz, RN, CRNP, PNP;
Management of T1DM Elizabeth Boyce, RN, CPNP
As one of the 2019 Joint Commission Patient Safety Goals, communication is an
imperative pillar to our practice as endocrine providers. The presenters aim to use a
case study to highlight the importance of effective collaboration and highlight areas of
potential breakdown to prevent patient harm moving forward. While a widely
researched topic, this discussion aims to ignite a personal connection to the issue,
leading to deeper thought about the provider’s home center and ways that they can
help improve systems around the diagnosis and management of Diabetes Mellitus.
This case study will assist participants to creatively explore ways to educate colleagues
and establish trusting relationships that ultimately improve patient outcomes.
Case Study 3: Water – Is There Really Such a Thing as Too Much? Cheryl Switzer, MSN, RN, CPNP, CDE;
The presenter will provide two case studies. Case 1 is a patient with polydipsia and a Faith Poprik, RN, MSN, FNP-BC
strong family history of DM. Case 2 is a Type 1 DM patient with polydipsia. The
presenter will cover the concern for possible Wolfram syndrome, discuss polydipsia
and the possibility for DI and how to work-up, review the meaning of labs, and
decision making. The presenter will also lead a brief discussion of Wolfram syndrome.
Polydipsia is a symptom of not only DM but DI as well, so even those who don't see
DM patients will benefit from this discussion.
PENS 2020 National Conference Program Page 6 of 16Thursday, April 30, 2020
1B The Diabetes Team: What Are We Doing Wrong? Terri Lipman, PhD, CRNP, FAAN
The purpose of this topic is to motivate the participants to think about the utilization of an
innovative team when caring for vulnerable children and families – using a randomized
controlled study as an exemplar.
1C Writing for Publication Cecily Betz, PhD, RN, FAAN
This presentation will focus on the following objectives: Carol Howe, PhD, RN, CDE, FAAN
• Discuss the knowledge and skills necessary for writing for newsletters, journals,
and other nursing related publications.
• Identify a potential topic for publication based on your area of clinical expertise.
• Identify potential organizational resources within the work setting that can be
accessed to achieve your publication goal.
3:15 p.m. - 3:45 p.m. Refreshment Break in Exhibit Hall
Coffee, Tea, Water, & Soft Drinks Provided
3:45 p.m. – 4:45 p.m. Concurrent Session 2
1.0 Contact Hour*
2A Adrenal Insufficiency Emergency Management Molly Regelmann, MD
2B Growing Pains: The First Two Years of Building a Pediatric Karen Hamon, BSN, RN;
Transgender Center Casey Lofquest, MSN, BSN, CPNP;
Building a new clinic from the ground up without much precedent to go off of was very Jamie Reed, BA, CM
challenging. We would like to take what we have learned and share it with others in hopes
of making it easier for other medical centers to build their own programs. The CDC
published recently that 1.8-2% of high school students in the U.S. identify as transgender,
and we have seen our clinic grow from 38 patients to over 500 in two short years. This
type of clinic is providing an unmet need for an underserved population in the community
and it can bring increased visibility to medical centers.
PENS 2020 National Conference Program Page 7 of 16Thursday, April 30, 2020
Time Presentation/Event Presenter(s)
3:45 p.m. – 4:45 p.m. Concurrent Session 2
1.0 Contact Hour*
2C Weighing in on Children with Autism: Barriers and Strategies for Goldie Markowitz, MSN, CRNP;
Successful Weight Management Marianne Buzby, MSN, CRNP
Children on the autism spectrum face numerous daily challenges based on the
characteristics associated with autism. This attributes of rigidity, need for routine, and
sensory defensiveness often contribute to selective eating patterns and preferences for
calorically dense foods. Consequently, the development of persistent abnormal eating
behaviors likely contributes to the development of feeding and weight concerns in children
with Autism. The prevalence of overweight/obesity in children with autism is between
14.8% and 23 %, and can be as high as 30% for children with behavioral concerns on
atypical psychotic medication. Rates are higher than typically developing children. This
presentation will address common barriers to successful weight management as identified
by parents and providers. Through case presentations, we will brainstorm strategies to
address these barriers and discuss intervention to decrease risk for long-term
comorbidities, including type 2 Diabetes. Weight management is tricky for many and is
even more challenging for children with autism.
4:50 p.m. – 5:50 p.m. Concurrent Session 3
1.0 Contact Hours*
3A Success in School with Type 1 Diabetes Cassandra Moffitt, BSN, RN, CDE
A phrase that I've used often throughout this proposal is "bridging the gap". That's exactly
what I want to do here--bridge the gap between healthcare provider, parent, school
healthcare provider, and ultimately, student, in order to promote success and
independence with a chronic condition. I have a unique perspective--not only as a worker
in the school and provider settings--but also as someone who has lived well with type 1
diabetes for the last 36 years. I can provide scenarios from actual students and families for
attendees to brainstorm ideas for how to be a team player in promoting growth and
success in families living with type 1 diabetes.
PENS 2020 National Conference Program Page 8 of 16Thursday, April 30, 2020
Time Presentation/Event Presenter(s)
4:50 p.m. – 5:50 p.m. Concurrent Session 3
1.0 Contact Hours*
3B Aiding Medical Providers of Teens with Type 1 Diabetes Mellitus Kristine Welsh, MSN, APRN; Julia Price, PhD
(T1DM): Tools to Manage Stress
The goals of this session include 1) review a complex case of an adolescent with T1DM with
significant non-adherence and mental health issues, 2) provide a framework for
understanding similar patient presentations and the impact on those providing medical
care, and 3) conduct small group discussion to explore concrete coping strategies for
medical providers. Attendees will leave with ideas and strategies to manage daily stress
around caring for this population.
3C Navigating the Growth Hormone Appeal Process: Perspectives Fran Waite, RN; Tamara Nenadovich, RN
by Patient Advocate and Nursing
Provide tactics in minimizing denials Promote awareness of growth impaired children and
their inability to obtain medication due to payor exclusions and criteria Utilization of
resources pertinent to appeal process Denials for growth impaired children are on the
rise dramatically due to the PES consensus guidelines; we will discuss current trends and
potential solutions to assist the nursing community in gaining access for patient
medications
6:00 p.m. - 7:15 p.m. Poster Reception
1.25 Contact Hours* Research Posters Presented by Authors
Refreshments and Appetizers Provided
7:30 p.m. - 10:00 p.m. Networking Night - On Your Own
PENS 2020 National Conference Program Page 9 of 16Friday, May 1, 2020
Time Presentation/Event Presenter(s)
8:00 a.m. - 9:00 a.m. Abbvie Breakfast Symposium: Overcoming challenges with Diagnosing, Karen Oerter Klein, MD
Treating, Monitoring, and Discontinuing Therapy in patients with
Central Precocious Puberty using Case Studies
Dr. Klein will utilize several case studies to discuss challenges in diagnosis, treatment, monitoring,
and discontinuing therapy and how to overcome them. Dr. Klein will also share current and
updated clinical data from Lupron Depot-PED’s long-term clinical data discussing efficacy, safety,
and long term growth and fertility outcomes. Dr. Klein will also share AbbVie’s patient support
resources to help families facing Central Precocious Puberty.
9:00 a.m. - 10:00 a.m. General Session 4
1.0 Contact Hour* Oral Abstract Presentations
Understanding Parental Beliefs and Practices toward Sugar-Sweetened Beverage Consumption in Angela Northrup, PhD, RN, FNP; Christen
Their Young Children Cupples Cooper, EdD, RDN
The Influence of Social Determinants of Health on Family and Self-management of Type 1 Diabetes
in Black, Single-Parent Families Jennifer Morone, MA-ATR, BS-RN
10:00 a.m. - 10:15 a.m. Refreshment Break
Coffee, Tea, Water, and Soft Drinks Provided
10:15 a.m. - 11:15 a.m. General Session 5
1.0 Contact Hour* Hypoglycemia Evaluation in the Endocrine Clinic Paul Thornton, MD
This session will be interactive and cover the underlying physiology of hypoglycemia, the common
causes of hypoglycemia seen in the outpatient department, and the diagnosis and management of
some of the more specific disorders.
Friday, May 1, 2020
Time Presentation/Event Presenter(s)
11:25 a.m. - 12:25 p.m. Concurrent Session 4
1.0 Contact Hour*
4A Endocrine Overview Part 1 Fran Waite, RN
This session is geared to the new nurse and will cover Endocrine Basics with an emphasis on:
• Hypothalamic-Pituitary Portal System,
• Pituitary hormone secretion disorders,
• Overview of normal puberty and associated disorders, and
• Thyroid hormone secretion function and disorders.
PENS 2020 National Conference Program Page 10 of 16Friday, May 1, 2020
Time Presentation/Event Presenter(s)
11:25 a.m. - 12:25 p.m. Concurrent Session 4
1.0 Contact Hour*
4B Growth Failure: Examine Case Studies, Determine Causes, Discuss Linda Steinkrauss, RN, MSN, CPNP
Solutions
Growth failure is a common cause for referral to Pediatric Endocrinology, with a wide variety of
etiologies, not always treated with growth hormone. The primary objective of this presentation is
to utilize case studies to explore three different causes of growth failure, including
pathophysiology that precipitates growth failure, iatrogenic causes of growth failure, and
psychosocial obstacles that induce growth failure and prevent appropriate, timely treatment. This
presentation, intended for all Pediatric Endocrinology nurses, will include power point and lecture,
but a primary educational opportunity will be to allow participation by attendees in small and
large group discussion to determine solutions to questions and issues posed throughout the case
studies. This session will be a different, fun way to examine growth problems in children and
share possible solutions.
12:30 p.m. – 2:00 p.m. Awards Lunch and Membership Meeting
Lunch Buffet Provided
2:00 p.m. - 3:00 p.m. Concurrent Session 5
1.0 Contact Hour*
5A Writing the Roller Coasters: Writing for Health Shari Liesch, MSN, APNP
Writing is health supportive. It impacts our physical, emotional and cognitive being. Writing
letters, notes, journal entries and poetry; writing heals. Writing improves working memory,
learning, and coping skills. It improves social/linguistic behaviors and athleticism. Writing
connects with emotions and helps with cognitive processing and reorganizing. In rewriting the
ending with adapting words; personal meaning is enhanced; a new sense of the experience is
discovered. Writing settles feelings that arise from life “challenges”. It helps one make sense of the
experience, the “whole”. Words help one adapt personal meaning. With writing, experiencing and
sharing sometimes memories are sparked. New meaning is found, sometimes with a “narrative”
attitude. When stories are renewed, hope is fostered by tapping into one’s own capacity to make
life changes (Berger, R., & McLeod, J., 2006). Power found after life challenges are resiliency
supportive. In Writing the Roller Coasters we will explore the benefits of writing for health.
Participants will experience the Pennebaker Process. We will discuss the impact and importance of
timing in writing. We will discover how writing supports action orientated self-care. The RES
process: Reflective, Expressive and Symbolic processes of poetry therapy will be explored, along
with how poetry heals. Participants will participate in a group writing process, which is health
supportive.
PENS 2020 National Conference Program Page 11 of 16Friday, May 1, 2020
Time Presentation/Event Presenter(s)
2:00 p.m. - 3:00 p.m. Concurrent Session 5
1.0 Contact Hour*
5B Endocrine Case Studies
Case Study 1: A Twisted Tale of Diagnosis: Multiple Endocrine Conditions and New Diabetes Melissa Rearson, MSN, CRNP; Meredith Allen
Discuss a case where the presentation of diabetes suggested one type of diabetes and a
syndrome, but the team found that the case was much more complicated!
Case Study 2: Presentation, Evaluation, and Treatment of a 15-year-old Male with Untreated,
Katherine Wargo, NP
Simple-Virilizing CAH
This case report describes a 15 year old male presenting to an outpatient pediatric endocrinology
clinic for evaluation for short stature. Short stature refers to height more than two standard
deviations below the mean for a child’s age and sex and also includes children who are more than
two standard deviations below mid-parental target height. Referral for short stature is common,
and evaluation includes screening for pathological causes of growth failure and genetic patterns of
growth and puberty. Endocrine causes of short stature include growth hormone deficiency,
thyroid disease, and adrenal disorders. Height is also largely influenced by timing and pace of
puberty. Children who have precocious puberty and adrenarche have an attenuated growth spurt
which can result in short stature. Congenital Adrenal Hyperplasia (CAH) refers to a group of
inherited disorders caused by an enzyme deficiency, most commonly 21-hydroxylase deficiency.
Patients with 21-hydroxylase deficiency are unable to produce normal amounts of cortisol, so their
cortisol synthesis pathway is shunted towards androgen production. Early and excessive androgen
production leads to premature epiphyseal fusion and consequential short stature. The following
case will discuss the presentation, evaluation, and management of untreated CAH in a teenage
male.
Case Study 3: Variable Presentation of Hypophosphatasia among Two Siblings Jennifer Seekford, APRN
I would like to discuss hypophosphatasia, an extremely rare metabolic bone disease that is rarely
seen in a pediatric endocrine clinic and discuss treatment that had only been available for the past
few years. I will present a case study about a 13 year old male who presented to my clinic with
short stature. Baseline labs were completed and revealed a low alkaline phosphatase, confirmed
on repeat testing, serum phosphorus, calcium, PTH, as well as peak growth hormone after
stimulation with arginine and clonidine were all normal. During that same time, his 2 year old
brother was seen by multiple dentist for early loss of dentition. Labs obtained by his dentist that
revealed a low alkaline phosphatase in his brother as well. Genetic testing was completed on both
children and results were consistent with autosomal dominant hypophosphatasia. Both children
will be starting treatment with Asfotase Alpha a human recombinant enzyme replacement
enzyme.
3:00 p.m. - 3:15 p.m. Refreshment Break
Coffee, Tea, Water, and Soft Drinks Provided
PENS 2020 National Conference Program Page 12 of 16Friday, May 1, 2020
Time Presentation/Event Presenter(s)
3:15 p.m. - 4:15 p.m. Concurrent Session 6
1.0 Contact Hour*
6A Endocrine Overview Part 2 Fran Waite, RN
This session emphasizes Adrenal and Bone Metabolism Disorders and will be of use to both the
New and the experienced pediatric endocrine nurse.
Adrenal conditions discussed:
• Cushing Syndrome
• Aldosteronism
• Adrenal androgen excess
• Feminizing tumors
Bone Metabolism disorders discussed:
• Hypoparathyroidism
• Hyperparathyroidism
• Pseudohypoparathyroidism
• Vitamin D disorders
• Calcium disorders
6B Bringing Evidence into Practice for Improving Transitional Care:
Demystifying Implementation Andrew Dwyer, PhD, FNP-BC, FNAP
This presentation provides an overview approaches to implementation for improving transitional
care. Session participants will be able to:
• Describe the key stakeholders in transitional care.
• Identify the components and relevance of implementation science for a quality
improvement project.
• Analyze stumbling blocks to implementation based on a transitional care case study.
PENS 2020 National Conference Program Page 13 of 16Friday, May 1, 2020
Time Presentation/Event Presenter(s)
4:20 p.m. – 5:20 p.m. General Session 6 Casey Lofquest, MSN, RN, CPNP; Karen
What's Sex Got to Do With It? Providing Competent Care for LGBTQ+ Hamon, BSN, RN; Jamie Reed, BA, CM
Youth and Their Families
Pediatric and adolescent transgender care is typically embedded in pediatric endocrinology
practices. We want all pediatric endocrinology providers, including NPs and RNs, to be able to
provide inclusive and affirming care for LGBTQ+ children, adolescents, and their families. The
presenters will define gender terms and how to affirm gender expansive children and teens. They
will present some patient-care scenarios involving LGBTQ+ youth/families, and solicit audience
participation. They will also present several options for GnRH agonist ("blocker") therapy and
gender affirming hormone therapy, and discuss the pharmacology of the most commonly used
medications in our clinic. The presenters feel that the information they are presenting is unique
because they are part of the only pediatric transgender clinic of its kind within a 250+ mile radius.
Coming from the center of the midwest, the center provides "progressive" care in a region that
isn't always progressive. The presenters will include humor, encourage audience participation, and
bring a special flair to their presentation.
5:30 p.m. - 6:30 p.m. Committee Meetings: Education, Research, Nominations, Conference
Planning
7:00 p.m. - 10:00 p.m. Evening Event
Saturday, May 2, 2020
Time Presentation/Event Presenter(s)
7:45 a.m. – 8:00 a.m. New Member/First-Time Attendee Feedback Session Board of Directors and Conference Planning
Be first in line for breakfast and provide some feedback to the PENS leadership about your first Committee
impressions of the PENS National Conference. This is a roundtable discussion to gather data from
new members and first-time attendees.
8:00 a.m. - 9:00 a.m. General Session 7 & Breakfast Blake Palmer, MD
1.0 Contact Hour* Urologic Issues in Boys and Girls with CAH
Dr. Palmer will discuss various urologic concerns for children and adolescents diagnosed with CAH.
PENS 2020 National Conference Program Page 14 of 16Saturday, May 2, 2020
Time Presentation/Event Presenter(s)
9:00 a.m. - 10:00 a.m. General Session 8
1.0 Contact Hour* Thinking Outside of the Box to Reach into the Community: Using the
Internet and Social Media in the Diabetes Center to Connect Families Melissa Rearson, MSN/CRNP
and Provide Education
Over the years, I have worked with a team at our Diabetes Center to try and find ways to connect
without patients outside of our usual clinic visits. Diabetes is a difficult condition and families often
feel alone in managing day in and day out. I will share with PENS participants ways in which we
have successfully reached out to our families in the community where they are by using internet
resources such as newly designed web pages, e-newsletters and most importantly social media. I
will share my experience with using social media to connect with families in a way that provides
connections within the community (families connecting with each other) and also provides timely
education--for example Facebook posts for families preparing for a weather emergency TONIGHT!
We have worked hard to think outside of the box to find ways to provide information, educational
resources, and very welcome positive reassurance to our families and their response has been
overwhelming! This session will inspire the listener to think differently about ways that their team
can connect with families to disseminate information and to give families a forum to connect with
and inspire each other! This type of presentation will be different for PENS participants as it will
inspire the listener's creativity and will encourage team members to work together to think
through new ways to connect with patients and families.
10:00 a.m. - 10:15 a.m. Refreshment Break
Coffee, Tea, Water and Soft Drinks Provided
10:15 a.m. - 11:15 a.m. General Session 9 Shari Liesch, MSN, APNP
1.0 Contact Hour* Diabetes Distress: Overview, Assessment of, and Assessing in Clinical
Care
Diabetes distress is about the emotional side of caring for self with diabetes. About one third of
youth with diabetes experience diabetes distress (DD) (Fischer, L. et al 2019).
This session will define DD, review assessment of DD and risk factors for DD. While DD is best
managed in a multidisciplinary fashion, this is not always available. Recent data demonstrates DD
can be addressed in the clinic visit (Fischer, 2019). Fischer listed strategies to consider in DD
interventions will be reviewed, including:
• Focus on feelings, beliefs, expectations;
• Help gain perspective;
• Help develop a concrete plan; and
• Discuss follow up plan.
Small group discussion using case scenarios will be used as participants practice using DD
interventions as outlined above, (Fisher, et al., 2019).
11:15 a.m. Closing Remarks Catherine Flynn, RN, MSN, APRN, CDE
* Subject to change based upon approval
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