Patient Welcome Packet - TEXAS ONCOLOGY PHARMACY
←
→
Page content transcription
If your browser does not render page correctly, please read the page content below
Contents 4 Welcome to Texas Oncology Pharmacy 8 About Texas Oncology Pharmacy 9 Our Vision 9 Our Mission 9 The Core Values of Texas Oncology 10 Our Pharmacy Services 11 After Hours and Support Services 11 After Hours Services 12 Insurance Coverage and Billing 12 Medication Cost 12 Prior Authorization Facilitation 12 Copayments 12 Lowest Cost Alternative 13 Financial Assistance 14 Key Information on Your Prescription 14 New Prescriptions 15 Refills 15 WHAT HAPPENS IF I NEED A REFILL SOONER THAN SCHEDULED? If you need a refill sooner than scheduled, please contact us. We will work with your insurance company to find a solution. 15 Auto Refill 15 Drug Substitution Protocols 15 Obtaining Drugs Not Available at Texas Oncology 15 Transfers 16 W HAT IF MY INSURANCE REQUIRES ME TO USE A DIFFERENT PHARMACY? If you are required to use another pharmacy or we cannot fill your prescription, we will transfer the prescription to your pharmacy of choice or the pharmacy mandated by your insurance carrier. Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 1
16 Prescription Status 16 Prescription Pickup 16 Prescription Delivery 17 Quality of Your Prescription 17 Recalls 18 Emergency and Disaster Preparedness Plan 19 Storage and Handling of Medication 19 General Storage Tips 20 Storing Pain Management Medication 20 Special Handling of Oral Chemotherapy 21 Handling Body Fluids and Waste 22 Disposal of Medication 22 General Medication Disposal 22 Pain Medication Disposal 23 What You Need to Know About Oral Chemotherapy 23 Staying on Track with Treatment 23 Know What Your Medication Looks Like 24 Know How to Take Your Medication 24 When to Take Your Medication 24 How to Swallow Your Medication 25 What to Take With Your Medication 25 What to Do if You Miss a Dose 26 Make it Easy to Remember to Take Your Medication 27 Pregnancy, Breastfeeding, Sexual Activity, and Contraception 28 Coping With Side Effects 29 Diarrhea 29 Follow a Clear Liquid Diet 29 Choose Foods That Are Easy to Digest 29 Avoid Foods and Drinks That Can Worsen Diarrhea 30 When to Call the Doctor 30 Fatigue 31 Stay Active 31 Eat Well 31 Prioritize Tasks 31 Ask for Help 32 Manage Stress 2 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
32 Get Enough Sleep 32 Ask About Medications for Treating Fatigue 32 Be Flexible 33 When to Call the Doctor 33 Nausea and Vomiting 33 Eat Well 34 Skin Reactions 34 How to Treat Dry Skin 34 How to Manage a Rash 36 Medications for Rash 37 Hand-Foot Skin Reaction 38 Patient Rights and Responsibilities 38 Patient’s Bill of Rights 39 Patient’s Responsibilities 41 Notice of Privacy Practices 41 Notice Informing Individuals About Nondiscrimination and Accessibility Requirements 41 Texas Oncology 41 Patient Privacy 41 About Us 42 Purpose of This Notice 42 Our Responsibilities 42 How We May Use or Disclose Your Health Information 46 Your Rights Regarding Your Health Information 47 Changes to This Notice 48 Patient Satisfaction and Grievances 48 Patient Satisfaction 48 Patient Satisfaction Survey link: www.texasoncology.com/pharmacy-satisfaction 48 Concerns or Grievances 49 Understanding Medical Directives 50 Choosing a Healthcare Advocate 50 Putting Your Wishes into Writing Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 3
Dear Patient, Welcome to Texas Oncology Pharmacy, an integral part of your oncology care team. Texas Oncology’s founders believed there was a better way to treat patients with cancer. Its mission, vision, and core values reflect the practice’s commitment to providing high- quality, evidence-based patient-centered care to cancer patients. We’re privileged to be part of your care team and manage your pharmacy needs. The pharmacy team understands that your medical needs are complex and require specialized knowledge as well as active and continual collaboration with your care team. We will provide you with the personalized service necessary to ensure that you achieve maximum benefit from your therapy. You can expect: 4 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
| Personalized Patient Care Our specially trained pharmacy team will review your treatment plan with you and address any questions and concerns you have. Our oncology patients are being treated by a medically integrated pharmacy care services team that provides you with coordinated, timely, and continual care, education, and counseling throughout your oncology journey. In addition, we provide counseling and detailed instructions on how to take your medications correctly and how to manage side effects. | Cancer-Specific Advice and Consultation Our pharmacists have deep knowledge of cancer medications and how they may interact with other drugs and other forms of treatment, whether chemotherapy infusion, radiation, or immunotherapies. With your oncology care team nearby, questions are easily addressed, and patients receive specific instructions on how and when to take their medications. | Pharmacy Patient Management Program We monitor all our patients’ medications and progress through our medically integrated pharmacy patient management program. This program helps facilitate patient compliance to prescribed drug therapies, manage side effects, and promote overall health improvement. The success of the program depends upon patient engagement and cooperation. Without your active participation and full use of the program, the benefits will be limited. If you wish to opt out of this program, please call and speak to our pharmacy team, and we will make the requested adjustments to your care plan. | Coordination with Your Doctor The pharmacy team works exclusively with Texas Oncology providers and patients. As a medically integrated pharmacy, we are different from traditional retail and mail order pharmacies because we coordinate many aspects of patient care and disease management. The pharmacy provides convenient dispensing and delivery of specialty medications to our patients. Under the supervision of a qualified pharmacist and trained staff, we assist our patients to achieve optimal clinical outcomes while effectively managing the cost of therapies. We are part of your oncology care team, working directly with your doctors and caregivers to address any needs you may have with your treatment immediately. We will always keep the lines of communication open between you and your doctors and caregivers. We are here to make sure that any difficulties you may be having with your treatment are addressed immediately. Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 5
| Clinical Lab Value Monitoring Due to the complex nature of many drug therapies and the need to make sure that the therapy is as effective as possible, we may need to coordinate regular reviews of your lab tests with your doctor. These may require a visit to your doctor to make sure that your therapy is progressing as expected. Please be aware that pharmacy uses this information for internal monitoring only. Your personal health information is protected as outlined in our Notice of Privacy Practices included in this packet. | Regular Follow-up Getting your medications and supplies quickly and efficiently is essential. We are with you every step of the way during your treatment to provide support and advocacy. | Benefits Oncology care can be costly. We’ll help you navigate the healthcare system to explore options available to you. In addition, our relationships with insurers will help provide you with information and explanations of your prescription and medical insurance benefits. Finally, we help you with private insurance and Medicare paperwork, billing, and claims. We also work with patient assistance programs on your behalf to get funding if you need financial support. If no financial resources are available for you, we will make every effort to get you your drug free of charge from the manufacturer. | Timely Access to Your Oncology Treatments Because cancer is our primary focus, our pharmacies are routinely stocked with cancer drugs and related pain, supportive, and hard-to-find medicines that our oncologists commonly prescribe. Special-order medications typically are available with a one-day turnaround. | Drug Substitution Protocols We’ll always use the most cost-efficient option for you. Occasionally, it may be necessary to substitute generic drugs for brand-name drugs. This could occur due to your insurance company preferring the generic be dispensed or to reduce your co-pay. If this is the case, we will contact you prior to dispensing the medication to inform you of the substitution. When available, our pharmacy will default to generic to save you money. We will use brand name medication at you or your physician’s request. 6 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
| Delivery We offer fast and convenient delivery to you. Many times, your prescriptions will be available at the time of your next medical appointment. | Refill Reminders We will not automatically refill any prescription without your permission. If a refill is needed, we will begin working on it five to seven days before your refill due date. A pharmacy team member will contact you to discuss your ability to remain adherent to therapy, answer any questions you may have, confirm and update your medical and insurance information, and set the delivery or pickup date and details. We also work with your physician to understand their next steps in your treatment before refilling your prescription to ensure optimal care at the lowest possible cost to you. | 24/7 Support As a medically integrated pharmacy care provider, we are available to coordinate with your medical team 24 hours a day, seven days a week, including holidays and weekends. We’re always here to answer any questions or address your concerns. Our certified, highly trained oncology pharmacists can answer your questions and provide support whenever you need it. | Therapy Support and Adherence Monitoring The most expensive medication is the one that is not taken. It is vital that you take your medications as instructed by your pharmacists and as detailed on the pharmacy label. Pharmacy staff members will help to explain your medications and their use with your specific disease state. We encourage all patients to become empowered decision- makers. We are happy to provide you with information about advocacy groups and recommendations of other helpful resources. Just give us a call. We look forward to being a member of your care team. By using our pharmacy, your entire oncology care team is better positioned to treat and care for you during your oncology journey. Thank you for choosing Texas Oncology Pharmacy. Sincerely, Your Texas Oncology Pharmacy Team Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 7
About Texas Oncology V I S I O N , M I S S I O N , A N D C O R E VA L U E S 8 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
Our Vision Our Mission To be the first choice for cancer care. To provide excellent, evidence-based care for each patient we serve, while advancing cancer care for tomorrow. The Core Values of Texas Oncology The principles that guide our practice are patient centered, and encompass three spheres: PAT I E N T C A R E • To provide compassionate, individualized care for our patients. • To provide care that is comprehensive and coordinated close to our patients’ home. • To attract and nurture the best physicians. • To recognize and support the central role of clinical research in advancing cancer care. C U LT U R E • That engenders a collegial physician partnership. • That respects individuals and the collective wisdom of the group. • That embraces openness and fairness. B U S I N E S S – Our practice values professional management that: • Promotes convenient access at rural and urban sites. • Provides leadership in efficient care delivery and improves all aspects of cancer care. • Provides a financial structure to expand services to our patients. • Is competitive in all aspects of our business. Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 9
Our Pharmacy Services The use of oral therapeutics in cancer treatment is rapidly growing. Your doctors at Texas Oncology currently manage and oversee your infused cancer drugs, but they can also do the same with any oral medications that are a part of your treatment plan. As part of your treatment team, our on-site specialty pharmacy provides oral chemotherapy, immunotherapy, and other targeted medications as ordered by your oncologist. All these drugs require specialized knowledge and oversight. Our highly trained pharmacists collaborate with your care team to provide the best options for you. Our on-site pharmacy provides many convenient services dedicated solely to you and your oncology treatment plan. We provide you with the personal service necessary to ensure that you achieve the most benefit from your therapy including: • Personalized patient care • Drug-specific educational and support materials • Cancer-specific consultation • Close consultation with your physician to • Comprehensive oncology formulary manage side effects • Patient management program • Access to clinical research • Timely access to your oncology treatments • Therapy support • Home delivery of your medications (as needed) • Adherence monitoring and support • Coordination of your prescriptions with your • Access to information online other oncology treatments and appointments www.texasoncology.com/pharmacy • Refill reminders • Advocacy with insurance companies • Access via phone to clinically trained • Advocacy with financial assistance sources pharmacists 24/7/365 • Cost-effective / best options for you • Disease-specific educational and support materials Ask your doctor about using Texas Oncology Pharmacy and how you can take advantage of this team-based, unfragmented, and comprehensive care approach to your treatment. 10 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
After Hours Support and Services | After Hours Services For after-hour emergencies, such as running out of your medication or questions on missed doses or potential side effects, please contact your local Texas Oncology clinic’s after-hours number. You will be directed to an operator, and a physician or pharmacist will return your call within 30 minutes, 24 hours a day, seven days a week. Please contact us at any time if: • You have questions about taking your medication. • Your therapy ends. • You are having any adverse reactions or want • You start taking new medications, including to consult with a pharmacist. over the counter or herbal supplements, etc. • You need to order supplies or medication refills. • You have a billing question or need to provide new health plan information, including • You have questions about your current order out-of-pocket costs, deductibles, copayments, or experience delays with your shipment. or co-insurance options. • You are having problems with equipment, • You would like additional information on ways dressings, or experience a change in your to access your medication, health services, condition. payment options, and therapy coordination. • You are hospitalized, your condition worsens, • You would like to learn about product or your therapy is interrupted for any reason. selection and availability, including current • There is a change in your prescription or medications that Texas Oncology Pharmacy supply needs. does not have access to. • You need information about disposing of • You would like to understand where to refill medication. your medication if Texas Oncology Pharmacy is limited by your benefit plan. • You need information about accessing medication in the event of an emergency. • Anything causes you concern for your safety. Patient Welcome Packet | U P D AT E D : 0 1 / 3 1 / 2 0 2 2 11
Insurance Coverage and Billing | Medication Cost Prior Authorization Facilitation Before your care begins, a pharmacy staff We know that payers have numerous requirements member will work with your physician and your for prior authorizations, from documentation and insurance company to confirm your coverage supporting literature to specific publications or and assist with the prior authorization. The prior evidence of molecular mutation. Since we share authorization process may take a few business a clinical expertise in oncology, we can provide days to complete. We will inform you about payers with reasoning for a particular drug and, medication costs that are not covered by your thanks to our strong history with these companies, insurance, such as deductibles, copays, co- we know exactly what they need to issue an insurances, or plan changes. approval. We’ll share their specific preferences — such as tried-and-failed requirements — and help Texas Oncology Pharmacy will bill your health you submit the necessary information. We’re proud insurance company for the cost of your medication to have a low percentage of denials and a high on the date your prescription is filled. If the claim denial-overturn rate, but we’ll also remain vigilant is rejected, we will notify you so that we can work through the appeal process in the case of a denial. together to resolve the issue. If your provider denies coverage or if you disagree with the benefits coverage, you may have the right to file an appeal with your | Copayments health plan. We will assist you in the appeal process In most cases, our pharmacy is required by and provide any documentation you may need. insurance companies to collect copayments before shipping your medication. Copayments can be If Texas Oncology Pharmacy is an out-of-network paid by credit card (Visa, Mastercard, American provider in your insurance plan, we will find the Express, or Discover), electronic checking account most cost-effective way for you to receive your debit (over the phone), or by check or money order medication. In some cases, we may transfer your (through the U.S. mail). prescription(s) to the insurance provider or their in-network pharmacy. We will call you if needed so | Lowest Cost Alternative there is no disruption in your medication delivery. We will automatically seek less expensive generic substitutions for your prescribed medications if your doctor allows for it. Ask us anytime if a lower- cost generic drug is available. 12 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
| Financial Assistance Good care shouldn’t be out of reach due to price, and we know that treatment can be costly. We work closely with nonprofit foundations and drug manufacturers’ programs to help you afford your medication. If you do not have prescription drug coverage or cannot afford your copay amount, we will always do the following on your behalf: 1. Find out which assistance programs you might be eligible for. 2. Contact you to explain each program’s details, including coverage and copay costs. 3. Assist in completing a confidential pre-screen assessment (usually required by various programs). 4. Once eligibility is confirmed, we will finish enrolling you into the program(s). 5. Keep you and the rest of your Texas Oncology care team updated throughout the process. 6. Ensure medication is available and dispensed immediately to you. 7. Track your coverage under the program and work to maximize your coverage so that you are covered if possible, under the patient assistance program. | If you have any questions around patient assistance, please contact our team. Contact: Lindsey Scott, Manager, Texas Oncology Patient Assistance Program Email: R X P A _ P A S @ u s o n c o l o g y . c o m Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 13
Key Information on Your Prescription Texas Oncology Pharmacy patients should be advised that your physician has ownership in the pharmacy. You are not obligated to use the Texas Oncology Pharmacy. Just let us know, and we will transfer your prescription to your preferred pharmacy provider. | New Prescriptions Your physician and the Texas Oncology Pharmacy work together to help you through your oncology care plan. When your physician determines that oral chemotherapy treatment is the best course of treatment, they will send your prescription via an electronic prescribing process to our pharmacy team unless otherwise requested by you or your pharmacy benefit manager. Optimal value of the Texas Oncology care approach is best achieved by having a credible, accessible, and consistent care team. By utilizing the Texas Oncology Pharmacy, we can stay focused on providing you the care you deserve in a timely, comprehensive, and reliable way. Physician orders E-Prescription is a prescription for sent to Texas your treatment Oncology Pharmacy 1 Prior Authorization Texas Oncology Pharmacy is Obtained • Focuses on you Pharmacy Determines 2 Your Cost • Works with your physician • Specializes in oncology as sole focus Financial Assistance Team 3 Identifies Options • Finds best options clinically and fiscally Pharmacy and Medical • Advocates for you to your health plan 4 Review is Completed and pharmacy benefit manager Prescription is Prepared and • Gets your prescription fast and as 5 Available for You to Recieve requested by your physician and you 14 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
| Refills | Drug Substitution Protocols You can expect the pharmacy to contact you about We will always use the most cost-efficient option for your refill. We will call you about a week before you. Occasionally, it may be necessary to substitute you are due to run out of medication. If you have generic drugs for brand-name drugs. This could not received a call from the pharmacy within occur due to your insurance company preferring the seven days of a refill need, you or an authorized generic be dispensed or to reduce your copay. If this representative may call your pharmacy directly. is the case, we will contact you prior to shipping the medication to inform you of the substitution. When WHAT HAPPENS IF I NEED A REFILL SOONER available, our pharmacy will default to generic to THAN SCHEDULED? save you money. We will use brand name medication If you need a refill sooner than scheduled, please at you or your prescriber’s request. contact us. We will work with your insurance company to find a solution. | Obtaining Drugs Not Available at Texas Oncology | Auto Refill There are very few drugs that Texas Oncology To have a prescription automatically refilled, a cannot obtain on your behalf. These drugs are pharmacy staff member will need to speak with you usually restricted by the manufacturer to just one or an authorized representative and ask you a short or two pharmacies in the nation. If you happen to series of questions for the pharmacist to review. need one of these limited distribution drugs, our During this call we will also check the day of the pharmacy team will work with all parties to ensure week you would prefer your refill to arrive. Your you get the medication that is part of your oncology Texas Oncology pharmacy can deliver your order to treatment plan. your home, office, or designated destination. | Transfers If at any time you prefer to utilize a different pharmacy, please just let our team know, and we will ensure there is a quick transfer of your prescription needs to your preferred provider. If we cannot provide your medication due to limited availability of the drug to our pharmacy, health and pharmacy plan restrictions, and medication order delays, we’ll help you transfer your prescription to another pharmacy. Patient Welcome Packet | U P D AT E D : 0 1 / 3 1 / 2 0 2 2 15
Key Information on Your Prescription Continued | Quality of Your Prescription | Recalls For us to service you appropriately, please inform Texas Oncology Pharmacy provides the highest your Texas Oncology Pharmacy team immediately if level of pharmacy service and continually monitors any of the following occur: drug safety alerts for drug recalls. A drug recall is when a product is removed from the market 1. Prescription Change – Should your physician or a correction is made to the product because add or delete any of the items on your the drug is either defective or potentially harmful. prescription, or change the usage of any of The recall may be made by the manufacturers the products, please contact us immediately. or distributors, by FDA request, or by FDA order. 2. Breakage – please let us know if any items For any drug recall that affects patients, Texas delivered are damaged. Oncology Pharmacy follows FDA guidelines to 3. Unable to Perform an Inventory Check – remove the product from distribution and notify If you are unable to take inventory of your patients identified to be at risk. supplies as scheduled, please call Texas Oncology Pharmacy ahead of time, and we Key Resource: will make arrangements to assist you. 1. FDA Recalls: http://www.fda.gov/Drugs/ 4. Interruption of Therapy – If your physician DrugSafety/DrugRecalls/default.htm discontinues your treatment, or if you are hospitalized, please notify Texas Oncology Pharmacy so that your supplies and equipment can be picked up or your inventory adjusted accordingly. 5. Error in Shipment – Call the dispensing Texas Oncology Pharmacy if you discover an error in the shipment so that we may correct the mistake. 16 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
WHAT IF MY INSURANCE REQUIRES | Prescription Pickup ME TO USE A DIFFERENT PHARMACY? Many of our Texas Oncology Pharmacies are If you are required to use another pharmacy or located at your doctor’s office location, allowing we cannot fill your prescription, we will transfer for quick and easy pickup of your medications the prescription to the pharmacy of choice or the at the time of your medical visits. When you pick pharmacy mandated by your insurance carrier. up your prescriptions at our office and transport them yourself, we will ensure you have the proper If you are currently having your oral oncology packaging to maintain the drug quality, including medications filled at another pharmacy and would ice packs. like for Texas Oncology to fill these for you, please contact the Texas Oncology pharmacy location nearest to you. Our pharmacy staff will check to | Prescription Delivery make sure that we are able to fill these medications If you cannot pick up your prescription, we will on your pharmacy benefits plan. If we can fill the deliver your oncology medication to your home or prescription (at the same copay amount), we will call other preferred location allowed by law at no cost your current pharmacy to obtain the information that to you. Upon request, we can also include other would enable us to fill all future prescriptions for you. supplies. We coordinate all refills to ensure that you or an adult caregiver is available to receive the | Prescription Status shipment. A signature may or may not be required for the delivery, but is available for each shipment. At any time, you may reach out to our pharmacy Medication that requires refrigeration is sent in team and inquire about your prescription status special packaging to maintain the appropriate by phone, email, or text. When your prescription is temperature. Once you receive the package, store ready for pick up, we will email or call you directly the medicine in the refrigerator. If the box looks with the information you have provided. damaged or is not in the correct temperature range, please call us. In the event of an order delay, we will contact you and assist you in obtaining the medication elsewhere if necessary. Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 17
Emergency and Disaster Preparedness Plan Texas Oncology Pharmacy has a comprehensive 5. The pharmacy recommends all patients leave emergency preparedness plan in case a disaster a secondary emergency number. occurs. Disasters may include fire to our facility 6. If you have an immediate need for medication, or region, chemical spills in the community, we will supply your needs on a priority basis. hurricanes, snowstorms, tornadoes, and community We will provide you with enough supply to get evacuations. In case of severe weather or other through the emergency, whenever possible. disaster, our pharmacies work to ensure you receive your prescription on time. Our primary goal If an emergency occurs and we are unable to is to continue to service your prescription care reach you, and you are experiencing difficulties needs. Every effort is made to coordinate care with administering or obtaining your medication, please go local healthcare agencies, when needed. Texas to the nearest emergency room for help. If you have Oncology Pharmacy’s procedures for ensuring a personal emergency, which is not environmental, continuity of care in the event of a disaster include: and you need your medication, please contact the pharmacy at your convenience, and we will aid you. 1. The pharmacy will call you three to five days before an anticipated local weather disaster To make sure an emergency does not negatively emergency utilizing the weather updates impact your prescription needs, you should take the as point of reference. If you are not in the following precautionary measures: pharmacy local area but reside in a location that will experience a weather disaster, you • Whenever possible, keep a two- to three- are responsible for calling the pharmacy three day supply of your medication on hand and to five days before the occurrence. a back-up power supply for your medical equipment and/or supplies. 2. The pharmacy will send your medication via courier, FedEx, or UPS next day delivery during • Make sure we have accurate contact any suspected inclement weather emergencies. information, including your emergency contacts. 3. In the event our pharmacy location is forced to • In case of an emergency, seek medical attention close because of an emergency, your services at an area hospital or by calling 911. will be coordinated with an alternate Texas Oncology Pharmacy branch or local pharmacy. • If traveling by air, be sure to keep a supply of your needed medications on your person 4. If a local disaster occurs and the pharmacy in the event there is a delay in receiving cannot reach you, or you cannot reach checked luggage. the pharmacy, please listen to your local news and rescue centers for advice on Remember that preparation is key when facing obtaining medication. Visit your local hospital emergencies – please be safe. immediately if you will miss a dose. 18 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
Storage and Handling of Medication During and after cancer treatment, people may have one or more medications to take at home. These powerful medications can be very harmful if someone other than the person with cancer takes them. Therefore, you and your caregivers need to know the safest ways to store and dispose of specific medications. The following are general guidelines for the storage and handling of your medication from Texas Oncology Pharmacy. More specific information may be available at the time of dispense. | General Storage Tips Consider storing your medications separately from those of your other family members. You could keep them on a different shelf or in a different cabinet or drawer. • Store your prescriptions in a safe, cool, • Store your medications in the container it dry place. came in. This helps you know which one is which and keeps the information about how • Your prescriptions should be out of the sight often to take it right at your fingertips. Always and reach of children and/or pets. Consider keep the lid tightly closed. using child-proof features on lids, if possible. • Save and organize the information leaflets the • Keep all your medications in a place with pharmacy gives you with your prescriptions. good lighting so you can read the label and These documents remind you when and how take the correct amount. to take your medication, about any storage directions, and what potential side effects you may experience. Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 19
Storage and Handling of Medication Continued | Storing Pain Management Medication from the patches can be absorbed even after the patches have already been used. People diagnosed with cancer often experience pain, either from the cancer itself or as a side effect • Only share details about your prescription(s) with of treatment. As a result, managing and treating your caregiver or others who need to know. pain is an important part of a person’s overall treatment plan. This may involve the use of pain- relief medications called analgesics. Some people | Special Handling of Oral Chemotherapy with moderate to severe pain may use opioids, Many chemotherapy drugs are now taken by mouth also known as narcotics. as take-home prescriptions. Although this is more convenient, you must consider several important aspects: Although these drugs effectively relieve cancer pain, opioids are dangerous if a family member or • Store all chemotherapy drugs in its original pet swallows them. And, people who abuse drugs container, in a safe place, and away from all may seek them out. Therefore, take additional other medications. Always keep medications out steps to store your opioid pain medication safely of the reach of children and/or pets. and securely: • Most oral chemotherapy should be stored at • Always store pain medication in a bottle with room temperature, away from heat, moisture, a child-resistant lid. and direct sunlight. This means you should not place chemotherapy on a windowsill, near a sink, • Keep all your opioid medication in one or in a bathroom. location where a pet, child, teenager, or stranger cannot easily see it or access it. • Some types of chemotherapy require special storage or handling, such as refrigeration. • Consider storing your pain medication in a secure lockbox that only you and your • Ask your doctor or pharmacist how to store your caregivers can access. Some people have medication. If you use a pill box or other type of safes to secure cash, documents, or firearms, medication organizer, keep one for chemotherapy and those can be used, as well. and one for any other medication(s). Clearly label both boxes. • If your doctor prescribes a fentanyl skin patch, make sure that you keep even used patches • Keep the local poison control center’s telephone away from others. After using a patch, fold it in number handy in case a pet, child, or other half to seal the sticky parts and safely dispose member of your household accidentally swallows of it (see below). These patches can get stuck the medication. on the feet and skin of children and pets if • The national number, which will route you not disposed of properly. Opioid medication to the local center based on your area code, is 800-222-1222. 20 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
| Handling Body Fluids and Waste Many oral chemotherapy drugs remain in your body for several days after being taken, so some of the drug may be present in urine, stool, sweat, or vomit. Once you have started to take oral chemotherapy, it is important to follow the instructions below every day for as long as your treatment lasts. This will keep yourself, loved ones, and the environment as safe as possible. • Pregnant women should avoid touching • If you do not have good control of bladder anything that may be soiled with body fluids or bowels, use a disposable pad with a from the patient. plastic back, a diaper, or a sheet to absorb body waste. • You may use the same toilet, septic tank, and/ or sewer that you usually use. If you have a • Wash any skin that has been exposed to body low-flow toilet, close the lid and flush twice to waste or any oral chemotherapy drug with ensure all waste has been discarded. soap and water. • If the toilet or toilet seat becomes soiled • Linens or clothing that are soiled with body with urine, stool, or vomit, clean the surfaces fluids or body waste should be washed before other people use the toilet. separately from other linens and clothing. If you do not have a washer, place the soiled linens in • Wash hands with soap and water after using a plastic bag until they can be washed. the toilet. If you need a bedpan, be sure your caregiver knows to wear gloves to assist with • Wash hands with soap and water after cleanup and to wash the bedpan with soap touching linens or clothing that may be soiled and water every day. with body fluids. Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 21
Disposal of Medication Medications are important for treating many DON’T: Flush expired or unwanted medications conditions and diseases; however, they may be down the toilet or drain unless the label specifically harmful if taken by someone that does not need instructs you to do so. them. To avoid accidental exposure or intentional DO: Return unwanted or expired medications to misuse of prescription and over the counter drugs, a drug take-back program or follow the steps for it is important you dispose of them properly. household disposal outlined in this packet. | General Medication Disposal *Source: Information provided by the Texas Expired or unwanted prescription or over the counter Commission on Environmental Quality. medications should never be flushed down the toilet or a drain. Doing so can cause contamination | Pain Medication Disposal because Texas’s wastewater treatment systems are It is illegal for your healthcare team to personally not designed to remove pharmaceuticals from water. accept returned opioid pain medication. Many law enforcement agencies, such as police and sheriff’s Household Disposal Steps* departments maintain drop boxes for disposal of If no disposal instructions are provided on the unused pain medicines in their stations. The DEA medication’s label and no drug take-back program maintains a website where you can search for the is available in your area, follow the recommended nearest public disposal location. steps below to safely dispose of your medication: The U.S. Food and Drug Administration (FDA) 1. Keep in the original container. recommends that some opioid medications be flushed down the toilet. But some communities 2. Mark out your name and the prescription number. have rules and restrictions against this. When in 3. For tablets or capsules: doubt, check with your local water treatment and/ add water or soda to dissolve them. or sanitation department. For liquids: Add something inedible, such as dirt or cat litter. For more information or to locate eco-friendly and safe options for medication disposal in your local 4. Close the lid and secure with duct or area, visit www.DisposeMyMeds.org. packaging tape. 5. Place container in a non-see-through container, like a coffee can or soup can. 6. Tape that container closed. 7. Place container in the trash. Do not put in the recycle bin. 22 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
What You Need to Know About Oral Chemotherapy Learning how to manage your oral chemotherapy might feel challenging - especially at first - but understanding what to expect can help you take charge of your health. We want to help you get the most from your treatment. The following discusses how staying on track with your medication therapy and lifestyle changes can help you live a full and active life. | Staying on Track with Treatment | Know What Your Medication Looks Like Oral chemotherapy drugs are used to slow the Make sure you are taking the right amount of growth of cancer or kill cancer cells. Your doctor the proper medication. This is very important if has prescribed your medication because it is the you take different medications at different times best choice for your treatment, but you must take of day. Many cancer drugs come in different your medication as prescribed – at the right times strengths. Some people need to take two different and the correct doses. Certain things might make it strengths at the same time. Taking the wrong feel hard to stay on track with treatment, such as: strength could result in taking too much of a medication (overdose) or too little (underdose). • A complex medication schedule that might Different strengths of the same drug can differ in involve taking 10, 20, or more tablets or the following ways: capsules a day • Color • Combination therapy with multiple types of medications • Letters • Side effects, like fatigue and nausea, which • Shape can affect everyday life and make it hard to • Size, words, or numbers printed on the tablet get into a regular treatment routine or capsule Even after the first few weeks of treatment, it might be hard to stay motivated. The benefits might seem like Look carefully at your medication as you they’re too far in the future as you deal with side effects are about to take it. Be mindful of what you and inconvenience in the present. Some people decide are doing. This can help you be sure you are on their own to cut back their dose. Others decide to taking the right medication at the right time. take a “break” for weeks or even months at a time. This is especially important if your doctor But doing this can affect the success of treatment. changes your medication dose or schedule. If your treatment routine starts to feel too hard, ask your doctor, nurse, or pharmacist for help managing your medications. Do not stop taking your medications without asking your doctor first. Staying on track with treatment is important to improving your health. Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 23
What You Need to Know About Oral Chemotherapy Continued | Know How to Take Your Medication How to Swallow Your Medication This should be the easy part, right? You just Many oral medications should not be broken, cut, swallow the medication, usually with water. While or crushed. This can make some drugs ineffective that’s true, it also matters when you take it and or create inaccurate doses. Be especially careful if what else, if anything, you take along with it. capsules are accidentally opened or damaged. The contents of some oral chemotherapy capsules should When to Take Your Medication not touch your skin or mucous membranes, including nasal passages, because they can be very irritating. Many oral chemotherapy drugs are taken at the Ask your doctor or pharmacist if this precaution same time every day. Others are taken on schedules applies to your medication. that can change from week to week. Be sure you know your medication schedules. This lowers the Most oral chemotherapy drugs should be risk of forgetting a dose. It also helps ensure the swallowed whole with water unless your doctor has most benefit from the medication. told you otherwise. If you find it hard to swallow tablets or capsules, the following tips might help: • Be aware that you might need to wait a certain number of hours between doses of • Place the tablet or capsule on the tip of your certain medications. tongue. Drink some water. Tilt your head back and swallow. • Try taking your medication at the same time as other routine tasks. For example, for • If that doesn’t work, place it on the back of medications you must take in the evening, your tongue. Drink some water. Tilt your chin plan to take them after brushing your teeth down toward your chest and swallow. or as you get ready for bed. This might make you less likely to forget a dose. • Take a deep breath before placing the medication in your mouth. This can help stop • Set an alarm to remind yourself to take your the gag reflex. medication, both at home and away from home. • Always sit up straight when swallowing medications. • Drink a whole glass of water while swallowing your medication. If your medication may be taken with food, try taking it with a soft food like applesauce, yogurt, or pudding. Soft foods can be easier to swallow than liquids. If these techniques don’t help, tell your doctor, nurse, or pharmacist. 24 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
What to Take with Your Medication? Know What to Do if You Miss a Dose You should know if you may take your medication You should know what to do if you forget to take with food. Some oral chemotherapy drugs should your medication, forget if you took your most recent be taken with food, while others should be taken on dose, or throw up soon after taking a dose. an empty stomach, and other drugs are not affected Be prepared. Ask your doctor or pharmacist in by food at all. Here are some points to remember: advance what you should do if you miss a dose. • Taking certain medications with food can Find out when to tell your doctor about missed reduce the risk of side effects. doses. With some drugs, you might need to tell your doctor if you miss even just one dose. • For other medications, food can increase the chance of side effects. Don’t simply skip a dose or take a double dose to “catch up” if something like this happens. If • A full stomach might affect how well the body you aren’t sure what to do, call your doctor or absorbs medication. pharmacist right away. • In most cases, taking a drug without food means taking it either one hour before or two hours after a meal. • Grapefruit can affect how some drugs work. You might need to avoid grapefruit products while taking certain drugs. • Other medications, including over the counter, herbal supplements, and vitamins, can interact with your medication. Please tell your doctor and/or pharmacist everything that you are taking. Ask your doctor or pharmacist if any of these apply to your medication. Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 25
What You Need to Know About Oral Chemotherapy Continued Make it Easy to Remember to Take Your Medication There are many ways to remind yourself to take your medication. Find ways that work for you and your schedule. Adjust them to suit your lifestyle. Organize Your Medications Use Alarms and Alerts • Use a daily medication box (pill box) to • Set an alarm on a clock, watch, or cellphone organize your medication. A pill box can help to remind yourself to take your medication. you see each dose and remember if you have • Some pill boxes have built-in alarms. taken your medication for a particular day and time. Do this only if your medication does not • Use a computer to set up a daily calendar need to stay in its original container and does alert or an email reminder. not need special handling. All prescription drugs have information about how they should • Use a medication reminder app to receive be kept. Read and follow the storage and alerts on a smartphone or tablet. handling requirements for your medication so • If needed, enlist the assistance of a caregiver your medications remain safe to take. to provide reminders. • If you take medications at different times each day, choose a pill box with extra Write it Down dividers for morning, evening, bedtime, • Write your medication schedule on a calendar or hourly doses. near your medications. • Never put your medication in an unlabeled bottle • List each medication and when to take it. or combine different medications in a single bottle. Even if you know what your medication • Include your medication on a daily to-do list. looks like, it’s easy to make mistakes. Check it off when you have taken it. • Carry an extra dose of each medication with Stay on Schedule When Traveling you in case you misplace your medication box • Pack extra medication and bring reminders or are away from home longer than expected. with you. • Use alarms, instead of daily habits or chores, to remind you to take your medication. • If you are crossing time zones, ask your doctor if you need to adjust your medication schedule. 26 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
| Pregnancy, Breastfeeding, Sexual Activity, and Contraception • Some cancer drugs can cause birth defects. It is important to use birth control as directed to prevent pregnancy. This applies to men and women receiving treatment. The type of birth control to use will depend on your individual situation. Ask your doctor which form of birth control is best for you. • A woman who is already pregnant when receiving a cancer diagnosis should discuss treatment options with her doctor. In some cases, treatment might be possible during certain stages of pregnancy. In other cases, it might be necessary to wait until after the baby is born. • Many cancer drugs can pass into breast milk. They should not be taken while breastfeeding. This can be harmful to a baby. Ask your doctor when you can safely begin or resume breastfeeding after chemotherapy. • Women should not become pregnant, and men should not get a partner pregnant while taking oral chemotherapy. Men and women of childbearing age and potential should use effective contraception during therapy and for a minimum of eight weeks after the last dose of everolimus. • Effective contraception could include one or more of the following: oral contraceptive, barrier methods, etc. • It is safe to hug and kiss. Special precautions may be needed for sexual activity while on oral chemotherapy, and you are encouraged to ask your care provider. Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 27
Coping with Side Effects Some people don’t start taking their medication when they should. Some skip doses because they are tired, don’t feel well, or are trying to avoid side effects. Others have depression, anxiety, or lack of energy that prevent them from taking their medication. If you are having challenges like these, talk with your doctor, nurse, or pharmacist. Your healthcare team can help, no matter how far off track you think you might be. Many people worry about the side effects of cancer drugs. These concerns might make it hard to stay on track with your treatment. Try to have realistic expectations about how you will feel during treatment. • If you already have had other types of chemotherapy, you might have certain expectations based on that experience. • Your current treatment could have fewer or less severe side effects than past treatments. It might have different side effects. Do not think of oral chemotherapy as “more of the same” chemotherapy. • Learn as much as you can about your medication’s side effects. Find tips on how to deal with them. This can help you get through your treatment. Oral chemotherapy can have many side effects. These might include: • Diarrhea • Fatigue • Nausea and vomiting • Skin reactions You might not have any of these side effects, but you might have others. Your Texas Oncology team is the best source of information about side effects and your health. 28 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
| Diarrhea | Choose Foods That Are Easy to Digest Chemotherapy can affect the cells lining the If a clear liquid diet improves your diarrhea, you intestine. This can lead to diarrhea. Loose or watery should be able to ease back into solid foods. Try bowel movements can affect how you feel. They foods that are easy to digest, such as bananas, can also dehydrate your body. In severe cases, rice, applesauce, and dry toast. This is often called your doctor might prescribe antidiarrheal drugs. the BRAT diet. Other foods that are easy to digest Don’t take any over the counter (OTC) products include mashed potatoes and yogurt (if dairy is for diarrhea without asking your doctor. Changing tolerated). If your diarrhea continues to improve your diet could reduce diarrhea. This might mean after a day or two on a BRAT diet, you might be able following a brief diet of clear liquids or foods that to begin trying small, regular meals. are easy to digest while staying away from other foods. Small changes can help keep diarrhea from Avoid Foods and Drinks That Can getting worse. Ask your doctor or nurse if changing Worsen Diarrhea your diet might help you. Many foods and drinks can irritate a touchy digestive system and make diarrhea worse. You Follow a Clear Liquid Diet might need to avoid some foods, such as: Even when you do not feel like eating, it is • Acidic drinks like tomato juice, citrus juices, important to replace fluids lost through diarrhea. and fizzy soft drinks Trying a liquid diet for a short time might help. • Alcohol, including beer, wine, and mixed drinks 1. Choose clear, caffeine-free, and alcohol-free liquids like these: • Caffeinated drinks like coffee, tea, colas, and › Apple juice, peach, or apricot nectar energy drinks › Clear broth • Greasy, fried, or spicy foods › Ginger ale › Ice pops or gelatin desserts • High-fiber foods like bran and raw fruits and › Sports drinks with electrolytes vegetables › Water • Milk or milk products if they make diarrhea worse › Weak, decaffeinated tea 2. Drink these liquids at room temperature. Let • Nuts carbonated drinks lose their fizz before drinking • Sweets such as pastries, candy, or preserves them. This makes them easier on the stomach. 3. Sip liquids throughout the day. Do not try to drink a lot at one time. Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 29
Coping with Side Effects Continued When to Call the Doctor Fatigue can make you feel exhausted. It can also The American Cancer Society recommends calling cause the following symptoms: your doctor if you have any of the following: • Lack of energy • Loose bowel movements several times a • Sleeping more day or for one to four days, depending on instructions given when treatment starts • Tiredness, even after sleeping • Anal bleeding or blood in the stool • Trouble concentrating or feeling motivated • New belly pain or cramps or a swollen belly • Trouble doing everyday things, like showering • No urinating for 12 hours or more Feeling fatigued does not necessarily mean your cancer is getting worse or that your treatment is not working. • No ability to drink fluids for 24 hours or more And it is not a sign of weakness or a lack of willpower • A fever of a certain level when taken by or determination. Fatigue can affect your quality of life. mouth, as instructed when treatment starts For some, it can affect the ability to work, care for a family, or receive treatment. Only you know how much • Constipation for many days followed by small it is affecting you. Managing it can help you have the amounts of diarrhea or oozing of liquid stool energy you need for daily activities and treatment. Always follow your doctor’s instructions about when Tell your doctor about your fatigue. Your doctor to call with your concerns. might ask you some questions, such as: • When did the fatigue first start? Fatigue Fatigue is extreme tiredness. It can happen from • When did you first notice that this fatigue is time to time. It can also happen more regularly over different? a long period of time. It is the most common side › How long has it lasted? effect of cancer treatment. It can also be caused by › Does anything make it better? Worse? other things, including: › Are there times of day that you notice • Anemia, or low red blood cell count it more? › How has the fatigue affected the things • Dehydration, or extreme loss of body fluids you do every day or the activities that • Infection give meaning and enjoyment to your life? • Pain Your doctor might also check for other causes, like anemia or thyroid problems. The following tips can • Poor sleep help you manage fatigue and feel better overall. 30 TEXAS ONCOLOGY PHARMACY | U P D AT E D : 0 1 / 1 0 / 2 0 2 2
Stay Active Prioritize Tasks When you are less active, you often feel more tired. Careful planning can help you work around your Exercise can help control fatigue and restore your fatigue. energy. It might also help you sleep better and • Do the most difficult or most important tasks improve your appetite. when you have the most energy. For some, • Talk to your doctor about how much activity is this might be first thing in the morning. For right for you. others, it might be in the afternoon. • Choose activities you enjoy. • Look at your to-do list. Skip anything that isn’t truly necessary. • Try gentle activities, like walking or bicycling. • Break large tasks into smaller ones. • A physical therapist might be able to help you design an exercise program. • If possible, consider cutting back on work hours. • Balance activity with rest. Ask for Help Eat Well Though it might feel difficult at first, it is vital to ask others for help. Do not be embarrassed. Your family and Fighting cancer affects how your body changes friends want you to be well and are often willing to help. food into energy. The cancer is competing with They might be able to help with many things, including: the rest of your body for nutrients at a time when you might feel like eating less. It is easy to see • Grocery shopping and meal preparation how poor nutrition can contribute to fatigue during • Rides to and from medical appointments treatment. It is vital to find ways to keep a balanced diet that meets your body’s needs. • Housework, yard work, or childcare • Try to have protein, fiber, and fat at each meal. • Avoid sugary foods. They might give you an initial jolt of energy but leave you tired later. • Drink plenty of caffeine-free fluids. • Ask your doctor or a dietitian to help you build a diet to fight fatigue. • Ask your doctor if you should take a multivitamin. Patient Welcome Packet | U P D AT E D : 0 1 / 1 0 / 2 0 2 2 31
You can also read