Matters - Advisor Corner: Residential Aged Care COVID-19 - Photo from Dive For Dollars Rottnest
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mndmatters
Volume 9 Issue 1 January - March 2020
Photo from Dive For Dollars Rottnest
Advisor Corner: Residential Aged Care
COVID-19
Dive For Dollars Rottnest
www.mndawa.asn.au
Inside This Issue
Volume 9 Issue 1 January - March 2020
Note from the Executive Officer............................................................... 1
Note from the President.......................................................................... 2-3
Welcome ................................................................................................ 4
AT Chat Article......................................................................................... 4
Change 4 Change................................................................................... 5
Advisor Corner......................................................................................... 6-7
Education................................................................................................ 8-9
Sarah’s Fundraising Files........................................................................ 10
Cape to Cape Poster............................................................................... 11 Note from the
Dive For Dollars Rottnest........................................................................ 12-13
Cape to Cape.......................................................................................... 14-15
Fundraising in the Community................................................................. 16-17
Executive Officer
Make a Difference Volunteer................................................................... 18
Pamper Day............................................................................................. 19 Dear Members and Friends,
Let’s Get Quizzical Poster........................................................................ 20 These are difficult times for everybody
Containers For Change........................................................................... 21 but none more so than for people living
MND Condolences................................................................................... 22 with MND. I will not go into details about
Loving Memory........................................................................................ 23 COVID-19 as we will be covering this in the
Past Carers Group.................................................................................. 24 education section. I do however want you to
know that we will do everything in our power
Jenine Rhodes Article............................................................................. 24
to support you and your loved ones through
MNDAWA Events Calender...................................................................... 25 this very difficult time.
Support Us With Your Donation............................................................... 26
Some, or all of our staff will be working from
home over the coming weeks and we may
Motor Neurone Disease have phones diverted. We are fortunate
Honorary Positions
Association of Western Australia enough to have systems that we can access We will miss not being able to meet and
Hon. Solicitor: Mr Peter Murray remotely. interact with our lovely MND Community.
Centre for Neurological Support I am so pleased we managed to have our
Hon. Accountant: Mr Tony Silipo
The Niche, Suite B/11 Aberdare Rd This will not stop the board and staff of “Dive For Dollars“ event over Rottnest. It
Nedlands WA 6009 MNDAWA planning to increase our services was a wonderfully uplifting day for all of the
Phone: (08) 6457 7355 Patrons
to you our MND community. We will just be divers and their supporters.
Email: admin@mndawa.asn.au Narelda Jacobs putting them on hold for a while. We will, Please stay safe and know you can call me
Keith Potger, AO like everybody else be taking a considerable anytime 0411 093 879.
Kim Hughes financial hit for the rest of this year as we
Board of Management will not be able to do any of our traditional Andrew Hirst
Staff fundraising events but we will find a way to Executive Officer
President: Prof Samar Aoun
fund much needed services to people living
Vice-President: Dr Rob Edis Exective Officer: Andrew Hirst with MND and their families.
Treasurer: Helen Kraus Accountant: Ling Lee
Secretary: Jan Taylor Fundraising & Events Manager: Sarah Wiley
Member: Scott Ellwood Fundraising & Events: Anne Northall
Member: Prof Anthony Akkari MND Advisors: Joan Ellis, Leanne Bodley,
Member: Jan Stiberc Bree Martin & Abi Crisp
Member: Drew Bathgate Accounts Receivable &
Member: Maureen Bathgate Administration Officer: Wendy Jones
Member: Dr Loren Flynn Education & Support
Group Manager: Kristen Leslie
Ambassador Equipment Coordinator: Ben Joseph
Kirsten Whitby MND MATTERS Volume 9 Issue 1 - 1
We will continue to provide support
services and equipment to ensure
that everyone who needs or wants
support will continue to receive it, Lockdown their neighbours in a new way
and if it is not possible face to face, All over the world people are waking up
then this will be via the telephone, Yes there is fear. to a new reality
email, social media, Skype and Yes there is isolation. To how big we really are
other technologies. We have also Yes there is panic buying. To how little control we really have
made the disappointing decision Yes there is sickness. To what really matters
to postpone Walk to D’Feet MND Yes there is even death. To Love.
and other meetings and events,
but we will work to keep the MND But, So we pray and we remember that
community connected through They say that in Wuhan after so many Yes there is fear
online channels such as social years of noise But there does not have to be hate.
media and newsletters. You can hear the birds again. Yes there is isolation
They say that after just a few weeks of But there does not have to be loneliness.
In particular there are three useful quiet Yes there is panic buying
websites: There is a dedicated The sky is no longer thick with fumes But there does not have to be meanness.
webpage: mndaustralia.org.au/ But blue and grey and clear. Yes there is sickness
covid19 with information regarding They say that in the streets of Assisi But there does not have to be disease of
COVID-19 and MND, which will People are singing to each other the soul.
be kept updated if expert advice across the empty squares, Yes there is even death
changes. Comprehensive advice on keeping their windows open But there can always be a rebirth of love.
how to minimise the risk of infection so that those who are alone Wake to the choices you make as to how
is available on the Health Direct may hear the sounds of family around to live now.
website and updates on the situation them.
in Australia are available through the They say that a hotel in the West of Today, breathe.
Department of Health website. Ireland Listen, behind the factory noises of your
Note from the Is offering free meals and delivery to the panic
Although many of the events
President
housebound. The birds are singing again
that raise money for vital MND Today a young woman I know The sky is clearing,
Association support services have is busy spreading fliers with her number Spring is coming,
either been cancelled or postponed, through the neighbourhood And we are always encompassed by
the association must still continue to So that the elders may have someone to
Dear MND Community, provide support services. Therefore,
Love.
call on. Open the windows of your soul
We are all going through an extremely if you are able, please consider Today Churches, Synagogues, Mosques And though you may not be able
uncertain time due to the spread of making a donation, as if you were and Temples to touch across the empty square,
COVID-19 in Australia and all over the world. still attending a fundraising event. are preparing to welcome Sing.
In particular, we are all concerned for the MNDAWA staff will advise you on and shelter the homeless, the sick, the
wellbeing of people living with MND due to other ways you can still raise funds weary. Please stay safe and keep singing!
their health vulnerability and the risks posed and make a huge difference, so
by this virus. MNDAWA has taken all the please stay tuned! All over the world people are slowing
necessary precautions for staff and people Prof Samar Aoun
down and reflecting President MNDAWA
we care for, as per government advice, to Finally, Let me share with you these
All over the world people are looking at
reduce the chances of spreading the virus to sobering thoughts of the choices
the MND community. we can make as how to live now in
these unprecedented times! From
Richard Hendrick (Brother Richard)
in Ireland, 13th March 2020.
2 - MND MATTERS Volume 9 Issue 1 MND MATTERS Volume 9 Issue 1 - 3
Welcome
Kristin Leslie
Education and Support Group Manager
I am very excited to be joining the team at MNDAWA. I am a
nurse and was employed as a clinical educator with My Flex
Health International before accepting the role with MNDAWA.
My husband and I moved to Perth about seven years ago from
Orange, NSW where I worked as a Care Assessor. I have had an
interest in neurology since working as an MS nurse in NZ some
years ago.
I have three married sons and four beautiful grandchildren (and
another due in August!).
My new colleagues here at MNDAWA have been so friendly and
helpful. I am looking forward to meeting the members and friends
of the Association over the coming weeks.
I am sure that I will enjoy my role as Education and Support
Group Manager and working with the MNDAWA team.
At Chat
Opportunity to work
with an AT Chat AT Peer Change 4 Change
Mentor for free We could not continue our specialised family
With such a wide range of assistive If any of these comments resonate and you support services without your support.
technology, devices and products on the would like to receive free mentoring as part
market, it can be hard to work out what of the AT Chat Peer Mentoring Pilot Program
might help you with a task or activity you are please contact us by following this link: Together we can make THANK YOU TO ALL OUR
having difficulty with. https://bit.ly/2tDs4C4 or phone Gail Stacey a difference. DONORS, FUNDRAISERS
on 08 6202 4700 or 1300 885 886. The pilot
program commences in March.
AND SUPPORTERS
AT Chat was created by and for people with
disabilities to provide tools and resources We would like to acknowledge our If you would like to collect donations
that connect and support people to find If you would like to learn more about AT Chat Change 4 Change collectors and with our Change 4 Change tins,
the right piece of equipment to meet their please follow this link: https://www.ilaustralia. the individuals, communities and display our Blue MND Cornflower
needs. As part of AT Chat’s co-design org.au/our-services/at-chat companies that have our Blue MND Box or sell our merchandise, please
work, we asked how people would benefit Cornflower boxes to raise awareness contact the office on 6457 7355 or
from working with an AT Peer Mentor.
Responses highlighted that some people felt You can also find us on Facebook or and funds for the Association. email admin@mndawa.asn.au
overwhelmed with not only adjusting to their Instagram @atchatwithus or sign up to
disability but also by the range of AT and our newsletter by emailing us at atchat@ Change 4 Change Tins
confusion on how to access it. ilaustralia.org.au You can also connect with
our active community of AT users by joining
our closed group AT Chatterbox here.
David Wearne
Some stated that they would have benefited
from being able to meet and discuss AT IGA Mount Pleasant
solutions with someone who had a similar Staffodshire Bull Terriers Club of WA
experience of disability to them and who IGA Riverton
could share with them what worked and why. Pat Curtis
4 - MND MATTERS Volume 9 Issue 1 MND MATTERS Volume 9 Issue 2 - 5
Advisor Corner:
Residential Aged Care
which is in line with your pension and FINANCE:
fees for extra services. The amount you
are asked to pay is based on your means • If you are experiencing financial
assessment. The Australian Government hardship, help is available. Contact
does contribute towards accommodation Department of Human Services on
Aged care placement is a sensitive on to the My Aged Care for an Aged costs, depending on your income and 1800227475 for professional help or seek
topic and not necessarily applicable Care Assessment Team assessor (ACAT assets. Talk to the intended facility further information on the My Aged Care
to everyone. However, a percentage assessment). Seek further information manager to determine if any special website.
of people with MND are faced with from your specialist coordinator or your consideration for reduced fees, can be
this predicament for varied reasons. MND Advisor if necessary. made, for your personal circumstance. • If you are in a comfortable position with
The decision making can be stressful If your income and assets are over a finances and do not want the burden
and the process fraught with many THE STEPS FOR PLACEMENT: certain amount, then you will be asked to of completing documents and applying
conflicting emotions. Generally, the pay the full cost of your accommodation. for placement, then contact a private
theme MND advisors see with carers in • ACAT assessment. You can self-refer Refundable Accommodation Deposit consultant for aged care. This person will
these circumstances, is the feeling of via the My Aged Care portal or ask your (RAD) and Refundable Accommodation do all the work for you at an agreed price.
overwhelming guilt. Carers often believe MND advisor to do this referral as your Contribution (RAC) should be discussed
that in relinquishing their care to health advocate. An assessor will visit the in more detail with either your intended Good communication with management
professionals, that they have failed their family home with no service fee charged facility manager or via Find a provider and staff at the facilities, is paramount
loved one. The client may feel distressed to you. An ACAT assessment can also tool: www.myagedcare.gov.au where all in making the transition to placement
about having to leave their cherished cover residential “respite care”. Neither of aged care homes should publish their the best experience possible. The MND
home to an unknown environment. these placements can take place unless fees. advisors offer their support to you and
Separation anxiety can consume both an ACAT is completed. You could also your loved one whilst remaining as your
parties. You do not have to be alone on contact the following numbers for advice. advocate.
this journey. There is support and advice • Enter into an agreement. This is a
available to you. legal binding document between you
Short term & Emergency Respite: the potential resident and the aged care The following is a comment from a carer
The MND association offers free 1800052222 or after hours 1800059059 home. Read carefully before signing. who has been visiting her husband in
education to the facility staff when an My Aged Care: 1800200422 Do not hesitate to ask questions if you aged care for over a year.
MND client is a resident. The MND • Centrelink assets and income test - visit need further clarification on any issues.
advisors continue our visits to clients, your local Centrelink office for assistance If the client is deemed unable to make “We didn’t know what to expect at
whilst liaising with the managers and staff and support in these matters. You do not the decision due to cognitive impairment, the beginning because it was all too
for ongoing support. This collaboration is need to sell the family home whilst one of then ensure you have an Enduring Power upsetting. Now I feel like I am part of
aimed at best practice and care support you remain living there. of Guardianship (EPG) to act on his or a family here and my husband is well
for the person with MND and their visiting her behalf. looked after “ ( Lyn )
family members. • Find an aged care home-a DPS Guide
Services in aged care facilities are to Aged Care facilities can be obtained
aimed at providing the client with the from your local council or from your MND
care that he or she requires. In some advisor. This guide-book lists facilities in
cases, it may be a few months before categories of suburbs and the specific
a client and carer, adapts to their new additional features that they can offer.
surroundings. When MND patients are You can be registered with several
also affected with loss of speech or facilities at one given time and placed
dementia symptoms, then the care needs on a waitlist for when a bed becomes
are increased. available.
ELIGIBILITY FOR PERMANENT • Work out the costs. This can be
PLACEMENT: overwhelming but don’t give up, seek
support from family, friends and health
• A person aged 65 and over who can no professionals. There are various fees
longer live independently in the home. involved, such as the basic daily fee
• People under the age of 65 have
the option of supported disability
accommodation via NDIS. If this does not
meet your needs, then an “Access not
met letter” will be required from NDIS to
present to the Health Department liaison
officer. This document is then forwarded MND MATTERS Volume 9 Issue 1 - 7
Education:
COVID-19
The World Health Organisation has Social distancing
announced that COVID-19 is a pandemic. • Avoid handshaking and other physical
greetings.
COVID-19 is a respiratory illness caused by a • Regularly clean shared high touch surfaces
new virus. Symptoms include fever, coughing, such as tables, kitchen benches and
sore throat, fatigue and shortness of breath. doorknobs.
• Increase amount of fresh air by opening
The virus can spread from person to person, windows or adjusting air conditioning.
but good hygiene can prevent infection. • Buy more goods online to limit visits to
shopping venues.
If you are sick and think you have • Consider when travel and outings are
symptoms of COVID-19 seek medical necessary.
assistance. • Remember that people with MND are
vulnerable the Government recommends
If you want to talk to someone about your limiting outings to public places. (advice
symptoms first, please call the National current at 23/03/20).
Coronavirus Helpline for advice. The line
operates 24 hours a day, seven days a week. Consider Some Ways to Stay Healthy,
Physically and Emotionally
Phone: 1800 020 080
Healthy Diet
If you have serious symptoms such as • Aim to prepare healthy meals incorporating
difficulty breathing, call 000 for urgent medical lean protein, fresh vegetables and a healthy
help carbohydrate.
• Fruit makes an excellent dessert. We are
The Commonwealth and State Governments so lucky in Western Australia to have an
are monitoring and responding to the abundant supply of wonderful fresh fruit and
outbreak. vegetables.
• Try to avoid too many fast food meals (they
We all need to play our part to help slow the are usually very high in fat and don’t provide
spread of COVID-19 in Australia. the nutrients our body requires to stay healthy
and well.)
What you can do
Good hygiene Exercise
• Covering your coughs and sneezes with your • Exercise is important for our cardiovascular
elbow or a tissue. system, to maintain our muscles and is a good
• Disposing of tissues properly. way to decrease cortisol (the stress hormone).
• Washing hands often with soap and water. • Research has shown that exercise can
• Using alcohol - based hand sanitisers. decrease depression.
• Cleaning and disinfecting surfaces. • Walking is a good choice, also yoga, Tai Chi
• If you are sick, avoiding contact with others
and stay 1.5 metres away from people.
and other gentle exercises. These can also be
done seated. Caring for People with MND Perth
• Cleaning and sanitizing frequently used Education Workshop
Keep in touch with friends and family.
objects such as mobiles, keys and wallets.
• Social media allows us to maintain our Postponed
Self-isolation communication with our loved ones, especially
• If you have a confirmed case, you need to if we are caring for a vulnerable person. (Face We will keep you informed about future workshops.
self-isolate to prevent it spreading to other Time, Skype, etc.)
people.
• If you have come from interstate or overseas Spiritual wellbeing.
you must also self- isolate (even if you have • Continue with your spiritual practices if that is
no symptoms) for 14 days. (current advice as an important aspect of your life.
of 23/03/20). • Although we can no longer attend places
of worship, various services are televised or
streamed live.
8 - MND MATTERS Volume 9 Issue 1 MND MATTERS Volume 9 Issue 1 - 9
Sarah’s Fundraising Files:
I pondered for a long time over what I And because of this we need your help
should write in this edition of Fundraising now more than ever.
Files. The current situation across the
globe is unprecedented and none of us If you are able please consider donating
could have prepared for what COVID-19 to us.
has done to us professionally and
personally. Donate in memory.
The safety of our clients, carers, Donate in celebration.
supporters and staff is paramount and
as such we had to make the difficult Donate in hope.
decision to cancel/ postpone many of our
events, including Walk to D’Feet, Let’s Donate just because.
Get Quizzical For MND, Unite Against
MND Charity Ball and Cape to Cape For But please keep donating because
MND. In addition to this people can’t hold the people we support are even more
their community fundraisers and huge vulnerable now and we need money to
profile events such as HBF Run for a keep helping them!
Reason have been cancelled. In total
we believe the economic loss from these Text MNDAWA to 0400 662 662
events alone to total over $200,000. to donate. Visit our website at
www.mndawa.asn.au/donate or call us
on 6457 7355.
10 - MND MATTERS Volume 9 Issue 1
Dive For Dollars Rottnest Our sincerest thanks go out to the 26 intrepid skydivers, and their supporters, for raising over $60,000 for Motor Neurone Disease WA and for making Dive For Dollars Rottnest a weekend to remember. Also, thank you to Skydive Geronimo, Sealink Rottnest Island and Adams Pinnacle Charters for their support. We are excited to announce that Dive For Dollars 2021 will be held on 6 & 7 March and if we have enough interest we will also jump on Friday 5 March. We are also looking to organise a 2nd skydive over Rockingham or Jurien Bay in November… watch this space! For more information please call Sarah on 6457 7355 or email admin@mndawa.asn.au. 12 - MND MATTERS Volume 9 Issue 1 MND MATTERS Volume 9 Issue 1 - 13
Day 7
Cape to Cape For MND Cosy Corner to Cape Leeuwin
www.capetocapeformnd.com.au Distance: 21km
This can be an exciting last day, especially
if it’s windy! Much of the walking is along a
Join us and complete one of the world’s limestone ledge close to the sea, complete
great coastal walks whilst raising money for with blowholes! There is a long beach stretch
Motor Neurone Disease WA. where you can daydream about all that
you’ve achieved this week. After that we
The Cape to Cape Track meanders 135km head inland, occasionally sighting the Cape
between Cape Naturaliste and Cape Leeuwin Lighthouse, signaling the end of
Leeuwin, sometimes along the beach, your walk. Your Cape to Cape track ‘end to
sometimes along cliff-tops, but nearly always end’ journey officially finishes at the Cape
with a view of the wonderful Margaret River Day 3 Leeuwin waterwheel, but we’ll take a walk up
coastline. Moses Rock to Gracetown to the lighthouse, if time permits.
Distance: 16km
By carrying only a daypack, and walking This is a great day, and relatively easy –
the track in graded stages, people with although there are a few hills and some Day 8
a moderate level of fitness can complete sandy patches. The magnificent sweeping Return to Perth
the walk. Excellent food, comfortable views of the coast from cliff-top vantage Enjoy a sleep in and a leisurely breakfast this
accommodation and knowledgeable guides points, and the towering red rocks of morning before we drop you into Margaret
will complement your trip. Willyabrup are two of many highlights. If the River where you can enjoy a coffee and
weather’s nice, you might enjoy a refreshing perhaps a spot of shopping. Pick up some
Your guides from Inspiration Outdoors will swim in the sheltered bay at Gracetown. Or takeaway lunch (own expense) before we
accompany you each day as you walk just soak those feet as you reflect on another head back to Perth, arriving by mid-afternoon
between 14 and 26 km. There is no such great day on the Cape to Cape track. (usually between 2.30 and 3pm).
thing as an easy day on the Cape to Cape!
However, with a moderate level of fitness, Day 4
they are all enjoyable! There are some Gracetown to Margaret River Mouth
steep sections and beach walking can be Distance: 18km (or 12km option)
challenging, so we recommend training. It’s fairly easy walking among coastal heath
Each day we will resume the walk from to Ellensbrook historic homestead, where
where we finished the previous day. Please you can enjoy morning tea and explore the
note that on many days there are options to grounds. The track then takes an inland
route, which gives us a good appreciation
walk half a day; and you are always welcome
to take a day off from walking. of the landscape away from the ocean for a Day 5
while. After lunch we’re back on the coast, Margaret River Mouth to Boranup Forest
Day 1 and a very pleasant beach walk takes us Distance: 25km (or 14km option)
Cape Naturaliste to Yallingup to Cape Mentelle. We finish the day at the A very varied day today! We’ll head inland
Distance: 14km Margaret River mouth – a good place for a again to start with and enjoy morning tea
Departing from Perth at 8am, we reach Cape swim if it’s warm. beside the Boodjidup Brook. A beach walk
Naturaliste by lunch time. Enjoy the first of takes us to Redgate for lunch and then a
many fresh picnic lunches for the week on spectacular stretch of cliff-top walking sees
the lawn at the Cape Naturaliste Lighthouse. us reach shady Contos Campground by
Today’s walk on the Cape to Cape track is afternoon tea. The final part of the day is
relatively easy with mostly cliff-top and some through the cool peaceful forest on firm, easy
beach walking. Keep an eye out for dolphins! tracks. It’s a wonderful end to a wonderful
After our walk the bus will meet us at day on the Cape to Cape track. Despite the
Yallingup and then we will drive to Margaret distance, today is not usually considered the
River. most difficult.
Day 6
Day 2 Boranup Forest to Cosy Corner
Yallingup to Moses Rock Distance: 21km (or 14km option)
Distance: 18km (or 10km option) This morning we continue through the karri
Some beach walking in the morning and forest before making our way down to the
superb coastal views all day. The red granite aqua-blue waters of Hamelin Bay. This 6 km
boulders, white sand beaches and turquoise beach stretch can be very enjoyable, with
waters can be gobsmackingly beautiful. We’ll the right mindset. Enjoy the peace, the view
have lunch at the surfing Mecca, Injidup, visit and the moment as you walk into Hamelin
Quinninup Falls and finish with ocean views Bay for a picnic lunch. After lunch it’s a short
at Moses Rock. but challenging hike up to the tiny Foul Bay
Lighthouse, with sweeping views back along
the coast. Then before you know it, you’ll
14 - MND MATTERS Volume 9 Issue 1 reach the end of another beautiful day. MND MATTERS Volume 9 Issue 1 - 15
Fundraising in the Community
FUCMND Vic Brockman Memorial Cruise
Want to hold a fundraising event for MNDAWA?
1 year ago on the 3/2/2019 Vic’s mates all
MNDAWA relies heavily on the generosity and support of the community to enable us to continue got together and organised a cruise for Vic
our vital family care and support services. named (VIC VICTORY LAP) it was a chance
for everyone to get together have fun and in
If you would like to fundraise for MNDAWA or discuss ways in which you may be able to support their own way to say goodbye to their mate
us please contact Sarah, our Fundraising and Events Manager on 6457 7355 or (as they knew it might be the last time they
email admin@mndawa.asn.au. see him).
If you have organised a fundraiser and would like your story shared in the newsletter please let us A little while ago I was contacted again by
know. a few of Vic’s friends asking if they can
do another cruise in Vic’s memory to get
THANK YOU!!! together and remember their mate and to
raise money for MND which I was happy to
We have many generous groups and individuals who fundraise for us throughout the year and be a part of.
we always like to mention those who raise awareness and funds for people living with MND in the
community. So the FUCMND Vic Brockman’s Memorial
Cruise was organised by Deb Shuttleworth
We would like to thank the following: and myself and on the first anniversary of the
Annual Championship for the Staffordshire Bunbury Hospital Surgical Ward had Free (VIC VICTORY LAP) we all got together for a
Bull Terriers Club of WA was held on 26 & 27 Scrubs Friday and raised $194.20 day of happy memories laughter and cruising
October and they raised $237 for MND (which was Vic’s favourite thing to do).
Aland Caffe raised $180
John McLean organised a book club We took the same route as last year starting
fundraiser in memorial of Stuart Pharoah and Perth Hash House Harriets had a blue dress at Cockburn Central Shopping Centre cruise
raised $500 run and raised $1,885 to munchies in Fremantle then driving up
the coast to Hillarys and then the final leg to
The Office of State Revenue had a Casual Lisa Gordon had a cake sale and raffle Kewdale. People left and joined the route at
Friday and raised $332 in memory of Janine Stoodley and raised different stages of the day so every stop was
$565.65 meeting and saying hello to new faces and
Rocky Ridge Brewing Co raised $19,395 cars. So many cars in fact that I lost count of
from the sale of beer for Darren’s Ride Jeff Hall held a sundowner at Marri Park how many actually turned up. All cars were
Tavern on Saturday 8 February and raised welcomed it didn’t matter what you drove it
Kristen Whitby, Darren’s Ride raised $329.70 $1,311 was all about remembering a mate.
Into the Wild (Mahonia Operations) donate The Cooper family held an Afternoon Tea The cruise was led by Vic’s best mate Dean
$2 from every booking and have donated for MND to go towards their fundraising this Kelly followed closely by Vic’s HT wagon
another $928 bringing their total donations to year as they had 9 people Dive For Dollars at driven by his other best mate Simon Duncan
$2492 Rottnest Island. with myself in the passenger seat.
On Australia Day MNDAWA attended the We handed around the bucket for a Gold
Dennis Evans held an Australia Day annual Australia Day breakfast held by the
Breakfast and raised $320 coin donation to raise money for MND on the
Rotary Club of Canning. Robin McDonald day and the generosity was amazing.
made some amazing neck coolers to sell on
SJOG Hospital Auxillary in Geraldton had a the day along with our MND merchandise.
Christmas Raffle and raised $1000 Also for sale was FUCMND stubby holders
and stickers which was a slogan that Vic
Friends of the Community in Cockburn do thought of before he passed away, these
Walker Weyland AMD had a casual dress numerous fundraisers through the year for
day and raised $200 were a big hit and sold out quickly again all
different charities. This year their donation to profits raised were donated to MNDAWA.
Intermediate Capital Group donated $1000 charity will be coming to MNDAWA
supporting Dive For Dollars It was great day had by all and hopefully we
Friday’s Jetskis held their third “Ride 2 Rotto
Geographe Cycle Club raised $160 in for Motor Neurone Disease on Saturday 14 will be back again next year. Thank you to
support of Darren’s Ride March 2020. everyone who turned up, some were close to
Friday’s Ride 2 Rotto for Motor Neurone Vic others never met him before but turned
Disease is a unique opportunity to ride your up to help support for a great cause. We
jetski to Rottnest Island. Friday’s Jetskis raised $801.60
were lucky enough to be granted approval to
hold this event as it is not normally permitted
16 - MND MATTERS Volume 9 Issue 1 MND MATTERS Volume 9 Issue 1 - 17Pamper Day
Due to concerns about COVID-19 (more commonly known as Coronavirus), we
made the difficult decision to cancel the Pamper Day on 28 March 2020. We have
also made the decision to cancel the Pamper Day scheduled for 18 July 2020.
We were extremely disappointed to have had to take these steps – we know how
important the support network is for people affected by MND.
MNDAWA takes the health and wellbeing of our members and the wider community
very seriously. In this heightened phase of COVID-19, we felt it appropriate to take
steps to ensure we protect this wherever we can.
MNDAWA didn’t taken this decision lightly and we share the disappointment that we
know was felt by everyone involved.
We look forward to seeing you all at our next Pamper Day, on Saturday 17 October
2020.
We are always looking for volunteers for pamper day so if you, or anyone you know
can assist with any of the following treatments please contact Anne on 6457 2670
or email admin@mndawa.asn.au
Do you have some spare time? Head & neck massage, Foot Spas, Foot massage, Manicures, Pedicures, Facials,
Reflexology, Makeup or beard & moustache trims
Are you looking to give back or make a difference?
Volunteers are our lifeline – they assist us to make a difference to the lives of
people living with MND. We rely on the goodwill of many to support us in our
work. Foot Massage Facial
Leg and foot massage is an People get facials for different
incomparable pleasure, which not only reasons: some people want those
There are many ways in which your expertise and thoughtfulness could do so relieves fatigue, leaves leg muscles horrible blackheads out! Others start
much to help support both the Association and families living with this devastating and the body in tone, but also is a taking care of their skin in their 20’s to
disease. unique relaxing procedure. preserve a youthful look. Older people
The difference is that foot and leg want some help with anti-ageing
massage stimulates not only the regimens. And then there are the
Below are just some of the volunteer tasks that may appeal to you: muscles, which are directly rubbed, people who just want to relax and be
but also gives a positive effect on the pampered.
Fundraising whole body. And the reason for this is A facial is essentially a multi-step skin
a huge set of reflex points, which are treatment that is one of the best ways
Events/Project Management responsible for the state of the body to take care of your skin. A facial,
Special Events (Walk to D’Feet MND, MND Street appeal, Quiz Night) as a whole. cleanses, exfoliates, and nourishes the
Pamper Days skin, promoting a clear, well-hydrated
Manicure complexion and can help your skin
A manicure is a cosmetic beauty look younger. You also receive advice
If you feel you can help us please call us on 6457 7355 or treatment for the fingernails and on the best way to take care of your
email admin@mndawa.asn.au hands, performed at home or in a nail skin. A facial works best when it is part
salon. A manicure consists of filing and of an on-going program of skin care.
shaping of the free edge, pushing (with
a cuticle pusher) and clipping (with
cuticle nippers) any nonliving tissue
(limited to cuticle and hangnails),
treatments, massage of the hand, and
18 - MND MATTERS Volume 9 Issue 1 the application of fingernail polish. MND MATTERS Volume 9 Issue 1 - 19Containers for Change
Containers for Change is Western Australia’s new container deposit scheme.
Containers for Change will provide a 10 cent refund for each eligible container
returned for recycling at an approved Containers for Change Refund Point,
encouraging recycling and creating a cleaner WA for everyone.
Containers for Change commences on Tuesday 2 June 2020, following the WA Day
long weekend.
Customers return their eligible containers to a Containers for Change Refund Point
for a 10 cent refund. Containers can be returned by individuals or organisations, and
any number of containers can be returned at one time, providing the given Refund
Point has the capacity to accept them. Containers for Change will operate statewide.
Over 170 Refund Points across WA will be open for business on Tuesday 2 June
2020. From 2 June 2020 you will be able to check for an authorised Containers for
Change Refund Point near you at www.containersforchange.com.au
The scheme targets beverage containers most commonly seen as litter. The types
of beverage containers covered in the scheme include plastic and glass bottles,
paper-board cartons, and steel and aluminium cans between 150 millilitres and
three litres. Examples of eligible beverage containers in the scheme include:
soft drink cans and bottles;
bottled waters – both plastic and glass;
small flavoured milk drinks;
beer and cider cans and bottles; and
sports drinks and spirit-based mixed drinks.
Donate your containers
When you take your containers to an over-the-counter depot, drop-off, RVM, mobile
or pop-up site, simply use the Scheme ID of the charity or group you wish to donate
to and the value of your refund will be transferred to them.
You can elect to donate your refund to The Motor Neurone Disease
Association of WA by using our Scheme ID C10242959 at the refund
point and the 10 cent refund for your eligible containers will be
donated to us.
20 - MND MATTERS Volume 9 Issue 1 MND MATTERS Volume 9 Issue 1 - 21MND Condolences
& Loving Memory
Donations made in
Loving Memory of:
Agnes Wright Robbie Mailey Trevor Morris
Steven Young Robyn Hornsey Kenneth Matthews
We send our heartfelt Ron Cleasby Jim Symonds Debra Carter
condolences to the Patricia Crearer Betty Millard Russel Perry
families of: Peter Kearney Allan M Read Thomas Cave
Patricia Crearar Charles Blackhall Brian Eley Jason Hartland Darren Whitby
Duane Jensen Tanya Hay Mark Old Iris Pearl Short Andrea Kerry Byrne
Mark Old Steven Conick Lorelle Houston Graeme Rob Robert Gavin
Andrea Lyndon James Etsuko Neil Thomas Fox Ian McAuliffe Lyndsay Hywood
Kay Brittan Mory Kamara Hazel Cugley Trevor Newby Allan Conroy
John Booth Christine Prior John Booth Maria Kallane Tony Lorian
Cate Holland Joan Poon Jane Banner Michael Smith Michael Ross
Graham Lee Bev Chamberlain Victor Brockman James Perrin Phil Wearne
Donna Watts
The Cornflower:
The Blue MND Cornflower is the national symbol
of hope for Motor Neurone Disease. It may have a
fragile appearance, but it is hardy in nature which
is representative of the remarkable strength people
living with MND have. We live in hope that we will
find a cure for Motor Neurone Disease.
22 - MND MATTERS Volume 9 Issue 1 MND MATTERS Volume 9 Issue 1 - 23Past Carers Group MNDAWA Events Calender
April - December 2020
Date Venue Details
If you have any questions on our upcoming programs or events please contact the office on
May 6457 7355 or email admin@mndawa.asn.au
17 Spigl Way, 12:30pm
28 Bateman Hazel Sturrock: 0424 207 762 Date Event Venue & Details
June April
14 Blencowe St 12:30pm
25 West Leederville Rosa Lenzo: 0409 371 577 May
July 3-9 MND Awareness Week Statewide
9 Stonesfield Crt 12:30pm Els Burggraff:
23 Padbury 9307 5521 or 0429 011 630 18 - 24 National Volunteer Week
August June
11 Masefield Ave, 12:30pm
27 North Lake Heather Joppek: 0418 929 672 21 Global Day
September July
Burrendah Tavern, 12:30pm
24 Willetton Heather Joppek: 0418 929 672 August
October All month Cuppa Tea For MND Campaign
63/444 Marmion St, 12:30pm
22 Melville Corrie Fisher: 9330 1735
22 or 23 Cuppa Tea For MND TBC
November
MT Henry Tavern, Manning Rd, 12:30pm 28 Cuppa Tea For MND Offcial Day
26 Manning Heather Joppek: 0418 929 672
September
December
20 Scouler Way, 3:00pm October
Bateman Cheryl Coates: 9310 1757 The Niche
17 Christmas Party/BBQ - Secret Santa BYO Drinks and Meat 17 Pamper Day 11 Aberdare Road, Nedlands
By Jenine Rhodes November
1 Walk to D’Feet MND Geraldton Geraldton
In my battle with MND one thing that has been constant is my 15 Walk to D’Feet MND Bunbury Bunbury
love of music, especially Elvis Presley. I was very fortunate, 5 South Perth Community
years ago, to meet Gordon Hendricks a world’s Elvis tribute 21 Lets Get Quizzical For MND Cnr Sandgate St & South Tce, South
artist. He has been my inspiration and a true friend. I was
fortunate to get VIP tickets to see him at the Astor Theatre on
February 7th. It has made me want to fight MND even more and 29 Walk to D’Feet MND Perth Perth TBC
attend more concerts by him.
December
The Niche
8 Christmas Lunch 11 Aberdare Road, Nedlands
24 - MND MATTERS Volume 9 Issue 1 MND MATTERS Volume 9 Issue 1 - 25Support Us With Your Donation
MEMBERSHIP:
The Motor Neurone Disease Association of WA is a member of MND Australia, with a delegate
board. We have strong links with other MND Associations around Australia and internationally as
well as the MND Research Institute of Australia. If you would like to become a member or renew
your membership, please contact the office.
MND MATTERS DIGITAL SUBSCRIPTION:
If you would like to receive the newsletter electronically, please contact the office
I would like to make a donation to the Motor Neurone Disease Association of WA
First Name: ___________________________ Surname:_______________________________
Address:_____________________________________________________________________
Suburb: _________________________________ State: ______________ Postcode: ________
YES! I would like to make a regular donation. If you tick this box we will contact you to arrange this
Please accept my gift of:
$250 $150 $100 $50 or my choice of $
My cheque/money order is enclosed and made payable to MNDAWA
Or please debit my credit card: Master Visa
Card Number:
Expiry:
Name of card holder:____________________________________
Signature: __________________________________ Date: ____________________________
I would like to make my donation in loving memory of: _________________________________
The Motor Neurone Disease Association of WA
The Niche, 11 Aberdare Road, Nedlands WA 6009 ABN: 49 312 430 982
T: 6457 7355 e: admin@mndawa.asn.au w: www.mndawa.asn.au
26- MND MATTERS Volume 9 Issue 1You can also read
