CNS - PAST PRESENT FUTURE - SEPT 29-OCT 2, 2021 - Child Neurology Society
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Deanna Ducher
50TH ANNUAL MEETING
CNS
SEPT 29-OCT 2, 2021
BOSTON • MASSACHUSETTS
PAST•PRESENT•FUTURE
Learning Objectives
The 2021 CNS Scientific Program
The CNS Scientific Program is designed by and is primarily intended for child
neurologists and professionals in other fields of study related to neurologic and
developmental disorders in children and adolescents. “As a result of attending this
meeting the physician will be better able to care for children with neurological disease
through an understanding of recent advances in neuroscience, neuro-diagnostics and
therapeutics relevant to child neurology.”
Accreditation Statement
This activity has been approved for AMA PRA Category 1 Credit™.
SESSIONS highlighted in red are designated for CME credit. Final determination
of courses accredited and total # of credits approved will be available when
registration opens in mid July.
PHILLIP L. PEARL, MD, PRESIDENT, CNS
CARL STAFSTROM, MD, PHD, CHAIR & YASMIN KHAKOO, MD, CO-CHAIR,
CNS SCIENTIFIC SELECTION AND PROGRAM PLANNING COMMITTEE
16 Child Neurology Society | Summer 2021
Child Neurology Society | Summer 2021 17
Wednesday, September 29
8:00 AM – 11:00 AM Possibilities with N of 1 Trials Closing Comments & Next Steps
SYMPOSIUM I: Christelle Moufawad El Achkar, MD
CHILD NEUROLOGY FOUNDATION: Boston Children’s Hospital, Scott L. Pomeroy, MD, PhD
SHORTENING THE DIAGNOSTIC Harvard Medical School, Harvard Medical School,
ODYSSEY IN CHILDREN WITH Boston, MA Boston Children’s Hospital,
NEUROLOGIC CONDITIONS Boston, MA
Participant Reflections
Supported by the Child Neurology
Foundation Break 11:30 AM – 1:30 PM
KENNETH F. SWAIMAN
Organizer: How to Support Families CNS LEGACY LUNCHEON
Child Neurology Foundation Through the Journey
Welcome and Introduction
Welcome How to Handle the Various Phillip L. Pearl, MD
Scott L. Pomeroy, MD, PhD Journeys President, Child Neurology Society
Harvard Medical School, Heather C. Mefford, MD, PhD
Boston Children’s Hospital, St. Jude Children’s Research Recognition of Past
Boston, MA Hospital, Memphis, TN CNS Presidents
Utilizing the Latest Information Empowering Families to be Recognition of Past
and Technology to Diagnose and Advocates: Panel Discussion CNS Secretary-treasurers
Treat Neurologic Conditions and Councillors
Moderator:
How a Whole Genome Annapurna Poduri, MD, MPH Presentation of 2021
Sequencing Opportunity Boston Children’s Hospital, Arnold P. Gold Foundation
Impacted 25 Children, Harvard Medical School, Humanism in Medicine Award
Caregivers and their Boston, MA Mary L. Zupanc, MD, FAAN, FAAP
Medical Providers University of California-Irvine,
Anup D. Patel, MD, FAAN, FAES Panel: CHOC Children’s Hospital,
Nationwide Children’s Hospital, Anne Berg, PhD Irvine, CA
Columbus, OH Northwestern University Feinberg
School of Medicine, Chicago, IL Recognition of Past Gold
Getting from Gene to Humanism Award Recipients
Treatment and Disease-Specific Louise Bier, MS, CGC
Clinical Trials Columbia University, Presentation of 2021 Roger &
Erika Augustine, MD, MS New York, NY Mary Brumback Lifetime
Kennedy Krieger Institute, Achievement Awards
Baltimore, MD Krista Harding Robert J. Baumann, MD, FAAN,
National Multiple Sclerosis FAAP; University of Kentucky,
Society, Minneapolis, MN Lexington, KY
Adam L. Hartman, MD Sidney M. Gospe, Jr, MD, PhD
National Institute of Neurological University of Washington,
Disorders and Stroke, NIH, Seattle, WA
Rockville, MD
SESSIONS highlighted in maroon are designated for CME credit.
Agenda and amount of CME credits available are subject to change.
18 Child Neurology Society | Summer 2021
50TH ANNUAL MEETING
CNS
SEPT 29-OCT 2, 2021
BOSTON • MASSACHUSETTS
Recognition of Past Roger & Recognition of Past Laura Gilbert, DO, MBA
Mary Brumback Lifetime Phillip R. Dodge Young Washington University in
Achievement Award Recipients Investigator Award Recipients St. Louis, St. Louis Children’s
Hospital, St. Louis, MO
Recognition of Past Bernard Recognition of Past Outstanding
Sachs Award Lecturers Junior Member Award Recipients Hannah Wellman, MD
University of Colorado,
Recognition of Past Presentation of 2021 Outstanding Aurora CO
Hower Award Lecturers Junior Member Awards
Presentation of Outstanding Junior
Presentation of 2021 CNS/PECN Rhandi Christensen, MD, PhD Member Award-Post Graduate
Training Director Award Pediatric Neurology, University
Miya Asato, MD of Toronto, The Hospital for Eric M. Chin, MD
University of Pittsburgh, Sick Children, Toronto, ON Kennedy Krieger Institute,
Pittsburgh, PA Johns Hopkins University School
Darius Ebrahimi-Fakhari, MD, PhD of Medicine, Baltimore, MD
Recognition of Past Boston Children’s Hospital &
CNS/PECN Training Director Harvard Medical School, Thiviya Selvanathan, MD FRCPC
Award Recipients Boston, MA The Hospital for Sick Children,
Toronto, ON
The Hynes Convention Center
Child Neurology Society | Summer 2021 19
Wednesday, September 29 • CONTINUED
Presentation of M. Richard Treasurer Report PECN: NEUROLOGY EDUCATION
Koenigsberger Scholarship Award Karl Kuban, MD REBOOT: BEYOND THE PANDEMIC
Jennifer Keene, MD, MS, MBA Boston University Medical Center, (2 hours of CME Content)
Washington University in St Louis, Boston, MA
St Louis, MO Organizer:
Match Report Nancy Bass, MD
Presentation of Bhuwan Garg Leon Dure, MD
High School Student University of Alabama at Development and
Neuroscience Award Birmingham, Birmingham, AL Implementation of a Virtual
Meagan Ryan, Ossining, NY Learning Curriculum
CNCDP-K12 Report Jessica Goldstein, MD
Brad Schlaggar, MD, PhD Rainbow Babies & Children’s
2:00 PM – 5:00 PM Kennedy Krieger Institute, Hospital, Case Western Reserve
PROFESSORS & EDUCATORS Baltimore, MD University School of Medicine,
OF CHILD NEUROLOGY (PECN) Cleveland, OH
MEETING Updates AAP Section of
Pediatric Neurology CNS Electronic Communication
Organizer: Tim Lotze, MD Committee: Educational Tools:
Nancy Bass, MD Baylor College of Medicine, Case Studies/Pod Casts/
Rainbow Babies and Children’s Houston, TX Telemedicine Tool Kit
Hospital, Cleveland, OH David Hsieh, MD
Updates AAN Section of San Antonio, TX, USA
PECN: Business Meeting (1 hour) Child Neurology
David Mandelbaum, MD, PhD Introduction to the Neuroequity
Introduction and Agenda Brown University, Providence, RI Coalition: Transitions into a
Nancy Bass, MD Residency Curriculum
Q&A Deonna Reese-White, MD, MBA,
CNS/PCN Leadership and Dell Medical School,
Diversity Task Force Update Austin, TX
Rujuta Wilson, MD
UCLA David Geffen School of Roxanna Nahvi, MD
Medicine, Los Angeles, CA New York Medical College,
New York, NY
Virtual Interviewing Season:
Moving Forward Past the
Pandemic
Margie Ream, MD, PhD
Nationwide Children’s Hospital,
Columbus, OH
2:15 PM – 3:30 PM
SEMINAR 1:
LESSONS LEARNED FROM
ESTABLISHING AN ADULT
TRANSITION CLINIC
Organizer:
Julia Frueh, MD
Boston Children’s Hospital,
Boston, MA
20 Child Neurology Society | Summer 2021
A Roadmap to Successful 3:00 PM – 3:15 PM Neuropsychiatric Symptoms
Transition in Neurology PL1-3: Song et al and Cytokines in Pediatric
Ann Tilton, MD, FAAN, FANA Targeting USP7 as a Novel COVID-19 Patients
Children’s Hospital of New Treatment in Malignant Glioma Grace Gombolay, MD
Orleans, New Orleans, LA
3:15 PM – 3:30 PM Neurological Manifestations
Hello from the Other Side – PL1-4: Sansevere et al of COVID-19 in Critically Ill
Lessons Learned from Building Early Quantitative EEG Pediatric Patients
an Adult NDD Clinic from the Biomarkers of Cerebral Injury in Kerri LaRovere, MD
Ground Up – Discussing Pediatric Cardiac Arrest Boston Children’s Hospital,
Process and Impact Harvard Medical School,
Jessica Sanders, MD Boston, MA
Children’s Hospital Colorado, 4:00 PM – 5:00 PM
Denver, CO PLATFORM SESSION II Neuroimaging Features in
Pediatric COVID-19 Patients
Leveraging Strengths and 4:00 PM – 4:15 PM Susan Palasis, MD
Experiences – Teaching the Next PL2-1: Barks et al Ann & Robert H. Lurie
Generation of Neurologists to The ALIGN Framework: A Parent- Children’s Hospital of Chicago,
Care for Adults with IDD through informed Approach to Prognostic Northwestern University Feinberg
an Innovative Approach: Communication School of Medicine, Chicago, IL
NDD/Child Neurology
Attendings Supervised Adult 4:15 PM – 4:30 PM
Neurology Residents, while PL2-2: Selvanathan et al 6:00 PM-7:30 PM
Adult Neurology Attendings Stroke Location and Size in WELCOME RECEPTION
Supervised Child Neurology/ Infants with Congenital Heart
NDD Trainees in a Collaborative Disease and Neurodevelopmental Financial support provided by
Adult NDD Clinic Outcomes 2021 Local Host, the Department
David K. Urion, MD, FAAN of Neurology, Boston Children’s
Boston Children’s Hospital, 4:30 PM – 4:45 PM Hospital
Boston, MA PL2-3: Christensen et al
Cerebral Sinovenous Thrombosis
in Preterm Infants 8:00 PM-10:00 PM
2:30 PM – 3:30 PM MOVEMENT DISORDERS SIG
PLATFORM SESSION 1 4:45 PM – 5:00 PM
PL2-4: Cornet et al
2:30 PM – 2:45 PM Neonatal Encephalopathy
PL1-1: Bruckert et al following SSRI Exposure in the
White Matter Properties of the Third Trimester of Pregnancy:
Optic Pathway in Children with A Population-based Study
Neurofibromatosis Type 1 with
and without Optic Pathway
Gliomas 4:00 PM – 5:15 PM
SEMINAR 2: UPDATES IN
2:45 PM – 3:00 PM PEDIATRIC COVID-19 FOR THE
PL1-2: Garcia et al PEDIATRIC NEUROLOGIST
Clinical, Pathological, and
Molecular Characteristics of Organizer:
Diffuse Spinal Cord Gliomas Grace Gombolay, MD
Emory University, Children’s
Healthcare of Atlanta, Atlanta, GA
SESSIONS highlighted in maroon are designated for CME credit.
Agenda and amount of CME credits available are subject to change.
Child Neurology Society | Summer 2021 21
Thursday, September 30
7:00 AM – 8:00 AM PLATFORM SESSION IV 7:30 AM – 7:45 AM
PLATFORM SESSION III, IV & V PL5-3: Numis et al
7:00 AM – 7:15 AM Inflammatory Cytokine Levels are
PLATFORM SESSION III PL4-1: Wellman et al Associated with Non-response
Multicenter Study of The Impact and Relapse of Infantile Spasms
7:00 AM – 7:15 AM of Infections Including COVID-19
PL3-1: Ebrahimi-Fakhari et al on the Incidence of Acute 7:45 AM – 8:00 AM
Systematic Analysis of Brain Inflammatory Demyelinating PL5-4: Ciliberto et al
MRI Findings in Adaptor Polyneuropathy in Children Palliative Epilepsy Surgery is
Protein Complex 4 – associated not a Last Resort: Data from
Hereditary Spastic Paraplegia 7:15 AM – 7:30 AM the Pediatric Epilepsy Research
Reveals Patterns for Diagnosis PL4-2: Mallack et al Consortium (PERC) Surgical
and Disease Progression Early Natural History of Database
Presymptomatic Childhood
7:15 AM – 7:30 AM Cerebral Adrenoleukodystrophy
PL3-2: Deisseroth et al WELCOME & GENERAL SESSION
Integrated Phenotypic and 7:30 AM – 7:45 AM
Mutational Approach Defines PL4-3: Eichler et al 8:30 AM – 11:45 AM
EBF3-related HADD Syndrome Outcomes in 51 Patients with SYMPOSIUM II:
Genotype-phenotype Cerebral ALD from 2 Studies of PRESIDENTIAL SYMPOSIUM:
Relationships Elivaldogene Autotemcel (eli-cel; THE CNS AT 50!
Lenti-D) Gene Therapy PAST, PRESENT, AND FUTURE
7:30 AM – 7:45 AM
PL3-3: Rouabhi et al 7:45 AM – 8:00 AM Organizer:
Initial pH and Eventual Cerebral PL4-4: Bonkowsky et al Phillip Pearl MD
Palsy Status and Phenotype: A Vitamin D Status & Latitude President, CNS
Case-Control Study Predict Brain Lesions in Harvard Medical School and
Adrenoleukodystrophy Berklee Institute of Music,
7:45 AM – 8:00 AM Boston, MA
PL3-4: Gilbert L PLATFORM SESSION V
Top 10 Areas of Research Historical Development of
Need for People with Cerebral 7:00 AM – 7:15 AM Child Neurology
Palsy and Dystonia: A Novel PL5-1: Klein et al Stephen Ashwal MD
Community-driven Agenda Characterizing Pediatric Small- Loma Linda University School of
Fiber Neuropathy to Develop a Medicine, Loma Linda, CA
Case Definition
CNS State of the Union
7:15 AM – 7:30 AM Phillip Pearl MD
PL5-2: Baumer et al President, CNS
Disparities in Receipt of Standard
Treatment for Infantile Spasms:
A Call to Action
SESSIONS highlighted in maroon are designated for CME credit.
Agenda and amount of CME credits available are subject to change.
22 Child Neurology Society | Summer 2021
50TH ANNUAL MEETING
CNS
SEPT 29-OCT 2, 2021
BOSTON • MASSACHUSETTS
The Future: Young Investigators Studies in Epilepsy Genetics From Pellock Fellow to Pellock
SIG Representatives: Christopher J. Yuskaitis, MD, PhD Faculty, Studies in Epilepsy
Studies in Developmental Boston Children’s Hospital and Giulia Benedetti, MD
Cognitive Neuroscience Harvard Medical School, Seattle Children’s Hospital,
Alexander Li Cohen, MD, PhD Boston, MA University of Washington,
Boston Children’s Hospital, Seattle, WA
Boston, MA Studies in Neuro-oncology
Verena Staedtke, MD, PhD
Studies in Movement Disorders Johns Hopkins University
Darius Ebrahimi-Fakhari, MD, PhD School of Medicine,
Boston Children’s Hospital, Baltimore, MD
Harvard Medical School,
Boston, MA
Child Neurology Society | Summer 2021 23Thursday, September 30 • CONTINUED
Round Table: 11:45 AM - 6:30 PM Practical Implications and
Future Directions in Cerebral EXHIBITS & POSTERS Considerations after
Palsy and Child Neurology Exhibit Hall State-wide Initiation of
Lunch served (12:00-1:00 PM) SMA Newborn Screening
Moderator: Wine & Cheese (5:00-6:30 PM) Erin E. Neil, DO
Bhooma Aravamuthan, MD, DPhil
Washington University in The Clock is Ticking:
St. Louis School of Medicine, 12:00 PM – 12:30 PM Challenges in the Timely
St. Louis, MO CNS BUSINESS MEETING Choice of Treatment and
Implementation in the Pre-
Panel: Symptomatic Patient with SMA
Young-Min Kim, MD 1:00 PM – 2:15 PM Richard Finkel, MD
Loma Linda University, SEMINAR 3: St. Jude Children’s Research
Loma Linda, CA THE BRAVE NEW WORLD OF Hospital, Memphis, TN
PEDIATRIC SPINAL MUSCULAR
Michael Lopez, MD, PhD ATROPHY – IMPLICATIONS OF Ethical Considerations for
University of Alabama at NEWBORN SCREENING AND High-cost, Complex-to-
Birmingham, Birmingham, AL EFFECTIVE TREATMENT Administer Treatments in
Medically Fragile Patients
Anusha Yeshokumar, MD Organizer: Jim Dowling, MD, PhD
Icahn School of Medicine at Erin E. Neil, DO Hospital for Sick Children,
Mount Sinai, Bristol Myers Squibb, University of Michigan, Toronto, Ontario, Canada
New York, NY C.S. Mott Children’s Hospital,
Ann Arbor, MI
The famous Back Bay Neighborhood.
24 Child Neurology Society | Summer 20211:00 PM – 2:15 PM 3:15 PM – 5:30 PM 4:00 PM – 5:15 PM
SEMINAR 4: SYMPOSIUM III: SEMINAR 5:
NEUROLOGIC IMPLICATIONS NEUROLOGICAL MANIFESTATIONS CP TO YOU IS NOT CP TO ME –
OF YOUTH SPORTS AND LONG-TERM SEQUELA OF STRATEGIES FOR MITIGATING
PARTICIPATION PEDIATRIC COVID-19 INFECTIONS PRACTICE VARIABILITY IN
CEREBRAL PALSY CARE
Organizer: Organizer:
Sean Rose, MD Laura A. Malone, MD, PhD Organizer:
Nationwide Children’s Hospital, Kennedy Krieger Institute, Bhooma Aravamuthan, MD, DPhil
Ohio State University College of Baltimore, MD Washington University in St. Louis
Medicine, Columbus, OH School of Medicine, St. Louis, MO
Introduction and Example
Youth Sports for the Child Case Presentations The Past: Historical Origins of
Neurologist: Benefits of Laura A. Malone, MD, PhD Variability in CP Care
Sports Participation and Young-Min Kim, MD
Health Disparities Neurological Symptoms in Loma Linda University,
Meeryo Choe, MD Children with PIMS-TS: Initial Loma Linda, CA
UCLA Mattel Children’s Hospital, Presentation and Follow-up
UCLA David Geffen School of (Presented with pre-recorded The Present: Current Sources
Medicine, Los Angeles, CA talk and live Q&A) of Variability in CP Diagnosis
Yael Hacohen, MD, PhD and Management
Concussion and Repetitive Head University College London, Bhooma Aravamuthan, MD, DPhil
Impacts in Youth Contact Sports London, UK
Sean Rose, MD The Future: Suggestions for
Neurological Manifestations Enhancing Cerebral Palsy
Long-term Neurologic of COVID-19 Related Illness in Education During Residency
Effects of Contact Sports and Hospitalized Children and Beyond
Repetitive Head Impacts Ericka L. Fink, MD, MS Jenny Wilson, MD
Jaclyn B. Caccese, PhD UPMC Children’s Hospital of Oregon Health & Science
The Ohio State University College Pittsburgh, Pittsburgh, PA University, Portland, OR
of Medicine, Columbus, OH
Neuropsychiatric Presentation
in Pediatric COVID-19 Patients 5:00 PM – 6:30 PM
2:45 PM-3:15 PM Associated with Anti-neural EXHIBITS & POSTERS REVIEW
MARTHA BRIDGE DENCKLA Autoantibodies (Wine & Cheese)
AWARD LECTURE: DISEASE Samuel Pleasure, MD, PhD
TARGETED TREATMENT UCSF, San Francisco, CA
TRANSLATION IN FRAGILE
X SYNDROME AND Claire Johns, MD
NEURODEVELOPMENTAL University of California San
DISABILITIES: THE FIRST CHAPTER Francisco, San Francisco, CA
Elizabeth Berry-Kravis, MD, PhD
Rush University Medical Center,
Chicago, IL
SESSIONS highlighted in maroon are designated for CME credit.
Agenda and amount of CME credits available are subject to change.
Child Neurology Society | Summer 2021 25Friday, October 1
7:00 AM – 8:00 AM 9:00 AM – 9:45 AM Recently Funded
EXHIBITS & POSTER REVIEW BERNARD SACHS AWARD CNCDP Scholars
(Continental Breakfast served) LECTURE: GENE THERAPY
CHANGING THE OUTCOMES Translating Diagnostic
FOR CHILDREN WITH Techniques Across Species to
7:00 AM – 8:00 AM NEUROMUSCULAR DISEASE Better Understand Dystonia in
2021 CNS ARNOLD P. GOLD Cerebral Palsy
HUMANISM IN MEDICINE Jerry Mendell, MD Bhooma Aravamuthan, MD, PhD;
BREAKFAST Nationwide Children’s Hospital, MD, DPhil; Washington University
Columbus, OH in St. Louis, St. Louis, MO
Supported by a grant from the
Arnold P. Gold Foundation Turning Classical Lesion
9:45 AM – 12:00 PM Localization on its Head:
SYMPOSIUM IV: How Lesion Location can
AWARD PRESENTATIONS & PROGRESS IN CHILD NEUROLOGY be Used to Predict Patient
GENERAL SESSION THROUGH THE LENS OF AN Outcomes
NINDS CAREER DEVELOPMENT Aaron Boes, MD, PhD
PROGRAM: CNCDP, PAST University of Iowa, Iowa City, IA
8:15 AM – 8:30 AM PRESENT AND FUTURE
CHILD NEUROLOGY FOUNDATION Decision Making for Infants
SCIENTIFIC GRANT & AWARD Organizer: with Neurologic Conditions
ANNOUNCEMENTS Brad Schlaggar, MD, PhD Monica Lemmon, MD
Kennedy Krieger Institute, Duke University School of
8:30 AM – 9:00 AM Baltimore, MD Medicine, Durham, NC
PHILIP R. DODGE YOUNG
INVESTIGATOR AWARD LECTURE: NSADA and CNCDP: Optimizing Cognitive and
COMMUNICATING NEUROLOGIC Past Present and Future Functional Outcomes Across
PROGNOSIS: CHALLENGES AND Brad Schlaggar, MD, PhD Populations: Insights from the
OPPORTUNITIES Kennedy Krieger Institute, Neural Mechanisms of Exercise
Baltimore, MD Autumn Ivy, MD, PhD
Monica Lemmon, MD University of California – Irvine
Duke University School of Medicine, Working Towards Inclusion in School of Medicine, Irvine, CA
Durham, NC Child Neurology Research
Erika Augustine, MD, MS Wrap up
Kennedy Krieger Institute, Brad Schlaggar, MD, PhD
Baltimore, MD
From NSADA to the International
Pediatric Stroke Organization
Heather J. Fullerton, MD, MAS
UCSF Benioff Children’s Hospital,
San Francisco, CA
SESSIONS highlighted in maroon are designated for CME credit.
Agenda and amount of CME credits available are subject to change.
26 Child Neurology Society | Summer 202150TH ANNUAL MEETING
CNS
SEPT 29-OCT 2, 2021
BOSTON • MASSACHUSETTS
12:30 PM – 1:45 PM Neuroscience of Consciousness Alterations of Neuronal
SEMINAR 6: and Implications for Dynamics as a Mechanism for
MEDULLOBLASTOMA, NEW Neuroprotection Cognitive Impairment in Epilepsy
CLINICAL AND TRANSLATIONAL Mark Wainwright, MD, PhD Pierre-Pascal Lenck-Santini, PhD,
INSIGHTS: THE PATH FORWARD INMED, Aix Marseille Université,
Causes of Altered Consciousness INSERM, Marseille, France
Organizer: and Impact on Outcome
Roger J. Packer, MD Jessica Carpenter, MD Enduring Memory Deficits after
Children’s National Hospital, Children’s National Hospital, Early-Life Adversity: Epigenetics,
Washington, DC Washington, DC Imaging and Intervention
Tallie Z. Baram, MD, PhD
Molecular Underpinnings of Functional Neuroimaging and University of California Irvine,
Medulloblastoma: Stratification the Diagnostic Assessment of Irvine, CA
and Clinical Implications Disorders of Consciousness
Paul A. Northcott, PhD Varina Boerwinkle, MD
St. Jude Children’s Research Barrow Neurological Institute 2:15 PM – 4:30 PM
Hospital, Memphis, TN at Phoenix Children’s Hospital, SYMPOSIUM V:
Phoenix, AZ DEVELOPING TREATMENTS FOR
Intrathecal Therapies for PEDIATRIC EPILEPSIES: FROM
Medulloblastoma and Other Ethical Implications of MODELS TO THE CLINIC
Embryonal Tumors: Use of the Pediatric Definition of
Radiolabeled Monoclonal Consciousness Organizer:
Therapies Leon G. Epstein, MD Solomon Moshé, MD
Kim Kramer, MD Northwestern University Albert Einstein College of Medicine,
Memorial Sloan Kettering Cancer Feinberg School of Medicine, Bronx, NY
Center, New York, NY Chicago, IL
Treating Epilepsies with
Results of Recently Genetic Etiology: The Tuberous
Completed Clinical Trials 12:30 PM – 1:45 PM Sclerosis Example
for Medulloblastoma and SEMINAR 8: Michael Wong, MD, PhD
Implications for Future Studies THE CRITICAL PERIOD OF Washington University in
Roger J. Packer, MD MEMORY DEVELOPMENT: St. Louis, St. Louis, MO
CONSTRUCTION, DESTRUCTION
AND RECONSTRUCTION Somatic Mutations in
12:30 PM – 1:45 PM Epilepsies with Cortical
SEMINAR 7: Organizer: Malformations and Implications
DISORDERS OF CONSCIOUSNESS Gregory L. Holmes, MD for Targeted Therapies
IN CRITICALLY ILL CHILDREN: University of Vermont Larner Annapurna Poduri, MD, MPH
CURING COMA FOR THE College of Medicine, Burlington, VT Boston Children’s Hospital,
DEVELOPING BRAIN Harvard Medical School,
Role of Hippocampal Oscillations Boston, MA
Organizer: During the Critical Period of
Mark Wainwright, MD, PhD Memory Development
University of Washington School Gregory L. Holmes, MD
of Medicine, Seattle, WA
Child Neurology Society | Summer 2021 27Friday, October 1 • CONTINUED
Towards a Syndrome-specific Challenges & Opportunities 5:00 PM – 6:15 PM
Preclinical Epilepsy Therapy for Trainees with Caregiver SEMINAR 9:
Screening Pipeline for Infantile Responsibilities NEURO-HUMANITIES:
Spasms: Current State and Yasmin Khakoo, MD NEUROLOGISTS AND NEUROLOGY
Future Perspectives MSK Kids, Memorial Sloan IN ART, COMEDY, POETRY, AND
Aristea S. Galanopoulou, MD, PhD Kettering Cancer Center, MUSIC (WINE & CHEESE)
Albert Einstein College of New York, NY
Medicine, Bronx, NY Organizer:
Challenges & Opportunities Phillip Pearl MD
The Future of Pediatric for Clinicians with Caregiver Harvard Medical School and
Epilepsy Therapy Development: Responsibilities Berklee Institute of Music,
Biomarkers, Precision Medicine Brenda Banwell, MD Boston, MA
and Novel Trial Designs Children’s Hospital of
Adam L. Hartman, MD Philadelphia, Philadelphia, PA Comedy in Neurology,
National Institute of Neurological and Vice Versa
Disorders and Stroke, NIH, Challenges & Opportunities Joseph D. Pinter, MD
Rockville, MD for Scientists with Caregiver Oregon Health & Science
Responsibilities University, Portland, OR
Nina F. Schor, MD, PhD
2:15 PM – 4:30 PM National Institute of Neurological Neurological Symptoms
SYMPOSIUM VI: Disorders and Stroke, Expressed in Art
THE TINY ELEPHANT IN THE Bethesda, MD Carl E. Stafstrom, MD, PhD
ZOOM ROOM: HARNESSING A The Johns Hopkins University
CRISIS TO RECOVER, MAINTAIN Q&A School of Medicine, Baltimore,
AND ENHANCE CAREER Panelists: MD
DEVELOPMENT IN CHILD Erika Augustine, MD, MS
NEUROLOGY Kennedy Krieger Institute, Neurologist as Poet and
Baltimore, MD Neurology in Poetry
Organizer: Nina F. Schor, MD, PhD
Keith Van Haren, MD Audrey C. Brumback, MD, PhD National Institute of Neurological
Stanford University School of Dell Medical School, The Disorders and Stroke,
Medicine, Palo Alto, CA University of Texas at Austin, Bethesda, MD
Austin, TX
Data Talk on How COVID has Neurological Problems of
Pulled Back the Curtain on Juliet K. Knowles, MD, PhD Musical Masters
Longstanding Challenges Stanford University School of Phillip Pearl MD
& Disparities in Caregiver Medicine, Palo Alto, CA
Responsibilities
Keith Van Haren, MD Bradley Schlaggar, MD, PhD 7:00 PM – 9:00 PM
Kennedy Krieger Institute, GALA RECEPTION
Baltimore, MD
SESSIONS highlighted in maroon are designated for CME credit.
Agenda and amount of CME credits available are subject to change.
28 Child Neurology Society | Summer 202150TH ANNUAL MEETING
CNS
Saturday, October 2 SEPT 29-OCT 2, 2021
BOSTON • MASSACHUSETTS
8:45 AM-9:30 AM Base Editing and Prime Editing: Welcome
HOWER AWARD LECTURE: Precision Gene Editing without Ariel Maia Lyons-Warren, MD, PhD
MENTORS AND PROTEGES: Double-strand DNA Breaks
STANDING ON THE SHOULDERS David Liu, PhD The Importance of Clinical
OF GIANTS AND FOLLOWING Broad Institute of MIT and Research and How to Get
FOOTSTEPS INTO THE FUTURE Harvard; Cambridge, MA Involved
Adam L. Hartman, MD
Supported by a grant from the Individualized Therapies for National Institute of Neurological
Hower Family Foundation Orphan Neurogenetic Diseases Disorders and Stroke, NIH,
Tim Yu, MD, PhD Rockville, MD
Jonathan W. Mink, MD, PhD Boston Children’s Hospital,
University of Rochester, Boston, MA Identifying Current Gaps
Rochester, NY in Research
Clinical Trials for Renée A. Shellhaas, MD, MS
Gene-directed Therapies Michigan Medicine, Ann Arbor, MI
9:45 AM – 12:00 PM Erika Augustine, MD, MS
SYMPOSIUM VII: Kennedy Krieger Institute, Breakout Session
ARE WE POISED FOR A Baltimore, MD
THERAPEUTIC REVOLUTION IN Coffee Break
CHILD NEUROLOGY? Summary and Looking
to the Future Protected Time: How to
Organizer: Louis T. Dang, MD, PhD Break the Catch 22 Cycle
Louis T. Dang, MD, PhD Kristin P. Guilliams MD, MSCI
Michigan Medicine, Washington University School
Ann Arbor, MI 1:00 PM – 4:00 PM of Medicine, St. Louis, MO
CNS CLINICAL RESEARCH
Co-Organizer: ANNUAL WORKSHOP: How to Design Clinic-Based
Renée A. Shellhaas, MD, MS 2021 – PEDIATRIC NEUROLOGY Enrollment Studies
Michigan Medicine, CLINICAL TRIALS – Shafali Jeste, MD, FAAN
Ann Arbor, MI INTRODUCTION TO THE SERIES Children’s Hospital Los Angeles,
University of Southern California,
Introduction Organizer: Los Angeles, CA
Renée A. Shellhaas, MD, MS Ariel Maia Lyons-Warren, MD, PhD
Michigan Medicine, Baylor College of Medicine, Approaches to Funding:
Ann Arbor, MI Houston, TX Beyond the NIH
Erika Augustine, MD, MS
Epigenetics and Brain Plasticity: Co-Organizers: Kennedy Krieger Institute,
Lessons from Rett Syndrome and Gabrielle deVeber MD, FRCP(C) Baltimore, MD
other MECP2 Disorders University of Toronto,
Huda Y. Zoghbi, MD Hospital for Sick Children, Panel Discussion
Howard Hughes Medical Institute, Toronto, Ontario, CA
Baylor College of Medicine, Q&A
Houston, TX Josh Bonkowsky, MD, PhD
University of Utah School of
Medicine, Primary Children’s
Hospital, Salt Lake City, Utah
Child Neurology Society | Summer 2021 29Saturday, October 2 • CONTINUED
1:00 PM – 4:00 PM Shortcuts to Better Papers Rules of the Road: Permissions,
BIOMEDICAL WRITING Consents, and Other Potholes
WORKSHOP Keeping Things Moving:
Combating Writer’s Block Meet the Editors Q & A
Organizer and presenter:
E. Steve Roach, MD Break
University of Texas Dell Medical
School, Austin, TX Responding to Reviews and
Revising your Manuscript
Introduction: Why Manuscripts
are Rejected
SESSIONS highlighted in maroon are designated for CME credit.
Agenda and amount of CME credits available are subject to change.
The ship USS Constitution at the end of Boston’s Freedom
Trail as part of museum at the Boston National Historical Park.
30 Child Neurology Society | Winter/Spring 2021Travel and Hotel Information
All CNS
Annual Meeting
registration on-line
beginning mid-July.
Hotel reservation link HOTEL TRAVEL
provided with paid ACCOMMODATIONS INFORMATION
registration.
ON-LINE BOOKING FOR Contact Travel Leaders at 763-231-8876
CNS ANNUAL MEETING to take advantage of the many ways
BEGINNING MID-JULY to save on meeting airfare by booking
60 days in advance (or more).
The CNS has reserved a block of rooms
The travel professionals at Travel Leaders
at the Sheraton Boston Hotel. A direct
will find the very best combination of
link to group rate reservations is available
price and schedule to suit your specific
upon completion of paid meeting
needs.
registration.
• Room Rates: Begin at $299 Travel Leaders
(plus taxes) T: 763-231-8876
E: kristine@tvlleaders.com
• Link sent upon completion of
paid registration
Hotel registration must be handled
directly with the Sheraton Boston Hotel.
Child Neurology Society | Summer 2021 312021 CNS Annual Meeting Registration This is NOT a
registration form to
fill out and return.
ALL registrations will be
on-line with link posted
on CNS website and
sent to members via
EARLY REGISTRATION: MID-JULY – AUGUST 31 eConnections.
Clinical Book Book
Investigator Humanism Legacy Pickup Shipped
On Site Virtual Boot Camp CNF Fee Breakfast Luncheon On site To You eBook TOTAL
Capacity: 80 Capacity: 100 Capacity: 600
Active Member $650 $650 $50 $50 $50 $50 $100 $125 $100
Emeritus $250 $250 $25 $25 $25 $100 $125 $100
Junior $250 $250 $50 $25 $25 $25 $100 $125 $100
Resident/Trainee $350 $350 $50 $50 $50 $100 $125 $100
(Non-CNS Member)
Medical Student $50 $50 $25 $25 $25 $100 $125 $100
(CNS Member)
Medical Student $150 $150 $50 $50 $50 $100 $125 $100
(Non-CNS Member)
ACNN Member $250 $150 $25 $25 $25 $100 $125 $100
(Nurse)
Nurse $350 $350 $50 $50 $50 $100 $125 $100
(Non-ACNN Member)
Non-CNS Member $850 $850 $75 $75 $75 $100 $125 $100
Non-CNS Member $650 $650 $50 $50 $75 $100 $125 $100
(ABPN Board Certified)
Program $250
Coordinator
Program
Guest Fee $100
REGISTRATION CANCELLATIONS AND REFUNDS SPECIAL NEEDS
ALL registrations will be Registration may be cancelled with the following fees and penalties: We are committed to
on-line with link posted on • All cancellations must be made in writing, via email and sent to registration@ making this CME activity
CNS website and sent to childneurologysociety.org. accessible to all individuals.
members via eConnections. • Cancellations received on or before September 1, 2021 are eligible for a full refund If you need auxiliary
less $75 administrative fee. Cancellations received after September 1, 2021 are not aid(s) or service(s) as
eligible for a refund. identified in the American
REGISTRATION
• You can change your registration from the All Access/Live registration to with Disabilities Act, or
CONFIRMATION the Virtual Only option at no additional charge. Please contact registration@ have a dietary restriction,
• E-mail confirmation only childneurologysociety.org. please describe your
(include address) • In the event the CNS must cancel the live meeting due to unforeseen needs when registering
• Hotel registration and circumstances, CNS will automatically enroll all registration to a Virtual option on-line. Most requests
confirmation must be or give the registrant the option of a full refund within 10 business days after the can be accommodated if
handled independently meeting cancellation. In the event of cancellation of any portion, or entire event, notification is received by
with the meeting hotel. CNS does not assume responsibility for any additional costs, charges, or expenses; August 31.
to include, charges made for travel and lodging.
32 Child Neurology Society | Summer 2021This is NOT a
registration form to
fill out and return.
ALL registrations will be
on-line with link posted
on CNS website and
sent to members via
REGULAR REGISTRATION: SEPTEMBER 1 - OCTOBER 3 eConnections.
Clinical Book Book
Investigator Humanism Legacy Pickup Shipped
On Site Virtual Boot Camp CNF Fee Breakfast Luncheon On site To You eBook TOTAL
Capacity: 80 Capacity: 100 Capacity: 600
Active Member $750 $750 $100 $100 $100 $100 $100 $125 $100
Emeritus $350 $350 $50 $50 $50 $100 $125 $100
Junior $350 $350 $100 $50 $50 $50 $100 $125 $100
Resident/Trainee $450 $450 $50 $50 $50 $100 $125 $100
(Non-CNS Member)
Medical Student $150 $150 $50 $50 $50 $100 $125 $100
(CNS Member)
Medical Student $250 $250 $100 $100 $100 $100 $125 $100
(Non-CNS Member)
ACNN Member $350 $250 $50 $50 $50 $100 $125 $100
(Nurse)
Nurse $450 $450 $100 $100 $100 $100 $125 $100
(Non-ACNN Member)
Non-CNS Member $950 $950 $100 $100 $150 $100 $125 $100
Non-CNS Member $750 $750 $100 $100 $150 $100 $125 $100
(ABPN Board Certified)
Program $350
Coordinator
Program
Guest Fee $150
REGISTRATION CANCELLATIONS AND REFUNDS SPECIAL NEEDS
ALL registrations will be Registration may be cancelled with the following fees and penalties: We are committed to
on-line with link posted on • All cancellations must be made in writing, via email and sent to registration@ making this CME activity
CNS website and sent to childneurologysociety.org. accessible to all individuals.
members via eConnections. • Cancellations received on or before September 1, 2021 are eligible for a full refund If you need auxiliary
less $75 administrative fee. Cancellations received after September 1, 2021 are not aid(s) or service(s) as
eligible for a refund. identified in the American
REGISTRATION
• You can change your registration from the All Access/Live registration to with Disabilities Act, or
CONFIRMATION the Virtual Only option at no additional charge. Please contact registration@ have a dietary restriction,
• E-mail confirmation only childneurologysociety.org. please describe your
(include address) • In the event the CNS must cancel the live meeting due to unforeseen needs when registering
• Hotel registration and circumstances, CNS will automatically enroll all registration to a Virtual option on-line. Most requests
confirmation must be or give the registrant the option of a full refund within 10 business days after the can be accommodated if
handled independently meeting cancellation. In the event of cancellation of any portion, or entire event, notification is received by
with the meeting hotel. CNS does not assume responsibility for any additional costs, charges, or expenses; August 31.
to include, charges made for travel and lodging.
Child Neurology Society | Summer 2021 33You can also read
