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Canadian Oncology Nursing Journal Revue canadienne de soins infirmiers en oncologie Winter/Hiver 2012 ISSN: 1181-912X Volume 22, No. 1 PM#: 40032385 The official publication of the Canadian Association of Nurses in Oncology La publication officielle de l’Association canadienne des infirmières en oncologie
Canadian Oncology Nursing Journal
Revue canadienne de soins infirmiers en oncologie
Winter/Hiver 2012
Volume 22, No. 1
Table of Contents/Table des matières
1 Editorial
1 Éditorial
4 A tribute to Beverley Page
5 Hommage à Beverley Page
Articles
12 Special feature: Screening for distress: Responding is a critical function for oncology nurses
Margaret I. Fitch, Doris Howell, Deborah McLeod and Esther Green
21 Chronique spécialisée : Dépistage de la détresse : l’intervention est
une fonction essentielle des infirmières en oncologie
Margaret I. Fitch, Doris Howell, Deborah McLeod et Esther Green
31 Mentoring advanced practice nurses in research: Recommendations from a pilot program
Doris Leung, Kimberley Widger, Doris Howell, Sioban Nelson and Alex Molassiotis
36 Mentorer les infirmières en pratique avancée dans le domaine de la recherche :
recommandations issues d’un programme pilote
Doris Leung, Kimberley Widger, Doris Howell, Sioban Nelson et Alex Molassiotis
42 The Fatigue Pictogram: Assessing the psychometrics of a new screening tool
Margaret I. Fitch, Terry Bunston and Deborah Mings
47 Le pictogramme de la fatigue : évaluer les données psychométriques d’un nouvel outil de dépistage
Margaret I. Fitch, Terry Bunston et Deborah Mings
53 2011 Helene Hudson Lectureship: Lived experiences of nurses as family caregivers in advanced cancer
Lisa Cicchelli and Deborah McLeod
57 Prix de conférence à la mémoire de Helene Hudson 2011 : Expériences vécues d’infirmières
œuvrant à titre de soignantes auprès d’un de leurs proches atteint de cancer avancé
Lisa Cicchelli et Deborah McLeod
Communiqué Features/Rubriques
64 CANO Chapters’ corner 6 Reflections on research
66 Le coin des sections de l’ACIO 9 Réflexions sur la recherche
68 Report from the Director-at-Large—Membership 70 Life Lessons
68 Rapport de la conseillère générale— 71 Life Lessons [Leçons de vie]
Services aux membres 78 Guidelines for authors
A publication of the Canadian Association of Nurses in Oncology—Une publication de l’Association canadienne des infirmières en oncologie
PUBLICATIONS MAIL AGREEMENT NO. 40032385. RETURN UNDELIVERABLE CANADIAN ADDRESSES TO:
Canadian Association of Nurses in Oncology, 375 West 5th Avenue, Suite 201, Vancouver, BC, V5Y 1J6, E-mail: cano@malachite-mgmt.com
Canadian Oncology Nursing Journal
Revue canadienne de soins infirmiers en oncologie
Winter/Hiver 2012
Volume 22, No. 1
Canadian Oncology Nursing Journal/Revue canadienne de soins infirmiers en oncologie is a refereed journal.
Editor-in-Chief Heather Porter, BScN, PhD, 14-54 Blue Springs Drive, Waterloo, ON N2J 4M4
telephone (519) 886-8590, fax (519) 886-9329, e-mail: hbporter@rogers.com
Associate Editors Rosemary Cashman, MA, MSc(A), NP(A)—books, media Dauna Crooks, RN, DNSc—research
Jeanne Robertson, RN, B.Arts, BScN, MBA—French materials Pat Sevean, RN, BScN, EdD—features
Sharon Thomson, RN, MSc, BA. MS—manuscript review
Reviewers Nicole Allard, inf., MSN, PhD, Bilingual, Maxine Alford, RN, PhD, Karine Bilodeau, inf., PhD(C), French, Janice Chobanuk, RN, BScN, MN, CON(C),
Joanne Crawford, RN, BScN, CON(C), MScN, PhD(c), Jean François Desbiens, inf., PhD, French, Sylvie Dubois, inf., PhD, Bilingual,
Corsita Garraway, EN(EC), MScN, CON(C), CHPHN(C), Vicki Greenslade, RN, PhD, Virginia Lee, RN, BA, MSC(A), PhD, Bilingual,
Manon Lemonde, RN, PhD, Bilingual, Michelle Lobchuk, RN, PhD, Susan Ord-Lawson, RN, MSc, CON(C),
Erin O’Shaughnessy, RN, MScN, Bilingual, Beth Perry, RN, PhD, Sharon Pippy, RN, BScN, MN, Joanne Power, RN, BScN, MScN,
Brenda Sabo, RN, PhD, Jennifer Stephens, RN, BSN, MA, OCN, Pamela West, RN, MSc, ACNP, CON(C), CHPCN(C), Patsy Yates, RN, PhD
Managing Editor Heather Coughlin, 613-735-0952, fax 613-735-7983, e-mail: heather@pappin.com
Production The Canadian Oncology Nursing Journal is produced in conjunction with Pappin Communications, The Victoria Centre,
84 Isabella Street, Pembroke, Ontario K8A 5S5, 613-735-0952, fax 613-735-7983, e-mail heather@pappin.com, and
Vice Versa Translation, 144 Werra Rd., Victoria, British Columbia V9B 1N4, 250-479-9969, e-mail: hmigeon@shaw.ca.
Statement The Canadian Oncology Nursing Journal is the official publication of the Canadian Association of Nurses in Oncology, and is
of purpose directed to the professional nurse caring for patients with cancer. The journal supports the philosophy of the national association.
The philosophy is: “The purpose of this journal is to communicate with the members of the Association. This journal currently acts as
a vehicle for news related to clinical oncology practice, technology, education and research. This journal aims to publish timely papers,
to promote the image of the nurse involved in cancer care, to stimulate nursing issues in oncology nursing, and to encourage nurses to
publish in national media.” In addition, the journal serves as a newsletter conveying information related to the Canadian Association
of Nurses in Oncology, it intends to keep Canadian oncology nurses current in the activities of their national association. Recognizing
the value of nursing literature, the editorial board will collaborate with editorial boards of other journals and indexes to increase the
quality and accessibility of nursing literature.
Indexing The Canadian Oncology Nursing Journal/Revue canadienne de soins infirmiers en oncologie is registered with the National Library
of Canada, ISSN 1181-912X, and is indexed in the Cumulative Index to Nursing and Allied Health Literature, (CINAHL), the
International Nursing Index and Medline.
Membership All nurses with active Canadian registration are eligible for membership in CANO. Contact the CANO national office. Refer to the
Communiqué section for name and contact information of provincial representatives.
Subscriptions The journal is published quarterly in February, May, August and November. All CANO members receive the journal. For
non-members, yearly subscription rates are $119.77 (HST included) for individuals, and $131.88 (HST included) for institutions.
International subscriptions are $156.11 (HST included). Payment must accompany all orders and is not refundable. Make cheques
payable to CANO-CONJ and send to the CANO national office. Notices and queries about missed issues should also be sent to the
CANO national office. Canadian Association of Nurses in Oncology, 375 West 5th Avenue, Suite 201, Vancouver, BC V5Y 1J6,
www.cano-acio.ca; telephone: 604-874-4322; fax: 604-874-4378; email: cano@malachite-mgmt.com
Author Guidelines for authors are usually included in each issue. All submissions are welcome. At least one author should be a
Information registered nurse, however, the editor has final discretion on suitability for inclusion. Author(s) are responsible for acknowledging all
sources of funding and/or information.
Language Policy/ The Canadian Oncology Nursing Journal is officially a bilingual publication. All journal content submitted and reviewed by the editors
Politique will be printed in both official languages. La Revue canadienne de soins infirmiers en oncologie est une publication officiellement
linguistique bilingue. Le contenu proprement dit de la Revue qui est soumis et fait l’objet d’une évaluation par les rédactrices est publié dans les
deux langues officielles.
Advertising For general advertising information and rates, contact Heather Coughlin, Advertising Manager, Pappin Communications, 84 Isabella St.,
Pembroke, Ontario K8A 5S5, 613-735-0952, fax 613-735-7983, e-mail heather@pappin.com. All advertising correspondence and
material should be sent to Pappin Communications. On-line rate card available at: www.pappin.com
Opinions expressed in articles published are those of the author(s), and do not necessarily reflect the view of the Canadian Association of Nurses in Oncology or
the editorial board of the Canadian Oncology Nursing Journal. Acceptance of advertising does not imply endorsement by CANO or the editorial board of CONJ.
All rights reserved. The law prohibits reproduction of any portion of this journal without permission of the editor.
CONJ • RCSIO Winter/Hiver 2012
Editorial
When I decided to Editor-in-Chief (1989–2000) of the CONJ. We Nova Scotia, and also a new Vice-President,
write about change for all still use the systems she set up for the Barbara Fitzgerald, from Toronto, Ontario.
this issue I didn’t know journal to this day. Very little has needed Further new faces around the board room
that the first change I changing since Bev was practical and for- table are: Christine Zywine from Hamilton,
would write about is a ward thinking in planning the CONJ, as she Ontario, who is now Director-at-Large
sad one. Beverley Page, was in all she did. For more than 25 years for External Relations, Corsita Garraway
RN, BScN, CON(C), died she was my friend and my colleague. I will from Toronto, Ontario, Director-at-Large—
November 28, 2011, of miss her greatly, as will all who knew her. A Membership and a new Director-at-Large
pancreatic cancer. Bev more formal tribute to Bev is in this issue. for Research, Sally Thorne from Vancouver,
was a founding member of CANO, one of Other changes, but positive ones, have British Columbia. It is always energiz-
the two representatives from Saskatchewan occurred and will occur in 2012. First, there ing to have innovative ideas, opinions and
on the original planning committee that are changes in the CANO board. We have a
resulted in CANO. She was also the first new President, Brenda Sabo, from Halifax, continued on page 2…
Éditorial
Lorsque j’ai décidé Christine Zywine, d’Hamilton, Ontario, articles soumis en français que nous rece-
de me pencher sur nouvelle conseillère générale–Relations vons désormais en nombre croissant. Cette
le thème du change- externes, Corsita Garraway de l’Ontario, année, nous comptons ainsi cinq évaluatri-
ment dans ce numéro, conseillère générale–Services aux mem- ces bilingues et deux évaluatrices exami-
je ne savais pas qu’il bres et enfin, Sally Thorne de Vancouver, nant uniquement les articles en français;
me faudrait d’abord Colombie-Britannique, nouvelle con- elles sont venues rejoindre les quatorze qui
vous communiquer seillère générale–Recherche. Toutes les évaluent les articles soumis en anglais. Les
un changement par- idées, opinions et suggestions novatrices évaluatrices viennent d’un bout à l’autre
ticulièrement attris- de ces nouvelles intervenantes constituent du pays, depuis la Colombie-Britannique
tant. En effet, Beverley un véritable regain d’énergie. Il me faut jusqu’à Terre-Neuve tandis qu’une évalua-
Page, inf., B.Sc.inf., CSIO(C), est décédée vous signaler un changement très récent trice œuvre en Australie. Dorénavant, le
le 28 novembre 2011 d’un cancer du pan- du fait de la démission de Barbara Hues, comité de lecture reflète plus fidèlement
créas. Bev était un des membres fondateurs conseillère générale–Éducation précipi- les endroits où travaillent les infirmières
de l’ACIO/CANO, l’une des deux représen- tée par une grave maladie chez un de ses en oncologie qui soumettent des articles
tantes de la Saskatchewan faisant partie du proches. Heureusement pour nous, Karyn à la RCSIO et la langue dans laquelle elles
comité de planification initial qui a abouti Perry, inf., B.Sc.inf., CSIO(C), d’Edmonton, travaillent.
à la création de l’ACIO. De plus, elle a été Alberta, a accepté d’occuper le poste de Projetez-vous d’apporter des change-
la toute première rédactrice en chef de la Barbara à titre intérimaire jusqu’à la fin ments à votre vie professionnelle durant
RCSIO (1989–2000). Nous utilisons encore du mandat original. L’ACIO a bien de la l’année qui s’en vient? L’heure et-elle venue
aujourd’hui les systèmes qu’elle avait mis chance que ses membres répondent « pré- pour vous de commencer ce cours ou les
en place pour la Revue. Nous n’avons pas sents » lorsqu’il faut assurer la poursuite études menant à ce diplôme que vous dites
eu besoin de changer grand-chose puisque de son fonctionnement. vouloir suivre ou obtenir depuis toujours
la planification de la Revue reflétait l’esprit Des changements surviennent égale- ou bien est-il temps pour vous de jouer un
pratique et la réflexion prospective de Bev, ment au niveau du conseil de la RCSIO. rôle plus actif dans les activités et le fonc-
deux qualités qui caractérisent d’ailleurs Heureusement pour moi, les rédactrices tionnement de l’Association canadienne
tout ce qu’elle faisait. Pendant plus de 25 adjointes sont les mêmes que l’an passé, des infirmières en oncologie? Peut-être
ans, elle a été mon amie et ma collègue. mais le comité de lecture a pris un nou- pourriez-vous vous impliquer davantage au
Elle va beaucoup me manquer comme elle veau visage étant donné que le mandat de niveau de votre section locale ou régionale,
va d’ailleurs manquer à tous ceux et celles certaines évaluatrices était parvenu à sa ou bien vous joindre au conseil adminis-
qui l’ont connue. Je vous invite à lire l’hom- fin. Chaque évaluatrice exerce ses fonc- tration de l’ACIO/CANO ou encore de faire
mage formel qui lui est rendu un peu plus tions pendant deux ans et ce mandat peut une demande en vue d’occuper un poste
avant dans ce numéro. être renouvelé une fois. Puis il est temps d’évaluatrice à la Revue! Je vous invite à y
Des changements — positifs, cette de faire une pause. Toutefois, après un songer.
fois — se sont produits cette année et se « congé » de quelques années, les ancien- Entre-temps, j’espère que vous avez
produiront en 2012. Examinons d’abord nes évaluatrices posent souvent leur can- passé un bon Noël et une excellente sai-
les changements au sein du conseil d’ad- didature pour faire de nouveau partie du son des Fêtes. Je m’empresse de vous sou-
ministration de l’ACIO/CANO. Nous avons comité de lecture. Nous sommes bien chan- haiter une année 2012 à la fois heureuse et
une nouvelle présidente, Brenda Sabo qui ceuses que tant d’infirmières en oncologie productive, en espérant qu’il s’agira de la
nous vient d’Halifax, Nouvelle-Écosse, ainsi souhaitent servir leur organisme de cette meilleure de toutes pour vous et pour les
qu’une nouvelle vice-présidente, Barbara manière. soins infirmiers en oncologie!
Fitzgerald qui, elle, travaille à Toronto, Le comité de lecture a subi un autre
Ontario. On remarque d’autres nouveaux changement de taille cette année. En effet, Heather Porter, B.Sc.inf., Ph.D.,
visages autour de la table du conseil : nous manquions d’évaluatrices pour les rédactrice en chef, RCSIO
CONJ • RCSIO Winter/Hiver 2012 1…continued from page 1
we are receiving more of now. So, this year
we have five bilingual and two French-only
suggestions from new voices. There has
reviewers added to the 14 who review the
also been one very recent change due to
English manuscripts. Reviewers come from
the resignation of Barbara Hues, Director-
British Columbia to Newfoundland with
at-Large—Education because of serious
one reviewer from Australia, too. At pres-
family illness. Fortunately, Karyn Perry,
ent, the Review Board more nearly reflects
RN, BSN, CON(C), from Edmonton, Alberta,
the language and location of the oncology
has agreed to become Interim Director-at-
nurses who submit their manuscripts to the
Large—Education to complete Barbara’s
CONJ.
term. CANO is so lucky that its members are
Do you plan some changes in your pro-
interested in helping it operate.
fessional lives this coming year? Is it time to
There is some change, too, in the CONJ
start that course or degree that you always
board. Thankfully for me, the associate edi-
said you would or, hopefully, is it time for
tors remain the same as last year, but we
you to take a more active part in the opera-
have made some changes in the Review
tion of the Canadian Association of Nurses
Board, as some reviewers’ terms were com-
in Oncology? Perhaps you could get more
pleted. Each reviewer serves for a two-year
involved at the chapter level or maybe join
term, and that term can be renewed once.
the CANO board or even apply to be a CONJ
Then it’s time for a rest. After a few years
reviewer! Think about it.
“off”, however, former reviewers often ask
Meanwhile I hope you had a Merry
to come back on the Review Board. We are
Christmas, a very good holiday season and I
fortunate that so many oncology nurse
wish you a happy and productive 2012. May
members are interested in serving CANO
it be the best year ever for oncology nursing
through the CONJ in this way.
and for you.
Another change within the Review Board
was made this year. We have been very short
Heather Porter, BScN, PhD
of reviewers for the articles in French that
Editor, CONJ
CANO/ACIO would like to
acknowledge its corporate partners
2 CONJ • RCSIO Winter/Hiver 2012A tribute to Beverley Page
Beverley Dawn (nee Campbell) Page k 1942–2011
By Margaret Fitch and Heather Porter
arrival of the third grandchild, but Sacha
did not arrive until a few days following
Beverley Page was a professional col- her death.
league and a friend. We first met when Bev As Margaret says, Bev was always ready
stepped forward as one of the two represen- for a bit of an adventure — whether that
tatives from Saskatchewan to the planning was riding camels in Petra, getting up long
committee for the creation of what became before dawn to see the sun rise over Uularu,
CANO. She was one of the two individu- sleeping in a “tent” in Kakadu National Park
als who had established the Saskatchewan (where there are many snakes and croco-
Oncology Nursing Group (SONG), one of the diles!), staying up to see the Midnight Sun
first professional provincial groups for can- not set over the Arctic Ocean, or hot air bal-
cer nurses in the country. looning over Cappadocia in Turkey. We had
Bev completed her basic nursing train- the opportunity to travel together often,
ing at Toronto Western Hospital and her frequently following international oncol-
Bachelor of Science in Nursing at the ogy nursing conferences. She admitted to
University of Western Ontario. She focused me that she thought she might have been
on education of nurses from the begin- a travel agent in another life, as she loved
ning and held positions as an instruc- researching and planning for the trips.
tor, educator and co-coordinator in staff Bev was an inspiration to many of her
development. During the last 25 years of working colleagues. She retired early and
her career, Bev concentrated on oncology immersed herself in painting, balcony gar-
and was one of the key contributors to the dening, barbecuing, and political analysis.
early growth and development of oncol- One could depend upon her to know what
ogy nursing in Canada. As a member of the the latest development was “on the hill”
planning committee for CANO, Bev could was one, and set the stage for the CONJ as and have a view about it. She loved the the-
be counted on to have practical ideas and it is today. Bev was so logical in her devel- atre, bridge, trying new restaurants, and
the will to carry them out while encourag- opment of the structure of the journal and music. Jazz was her favourite and you could
ing others to join her in these efforts. She the team that created it that many, if not depend on her to know the newest emerging
could also lighten an overly serious or con- most, of the systems she put in place for voices. She loved a good book and a good
tentious mood with an amusing remark the successful production of the journal conversation—and was great at the listening
that diffused tension, an essential quality are in place to this day. We still use the and the telling part of the exchange. She had
for the well-being of any group. same publishing company and translation an irreverent sense of humour and could see
Bev’s work as a founding board mem- business that she hired in 1989. the humour in life’s events. The weekly jokes
ber for CANO and the guidance she pro- She retired in 2006 from the Sunnybrook she sent always brought a smile to our days.
vided for the newsletter and the journal Odette Cancer Centre where she had been Bev will be missed by her family—sisters
were instrumental in setting the stage for the Education Specialist. Over the years, Ellie and Margaret, children and grandchil-
the evolution of the Canadian community she launched many a nurse onto the path- dren—and by her friends. She had a bound-
of oncology nurses. The CANO newsletter way of cancer nursing. Bev was always very less generosity, patience, and strength. She
was called the Communique. Bev worked committed to the education of nurses and a always made time for others and was ready
closely with its editor, Louise Hughes, from strong advocate about providing opportuni- to aid and support, whatever the issue.
Victoria, B.C. It was a natural move then ties for staff to pursue lifelong learning as She faced her death as she lived her life…
for Bev, with her educational expertise professional practitioners. embracing the fullness of the experience,
and organizational skills and experience But Bev was more than an oncology showing courage and strength, and finding
to become the first editor of the Canadian nurse: She had three children — Doug, the humour where it reared its head… a role
Oncology Nursing Journal (CONJ). She was Lindsey, and David — and two grandchil- model to the end.
a confident and consistent leader who dren, Codie and Aude. In particular, she The following quote was expressed by
had a clear vision of how the CONJ should was a proud grandmother and kept a close the translator of the CONJ upon hearing the
develop to meet the needs of oncology watch on the growth and development of news of Bev’s passing:
nurses, yet she made time to listen to oth- the youngsters. She recently completed a “Still so young, but a life well lived!
ers’ ideas or to solicit them and follow their children’s book for Aude and was able to A cruel twist of fate after so many years
suggestions. These characteristics resulted take Codie on a trip to the Galapagos (sup- devoted to oncology and the fight against
in a very loyal and hard working group of porting his future career interest in marine cancer!” (Hubert Migeon, Director, Vice
editors and reviewers, of which Heather biology). She was eagerly awaiting the Versa, December 2011).
4 CONJ • RCSIO Winter/Hiver 2012Hommage à Beverley Page
Beverley Dawn Page (née Campbell) k 1942–2011
Par Margaret Fitch et Heather Porter s’agisse de monter à dos de chameau à Petra,
de se lever bien avant l’aube afin de voir le
Beverley Page était pour nous à la fois soleil se lever sur Uularu, de dormir dans
une collègue de travail et une amie. Nous une tente dans le parc national de Kakadu
nous sommes rencontrées pour la première (où abondaient serpents et crocodiles!), de
fois lorsque Bev s’est portée volontaire rester éveillée afin de voir le soleil de minuit
pour être l’une des deux représentantes de ne pas se coucher derrière l’océan Arctique
la Saskatchewan auprès du comité de pla- ou de faire un vol en montgolfière au-des-
nification de l’organisme qui allait devenir sus de la Cappadoce en Turquie. Nous avons
l’ACIO. Elle était l’une des deux intervenan- souvent eu l’occasion de voyager ensemble,
tes qui avaient mis sur pied le Saskatchewan la plupart du temps après des conférences
Oncology Nursing Group, un des tout pre- internationales sur les soins infirmiers en
miers regroupements provinciaux du pays à oncologie. Elle m’a confié un jour qu’elle
l’intention des infirmières en cancérologie. avait l’impression d’avoir été agente de
Bev a suivi sa formation infirmière de base voyages dans une vie précédente tellement
au Toronto Western Hospital et a obtenu son elle adorait faire la recherche et la planifica-
baccalauréat en sciences infirmières à l’Uni- tion préalables à ces aventures.
versité de l’Ouest de l’Ontario. Elle s’est con- Bev a été une source d’inspiration pour
centrée, dès le départ, sur la formation des bon nombre de ses collègues de travail. Elle
infirmières et a occupé des postes d’instruc- a pris une retraite anticipée et s’est immer-
trice en formation et de co-coordinatrice du gée dans la peinture, le jardinage sur bal-
perfectionnement du personnel. Durant les et travailleur de rédactrices et d’évaluatri- con, l’art du barbecue et l’analyse politique.
25 dernières années de sa carrière, Bev a ces, dont Heather, et ont jeté les bases de ce Elle connaissait assurément les dernières
privilégié l’oncologie et fut une des princi- que la RCSIO est devenue aujourd’hui. Tout nouvelles en provenance de la Colline du
pales forces motrices derrière la croissance au long du développement de la structure Parlement et avait une opinion à leur sujet.
et le développement initiaux des soins infir- de la Revue et de l’équipe qui en assurait la Elle adorait le théâtre, le bridge, découvrir
miers en oncologie au Canada. Quand elle production, un grand nombre, voire la majo- de nouveaux restaurants et la musique. Le
était membre du comité de planification de rité, des systèmes qu’elle avait établis pour jazz était sa passion et on pouvait comp-
l’ACIO, Bev avait la réputation de manifester assurer la réussite de la Revue sont encore ter sur elle pour connaître les tout derniers
des idées pratiques et de posséder la volonté en place de nos jours. Ainsi, nous conti- talents. Elle savait apprécier un bon livre et
d’en faire l’application tout en encourageant nuons de faire appel à la maison d’édition et une bonne conversation — et, dans ce der-
autrui à se joindre à ses efforts. Elle avait au bureau de traduction qu’elle avait embau- nier cas, elle excellait de part et d’autre de
aussi le don d’éclairer une atmosphère par chés aux tout débuts en 1989. l’échange. Elle avait un sens de l’humour
trop sérieuse ou litigieuse en prononçant une En 2006, elle a pris sa retraite du Centre quelque peu irrévérencieux et savait voir les
remarque amusante qui servait à diffuser la de cancérologie Odette au Sunnybrook où aspects comiques des événements de la vie.
tension, une qualité essentielle au bien-être elle était spécialiste en éducation. Elle a Les plaisanteries qu’elles envoyaient chaque
de n’importe quel groupe d’intervenants. aidé, au fil des ans, bien des infirmières à semaine par courriel égayaient toujours nos
Le travail de Bev à titre de membre fon- se lancer dans une carrière en soins infir- journées.
dateur de l’ACIO et l’orientation qu’elle a miers oncologiques. Bev manifestait, en tout Bev va beaucoup manquer à ses
donnée au bulletin puis à la revue ont joué temps, un engagement exceptionnel envers proches — ses sœurs Ellie et Margaret, ses
un rôle fondamental dans l’évolution de la la formation des infirmières et faisait tout enfants et ses petits-enfants — et à ses amis.
communauté des infirmières en oncologie pour que le personnel ait le plus possible Elle était d’une générosité, d’une patience
du Canada. Le bulletin de l’ACIO s’intitulait d’occasions d’apprentissage continu dans le et d’une énergie sans bornes. Elle avait tou-
Communiqué et Bev collaborait étroitement cadre de sa pratique professionnelle. jours du temps pour autrui et était toujours
avec sa rédactrice, Louise Hughes, qui vivait Mais Bev était bien plus qu’une infirmière prête à offrir aide et soutien, peu importe
à Victoria, C.-B. Il était tout à fait dans l’ordre en oncologie : elle avait trois enfants — Doug, le problème. Elle a fait face à la mort tout
des choses qu’avec son expertise en matière Lindsey et David — et deux petits-enfants, comme elle avait vécu sa vie : en saisissant
d’éducation et ses compétences organisa- Codie et Aude. Elle était particulièrement l’expérience dans sa plénitude, en manifes-
tionnelles Bev soit la première rédactrice fière d’être grand-mère et suivait de près la tant courage et force et enfin, en trouvant les
de la Revue canadienne de soins infirmiers croissance et le développement de ses petits touches d’humour là où elles se cachaient…
en oncologie (RCSIO). Elle débordait de con- jeunes. Elle avait récemment terminé un livre un modèle de rôle jusqu’au bout.
fiance et était un véritable chef de file qui d’enfant pour Aude et avait emmené Codie En guise de conclusion, j’aimerais citer le
avait une vision bien nette des caractéristi- avec elle lors d’un voyage aux îles Galápagos traducteur de la RCSIO qui a envoyé ses mots
ques qui permettrait à la Revue de répondre (renforçant chez lui des aspirations de car- en apprenant la nouvelle du décès de Bev :
aux besoins des infirmières en oncologie, ce rière en biologie marine). Elle attendait avec « Encore si jeune, mais une vie bien rem-
qui ne l’empêchait pas de prendre le temps impatience la naissance de son troisième plie! Quel cruel caprice du destin après
d’écouter les idées d’autrui, de solliciter la petit-enfant, mais Sacha n’est arrivé que toutes les années qu’elle a consacrées
rétroaction d’autres intervenants et de sui- quelques jours après le décès de Bev. à l’oncologie et à la lutte contre le can-
vre leurs suggestions. Ces qualités ont mené Comme Margaret l’a souligné, Bev était cer! » (Hubert Migeon, directeur, Vice Versa
à la création d’un groupe de travail très loyal toujours prête à partir à l’aventure — qu’il Translation, décembre 2011).
CONJ • RCSIO Winter/Hiver 2012 5Reflections on research
Forty years in cancer nursing research:
Time flies when you’re having fun!
A lot of Canadians were born in 1947, instead. What a great idea that proved to time I left. I returned to take up my position
about half a million I am told. Those return- be! Those were exciting times: the Vietnam again at the University of Manitoba and to
ing servicemen were a frisky lot! Now, as our war, the Cambodia riots, the Students for a complete my degree. The Faculty of Nursing
age cohort approaches retirement, it is time Democratic Society blowing up the officer was very supportive of this plan, as I tried
to reflect on our life adventures. I wonder training building across the street from my to balance the many demands of work and
what would have happened if my father had dorm (I slept through it), and, of course, all degree completion.
not believed in education for women. Dad’s the hippies and free love—quite a change The most exciting thing that hap-
contemporaries said to him, “Why would you from boring old Winnipeg. There were more pened during this time was the trip to the
send your daughter to university when she than 100 nurses in our entering graduate Rockefeller Foundation’s Villa Serbelloni in
can make good money as a Safeway checkout class, and at least 50% of them were in their Bellagio, Italy, in 1984. That was long before
clerk?” That was considered a great job where twenties. Many were Vietnam veterans, or The Bellagio was a Las Vegas casino, by the
I grew up in the north end of Winnipeg. Of had lost husbands in Vietnam, and were at way. Janet Beaton and I had a book contract
course, no one then imagined a gizmo called university on military scholarships. and needed time to write, so she suggested
the optical scanner. Besides, all girls did was Seattle was where I met my life-long men- that we apply to the Rockefeller Foundation.
get married and have babies, so what a waste tor, Jeanne Quint Benoliel. She was the one We were the first nurses to win such a fellow-
of money university would be! This was the from whom I caught the research bug. As ship. It was a magical place; we met amazing
conventional wisdom of the time, even if soon as I was in my first research class, I knew people from all walks of academia, includ-
young people today do not want to believe it. I had found the “real me”. I had always been ing the British novelist David Lodge and
As Lloyd Robertson, our coveted national good at math and loved writing, so it was a American artists Gina Werfel and Hearne
anchorman recently stated on the occasion very good fit. Now the opportunities were Pardee. This time really showed me what it
of his retirement, it used to be considered endless. So I planned to go back for my PhD was like to be an academic on an interna-
vulgar to talk about yourself, but that is cer- in 1972, but there was one problem — there tional stage, and it was really intriguing. Once
tainly not the case these days. He agreed were no PhD programs in nursing, and I again, I knew that this was what I wanted to
to provide his personal story because he would have to take my PhD in another dis- do. This experience later influenced my deci-
thought it was just that, a story, and might cipline. I had a national health fellowship to sion to take my research international with
be informative to others. So, taking Lloyd’s return to Seattle to do post-master’s stud- studies in England and Sweden.
lead, and having been invited to tell my story, ies in statistics, but decided instead to wait
I shall attempt to identify some of the fac- for the PhD in Nursing to start. It was quite a Making it
tors that have influenced my career in cancer wait. In the meantime, I joined the University After the PhD, it was not that easy to
nursing research over the past four decades. of Manitoba at the invitation of Helen Glass. get the first big national grant. I tried the
The period from 1972 to 1980 was spent in Health Canada research program twice and
Starting out clinical teaching and developing my research failed, and was in a state of despair one day
Having graduated from the University of as best I could with a master’s degree. During when I dropped into Janet Beaton’s office. I
Manitoba School of Nursing in 1969 (it didn’t that period we received a national grant that said there was a competition at the National
end up costing Dad that much, as I won schol- eventually led to the publication of the book, Cancer Institute of Canada (NCIC), but that
arships), I headed to work on a medical unit Life-Death Decisions in Health Care. But, in they had never funded a nurse so I did not
at the Winnipeg General Hospital. I was only 1980, I finally ripped up my life again and have a hope. She replied, but what do you
the second BN graduate working at the hospi- left for Ann Arbor to do the PhD in Clinical have to lose? As it happened, I was stranded
tal, and so I was a bit of an oddity. Particularly Nursing Research. There were two years of in Newfoundland for five days because of
strange was the fact that I did not wear a misery doing the coursework, but at least I fog, and with nothing else to do, I decided to
cap. People came from far and wide within made some wonderful friends and learned completely rewrite the grant for a different
the hospital to view this phenomenon; I was the measurement and scaling techniques that audience. I did this in long hand, as in 1986
something akin to a new arrival at the zoo. underpinned my subsequent development there were no computers available. It worked.
However, the other nurses were soon jealous of the Control Preferences Scale. The major I became the first nurse to get an operat-
of my cap-less state as: 1) I was saved all the advantage of this program was that we did a ing grant from NCIC. Now, wherever I went,
trouble of caring for this appendage, and 2) I cognate in another discipline, so I had seven all I had to do was say I had an NCIC grant,
was not getting it tangled in curtains all the graduate level courses in psychology. Another and the gates opened. As one of my nursing
time. When I look at nurses’ garb at the hos- advantage was that we spent two afternoons colleagues said one day in 1987 when the
pital these days, I really laugh thinking about a week during the first year as a nurse scien- Executive Director of NCIC tracked me down
my challenge to the dress code of 1969. tist in a clinical setting. I was at the Cancer in Saskatoon: “Lesley, I think you’re now one
In those days, running off to tour Europe Center, and what an eye opener that was for of the guys.” She was right, but the pressure
or else to do good works in Africa was con- me in terms of the difference between the was on to produce the papers.
sidered the thing to do if you were not get- Canadian and American health care systems. After two more NCIC grants, a quasi-
ting married and/or pregnant. Neither of It was the time in those clinics that convinced postdoctoral year in Philadelphia with Ruth
those alternatives really appealed, so in 1970 me I wanted to focus my research in oncol- McCorkle, and putting in hundreds of hours
my friend Janet Beaton and I decided to run ogy. But the Canadian dollar was dropping of volunteer work at NCIC on various com-
off to Seattle to get our master’s degrees like a stone; I think it was down to $.83 by the mittees, the two publications that remain my
6 CONJ • RCSIO Winter/Hiver 2012most highly cited were produced and pub- million Nursing Research Fund. I did try, and Midwifery. With a strong emphasis in cancer
lished in 1992 and 1997. The latter, which received a Chair for a 10-year period, from nursing and a superb research track record,
appeared in the Journal of the American 2000. This was where all the years of slogging this institution provided many ideas that I
Medical Association, was published just at the hard work paid off. But it was not just about moved into the Chair Program.
time of the Manitoba flood, so it did not get the science; it was about all the national
much publicity, but rather emerged slowly committee work. If you fly to Toronto two or Going forward
onto the scene. I knew this publication was three times a month for 15 years, you build a There are a few pitfalls I see ahead for the
a very good thing when one of my colleagues dense national network. As much as my sci- development of cancer nursing research, both
from the medical faculty learned about it and entific success, it was that network of peo- in this country and internationally. There are
said to me, “YOU got an article in JAMA?” I ple (thank you, Monique Begin!) that helped many bright, hard-working people who will
could tell by his expression of utter disbe- bring me and our Faculty the Chair. make significant contributions. The only
lief that he was upset, which I took as a good The Chair Program was a somewhat differ- thing holding them back is what Marshall
sign. Then the Dean of Medicine met me in ent endeavour for me. Although I had always McLuhan called “rear view mirrorism”— we
the hall and said, “Young lady, I hear you been deeply involved in graduate advise- march into the future looking at the past.
have an article in JAMA! Congratulations! I ment, in this Chair operated by CHSRF we Imagine walking down a crowded street back-
wish more of my faculty members could do were asked to focus on mentorship, research wards. We do this in Winnipeg in the winter
that!” That was one of my better days. and knowledge translation. The latter work to avoid getting frostbite from a north wind.
Subsequently winning the university’s top was focused at the Health Sciences Centre in Trust me, it is not easy to do. You are bound
research prize and using the cheque to replace Winnipeg where, with the help of a new CIHR to bump into something and go flying into a
my leaking roof was also wonderful. Colleagues grant in 2005, we were trying to establish a snow bank or worse.
from around the university were lavish in their link between the quality of nursing work life Here are the two most frequent “walking
congratulations, and one insider assured me and nurses’ involvement in knowledge trans- backward” issues I have encountered over
that the competition for this award was fierce. lation activities. It was an exhausting 10 years, the past 40 years:
The Diamond Jubilee award from NCIC was a bit of a blur actually, but led to the support
particularly poignant, when I think that if I had and development of a strong group of now MYTH: You can get your PhD later in life and
not been trapped in Newfoundland I might mid-career scientists who each have their own still become a successful research scientist.
never have even applied for that first grant! nationally funded programs of research. This REALITY: No, you can’t. It takes 30 years to
There were two factors that were pivotal to is the key to the future, to build groups of do the work and live long enough to enjoy
these successes: the career award I held during individuals who can leverage their professor’s the results. Don’t you really want to get that
the 1990s from the Medical Research Council/ research experience and go off in new and prize that allows you to replace your leaking
National Health Research and Development completely different directions than could roof? Complete your PhD before you are 35
Program, and the research space provided have been imagined. But such an endeavour if you want to be successful and still have
by the St. Boniface Research Centre. Without requires a leader who has already “made it”, time to enjoy it.
these resources, my research program would so that person can concentrate
not have flourished as it did. on developing the research
The grants we received in England and careers of the next generation,
Sweden to study information needs and deci- confident in the knowledge
sional preferences in women with breast can- that s/he has already done
cer, pushed the work to the international their best work.
level and, in turn, created an important pres- I am happy to say that
tige factor. Doing international work requires I now have a group of aca-
“camping” abroad, and this, in turn, is rather demic sons and daughters of
disruptive to one’s personal life. But it is cer- whom I am immensely proud.
tainly worth the effort, even if it means spend- It is great fun to see their suc-
ing every Sunday looking at Viking ships in cesses and think about how
chilly museums. Some highly cited publica- we all started out, bunked
tions emerged from this work, and it has in together in our basement
been a pleasure to present the results com- space at the St. Boniface
paring patient responses in Canada, England Research Centre all those years
and Sweden to a variety of patient advocacy ago. Now they are in a prime
groups. The opportunities I had through location at the Asper Institute
these studies to become immersed in differ- for Clinical Research over-
ent cancer treatment systems were invaluable looking downtown Winnipeg.
to my later thinking about development of It is also very satisfying to see
evidence-based practice in my Chair Program. how the ideas in that origi-
nal program of research have
Building the legacy spread around the world, and
One morning in the late 1990s I was walk- to interact with young inves-
ing in to the St. Boniface Research Centre, tigators in a variety of coun-
headed to my office. Several of the “guys” tries who are studying clinical
stopped me as I walked across the atrium, decision-making. This inter-
saying they had heard about the announce- action was greatly facilitated
ment in the federal budget, and was I by the Visiting Professorship
going to get some of that money? I said I I held from 2006 onward at
would certainly try. This, of course, was the the University of Manchester
announcement by Paul Martin of the $25 School of Nursing and
CONJ • RCSIO Winter/Hiver 2012 7One of the guys I knew at NCIC and I to do the research in half the time.” These About the author
were sitting in a bar one evening doing a are words of wisdom that should not be Dr. Lesley Degner is Distinguished
post mortem on the meeting we had just ignored. For myself, I never thought I was Professor at the University of Manitoba,
attended. He said to me, “Lesley, do you smart enough to do the research in half the Faculty of Nursing. Her research has
know why guys tend to do better than time. But that’s just me. focused on participation in treatment
women in research? They just show up If you don’t understand what I am try- decision making, information needs,
more. If you just show up for 30 or 40 years, ing to say in this section, or totally reject it, meaning of illness, and symptom distress
you are bound to accomplish something. that’s fine. But remember, you can never go in cancer patients. More recently she has
They certainly aren’t any brighter!” These back to make corrections, you can only go focused on knowledge use in practice.
were wise words from a wise man. forward. There is no automatic spell check In 2005, she was the winner of the
in life. university’s top research prize, the Dr.
MYTH: You can have it all. John M. Bowman Winnipeg Rh Institute
REALITY: No, you can’t. You have to make Signing Off Foundation Medal; she was the first and
choices. If you make effective choices, you So, that said, now I am signing off for the remains the only woman to have won
will at least be able to enjoy some of the ALL last time. I know the future is in good hands this prize. In 2007, on the occasion of
(however you define that). There is no such (well, at least where my former students the 60th anniversary of the National
thing as work-life balance, there are work- are involved in the enterprise!), and I wish Cancer Institute of Canada, she won one
life choices. And those choices have seri- you all luck and at least as much fun as I of six Diamond Jubilee awards for her
ous consequences. So make them very, very had. I shall be travelling the globe and visit- contributions to cancer research. In 2000,
carefully. And remember, you are the one ing the places I have missed because no one she was awarded a 10-year research/
who made them, so it is you who is respon- there needed a lecture on nursing research. education/mentorship Chair from the
sible for the outcomes. One of the joys of Thanks to all of you who have accompanied Canadian Health Services Research
retirement will be that I will never again me on my career journey and made it more Foundation (CHSRF) and the Canadian
have a young woman in my office saying, enjoyable. I have already forgotten the ones Institutes of Health Research (CIHR) for
“But I want it all!” or “I have a very support- who made it more aggravating. And by the her program, “Development of evidence-
ive husband.” Both of those statements in way, thanks to CIHR for not funding my last based practice in cancer care, palliative
my experience have been accurate predic- grant and making me realize it was time to care and cancer prevention”. In 2010, a
tors of gales of tears when things go wrong move on to the next phase of my life. You citation analysis of nursing academics
and expectations are not met. see, sometimes not getting a grant can be a in Canada demonstrated that she was
One of the guys I knew at NCIC once good thing. among the most highly cited nurse
said, “If you want to be a surgeon and have scientists in the country.
a serious research career, you will have to Lesley Degner
be twice as smart because you will have September 7, 2011
2011 CANO Award Recipients/Lauréates des prix ACIO 2011
Pfizer Award of Excellence Clinical Practice/Prix d’excellence Abstract Awards Helene Hudson Lectureship 2011/Prix de
Pfizer — Pratique clinique : Susan Horsman, AB conférence à la mémoire de Helene Hudson (Amgen Oncologie) :
Lisa Cicchelli, ON
Pfizer Award of Excellence Leadership/Prix d’excellence
Pfizer — Leadership : Andréanne Saucier, QC CANO Merck Lectureship/Prix de conférence Merck & ACIO/
CANO : Heather Lloyd-Easy, Marian F. Waldie, Jennifer Smylie, ON
Pfizer Award of Excellence Education/Prix d’excellence
Pfizer — Éducation : Trish Murphy-Kane, ON Excellence in Neuro-Oncology Nursing/Prix de la Fondation
canadienne des tumeurs cérébrales–ACIO/CANO pour
Pfizer Award of Excellence Research/Prix d’excellence
l’excellence infirmière en neuro-oncologie : Understanding
Pfizer — Recherche : Dr. Sally Thorne, BC
Brain Metastases: An Overview of Treatment Options and Care
AMGEN Patient & Family Education Award/Prix d’innovation Guidelines, Hellen I. Jung, AB
dans l’enseignement aux patients en oncologie et à la famille
Poster Award 2011/Prix de la section du Manitoba de l’ACIO
ACIO-AMGEN: Céline Blouin, Martine Lamarche, Geneviève
pour la meilleure affiche : Kara L. Henman, NS, Poster 30 — Nova
Lepage, Amélie Michaud, Danielle Robitaille, Evelyne Teissier and
Scotia Administration of Cancer Chemotherapy Online Learning
Nadia Lamoureux, QC
Program
Kidney Cancer Canada Award/Prix de l’Association canadienne
Excellence in Gynocology Oncology Nursing 2011/Prix
du cancer du rein: Barbara Lynn Taylor, ON
d’excellence de Cancer de l’ovaire Canada – ACIO/CANO
CANO Education Scholarship Awards/Bourses en sciences infir- en soins infirmiers reliés à la gynéco-oncologie : Comfort
mières de l’ACIO/CANO : 1) Kara McQuaid-Duffy, Bachelor of Levels of Gynecology Cancer Patients Receiving Intraperitoneal
Nursing, St. Francis Xavier University, 2) Simonne Simon, Master’s Chemotherapy: A Pilot Study, Darlene L. Whyte, AB
program, Ryerson University
CANO Travel Grants/Subventions de voyage: Tracy Truant, BC,
AstraZeneca CARE Award/Prix Poursuite de l’excellence de Lori Santoro, MB, Renee Hartzell, ON, Andrea Knox, BC
l’ACIO/CANO–AstraZeneca : Shari Moura, ON
Student Travel Grants/Subventions de voyage pour
Lymphoma Foundation Advocacy Award/Prix d’excellence étudiant(e)s: Shawna Kelly, University of Toronto and Danielle
pour la défense des droits des patients – Fondation Lymphome Van Loenen, Grant MacEwan University
Canada: Nan Cox-Kennett
8 CONJ • RCSIO Winter/Hiver 2012Réflexions sur la recherche
Quarante années consacrées à la
recherche infirmière en cancérologie :
le temps passe vite quand on s’amuse!
Beaucoup de gens sont nés au Canada la deuxième diplômée du programme de depuis toujours bonne en maths et j’adorais
en 1947, approximativement 500 000, à ce baccalauréat en sciences infirmières qui tra- écrire, il me suffisait de concilier ces deux
qu’on m’a dit. Tous ces soldats revenus des vaillait à cet hôpital et j’y constituais une atouts. Dorénavant, des possibilités illimi-
champs de bataille avaient une belle ardeur sorte d’oiseau rare. On trouvait étonnant tées s’offraient à moi. J’ai donc projeté de
amoureuse! Comme notre cohorte d’âge se que je ne porte pas de coiffe d’infirmière. revenir en 1972 en vue d’obtenir mon doc-
rapproche de la retraite, il est l’heure de Les gens venaient des coins les plus éloignés torat, mais il y avait un problème de taille—
porter un regard sur les aventures de notre de l’hôpital pour constater ce fait; c’était un il n’existait pas de programme de doctorat
vie. Je me demande ce qui se serait passé si peu comme l’arrivée d’un nouvel animal exo- en sciences infirmières et il allait falloir que
mon père n’avait pas cru dans les bienfaits tique au zoo. Bientôt, les autres infirmières je fasse mon doctorat dans une autre disci-
de l’éducation pour les femmes. Les con- m’enviaient pour ce qui me démarquait d’el- pline. Je disposais d’une bourse de recher-
temporains de Papa lui disaient : « Pourquoi les : 1) Je n’avais pas à me soucier de l’entre- che nationale en santé me permettant de
veux-tu donc envoyer ta fille à l’université tien de cette partie de l’uniforme; et, 2) Je ne retourner à Seattle afin d’y faire des études
alors qu’elle pourrait gagner un revenu inté- risquais pas que ma coiffe se prenne dans post-maîtrise en statistique, mais j’ai décidé
ressant comme caissière de supermarché? » les rideaux. Quand je regarde en arrière et d’attendre que le doctorat en sciences infir-
On estimait à l’époque qu’il s’agissait d’un que je revois le costume des infirmières mières y soit offert. Et l’attente allait être
excellent emploi dans les quartiers nord de d’hôpital en ces temps-là, je me prends à longue. Entre-temps, j’ai rejoint l’Université
Winnipeg où j’ai grandi. Bien entendu, per- rire en pensant au défi que je lançais à la du Manitoba à l’invitation de Helen Glass.
sonne ne pouvait savoir qu’on inventerait tenue vestimentaire en vigueur en 1969. J’ai consacré la période 1972-1980 à
un jour un gadget appelé lecteur de code à À cette époque, la mode voulait qu’on l’enseignement clinique et au développe-
barres. En outre, comme les jeunes femmes voyage en Europe ou qu’on aille en Afrique ment de ma recherche du mieux que je pou-
rêvaient seulement de se marier et d’avoir pour y accomplir de bonnes actions si on vais à titre de titulaire d’une maîtrise. C’est
des enfants, envoyer sa fille à l’université n’était pas sur le point de se marier et/ou durant ces années-là que nous avons bénéfi-
serait un beau gaspillage d’argent! C’était enceinte. Comme aucune de ces options ne cié d’une subvention nationale qui a abouti
bel et bien la sagesse populaire de l’époque, me disait quoi que ce soit, j’ai décidé d’al- à la publication de l’ouvrage Life-Death
même si les jeunes de maintenant n’arrivent ler à Seattle en compagnie de mon amie Decisions in Health Care. Mais en 1980, je
pas à le croire! Janet Beaton, en 1970, et de m’y inscrire à me suis déracinée une nouvelle fois et suis
Comme Lloyd Robertson, le présentateur la maîtrise. Quelle bonne idée nous avons partie à Ann Arbor en vue d’y poursuivre un
de journal télévisé bien connu dans la nation, eue là! Il s’agissait d’une période passion- doctorat en recherche infirmière clinique.
l’a dit récemment à l’occasion de son départ nante : la guerre du Vietnam, les émeutes Les deux années de cours furent éreintan-
à la retraite, il était jadis de mauvais ton de au Cambodge, la Students for a Democratic tes mais au moins, je me suis fait de mer-
parler de soi-même, mais ce n’est plus le cas Society faisant sauter le bâtiment de forma- veilleuses amies et j’ai appris les techniques
de nos jours. Il a accepté de parler de son tion des officiers de l’autre côté de la rue de mesure et de gradation dont je me suis
propre parcours de vie parce qu’il pensait où se trouvait mon dortoir (je ne me suis servie lors de l’élaboration ultérieure de la
que ce n’était que cela, un parcours, et qu’il même pas réveillée), et bien sûr, les hippies Control Preferences Scale [échelle d’identifi-
pourrait servir à informer autrui. Comme on et l’amour libre—ce qui me changeait bien cation des préférences]. L’avantage majeur
m’a invitée à décrire mon propre parcours, de la vie plutôt tranquille de la bonne vieille de ce programme est que nous devions
je vais suivre l’exemple de M. Robertson et Winnipeg. Il y avait plus de 100 infirmières faire un programme parallèle dans une dis-
je vais tenter de dégager quelques-uns des dans cette première classe de 2e cycle, et au cipline apparentée, et j’ai ainsi suivi sept
facteurs ayant influencé ma carrière d’infir- moins 50 % d’entre elles étaient encore dans cours de cycle supérieur en psychologie. Un
mière chercheuse en cancérologie au cours leur vingtaine. Beaucoup avaient fait une autre avantage était que, durant la première
des quatre dernières décennies. période de service au Vietnam ou avaient année, nous passions deux après-midis par
perdu leur mari dans le cadre de ce con- semaine comme infirmières chercheuses
Les débuts flit et fréquentaient l’université grâce à des en milieu clinique. J’étais au Cancer Center
Après avoir obtenu mon diplôme de bourses décernées par les forces armées. et ce fut pour moi toute une révélation sur
l’École des sciences infirmières de l’Univer- Seattle est la ville où j’ai rencontré ma l’énorme différence qui existait entre les
sité du Manitoba en 1969 (mes études n’ont mentore de toujours, Jeanne Quint Benoliel. systèmes de soins de santé canadien et
pas coûté tant que ça à Papa puisque j’ai pu C’est à cause d’elle que j’ai attrapé la passion américain. Ce sont les heures passées dans
accéder à des bourses), j’ai obtenu mon pre- de la recherche. Dès que j’ai assisté à mon ces cliniques qui m’ont convaincue que je
mier emploi dans un service médical de l’Hô- premier cours de recherche, je savais que devrais axer ma recherche sur l’oncologie.
pital général de Winnipeg. J’étais seulement j’avais trouvé mon « moi véritable ». J’étais Mais le dollar canadien était alors en chute
CONJ • RCSIO Winter/Hiver 2012 9You can also read
