We celebrate our excellent staff at 14 Meet the team using artificial - Issue 8 / 2019 - Issue 8 August 2019
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MAGAZINE Issue 8 / 2019 08 We celebrate our excellent staff at annual awards ceremony 14 Meet the team using artificial intelligence to improve healthcare
2 MEET THE TEAM Contents Produced by: The UCLH communications team 03 Welcome From our chief nurse 10 ‘Like being stabbed in the face’ Front cover photo: Daminee Seetannah, sepsis improvement nurse and Celebrating Clinic helping those Excellence winner. experiencing extreme 04 UCLH Magazine is facial pain published by UCLH 12 Life-changing new (University College cancer treatment London Hospitals NHS A day in my life Foundation Trust) for Reprogramming our Clinical microbiologist patients, visitors, staff immune systems to and UCLH members. Shanom Ali fight cancer CONTACT US 06 If you have any information you would Unwelcome holiday like included in UCLH souvenir Magazine, contact: How I got a flesh- Communications Unit, 2nd Floor Central, eating parasite 250 Euston Road, London NW1 2PG Email: uclh.communications@ nhs.net Tel: 020 3447 9118 Visit: uclh.nhs.uk Photo credit: Peiman Zekavat 14 ealthcare of the H future @uclh Artificial intelligence @uclh transforming 08 And the winners are… healthcare uclhnhs TV personality Adrian Chiles presents staff 16 What’s on Key dates for your uclhvideo with their awards Photographs by Adam diary Scott Highly commended at: Supported by
3 WELCOME Welcome to the latest edition of UCLH Magazine. What an exhilarating, if We should all be proud of the our staff can come up with challenging, few months we work being done across UCLH such brilliant ideas and as an have had at UCLH since the to care for our patients. At our organisation we will always launch of Epic, our electronic best, the collaborative work of support our teams as much health record system. This is the everyone, from allied health as possible to put these into most ambitious transformational professionals to administrators, practice. Read more on pages 10 change programme in the Trust’s pharmacists to porters, nurses and 11. history and I send a huge thank to the doctors, will enable us to It is fantastic to be able to you to our inspirational, loyal shift from good to outstanding, celebrate these achievements and caring staff. They have ensuring our patients receive the and I know that there will be really pulled together to make standard of care we would wish many more to follow. In the it happen and, on behalf of the for those we care about. meantime, I hope you had a executive team, our gratitude to In this edition of the magazine good summer and managed them all is enormous. we showcase staff who enable to have some time to rest and Given the huge efforts our us to take part in fantastic, recuperate during the holiday teams have been making life-changing trials, such as CAR season. If you did not manage this year, it was wonderful to T-cell therapy, which you can some time away, I hope you attend our annual Celebrating read more about on pages 4 are able to get some rest or Excellence Awards, where the and 5. This revolutionary way endeavour to build relaxation whole organisation was able to of treating cancer could impact into part of your weekly routine. recognise contributions of some on thousands of lives and I am still working hard to of our outstanding individuals was featured in a recent BBC achieve this! and teams. The event is all documentary called War in the Finally, I really appreciate all that about bearing witness to, and Blood. our staff do every day. saying thank you to, staff and We also share the stories of staff volunteers for their hard-work, who establish clinics, such as innovation and dedication. the facial pain team, who have All the winners embodied our created an innovative service Trust values of safety, kindness, for patients with severe facial teamwork and improving. Flo Panel-Coates pain. It is amazing to see how Chief nurse, UCLH
4 “It’s like having an army in my blood” – pioneering cancer treatment being trialled at UCLH Immune cells are being used as an CAR T-cell therapy is created by army to hunt and kill cancer cells taking a patient’s T cells — a key in ground-breaking trials by UCLH part of their immune system — and clinicians and UCL scientists. genetically modifying them so they produce special structures called CAR T-cell therapy, in which a chimeric antigen receptors, or CARs, person’s immune system is “re- on their surface. programmed” to recognise and destroy cancer cells, provides a When these CAR T-cells are infused more efficient and less toxic way of back into the patient’s bloodstream, treating cancer. the new receptors can recognise the proteins on the cancer cells’ surface The pioneering therapy is now being so they can then kill them. offered to adults at UCLH. The trial involves ten patients and is led by Although the treatment is Dr Martin Pule, a clinical scientist at revolutionary, it can have extreme UCL Cancer Institute, and Dr Claire side effects, ranging from fever and Roddie, a consultant haematologist breathing issues to heart problems at UCLH. and neurological damage so severe it could be fatal. Dr Roddie said: “As a team, we’ve given these patients another crack CAR T-cell therapy at life, and they’ve given us the is a revolutionary new extraordinary opportunity to learn what we could have done better. approach in treating “We’re incredibly close now to being cancer able to target all cancers and that keeps me going.” Results from the trial won’t be available until next year and there Dr Pule said: “CAR T-cell therapy can will need to be a bigger study before result in long lasting remissions in treatment can become available on patients with blood cancers which the NHS. have failed all standard treatments. The new therapy has appeared in a “CAR T-cell therapy is a revolutionary BBC Two documentary called War in new approach in treating cancer.” the Blood.
5 Teamwork vital in supporting trials The trials taking place have been the result of a multi- disciplinary team which has enabled UCLH to become one of the largest CAR T-cell centres in Europe. One such team member is Leigh Wood, a clinical trial practitioner, who, along with his team, provides professional, clinical and administrative support to ensure the smooth running of the clinical trials. Leigh said: “Working on these trials has given us the fantastic opportunity to offer treatment that is Working on these trials has given us the fantastic opportunity to offer treatment that is otherwise unavailable otherwise unavailable. We are offering CAR T to patients that may have run out of other options and it is great to be able to give them the chance to be Emma Morris consultant haematologist, Martin Pule, clinical cancer free.” scientist and Claire Roddie, consultant haematologist (L-R) Gavin Cooper, nurse educator in adult inpatient haematology, was also involved in the trials along with a team of ward nurses. He was responsible for ensuring that as many nurses as possible were trained CAR T-CELL THERAPY WAS A LIFELINE in looking after the patients and identifying worrying side effects. Patient Scott Davies said College Hospital in London. He said: “We know that chemotherapy works for his whole life turned many people, but as ward nurses we are more likely “For me, it was a lifeline, and upside down when he was to see the patients for whom it doesn’t work. So I didn’t think for more than a diagnosed with an aggressive for us it is exciting to see a completely new type of second before accepting. form of blood cancer treatment that can cure when chemotherapy can’t. called acute lymphoblastic “Once they were in my leukaemia. bloodstream, the CAR T-cells “People having CAR T-cells require nursing care would track down the cancer tailored to the specific risks they face. So many He said: “I was told that my hours have been spent training staff on the wards, cells and kill them. It’s like chance of being alive in two PERRT and ITU to make sure everyone has the right having an army in my blood years was down to 20 per knowledge to safely care for this growing group of 24/7, chasing down these cent, which was absolutely patients. Every week Leigh and I get calls and emails baddies and taking them devastating. from nurses across the country asking for advice out.” “But in the next breath I was about CAR T-cells. UCLH is widely considered the Against the odds, Scott is still offered a chance to join the premier hospital for this emerging therapy.” cancer-free three years on. CAR T-cell trial at University
7 Sand fly bite left me with flesh- eating parasite after travels An unwanted souvenir from once-in-a-lifetime experience for explorer Pip. Adventurer Pip Stewart was “The treatment was really nearest hospital would be weeks expecting to come back from brutal – worse than kayaking the away by boat.” kayaking along South America’s Essequibo,” she said. Although leishmaniasis is the third longest river with fantastic “It left me feeling so tired and stiff. second biggest parasitic killer memories, amazing photos and My partner had to lift me out of after malaria, there have been no new life-long friends. What she bed in the morning as I couldn’t significant treatment breakthroughs didn’t count on was bringing home get up.” since the 1940s. an unwanted souvenir: a flesh- eating parasite. While the bite has now cleared up, Pip is now campaigning to get the she will have to go to the clinic disease more widely recognised Pip was part of the first team regularly over the next two years and encourage research to find a to kayak the 100km length of to make sure the parasite has been more effective cure. the Essequibo river in Guyana. killed and doesn’t return. However, shortly after returning Her consultant Dr Steve Walker to her London home she noticed a added: “At the Hospital for sand fly bite which “just wouldn’t Tropical Diseases, we usually see go away”. It has really about 30 patients a year with leishmaniasis affecting the skin. “When I was told it was opened my eyes to They have travelled in central or leishmaniasis, I had a panic,” Pip recalls. how lucky we are in South America, like Pip, but others acquire the condition in North “I searched online and there was this country Africa, the Middle East and even so much misinformation about countries in the Mediterranean the disease. However, I really must such as Spain. praise Dr Steve Walker and the “Leishmaniasis is a neglected team at the Hospital for Tropical She explained: “Although the tropical disease because it is Diseases for putting me at ease.” whole ordeal has been awful, it complex and it also tends to affect has also been the best thing that Pip attended the hospital’s walk-in impoverished people in the poorest has happened to me. It has really clinic and was diagnosed following countries. Newer treatments with opened my eyes to how lucky we a biopsy. Her treatment involved less adverse effects would be are in this country. In some of the being injected with a variety of welcome.” remotest parts of Guyana, the drugs every day for three weeks. FACT FILE • Leishmaniasis is spread through • It can be found in 98 countries – • To avoid being infected keep bites of infected sand flies predominantly in Latin America and covered up as much as possible, Africa use a bed net at night and wear • There are three forms of insect repellent. You can buy some leishmaniasis • The Hospital for Tropical Diseases products from the Hospital for runs a travel clinic, offering up-to- • Every year, about 700,000 to 1 Tropical Diseases’ Shop: https:// date, clear and comprehensive pre- million people are infected with the thehtdshop.org/ travel advice. Discounts are offered parasite for staff. Call 020 3447 5999 for • Between 26,000 and 65,000 more information and to book an people die annually appointment
8 CELEBRATING OUR EXCELLENT STAFF At UCLH, we are proud of all our staff and the fantastic work they do every day. This year more than 700 were nominated by colleagues and patients for going ‘above and beyond’ in their daily working lives. The winners were honoured at our annual award ceremony and presented with trophies by TV presenter Adrian Chiles. Here are some of their stories. Excellence in education Patient-nominated Allied health winner living the values professional and Daminee Seetannah, sepsis winner pharmacy colleague of improvement nurse Mustansir Alibhai, consultant the year winner Every year, hundreds of thousands of Breaking bad news to patients and Charlotte Betteridge, people are diagnosed with sepsis, a their loved ones is always difficult. occupational therapist team lead serious complication of an infection But one family appreciated the which can be fatal. However, thanks Organising tickets to a basketball “kindness and compassion” shown match for a young patient and to the hard work of Daminee, those by Mustansir Alibhai. who come to UCLH have a better creating individual story books and chance of survival. She has worked They praised him for his “hope teddies to help children understand tirelessly to raise awareness about and positivity” and “exceptional complex operations: Charlotte was sepsis: more than 1,000 staff have kindness and behaviour”. voted a winner for being “one in a undergone training on how to million”. Another nominee said: “Mr Alibhai recognise the warning signs so swift shows great humility, kindness and Her nominee added: “Without action can be taken. his natural gentle nature typifies exception, each child loves her and According to her nomination, what delivering world-class health she always brings a smile to their Daminee has a “professional but care should be like.” faces.” The nominee also described approachable style and she has been her as being “unfailingly cheerful”. an asset to the team and a pleasure to work with”.
9 ALL THE WINNERS (IN NO PARTICULAR ORDER) • Safety award: the matron team at Queen Square • Kindness award: David Chal (general manager, emergency division) • Teamwork award: Radiotherapy play team • Improving award: Henry Wilson (head of programme, admin transformation) • Nurse or midwife leader of the year award: Linda Huggins (clinical practice facilitator/nurse educator) Junior doctor or dentist Outstanding admin and • Top quality patient care award: facial pain multi-disciplinary team at Eastman of the year winner support contribution Dental Hospital Jonathan Coppel, anaesthetics award winner • EHRS champion of the year: Alexa specialty registrar, emergency Shirine Yasse, events and Coombes (clinical systems designer, division education centre manager electronic health record system) Jonny’s nomination read: “He is a Organising more than 2,000 vital • Contribution to world–class research brilliant colleague who has taken Epic training sessions across 35 award: REGAIN team his rotation in acute medicine in his rooms and nine locations is no easy • Volunteer of the year award: Sheila stride. He is a junior doctor who feat, but Shirine approached the Saunders values patient safety and experience, task with a “highly commendable, is kind to staff and patient groups can-do attitude and resilience”. • Apprentice of the year award: Manisha at all levels, and is always striving to Shirine has worked many long days Bhogal (staff experience team) improve the quality of care patients and weekends to achieve this, going • Chair’s achievement award: the fetal receive.” Jonny is well-liked by his above and beyond expectations. surgery team peers and has made a real effort Shirine received three nominations to boost morale by organising • Chief executive’s leadership award: which proves how thankful everyone after-shift charity yoga sessions. His Natasha Phillips (chief nursing is to her in helping ensure the staff behaviour and attitude reflect the informatics officer) experience during Epic training was values of the trust and he is always a positive one. willing to go the extra mile for patients and colleagues. “IT’S AN HONOUR TO BE HERE” TV and radio presenter Adrian Chiles He was invited to the ceremony after he hosted the event and presented the wrote an article in the Guardian about his awards to the winners. friend’s positive experience of undergoing radiotherapy at UCLH. He told staff gathered at the awards ceremony: “Your pride in your Marcel Levi, chief executive, said: “It’s organisation is amazing. fantastic to be able to celebrate the achievements, hard work and dedication “It’s great to come and pay tribute to you of so many of our brilliant staff. all. From the porters to the profs, it’s a great honour to be here.” “I am proud of every single one of you.”
10 “I cried every day for a year”– how an innovative clinic is helping those with extreme facial pain An cutting-edge clinic is helping those who suffer with team includes clinical psychologists, physiotherapists, a sudden and excruciating facial pain which can feel like clinical nurse specialist, neurosurgeons, oral physicians electric shocks. and dentists. This approach means that often patients can manage the condition through a combination Trigeminal neuralgia, a rare neurological condition of drugs, physiotherapy and psychological support, which sends sharp shooting pains to the face, drives meaning they do not need to have invasive, and often some patients to the brink of suicide. very complicated, surgery. Patient Alison Glenn said: “It was awful. It got to the Alison, who has been pain-free after undergoing stage where I was having flare ups every 20 minutes surgery to the nerve in her skull, added: “When I and I cried every day for a year. was referred to Joanna, she knew I had trigeminal “I couldn’t talk, eat, wash my face, brush my teeth neuralgia within five minutes. or go outside as the wind would set it off. It was “It was such a relief to be told what it was after two like being stabbed in the face. You do become quite and a half years of not knowing. depressed and isolated as you don’t want to go outside.” “I don’t know where I would be without Joanna and the clinic.” Prof Joanna Zakrzewska, UCLH consultant in facial pain, has been a specialist for 25 years. She decided Prof Zakrzewska said: “The clinic has been a great that radical action was needed to improve the way the success and it has really helped patients. They no condition is treated. longer have to go to A&E when they have flare ups as they can come to the clinic and get the treatment and She said: “Because it is a rare condition not many support they need.” people know how to manage it. One suicide is too many as we believe it can be managed.” The clinic was nominated for a British Medical Journal Clinical Leadership Award. It was shortlisted out of Prof Zakrzewska established a multi-disciplinary team 350 entries – a fantastic achievement for a fantastic and a holistic approach to treating the patient. The team! WHAT IS TRIGEMINAL NEURALGIA? • The pain can be caused by everyday activities such as touching your face or eating. Or it can happen at random with no obvious cause. • It is rare. 10 people in 100,000 in the UK develop it each year. Women tend to be affected more than men, and it usually starts between the ages of 50 and 60. It’s rare in adults younger than 40. • It’s usually caused by compression of the trigeminal nerve, which is inside the skull and transmits sensations of pain and touch from your face, teeth and mouth to your brain. The compression can be caused by a blood vessel pressing on the nerve, multiple sclerosis or a tumour.
11 Thank you to Amarino for the ice cream
12 Dr Shanom Ali Clinical microbiologist at the UCLH Environmental Research Laboratory
13 A DAY IN MY LIFE Dr Shanom Ali and his team I am passionate aim to prevent the spread of about trying to make the world safer infection. My day starts... On another day I may be trying What do you love about With porridge and a cup to bring C. difficile spores back your job? of tea at my home in rural to life from inside a 400-year I am passionate about trying Northamptonshire, around 100 old mummy that was found to make the world safer and miles north from London. I take perfectly preserved in the Korean turning an idea into something. the train into London every day. Permafrost. For example, we are in the race I also enjoy teaching students/ to find new antibiotics. We are What does a working to find new medicine trainees from nearby UCL, where microbiologist do? and develop new ways of I am associate professor of In a nutshell, our team tries to microbiology and I also lecture delivering antibiotics so they capture and identify microbes at the London School of Hygiene are more effective in healing that may cause infection and and Tropical Medicine (LSHTM). infection. Microscopy is so then suggest ways to prevent fascinating; I rather like studying and control its spread to others. What might surprise our fungi infections – they are quite We focus on the “patient readers? spectacular when looked at environment” – i.e. drinking/ under the microscope, full of tiny bathing water, air quality, The design of everyday objects detailed structures! everyday surfaces that we like basins, taps, showers, toilets, touch, medical instruments etc. bedrails and everyday surfaces can really help stop infections The job draws on skills from spreading. They can be a hotbed many disciplines: physics, for microbes. The shape of a hand chemistry, biology, medicine, basin or the intensity of a toilet healthcare…essentially problem flush can minimise the risk of solving. contaminated water splashing on a person and spreading disease, What does a typical day for instance. entail? Over the past ten years, I have One day I might undertake worked on prototypes with diagnostic work to test water academic colleagues and private samples to ensure there are manufacturers to bring new no signs of legionella or products to the market. These pseudomonas. The next I have varied from developing could be researching which plasma gas jet-streams that types of bed rails or keyboards disinfect hands to self-cleaning have the most effective anti- glass for iPad tablets; introducing microbial properties against robots that disinfect patient MRSA and E.coli and which rooms; and using ultra violet to cleaning strategies to employ. keyboards that self-clean when exposed to daylight.
14 Artificial intelligence revolutionising healthcare When it comes to developing artificial intelligence that will patients. For example, a teenager may be more likely to help transform the way patients experience our hospitals, struggle with early morning appointments, or someone with neurology professor Parashkev Nachev and colleague Amy visual disability may prefer an appointment during daylight Nelson are out in front. hours. They are part of the team identifying how complex Amy Nelson, a former junior doctor at UCLH and computational modelling – now often referred to as AI or computational neuroscientist, agrees that this is “just the artificial intelligence – can help solve everyday challenges, beginning”. including cutting down on the number of missed She said: “Instead of painting in black and white you have appointments and making sure we roster enough staff to a whole palette of colours to paint a much richer picture of cover the busiest shifts in A&E. what is going on. AI is the future.” Dr Nachev, whose post is funded by biomedical research charity The Wellcome Trust, was one of the first AI healthcare pioneers ten years ago. Patient confidentiality is protected He said: “The overarching question is: How can we use UCLH follows stringent legal rules and guidelines to these computational models to help our hospitals serve our protect patient confidentiality when using data for patients – and not the other way round? We have to capture research. UCLH is creating an infrastructure securely patients’ individuality, accurately predict likely behaviour and inside the digital boundaries of the hospital, operated focus on what is relevant to them.” by UCLH staff, which will further protect patient confidentiality. A team from the National Institute for Health Research UCLH Biomedical Research Centre created an algorithm to predict which patients are most likely to miss their appointments. They looked at routine admin data including a wide array of AI offers improvement in care variables that can influence attendance, such as appointment day, number of previous scans, and how far from the hospital Once it undergoes rigorous testing, AI can also be used the person lived. UCLH plans to roll out a new system that in clinical settings offering huge improvements in care intelligently tailors reminder phone calls to the likelihood of for patients. For example, it is currently helping to track non-attendance. the way the brain responds to the treatment of multiple sclerosis, potentially improving the care of those Missed NHS appointments have been estimated to cost the suffering from the condition. You can read more about health service around £1 billion a year (NHS Digital). this in the news section of our website In future, more complex algorithms could help automatically www.uclh.nhs.uk/news predict the best appointment times to offer individual
15 UCLH Charity, the official charity of UCLH, invests nearly £10m every year to improve and enhance patient care. The charity funds research, specialist equipment, improvements to the environment, service innovations and training and development for staff to help UCLH provide high quality care. With the imminent opening of the new Royal National ENT and Eastman Dental Hospitals, we are funding four state- of-the-art virtual reality phantom heads to give therapy students from the Eastman Dental Education Centre the best possible start to their careers. The simulators can also be used for recruitment and assessment. The high-tech kit (see photo) means students can hone their skills by performing dental treatments like fillings, root canal provides an exact feeling of the objects and materials being and crowns in a 3D virtual environment. The phantom heads worked on. The heads come with an extensive library of are about as close to real life as you can get. tooth and instrument models which will enhance our training Tim Hodgson, divisional clinical director at the Eastman programmes and potential for research. The new equipment Dental Hospital, said: “Patient scans can be imported so will enable us to maintain our position as one of Europe’s students can work on real life cases, and the drill hand piece leading dental education providers.” The new Royal National ENT and Eastman Dental Hospitals opens in October 2019. It brings together two world leading centres of excellence in a nine-storey building in Huntley Street. As well as providing dental treatment, the new facility provides specialist care for conditions relating to ear, nose, throat, hearing, speech and balance. It includes a floor dedicated to the care of children and young adults. The Royal National Throat Nose and Ear Hospital on Gray’s Inn Road will remain open after October 2019 for wards, theatres and sleep diagnostics. All services provided by the Eastman Dental Hospital will move to the new facility on Huntley Street, and the old site on Gray’s Inn Road will transfer to its new owners, UCL. Visit www.uclh.nhs.uk/ENTandDental DATE FOR YOUR DIARY • Make a Will Week 7-13 October - write your will assisted by a solicitor in return for a donation to UCLH Charity The fundraising team is on hand to support you should you wish to raise money for UCLH. Contact us: @UCLHcharity TheUCLHcharity 020 3447 9360 uclh.enquiry.charity@nhs.net www.uclhcharity.org.uk / Registered charity no. 1165398
WHAT’S ON Listening event a great success Young patients and their carers and family members were given the opportunity to share their views and opinions on our upcoming Proton Beam Therapy Centre at our most recent Listening Event. More than 35 people attended and gave feedback on the waiting areas, the interior design and the activities available for young patients while they are waiting for their appointments. To make the event extra special, there were face painters, cake decorating classes, magic shows and poem writing. The event was a lot of fun, but most importantly helped us understand the young patient’s journey and how we can meet their needs within the hospital. If you would like to take part in future listening events, workshops or involvement events, please contact the Patient and Public Involvement team on uclh.ppi@nhs.net ANNUAL MEMBERS’ MEETING Date: Wednesday 25 September, 5pm-8pm To register, email uclh.members@nhs.net, call 020 3447 9290 or register online at Venue: Education Centre, 1st Floor, 250 Euston Road, www.uclh.nhs.uk/MembersMeet. London, NW1 2PG Speakers: Professor Anna David talking about fetal surgery If you receive your copy of UCLH Magazine via post in babies with spina bifida and Professor Emma Morris and you wish to unsubscribe, please contact on bone marrow transplants to treat adults with immune uclh.members@nhs.net or 020 3447 9290 system disorders. Save the date Come and see how UCLH Charity is supporting services for patients at UCLH – and how you can make a difference – at this year’s festive open event. Save the date, Thursday 5 December, 4:30pm-6:00pm. Join us in the University College Hospital atrium for festive cheer, mince pies, music and the Christmas tree light switch on from a special guest. See you there! For more details email: uclh.enquiry.charity@nhs.net
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