Things to try when someone with dementia stops recognising you Caring for someone with dementia - Dementia UK

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Things to try when someone with dementia stops recognising you Caring for someone with dementia - Dementia UK
Things to try when someone
with dementia stops
recognising you
Caring for someone
with dementia
Things to try when someone with dementia stops recognising you Caring for someone with dementia - Dementia UK
2   Dementia UK

Dementia and                           For some people with dementia,
recognition                            the gradual loss of recent
                                       memories means the person may
As their dementia progresses,
                                       still remember you, but expect to
some people with a diagnosis
                                       see a younger person in front of
will stop recognising people
                                       them.
they know, even close family
members. This can be upsetting         In others, the part of the brain
for families as well as the person     that is responsible for recognising
themselves. Attempts to remind         faces can become damaged. This
the person who the people in front     is referred to as ‘proposagnosia’.
of them are, can be confusing and      If the person diagnosed with
frustrating for them.                  dementia is failing to recognise
                                       you or others for the first time, or
But it’s still important to keep
                                       seems distressed in your company,
these connections with the
                                       it’s worth checking that there isn’t
person with dementia, and to
                                       another reason for this, such as
include and involve them wherever
                                       infection, medication changes,
possible. Familiarity and support
                                       constipation etc.
from the people who know them
best, will help them feel safe and     Some symptoms associated with
comfortable; and occasional            dementia can be caused by other
moments of recognition can make        health problems, so always visit
it all worthwhile.                     your GP if you’re unsure.
Difficulty with recognising familiar
people does not happen in all types
of dementia; it’s more common in
Alzheimer’s disease for instance,
and rarer in vascular dementia.
Things to try when someone with dementia stops recognising you Caring for someone with dementia - Dementia UK
Things to try when someone with dementia stops recognising you           3

Methods for prompting                 There are cues you can use to help
a person’s memory?                    the person with dementia make the
                                      connections between the past and
Some people with dementia appear
                                      the present. The following tips may
to ‘travel back in time’, reliving
                                      help to do this:
memories from when they were
younger. They might expect grown      • Put up photos around the house
up children to be small again, or       of important times you were
expect their parents to still be        together, such as weddings,
alive, or even revert back in their     birthdays, children’s parties
mind to previous marriages or
                                      • Show the progression of time in
relationships.
Things to try when someone with dementia stops recognising you Caring for someone with dementia - Dementia UK
4     Dementia UK

    these photos, so that they show     that the person would associate
    a spouse or partner when young,     with you; these could include
    but also throughout time and        a favourite item of clothing or
    how they appear now                 styles from when you were both
                                        younger
• Keep a photo album on display
  with the photos clearly marked      • Wear aftershave or perfume that
  with people’s names, the year         the person associates with you.
  and the event, following the          If they have a favourite perfume
  progression from the past to the      or aftershave, encourage its
  present day                           use; often the sense of smell can
                                        evoke positive memories when
• Wear clothes around the house
                                        words cannot
Things to try when someone with dementia stops recognising you           5

Finding other ways to                 • Playing some familiar music
reconnect                             • Watching a favourite film
It can be very difficult when
                                      • Drawing pictures
someone with dementia stops
recognising you. But there are        • Going for a walk and talking
things you can do to keep your          about the things you see on the
connection with the person, and         way
your relationship with them, warm
                                      • Flower arranging
and open.
                                     • Doing a jigsaw puzzle, if possible
If you can, try ‘entering into their
world’, and asking the person
diagnosed with dementia about
                                     Methods for
the memories they mention.
                                     communicating with
Encouraging them to talk about
                                     someone with dementia
what feels familiar will help them   • Keep yourself in the person’s
to feel at ease. Try not to remind     eyeline, and try not to suddenly
the person with dementia of more       appear from the side or from
recent realities that they’re having   behind
trouble grasping, such as the death
                                     • Speak clearly and in short
of their parents, as this can cause
                                       sentences
distress and confusion. Instead talk
about happy memories and events • If the person is struggling
that are important to them. Taking     to recognise you, introduce
part in activities together can be     yourself and tell them about
a good way to reconnect with a         the connection between you,
person with dementia. Anything         for instance: “Hello mum, it’s
you both enjoy can help you feel       Julie and I have little Danny, your
closer, such as:                       grandson with me.”
                                      • Be reassuring; look the person in
                                        the eye and smile
                                      • If a person with dementia is
6     Dementia UK

    getting agitated, take yourself to     say something that isn’t true;
    another room for a few minutes         this can lead to distress and
    before coming back in, calmly,         frustration on all sides. Try to
    and saying something like:             imagine how the person with
    “Hello, I’m back now, how lovely       dementia is feeling
    to see you.”
                                         Remember, not being recognised
• Try not to correct the person          doesn’t mean you’re totally
  if they get your name wrong or         forgotten.
Things to try when someone with dementia stops recognising you      7

  Sources of support
  Dementia UK resource on Creating a life story
  www.dementiauk.org/life-story
  Dementia UK leaflet on Changes in perception and hallucinations
  www.dementiauk.org/changes-in-perception
  Dementia UK leaflet on False beliefs and delusions
  www.dementiauk.org/false-beliefs
  Dementia UK leaflet on Tips for better communication
  www.dementiauk.org/better-communication
  Dementia UK leaflet on Looking after yourself when you care for
  someone with dementia
  www.dementiauk.org/looking-after-yourself-when-you-care-for-
  someone
  Dementia UK leaflet on Music therapy
  www.dementiauk.org/music

    Our Admiral Nurses can help
    If you have any questions or concerns about dementia,
    you can call the dementia specialist Admiral Nurses on our
    Helpline for free.
    Call 0800 888 6678 or email helpline@dementiauk.org
    Opening hours:
    Monday-Friday, 9am-9pm
    Saturday-Sunday, 9am-5pm
The information in this                              We receive no government
booklet is written and                               funding and rely on voluntary
reviewed by dementia                                 donations, including gifts
specialist Admiral Nurses.                           in Wills.

We are always looking                                For more information
to improve our resources,                            on how to support
to provide the most relevant                         Dementia UK, please visit
support for families living                          www.dementiauk.org/donate
with dementia. If you have                           or call 0300 365 5500.
feedback about any of our                            Publication date: Dec 2020
leaflets, please email                               Review date: Dec 2022
feedback@dementiauk.org                              © Dementia UK 2020

     If you’re caring for someone with dementia or if you have
          any other concerns or questions, call or email our
          Admiral Nurses for specialist support and advice.

      Call 0800 888 6678 or email helpline@dementiauk.org
                      Open Monday – Friday, 9am – 9pm
                      Saturday and Sunday, 9am – 5pm

          www.dementiauk.org • info@dementiauk.org
                          Dementia UK, 7th Floor, One Aldgate, London EC3N 1RE
      Dementia UK is a registered charity in England and Wales (1039404) and Scotland (SCO47429).
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