The United Nations Convention on the Rights of People with Disabilities - What does it mean for you?

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Equality and Human Rights Commission
Guidance

  The United
  Nations
  Convention on the
  Rights of People
  with Disabilities
  What does it
  mean for you?

                            A guide for disabled people and
                            disabled people’s organisations
www.equalityhumanrights.com

Contents
Foreword                                                         2

What this guide covers                                           3

Part 1
Introducing the United Nations Convention on
the Rights of People with Disabilities                           5

Part 2
Know your rights                                                14

Part 3
Making rights a reality                                         34

Part 4
Further information and resources                               51

Contacts                                                        57

                                                                  1
UN Convention on the Rights of People with Disabilities

Foreword
If you are a disabled person the United Nations
Convention on the Rights of People with Disabilities
(the Convention) is for you.

                                                 The Commission’s role is to ensure Britain
    The Convention is a new international
                                                 makes rapid progress towards making
    human rights agreement that:
                                                 the Convention rights a reality for
                                                 disabled people.
      Recognises that we are all equal.
      Disabled people have the same
      rights as everyone else to freedom,         We have produced this guide so that
      respect, equality and dignity.              you can find out:

      Brings together all our basic human            What your human rights are and
      rights in one place.                           how they are protected.
      Describes what government has                  What difference the Convention
      agreed to do to make these rights              could make to your life.
      real.
                                                     How you can be involved in putting
                                                     the Convention into practice.
The Convention was created because
                                                     How you can use the Convention to
often our human rights are not respected
                                                     challenge injustice and improve
and we face many barriers to inclusion
                                                     services.
in society.

The Convention is not just a paper               This guide is for people living in England,
‘declaration’ without any teeth. It requires     Wales and Scotland. We hope you find it
government to take action to remove              useful. The Equality Commission for
barriers and give disabled people real           Northern Ireland and the Northern
freedom, dignity and equality. We can use        Ireland Human Rights Commission
it in lots of different ways to make sure our    have produced a separate guide which
rights are respected and to get a better deal.   explains how the Convention will work
                                                 in Northern Ireland.
The Equality and Human Rights
Commission is working hard to raise              Mike Smith
awareness of the Convention among                Commissioner and Chair of the
disabled people, legal advisers and              Disability Committee, Equality and
public bodies.                                   Human Rights Commission.

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What this guide covers
Part 1: Introducing the United Nations Convention
on the Rights of People with Disabilities
This Part explains what the Convention is, and what it means for you. It describes
the obligations of the government, and the role of the Equality and Human Rights
Commission and the Scottish Human Rights Commission in the implementation
of the Convention. It also explains how the Convention works in relation to the
Human Rights Act and disability discrimination legislation including the
Equality Duty.

Part 2: Know your rights
This Part sets out the key principles of the Convention, what each right says and what
it means, with examples.

Part 3: Making rights a reality
This Part shows you how to make the Convention work for you. It explains how
disabled people and disabled people’s organisations can get involved in the monitoring
and implementation of the Convention, and how you can use it to bring about change
at local and national level. It also sets out how you can use the Convention to make
a complaint.

Part 4: Further information and resources
There are many places where you can get help or find more information and as the
Convention becomes more a part of everyday life all over the world more resources will
become available. This Part lists some of the key resources where you can find help.

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Part 1
Introducing the United
Nations Convention on
the Rights of People
with Disabilities
This Part gives you an introduction to the
Convention. It covers:
 What is the United Nations Convention     What role do disabled people and
 on the Rights of People with              their organisations have?
 Disabilities?                             The role of the United Nations.
 Why did this Convention come about?
 Why is the Convention important for
                                         What is the United Nations
 disabled people in Britain?
                                         Convention on the Rights of
 Who has rights under the Convention?    People with Disabilities?
 What obligations does the Convention
                                         The United Nations Convention on the
 put on the government?
                                         Rights of People with Disabilities is a new
 Reservations.                           international agreement about protecting
 How does the Convention relate to       and promoting the human rights of
 domestic legislation, in particular     disabled people throughout the world.
 the Human Rights Act and the
 Equality Duty?                          In this guide we use the term ‘Convention’
                                         for short. There are other Conventions,
 Whose job is it to implement the
                                         for example the European Convention on
 Convention?
                                         Human Rights and the United Nations
 What role do the Equality and Human     Convention on the Rights of the Child. If
 Rights Commission and the Scottish      we talk about a Convention other than the
 Human Rights Commission have?           United Nations Convention on the Rights
                                         of People with Disabilities, we will use its
                                         full name.

                                                                                       5
UN Convention on the Rights of People with Disabilities

Human rights are a set of basic                  convention. Many disabled people and
rights and freedoms that everyone                their organisations across the world were
is entitled to, regardless of who they           involved in agreeing its contents.
are. They are about how the State
must treat you. They recognise that              Like everyone else in the world, disabled
everyone is of equal value, has the              people’s human rights have been
right to make their own decisions                enshrined in the Universal Declaration of
and should be treated with fairness,             Human Rights since 1948. To that end the
dignity and respect. Human rights                Convention does not give disabled people
have been written down in                        ‘new’ human rights. However, it was
international agreements such                    recognised that action needed to be taken
as the Universal Declaration of                  to ensure rights on paper become rights in
Human Rights (1948) and the                      everyday reality. Too many obstacles still
European Convention on Human                     lead to disabled people’s human rights
Rights (1950).                                   being abused or neglected.

The Convention describes the steps which         The aim of a disability convention was to
governments must take to make sure               set out the steps which every country in
disabled people enjoy their human rights to:     the world should take to remove these
                                                 obstacles. Many countries – including
    equality before the law without              the UK – agreed that there should be a
    discrimination                               specific Convention to drive forward real
    make their own decisions                     dignity, equality and inclusion for
                                                 disabled people.
    have their family life respected
    freedom from exploitation, violence          The text of the Convention was agreed
    and abuse                                    at the United Nations (UN) in December
                                                 2006. The UK signed the Convention
    an inclusive education
                                                 on 30 March 2007 and ratified it on
    a decent standard of living                  8 June 2009.
    support to participate in society and live
    in the community                             When a country ‘signs’ the
                                                 Convention it means it agrees with
    accessible physical environments and         what the Convention says about
    information                                  human rights for disabled people.
These rights and others not listed here are
contained in ‘Articles’. We explain what         When a country ‘ratifies’ the
the rights mean in Part 2.                       Convention it agrees to do what
                                                 the Convention says and make
                                                 changes to ensure that the rights
Why did this Convention                          in the Convention are respected
come about?                                      in practice.

Disabled people campaigned for over
20 years to get their own human rights

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Why is the Convention                           failure to respect human rights
important for disabled people                   and to work towards disability
in Britain?                                     equality.
                                              7. It can be used by disabled people
1. The government will be held to                and their organisations as a
   account by means of reports on its            framework to negotiate and
   performance in promoting disabled             influence national and local
   people’s rights by the UN Disability          matters – for example when a local
   Committee.                                    authority is proposing to withdraw
2. It should give disabled people a              essential social support services which
   stronger say in the policies that             will affect disabled people’s rights to
   affect their lives. Government is             live independently.
   expected to involve disabled people in     8. It should help promote positive
   the plans to implement the Convention         attitudes towards disabled people
   when it is making new laws and policies       as the government has an obligation
   which affect disabled people, and when        to raise awareness and foster respect
   it is writing reports for the UN on how       for the rights and dignity of disabled
   the UK is meeting its obligations under       persons, to tackle prejudice and abuse
   the Convention.                               against disabled people, and to promote
3. It sets new standards on how                  awareness of what disabled people can
   government and public bodies                  contribute to society.
   should ensure that disabled
   people’s human rights should be
   protected and promoted. This is the
   first human rights agreement that talks
   in detail about things like an inclusive
   education or the right to live where you
   want to.
4. It puts wide-ranging
   responsibilities on government
   to take practical action to
   strengthen disabled people’s
   control over their own lives and
   full participation in society.
5. It could lead to stronger and fuller
   protection against disability
   discrimination. Government may
   need to take action to close gaps in
   UK law on disability discrimination.
6. It can be used to interpret the
   Human Rights Act and, alongside
   the Equality Duty, to challenge

                                                                                           7
UN Convention on the Rights of People with Disabilities

    Case Study: The difference a Convention makes

    The Children’s Rights Convention in Wales
    In 2004, the Welsh Assembly                  For example, the Welsh Assembly
    Government adopted the United Nations        Government:
    Convention on the Rights of the Child
    as the basis for all their policies and        was the first government in the UK
    programmes for children in Wales.              to appoint a Children’s Rights
    The seven core aims the Welsh assembly         Commissioner to act as a champion
    Government has set for children all stem       for children’s rights
    from the UN Convention on the Rights           set up Funky Dragon – the children
    of the Child. They cover issues like the       and young people’s Assembly passed
    best education and training possible,          a law requiring every school to have a
    good physical and mental health and            school council so that pupils can have
    the right for children to have their views     a real say in their education and how
    listened to.                                   their school is run

    The Welsh Minister for Children chairs         publishes a Children and Young
    a Cabinet sub-committee whose job is           People’s Wellbeing Monitor which
    to ensure the Convention is put into           measures progress on tackling child
    practice.                                      poverty and children’s enjoyment
                                                   of their Convention rights, and
    The Welsh Assembly Government’s                works hard to get the message across
    commitment to the Children’s Rights            to parents and carers that hitting
    Convention is delivering real benefits for      children is wrong and infringes
    children and young people.                     their human rights.

Who’s rights are recognised by                   disability’ includes people with long-term
the Convention?                                  impairments. However, it could also cover
                                                 people with short-term disabilities. There are
The Convention is about the human rights of      around 11 million disabled people in Britain
disabled people. That can be a person who        who have rights under the Convention.
has an impairment, illness, injury or health
condition and who may face barriers to being     The Convention is based on the ‘social
included in society. It includes Deaf people,    model’ of disability. It recognises that
people with learning disabilities, people with   people with impairments are excluded by
sensory impairments, people with physical        barriers created by society, and so are
impairments, people with mental health           disabled by inaccessible services, barriers
conditions, people with autism, people with      in the built environment or prejudice and
epilepsy and people who are HIV positive.        stigma. It also recognises that these barriers
The Convention says that ‘a person with a        change over time for the individual.

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What obligations does the                      gather information and statistics about
Convention place on the                        the position of disabled people in
government?                                    society so it can track progress and
                                               develop better policies.
When a government has ratified the
Convention it commits to taking practical    The Convention places obligations on
action to make rights real. It should:       the ‘State Party’: for Britain this is the UK
                                             Government. However, protecting and
  take steps so that disabled people can     promoting many of the rights under the
  enjoy all their rights – for example       Convention depends on action by regional
  making sure that disabled people have      and local authorities and other national
  full protection against all forms of       bodies. Therefore, the UK Government
  discrimination – including taking          should take steps to ensure these
  action against failure to make             authorities (for example local health
  reasonable adjustments                     boards, local councils, inspectorates,
                                             police) are doing what is necessary to
  look at existing laws and say what
                                             implement the Convention. The Scottish
  changes need to be made
                                             Government and the Welsh Assembly
  abolish laws and practices that            Government will need to ensure such
  discriminate against disabled people       actions are taken in Scotland and Wales
  pass new laws and make new policies        in areas where responsibility for delivering
  where necessary                            legislation, services or participation
                                             has been devolved.
  take account of disabled people’s
  human rights in everything it does         If the government fails to take these
  (people often call this ‘mainstreaming’    steps, then it may be in breach of the
  – thinking at the beginning of a process   Convention. In Part 3 we explain how
  about making sure that disabled people     you can deal with this, and also how
  are not excluded)                          you can use the Convention in relation to
  avoid doing anything that infringes        other public bodies and anyone delivering
  disabled people’s Convention rights        public services on their behalf.

  ensure that professionals who work
                                             It is worth noting that the Convention has
  with disabled people have training to      different types of rights. Some rights give
  understand how to respect their rights     the government flexibility, others do not.
  ensure that the private sector and         For example, taking somebody’s life or
  individuals respect the rights of          torturing a person is never allowed.
  disabled people                            Other rights can be restricted in some
  promote accessibility including the        situations which must be set out in law,
  development of standards                   for example people have the right to
                                             liberty, but they can be sent to prison
  ensure international development           because of an offence written in the law.
  programmes address disability issues
  and include disabled people, as well as
  working with other international bodies

                                                                                        9
UN Convention on the Rights of People with Disabilities

Many of the rights in the Convention            The reservations and the interpretative
require the government to take proactive        declaration are discussed in Part 2, under
steps. However, the Convention recognises       the right to make your own decisions
that many countries may not be able to          (Article 12), liberty of movement and
take steps to make some of the rights           nationality (Article 18), right to education
real for all disabled people immediately.       (Article 24), and right to work (Article 27).
The government should still try to do
everything in its power and use all             The Equality and Human Rights
available resources to make sure disabled       Commission, the Scottish Human Rights
people enjoy their human rights as              Commission, the Equality Commission for
quickly as possible. This is often called       Northern Ireland and the Northern Ireland
‘progressive realisation’. The UN is likely     Human Rights Commission believe the
to expect a relatively wealthy country like     reservations and declaration made by the
Britain, which has already got many of the      UK Government are either unnecessary
basics in place, to be doing better than a      or invalid and should be withdrawn.
developing country.

While governments are working on                How does the Convention
improvements to rights they should still:       relate to our domestic laws, in
                                                particular the Human Rights
     avoid taking steps which deny disabled     Act and the Equality Duty?
     people their enjoyment of human
     rights, and                                The UK Government needs to make sure
                                                that the laws we have at home meet the
     ensure everyone has the minimum
                                                Convention’s requirements. If not, then
     essential level of support they need in
                                                it should change the laws. There are a
     terms of food and shelter, and basic
                                                number of ways that you can hold the
     levels of health care and education.
                                                government to account if our laws
Part 3 explains how you can use the             or their implementation don’t meet the
Convention.                                     requirements of the Convention. You
                                                can find out more about this in Part 3.

Reservations                                    If a disabled person believes that their
                                                rights under the Convention have been
When the UK Government ratified the              breached, then they cannot take the
Convention, it made reservations against a      government or any other public body to
number of Articles and one interpretative       a court, as the Convention is not directly
declaration. A reservation is a statement       part of our domestic law. However, the
that says that the government will not          Convention can play an important
(yet) take steps on a certain issue. An         supporting role when cases are taken
interpretative declaration sets out the         to court about the Human Rights Act,
government’s understanding of what a            disability discrimination legislation and,
particular Article means and agrees to          in particular, the Equality Duty.
ratify it on condition that it is interpreted
in this way.

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The Human Rights Act is a law passed           the Human Rights Act, courts should take
in the UK in 1998 that says public             account of international law as well as
authorities must respect the human rights      decisions of the European Court of Human
of everyone in Britain and Northern            Rights. In 2009, the European Court of
Ireland. The rights it protects are based      Human Rights referred to the Convention
on an agreement called the European            in a decision about whether disabled
Convention on Human Rights. That               people were treated unfairly. The full
agreement includes some of the same            name of this case is Glor v Switzerland
rights as the disability Convention, for       (Application no. 13444/04, judgment on
example the right to life and the right        30 April 2009).(1)
to a fair trial. However, the disability
Convention also includes a broader range       Disability discrimination law says
of rights, in particular rights that cover     that disabled people should be free from
social, cultural and economic issues such as   discrimination and harassment and that
the right to housing and the right to work.    employers, educational establishments and
                                               service providers in Britain must make
The disability Convention sets out in more     reasonable adjustments to ensure disabled
detail the steps that the government must      people can access their services and fully
put in place to ensure disabled people’s       participate. The Convention could be used
human rights are protected and promoted.       to interpret some concepts, for example
For example, Article 8 of the Human            it could help interpret what is meant by
Rights Act protects people’s right to          ‘reasonable adjustment’ in cases which
private and family life, including the right   would reinforce their purpose as being to
to take decisions about their own lives and    remove barriers towards full participation.
to participate in the community. Article 19
of the disability Convention sets out some     Equality legislation also places a duty on
of the steps which government must take        public authorities to promote disability
to ensure that disabled people enjoy this      equality in everything they do. This guide
right, for example by ensuring disabled        was written in May 2010. This duty is
people have an equal choice to decide          called the Disability Equality Duty (from
where and with whom they live and that         the 1995 Disability Discrimination Act as
they have the support needed to live           amended). Soon it will be the Public
independently in the community.                Sector Equality Duty (from the 2010
                                               Equality Act) which will also cover
Now, when public authorities are thinking      equality in relation to age, sexual
about how they support human rights            orientation, sex, race, religion and belief,
they should also look at the Convention.       pregnancy and maternity, and gender
While you can’t bring a case directly in       reassignment. We think it will be the
the UK courts under the Convention,            Public Sector Equality Duty from April
the disability Convention can be used as       2011 although government has yet to
an interpretative tool in relation to the      decide the exact date. If you’re not sure
Human Rights Act. When interpreting            contact the Equality and Human Rights

1 For an unofficial translation into English, go
   to:http://www.mdac.info/images/page_image/Glor_v_Switzerland_en.doc
                                                                                          11
UN Convention on the Rights of People with Disabilities

Commission to find out. In this guide we         that this happens. The Office for
call it the ‘Equality Duty’.                    Disability Issues (ODI) is currently
                                                the focal point and co-ordinating
If public authorities are not meeting their     mechanism within the UK Government.
Equality Duty, then the Equality and            It will co-ordinate action across different
Human Rights Commission can take                government departments in the UK
legal steps to make sure they do so, or         and the devolved administrations to
disabled people can challenge them in           implement the Convention.
court (through something called ‘judicial
review’). Public authorities will be helped     Because Scotland and Wales decide many
in meeting their Equality Duty if they use      of their own laws and policies (this is
the standards set out in the Convention.        called ‘devolved matters’ – for example
                                                on health, social care and education),
The disability Convention can also be           the Scottish Government and the Welsh
used as an interpretative tool in relation      Assembly Government will be working
to disability discrimination legal cases.       on their own plans to implement the
                                                Convention in those areas. The ODI
There are many other laws in Britain that       will work closely with the devolved
already support disabled people’s human         governments in Scotland and Wales.
rights, for example the Chronically Sick
and Disabled Persons Act and the Mental
Capacity Act. These laws, and the way           What role do the Equality and
public authorities implement them,              Human Rights Commission
now need to be measured against the             and the Scottish Human
requirements of the Convention.                 Rights Commission have?

The use of the Convention, together             The Convention requires each government
with the Human Rights Act and                   to put in place a framework to promote,
equality legislation in advocacy and            protect and monitor implementation
legal cases, could help strengthen              of the Convention. It prefers that this
disabled people’s rights.                       framework includes one or more bodies,
                                                known as ‘national human rights
                                                institutions’, which can demonstrate
Whose job is it to implement                    independence. The Equality and Human
the Convention?                                 Rights Commission and the Scottish
                                                Human Rights Commission are both
The UK Government, in partnership               national human rights institutions.
with the devolved administrations of
Scotland, Wales and Northern Ireland,           Both commissions will monitor progress
is responsible for ensuring that the            being made by the governments of Britain
Convention is implemented.                      in implementing the Convention and
                                                report on that progress to the UN. They
The Convention requires each government         will provide advice and information to
to set up what is called a ‘focal point and a   disabled people and to public authorities.
co-ordinating mechanism’ to help ensure         They will also mainstream the Convention

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into their work – for example when             ‘shadow’ reports, through which disabled
enforcing the law or influencing               people and their organisations can set out
government policy.                             their views on what the government is
                                               doing (or not) to respect, protect and
                                               promote the rights under the Convention.
What role do disabled people                   Anyone can do this. There is information
and their organisations have?                  on how to do these reports on page 41.

The Convention says that ‘civil society’ and
disabled people and their organisations,       The role of the United Nations
in particular, must be closely involved
in monitoring how well the Convention          The UN has set up a committee of experts
is being put into practice. When               on disability rights to monitor what each
governments are monitoring progress            country that has ratified the Convention is
they must ensure disabled people play a        doing to put it into practice. Its actual title
full part in that process.                     is the ‘Committee on the Rights of Persons
                                               with Disabilities’ but in this guide we will
‘Civil society’ means individuals and          refer to it as the UN Disability Committee.
organisations that are not part of             In 2010 it had 12 members of whom nine
government. This includes:                     were disabled people.

  those people directly affected by human      The UN Disability Committee:
  rights violations
  voluntary organisations which work             can make General Recommendations/
  with them including Centres for                General Comments that say how certain
  Independent Living, self-advocacy              rights in the Convention should be
  groups, access groups, local disability        interpreted, for example what steps
  associations                                   they would expect States Parties to take

  other voluntary organisations such as          monitors the compliance of a State
  faith groups, youth groups, older people’s     Party with the Convention, and can
  groups, women’s groups and groups for          make recommendations about what
  lesbians, gay and bisexual people              more the government should do to
                                                 deliver disabled people’s human rights.
  parents of disabled children and               The UK Government has to submit its
  families of disabled people                    first report to the UN Disability
  human rights organisations                     Committee in June 2011.
  trade unions, and
                                               Some of the UN Disability Committee’s
  professional groups.                         powers come from a second agreement
                                               connected with the Convention called the
Disability groups should use the Convention    ‘Optional Protocol’. The UK Government
as a negotiation tool, for advocacy, and to    has also ratified this.
inform your arguments in legal cases. A
powerful way to influence the monitoring       You can read more about the UN
and implementation process is to write         Disability Committee’s work in Part 3.

                                                                                            13
UN Convention on the Rights of People with Disabilities

Part 2
Know your rights
This Part tells you about:
Key principles the government should adopt and
use for their policies and practices
Your rights under the Convention
• what does it say?
• examples of how you might use it.
If you think that your human rights have      discrimination) and some overlapping,
been breached or you think that a public      for example Articles 15 (about freedom
body, for example your council, health        from torture and degrading treatment)
service or government, should do more to      and 16 (about exploitation and abuse).
protect your rights, then you should think
about all the rights that may apply to your
situation. Often it is the case that more     Key principles the government
than one right applies.                       should adopt and use for their
                                              policies and practices
Because the Convention is still new, it has
not yet been used much in practice. That      The Convention sets out some key
is why we cannot give real-life examples.     principles which governments and public
As the Convention gets used more often,       bodies must take into account when they
we will find out more about what it means      are carrying out their work. Generally,
in practice. We have used examples where      public authorities should follow these
possible to help explain what each Article    principles. They should also identify what
could mean in practice. Some of the           they can do to positively promote them.
Articles of the Convention include more       These principles are:
detailed actions for governments to take
or include more complex issues. We have         Respect. Every person is of equal worth
therefore included more explanation and         and deserves to be treated with dignity
examples for some of the Articles.              and respect. Disabled people have the
                                                right to choose how to live their own
You will see that some Convention articles      lives and the freedom to make their own
are very broad, for example Article 5           choices. These rights must be respected.
(which is about equality and non-

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  Non-discrimination. Disabled people            Equality of opportunity. Taking positive
  must never be treated worse than               action to ensure barriers are removed.
  others, excluded from or denied access         Accessibility. Ensuring disabled people
  to services, education, work or social         can access buildings, housing, services,
  life on the basis of their disability.         information, leisure (and other areas
  Participation and inclusion. Disabled          listed in the Convention) on an equal
  people’s full and effective participation      basis to non-disabled people.
  and inclusion in society must be               Equality between men and women.
  supported.
                                                 Respect for disabled children as they
  Respect for difference and acceptance          grow up.
  of disabled people as part of human
  diversity and humanity.

Rights under the UN Convention on the Rights of People
with Disabilities
Article 5    Equality and non-discrimination
Article 6    Women with disabilities
Article 7    Children with disabilities
Article 8    Awareness-raising
Article 9    Accessibility
Article 10   Right to life
Article 11   Situations of risk and humanitarian emergencies
Article 12   Equal recognition before the law
Article 13   Access to justice
Article 14   Liberty and security of person
Article 15   Freedom from torture or cruel, inhuman or degrading treatment or punishment
Article 16   Freedom from exploitation, violence and abuse
Article 17   Protecting the integrity of the person
Article 18   Liberty of movement and nationality
Article 19   Living independently and being included in the community
Article 20   Personal mobility
Article 21   Freedom of expression and opinion, and access to information
Article 22   Respect for privacy
Article 23   Respect for home and the family
Article 24   Education
Article 25   Health
Article 26   Habilitation and rehabilitation
Article 27   Work and employment
Article 28   Adequate standard of living and social protection
Article 29   Participation in political and public life
Article 30   Participation in cultural life, recreation, leisure and sport

                                                                                         15
UN Convention on the Rights of People with Disabilities

Equality and non-discrimination                  stricter definition of who is a disabled
Article 5 says:                                  person, whilst the Convention might also
                                                 protect people, for example, with a one-off
     Everyone is equal before the law.           but severe mental health condition lasting
     Governments should outlaw all forms of      less than 12 months.
     discrimination on the basis of disability
                                                 Often you can use this right together with
     and ensure effective protection against
                                                 other rights in the Convention as in the
     disability discrimination.
                                                 example below concerning Article 30 which
     Governments should ensure that              sets out the right to take part in leisure.
     reasonable accommodation is made
     for disabled people.
     Specific measures are often needed
                                                  Example: Equality and
     to create equality for disabled people       participation in leisure
     in practice and are permitted under
                                                  A local authority decides to close a
     the Convention.
                                                  car park which gives easy access to
                                                  a beach, resulting in visitors having
What does this mean?                              to park further away, and to use an
                                                  alternative route which is steep.
Our existing disability discrimination law        This means that people with mobility
gives disabled people protection against          impairments and their family/friends
most forms of discrimination. It also gives       cannot go to that beach anymore.
disabled people rights to reasonable              This is a regressive step and also it
adjustments, and it allows employers and          puts disabled people at a disadvantage
service providers to treat disabled people        in comparison with other people.
more favourably than non-disabled people          Disabled people could highlight
(for example reserving parking bays               Articles 5 and 30 in their discussions
outside an office for disabled employees)          with, or a case against, the local
since this is often necessary to deliver          authority in such a situation.
equality in practice. The Human Rights
Act also provides important protection
against discrimination in the enjoyment
                                                 Protection for specific groups
of the rights it sets out, such as not to be     of disabled people
discriminated in the way the right to
                                                 Disabled women
respect for family life is protected.
                                                 Article 6 says:
However the Convention is broader
                                                   Governments should recognise that
than current British discrimination law.
                                                   disabled women and girls face multiple
For example, in British law, volunteers
                                                   discrimination (worse treatment
have little protection. Travel by air and
                                                   because of their gender and their
across water is also not fully covered
                                                   impairment).
nor do manufacturers have enforceable
duties to make their products accessible.
Also, disability discrimination law has a

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  Governments should ensure disabled          What does this mean?
  women can enjoy their human rights in
  full and should do everything possible      This makes it clear that disabled children
  to empower disabled women.                  also have full human rights, and that
                                              governments should take proactive steps
                                              so that disabled children can enjoy their
What does this mean?                          human rights and reach their full potential
                                              in education and in the community.
This means that governments must take
steps specifically related to disabled         It also says that governments should take
women – not just think about ‘women’          account of the age of the child in their
as a group, and ‘disabled people’ as          right to express their views.
another group.
                                              There is another important international
This helps you to highlight issues that       convention for disabled children in Britain
affect disabled women in particular, and      – the Convention on the Rights of the
get the government to address these           Child (CRC).
issues. For example, disabled women
are twice as likely to be the victims of
domestic violence, and often have              Example: Age of the child
limited access to support services.
                                               A housing authority is assessing the
There is another important international       needs of a family with a disabled child
convention for disabled women – the            for a bigger house. The disabled child
Convention on the Elimination of all           would like to have their own bedroom,
Forms of Discrimination Against                and not to have to share with their
Women (CEDAW).                                 sibling. If the child is 6 years old then
                                               this view will carry less weight than if
                                               the child was 13 years old – although
Disabled children                              the housing authority should always
Article 7 says:                                act in the best interest of the child.
                                               Therefore if there are disability related
  Governments should do everything             reasons why the 6 year old child should
  necessary to ensure disabled children        have their own bedroom then the
  enjoy their human rights on the same         housing authority should also take
  basis as non-disabled children.              account of those reasons.
  Decisions about disabled children must
  be in their best interests.                 What about other groups of
  Governments should ensure that;             disabled people?
     disabled children are supported to       The Convention specifically protects
     express their views, and                 disabled women and disabled children.
     disabled children’s views are listened   However the Convention also talks about
     to and taken seriously.                  how governments must recognise the
                                              diversity among disabled people.

                                                                                       17
UN Convention on the Rights of People with Disabilities

                                              These steps include – but are not limited
 Example: How the                             to – public awareness campaigns, building
 Convention could be                          positive attitudes into education, influencing
 used to protect disabled                     the portrayal of disabled people in the
 people who also belong                       media, and promoting disability equality
 to another group                             training, including awareness of the legal
                                              rights of disabled people.
 A Gypsy family includes an older woman
 with severe learning disabilities. She
 has little sense of danger and often         What does this mean?
 runs away. The family’s mobile home is
                                              Disabled people can enjoy full human
 in a field, away from roads. However,
                                              rights only if society changes its attitude
 the council says that they do not have
                                              towards, and its expectations of, disabled
 permission to have their mobile home
                                              people. This won’t happen by itself.
 in the field, and they have to move to a
                                              Article 8 highlights four important steps
 car park which is next to a busy road.
                                              that governments and other public bodies
 This is a dangerous situation for the
                                              should take to bring about a culture
 older woman. In their discussions
                                              change, including the need to promote
 with, or a case against, the council the
                                              disability equality training.
 Gypsy family could use the right to life
 (Article 10), freedom to choose their
                                              You can use this Article to promote
 residence (Article 18), and respect for
                                              disability equality training for policy-
 home and the family (Article 23) in the
                                              makers and decision-makers (local and
 Convention to argue that the council
                                              national) so that they know how to
 should provide an alternative solution
                                              respect, protect and promote the human
 which takes account of the needs of the
                                              rights of disabled people so that disabled
 older woman and the Gypsy family.
                                              people can reach their potential in society
                                              and that their contributions are valued.

Awareness-raising
Article 8 says:

     Governments should take immediate,
     effective and appropriate steps to;
       raise awareness throughout society,
       including at family level, and to
       encourage respect towards disabled
       people
       eliminate prejudice and abuse
       against disabled people
       raise awareness of the value of the
       contribution disabled people make
       to society.

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                                                   support access to public buildings
 Example: Need for                                 and facilities
 awareness-training                                promote accessible information
 about disabled people                             and access to Information and
 and their rights                                  Communication Technology
                                                   (for example computers and the
 It is very important that doctors and             internet) for disabled people
 other medical professionals are aware
                                                   promote inclusive design for new
 of disabled people’s rights under the
                                                   information and communication
 Convention. For example, if they place
                                                   technologies so that, from the start,
 a ‘Do Not Resuscitate’ order on
                                                   these are designed to be accessible to,
 disabled people’s medical records
                                                   and easy to use for, disabled people.
 without their consent, this may breach
 their right to life. Also, doctors should
 not make assumptions about the               What does this mean?
 quality of life of disabled people.
                                              Disabled people can use this Article to
                                              measure whether the government and
Accessibility                                 public bodies are doing enough to ensure
Article 9 says:                               accessibility of the environment. For
                                              example, if a local authority is writing
  To enable disabled people to live           a Local Development Framework, then
  independently and take part in all areas    they should include an accessibility
  of life government should take action       statement which underpins the rules
  to ensure accessibility, equal to that of   for new buildings, businesses, and the
  non-disabled people. This includes          transport network. This statement could
  taking action in relation to the built      reflect the rights set out in the Convention.
  environment, transport, public services
  or facilities, housing, as well as
                                              Right to life
  information and communication
                                              Article 10 says:
  services, and emergency services.
  Governments should take steps to;             Every human being has the right to life.
    develop and monitor minimum                 Governments must do everything
    access standards and guidelines for         necessary to ensure disabled people
    public services and facilities              enjoy this right on an equal basis with
                                                other people.
    ensure that the private sector makes
    services to members of the public
    accessible                                What does this mean?
    provide accessibility training            This means that the State must not take
                                              away anyone’s life, and government must
    ensure signs in public buildings are
                                              take reasonable steps to protect your life.
    in easy read and Braille                  For example there should be adequate
    ensure more assistance and sign           laws in place to protect you from others
    language interpreters are available to    who might try to take away your life.

                                                                                          19
UN Convention on the Rights of People with Disabilities

There have been legal cases about ‘Right        of volcanic ash, governments should work
to Life’ under Article 2 of the European        together to make sure that disabled people
Convention on Human Rights. The right           are not put at risk, for example if they
to life only applies once people are born.      need access to medicine, then they should
Authorities must protect life where they        make every effort to provide this.
know, or ought to know, of immediate risk
to life from oneself or from another (for       Governments and public bodies
example, a stalker). Doctors must provide       should also think about accessible
life-prolonging treatment, such as water        communications around emergencies.
and artificial feeding, if a terminally ill      For example, it would not be good enough
patient with capacity to make this decision     to set up a helpline where people can
asks for it. Also, if a disabled person dies    ask for information or help which is not
an unnatural death whilst living under the      accessible for groups of disabled people,
care of the State, for example by committing    including Deaf people and people with
suicide in prison or a mental health            speech impairments.
institution, an investigation must be
carried out.

Situations of risk and                          Equal recognition before the law
humanitarian emergencies                        Article 12 says:
Article 11 says:
                                                  Disabled people have the right to equal
     Governments must take all necessary          recognition as people before the law.
     steps to make sure that disabled people      Disabled people have the right to make
     are protected and safe in situations         their own decisions in all areas of life,
     of risk – such as war, famine and            on the same basis as other people.
     natural disasters.
                                                  Governments should provide access
                                                  to support that might be needed by
What does this mean?                              disabled people in making their own
                                                  decisions.
When governments and public bodies
are planning for emergencies, then they           If decisions are made that relate to a
should think about safety for disabled            person’s capacity to understand, then
people. Also, when there is an emergency,         there must be safeguards against abuse:
then they should take steps to make sure          your rights and choices must be
that disabled people are safe.                    respected, and someone else should
                                                  only be speaking for you to the extent
For example, Local Strategic Partnerships         that it is necessary and for as long as is
in places that are at higher risk of flooding     appropriate. There should be a regular
should identify risk factors for disabled         and independent review of the steps
people (residents and visitors) and make          taken to make sure that there is no
plans to address the risks.                       conflict of interest and that the disabled
                                                  person’s rights and interests are
In a case of an unexpected emergency, for         properly respected.
example flights being grounded because

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  Government must do everything they       When the UK ratified the
  can to ensure disabled people can own    Convention it made a ‘reservation’
  and inherit property like anyone else,   to this Article. This was to be clear
  manage their own money and access        that there is not yet a system in place
  bank loans and mortgages.                for regular review of whether appointees
                                           (people who are given the right to deal
                                           with benefits on behalf of a disabled
What does this mean?                       person) should continue in that role.
This means that disabled people cannot
be denied the right to make their own
decisions. If they need help to make       Access to justice
decisions, then this should be given.      Article 13 says:
It also says that disabled people should
                                             Disabled people must have the same
be financially independent and have
                                             rights to go to court, take other people
access to financial services.
                                             to court, act as witnesses and take part in
                                             what happens in courts as anyone else.
                                             Disabled people must be given support
 Example: Equal                              to do this which may include the
 recognition before                          provision of sign language.
 the law                                     There should be appropriate training
                                             for courts, police and prison staff to
 If your council gives you Direct
                                             support this right.
 Payment, but they say that the
 bank account must be looked after
 by another person or group (for           What does this mean?
 example, Independent Living Service),
 then you can use this Article to          Current disability discrimination law
 demand that the council explains why      places a duty on courts to treat disabled
 they think this would be necessary.       people fairly and give them extra help to
 You could use this Article together       take part on an equal basis. For example,
 with the Mental Capacity Act to           if a court user has a visual impairment
 challenge their reasons if you do         then the court should send out
 not agree with the council.               information in an accessible format.
                                           Or if a person with autism needs to visit
                                           the court in advance, so that they don’t
                                           get worried when the actual court case
If you have someone else to speak for      takes place, then the court should
you in certain situations (for example,    organise this.
financial matters), then the government
must make sure that the person             It also means that sometimes the
speaking on your behalf cannot abuse       government should give extra help
their position.                            to disabled people to enable them to
                                           participate in the court, as claimant,
                                           defendant, witness or appropriate adult.

                                                                                      21
UN Convention on the Rights of People with Disabilities

This support could be, for example,                    disabled people are never deprived
through ‘intermediaries’, legal aid or                 of their liberty just because they
specialist services.                                   are disabled
                                                       disabled people are protected from
There have been cases under Article 6
                                                       arbitrary detention. If a disabled
of the Human Rights Act/European
                                                       person is detained or deprived of
Convention on Human Rights (the right
                                                       their liberty they are provided with
to a fair trial) which makes it clear that
                                                       reasonable adjustments and
defendants who use a language which is not
                                                       measures are in place to safeguard
English have the right to an interpreter.
                                                       their other human rights (for example
                                                       the right to a fair hearing, the right to
In 2009, the court said that if a witness
                                                       be free from degrading treatment).
with a mental health condition is not
given appropriate support but instead
treated as an unreliable witness because          What does this mean?
of stereotyping or false assumptions,
then this may amount to breach of right           The right to liberty means you have a right
to be free from degrading treatment.(2)           not to be locked in a cell or a room, or
                                                  have your movement restricted in any
Anecdotal evidence shows that many                other extreme way. It is not an absolute
disabled people continue to find the court
                                                  right. It can be limited in a very few
system complicated, intimidating and
                                                  specific circumstances, such as if you are
expensive. That may be why few human
rights cases are brought to court by disabled     convicted of a crime which carries a prison
people. The government should think about         sentence. Governments can also pass laws
how to better support disabled people.            about putting people with severe mental
                                                  health conditions in hospital for treatment
The Equality and Human Rights                     as long as certain conditions are satisfied
Commission can support some disabled
                                                  and appropriate safeguards are in place.
people with discrimination cases but
cannot support everyone. There are a
number of other organisations that can            Freedom from torture or cruel,
assist. These are listed in Part 4.               inhuman or degrading
                                                  treatment or punishment
                                                  Article 15 says:
Liberty and security of the
person                                              No one must be tortured or subject to
Article 14 says:
                                                    cruel, inhuman or degrading treatment.
     Governments must make sure that:               Disabled people must never be subject
                                                    to medical experiments they have not
       disabled people enjoy the same right
                                                    freely agreed to be part of.
       to liberty and security as everyone else

2 The full name of this case is R (B) v Director of Public Prosecutions (Equality and Human
     Rights Commission intervening) [2009] EWHC 106 (Admin) [2009] WLR (D) 25 QBD.
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What does this mean?                            Freedom from exploitation,
This right is about protecting human            violence and abuse
dignity.                                        Article 16 says:

Inhuman treatment means                         Governments must do everything they
treatment which causes severe                   can to:
mental or physical harm.
                                                  protect disabled people from all forms
Degrading treatment means
                                                  of exploitation, violence and abuse at
treatment that is grossly
                                                  home and in the community
humiliating and undignified.
                                                  prevent all forms of violence and abuse
There are many situations where inhuman           against disabled people ensure disabled
or degrading treatment can occur and              people know how to recognise and
disabled people often find themselves in           report violence and abuse. Governments
situations of vulnerability, such as living       must support the recovery of disabled
in institutions or being reliant upon others      people who have been victims of
for intimate personal care, which place           violence and abuse. This should be done
                                                  in a way that supports people to regain
them at greater risk.
                                                  control over their lives
In Britain, there are lots of systems in          put in place strong laws to make sure
place to protect disabled people against          instances of violence and abuse against
degrading or inhuman treatment. Public            disabled people are identified,
                                                  investigated and prosecuted.
bodies have a duty to make sure you are
not treated in an inhuman or degrading
way by private care providers or indeed         What does this mean?
members of your own family. If public           This Article sets out detailed steps of
bodies find out about such treatment, or if      how to prevent or address exploitation,
they should have been aware, they have a        violence and abuse.
duty to act. In relation to health and social
care, there are regulators in each country      In Britain, nearly all forms of exploitation,
                                                violence and abuse count as crimes.
in Britain which check whether health and
                                                Disabled people are four times more
social care providers are treating service
                                                likely to be the victim of a crime than
users in a dignified way. In England this        other people and are twice as likely to
is the Care Quality Commission, in Wales        be the victim of a violent attack. Any crime
the Care and Social Services Inspectorate       involving disability hostility or prejudice
Wales, and in Scotland the Scottish             should be treated as a hate crime and
Commission for the Regulation of Care.          attract a stiffer sentence.
Other inspectorates, for example, Her
                                                Britain has disability hate crime legislation
Majesty’s Inspectorate of Prisons, also
                                                (separately for England, Wales and
have a role.                                    Scotland), but the Equality Duty also places
                                                a responsibility on public authorities under

                                                                                          23
UN Convention on the Rights of People with Disabilities

the Equality Act to take action to address       bodies. People have the right to be
the behaviour and attitudes of those who         respected by others just as they are.
carry out hate crime, as well as take steps
so that disabled people can live in safety       Sterilising a disabled person against their
and security.                                    will or without their knowledge, over-
                                                 medicating residents in care homes or
For example, the police should make sure         forcing a disabled person into a marriage
that disabled people can report hate crime       could violate this right.
incidents, for example by making police
stations accessible, training police officers,
                                                 Liberty of movement and
and raising awareness among disabled
                                                 nationality
people of their rights.
                                                 Article 18 says:
Article 16 says that there needs to be
                                                   Governments must recognise that
independent monitoring of facilities
                                                   disabled people have equal rights to
and programmes for disabled people.
                                                   decide where they live and to move
In Britain this role is usually carried
                                                   between countries, and that they have
out by inspectorates and regulators, for
                                                   a nationality. They should do this
example Her Majesty’s Inspectorate of
                                                   through taking steps, including making
Constabulary.
                                                   sure that disabled people;
Abuse can also happen in other places                 can obtain or change a nationality
like schools. You could use this Article              have papers, like passports
to highlight the need to monitor the
                                                      can leave any country including
effectiveness of safeguarding systems
                                                      their own
in education for disabled children and
disabled teachers.                                    can enter their own country without
                                                      discrimination on basis of disability.
                                                   Disabled children have the right to a
Protecting the integrity of the                    name from birth, a right to be a citizen
person                                             and if possible, the right to know and be
Article 17 says:                                   cared for by their parents.

     Every disabled person has the same
     right as anyone else to respect for their   What does this mean?
     physical and mental integrity.
                                                 This means that disabled people should
                                                 not be restricted to go to another country
What does this mean?                             or to come back to their country of
                                                 permanent residence. It could mean that
This means that disabled people’s minds          the government needs to take steps so that
and bodies are their own. No one should          airport security measures or passport
ever treat a disabled person as less of a        requirements do not discriminate against
person or interfere with their minds and         disabled persons.

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One of the fundamental principles             Living independently and
of European Community law is free             being included in the
movement of persons. If a disabled British    community
citizen moves to another country in the       Article 19 says:
European Community they should still be
able to claim certain disability benefits.       Disabled people have an equal right to
                                                live in and take part in the community.
When it ratified the Convention the
                                                Disabled people have the right to the
UK Government made a statement
                                                same choice and control as non-
(a ‘reservation’) about immigration matters
                                                disabled people.
which limits the impact of this Article and
indeed the whole Convention, with respect       Governments should do everything
to immigration, in the UK. It means that        they can to ensure disabled people
the UK Government will continue to apply        enjoy these rights.
whatever immigration rules it thinks are        Governments should ensure that;
necessary (regardless of whether they
                                                   disabled people have the right to
would conflict with the Convention).
                                                   choose where they live and who they
The Equality and Human Rights
                                                   live with – no disabled person should
Commission believes that this reservation
                                                   be unlawfully forced into a particular
is incompatible with the object and
                                                   living arrangement (for example be
purpose of the Convention and should
                                                   forced to live in a care home against
not be permitted under Article 46 of
                                                   their will)
the Convention.
                                                   disabled people have access to a wide
                                                   range of support services (at home
The UK made a similar reservation                  and in the community) including
on immigration and citizenship to                  personal assistance to prevent
the UN Convention on the Rights                    isolation and support inclusion
of the Child. However, in 2008
                                                   disabled people can access the same
the reservation was eventually
                                                   community services as everyone else.
withdrawn. This followed strong
criticism in two reports by the
United Nations Committee on the
                                              What does this mean?
Rights of the Child, combined with
campaigning by children’s rights              This right makes clear that the aim of social
organisations. Withdrawing the
                                              support services should be to enable genuine
reservation gave vulnerable children
                                              and meaningful participation of disabled
seeking asylum, those trafficked
                                              people in the community. When carrying
into the UK and others subject to
                                              out assessments, social services should not
immigration control, the same rights
                                              just look at the ability of disabled people
to education, health and support
                                              to carry out daily living activities, such
services as British children.
                                              as washing and getting dressed, but also
                                              whether disabled people need support
                                              to participate in the community.

                                                                                        25
UN Convention on the Rights of People with Disabilities

It could mean that government and local          people can get around, in the way they
authorities need to make it easier for           want to – disabled people should be able
disabled people to move to a different           to decide for themselves what this might
local area in England, Scotland or Wales –       be. When planning for a transport
for example through ensuring continuity          infrastructure, public authorities should
of care and support.                             think about how disabled people are
                                                 affected, particularly those who rely on
The steps that a government can take             one type of transport.
to enable independent living and full
participation in the community are wide-         You could use this Article to highlight the
ranging and are also detailed in other           need for public bodies to think about
rights listed in the Convention. For             affordable mobility aids. For example,
example the right to be free from violence       blind people often have to pay for a white
(placing a responsibility on police to deal      stick. Providers of mobility aids should
with abuse in your local area) and the           also think about the purpose of the
right to participate in leisure.                 mobility aids. For example, a wheelchair
                                                 centre should include in their assessment
Personal mobility
                                                 where the wheelchair user wants to go –
Article 20 says:
                                                 and what they like to do (for example, do
                                                 they do sports; do they travel abroad).
     Government should do everything
     possible to ensure disabled people
     can get around as independently as
     possible, including by;                      Example 1: Personal
       ensuring people can travel when they       mobility
       want at a price they can afford
                                                  A local council provides transport for
       ensuring people have access to quality,    people with learning disabilities
       affordable mobility aids including         between their home and a day centre.
       new technology or help from other          If one person or a group wants to visit
       people to help them get around             a museum, then they still have to come
       providing mobility training to             to the day centre first, where transport
       disabled people and staff working          will be provided to the museum, and
       with them                                  back to the centre. However this means
                                                  that there is not much time for the
       encouraging manufacturers of
                                                  actual visit to the museum. The users
       mobility aids and technologies to
                                                  of the day centre could use Article 20
       think about all aspects of mobility
                                                  (with Article 30 which is the right to
       for disabled persons.
                                                  take part in culture) to say that the
                                                  council should enable them to travel
What does this mean?                              directly from their home to the
                                                  museum – for example by giving
It means that the government and public           travel training.
bodies should take steps so that disabled

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