TEAM CAPTAIN PACKET - AUGUST 20 2022
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TEAM CAPTAIN PACKET
SATURDAY
AUGUST 20
2022
10am
Lake Metroparks Farmpark
Kirtland, Ohio
#BW22WHEREVERYOUARE dsaneo.org
SATURDAY
AUGUST 20
2022
Thank you for registering your team to be a part of the
22nd Annual Northeast Ohio Buddy Walk
NG FOR
TI
Join us as the Down A
T
Y
CELEBR
Syndrome Association
YE
ARS
of Northeast Ohio
celebrates 40 years!
•
•
1 2
9
8 2 - 2 0 2
This Team Captain packet contains
helpful information for you to
create your team as well as a
variety of fundraising ideas.
FUNDRAISING
GOAL: If you have questions, please
$333,000
contact Barb Waddle, Special Events
Coordinator, for more information:
Barb Waddle
216.447.8763, ext. 105
barbw@dsaneo.org
#BW22WHEREVERYOUARE dsaneo.org
2
SATURDAY
AUGUST 20
2022
PROGRAMS & SERVICES
EDUCATION
The Down Syndrome Association of Northeast Ohio
serves over 1,000 FAMILIES IN 16 COUNTIES IEP Support for families
in Northeast Ohio along with hundreds DS 101
of educators and medical professionals. Peer Presentations
Our areas of programming include: A•C•E•S Adult Education Programs
Early Learners, Little Learners, & Lively Learners
Sunburst Snacks Employment & Training
FAMILY SUPPORT
New & Expectant Parent Support
Family Grants MEDICAL OUTREACH
Grandparent Group Visits to health care providers
MOMS & DADS Group Delivery of packets to NEO medical professionals
Circle of Support Medical professional referrals
Baby & Toddler Groups Participation in Practice-Based Research
DS+ Group Network at Cleveland Clinic
La Familia del syndrome de Down del Review and promotion of Ds research studies
Noreste de Ohio. “De Familia a Familia”
ADVOCACY SOCIAL PROGRAMS
Northeast Ohio Buddy Walk Bowling Buddies
Cleveland Down Syndrome Day Tee It Up Golf Clinics
Something Extra web series DSANEO Holiday Party
Disability Awareness Program Steps to Independence
Artful 21 retail & online store Sunburst Social Squad
INFORMATION ABOUT DOWN SYNDROME
• Down syndrome occurs when an individual has three, • Life expectancy for people with Down syndrome has increased
rather than two, copies of the 21st chromosome. dramatically in recent decades—from 25 in 1983 to 60 today.
• Down syndrome is the most commonly occurring and least • People with Down syndrome attend school, work, participate
funded chromosomal condition. One in every 733 babies is in decisions that affect them and contribute to society in many
born with Down syndrome. wonderful ways.
• There are more than 400,000 people with Down syndrome • *94% of siblings to a child with Down syndrome, express
in the United States. feelings of pride about their sibling.
• Down syndrome occurs in people of all races and economic • *99% of individuals with Down syndrome state they are happy
levels. with their lives.
*From the following article published online 9 Sep 2011: Skotko BG, Levine SP, Goldstein R. 2011. Self-perceptions from People with Down syndrome. Am J Med Genet Part A 155: 2360-2369.
#BW22WHEREVERYOUARE dsaneo.org
3
SATURDAY
AUGUST 20
2022
2021 HIGHLIGHTS PLANS FOR 2022 INCLUDE:
Moms, Dads, & Grandparents groups 40TH ANNIVERSARY CELEBRATION
began meeting monthly once again
Over the next 12 months we will
Eighteen new families gathered for our first celebrate our 40th anniversary with
New Parent Celebration in two years a variety of special programs.
Individuals of all ages engaged with
virtual social programs like 321 Fitness, SUNBURST SNACKS
No Rulz Dance Parties, and Bingo. Sunburst Snacks is the premiere program
of Sunburst Enterprises, part of DSANEO’s
Self-advocate Chris Bean started hosting Adult Employment Initiative to prepare,
a virtual book club for teens & adults
connect and employ adults with Down
Learners from preschool age through adulthood syndrome across Northeast Ohio.
participated in education programming provided
virtually and in-person. DSANEO has integrated
Raising Robust Readers into our education BUDDY WALK 2022
programming for all ages. This phonics- August 20 at Lake Metroparks Farmpark
based reading program uses multi-sensory
teaching strategies and was created to help
children with Down syndrome learn to read. SUNBURST SOCIAL SQUAD
This social program brings people 18
Spanish-speaking families in our community and older with Down syndrome together
began connecting through our Spanish language
with their typical peers for individuals
private Facebook Group, La Familia e Familia.
18+ with Down syndrome provides
The More Alike Than Different Mural was unveiled monthly activities in the community.
on Puritas Avenue on Cleveland Down Syndrome
Day, October 12, 2021. The mural was created
through our partnership with Councilman Brian
Kazy, the Bellaire Puritas Development Corporation,
PARTNERSHIP WITH THE
the Cleveland Browns, and ten organizations IMPROVANEERS
serving people with developmental disabilities. Bringing opportunities to our families
whenever possible, we are partnering with
Nearly 3,000 walkers participated in the Stand Up for Downs to bring youth and
21st Northeast Ohio Buddy Walk, held at adult improvisation classes to our families.
Lake Metroparks Farmpark and virtually.
In collaboration with Community Focus, DSANEO’s
web series, Something Extra, debuted in October. AND MUCH MORE!
#BW22WHEREVERYOUARE dsaneo.org
4
SATURDAY
AUGUST 20
2022
2022 TIMELINE OF IMPORTANT DATES
MARCH
March 21 22nd Buddy Walk Registration Opened!
JUNE
June 30 Deadline to register your team and raise $321 to receive a
Team Captain Thank You Gift
June 30 Deadline for back of shirt incentive
JULY
July 13 Last day to register and guarantee your shirt size
July 13 Deadline for all other team incentives EXCEPT for DSANEO
Family Fun Package ($10,000+ raised or 321+ team
members)
AUGUST
August 1 Deadline to register to guarantee shirt mailed in time for
Buddy Walk
August 8 Begin mailing shirts
August 9-13 Shirt Pick-up at DSANEO Office
August 20 BUDDY WALK 2022!
SEPTEMBER
Deadline for event donations to count towards DSANEO
Family Fun Pack Team Incentive ($10,000+ raised or 321+
team Members)
#BW22WHEREVERYOUARE dsaneo.org
5
SATURDAY
AUGUST 20
2022
CONGRATULATIONS! YOU ARE A TEAM CAPTAIN!
DESIGN FUNDRAISE
• Create a Team Name • Encourage
all team members to help you reach
your fundraising goal
• Register yourself and your team at
www.ds-stride.org/neohiobuddywalk • Create
a Facebook Fundraiser – check out the
Team Captain section for Information
• Set a fundraising goal
• Customize your Team page
• Upload a photo of your buddy or your team PROMOTE THE BUDDY WALK
• Watch
our Buddy Walk Facebook Live events for
important updates and invite family and friends
PUBLISH to watch as well
• Email
the link of your team page to family and • Confirm that you are attending the walk on our
friends Facebook Event page & invite your family and
friends to support you
• Spread
the word on Social Media – Facebook,
Twitter, Instagram, etc. • Watch
for our Facebook frame and add it to your
profile
• Send
out email reminders throughout the
fundraising season • Purchase
a Walk of Fame sign for display at the
Buddy Walk or in your yard
MANAGE
• Maintain
Team Member Information – check
THANK YOUR SUPPORTERS
out the Help/Resources section on the Buddy • Recognize team members on social media
Walk Website for Help Guides and fundraising
• Send
each donor a personal email thanking
suggestions
them
• Check
out the Team Captain section on the
• Have
your Buddy send supporters a
Buddy Walk Website for answers to
personalized thank you note
• Frequently Asked Questions
• Communicate
how your team is tracking toward
• Keep people involved with your fundraising goal the team goal
• Guarantee your t-shirt size by signing up early
• Encourage
team members to sign up early to
guarantee t-shirt size
#BW22WHEREVERYOUARE dsaneo.org
6
SATURDAY
AUGUST 20
2022
TEAM CAPTAIN INCENTIVES FOR MONEY RAISED
6/30/22 Team Captain Thank You Gift & Back of t-shirt
7/13/22 ALL other Team Captain Incentives
9/30/22 $10K Level DSANEO Family Fun Pack Team Incentive
Funds MUST be received by MIDNIGHT on Deadline Date at DSANEO online/mail
$2,500- $3,500- $5,000- $7,500- $10,000
INCENTIVES
$,3499 $4,999 $7,499 $9,999 & Up
DSANEO Family Fun
Package Value up to $1000
(Deadline is 9/30/22)
T-Shirt Delivery
Snacks at Team Table
Tent/Tables at Team
Captains Corner
Fathead (of Buddy)
Team Name on Event Shirt
(Deadline is 6/30/22)
Celebration Kit
Unlimited smiles &
appreciation from our
buddies and their families
Create a Team and raise $321 by 6/30/22 to receive a Thank you gift (includes Custom Button).
All incentives need to be picked up at the DSANEO office EXCEPT for teams that qualify for t-shirt delivery
#BW22WHEREVERYOUARE dsaneo.org
7
SATURDAY
AUGUST 20
2022
TEAM CAPTAIN INCENTIVES FOR NUMBER OF PARTICIPANTS
6/30/22 Team Captain Thank You Gift & Back of t-shirt
7/13/22 ALL other Team Captain Incentives
9/30/22 $10K Level DSANEO Family Fun Pack Team Incentive
Funds MUST be received by MIDNIGHT on Deadline Date at DSANEO online/mail
INCENTIVES 50-74 75-120 121-220 221-320 321 +
DSANEO Family Fun
Package Value up to $1000
(Deadline is 9/30/22)
T-Shirt Delivery
Snacks at Team Table
Tent/Tables at Team
Captains Corner
Fathead (of Buddy)
Team Name on Event Shirt
(Deadline is 6/30/22)
Celebration Kit
Unlimited smiles &
appreciation from our
buddies and their families
Create a Team and raise $321 by 6/30/22 to receive a Thank you gift (includes Custom Button).
All incentives need to be picked up at the DSANEO office EXCEPT for teams that qualify for t-shirt delivery
#BW22WHEREVERYOUARE dsaneo.org
8
SATURDAY
AUGUST 20
2022
FUNDRAISING IDEAS
Encourage your family, friends, neighbors, and co-workers
to register for the walk. Since we will be walking in person
or in a different location, your out-of-town contacts can still
take part! Every registration for your team goes toward your
team total. Every walker has the option to add an additional
donation when they register.
Check with the HR department where you work and
encourage your team members to do the same because many
companies offer matching gifts. Your contributions can be
matched by your company and increase donations.
Get Creative! Invite people for a Game night, host a consultant
party, partner with a Local bowling alley for a bowl-a-thon,
have a car wash or a dog wash, or so many more great ideas!
DSANEO will promote your Buddy Walk fundraising event on
our social media pages. Contact barbw@dsaneo.org to share
your event. All funds are applied to your fundraising total.
Create a Facebook fundraiser! Share the event with your
family and friends and be sure to let us know about it! All
funds will be applied to your fundraising total!
Bring in a Buddy Walk Sponsor! Sponsors are essential to our
event and they receive many benefits. Sponsorships that you
bring to the Buddy Walk count toward your team’s fundraising
totals. For more information on Buddy Walk sponsorships,
check out the Sponsors/Exhibitors section on the Buddy Walk
website and download the Sponsor packet. You can also
contact Leslie Burke at leslieb@dsaneo.org.
#BW22WHEREVERYOUARE dsaneo.org
9SATURDAY
AUGUST 20
2022
SOCIAL MEDIA TIPS
Connecting with your friends & family is still a great way to encourage
donations for your team. Encourage virtual participation and invite
them to be part of our Facebook Live events and follow us on Facebook
the day of the walk to share the fun and excitement with you. Consider
also using Twitter, Instagram, LinkedIn, Snapchat, YouTube and any
other platform that will help you spread the word, recognize your team
members & donors and share your story!
• “Like”
& follow DSANEO on social media sites. We are on Facebook,
Twitter, Instagram, LinkedIn, YouTube, and Tik Tok.
• Repost
& retweet DSANEO page posts & tweets to generate
excitement.
• Create
a Facebook Group for your team, where you can post important
registration & donation information, thank team members and donors,
and provide updates the day of the walk.
• When
posting on social media:
• Tell your story – Why do you walk? We know that many
• Use emojis – they catch the eye! people are still
recovering from
• Provide a link directly to your team registration page
the pandemic.
DSANEO in all your posts
• Tag Recognize that in
• Include
this year’s hashtag in your posts - #BW22WhereverYouAre your posts and ask
• Post regular updates about the goals you are setting & reaching for supporters to give if
your team they can. Spreading
the word about
• Post pictures of your Buddy, of previous walks, etc. – People love
the Buddy Walk
photos!
is a great way to
• Ask
for a specific amount on a specific day: “Help us reach $1,500 support the cause!
by the end of the day. Only $250 more to go.”
#BW22WHEREVERYOUARE dsaneo.org
10SATURDAY
AUGUST 20
2022
SAMPLE POSTS
“Did you know that more
“Join (insert team name) for this than 300,000 people walk
year’s Northeast Ohio Buddy each year in Buddy Walk
Walk! Register today!” events? Join us this year
as we walk to celebrate
(insert link) #DSANEO Down syndrome.”
#NDSSBuddyWalk (insert registration link)
#yourteamname #DSANEO
“Thank you to (insert donor
name) for your donation to
our Buddy Walk Team!” “Hey everyone! We are back
#yourteamname #DSANEO for our (number of years)
#NDSSBuddyWalk Northeast Ohio Buddy Walk!
Register or donate today!”
(insert link)
“Can’t join us for the 22nd Northeast Ohio Buddy
Walk? Consider making a donation, large or small, to
support DSANEO’s mission and programming.”
(insert link)
#DSANEO #yourteamname #NDSSBuddyWalk
#BW22WHEREVERYOUARE dsaneo.org
11SATURDAY
AUGUST 20
2022
DONATION FAQS
Are donations tax deductible?
The Down Syndrome Association of Northeast Ohio is a
501(c)(3) organization. Our tax ID number is 34-1630114.
You may request a W-9 from our office at 216.447.8763.
Who should NEO Buddy Walk checks be made
payable to?
Checks should be made payable to The Down Syndrome
Association of Northeast Ohio or DSANEO.
Where can I mail donations?
Donations can be mailed to the DSANEO office. Remember
the fundraising Incentive deadlines!
The Down Syndrome Association of Northeast Ohio
P.O. Box 31720
Independence, OH 44131
I have additional questions. Who can I contact?
Contact Barb Waddle, Special Events Coordinator, by email at
barbw@dsaneo.org or by Phone at 216.447.8763, ext. 105
We are grateful for your support!
#BW22WHEREVERYOUARE dsaneo.org
12SATURDAY
AUGUST 20
2022
EVENT DETAILS What is the Buddy Walk?
The Buddy Walk was developed
by the National Down Syndrome
Saturday, August 20, 2022 Society (NDSS) in 1995 to
7:30am to 1:00 pm celebrate Down Syndrome
Awareness Month in October
Lake Metroparks Farmpark and to promote acceptance and
inclusion of people with Down
Register by July 13, 2022 to guarantee shirt size.
syndrome. The Buddy Walk has
The day of the walk shirts are available while supply lasts.
grown from 17 walks in 1995
Participant registration includes all day admission to the Farmpark! to over 250 walks worldwide
today. Money raised each year
Buddy Walk Schedule of Events: helps support local programs
and services, as well as national
7:30 am Day of Registration and t-shirt pick-up open advocacy and public awareness
9:00 am Opening Ceremony and Remarks Begin initiatives of NDSS that benefit all
individuals with Down syndrome.
10:00 am Buddy Walk steps off, wheel-friendly 1-mile route
11:00 am Post Walk Celebration What is the Down Syndrome
1:00 pm Buddy Walk Concludes Association of Northeast Ohio?
The Down Syndrome Association
Buddy Walk Celebration activities until 1 pm: Buddy Gateway of Northeast Ohio (DSANEO), a
(vendors), Characters, Club Bud (Buddies 16 and over) & more! 501 (c) (3) organization, exists to
provide support, education, and
advocacy for people with Down
syndrome, their families and
communities in 16 counties in
Northeast Ohio.
What counties do we serve?
We serve over 1,000 families
throughout Ashland, Ashtabula,
Cuyahoga, Erie, Geauga, Holmes,
Huron, Lake, Lorain, Medina,
Portage, Richland, Stark, Summit,
Tuscarawas, and Wayne Counties.
For more information, visit our
website at www.dsaneo.org.
#BW22WHEREVERYOUARE dsaneo.org
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