Strengthening Early Childhood in Kansas - WEBINAR MARCH 24, 2021
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Strengthening Early Childhood in Kansas WEBINAR MARCH 24, 2021
WELCOME
o General Updates
o Kansas State School for the Blind
o Kansas Deaf-Blind Project
Webinar Agenda
GENERAL UPDATES
o Invitation to join the Child and Women/Maternal Work Groups!
o Family Advisory Council (FAC)
o Looking to hear the opinions, experiences, ideas, and stories of individuals and families
in the community, specifically those that want to help drive the systems building work
and bring positive change to maternal and child health services and inform
programming for children and families in Kansas.
o Click here to apply: https://www.surveymonkey.com/r/FAC_App
o Next meeting on Saturday, April 17, 2021.
o To learn more about FAC, go to https://www.kansasmch.org/fac
Every Child Thrives
GENERAL UPDATES
o Continued - Invitation to join the Child and Women/Maternal Work Groups!
o Virtual Chats
o For those interested to learn about the FAC before completing the
application, and to ask any questions you might have.
o Open for anyone to join, feel free to share and invite others who might be a
good fit!
o https://www.kansasmch.org/documents/fac/FAC%20Virtual%20Chat%20Fl
yer_Spring.pdf
Every Child Thrives
GENERAL UPDATES
o Child Care Impact Grants – Available Now!
o Established by Child Care Aware of Kansas in partnership with Kansas
Departments of Health and Environment and Children and Families
o Intended to provide financial support for eligible child care programs to
address facility and needs related to COVID-19 mitigation, health, and
safety
o Grant deadline: April 15 at 5:00pm
o For more information, please visit the Child Care Aware of Kansas website:
https://ks.childcareaware.org/impact-grants-available/
Every Child Thrives
GENERAL UPDATES
o Kansas Association for Infant & Early Childhood Mental Health (KAIMH)
o 2021 Annual Conference (Virtual)
o Understand and apply concepts from the KAIMH Infant Mental Health
Endorsement® to work with families and children.
o Workshops explore professional development and training resources to
attain skill level in infant and early childhood mental health practice.
o Thursday-Friday, April 29-30, 2021
o Agenda and Registration Form: https://kaimh.org/conference-registration/
Every Child Thrives
GENERAL UPDATES
o Rural Sensemaking Opportunity
o Our Tomorrows Action Labs - $5000 Award Eligibility
o Virtual workshop and funding opportunity in partnership with the Kansas
Sampler Foundation.
o During this session we will work as a group to examine stories, engage with
family voices from around the state, and generate problem-solving actions
in real time.
o Thursday, March 25th 3:00 PM
o Register: https://kansas.zoom.us/meeting/register/tJUtd-
uhrT8tEtHj3IKhvuC0tJ5E-T-jzggE
Every Child Thrives
GENERAL UPDATES
o Preschool Enrichment Program
o Kansas State School for the Blind
o A no cost program intended to provide enrichment opportunities for children ages 3
to 5 who are blind or visually impaired.
o Held on Wednesdays and Fridays, for 3 hours each day from 8:45am – 11:45am
o Transportation provided by parents
o Ready to apply? Link to Registration: http://bit.ly/PreSchoolApp
o For more information, please contact Jeanne Goodin at jgoodin@kssdb.org, Hillary
Joy-Sims at hjoy-sims@kssdb.org, or Jon Harding at jharding@kssdb.org
Every Child Thrives
Kansas Deaf-Blind Project K A NSAS S T A T E S C H O OL F O R T H E B LI N D
Identify, Refer & Improve Outcomes
For Young Children with Combined Hearing & Vision Loss
Marites Altuna
03.24.21WEBINAR OUTCOME
Increase your awareness of the:
• Kansas Deaf-Blind Project
• Overview of Deaf-Blindness (Combined hearing and
vision loss
⚬ Definition
⚬ Risk factors
⚬ Prevalence
⚬ Impact of deaf-blindness
⚬ Early identification & referralKansas Deaf-Blind Project
Network of State Kansas State School for Federal Grant
Projects the BlindKansas Deaf-Blind Project
Deaf-Blind Perspective
VIDEOFederal definition:
Concomitant hearing and visual impairments, the combination of which causes such
Definition: severe communication and other developmental and educational needs that they
cannot be accommodated in special education programs solely for children with
DEAF-BLINDNESS deafness or children with blindness. 34 CFR 300.8 (c) (2)
Kansas Deaf-Blind Project:
Combined hearing and vision loss to some degree to include progressive loss,
functional loss, cortical visual impairment, central auditory processing disorder,
auditory neuropathy, and other diagnoses.Combined hearing and vision loss affects:
• Communication
• Exploration - mobility - engagement - participation
Impact: • Relationships - social interaction - friendship
• Visual & Mental Memory - concept development
Deaf-blindness is a • Independence
disability of access. • Incidental learning
Source: https://www.nationaldb.org/products/ei-framework/recognizing-understanding-
sensory-loss/Prevalence of Deaf-Blindness
Birth to three
7.1 million 409,315
3 to 21 with IEP in U.S. Birth to 3 with IFSP
2018-2019* 2019 - U.S.***
10,572
10,627 Birth to 3 with IFSP
???
B to 21 with DB 2020 - Kansas****
2019**
Birth to 3 with DB
Kansas
158 14
B to 21 with DB B to 3 with DB
Kansas+ Kansas+
***https://ectacenter.org/partc/partcdata.asp
*https://nces.ed.gov/programs/coe/indicator_cgg.asp
****Heather Staab, KDHE, Part C
**National Center on Deaf-blindness Child Count 2019
+ Kansas Deaf-Blind ProjectIDENTIFYING CHILDREN WITH COMBINED
HEARING AND VISION LOSS
Who are these little ones?
Where do we find them?
● Know the risk factors
● Review medical records
● Information from parents and caregivers
● Observation and screening
● Follow-up evaluations
Whose role is it?Risk Factors: Combined Hearing & Vision Loss
BIRTH COMPLICATIONS GENETIC SYNDROMES & ADDITIONAL
PRENATAL & POSTNATAL CONDITIONS DISORDERS CONDITIONS
CONDITIONS
• Preterm birth A partial list includes:
• Low Apgar scores • Alstrom Syndrome
• Maternal infection • Brain tumors or malformations
⚬ Rubella • Jaundice requiring transfusion • CHARGE Syndrome
• Accident or abuse
⚬ Cytomegalovirus (CMV) • Mechanical ventilation longer than 5 • Cockayne Syndrome
⚬ Toxoplasmosis days • Cornelia de Lange ⚬ Direct trauma to the eye and
⚬ Herpes • Low birth weight (2500 grams or less) • Down Syndrome ear
⚬ Syphilis • Retinopathy of prematurity (ROP) • Marshall Syndrome ⚬ Severe head injury
• Prenatal infant exposure to drugs • Meningitis • Norrie Disease
• Peroxisomal Biogenesis Disorder
⚬ Shaken Baby Syndrome
or alcohol • Encephalitis
• Intraventricular Hemorrhage-IVH (IRD, NADL and Zellweger
⚬ Near drowning event
• Hydrocephalus/hydrocephaly Syndrome) • Family history of both vision
• Microcephalus/microcephaly • Stickler Syndrome and hearing loss
• Periventricular Leukomalacia PVL • Treacher-Collins • Multiple disabilities
• Central Nervous System disorders • Trisomy 13, 18
(e.g. cerebral palsy) • Usher Syndrome
• Asphyxia • Waardenburg Syndrome
Source: https://documents.nationaldb.org/products/EI/RiskFactors.pdfObservation: Signs & Symptoms
That May Indicate Visual Impairment in Young Children
UNUSUAL GAZE OR ABSENCE OF VISUALLY
ATYPICAL APPEARANCE UNUSUAL EYE HEAD POSITIONS
MOVEMENTS
GUIDED REACH
OF EYES
● Drooping eyelid obscuring pupil
● Tilts or turns head in certain
(ptosis)
• Jerky eye movements position when looking at an ● Lack of eye contact by 3 months
● One eye slightly higher or lower
(nystagmus) object ● Lack of visual fixation or
than the other eye
• Absence of eyes moving together ● Holds object close to eyes following by 3 months
● Obvious abnormalities in the
• Sustained eye turn inward ● Averts gaze; seems to be ● Inaccurate reaching for objects by
(esotropia) or outward 6 months
shape or structure of the eyes looking beside, under, or
(exotropia) after 4 to 6 months of
● Absence of a clear, black pupil above the object of focus
age (general term: strabismus)
● Persistent redness of conjunctiva
(normally white)
● Persistent tearing without crying
● High sensitivity to bright light
(observe squinting, closing eyes,
or turning away) (Adapted from WSDS Tool: “Three-
Pronged Approach. Sources: Calvello,
1990; Fewell, 1983; Teplin, 1995)
Source: https://www.indbservices.org/images/Handouts/0203.WSDS.pdf#page=3Observation: Signs & Symptoms
That May Indicate Hearing Loss in Young Children
ATYPICAL VOCAL OTHER BEHAVIORS
ATYPICAL ATYPICAL LISTENING DEVELOPMENT
APPEARANCE BEHAVIORS
OF FACE OR EARS ● Has limited vocalizations
• Few or inconsistent responses ● Has abnormalities in voice, ● Pulls on ears or puts hands over
● Cleft lip and palate to sounds intonation or articulation ears
● Malformations of head or neck • Does not seem to listen ● Shows delay in language ● Breathes through mouth
● Malformations of the ears, • Does not respond to development (e.g., no spoken ● Cocks head to one side
including lack of caregivers calling his/her
words at 15 mo; fewer than 50
● Frequent earaches or ear • Shows a preference for certain
words at 24 mo)
infections (otitis media) types of sounds
((Sources: Chen, 1998, 1990; Gatty,
1996; Fewell, 1983; Joint Committee
on Infant Hearing, 1991)
Source: https://www.indbservices.org/images/Handouts/0203.WSDS.pdf#page=3Red Flags ● Anoxia, asphyxia, hypoxia
Terms ● Atresia
● Cerebral hemorrhage
● Cerebral palsy
● Ischemia
● Meningitis
● Periventricular damage
● Fetal alcohol symdromeRed Flags “Sometimes he seems to see things,
Comments other times, he doesn’t.”
“She has a syndrome called CHARGE,
but the eye doctor said her vision is fine.”
“This little guy spent two months
in the NICU and his records say that
he lost oxygen at birth.”Red Flags “This child has cortical visual impairment
Comments as a result of head trauma when he was a
baby, but there’s nothing in his records
about a hearing problem.”
“This little girl has a syndrome
I’ve never heard of.”● Survival rate of younger, lower birth
weight and medically fragile infants has
increased steadily.
Implications of
Prematurity ● Preterm infants are at risk for sensory
loss
● Vision & hearing = most complex
sensory systems
● Neurological complications can affect
visual and auditory processing● Each system interacts with every other system
● Each system impacts every other system
Prenatal Sensory ● Compromise to one system affects all systems
● Vulnerable sensory systems require supportive
Development interventions
Typical sensory development follows a sequential maturation process
Tactile - Vestibular - Gustatory - Olfactory - Auditory - VisualRECOMMENDATION
It is recommended that children with one diagnosed sensory
Early loss (hearing or vision) be evaluated in the other area
Identification REFERRAL
& Referral Referrals to medical and educational services should be made in a
timely manner.
CONTACT THE KANSAS DEAF-BLIND PROJECT
Marites Altuna, Project Director
maltuna@kssdb.org
913-6455645
Website: kansasdeafblind.orgWhat Parents Say
Remember • Learners who have deaf-blindness are an incredibly diverse group. • Deaf-blindness is a disability about information gathering. • Incidental learning is challenging. • A learner with deaf-blindness is NOT a “deaf” child who cannot see or a “blind” child who cannot hear. • Deaf-blindness is unique and complex disability. • If you know someone who is deaf-blind or suspect a child has combined hearing and vision loss, even mild, contact the Kansas Deaf-Blind Project.
Contact Information Marites Altuna maltuna@kssdb.org 913-645-5645 Website: kansasdeafblind.org Follow us on Facebook
REMINDERS AND NEXT STEPS
o Early Childhood Recommendations Panel Meeting (4/16)
o Registration and YouTube Viewing Information on the Cabinet website.
o Next Biweekly Webinar – Wednesday, April 7th
o Let us know what topics you’re interested in, or if you have information to
share in the webinars or weekly emails.
o Cabinet and Stakeholder Group Meeting (4/9)
o Share your thoughts anytime! - https://kschildrenscabinet.org/share/
Early Childhood System https://kschildrenscabinet.orgThank you!
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