Sponsorship Prospectus - July 22, 2021 - World Fragile X Day
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Sponsorship
Prospectus
FRAXA is joining hands with
communities around the world to
raise Fragile X awareness
while accelerating progress
toward effective treatments
and ultimately a cure for those
living with Fragile X. July 22, 2021
Global Initiative of FRAXA Research Foundation
World Fragile X Day 2021 World Fragile X World Fragile X Day began with FRAXA Research Foundation’s vision of joining hands with communities around the world to raise Fragile X awareness while accelerating progress toward effective treatments and ultimately a cure. This global event is a day to celebrate families impacted by Fragile X syndrome and the progress of research to find a cure. On Fragile X World Day, we shine a light on this disorder by illuminating monuments and landmarks around the world. What is Fragile X? Fragile X is the most common known cause of inherited intellectual disability and the leading known single gene cause of autism. Fragile X occurs when a single gene shuts down -- a gene vital to normal brain function. Light It Up! In 2018, the Niagara Falls Illumination Board agreed to light up Niagara Falls in FRAXA’s signature teal to celebrate Fragile X awareness. A year later, 22 landmarks were illuminated, and in 2020, the total rose to 67 in the U.S.! Throughout the U.S. and Canada and across the pond in Dublin, Ireland, FRAXA brought awareness to Fragile X by lighting up the sky teal. Our friends in Australia lit up 64 landmarks across their continent in 2020. This year, 200 landmarks world-wide have already confirmed their participation, and this is just the beginning! "World Fragile X Day is important to me because it gives the Fragile X community an opportunity to have a voice in unison. The Fragile X community is known to have fierce advocates and an incredible bond that is unlike any other syndrome. World Fragile X Day gives us hope of raising awareness and finding an effective treatment and ultimately a cure for Fragile X and related conditions." Kelly Menke Randels Coleman, parent
Funding the Cure with Our Partners
Since 1994, FRAXA has funded more than $30 million in
biomedical research around the globe, yielding discoveries What FRAXA does goes far beyond
that are changing the lives of families coping with Fragile X. what most people think of as
In addition to funding university-based researchers, FRAXA “research.” We are running a massive
partners with pharmaceutical and biotech companies large engineering project. We are
and small to enable Fragile X development programs. constantly troubleshooting this
complex project and making
A Few Examples adjustments.
The FRAXA Drug Validation Initiative (FRAXA-DVI) in We have now validated dozens of
Santiago, Chile, provides speedy, cost-effective pre- potential therapeutic strategies
clinical testing of potential Fragile X treatments.
which are ready for clinical trials.
Through FRAXA-DVI we partner with pharmaceutical
companies to test their compounds in Fragile X. Over
100 compounds have been validated to date, leading to FRAXA RESEARCH
many clinical trials. 3 Areas of Focus
FRAXA contracted with Healx, a UK-based drug
repurposing company, to use artificial intelligence to 1. Gene Therapy and Protein
generate a list of promising available drugs, singly and in Replacement Reversing Fragile X
combinations, to tackle Fragile X. Based on this study at its core, by reactivating or
with FRAXA, Healx was able to launch their global global repairing the silenced gene
Rare Treatment Accelerator program which aims to 2. Translational Research
repurpose drugs for 100 rare diseases. Repurposing available
When Tetra Pharmaceuticals developed a promising medications for Fragile X
PDE4D inhibitor with potential to treat Fragile X, 3. Clinical Trials
FRAXA provided preclinical testing and funded a Funding treatment trials of new
successful phase 2 clinical trial. A phase 3 trial is and available drugs for people
expected to begin within months.
who have Fragile X
SPONSORSHIP OPPORTUNITIES
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BENEFITS
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Inclusion In Official World Fragile X Day
Promotions
Social Media Campaign Recognition
Recognition On World Fragile X Day And
FRAXA Websites
Logo On Event T-Shirt For
Purchase By The Community
Volunteer Opportunities
Inclusion In Event Recaps On Social
Media, Website, And Email Blasts
Invitation To Virtual Gathering Of
Researchers And Industry Leaders
1:1 Access To Top Experts In The Fragile
X Field
Logo On Promotional Email Blasts
Named FRAXA Research Award
Generously Featured In Official World
Fragile X Day Promotions
Feature 1:1 Interview With FRAXA
Custom Opportunities - Talk To Us!
Landmarks Confirmed For 2021
UNITED STATES Philadelphia's Ben Franklin Bridge, PA Franklin Square Fountain, TAS
RSA Battle House Tower, AL Philadelphia's FMC Tower, PA Lake Wendouree Fountain, VIC
Trustmark Bank Building, AL Trenton Makes The World Takes, PA Eureka Memorial Park Fountain, VIC
Van Antwerp Building, AL Gulf Tower, PA Wodonga Water Tower, VIC
RSA Plaza & Tower, AL Koppers Building, PA Monash Park Tree, VIC
RSA Dexter Avenue Building, AL Sakonnet River Bridge, RI Council Offices, VIC
Union Plaza, AR Korean Veterans Memorial Bridge, TN The Warrnambool Art Gallery, VIC
Tucson's Historic 4th Avenue Underpass,AZ Lighthouse Theatre, VIC
Metro Nashville Courthouse, TN
M on Box Springs Mountain, CA Archie Graham Community Centre, VIC
Houston City Hall, TX
Los Angeles US Bank Tower, CA Melbourne Star, VIC
Montrose Bridges over Highway 59, TX
140 New Montgomery, CA Flinders Street Railway Station, VIC
TX: Alamo Quarry Smokestacks, TX Melbourne Town Hall, VIC
McNichols Civic Center Building, CO
Clark Nexsen Building, VA Old Treasury Building, VIC
Delaware State Capitol Building, DE
Two Union Square, WA Bolte Bridge, VIC
The Wheel at ICON Park, FL
Seattle's Evergreen Point Floating Bridge, Bendigo Conservatory Building, VIC
King and Queen Towers, GA
Aloha Tower, HI WA Ballarat Town Hall Clock Face, VIC
875 North Michigan Avenue, IL Columbia Center, WA Mooroopna Water Tower, VIC
Wrigley Building, IL The Pfister Hotel, WI Catanary Lights, Geelong, VIC
Regions Tower, IN West Gippsland Arts Centre, VIC
Martin Luther King, Jr. Memorial Bridge, IN The Bell Tower, WA
Shawnee City Hall, KS AUSTRALIA Matagarup Bridge, WA
Flint Hills Discovery Center, KS Telstra Tower, ACT Perth Concert Hall, WA
Mercedes-Benz Superdome, LA Council House, WA
National Carrillon. ACT
Leonard P. Zakim Bunker Hill Memorial His Majesty Theatre, WA
Old Parliament House, ACT
Bridge, MA Queens Park Theatre, WA
Manly Town Hall, NSW
Kenneth F. Burns Memorial Bridge, MA Sky Ribbon Bridge, WA
Newcastle City Hall Clock Tower, NSW Mounts Bay Bridge, WA
Medford City Hall, MA
Fragile X Association of AUS HQ, NSW Yagan Square, WA
Longfellow Bridge, MA
Albury Entertainment Centre, NSW Elizabeth Quay Bridge, WA
Fore River Bridge, MA
Gateway Bridge, QLD Mandurah Bridge, WA
Baltimore City Hall Dome, MD
Baltimore Center Stage, MD Victoria Bridge, QLD Northbridge Tunnel, WA
Portland City Hall, ME Story Bridge, QLD Joondalup Drive Bridge, WA
Troy City Hall, MI King George Square, QLD Crown Metropol Perth, WA
I-35W Saint Anthony Falls Bridge, MN Mount Coot-tha Observatory, QLD Perth Convention and Exhibition Centre, WA
Sperry Tower, MN Brisbane Town Hall, QLD
Lowry Avenue Bridge, MN Brisbane Treasury Casino, QLD
France Ave, MN Brisbane Convention & Exhibition Centre, CANADA
Forrest Roots Bar, Grill & Bottle Shop, MO QLD Niagara Falls
Strawberry's Mid-Town Recreation Inc., Victoria Park, QLD CN Tower
MO Broadbeach Sign, QLD High Level Bridge
James S. McDonnell Planetarium, MO Surfers Paradise Sign, QLD RBC Convention Centre
Charlotte's NASCAR Hall of Fame, NC Munro Martin Parklands, QLD BC Place
Romare Bearden Park, NC Port Moody City Hall
The Reef Hotel Casino, QLD
Wells Fargo Duke Energy Center, NC Calgary Tower
Mackay Council Chambers, QLD
Alerus Center, ND Halifax City Hall
Rockhampton Riverbank Heritage Façade,
Bob Kerrey Pedestrian Bridge, NE Science World Dome
Las Vegas City Hall, NV QLD
Mid-Hudson Bridge, NY Victoria Street Bridge, QLD
The Helmsley Building, NY City Hall Annex, QLD CHILE
Tower280, NY Strand Fountain, QLD IEB, University of Chile
Legacy Tower, NY Queensland Country Bank Stadium, QLD CABO Building
The Penthouse at One East Avenue, NY SkyPoint Observation Deck, QLD
The Metropolitan, NY Reddacliff Place sculptures, QLD
3 City Center, NY Townsville Sign, QLD IRELAND
Rochester Riverside Convention Center, NY Adelaide Festival Centre, SA Limerick City and County Council Offices
Xerox Tower, NY Adelaide Town Hall, SA Mansion House
The Electric Tower, NY SA Power Networks Building, SA
Tuckahoe Village Hall, NY Riverbank Footbridge, SA
Pier 17, NY
City of Launceston Town Hall, TAS
NEW ZEALAND
Library Tower, NY Oamaru Opera House
paranaple convention centre, TAS
Yonkers City Hall Clock Tower, NY Michael Fowler Centre
Cardinal Lights, TAS
Terminal Tower, OH
University East Building, OH Railway Roundabout Fountain, TAS
Skydance Bridge, OK Kennedy Lane, TAS United Kingdom
Union Street Railroad Bridge, OR Elizabeth Mall, TAS
The Ness Bridge
Philadelphia's Cira Centre, PA Wrest Point Casino, TAS
Edinburgh - Camera Obscura
Philadelphia's One & Two Liberty Place, PA
FRAXA Ambassador Kelly Menke Randels Coleman pictured above with her son, Cody Randels who has Fragile X and her late father, John Menke, prior to his passing from FXTAS.
OUR IMPACT TO DATE
In 1994, parents Katie Clapp, Michael Tranfaglia, MD, and Kathy May founded FRAXA
Research Foundation committed to finding a cure for Fragile X.
Since that time, FRAXA has become the global leader for funding the cure.
FRAXA has funded more than $30 million in biomedical research globally, yielding
discoveries that are changing the lives of families coping with Fragile X.
Learn more about our impact at fraxa.org.
$30,692,922 612 19
Direct Investment in Research Grants Countries are Home
Fragile X Research Awarded to Research Teams
5 31 4
Ongoing Fragile X Pharmaceutical and Gene Therapy and
Clinical Trials and Biomedical Protein Replacement
Studies Partners Studies
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