Smart Security Keep your tech gadgets safe - Accessible & Autonomous - Southeastern PVA

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Smart Security Keep your tech gadgets safe - Accessible & Autonomous - Southeastern PVA
PA R A P L E G I A N E W S F E B R U A R Y 2 0 2 1
                                                     Accessible & Autonomous
                                                        Emerging transportation options

                                                                 Virtual Reality
                                                         Therapy program helps veterans

Smart Security                Keep your tech gadgets safe
Smart Security Keep your tech gadgets safe - Accessible & Autonomous - Southeastern PVA
Smart Security Keep your tech gadgets safe - Accessible & Autonomous - Southeastern PVA
Smart Security Keep your tech gadgets safe - Accessible & Autonomous - Southeastern PVA
contents
             FEBRUARY 2021                    VOL. 75 NO. 2

                   ON THE COVER
 Paralyzed Veterans of America Texas
      Chapter National Director Anne
 Robinson is diligent in protecting the
smart device security inside her home.
    Photo by Harry Robinson/Illustration by
          Kerry Randolph/© Getty Images
              Stephen Brashear/Bill Oxford

                                          24                              24
                                                                           18     18                                      24

 F E AT U R E S

 18 Where To?                                                      30 Virtual Therapy
         Rory A. Cooper, PhD, & Brad Dicianno, MD                        Brittany Martin
         Autonomous vehicles are still in various stages of              Virtual reality is helping veterans with SCI/D
         development, but they hold great promise to help                in St. Louis to improve their mental and
         people with disabilities travel faster, safer and               physical health.
         more easily.

 24 Halt The Hackers
         Amanda Laverman
         Smart home technology and smart devices
         provide convenience and independence, but it’s
         important to manage security risks.

   ALSO IN THIS ISSUE ...
     6    Contributors                           35   Newsbeat                       46    Index of Advertisers
     6    Editor’s Desk                          42   Sports & Rec                   47    And Finally ...
     9    PVA Chapter Roster                     43   PVA Service Office Roster
    11    PVA Points                             46   Classified Ads
Smart Security Keep your tech gadgets safe - Accessible & Autonomous - Southeastern PVA
Visit us online at
                                                                   pnonline.com
                                                If you like wheelchair sports and recreation,
                                            you’ll love our sister publication — SPORTS ’N SPOKES !
                                                     Preview online at sportsnspokes.com

       “People who initially begin a
   stretching routine may find their
     range is limited from longtime
seated positions, but all wheelchair
          users would benefit from
         stretching on a daily basis.”
 — Arthur Jason De Luigi, DO, MHSA

                                    38                                       30                                                                          38

  DE PA RTM E NT S
                                         Now in its 75th year and the official publication of Paralyzed Veterans of America, PN is a national,
                                         monthly magazine that covers news, health, research, lifestyle and issues of interest and concern
                                         to veterans and others with spinal-cord injury and disease. Anyone interested in submitting an
    8 PVA From the Top                   article to PN should consult the Contributors Guidelines found on our website at pnonline.com.
         David Zurfluh                    PN neither endorses nor guarantees any of the products or services advertised in the magazine.
                                         Readers should thoroughly investigate any product or service before making a purchase.

                                         PN STAFF
   10 Reasons & Remarks
         Tom Fjerstad                    TOM FJERSTAD                                           STEVE MAX
                                         Editor                                                 Advertising Representative
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   13 On The Hill                        Operations Manager                                     ANN GARVEY
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   16 Innovations                                                                               Ext. 104 / kerry@pvamag.com
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   38 Health Smarts                      Editorial Coordinator                                  EDITORIAL, BUSINESS, AND
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   44 Veteran Advisor
         Raymond Ty McWhorter, NSO
                                         PN (ISSN 0031-1766) is published monthly by Paralyzed Veterans of America, Inc., 7250 North 16th Street,
                                         Suite 100, Phoenix, AZ 85020-5214. Periodicals postage paid at Phoenix, Ariz., and additional mailing offices.
                                         POSTMASTER: Send address changes to PN, 7250 North 16th Street, Suite 100, Phoenix, AZ 85020-5214.
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                                                                                        © 2021 Paralyzed Veterans of America, Inc. All rights
                                                                                        reserved. Reproduction of the whole or any part of the
                                                                                        contents without permission is prohibited.
Smart Security Keep your tech gadgets safe - Accessible & Autonomous - Southeastern PVA
FEBRUARY
                                                                                                     PARALYZED

                       Editor’s
                         DESK
                                                                                                      VETERANS
                                                                                                     OF AMERICA
                                                                                                   NATIONAL OFFIC E
                                                                                                  801 Eighteenth Street, NW
                                                                                                  Washington, DC 20006, USA
                                                                                                 202-872-1300 • www.pva.org

                                                                                                     PVA OFFIC ERS

                                            going to love this issue of PN.
                                                                                                        David Zurfluh
       If you love technology, you’re                                                                     President
                                                friend, Ror y Cooper, PhD, and his
           We can once again count on our                                       ch
                                          rgh’s Human Engineering Resear
                                                                                                       Charles Brown
       team at the University of Pittsbu                                      and Brad
                                                                                                     Senior Vice President
                                          e 18 is co-authored by Cooper
        Laboratories. Where To? on pag                                     s and   the                 Hack Albertson
                                             the topic of self-driving car
        Dicianno, MD, and sheds light on                                     d in the
                                                                                                        Vice President
                                         ple with disabilities are include
        work being done to ensure peo                                                                   Robert Thomas
                                              life-changing technology.
        planning stages of this potentially                                           -                  Vice President
                                                  ogy, I recently expanded my per
            Speaking of life-changing technol                                 e can                     Tammy Jones
                                         and numerous items in my hom
         sonal use of smart home tech,                                            I didn’t
                                                                                                        Vice President
                                             n Echo Dot. However, one thing
         now be controlled via the Amazo                                    ker s.                       Kenneth Ness
                                              ing those devices from hac
         think too much about was protect                                             ices               Vice President
                                                  e thought about how these dev
             If you have a similar setup or hav                           24.   Get   som  e            Tom Wheaton
                                           d Halt The Hackers on page
          could make your life easier, rea                                         inson,
                                                                                                          Treasurer
                                            ns of America member Anne Rob
          great tips from Paralyzed Vetera                                   tain s  some              Marcus Murray
                                               nology. The article also con
          who uses a vast array of this tech                                        to do.
                                                                                                         Secretary
                                               swords — something I struggle
          easy ideas for creating strong pas                                                           Al Kovach Jr.
                                                   tent this month. Enjoy!
              There’s plenty of other great con                                                    Immediate Past President

                                                                                               PVA NATIONAL OFFIC E
                                                                                                         Carl Blake
                                                                                                      Executive Director

                                                                                                        Shaun Castle
                                                                                                   Deputy Executive Director

                                                                                                          Len Selfon
                                                                                                        General Counsel

                                                                                                       Cheryl Topping
                                                                                                    Chief Financial Officer

                                                                                                        Peter Gaytan
                                                                                                 Associate Executive Director
                                                                                                      Veterans Benefits

                                                                                                       Heather Ansley
 contributing to this issue…                                                                     Associate Executive Director
                                                                                                    Government Relations

                                                                                                         Mark Lichter
                                                                                               Director: Architecture & Facilities

                                                                                                         Cheryl Vines
                                                                                                Director: Research & Education

                                                                                                         Liz Deakin
                                                                                                  Director: Communications
                Amanda                                   Lisa Van Loo
                Laverman                                 (p. 16)                                       Fabio Villarroel
                (p. 24)                                                                          Director: Sports & Recreation

6 |   PN   February 2021
Smart Security Keep your tech gadgets safe - Accessible & Autonomous - Southeastern PVA
Smart Security Keep your tech gadgets safe - Accessible & Autonomous - Southeastern PVA
DAV I D Z U R F L U H

                                 PVA
                                                                         NAT IONA L PR ESI DEN T

                                                              fromtheTOP

                           Valentine’s Day                                             Even trying to do something simple close
                                                                                  to your home could be problematic this year.
                                                                                  Depending on where you live, you may still
                           I must confess before doing research on                be facing severe dining restrictions or limited
                           Valentine’s Day, I wouldn’t be able to answer a        entertainment opportunities.
                           question on its history. So, I did a little digging,        However, don’t despair or let pessimism
                           and here’s a brief, summarized version.                enter your heart. Just reimagine and figure out
                                 There were three St. Valentines, who were        a different way to make Valentine’s Day fun.
                           each martyred for practicing their Christian           Just be grateful you’re not living in the times of
                           faith. The first two were killed during the time        the Roman soldier.
                           of the Roman Empire in Europe, and the third                Below are ideas I’ve researched to help
                                               was killed in a Roman prov-        make Valentine’s Day a joyous one for you and
                                               ince of Africa with others. The    your loved one. If you have kids, you may have
                                               exact details are unknown.         the chance to include them, too.
       If you’re like me and                        The first St. Valentine, who
      have someone special                     was martyred around 270 AD,             Cooking
                                               performed clandestine mar-          ■   Have a Parisian night (French food, wine,
         in your life, you try                 riages for Roman soldiers. Mar-         desserts and coffee).
                                               riage for soldiers was forbidden
       to find something to                     because of the emperor’s belief
                                                                                   ■   Create a waffle bar with your favorite top-
                                                                                       pings and fruits.
           enjoy as a couple.                  it would distract a soldier from    ■   Bake cookies or other goodies.
                                               his duties and loyalty to him.
                                                                                   ■   Take an online cooking class for couples.
                                               Disobedience resulted in exe-
                                               cution for those caught.                Drinking
                                 St. Valentine wore a very distinctive
                                                                                   ■   Take a mixology class online.
                           purple amethyst ring so soldiers wanting to
                                                                                   ■   Do your own wine and chocolate tasting
                           get married could distinguish him from others
                                                                                       (try it while watching a movie).
                           and approach him covertly to arrange their
                           clandestine marriages. Legend says that after
                                                                                       Non-Food Ideas
                           performing the ceremony, St. Valentine would
                                                                                   ■   Take a hike/roll.
                           cut out a heart from parchment paper and give
                           it to the couple to discreetly display and cel-         ■   Play tourist in your hometown.
                           ebrate their love each year.                            ■   Go for a drive.
                                 If you’re like me and have someone spe-           ■   Make a scrapbook.
                           cial in your life, you try to find something to          ■   Write love letters and read them aloud to
                           enjoy as a couple. One past Valentine’s Day,                each other.
                           we took an early morning flight from Seattle             ■   Do a massage/spa day.
                           to San Francisco (a one-and-a-half hour flight
                                                                                   ■   Watch a sunset.
                           with one carry-on), hopped on the train from
                           the airport to downtown, saw the sights, ate a          ■   Watch the stars at night through
                           romantic dinner, took an Uber back to the air-              a telescope.
                           port and caught a late flight back home.                 ■   Make a game night (board games or cards,
                                 This year, however, the novel coronavirus             no video games).
                           (COVID-19) pandemic has put up a few obsta-             ■   Try a do-it-yourself tarot reading.
                           cles. Vaccines are on their way to all of us, but a     ■   Build a bonfire.
                           romantic trip like the one we took isn’t a prac-
                           tical option for many people because of the                Whatever you choose to do, just remember
                           risk of flying, attractions being shuttered and         to make it your day as a couple and fall in love
                           restaurants and bars being closed.                     again together. ■

8 |   PN   February 2021
Smart Security Keep your tech gadgets safe - Accessible & Autonomous - Southeastern PVA
pva chapter roster

ARIZONA                      GEORGIA                          MISSOURI                      SOUTH DAKOTA
Arizona PVA                  Southeastern PVA                 Gateway PVA                   North Central PVA
5015 N. 7th Ave., Ste. 2     4010 Deans Bridge Rd.            1311 Lindbergh Plaza Center   209 N. Garfield
Phoenix, AZ 85013            Hephzibah, GA 30815              St. Louis, MO 63132           Sioux Falls, SD 57104-5601
800-621-9217                 706-796-6301                     314-427-0393                  800-505-4782
602-244-9168                 706-796-6338                     314-427-4183 (fax)            605-336-0494
www.azpva.org                                                 www.gatewaypva.org            605-332-8656 (fax)
                             ILLINOIS
CALIFORNIA                   Vaughan PVA                      NEBRASKA                      TENNESSEE
Bay Area & Western PVA       2235 Enterprise Dr., Ste. 3501   Great Plains PVA              Mid-South PVA
3801 Miranda Ave.,           Westchester, IL 60154            7612 Maple St.                VAMC, Rm. 2D100
   Bldg. 101, Rm. A1-219,    800-727-2234                     Omaha, NE 68134-6502          1030 Jefferson Ave.
   Mail Code 816             708-947-9790                     402-398-1422                  Memphis, TN 38104
Palo Alto, CA 94304          708-947-9755 (fax)                                             901-527-3018
800-273-6789                 www.vaughanpva.org               NEVADA
650-858-3936                                                  Nevada PVA                    TEXAS
California PVA               IOWA                             704 S. Jones Blvd.            Lone Star PVA
5901 E. Seventh St.          Iowa PVA                         Las Vegas, NV 89107           3925 Forest Ln.
Long Beach, CA 90822         7025 Hickman Rd. Ste. #1         702-646-0040                  Garland, TX 75042
562-826-5713                 Urbandale, IA 50322              702-646-3712                  800-583-5252
pvacaliforniachapter.org     515-277-4782                     www.nevadapva.org             972-276-5252
                             www.iowapva.org                                                lspva@lspva.net
Cal-Diego PVA
                                                              OHIO                          Texas PVA
VAMC, Rm. 1A-118
3350 La Jolla Village Dr.    KENTUCKY                         Buckeye PVA                   6418 FM 2100 Rd.
San Diego, CA 92161          Kentucky-Indiana PVA             26250 Euclid Ave., Ste. 115   Crosby, TX 77532
858-450-1443                 2835 Holmans Lane                Euclid, OH 44132              800-933-4261
www.caldiegopva.org          Jeffersonville, IN 47130         216-731-1017                  713-520-8782
                             502-635-6539                                                   713-520-8217 (fax)
COLORADO                     www.kipva.org                    OKLAHOMA
                                                              Mid-America PVA               VIRGINIA
Mountain States PVA
12200 E. Iliff Ave. #107     MASSACHUSETTS                    6108 NW 63rd St., Ste. A      Mid-Atlantic PVA
Aurora, CO 80014-5376        New England PVA                  Oklahoma City, OK 73132       11620 Busy St.
303-597-0038                 1208 VFW Parkway, Ste. 301       405-721-7168                  Richmond, VA 23236
303-597-0039 (fax)           West Roxbury, MA 02132                                         800-852-7639
www.mscpva.org               800-660-1181                     OREGON                        804-378-0017
                             617-942-8678                     Oregon PVA                    804-378-0026 (fax)
DELAWARE                     857-203-9685 (fax)               3700 Silverton Rd., NE
                             www.nepva.org                    Salem, OR 97305               WASHINGTON
Colonial PVA
700 Barksdale Rd. Suite 2                                     800-333-0782                  Northwest PVA
Newark, DE 19711             MICHIGAN                         503-362-7998                  616 SW 152nd St., Ste. B
888-963-6595                 Michigan PVA                     503-362-9837 (fax)            Burien, WA 98166
302-861-6675 (fax)           46701 Commerce Center Dr.        www.oregonpva.org             800-336-9782
www.colonialpva.org          Plymouth, MI 48170-2475                                        206-241-1843
                             248-476-9000                     PENNSYLVANIA                  206-433-0749 (fax)
FLORIDA                      248-476-9545 (fax)               Keystone PVA
                                                              1113 Main St.                 WEST VIRGINIA
Central Florida PVA
2711 S. Design Ct.           MINNESOTA                        Pittsburgh, PA 15215-2407     West Virginia PVA
Sanford, FL 32773-8120       Minnesota PVA                    800-775-9323                  336 Campbells Creek Dr.
407-328-7041                 1 Veterans Dr.                   412-781-2474                  Charleston, WV 25306
407-328-7139                 SCI-Room 238                     412-781-2659 (fax)            304-925-9352
                             Minneapolis, MN 55417            keystoneparavets@gmail.com
Florida PVA
                             612-467-2263                                                   WISCONSIN
3799 N. Andrews Ave.
                             612-726-9472 (fax)               PUERTO RICO                   Wisconsin PVA
Fort Lauderdale, FL 33309
954-565-8885                 mnpva.org                        Puerto Rico PVA               750 N. Lincoln Memorial Dr., Ste. 306
954-565-8843 (fax)                                            Urb. Country Club             Milwaukee, WI 53202-4018
                             MISSISSIPPI                      812 Moluca Street             800-875-9782
Florida Gulf Coast PVA
                             Bayou Gulf States PVA            San Juan, PR 00924-1723       414-328-8910
15435 N. Florida Ave.
                             15489 Dedeaux Rd.                787-757-6465 / 405-5551       414-328-8948 (fax)
Tampa, FL 33613
                             Gulfport, MS 39503-2667          1-800-784-9502 (fax)
800-397-6540
                             228-832-6864                     pvapuertorico@gmail.com
813-264-6285 (fax)
                             228-539-5494 (fax)
www.floridagulfcoastpva.org
                             bayougulfstates@cableone.net

                                                                                                    February 2021      PN    | 9
Smart Security Keep your tech gadgets safe - Accessible & Autonomous - Southeastern PVA
reasons
                                                                      &           remarks
                                                                                   TOM FJ ER STA D,
                                                                                      EDITOR

                            No Bias In SCI                                          Years later during a 1985 interview for the
                                                                               PVA-published book An Oral History Of The
                                                                               Paralyzed Veterans of America, Robert Moss, who
                          February is Black History Month. In recog-           was PVA’s second national president, recalled
                          nition, I’d like to share a story I came across in   notifying the press, “I called in the wording to
                          our archives that speaks to racial segregation       the wire services, DPI and Associated Press. I
                          during the World War II era.                         forget the exact wording now, but something to
                                Segregation was still commonplace in           the effect that spinal cord knows no bias. When I
                          the years following World War II, but attitude       called it in and the operator heard the language,
                          changes were slowly occurring as many peo-           she said in a very thick Southern drawl, ‘It’s
                                  ple dug in their heels in opposition. One    about time people around here got some sense.’”
                                  example was the action taken by a new             The day after its original story, the Rich-
           “... We do             veterans service organization called         mond Times-Dispatch ran a follow-up article
                                  the Paralyzed Veterans Association of        titled Hotel Lifts Racial Ban For Banquet.
         know that a              America, which was later shortened to        Detailing the latest news of the situation, the
                                  Paralyzed Veterans of America (PVA).         article read, “Hotel John Marshall, which had
          spinal-cord                  Leaders of this new group refused       refused to permit paralyzed Negro Veterans to
        injury knows              to accept a situation they found them-       attend a banquet there tomorrow night, yes-
                                  selves facing under what were commonly       terday rescinded its action. The annual ban-
             no bias.”            referred to as Jim Crow Laws. On Sept. 26,   quet is scheduled for 7:30 p.m. in the Virginia
                                  1947, PVA had called to order its second     Room of the Hotel.”
              – Gilford Moss                                                        It was the first time that Blacks had been
                                  formal meeting, a three-day confer-
                                  ence taking place at the Hunter Holmes       served in the Hotel John Marshall since the Civil
                                  McGuire Veterans Administration Hos-         War. This occurred just 10 months before then-
                          pital in Richmond, Va., with a closing banquet       U.S. President Harry Truman signed Executive
                          planned at the Hotel John Marshall on Sept. 28.      Order 9981, Desegregation of the Armed Forces,
                                However, the hotel informed PVA that none      which stated that “there shall be equality of
                          of its Black members or delegates would be           treatment and opportunity for all persons in the
                          allowed to attend the banquet. PVA members           armed forces without regard to race, color, reli-
                          voted for a telegram of protest to be sent to the    gion, or national origin.”
                          hotel and to notify the press of the situation.           This order also established the President’s
                                The local Richmond Times-Dispatch              Committee on Equality of Treatment and
                          newspaper began its coverage on Sept. 27             Opportunity in the Armed Services, an advisory
                          with an article on page 3, titled Racial Ban         committee to examine the rules, practices and
                          Lifting Asked For Meeting. The article detailed      procedures of the armed services and recom-
                          the circumstances and included the follow-           mend ways to make desegregation a reality.
                          ing excerpt from the telegram:                            I was glad to see that PVA took a position,
                                “The telegram, signed by Gilford Moss, of      however controversial at the time, that we
                          Chicago, national chairman for the Paralyzed         can now look back on and say, “We were on
                          Veterans’ Association stated that, ‘We have been     the right side of that one.” Gilford Moss and
                          informed that the Negro members of the Para-         that convention of delegates showed their
                          lyzed Veterans Association will not be allowed       recognition of bonds that occur between so
                          to join us at our banquet that concludes our         many PVA members because “a spinal-cord
                          convention. The Paralyzed Veterans Associa-          injury knows no bias.”
                          tion of America urges the manager of the hotel            The Hotel John Marshall was converted into
                          to reconsider his stand for this occasion. As an     an apartment complex in 2011, but the Virginia
                          organization we are not concerned with the           Room where PVA’s banquet took place lives on as
                          problems of racial prejudice but we do know that     part of the John Marshall Ballrooms and is now
                          a spinal-cord injury knows no bias.’”                a popular choice for wedding receptions. Q

10 |   PN   February 2021
pva points

Women’s Retreat
Registration is open for
the Paralyzed Veterans of
America (PVA) Women Vet-
erans Empowerment Retreat
(formerly WE Served).
      An all-expenses-paid
event, the retreat focuses
on the holistic well-being of
women veterans with disabil-
ities. Set for April 23–25 at the
Tempe Mission Palms Hotel &

    The Paralyzed Veterans of
    America Women Veterans
  Empowerment Retreat is set
      for April in Tempe, Ariz.
                                    COURTESY OF PARALYZED VETERANS OF AMERICA            COURTESY OF PARALYZED VETERANS OF AMERICA

                                                                                      February 2021       PN      | 11
COURTESY OF PARALYZED VETERANS OF AMERICA MINNESOTA CHAPTER
                            The Paralyzed Veterans of America Minnesota Chapter participated in a drive-by holiday parade Dec. 19.

                                                                                                                                              COURTESY OF PARALYZED VETERANS OF AMERICA MINNESOTA CHAPTER
                            Cars decked out in holiday decorations drove by the Minneapolis Department of Veterans Affairs
                            Medical Center and Minnesota Veterans Home Dec. 19.

                            Conference Center in Tempe,             For more information                The PVA Minnesota
                            Ariz., this immersive and          or to register, visit pva.org/      Chapter joined with several
                            outcome-driven experience is       womenveterans.                      other veterans service orga-
                            limited to just 40 attendees.                                          nizations to conduct a drive-
                                 Participants will enjoy                                           by holiday parade Dec. 19.
                            four days of learning and          Drive-By Parade                     The parade featured more
                            community-building in an                                               than 30 vehicles, with many
                            inclusive and supportive           The novel coronavirus               decked out in all types of
                            environment.                       (COVID-19) pandemic                 holiday decorations.
                                 PVA is working to assem-      made this past winter holi-              The holiday drive-by
                            ble a lineup of experts and        day season tough on many            parade paid honor and gave
                            thought leaders to present a       people, but the Paralyzed           holiday greetings to veter-
                            multitude of topics on health,     Veterans of America (PVA)           ans and health care workers
                            money, stress manage-              Minnesota Chapter found             at the Minneapolis Depart-
                            ment, nutrition, education,        a way to spread some sea-           ment of Veterans Affairs
                            employment, health care,           sonal joy to those who              Medical Center and Minne-
                            volunteering and more.             couldn’t get out.                   sota Veterans Home.

12 |   PN   February 2021
on the
               hill
            H E AT H ER A NSL EY, ESQ . , M SW

                                                                                                                                            © GETTY IMAGES/MSTAHLPHOTO
Advocacy Priorities                              bers’ needs to receive timely health
                                                 care services and the financial benefits
The start of the 117th Congress                  and employment assistance that will
and a new administration means Para-             help them and their families.
lyzed Veterans of America (PVA) will                  With the opportunity to move past
have many opportunities to educate               the pandemic on the horizon, PVA will
leaders in Washington, D.C., about PVA           also advocate for priorities that ensure
members’ needs.                                  its members have improved access to
                                                 Department of Veterans Affairs (VA)
                                                 health care and benefits, as well as dis-
                                                 ability civil rights protections and other
                                                 programs that provide needed supports        Expanding PCAFC
                                                 for people with disabilities.                Another critical priority is proper
                                                                                              implementation of the VA’s Program of
                                                 Specialized Services                         Comprehensive Assistance for Family
                                                 One of PVA’s most important priorities       Caregivers (PCAFC) expansion.
                                                 remains preserving access to the VA’s             The VA Mission Act directed
                                                 specialized services.                        the PCAFC be expanded to severely
                                                       PVA firmly believes the VA is the       injured veterans of all eras through
                                                 best health care provider for veterans       a phased approach beginning Oct.
                                                 with spinal-cord injuries and disorders      1, 2019. The VA missed this deadline
                                                 (SCI/D). The VA’s specialized systems        and didn’t begin expansion until
                                                 of care follow higher clinical standards     Oct. 1, 2020, for veterans who were
                                                 than those required in the private sector.   severely injured in the line of duty on
                                                       PVA remains concerned that if the      or before May 7, 1975, and on or after
                                                 VA continues to shift care to the private    Sept. 11, 2001.
                                                 sector and woefully understaff its facili-        Phase 2, which will include veter-
                                                 ties, the department’s capacity to treat     ans who served between May 8, 1975,
                                                 veterans will be diminished and could        and Sept. 10, 2001, is expected to begin
                                                 lead to facility closures and reductions     Oct. 1, 2022. PVA believes, however,
                                                 in services offered to catastrophically      that prolonged delays in expansion are
                                                 disabled veterans.                           further straining caregivers who des-
                                                       This year, PVA will advocate for       perately need relief now, particularly in
                                                 preservation of the VA’s specialized         light of the global pandemic’s impact.
                                                 services, including the funding needed            PVA will advocate for Phase 2 of the
                                                 to maintain them. PVA will also advo-        caregiver program to begin on Oct. 1,
                                                 cate for the VA to address pandemic-         2021, as Congress originally intended.
                                                 related delays in the delivery of
                                                 “nonessential” health care to SCI/D          Long-Term Care
                       © GETTY IMAGES/GSHELDON
                                                 veterans, including colonoscopies and        PVA also plans to focus on the need for
                                                 in-person annual exams.                      adequate long-term care (LTC) options
     In 2020, the novel coronavirus                    Telehealth isn’t a long-term           for veterans with SCI/D.
(COVID-19) pandemic required PVA                 replacement for in-person annual                   There are few LTC facilities that are
to shift its focus to ensure Congress            exams for SCI/D veterans. In addition,       capable of appropriately serving SCI/D
and the administration addressed                 PVA will advocate for the VA to develop      veterans. The VA operates six such facil-
those needs.                                     and implement a new staffing model            ities, and only one of them is located
     This year, PVA will continue to             that identifies and prioritizes staffing       west of the Mississippi River.
advocate for pandemic-related legisla-           needs at the national level while sup-             Since VA SCI/D LTC facilities
tion and policies that focus on its mem-         porting flexibility at the facility level.    are exceptionally limited, veterans

                                                                                                              February 2021    PN    | 13
with SCI/D who have chronic medi-
                            cal issues are being treated in com-
                            munity institutions by providers not
                            trained in SCI/D. This often results
                            in compromised quality of care and
                            poor outcomes.
                                 In some areas, it’s nearly impos-
                            sible to find placements for veterans
                            who are ventilator-dependent or who
                            have bowel and bladder care needs.
                            As a result, PVA will advocate for the
                            VA to direct and design a SCI/D LTC
                            strategic plan that addresses the
                            need for increased LTC beds in VA
                            SCI/D centers.
                                 Furthermore, PVA will advocate for
                            increased funding in future fiscal years
                            directed at the completion of remain-
                            ing SCI/D-related construction proj-
                            ects, including those focused on LTC.

                            Auto Grants
                            Improved transportation assistance
                            through the VA for the most severely
                            disabled veterans is another one of
                            PVA’s key priorities.
                                 Access to an adapted vehicle is
                            essential to the mobility and health
                            of catastrophically disabled veter-
                            ans who need a reliable means of
                            transportation. The current one-time
                            VA Automobile Allowance grant of
                            approximately $21,500 covers any-
                            where from one-half to one-third of
                            the cost to procure a vehicle.
                                 PVA believes veterans need
                            ongoing access to this grant and
                            will support legislation to increase
                            the frequency with which eligible
                            veterans would be able to receive
                            it. PVA will also advocate for the VA
                            to properly reimburse veterans for
                            the cost of items on the VA’s current
                            Automobile Adaptive Equipment list,
                            as well as modern driver assistance
                            technologies to broaden opportuni-
                            ties for veterans with catastrophic
                            disabilities to drive more comfort-
                            ably and safely.

14 |   PN   February 2021
© GETTY IMAGES/GREJAK

     Furthermore, PVA                                                                                  months of limited travel
will support legislation                                                                               because of the pan-
to allow veterans who                                                                                  demic. Finally, PVA will
have non-service-con-                                                                                  continue to advocate
nected catastrophic                                                                                    for legislation that will
disabilities to receive                                                                                ensure the long-term
the same type of                                                                                       solvency of important
adaptive automobile                                                                                    Social Security benefits.
equipment as veterans                                                                                        To learn more about
whose disabilities are                                                                                 these PVA priorities for
service-connected.                                                                                     2021, including how to
     PVA will also                                                                                     advocate with your Con-
advocate on a variety      Improved transportation assistance through the Department of Veterans       gress members, visit pva.
of issues impacting its    Affairs is a key priority for Paralyzed Veterans of America.                org/research-resources/
members as people                                                                                      legislative-priorities.
with disabilities. PVA’s                                                                                     Heather Ansley,
priorities include improved enforce-          and access to air travel under the Air    Esq., MSW, is PVA’s associate executive
ment of access requirements under             Carrier Access Act, particularly as its   director of government relations in
the Americans with Disabilities Act           members return to the skies following     Washington, D.C. ■

                                                                                                            February 2021   PN   | 15
L I S A VA N L O O

                                                                          innovations

Sensing Pressure                                                                                                        The Sensoria Mat’s app shows a
                                                                                                                        user’s pressure relief history and can
Pressure sores were the least of                                                                                        make that information available to
Garrison Redd’s worries as a teen-                                                                                      authorized telehealth providers.
ager growing up in Brooklyn, N.Y.
But a catastrophic spinal-cord injury
              (SCI), sustained after                                                                                    Mat system serves as a wheelchair
                 Redd was struck by                                                                                     wellness coach, reminding users to
                  a stray bullet at                                                                                     move every 30 minutes and alert-
                   age 17, changed                                                                                      ing them to their success.
                    everything for                                                                                           “There are about 36 conclusive
                          him.                                                                                          research studies that agree if a per-
                                                                                                                        son in a wheelchair can effectively
                                                                                                                        offload consistently during the day,
                                                                                                                        multiple times a day, in a specific
                                                                                                                        pattern by using a certain process,
                                                                                                                        the risk of ulceration is reduced,”
                                        ALL PHOTOS COURTESY OF SENSORIA

                                                                                                                        says Davide Vigano, Sensoria co-
                                                                                                                        founder and CEO. “It’s very hard
                                                                                                                        to treat a pressure ulcer. Once you
                                                                                                                        develop one, it’s hard to heal them.”
                                                                                                                             The Sensoria Mat, developed
                                                                                                                        with researchers at Rancho Los
                                                                                                                        Amigos National Rehabilitation
                                                                                                                        Center in California, is a holistic
                                                                                                                        system that uses data from a set
                                                                                                                        of sensors to relay information to
                                                                                                                        a mobile app and a cloud-based
                                                                                                                        dashboard of metrics that’s acces-
                                                                                                                        sible, with a patient’s permission,
                                                                                                                        to telehealth providers.
                                                                                                                             While the system was in devel-
                                                                                                                        opment before the novel coronavirus

                                                                          Quality (AHRQ) estimates costs the
                                                                          health care system almost $27 billion
                                                                          a year to treat.
                                                                               That’s why Redd says he was
    The bullet                                                            thrilled to try the Sensoria Mat, a new
burned nerves in his                                                      system the Team USA para powerlifter
spine, leaving the active,                                                describes as “cool and innovative.”
athletic teen unable to                                                   The technology aims to help reduce
walk. And as someone who was now                                          the number of pressure sores those
using a wheelchair, it also elevated his                                  with SCI endure each year.                 The Sensoria Mat is a holistic system
concern about developing ulcerations, a                                                                              that uses data from a set of sensors,
dangerous condition for those with SCI.                                   A Perfect Match                            shown here, to relay information
    It’s a serious problem that the                                       Since pressure sores develop as a result   to a mobile app and a cloud-based
Agency for Healthcare Research and                                        of sustained immobility, the Sensoria      dashboard of metrics.

16 |   PN   February 2021
(COVID-19) pandemic took hold, its
timing could not have been better, as
the need for telehealth resources and
remote care increased.
     Jeff Rankin, co-director of rehab
engineering at Rancho Los Amigos,
says his team was encouraged by
others to approach Sensoria and                                                               The Sensoria Mat contains a paper-thin
collaborate on the product’s develop-                                                      insert that sits inside a custom wheelchair
ment after previous partnerships with                                                         cushion. The insert is positioned below
other tech companies didn’t pan out.                                                              a gel layer to keep the cushion cool.
     “We were going to use Sensoria for
a completely different project,” Rankin
says, making note of the referrals they
had received. “It’s been a perfect match      enough or doesn’t perform it physi-          to further develop the product, Rankin
in so many ways ever since.”                  cally correctly, the app encourages the      says the team hopes to get the product
                                              user to try again.                           to as many users as possible.
Positive Feedback                                   “In general, the feedback has been          “The goal is to make it so it’s attrac-
The AHRQ estimates about 2.5 mil-             positive,” Rankin says.                      tive and mass-adopted,” Rankin says.
lion people a year incur pressure                   Vigano and Rankin describe the
sores, and about 60,000 Americans die         status of the Sensoria Mat as a pro-         Changing Lives
each year from complications of the           totype, although Vigano is confident          Redd sees the benefits. As a powerlifter,
ulcerations. Put simply, moving helps.        Sensoria will be able to ship units to       it’s not unusual for him to complete sev-
      “Relieving the pressure between         users who have purchased them by the         eral pull-ups while still strapped into
the chair and your body is the single         end of March.                                his chair. But Redd says Sensoria makes
biggest factor someone can do,” Rankin              In addition to conducting an           vital movements possible for anyone.
says of the best prescription for avoid-      economic impact study with Johns                   “You don’t need to be able to lift two
ing ulcerations. And that’s the sole          Hopkins University in Baltimore, the         times your body weight to use the Sen-
focus of the Sensoria Mat.                    team at Rancho Los Amigos launched a         soria Mat,” Redd says. “However, you do
      A paper-thin insert sits inside a       research study in January that required      need to lift a small portion of your body
custom wheelchair cushion and sends           80 participants. The study is expected       weight to prevent ulcerations.”
data to a small device, which transmits       to last a couple of years and gather addi-         Rankin is just pleased at how well
the information to the Sensoria app           tional data about the Sensoria Mat and       the Sensoria partnership turned out
and its accompanying dashboard. The           its impact on pressure sores.                and says he’s looking forward to the day
insert is so thin, the user can’t even              “We need more data to refine the        this technology is widely available. For
feel it. It is positioned below a gel layer   algorithms. The challenge is really          him, this type of progress has been a
to keep the cushion cool.                     patient recruitment,” Vigano says,           long time coming.
      “It’s super soft and super comfy,”      referring to the pandemic’s limitations.           “To have a company like Sensoria
Vigano says of the cushion, noting that       “So, we decided to launch a crowdfund-       Health that has the technology and is
the app employs positive reinforcement        ing campaign so we can send out the          willing to work with us, and to see the
and constructive coaching. “The coach         devices at the lowest possible cost.”        vision turn into a device that’s useful
inside the application will tell them if            The campaign, which will raise         and something people are really excited
they didn’t do the exercise correctly         funds through Kickstarter, is set to         about ... it has been amazing,” Rankin
and to do it again.”                          begin early this year. Vigano estimates      says. “I have no doubt whatsoever that
      For example, one of the exercises       the system will cost about $500 but          this device will in many ways change a
may be a left lean for 30 seconds. If the     says during the Kickstarter campaign,        number of lives in positive ways.”
user completes the assigned exercise          it will cost less.                                 For more information, visit
correctly, the app rewards the user. If             Between the campaign and a fed-        sensoriahealth.com/sensoria-mat. ■
the user doesn’t hold the exercise long       eral grant Rancho Los Amigos received

                                                                                                            February 2021    PN    | 17
Autonomous vehicles are still in various
       stages of development, but they hold great
       promise to help people with disabilities
       travel faster, safer and more easily.

                            by Rory A. Cooper, PhD, & Brad Dicianno, MD

                            Throughout much of the                                   Since 2009, the vast
                            United States, the capacity to drive opens the      majority of the $14 bil-
                            door to greater participation in life, job oppor-   lion invested in AV tech-
                            tunities, access to health care, education and      nology has been spent
                            a general sense of freedom.                         in pursuit of mass
                                 However, those same opportunities can          market driverless cars.
                            be really restricted for people with disabili-      These efforts have
                            ties such as spinal-cord injury and disease         produced signifi-
                            (SCI/D). There are some who don’t drive,            cant advances, but
                            don’t have easy access to a ride or live in a       the technological,
                            metropolitan area with limited public trans-        psychological and
                            portation options.                                  regulatory con-
                                 Additionally, with the ever-growing            straints that remain
                            retirement of the baby boomer generation,           will likely make
                            who largely want to “age in place,” there’s an      widespread AV market
                            increasing need for accessible and enabling         adoption a decade or
                            personal transportation.                            more away.
                                 The transportation industry is in the               Despite the billions
                            middle of one of its largest transforma-            invested and rapid technolog-
                            tions, with unprecedented investment and            ical advances, the transportation
                            advancements in electric and autonomous             options for older adults and persons
                            vehicle (AV) technologies.                          with disabilities remains largely the same.

18 |   PN   February 2021
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                       Incorporating
                       Accessibility
                         A 2015 report from       Q   Research and development of AVs and
                          the National Council        their components should include a
                           on Disability titled       requirement that demonstrates that any
                           Self-Driving Cars:         resulting products incorporate accessibil-
                           Mapping Access to a        ity of people with diverse disabilities,
                           Technology Revolu-         and these technologies should be
                         tion explored the            required to comply with Section 508
                        “emerging revolution          of the Rehabilitation Act of 1973.
                    in automobile technology
                  and the promise it holds for    Q   Guidelines are needed for how people
                 people with disabilities, as         with disabilities can safely interact with
               well as the obstacles the dis-         and use AVs.
            ability community faces to real-
       ize that promise.” It makes several        Q   All types of common and public use AVs
key recommendations:                                  must be fully accessible.

                                                                                                         February 2021                                             PN          | 19
COURTESY OF HUMAN ENGINEERING RESEARCH LABORATORIES
                                 The Human Engi-
                            neering Research
                            Laboratories (HERL)
                            at the University of
                            Pittsburgh and the
                            U.S. Department of
                            Veterans Affairs was
                            recently funded by the
                            Department of Trans-
                            portation to create the
                            Automated vehicle
                            Service for People with
                            disabilities – Involved      Toyota is among the vehicle manufacturers trying to develop and test
                            Responsive Engineer-         autonomous vehicles.
                            ing (ASPIRE) Center.
                                 The ASPIRE Center
                            is investigating the implications of accessible      taxonomy and definitions for automated driving
                            automated vehicles and mobility services for         to simplify communication and facilitate col-
                            people with disabilities and their caregivers.       laboration within technical and policy domains.
                                 A 2017 survey from the Bureau of Trans-              The SAE defines more than a dozen key
                            portation Statistics found that 6 million            terms and provides full descriptions and
                            people with a disability have difficulty get-         examples for each level of autonomy. Unfortu-
                            ting the transportation they need. There have        nately, it doesn’t address usability and acces-
                            been no overarching federal laws specifically         sibility for people with disabilities.
                            governing AVs, but the National Highway                   Ford, Toyota, Hyundai, Mercedes-Benz,
                            Traffic Safety Administration released fed-           Tesla, Google and Uber, among others, are
                            eral guidance on the issue in 2019.                  developing AVs that are either currently
                                 The Society of Automotive Engineers (SAE)       being tested on American roadways or will be
                            international standard J3016 provides a common       within the next five years.

                                                                                                                                      COURTESY OF HUMAN ENGINEERING RESEARCH LABORATORIES

                            Hyundai plans to produce and deploy air vehicles in collaboration with Uber through a ground and aerial
                            rideshare network.

20 |   PN   February 2021
Self-driving personal
                                                                                                                                  vehicles could
                                                                                                                                  potentially provide a
                                                                                                                                  hands-free autopilot
                                                                                                                                  driving mode.
© GETTY IMAGES/ METAMORWORKS

                                    Of course, not all AVs are intended for    planning from day one is critical to a success-
                               roads. Hyundai is working with the city of      fully accessible product, regardless of how many
                               Los Angeles to introduce accessible flying       years in the future it lies.”
                               AVs as an urban air mobility solution. Hyun-         The report found that mitigating trans-
                               dai has adopted a NASA strategy by publicly     portation-related barriers for people with          This self-driving vehicle
                               releasing its design concepts to inspire peo-   disabilities would enable new employment              is used for test drives
                               ple to use them to innovate emerging engi-      opportunities for approximately 2 million                conducted by Uber
                               neering technologies.                                                                                      Technologies Inc.
                                    Hyundai plans to produce and deploy
                               air vehicles in collaboration with Uber
                               through a ground and aerial rideshare
                               network. A collaborative infrastructure
                               is being developed to support this on-
                               demand AV transportation system.

                               Eliminating Barriers
                               Different levels of automation pose
                               distinct possibilities and challenges
                               for people with disabilities. Therefore,
                               accessibility research needs to be driven
                               by and for people with disabilities to
                               assure that their needs and preferences
                               are incorporated.
                                    As noted by the National Council on
                               Disability’s 2017 report, Self-Driving Cars:
                               The Impact on People with Disabilities,
                               “The disability community knows better
                               than any other how being involved in the
                                                                                                                                         © GETTY IMAGES/ JASONDOIY

                                                                                                                                  February 2021     PN      | 21
people with disabilities and save $19 billion           importance of developing futuristic tech-
                              annually in health care expenditures from               nologies related to transportation.
                              missed medical appointments alone.                          This work indicates that advancements in
                                  Most people with disabilities have only             technologies related to transportation are very
                              three viable transportation options:                    important to individuals with disabilities and
                                                                                      represent a significant unmet need. More than
                               Q   Operate a personal vehicle                         60% of respondents rated the importance of
                               Q   Rely on the services of others                     technology in meeting their personal mobility
                               Q   Use accessible public transportation               needs as “critical,” and over 40% thought that
                                                                                      traveling freely was also “critical.”
                                   For people with disabilities who don’t live            Some survey participants provided addi-
                              in urban areas, owning and operating a per-             tional comments, with approximately 12%
                              sonal vehicle or relying on friends and fam-            mentioning transportation as being critical
                              ily are the only realistic options. In multiple         and “self-driving” vehicles being included in
                              studies to identify unmet needs of individuals          nearly 50% of those comments.
                              with disabilities receiving community-based
                              services, transportation has been consistently          Making An Impact
                              highlighted as an issue.                                There are risks and challenges associated with
                                   HERL investigators surveyed the opinions           both AVs and accessible vehicles.
                              of more than 1,000 users of mobility devices                 The experiences gathered through the
                              and assistive technology to identify a research         University of Pittsburgh Medical Center’s Cen-
                              and development road map. The survey                    ter for Assistive Technology show that current
                              focused on advancements in mobility-related             levels of autonomy available in commercially
                              assistive technologies and asked about the              available vehicles can have an impact.
                                                                                           For example, older drivers or “insecure
             © GETTY IMAGES/ SCHARFSINN86
                                                                                      drivers” can (re)gain the safety and confi-
                                                                                      dence to drive, and driving instructions can
                                                                                      improve through quantitative data. Such
                                                                                      features as rear collision/obstacle avoidance,
                                                                                      corrective steering and blind-spot warnings
                                                                                      can make all drivers safer and make driving
                                                                                       possible for others.
                                                                                              The Merlin Co-pilot is an AV technology
                                                                                          that is intended to mitigate the risks and
                                                                                           challenges by providing capabilities com-
                                                                                            patible with newer accessible vehicles to
                                                                                            make them more autonomous. The system
                                                                                            is integrated into the vehicle to access
                                                                                            vehicle functions and features, including
                                                                                               braking, signaling and others that are
                                                                                                 essential for safe vehicle control. It
                                                                                                     adds autonomous features to peo-
                                                                                                      ple’s existing accessible vehicles.
                                                                                                           This is particularly important
                                                                                                      because accessible vehicle modifi-
                                                                                                      cations can be expensive, ranging
                                                                                                      from as low as $1,500 to as high
               To be successful, automated vehicle technology needs extreme reliability,              as $100,000, excluding the cost of
               especially if it’s the only means a person has to drive safely.                        the vehicle. People tend to keep

22 |   PN   February 2021
Toyota Motor Corp.
                                                                                                                                     President Akio Toyoda
                                                                                                                                     speaks in front of the
                                                                                                                                     e-Palette Concept
                                                                                                                                     Vehicle, a fully
                                                                                                                                     autonomous, battery-
                                                                                                                                     electric vehicle, during
                                                                                                                                     a press event for the
                                                                                                                                     consumer electronics
                                                                                                                                     trade show known as
                                                                                                                                     CES in Las Vegas in 2018.
© GETTY IMAGES/ ALEX WONG

                            their modified accessible vehicles as long as it is    many people with disabilities. Moreover, the
                            feasible. For people who use adaptive vehicles        need to buy a new vehicle is a significant hurdle
                            to eventually adopt AVs, the technology has to        for many people with disabilities.
                            be available, affordable and compatible with               Currently, accessible personal electric
                            vehicle access needs.                                 vehicles, the likely future for autonomous
                                 It’s likely to be over a decade before this is   vehicles, are in various stages of research and
                            possible, and even people with disabilities who       development. Toyota Motor Corp. plans to
                            buy an accessible vehicle today will probably be      deploy an accessible autonomous transporta-
                            using that same vehicle even as other customers       tion system for this summer’s Olympic and
                            start to transition to AVs.                           Paralympic Games in Tokyo.
                                                                                       The system will include a wide range of
                            Moving Forward                                        vehicles to travel within and between venues.
                            Most AVs are based on electric vehicle chassis.       This should prove an important milestone in
                            Some electric vehicles that could be accessible       accessible AV progress and provide important
                            to people present challenges because they don’t       information for moving forward.
                            include, for example, traditional handholds used           Autonomous vehicle technologies have
                            to help transfer in/out of the vehicle.               the potential to drastically improve access
                                 For people who use their wheelchairs             for people with SCI/D, as well as for people
                            as seats in motor vehicles, the ability to            who have vision, hearing, intellectual and
                            use wheelchair tie-downs and occupant                 developmental disabilities. People with
                            restraints needs to be considered. By upgrad-         disabilities need to be engaged in and help
                            ing existing modified vans, this barrier could         guide the development of AV technologies.
                            be lowered at least until manufacturers start              For more information on HERL, visit
                            producing purpose-built vehicles.                     herl.pitt.edu.
                                 To be successful, AV technology needs                 Rory A. Cooper, PhD, is the founder and
                            extreme reliability, especially if it’s the only      director of HERL, while Brad Dicianno, MD,
                            means a person has to drive safely. Cost is also      serves as the organization’s medical director
                            a notable issue. Devices and systems that are         and chief operating officer. Q
                            too costly will essentially be inaccessible to

                                                                                                                                     February 2021   PN    | 23
Smart home
                                                                                  technology and
                                                                                  smart devices
                                                                                  provide convenience
                                                                                 and independence,
                                                                                but it’s important to
                                                                               manage security risks.

                              Alexa, a smart device
by Amanda Laverman            name commonly spoken multiple times a day
                              inside many households across the country,
                              has become synonymous with completing
                                tasks by voice command.
                                        Everything from kitchen appliances
                                     to thermostats, doors and fans can
                                      now be controlled by smart home
                                       devices. These Internet of Things
                                       (IoT) devices — devices that use sen-
                                       sors, software and other technolo-
                                       gies to exchange data
                                      with other internet-
                                     enabled devices
                                   — increase con-
                                venience and inde-
                              pendence. However,
                              these devices also
                              increase your home’s
                              security risk.

  24 |   PN   February 2021
ILLUSTRATION BY KERRY RANDOLPH © GETTY IMAGES/
                                                    THITICHAYA YAJAMPA/ NE2PI/ YUICHIRO CHINO/ CONGORILLA/
                                                                             STEPHEN BRASHEAR/ BILL OXFORD

                                                                                                                                         COURTESY OF LUCI
         The media shares horror stories of
    hacked baby monitors, compromised
     security cameras and identity theft. But
     you can protect yourself by knowing what
      data your device is collecting, what that
      data is being used for and how it is being
       transferred and stored.
            “A big part of security is knowing
        what is being collected and commu-
        nicated,” says Jered Dean, co-founder
        and chief technical officer for LUCI, a
      hardware/software product that attaches
to power wheelchairs to prevent tips, collisions
and drop-off falls and provides security, stabil-
ity and connectivity through cloud and sensor-
fusion technologies. “Smart products connect
to the internet and collect data, but why? What
data is being collected and transmitted and
what does that do for you? Make sure that you           LUCI is a product that attaches to power wheelchairs and provides security,
are benefiting from the data collection and              stability and connectivity through cloud and sensor-fusion technologies.

                                                                                                             February 2021   PN   | 25
connectivity before committing to a new smart     your use of the app, you can change it to only
                             technology. Then, focus on data storage and       access your location when that particular app
                             transmission for the technology.”                 is in use.
                                                                                    “Take your data security seriously. Focus
                             Keeping Devices Secure                            on how your identity is used or combined with
                             The default data permissions on most smart        data,” Dean says. “As a general best practice,
                             home devices are often very generous.             look for devices that don’t store your data in
                             Carefully evaluate all privacy settings and       connection with your name or ID. Or look for
                             requested permissions on each device and its      devices that store your information encrypted
                             associated apps. Only share what is neces-        at rest [on the device] and in transit [when
                             sary or what you are comfortable with shar-       being transmitted over the internet]. Take the
                             ing, and edit the default settings accordingly.   time to find out how the smart device handles
                                  For example, a device may ask for per-       data and look under the privacy, security or
                             mission to know your phone’s location all the     data-sharing options for the device to config-
                             time. If you believe this is unnecessary for      ure things how you want them.”

                                                                                                                                PHOTOS THIS PAGE BY HARRY ROBINSON
            Anne Robinson’s
            newest device, the
            Echo Loop, is a ring
            with a button on it
            that Robinson can
            push to activate and
            talk to Alexa while
            she’s outside or in her
            vehicle. She can open
            the front door from
            outside or call her
            emergency contact
            with just two clicks of
            the button.

26 |   PN   February 2021
HARRY ROBINSON
    Anne Robinson demonstrates how she
      uses Amazon Echo Show and Eufy, a
   robotic vacuum, to clean her floors. She
says she has 18 smart devices in her home.

     One super-user of smart devices is
Anne Robinson, current national direc-
tor of the Paralyzed Veterans of Amer-
ica Texas Chapter, an Army veteran and
level C4 quadriplegic.
     Robinson’s home is set up with
numerous smart devices that enable
her to complete tasks independently,
such as turning fans on and off, adjust-
ing the lights and temperature and
answering the front door. Robinson is
diligent in protecting the smart device
security inside her home.
     “I have 18 devices in the house
that allow me to control everything,”
says Robinson. “Keeping them safe is
definitely a task that we have to con-
tinually work on, as the threat is always
there. The mesh Wi-Fi system that we
use, [Amazon] Eero, is protected with
encryption and several other things
so that it is able to block any threats or
intrusions on that
system, as well as
                                                                                                         HARRY ROBINSON

everything it’s
connected to.”
     Throughout
Robinson’s house are
numerous Amazon
Echo Dots, which
she uses to listen
to audiobooks and
music, adjust the
lights and get other
people’s attention.
     By pairing the
Ring Doorbell with
other devices, Rob-
inson can easily
view who’s at the
front door and talk
to the person with-
out having to open
the door.                  Anne Robinson uses Amazon Echo Show to see who is at the front door.

                                                                                                  February 2021           PN   | 27
HARRY ROBINSON
                                   Anne Robinson uses the
                             Amazon Fire TV Cube to control
                                   her bedroom television.

                                 Open Sesame door open-
                            ers allow her to open and
                            close doors herself, which
                            comes in handy for letting the
                            cat in and out.
                                 The Amazon Fire TV
                            Cube is connected to her TV,
                            cable box, Blu-ray player and
                            security cameras. Through
                            voice control, she can switch
                            between devices, search for
                            movies, shop online and
                            complete any other tasks that
                            are normally done by using a
                            remote. She also has control
                            of her home’s alarm system,
                            which comes with additional
                            security measures.
                                 “I have an alarm system
                            for the house, provided by a
                            local company. The Total Connect system is con-            “If security is built into the devices,
                            nected via my iPhone to Alexa, the smart lock on     the default security settings are usually not
                            the door and the garage door. I can set the alarm    enough,” says Petros Efstathopoulos, global
                            system, turn off the alarm, unlock/lock the door,    head of NortonLifeLock Research Group.
                            open/close the garage door, all with particular      “Similarly, consumers are often unaware that
                            security measures to prevent unwanted people         they can customize these default security
                            from using it. The Honeywell digital panel for       settings to maximize security and privacy. In
                            the alarm system has a built-in speaker and          your router settings, it’s a good idea to use a
                            microphone that allows emergency services to         strong encryption method like WPA2 [Wi-Fi
                            talk directly through it instead of depending on a   Protected Access 2] when you set up Wi-Fi net-
                            landline or cellphone, which is good in an emer-     work access. This will help keep your network
                            gency,” Robinson says.                               and communications secure.”
                                                                                       Security experts also list passwords as one
                            Password Protection                                  of the top areas that users are too lax with when it
                            Attacks on the data the devices collect and          comes to security measures. Always change the
                            store online pose a significant risk.                 default password to something complex, unique
                                 One way to help mitigate it is by enabling      to that account or device, and avoid including
                            additional security protocols for your home          any personally identifying information.
                            Wi-Fi. Set up a guest Wi-Fi for your visitors to           “The most common issue leading to a secu-
                            use that will remain separate from the one con-      rity incident is by far the fact that many users do
                            nected to your devices. Also enable two-factor       not change the default password of devices, or
                            authentication for your accounts whenever pos-       even if they do, they choose something short and
                            sible, such as requiring a one-time code to be       simple,” says Efstathopoulos. “Most IoT devices
                            sent to your cellphone or email address to com-      are as secure as the password you use for them.
                            plete the login process.                             Use strong and unique passwords when set-

28 |   PN   February 2021
© GETTY IMAGES/TRAITOV
ting up accounts associated with connected
devices, along with Wi-Fi networks.”
                                                                                      How To Create A
     In addition to creating a strong, unique
password, you should also change the default
                                                                                      Secure Password
name of your router. Some of the best practices
                                                                           Check out these tips from the Global Head of NortonLifeLock
for passwords apply to naming routers, as well.
                                                                           Research Group Petros Efstathopoulos on how to create a strong,
Choose a name that is unique and doesn’t con-
                                                                           secure password.
tain any personal information.
     “Give your router a name. Don’t stick
                                                                           Q Be unconventional. Avoid common words anyone can find in
with the name the manufacturer gave it — it
                                                                           the dictionary. Simply adding numbers to common terms, like
might identify the make or model,” Efstatho-
                                                                           mainstreet12, isn’t any better. Hackers write programs to crack
poulos says. “Give it an unusual name not
                                                                           these types of passwords first.
associated with you or your street address.
You don’t want your router name to give                                    Q Be complex. The longer and more complicated your password

away any personal identifiers.”                                             is, the harder it is to guess. Include numbers, symbols and mixed-
     Another important factor to consider                                  case letters. Efstathopoulos says Google suggests this technique:
with smart home devices is what will be your
backup plan if, and when, something goes                                            Uses a special    Mixes uppercase and         Uses a
wrong. Prepare for how you’ll face such issues                                       character         lowercase letters         number
as a power outage, spotty Wi-Fi or a device
malfunction. Not only do you need a plan for
what you would do without the functionality
the device provides, but make sure these issues                              M f T & J s m a f e1 a d
won’t put your device in an unsecure state.
                                                                                       Acronym instead of conventional words
     “For wheelchair users especially, it’s
important to ask what happens if the prod-
uct malfunctions?” Dean says. “Does the
product still work even if my Wi-Fi doesn’t?                               Create a phrase known only to you and associate it with a
Is there a backup plan? Smart technology                                   particular website. A phrase for your email could be, “My
used for accessibility, particularly when it is                            friends Tom and Jasmine send me a funny email once a day.”
combined with the wheelchair itself, needs                                 Use numbers and letters to recreate it. “‘MfT&Jsmafe1ad’ is a
to have robust plans for failing safely and                                password with lots of variations,” notes Google.
keeping the wheelchair user independent                                    Q Stay impersonal. Many people use birthdays, addresses or
and mobile no matter what.”                                                other personal information to make passwords memorable. But
     Unlike many household appliances,                                     it is “alarmingly easy” for hackers to obtain personal information
smart devices can’t be part of a “set it and                               about prospective targets, according to Symantec. Avoid any-
forget” mindset. To maintain the security                                  thing that refers to your name, nickname, the name of a family
of devices, regularly update all software.                                 member or pet and any personal numbers like phone numbers,
These updates often contain security fixes.                                 addresses or other information.
A common method hackers use is to target
                                                                           Q Change them up. Passwords should be changed regularly to
known software vulnerabilities in devices
                                                                           remain effective. How often? Online financial accounts should
that have not been updated.
                                                                           be changed every month or two; corporate network passwords,
     “Keep your devices up to date,” Efstatho-
                                                                           every three to four months. For everything else, simply use good
poulos says. “Check the device manufactur-
                                                                           judgment and don’t be lazy.
er’s website regularly for firmware updates.
Updates often include critical patches for                                 Q Put it to the test. Online password checkers can evaluate a pass-
bugs or security vulnerabilities.” Q                                       word’s strength.

                                                                                                                              February 2021      PN   | 29
Virtual reality is helping veterans with SCI/D in
                St. Louis to improve their mental and physical health.

                            Virtual reality (VR) is a                           10-plus hours from their families, and stuck in
                            quickly evolving technology that’s allowing         bed trying to heal a pressure sore,” Luitjohan
                            veterans with spinal-cord injury and disease        says. “Looking at those same four walls can be
                            (SCI/D) to experience a newfound sense of           pretty difficult as far as your mental health,
by Brittany Martin          independence and freedom.                           so by going in and being able to put an Oculus
                                 With the help of recreational therapists       headset on and give them the opportunity to
                            in the Department of Veterans Affairs (VA)          go fly with the Blue Angels or go scuba diving
                            St. Louis Health Care System, veterans have         in Australia or socialize with other veterans
                            flown with the U.S. Navy’s Blue Angels, visited      through the meeting spaces on those programs
                            museums and battled with swords, all from           kind of gives them an outlet to get out of that
                            their wheelchair.                                   room in their head, while their body is still,
                                 Recreational therapists Matt Luitjohan         unfortunately, stuck in that room.”
                            and Charley Wright started the program
                            in November 2019 and were just beginning            Starting The Program
                            to ramp it up when the novel coronavirus            Wright watched a VR demonstration several
                            (COVID-19) pandemic shut it down. During            years ago at the National Veterans Wheel-
                            that time, however, they acquired five Oculus        chair Games and saw its potential for use in
                            Quest and seven Oculus Go VR headsets, and          his clinic, but most of the technology was still
                            more than 20 veterans have benefited from            experimental and the price was unattainable.
                            their use.                                               As the technology evolved and prices came
                                 “Several of our inpatient veterans are often   down, the program at the St. Louis VA took shape.
                            on bedrest. They might be far away from home,       While there are several types of VR systems on
                            as far away as Wichita [Kan.]-plus, so possibly     the market, Wright says the Oculus headsets

30 |   PN   February 2021
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