PD/MDC News - May 2021 - Beth Israel ...
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PD/MDC News – May 2021
A Caregiver’s Loving Tribute: Patty & Dick Goldman
Patty Goldman passed away at the age of 81 on January 9 after living with
Parkinson’s disease for over 12 years. Dick Goldman was Patty’s devoted
husband for over 61 years. Patty’s family will remember her as a warm,
generous, and loving person, always committed to helping others.
During her life in Boston following graduation from Wellesley College, Patty was
committed to community service and continuing education. She was a member
of the Newton Human Rights Commission, the League of Women Voters, the
Newton Times for whom she covered meetings of the Board of Alderman, and
the Brandeis Life Long Learning Program. She was Executive Director of the
New England chapter of the Asthma and Allergy Foundation (AAFA). She was
honored by AAFA for her distinguished service when she retired. In June of
2003, she and Dick received the Community Service award from the American
Jewish Committee.
Patty’s connection to the BIDMC community is notable. Diagnosed with breast cancer, Patty had her first
mastectomy at the Beth Israel Hospital at age 40 in 1979. Following her surgery, she received
chemotherapy for one year under the excellent care of Lowell Schnipper, MD, and chief of the Division of
Hematology/Oncology.
In appreciation for her care, Patty wanted to make a contribution to the Hospital as a volunteer and joined
the Hospital’s Women’s Auxiliary. She was instrumental in the formation of the Friends of the Beth Israel
Hospital, which was a combination of the Women’s’ Auxiliary and the Men’s Associates.
Following her second mastectomy, Patty was diagnosed with Parkinson’s disease and first saw David
Simon, MD, PhD, in November of 2008. Patty was fortunate to have been treated by Dr. Simon until her
passing early this year.
In her honor, and in her spirit of giving to the community, Dick has decided to endow a fund with a major
gift. Dick, with his two children, are establishing the Patty Goldman Parkinson’s Community Endowment
to memorialize her in perpetuity, and importantly, to contribute to the advancement of care of patients and
their caregivers and the myriad of issues they face on their journey living with Parkinson’s disease.
Our center is grateful for this extraordinary gift to help support our Parkinson’s community. You can add
to this fund at any time by sending a check, or going to our giving page, and designating the donation to
the Patty Goldman Parkinson’s Community Endowment. With our deepest respect and condolences, we
remember Patty, and we thank Dick and his children for this extraordinary gift.
Visit our donation page»
Wellness Works Programs The next Wellness Works session begins on May 17 and will run through August 15. All of our exercise classes are being held online, taught live by our instructors. See below for a schedule of our class offerings, and view the full brochure here. Mondays, 10:30 – 11:30 AM or 12:00-1:00 PM: Rock Steady Boxing Tuesdays, 1:30 – 2:30 PM: Moving through PD: A Seated Workout Tuesdays, 7:00 – 8:00 PM: Tai Chi Wednesdays, 10:00 – 11:00 AM: Chair Yoga Wednesdays, 10:30-11:30 AM: Rock Steady Boxing Wednesdays, 2:15 – 3:15 PM: Boot Camp Thursdays, 12:30 – 1:30 PM: Self-Care for Care Partners: Yoga and Meditation Thursdays, 6:30-7:30 PM: Rock Steady Boxing Fridays, 10:00 – 11:00 AM: Dynamic Yoga Learn more about the exercise classes we offer and membership options here! To sign up for a Wellness Works membership, or for any questions, email Mikayla Hyman or call 617-667-5215. "Ask the Experts” Speaker Series Our “Ask the Experts” speaker series features free virtual presentations from knowledgeable experts on topics relating to the symptoms, treatments, or breakthroughs associated with Parkinson’s. See below for information regarding our next talk. “Keeping Strong Voice & Speech in the Context of Parkinson’s Disease”, presented by Barbara M. Wilson Arboleda, MS, CCC-SLP, Speech-Language Pathologist at BIDMC When: Saturday, May 15, 10:00-11:30 AM Where: Zoom webinar Attendance is free, but registration is required. Register » For any questions or assistance with registration, contact Hannah Babcock at hbabcock@bidmc.harvard.edu or 617-667-9890. View the full “Ask the Experts” brochure.
Parkinson’s: It’s a Family Affair Once a parent is diagnosed with Parkinson’s Disease (PD), many questions arise for adult children. Adult children may wonder: “What causes PD?”, “What are the treatment options?”, “How can I best help my parent?”, and “Am I at greater risk for PD?”. We know that PD affects the whole family, but what does this mean for adult children? We are offering this educational opportunity for adult children to meet the members of the PD treatment team in this informal evening event. When: Thursday, June 24, 5:00-6:30 PM Where: Zoom meeting Attendance is free, but registration is required. For any questions, email Mikayla Hyman at mhyman@bidmc.harvard.edu or call 617-667-5215. Register Here. Congratulations to Becca Stubbs! Becca Stubbs, Social Work intern, was nominated for the Excellence in Field Education Award from Simmons School of Social Work BSW Program. This prestigious award reflects the dedication she has brought to our PD Center of Excellence Programs. Becca’s internship was focused on supporting the range of WellnessWorks educational and exercise programs as well as our PD Living Alone Parkinson’s Foundation grant. She has been the “glue” holding together many administrative aspects of these initiatives and she has directly interacted with our patients and family members. Becca has been an integral member of our team, making many contributions to our planning efforts. In September she is moving on to pursue her graduate degree in Social Work at Boston University. We will be lucky to have her with us through June.
Calling All Artists
Have you tried expressing creativity as a way to stay positive? What
sparks your artistic talent? This program for artists living with
Parkinson’s Disease welcomes artists of all kinds (painters, potters,
musicians, photographers, etc.) to join us virtually for some
networking and discussion. Join us as we continue to find ways to
express our artistic talent, despite adapting our daily routines to
adjust to our new “normal”. New members are always welcome!
When: Thursday, May 6, 2:00 PM
Where: Online, Zoom meeting
To register, email Mikayla Hyman.
An Afternoon for and About Women
Women with Parkinson’s: join us to ask questions, check in with other
women, and discuss coping strategies and staying positive! The
discussion will be facilitated by Lissa Kapust, LICSW and Coordinator of
BIDMC’s Wellness programs. New members are always welcome!
When: Thursday, May 13, 1:30 PM
Where: Starleaf meeting
Attendance is free, but registration is required. To reserve your spot,
email Mikayla Hyman.
Save the Date: 2021 Parkinson’s Disease Patient and
Carepartner Symposium
The 23rd Annual Parkinson’s Disease Patient and Carepartner
Symposium will take place virtually on the morning of Saturday,
November 20, 2021. This free event will feature world-renowned
speakers, as well as our own local experts. Stay tuned for more
details in the coming months!
May 2021 Care Partner Summit
The 2021 Care Partner Summit, hosted by the Parkinson’s Foundation,
celebrates and supports care partners of people with Parkinson’s. This
series of webinars is recommended for anyone caring for someone living
with PD, including spouses, partners, children or friends.
The following are available each week throughout the month of May:
Mindfulness Mondays, from 1:00-1:30 PM, will offer 4 sessions
with Positive Psychologist Maria Sirois, focused on cultivating
resilience as a care partner.
Wellness Wednesdays, from 1:00-2:00 PM, will include 4
sessions on medications, speech and movement, and sleep and
mood.
Attendance is free, but registration is required. For more information and to
register for sessions, visit https://www.parkinson.org/Summit.
Register »
Clinical Trials
Many of our clinical trials are now recruiting!
For questions, contact Molly Ryan by email
or call 617-667-9885.
Now Recruiting!: Trial of Parkinson’s and Zoledronic Acid (TOPAZ) to determine if this
reduces the risk of bone fractures in Parkinson’s disease
*no in-person visits required*
Now Recruiting!: Multicenter, Randomized, Double-blind, Placebo-controlled Study to
Evaluate the Efficacy, Safety, and Tolerability of 36 Weeks of Treatment with NLY01 in
Early-stage Parkinson’s Disease (PRISM Parkinson’s Research Study)
Now Recruiting!: A multicenter, randomized, active-controlled, double-blind, double-
dummy, parallel group clinical trial, investigating the efficacy, safety, and tolerability of
continuous subcutaneous ND0612 infusion in comparison to oral IR-LD/CD in subjects
with Parkinson’s disease experiencing motor fluctuations (BouNDless)
Now Recruiting!: A Dose Selection Trial of Light Therapy for Impaired Sleep in
Parkinson’s Disease (NeuroNEXT)
Now Recruiting!: DBS Repository
Randomized, Double-Blind, Placebo-Controlled, Parallel-Group Study to Evaluate the
Efficacy and Safety of BHV-3241 in Subjects with Multiple System Atrophy (M-STAR
Study)
Dystonia Coalition
Learn more about our Clinical Trials »
Follow us on Twitter!
Follow us on Twitter @BIDMC_PD_Center for updates on the latest
research, including stem cells, gene therapy, and promising new
strategies to slow progression, as well as helpful resources, events, and
research opportunities for people with PD.
Follow us on Twitter »
Research Spotlight: Sleep Apnea in Older Adults
Dr. Veronique VanderHorst is the recipient of a major multi-institutional
research grant from the National Institute of Aging. The focus of the grant is on sleep apnea in older
adults. Sleep apnea is common in older adults, and represents one of the non-motor symptoms in
patients with Parkinson’s disease. It is a risk factor for different health complications, including heart
disease and cognitive impairment. While obesity is the major driving factor in middle-aged adults, in older
adults the types and causes of sleep apnea are likely different and may involve changes in brain circuits.
This project will provide new information about the types of sleep apnea that are common in older adults
and will determine whether sleep apnea is an early sign of disease pathology in the brain. It will then help
identify properties of brain cells that can be used as potential targets for interventions to decrease these
sleep difficulties, specific for older adults. This multidisciplinary project involves close collaborations with
Dr. Aron Buchman at Rush University Medical Center in Chicago and Dr. Andrew Lim in Toronto.
Read more about the VanderHorst laboratory here:
https://www.bidmc.org/research/research-by-department/neurology/laboratories/veronique-vanderhorst-
laboratory
Supporting the Center
Your donations to BIDMC's Parkinson's Disease & Movement Disorders Center help us with both leading-
edge research and quality-of-life programs for people living with Parkinson’s disease or other movement
disorders. Thank you for your support!
Donate
330 Brookline Ave. Boston, MA Appointments: 617-667-0519 Information: 617-667-9903
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