Of Children's Palliative Care - The 1st National Conference Malaysia 2021
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The 1st National Conference
of Children’s Palliative Care
Malaysia 2021
Supporting from the beginning
7th to 9th October 2021
Co-organized by: Platinum sponsor:
Welcome address by the Organizing Chairperson
Dear Friends and Colleagues,
Welcome to the First National Conference of Paediatric Palliative Care
Malaysia (NCCPCM) 2021!
This conference is organised by the Malaysian Association of
Paediatric Palliative Care (MAPPAC) in collaboration with the Ministry of
Health, Malaysia.
It is the first national conference on Paediatric Palliative Care in
Malaysia. This conference aims to promote a correct understanding of the
Paediatric Palliative Care concept. We hope that it will provide broad learning
opportunities for various parties interested in palliative care for children –
ranging from practical knowledge, attitude and skills on essential symptoms
management to psychosocial support.
The conference theme: “Supporting from the beginning”, is to remind
all of us that palliative care support starts from diagnosis of life limiting disease
for the children and their families. This support should extend from
communication needs, symptom management, end of life care until death and
bereavement support for family members.
The programme has been carefully planned to incorporate sharing
from local and international experts in children’s palliative care, voices from
volunteers and caregivers, as well as various categories of healthcare
professionals. We aim to provide a balanced view of interprofessional
collaborative practice in optimising the quality of life for children with life-limiting
illnesses.
I want to take this opportunity to extend my gratitude to the
conference organising committee and the Ministry of Health members who
have been working tirelessly in ensuring the success of this conference. I also
hope that the event will be memorable and enrich your current practice.
I look forward to meeting all of you personally at the First National
Conference of Paediatric Palliative Care Malaysia 2021. We welcome you to
join the Gala Dinner on the second day of the conference as we build networks
with one another.
Yours sincerely,
Dr. Lee Chee Chan
Organizing Chairman
NCCPCM 2021
Scientific Programme
Day 1 7th October 2021 ( Thursday )
0745 - 0830 Registration
0830 - 0915 Plenary 1
Paediatric Palliative Care Milestones in Malaysia : An Overview
by Datuk Dr Kuan Geok Lan
0915 - 1000 Plenary 2
Malaysian National Palliative Care Strategy
by Dr Richard Lim Boon Leong
1000 - 1030 Tea break
1030 - 1145 Speech by Main Conference Sponsor
Welcome address by Organizing Chairperson, Dr Lee Chee Chan, MAPPAC & MOH Malaysia
Opening Ceremony & Press conference
1145 - 1230 Plenary 3
2-step vs 3-step WHO Analgesic Ladder : Which one is better ?
by Dr Rever Chak-Ho Li
1230 - 1300 Poster and booths viewing
1300 - 1400 Lunch symposium
Symposium 1A Symposium 1B Symposium 1C
Recognising need for Pain management Non-pharmacological
PPC at diagnosis in children Pain management
Chairperson : Dr Ch’ng Gaik Siew Chairperson : Dr Tan Chai Eng Chairperson : Ms Elaine Teo
1400 - 1425 Identifying paediatric Assessing pain Music therapy for
Palliative care needs in children Pain management
Dr Lim Voon Lee Dr Ng Su Fang Ms Lim Kar Gee
1425 - 1450 Prognostication for children Using opioids in children’s Hypnotherapy for pain
with life-limiting conditions palliative care management
Dr Chong Poh Heng Dr Fahisham Taib Mr Brandon Ho
1450 - 1515 Introduction of paediatric
Pain refractory to opioids – what Cognitive behavioral therapy for
palliative care to medical
are our options? pain
professionals and parents
Dr Chong Lee Ai Dr Zubaidah Jamil
Dr Teoh Yen Lin
1515 - 1520 Q & A
1520 - 1550 Tea break
Symposium 2A Symposium 2B Symposium 2C
Psychosocial support for family Voices of doctors and medical Voices of patients and caregivers
Chairperson: Dr Sharifah Najwa bt professionals Chairperson: Ms June Thow
Syed Mohamad Chairperson: Dr Teoh Yen Lin
1550 - 1615 Psychosocial care for the family – How I started PPC service Experiences of having a child
the Hong Kong scenario in my hospital with cancer
Dr Rever Li Dr Fahisham Taib Puan Ismaini Ismail
1615 - 1640 SMILE - the lessons learned in
Medical social workers’ role in My journey in community
living and caring for a child with
psychosocial support palliative care
spinal muscular atrophy
Ms Fatimang bt Ladola Ms Elaine Teo
Ms Yap Sook Yee
1640 - 1705 Supporting parents after PPC in healthcare Patient with post-infective
breaking bad news professions education bronchiolitis obliterans
Ms Serene Wong Dr Tan Chai Eng Mr Muhammad Ashnawi Azmi
1705 - 1730 Compassion fatigue, Experiences from the Advance Parent of a child with chronic
burnout and self care Diploma in Palliative Nursing neurological impairment
Ms Low Mi Yen Pn Maggie @ Nur Umairah Puan Suriyati Mahat
1730 - 1735 Q & A
Day 2 8th October 2021 ( Friday )
0745 - 0830 Meet the experts
PPC and home care Palliative care nursing Symptom management
Dr Chong Poh Heng Ms Serene Wong Dr Rever Li
0830 - 0915 Plenary 4
Resources and funding for paediatric palliative care service
by Dr Chong Poh Heng
0915 - 1000 Plenary 5
Needs of children in different phases of diagnosis
by Ms Moon Yi Ji
1000 - 1020 Tea break
Symposium 3A Symposium 3B Symposium 3C
Symptom management in Transition care Family integrity
specific situations Chairperson: Ms June Thow Mei Chairperson: Dr Lim Voon Lee
Chairperson: Datuk Dr Kuan Jiun
Geok Lan
1020 - 1045 Care for children with severe Transition from child to Siblings :
neurological impairment adult services Never leave me out
Dr Khoo Teik Beng Dr Aaron Hiew Wi Han Dr Yang Wai Wai
1045 - 1110 Managing symptoms of Transition from hospital Family resilience in times of
children with cancer to home stress and transition
Dr Rever Li Dr Teoh Yen Lin Dr Johnben Loy
1110 - 1135 Supporting caregivers of
Managing symptoms for Non-invasive ventilation
children with metabolic
children with renal failure in PPC
and genetic disorders
Dr Susan Pee Dr Lee Chee Chan
Dr Ch’ng Gaik Siew
1135 - 1140 Q&A
1140 - 1300 Bioethics Discussion
Poster Presentation
Truth Telling Oral Presentation
&
Chairperson: Dr Tan Ru Wei Chairperson: Dr Felicia Chang
Judging
Panelists: Dr Chong Lee Ai &
Assoc Prof Dr Erwin Khoo
1300 - 1430 Lunch symposium
Symposium 4A Symposium 4B Symposium 4C
Communication skills Expressive therapy Psychosocial interventions
in PPC in PPC for PPC
Chairperson: Dr Tan Chai Eng Chairperson: Dr Yang Wai Wai Chairperson: Ms Ee Su Im
1430 - 1455 Advance care plan Communication Hypnotherapy for
and goals of care through art grief support
Dr Chong Poh Heng Mr Raymous Wong Choon Yong Mr Brandon Ho
1455 - 1520 Communication through
Active listening skills
Play therapy
Dr Loh Ee Chin Creative drama
Mr Chris Ng
intervention
1520 - 1545 Talking to children about Dr Sujatha Doraimanickam
Communication through music
death and dying
Ms Joanne Lau
Ms Serene Wong
1545 - 1600 Q&A
1900 - 2200 Gala dinner
9th October 2021 ( Saturday )
0745 - 0830 Meet the experts
Symptom management PPC Research in Malaysia PPC Education in Malaysia
Dr Lee Chee Chan Dr Fahisham Taib Dr Chong Lee Ai
0830 - 0915 Plenary 6
Respite care programme
by Ms Serene Wong
0915 - 1000 Plenary 7
Research changing practices in paediatric palliative care
by Dr Chong Lee Ai
1000 - 1030 Tea break
Symposium 5A Symposium 5B Symposium 5C
Psychosocial care for the End of life care Palliative nursing
child Chairperson: Dr Susan Pee Chairperson: Pn Maggie @ Nur
Chairperson: Dr Aaron Hiew Umairah
1030 - 1055 Psychosocial needs
Perinatal palliative care Medication management
assessment by medical social
Dr Lee Chee Chan Ms Hidayah Rosli
worker
Ms Fatimang bt Ladola
1055 - 1120 Dealing with fear and End-of-life symptom Use of syringe drivers
anxiety in children management Ms Elaine Teo
Dr Yang Wai Wai Dr Felicia Chang
1120 - 1145 Dealing with grief and Wound management
Wish fulfilment
bereavement Ms June Thow
Ms Moon Yi Ji
Ms Lee Voon Yee
1145 - 1210 Home extubation Occupational therapy role in
Dr Ng Su Fang facilitating participation in
daily activities
Ms Ee Su Im
1210-1300 Closing and prize-giving ceremony
Do join us for the Bursaries open for application
NCCPCM 2021 Gala dinner Bursaries (accommodation / registration fees) for 10
registered participants who have submitted for free paper
presentations are available for application. Those
8th October 2021 interested are required to write in to
nccpcm2020@gmail.com to apply, with the following:
• topic of the abstract(s) submitted for free paper
presentation (oral presentation / poster presentation)
• a short essay of not more than 500 words on why they
should be awarded the bursary / scholarship.
*Priority for bursary will be given to international
participants.
Due date for application is on 31st July 2021
Call for Papers
Research on children’s palliative care is still greatly needed to further develop new knowledge and
identify new strategies that are suitable for the local and regional context. We would like to
welcome submission for free paper presentation in NCCPCM 2021.
Submissions on paediatric palliative care (from general to All abstracts will be published in a
specialist palliative care) are welcome on any of the supplementary issue of Malaysian
following themes: Journal of Paediatrics and Child
• Paediatric palliative care services in hospital Health, the official journal of the
• Pain and symptom management, including non- Malaysian Paediatric Association.
pharmacological therapies
• Psychosocial and spiritual care, including grief
and bereavement Open access
• Improving awareness among healthcare Indexed in
professionals and caregivers about supportive Malaysian
care for children Citation
• Transitional care from hospital to home Index
• Community paediatric palliative care service (MyCite) and
• Quality of life of caregivers and children with Excellence
palliative care needs Research
• Ethical issues in managing children requiring Australia
supportive care (ERA)
Audits of current services and case reports with learning
value(s) pertaining to children’s palliative care are
welcome.
The abstracts should be original and have not been
presented in other conferences or published in another
journal before.
The best abstracts will be selected for oral presentation.
Successful authors of abstracts will be notified by email
latest by August 2021.
The format for poster or oral presentation will be informed
upon acceptance.
There will be prizes for the best paper for oral presentation
and posters.
Category 1st prize 2nd prize 3rd prize
Oral presentation RM800 RM500 RM300
Poster presentation RM500 RM300 RM200
Further details are available at
the conference website
Closing date for abstract submission http://nccpcm2020.com/
extended to
31st July 2021 Submit your abstracts online
Registration Fees
Registration fees for Registration fees
Participant category
MAPPAC members
Specialists RM550 RM600
Medical Officers RM500 RM550
Nurses or allied health RM350 RM400
professionals**
Volunteers / caregivers / RM250 RM300
undergraduate students **
International participants (non- Not applicable USD200
Malaysian)
**Limited to 50 registrations per category
A copy of the Handbook of Children’s Palliative Care Malaysia will be given free to the first 100 paid
registrations for the conference.
Visit our conference website for more details
http://www.nccpcm2020.com
Contact us at:
016- 223 1357 MAPPAC
Email: nccpcm2020@gmail.com
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