NODE NEWS - SPRING INTO COLOUR - UNDERSTANDING MLD AND SLD CATHERINE KINGSFORD POSITIVE DESPITE ADVERSITY - Lymphoedema Association ...
←
→
Page content transcription
If your browser does not render page correctly, please read the page content below
NODE NEWS SPRING 2021 UNDERSTANDING MLD AND SLD IN PROFILE: CATHERINE KINGSFORD POSITIVE DESPITE ADVERSITY IMPORTANCE OF THE GUT MICROBIOME SPRING INTO COLOUR Photo credit: Medi Australia. Model wears Mediven flat knit in Blue-jeans with Nature pattern.
CONTENTS PUBLISHER Lymphoedema Association of Queensland ABN: 13 602 257 202 ANNUAL PUBLICATION DATES 1 December 1 March 1 June 1 September EDITOR Pam O’Connor IN THIS ISSUE Editor Node News Envelope nodenews@lymph.org.au FEATURE: SPRING INTO COLOUR 5 DESIGN Cat Wilkinson FEATURE: Web and Graphic Design UNDERSTANDING MLD AND SLD 9 GLOBE catwilkinson.com.au Mobile-Alt 0424 615 611 IN PROFILE: CATHERINE KINGSFORD 11 ADVERTISING ENQUIRIES Envelope nodenews@lymph.org.au HEALTH AND WELLBEING: CONTACT THE IMPORTANCE OF THE GUT MICROBIOME 13 BUILDING PO Box 3068, BRACKEN RIDGE Q 4017 MEMBER SPOTLIGHT: Mobile-Alt 0403 782 795 POSITIVE DESPITE ADVERSITY 19 Envelope info@lymph.org.au GLOBE www.lymph.org.au DIRECTORY: PROFESSIONAL PRACTITIONERS DIRECTORY 26 LAQ SECRETARIAT Kirstyn Marriott Envelope admin@lymph.org.au LAQ COMMITTEE MEMBERSHIP - RENEWAL DUE 30 JUNE, 2022 Uff. Hon. Teresa Gambaro GAICD The Lymphoedema Association of Queensland is a membership President based charity. Membership fees are paid annually and due 1 July Mary Stewart - Vice President each year. Membership choices and costs are as follows: Jess Billiau - Secretary • General Membership: $40.00 Brian Browne - Treasurer • Concessional Membership: $30.00 Vacant - Media and Publicity Officer • Professional Membership: $99.00 Hildegard Reul-Hirche - Education Officer To join please complete the Online Membership Application on Robyn Scheer - Education Officer our website visit lymph.org.au/membership/#join Jennifer Gilbert - Education Officer Mia Stemm - General Member Avon Mills - General Member DISCLAIMER - The Lymphoedema Association of Queensland Inc. or its officers are not Catherine Kingsford - General Member responsible for any copyright infringements of images supplied by writers or advertisers. Materials and articles in Node News are general information only, not advice. Information published is believed to be accurate and reliable, but no responsibility is taken for any GET SOCIAL WITH US opinions expressed or for errors and omissions. Readers should not act on any material without taking professional advice relating to their particular circumstances. Professional advice should be sought before any action is taken. Linkedin FACEBOOK-SQUARE INSTAGRAM Node News | Lymphoedema Association of Queensland 2
EDITOR´S DESK to do this is to add some colour to drainage you do yourself –your our compression garments. lymphoedema therapist will show you how to do this for your Sure, I know it’s no fun at all to individual needs. wear compression, but we know the garments help to make our Following on from her article Pam O'Connor lymphatic system work better. about the dietary management of lymphoedema, dietitian Eleni Spring is my favourite time But why stick to boring beige or Georgiou explains why revitalising of year. The weather starts basic black when there’s so many and maintaining a healthy gut to warm up pleasantly, just on-trend colours and patterns to microbiome is so important. before the onslaught of our choose from –you can even add Queensland summer. Birds some crystal bling! In Medical Matters, Dr Chris are chirping and I’m picking Lekich explains the types of Celebrate your individual style and mulberries from my tree! investigations for the lipoedema make a statement about who you patient. It’s been a tough year so far for are. It’s all about changing your everyone, but we’re lucky to live in mindset. Read our cover story to Also in this edition of Node this beautiful state and there are find some colour inspiration. News, follow the inspiring stories signs to point to a brighter and of member Lini Boyer, mobile While all these lockdowns haven’t more free way of living by the end lymphoedema therapist Emily been easy, they serve as a of the year. Muldoon and our new General reminder for all of us to focus on Committee Member Catherine Although we’ve still got a way to go our self-care as these uncertain Kingsford. before then, we can only try to find times continue. the positives in the little things to Don’t forget to discover our new Manual lymphatic drainage (MLD) lift our mood and be grateful for website, which we launched in July, is an important component of the freedoms we have compared and let us know what you think by lymphoedema management. to other parts of the world. sending us an email. Dermal clinician Maisie Hillman So as the sun starts to shine a little explains the difference between Happy reading and enjoy the brighter, it’s time to put a bit more MLD and Simple Lymphatic sunshine. spring into our step –and one way Drainage (SLD), which is lymphatic COVER GIRLS The July edition of Lymph pink stripey leg belongs to Pam Exchange, the Australasian (wearing Sigvaris Microfiber VOL 22 | ISSUE 2 Lymphology Association’s triennial Patterns from Morris Medical), July 2021 PUBLICATION OF THE AUSTRALASIAN LYMPHOLOGY ASSOCIATION publication, featured a couple and the blue/black tie-dye leg of our LAQ Health Professional belongs to Kaori (wearing Juzo’s members on the cover –or Batik Collection). rather, their legs sporting colourful compression!Brisbane lymphoedema therapists Pam O’Connor (right) and Kaori Langley (left) put their best foot forward in the photoshoot for the cover during the ALA Symposium, held at the Sheraton Mirage on The Compression Issue ALA position statement: the use of compression the Gold Coast in May. In case in the management of lymphoedema Are we under (delivering) pressure? you didn’t recognise them, the Node News | Lymphoedema Association of Queensland 3
PRESIDENT´S DESK having the expert advice on hand. Dr Chris Lekich of Lipoedema Surgical Solutions was our guest speaker and gave attendees an informative talk Uff. Hon. Teresa Gambaro GAICD about the physical, medical, and psychological aspects of Welcome to the Spring Edition Lipoedema. A disease that affects of Node News. I hope that you one in eleven women worldwide. enjoy this information packed edition. It has been a busy few Thank you also to all the members months at the Lymphoedema who renewed their membership Association of Queensland. As using our new login system. This Teresa alongside Cr Tracy Davis and usual we are powering ahead. will allow members to update Cr Sandy Landers at the launch of the and manage their membership new Lymph Queensland website July saw the launch of our new details a lot easier. Your annual user-friendly website, combined that will help them manage this contributions allow LAQ to help so with a successful Trade Day, condition and live their very best many, who when initially diagnosed which was held at the Brisbane life ahead. with Lymphoedema contact us Bronco’s Club. Special thanks to Covid 19 continues to be a large frightened and overwhelmed. We the Website team of Kirstyn, Reid part of our day to day lives. It is will always continue to support all and Pauline who did a fabulous because of these uncertainties, who contact us as well as providing job, and to all the members and we will be holding this year’s LAQ the latest information and health professionals who attended AGM by Zoom on Wednesday the resources for members. on the day. The development of 13th October at 7pm. This will allow the new website and the launch many of our regional members to day could not have occurred join us and participate for the first without the generous support of time. grants obtained from the Lord Covid 19 has affected all of us at Mayor’s Community Trust and some time in the past 18 months, the Queensland Government’s and we are thinking of the Gambling Benefit Fund. incredible hardships that you are “ Your annual contri- butions allow LAQ to all facing, and we wish you and our interstate family and friends all the best for the future. help so many, who A special guest speaker will be when initially diagnose included in the Program and the with Lymphoedema Dr Chris Lekich delivering a speach link will be sent to you via email contact us frightened " about lipoedema at our website launch. shortly. So, Mark the Date! Enjoy and overwhelmed. the warmer Spring weather by So, if you haven’t renewed yet, getting out and about, exercising A special mention of thanks must please consider payment of your and enjoying life. Remember in the go to our sponsors on the day, much needed membership fees. It words of Lena Horne "It's not the Morris Medical Supplies, Essity, is less than a cup of coffee a month load that breaks you down, it’s the Impedimed, Medi Australia, for a year and can assist us to do way you carry it." Enjoy your best Haddenham Healthcare, The Joint so much. So much is changing life. Physiotherapy, Co.as.it. and the and evolving in the treatment of Zonta Club of Brisbane Sunrise. Lymphoedema and it important Guests enjoyed the opportunity that our members have access to of visiting the Trade Displays and current information and research Node News | Lymphoedema Association of Queensland 4
FEATURE Medi Mediven Avocado-green with Dots pattern, Blue-jeans in Classic pattern, and Mango-yellow in Nature pattern. SPRING INTO COLOUR Author: Pam O’Connor I colours – the ever-popular Medi t’s time to say goodbye Magenta, Blue-jeans and Grey, to winter and to welcome as well as the Standard colours of the warmer season with a Navy, Cashmere, Caramel, Sand, brighter outlook. A perfect Anthracite and Black. way to lift our mood is to brightenour lives with lots of To complement the colours there colour. So put aside the boring are four new patterns –Nature, beige and basic black –and Stripes, Dots and Classic. spring into some colourful Each pattern is available in two compression. With so many versions – Design-Element with shades and patterns to a more discreet pattern, or two- choose from, celebrate your and lipoedema therapy with toned Fashion-Elements that turn individuality with style ... and fresh new patterns and two new your outfit into a real eye-catcher. even add some crystal bling! trend colours for both arm and leg Mediven flat knit garments - Medi available from October 4. The most beautiful feeling? The new Trend colours – Avocado- According to Medi, it’s simply green and Mango-yellow – are a being yourself. Because being true winning Aussie combination! to yourself is what makes life truly free and colourful. Juicy Avocado-green whets the appetite for new ideas, while Medi gives you the confidence radiant Mango-yellow ensures an to be yourself by bringing more upbeat mood in any weather. individuality to lymphoedema Continued on page 6 > They join the other Trend Node News | Lymphoedema Association of Queensland 5
For even more individuality, set or keep it soft and flowing with is best suited for tired, restless, personal accents with motifs warm natural tones. aching legs; travellers, made of sparkling crystals in occupational health risks, For a classic look, Cool Grey simply three designs –Crystal, Pearl and expecting mothers, and a family goes with everything and is never Rosegold. Perfect for those who history of chronic vein disease. boring. love some added bling! For women with courage, Deep Lavender is simply a colour you cannot miss and adds freshness and lightness to any outfit. Sigvaris Trend Colours: www. sigvaris.com/en-au/campaigns/ trend-colors-20212022 Talk to your lymphoedema therapist to measure and order your stylish new garments as the Mediven flat knit garments are custom made. More info: The Sigvaris Soft Silhouette www.mediaustralia.com.au Leggings for women features The Sigvaris Semitransparent achic, subtle ribbed design and Sigvaris range comes in other standard pairs perfectly with dresses, Show your colours for a carefree colours and several options: Class blouses, tunics and shirts. life full of options, with four new 1 and 2; calf, thigh and maternity; season Trend Colours in the sizes XXS-XL Plus; 3 lengths; The range comes in the colours of Sigvaris Semitransparent leg closed and open toe. Midnight Blue, Espresso, Mulberry compression range. and Black. The advanced soft For something fun and funky, stretch microfiber fabric shapes the Sigvaris Microfiber range of legs and smooths skin. A foldable, compression below-knee socks comfort-stretch waistband come in Stripe and Argyle patterns provides a seamless look for in a variety of colours for both men all-day wearing comfort, with a and women. maternity style also available. Available in two compression Available in 15-20mmHg and grades –15-20mmHg (RRP $49.95) four size options, the leggings and 20-30mmHg (RRP $79.95) are non-latex and best suited for - and also in three sizes and two tired, heavy, restless, aching legs; lengths. occupational leg health risks; and The Stripes come in either dark navy a family history of chronic vein or pink, and the Argyle in purple, disease. RRP $99. Sun, beach and lemon ice cream graphite, royal blue, and pink. Sigvaris products are available – Happy Yellow spreads that The 20-30mmHg compression is from Morris Medical, 6/76 summer feeling and makes your best suited for the management Enoggera Road, Newmarket 4051, complexion glow. of symptoms related to chronic 07 3356 6995. For a heavenly style, look to the venous disease, and long-distance www.morrismedical.com.au skies with True Blue. Combine it travel. with a bold colour for a daring look, The 15-20mmHg compression Continued on page 7 > Node News | Lymphoedema Association of Queensland 6
Juzo confidence, lightness and an eagerness to experiment. Golden Juzo Trend Colours are sure to Yellow radiates your personality, bring more colour into your life spreading a vibrant sheen and with the people who mean the warming aura. most to you. Embrace freedom and share your zest for life with friends Contact your lymphoedema with the colours Blue Love, Violet therapist to order from the Juzo Truth and Pink Soul. Celebrate range. friendship and discover your new Juzo Trend Colours: www.juzo. favourite shade that makes you com/en/product-worlds/trend- feel absolutely amazing. colours The Batik Collection turns up Juzo Batik Collection: www.juzo. the fashion a notch with tie-dye com/en/product-worlds/batik- designs, available in trend and of optimism and glamour. collection standard colour blends. Proud Red represents change, a Juzo Fashion Colours: www.juzo. The Fashion Colour range celebrates thirst for action and awakening. com/en/product-worlds/fashion- the Golden 1920s as a unique era full Noble Mint reflects self- colours Quality and Care for your LymphoEdema needs MEDICAL GRADE At SuperPharmacyPlus Mobility we are dedicated to providing the best quality COMPRESSION care for customer and therapist alike. Our range of Jobst medical compression wear is one of the largest in Australia and encompasses circular knit, flat knit, wrap systems, arm sleeves and gloves as well as a large range of donning and doffing devices. SuperPharmacyPlus Mobility staff are ready and able to assist with measuring and fitting of compression wear and appointments can also be made for consultation with an Occupational Therapist when required. Our dedicated mobility staff provide excellent advice on washing and garment care and advice regarding the best donning and doffing aids. Available Instore & online: - Wide range of donning and doffing devices - Full range of Bella Lite & Bella Strong Armsleeves - Full range of 20-30mmHg Upper and Lower Limb garments - Compri2 and Compri2 Lite available - Trained staff to measure and fit - We invite referrals from therapists - Wholesale supply available to clinics and therapists Lisa - Occupational Therapist WWW.SUPERPHARMACYPLUS.COM.AU Open 7am-8pm DAILY 3355 3052 | 621 Stafford Rd, STAFFORD Node News | Lymphoedema Association of Queensland 7
OUT AND ABOUT WE HAVE LIFT OFF! inspiration from our members living with lymphoedema every day. It is now a simple task to keep your information up to date on the website so you are always in the loop with the latest information and developments in the world Our President Hon Teresa Gambaro of lymphoedema. Our members Addressing the Audience. only portal will be updated On July 10th 2021 we had our with educational and practical information as time goes on. L - R: Cr Sandy Landers, Hon Teresa official launch of our new and Gambaro, Dr Chris Lekich, Cr Tracey improved website. We had Our thanks to our special guest Adams over 60 members and guests speaker Dr Chris Lekich, Cr Tracey life members who had worked join us on the day where we Adams and Cr Sandy Landers tirelessly to get us to where we are enjoyed a delightful morning for their ongoing support of our now today at LAQ. tea catered for by the Brisbane members. We would also like to Bronco’s team. Our President express our sincere gratitude If you haven’t been to our new site the Hon. Teresa Gambaro for the previous efforts from our it is located at www.lymph.org.au addressed the audience and past and present committee and you will find the latest meeting highlighted just how far we had schedule where you will be able to come in making the disease register your interest for an event. of lymphoedema more widely As we are in uncertain times it is known and members finding important that you do register so more resources to support you can be contacted quickly to them as they navigate through advise of any changed plans. managing their lymphoedema. It was wonderful toconnect We were taken on a tour around the with our suppliers and health website with a live demonstration professionals on the day, we thank from the website development them each and every one for taking team, Kirstyn Marriott, Reid the time to support us on such a Tregoning and Pauline Longdon. Momentousday for LAQ, and we L - R: Our Website Development Showing us the practical Team Reid Tregoning, Kirstyn Marriott, are looking forward to connecting information and sharing the Pauline Longdon again soon. Home Care Package Specialists Social Group Activities + Outings Cultural and Language Specialists Domestic Assistance + Personal Care Node News | Lymphoedema Association of Queensland 8
FEATURE UNDERSTANDING MLD AND SLD Author: Maisie Hillman M MLD by a professional that those ĠRecent thrombosis – until anual lymphatic with lymphoedema can complete anticoagulation is well drainage (MLD) and independently. Therefore, aims established. simple lymphatic to: ĠCardiac oedema - a risk of cardiac drainage (SLD) are important ĠStimulate normal draining overload if the heart if not fully treatments for lymphoedema. lymphatics. functioning. These are massage movements ĠEncourage lymph fluid to move Lymphatic drainage massage has away from congested areas to that a professional does areas where it can drain more a particularly valuable role to aid in where their primary aim is freely. the management of lymphoedema to improve the functioning ĠImprove the superficial lymph when used in combination with of the lymphatic system. drainage. other aspects of treatment for These movements influence Simple lymphatic drainage is thecondition. MLD consists of a the lymph vessels that then based on the principles of MLD. professional-led treatment that is transport lymph towards the Hand movements are simplified, mainly used when the swelling is lymph nodes. In the present and massage is slightly modified complex, then the more simplified area of lymphoedema, MLD and made easier to those with version SLD, promotes client is a good treatment when lymphoedema can incorporate it independence and can more be in combination with other into their daily lives to do at home. used when swelling is milder and approaches to manage the not as complicated. swollen limb/s. When MLD and SLD should NOT be used MLD aims These treatments are not -Increase the activity in the advisable to be done when: ABOUT MAISIE HILLMAN normal lymphatics and improve ĠAcute infection or inflammation the functioning.-Open the flow of ispresent –can cause discomfort lymph fluid.-Encouragelymph fluid and toxic substances may be to flow along alternative drainage moved into the lymph channels and spread. routes.-Aid lymphatic drainage ĠActive and/or untreated from congested areas. malignant disease. USER-MD Dermal Clinician Ġmay possibly encourage the SLD aims transport of cancer cells. mobile-alt 0416 331 194 ĠProviding a modified technique of Node News | Lymphoedema Association of Queensland 9
Because Quality Of Life IS Important! Niagara Therapy has developed its range of specialised Cycloid Vibration Therapy (CVT) devices in Australia since 1969. Find out for yourself how CVT may be able to assist you in reducing your excess oedema, muscle/joint discomfort, improve joint mobility and local area blood circulation. for more information on how Niagara could help you or book a free treatment demonstration in the comfort of your own home. scan the QR code or call 1800 601 121 www.niagara.com.au Use only as directed and if symptoms persist see your doctor, always read and follow instructions. Node News | Lymphoedema Association of Queensland 10
IN PROFILE CATHERINE KINGSFORD Author: Catherine Kingsford W elcome to our newest committee member Catherine Kingsford. Here is a little about Catherine. Lucy, Catherine's kelpie patrolling the boundary with Mt Lindesay and Mt Barney in the background. internationally. This experience occasions about her lymphoedema opened the door into a whole new experience. Each time whether the corporate world. audience is a small intimate one or a large conference one she brings In 2007 I joined a company called I have worked in health care for the entire crowd to tears. She is ImpediMed as their clinical over 30 years, starting my career an amazing advocate bringing trials manager. ImpediMed is a as a cardiac scientist. Working in awareness to lymphoedema medical device company that both public and private hospitals around the world. specialises in the early detection in Brisbane; Royal Brisbane of lymphoedema. In the past 14 Hospital, The Prince Charles years working for the company, I Hospital and St Andrew’s War have been fortunate to expand my Memorial Hospital. In 1992 I role and am currently responsible decided to do what many young for clinical trials and regulatory Aussies do and move to the UK. I affairs. In this position I have had lived in the UK for 3 years working many interesting experiences the entire time at the Royal including travelling to places I Brompton Hospital in Chelsea. never thought I would go and Catherine meeting Kathy Bates in During my career as a cardiac spending 5 years in the United June 2015. scientist I specialized in States. I spend my spare time at our electrophysiology, the study of the “ property in northern NSW with heart’s electrical system. This area I am looking forward to my husband, Don and Kelpie, of cardiology deals with cutting working with the LAQ Lucy. With beautiful views of edge technology that focuses team and using my ex- Mt Lindesay, Mt Barney and on pacemakers and implantable perience to help educate Edinburgh Castle it is a wonderful cardioverter defibrillators as well and improve aware- " place to relax and unwind. heart arrhythmias. Due to the ness of lymphoedema. rapidly evolving improvements I am looking forward to working in the technology, I was lucky While living in the US I had the with the LAQ team and using enough to be able to contribute opportunity to meet Kathy Bates my experience to help educate to research and clinical trials that and have had the privilege to and improve awareness of were performed locally as well as hear her speak on a number of lymphoedema. Node News | Lymphoedema Association of Queensland 11
HOLISTIC COMMUNITY CARE With over 40 years’ experience before the OT arrived. Immediate in the provision of community procurement of equipment and care services, Co.As.It. same-day installation mitigated Community Services is an the risk of more falls. Aged care is organisation that supports just that, identifying ways to care, people to maintain their through an experienced and highly independence, connect to qualified lens. community and manage their “Occasionally specialized health via fully integrated knowledge is required”, says services. Patricia when asked about treating A charitable organisation that clients with Lymphoedema. delivers in-home support services “The Swell Therapies group are for people that have been experts in treating people with assessed as requiring support. Co.As.It. occupational therapist lymphoedema” she said. They Patricia Lapsley. Services such as domestic duties, provide assessment and ongoing personal care, clinical and allied the one umbrella means a speedy therapeutic management of health services including social solution to client needs –the care lymphoedema, scar management group and individual activitiesare team can collaborate with the allied and joint mobility. “We source delivered on a weekly basis and as health or clinical teams to find external specialists from time to often as required. Access to these efficient solutions to client needs. time” says Patricia. government subsidised services Co.As.It. has a foundation of caring Co.As.It. has a growing OT team is facilitated by contacting My for people from diverse cultural including Patricia Lapsley who Aged Care if over 65 years of age backgrounds. With particular was recently nominated for or contacting Co.As.It if under 65 expertise in servicing clients LASA (Leading Age Services years of age. NDIS services that fromCALD backgrounds, Co.As.It. Australia) Aged Care Employee focus on individual capabilities employs more than 300 support Day. The theme #ThanksforCaring with emphasis on wellness and workers who speak a total of 52 recognises each and every independence are also easily languages other than English. This team member involved in accessible. Co.As.It. has been a means that clients and support caring for the 1.3 million older contact point for support for those workers can be matched according Australians receiving home care that are from CALD (culturally and to their cultural and linguistic or residential care services. linguistically diverse) backgrounds backgrounds and interests. Lapsley was nominated because as it is able to meet the cultural of her willingness to go above In recognition of the number and language needs of the client. and beyond to ensure client's of clients who experience Co.As.It. has a large team of allied safety and independence. lymphoedema, Co.As.It. was health and clinical specialists Following an urgent OT referral, pleased to acknowledge the work e.g. occupational therapist, she visited the Co.As.It. client of LAQ by supporting its recent physiotherapists, podiatrists, three days after she had moved website launch and morning tea at exercise physiologist, and social into an independent living unit Broncos Leagues Club. work, counsellors and dementia within a seniors’ complex. The experts who work together, inthe Find out if you can benefit from retirement unit had very few interest of its clients, means Co.As.It.’s services or for more modifications, and Patricia’s that support received is more information: assessment reported the client comprehensive, holistic service was potentially unsafe and advised phone 07 3624 6100 with the associated benefits of of necessary modifications. envelope mail@coasit.asn.au continuity of care. Having qualified Further investigation revealed specialists all operating under the client had a fall shortly globe www.coasit.asn.au Node News | Lymphoedema Association of Queensland 12
HEALTH AND WELLBEING IMPORTANCE OF THE GUT MICROBIOME Author: Eleni Georgiou I extract nutrients from them. You hear a lot about fibre and n the previous edition of ĠRegulating our immune system bowels, and keeping a healthy Node News, I talked about ĠProtecting against other digestive system, and that is revitalising and maintaining microbes that cause disease absolutely spot on! We need to be a healthy gut microbiome as ĠProducing vitamins consuming 28g or more of fibre just one of the key components ĠMaintaining a healthy intestinal each day. How do you do that? of dietary management with lining Simple. Consume two serves of inflammatory conditions such as So, you might be wondering why fruit daily, handful of unsaltednuts lymphoedema and lipoedema. there are times you experience daily, 3 serves of legumes per In my practice as a Dietitian, I am bloating, distension, gas, week, always choose wholegrains, finding that the number of patients abdominal pain, changes in your and consume at least 3 cups of I see suffering from gut discomfort bowel movements maybe? You vegetables each day, including a and sensitivities is growing rapidly. are experiencing gut dysbiosis mixture of raw and cooked. Between a mix of lifestyle factors, which is caused by an imbalance of Prebiotics and probiotics support stress, and food sensitivities, our bacteria in your gut, and changes a healthy gut microbiome. gut microbiome is in desperate can occur such as losing beneficial Consuming a balance of both need of some attention. Let’s set bacteria in your gut, potentially can increase the diversity of your the scene. harmful bacteria take over your gut microbiota, benefiting your gut, and less diverse bacteria in The gut microbiome is made up health. Probiotics need prebiotics your gut. To put it simply, imagine of trillions of microorganisms and to survive in the gut and to make your gut is an old warehouse, their genetic material that live in sure they have enough fuel to do the tiles are cracked, the roof is your intestinal tract. It is mainly their job. You wouldn’t go to work leaking, the windows are broken, comprised of bacteria that are without any lunch, would you? all the workers have retired, there involved in functions critical to Neither should probiotics. is no one in there getting the job your health and wellbeing. Our gut done! We need to get in there and microbiome is determined way Prebiotics do some renovations and hire back to when we were conceived. Prebiotics promote the growth and some more staff! Whether we were born naturally, or activity of beneficial gut bacteria via caesarean, breast fed or formula Gut dysbiosis can be caused by and are mostly found in plant- fed, all influences the gut bacteria a variety of factors ranging from based foods. They are the fibre we were exposed to and therefore chronic stress, to medication that passes through the stomach influences our immune function use such as antibiotics or the to feed the good bacteria that live throughout life. contraceptive pill, to stomach in your large intestine. Their main bugs, to of course, diet which can So why do we place such a big food sources include vegetables include sensitivities or a lack of emphasis on keeping our gut (especially artichokes, garlic, fibre consumption. microbiome in the best possible onion, leek, asparagus), legumes, shape? The jobs our gut does are wholegrains, nuts and seeds. Fibre endless and include: Where do we start with the diet? ĠHelping to digest our food to Continued on page 14 > Let’s start with fibre consumption. Node News | Lymphoedema Association of Queensland 13
HEALTH AND WELLBEING Probiotics toppings like hummus, avocado approach, our Dietitians at Tree ĠChopped vegetable sticks with of Life Nutrition are specialists Probiotics contain the live tzatziki in gut health and have done an health-promoting bacteria that ĠGreek yoghurt with muesli abundance of research that has is beneficial to maintain a healthy ĠRoasted chickpeas brought us to create our very own gut microbiome. They include So how does this all link to tailored gut fixregime. Speak to us fermented or aged milk and milk lymphedema? You need to to learn more! products, and of course can picture your gut as the central also be taken as supplements. component in a very complex Examples of food sources include: mind map, there are connections feta cheese, natural Greek everywhere! When we set up a ABOUT ELENI GEORGIOU yoghurt, low fat milk and cheese, well-balancedenvironment in and Greek olives (fermented in our gut and when we provide it brine, not pickled), sourdough with the appropriate fuel, one of bread, and sauerkraut. the main attractions is managing Gut Friendly Snacks inflammation. Managing the inflammation in your body protects ĠCelery sticks with nut butter and USER-MD Dietitian cinnamon your immune system which is B.HlthSci (Nut), B.Nut & Diet ĠSourdough slice with a thick directly related to your lymphatic APD AN spread of Greek yoghurt and system, see, connections! sliced banana briefcase Tree of Life Nutrition If you suffer from severe gut ĠA handful of nuts or dried fruit dysbiosis and need a more tailored globe-americas treeoflifenutrition.com.au ĠWholegrain rice cake with FAVOURITE RECIPE recipe is ideal for those who THE MEDITERRANEAN want to elevate their meals in a DIET: THE LIFESTYLE OF pinch. EATING QUICK TZATZIKI Serves 10 Ingredients: Ġ1 cup natural Greek yoghurt, Tzatziki is a staple in all Greek reduced fat households due to its creamy, Ġ2 tbsp dill, roughly chopped refreshing taste. This dip is Ġ1 tbsp garlic, crushed extremely versatile as it pairs Ġ1 tbsp Extra Virgin Olive Oil great on salads, with pita bread ĠJuice from 1 lemon marker Desi Carlos & Lisa Bartzis or as a side for poultry. It works Method: as a fantastic alternative to Mix all together in a bowl and How to buy: mayonnaise or sour cream on book $35.00 (hardcover) refrigerate for 1 hour before burgers, sandwiches and baked serving. amazon $30.00 (e-book) potatoes. This quick tzatziki Mouse-pointer SHARE YOUR RECIPE WITH OUR READERS Do you have a favourite recipe you would like to share with our readers? Email your recipe to us along with a photo of yourself with your delicious creation. Node News | Lymphoedema Association of Queensland 14
SPONSOR At last, a bra that really helps manage lymphoedemaÉ.. For ladies who suffer from lymph congestion in the breast and thorax area. This bra is ideal as it actively massages with the special fabric and actively promotes blood circulation of the blood in the skin. This stimulates lymph drainage and also has a positive effect on scar healing. It also is designed to wick moisture away from the skin. Front eye and hook fastener is on the outside of the bra to prevent any skin irritation. The straps have a 3 position hook and eye fastener for altering sizing. The feedback from our customers has been very positive and many physiotherapist refer ladies to us for this very bra. Scan the QR codes below for more information. LymphoÞt Bra Swimwear 682 Sandgate Road ClayÞeld 4011 Phone: 07 3511 4222 info@spiritoßifeboutiique.com www.SpiritOfLifeBoutique.com Node News | Lymphoedema Association of Queensland 15
MEDICAL MATTERS INVESTIGATIONS TO AVOID PERIL AND REDUCE THE BURDEN FOR THE LIPOEDEMA PATIENT Author: Dr Chris Lekich L The deep venous system is also ablation. More recently the use ast time I wrote for important to interrogate to of endovenous glue ablation Node News, I noted that determine if there is any deep using cyanoacrylate is available. lipoedema is a clinical venous incompetence either Endovenous ablation can be diagnosis which hinges on a from genetic valvular disease performed in our outpatient's clear history and examination. or from a current or past deep procedure rooms, however I am often asked by patients, vein thrombosis that would lead inpatient service in our hospital medical colleagues and to a swollen limb. Further our allows for a more controlled therapists what is the best sonographers use ultrasound to environment with my anaesthetist investigation to confirm determine secondary lymphedema providing twilight sedation useful lipoedema? In short there is using sub echogenicity grades for complex veins and larger legs. not one, however there are (SEG 0-2) whilst performing important investigations Chronic Venous Insufficiency performed day to day using scans (CVI-studies). This is useful ultrasound to diagnose and to determine the lymphatic burden manage comorbiditiesthat of the lipoedema. can impact significantly on the lipoedema progression, severity, its conservative and With modern venous procedures, surgical management. stripping is avoided and Other investigations that are procedures are “walk in walk out”. useful, however not often ordered, I'm impressed that even patients that I will not cover in this issue, is with 40 litres plus of lipoedema fat lymphoscintigraphy, indocyanine in the legs report that they feel “so green (ICG), MRI and Dexa scans. light” when their venous disease The Dexa scan is a test that you As seen in these scans this patient is managed. This is not surprising as MLD therapists would be more shows obvious backward flow as the venous disease compounds inclined to use in your day-to-day called reflux (in red) occurring inflammation and swelling. practise and you would be most in the main trunk vein in this A third of the general population expert with its use. case the greatsaphenous vein suffer from venous disease. This (GSV) worsened by a refluxing is higher in my experience, up to Ultrasound perforating vein leading to 50%, of lipoedema patients, due As a phlebologist, ultrasound phlebo-lipo-lymphoedema). to poor mobility from lipoedema. is critical for my day-to-day Management of these veins is It is likely that your patient even assessment to establish the extent critical to avoid progression of without obvious varicose veins will of any superficial venous disease. disease, pain and swelling as well have coexistent venous disease. as eliminate the complications of Treatment of venous disease the progression of venous disease. reduces swelling which is Ultrasound guidance is used important if lipoedema surgery is in modern phlebology to treat planned to reduce the risk of clots, venous disease in the legs. These bleeding and further closes off are minimally invasive approaches using catheters, endovenous Continued on page 17 > laser ablation or radiofrequency Node News | Lymphoedema Association of Queensland 16
MEDICAL MATTERS large conduit veins to reduce the leg larger than the other. These fog and exercise tolerance. For risk of fat embolus syndrome or scans are best performed in the me performing lipoedema surgery paradoxical fat embolism. morning and where the patient on these patients, it reassures is fasted. These pelvic vein scans me that the patient will not have Post-surgery ultrasound is very are different to general pelvic a risk of fat migrating from their useful to exclude any deep vein scans of organs in the pelvis and legs during surgery, bypassing thrombosis and to determine if are performed by experienced the lungs and passing through a there are any seromas. Further the vascular sonographers. Where hole in the heart and ending up in a ultrasound is used to quickly and patients have large abdominal small artery in the brain that could efficiently drain any seromas which girths, CT venogram is an lead to a stroke. One in four people may present as “little puddles” alternative performed in the portal in the community have a hole in the that are not shifting with MLD. venous phase will exclude any heart and might not ever be aware I prime my patients regarding venous compression or outflow of it. A hole in the heart is the first seromas. As a therapist if you obstruction that would cause condition that is investigated when feel a seroma is present post swelling in the legs. It is important young people have strokes called operatively, please feel free to let todiagnose these conditions cryptogenic stroke. me know directly and send the as these can be potentially life patient our way for drainage. The TCD is an outpatient test that threatening if missed. takes approximately 20 minutes Duplex arterial scans are Transcranial Doppler (TCD/ with very low risk as a test. it also important for patients Bubble Study) is an ultrasound is useful also for patients with where the sonographers can modality used in my rooms using significant symptoms pointing determine that there is no arterial 2 megahertz probes on the right towards a hole in the heart before compromise before proceeding and left sides to interrogate the any venous interventions. to the prescription of flat knit cerebral arteries worn as a head compression garments and when In summary the use of ultrasound piece attached to a doppler box proceeding to surgery in high-risk is a very important modality and computer. patients. This is very important in managing patients with where there is a history of lipoedema. Portable ultrasounds cigarette smoking, hypertension that attached to your phone or or increased lipids. I tend to have your iPad are now available such a lower threshold to perform this as the Philips Butterfly or Clarius on my patients as there is difficulty meaning ultrasound will become in palpating pedal pulses due to ubiquitous in primary care. If you lipoedema body habitus in the legs have an interest in ultrasound in and the use of arterial brachial your MLD practice, feel free to A drip is inserted in the arm or index (ABI) using a cuff is painful. reach out to us and spend the day the leg using ultrasound to inject It is possible to refer patients to with us to learn how to drive the sterile saline solution with 1 ml of our clinic for the sonographers machines. micro-bubble air. These micro- to perform duplex arterial scans bubbles dissolve very quickly for patients. Where as the therapist you are concerned about however long enough to count ABOUT DR CHRIS LEKICH every bubble if there is a hole compression and arterial disease. in the heart. When the test is Pelvic Ultrasound Scans are positive, patients are referred useful to exclude pelvic venous to an experienced structural congestion, arterial venous cardiologist that can close compression syndromes or pelvic these this in 40 minutes with a or abdominal clots in the deep minimally invasive approach. briefcase Lipoedema Surgical Solution system that would give rise to When holes in the heart are closed swollen legs. This is particularly phone 1800 367 534 many patients report significant important where a patient has one improvement with migraine, brain globe-americas lipoedemasurgicalsolution.com Node News | Lymphoedema Association of Queensland 17
What is lipoedema? What are my options? Lipoedema is a chronic condition characterised by a painful and abnormal accumulation of fat cells in the hips, thighs, buttocks, legs and often arms. The legs become swollen, bruise easily, feel tender and uncomfortable. Sufferers of early stage Lipoedema often have column-shaped legs and as the condition worsens the fat continues to build up and the lower half of their body becomes heavier. The lipoedemic fat can also build up in the arms. The fat cannot be exercised or dieted away, many patients eat well and exercise yet continue to develop fat on their lipoedemic areas. If not diagnosed and managed properly Lipoedema can result in further complications including reduced mobility, lymphoedema (due to scarring of the lymphatics secondary to the inflammatory nature of the lipoedema tissue); as well as depression, anxiety, body dysmorphia or eating disorders. Sufferers of Lipoedema typically have two treatment options: 1. Conservative Management through wearing compression garments, diet & lifestyle adjustment & manual lymphatic drainage. This is a mandatory and a lifelong requirement. 2. Surgical Lipo-extraction to remove the diseased fat aiming to arrest the disease with surgery. Long term, surgical patients are more comfortable and are less dependent on lifelong compression and manual lymphatic drainage. Refer to our website www.lipoedemasurgicalsolution.com for case studies with before and after photos. Surgery with Lipoedema Surgical Solution is: Minimally Invasive Symmetrical Holistic No open surgery, small incision points for waterjet Both legs treated at the same time, starting with the lower Diagnosis and treatment are underpinned by ultrasound assisted treatment, no long scars. legs, to optimise balance, function and form following surgery. for a complete approach to managing the condition. PH: 1800 FOR LEGS | 1800 367 534 www.lipoedemasurgicalsolution.com Node News | Lymphoedema Association of Queensland 18
MEMBER SPOTLIGHT POSITIVE DESPITE ADVERSITY Author: Pam O'Connor F Lini has only just recently joined or Lini Boyer, 1995 was the LAQ, introduced by one of her a year she doesn’t want customers. to remember. She lost a baby girl at 19 weeks, and she “I know l probably was told about was diagnosed with ovarian support groups when l first got cancer lymphoedema, but at the time thought l didn’t need it. There have “My whole world flashed before been many times I just wanted to my eyes. I was very lucky as it cry because you have already dealt hadn’t spread and didn’t have to with having cancer but now you have chemo or radiation. I was have this as a constant reminder. very blessed to have a baby girl 12 months later,” Lini said.Years “Being in a group you’re able to She’s had lymphoedema now for later she developed lymphoedema share your journey with others about 10 years and it is just a part in her right leg, and then ovarian that know exactly how you feel. I of her daily routine of getting cancer again another few years like reading about things that help up and having to put on her later, this time more aggressive others and about new things that compression garment. and requiring chemotherapy. just might make our lives easier. “A few years ago, l flew to “I have been extremely lucky to “I have only been able to make one Melbourne to have a procedure have amazing doctors throughout morning tea get-together because done on the lower part of my leg to my ordeal and I thank my lucky of work but I enjoyed it and hope l’m give it more of a definition around stars every day.” able to make it to more in the future. my ankle. And yes, like us all, wished “ this procedure would cure it. “I am an identical twin - she never Being in a group had ovarian cancers but six years you’re able to share “I work full-time and being on my ago got breast cancer and suffers your journey with feet all day, when l come home with lymphoedema in her right others that know l can’t wait to take the garment " arm. A pigeon pair. exactly how you feel. off. I massage my leg as well as use a machine to help take “Even though it’s just turned 15 Lini hates having lymphoedema, out the excess fluid. This helps years, I still have yearly check-ups and is ticked off that she can’t tremendously and is very relaxing and to me that’s peace of mind." wear sexy high heels anymore. aswell,” Lini said. There are times when she is unsure “Other than this, l don’t do any LINI'S TOP TIPS: about what makes her tick. “I think other treatment - and that’s ĠMoisturise your skin daily being a mum you just often suck it ĠMassage as often as you can probably more a time factor than up and keep going." ĠDrink oodles of water anything.” But she is inspired by people who are much more worse off – and it is this positive attitude that drives Mouse-pointer SHARE YOUR STORY WITH OUR READERS her to get up and get going every We love sharing our Members’ journey with lymphoedema. Their day to enjoy life surrounded by real-life stories, tips, guidance and sharing of information helps to her big family, who mean the world create an important resource for LAQ Members while also raising to her. She tries to see her two awareness. children and her grandchildren as much as possible. If you are an LAQ Member and would like to be profiled in the next issue of Node News please click here to make your submission. Node News | Lymphoedema Association of Queensland 19
THERAPIST SPOTLIGHT OVERCOME BARRIERS TO LIVE A FULL LIFE Author: Pam O’Connor L would make a better occupational ymphoedema therapist than a physiotherapist occupational therapist and that I should do my Masters of Emily Muldoon is Occupational Therapy,” Emily said. passionate about helping people to overcome the “Fast forward a few years and barriers of their condition so when I was working as a new they can live life to its fullest. graduate OT at John Flynn Hospital, I received a referral for a “I am extremely passionate about patient with lymphoedema. I asked the fact disability, disease or our lymph-trained OT, Tara, if I condition does not define a person could shadow the session with her and everyone should have the and the patient - both agreed. opportunity to engage in what they want,” she said. “I was in awe of how Tara spoke with this lady and was intrigued about As the owner of Swell Therapies, how unique and personalised the Nicole, Anouk andLaila. a fully mobile business offering lymphoedema management plan an in-home service from Brisbane “Since working privately, I feel was for this lady. to the Gold Coast, Emily sees my network of lymph-trained people with a wide presentation of “Fast forward again and I was therapists is ever expanding and lymphoedema. looking to relocate myself from I am so fortunate now to have a Gold Coast back to Brisbane for lymphoedema physiotherapist, “ Everyone should have the opportunity to engage in what they love and I took the big step to start Swell Therapies. Marlene, now working with me at Swell Therapies. " “I was quite lucky in the early “It is my goal to continue to offer want. stages of Swell Therapies to work in-homelymphoedema support part-time at both Greenslopes and hopefully expand with more She describes her journey to Private Hospital and then at Gold therapists in the future.” become a lymphoedema therapist Coast University Hospital, while as “a little curly”, with her first Emily said she joined the LAQ “to my business grew. steps in a health career as an feel more connected to the world of exercise physiologist working in “I am so thankful for the lymphoedema, both for my clients spinal cord injury rehabilitation. experience and opportunity and myself as a professional. provided by GCUH, as well as the “I was looking to return to study “I believe community therapy guidance from lymph therapists when a client convinced me I relies on having supports for both the client and the therapist. “I also like to collaborate with other therapists and learn from those working in the same field. Let’s start working together on improving your health & quality of life Additionally, the lived stories of • Manual Lymphatic Drainage Massage those with lymphoedema can be so • Compression bandaging • Measuring & fitting of compression educational for my understanding garments as a therapist.” Book a consultation today to find out how we can help to restore your health & quality of life through Emily loves sharing education and better management of lymphoedema JEANINE MEWBURN Contact me today 0419 022 985 Complex Lymphatic Therapist www.jmlymphoedemaclinic.com.au Continued on page 21 > Node News | Lymphoedema Association of Queensland 20
THERAPIST SPOTLIGHT knowledge. “Knowledge is power and it can empower everyone EMILY'S TOP TIPS: (therapist, clients, family and ĠConsistency is the key. If you think of the lymph system as supports) to make a positive constantly moving -it needs your help more than “once in a while”. impact on their lives.” Consistent input will give you more reliable outcomes and help you work out what is best for your body. For example, wearing your She said she has met many people compression “every now and then” won’t be as effective as wearing who have had so many challenges, your compression every day and is inspired by their ‘never give ĠMake any part of your lymphoedema management part of your up’ attitude. usual routine. For example, clear your lymph nodes during your shower or complete some self-lymphatic massage each time you “There is always a way! It just get change might take some extra time or ĠLive your life! Don’t let your lymphoedema define you. Yes, you will take a different path to what you likely need to do something every day with your lymphoedema, originally thought,” she said. whether it’s massage, compression, pumping, taping, exercise, Emily embraces life with love, elevation, skin care or a mix of all of the above, but don’t forget to respect and lots of laughter –she live your life also loves craft and coffee! Mouse-pointer SHARE YOUR STORY WITH OUR READERS We love sharing our Members’ journey with lymphoedema. Their real-life stories, tips, guidance and sharing of information helps to create an important resource for LAQ Members while also raising awareness. If you are a lymphoedema treatment provider and would like to be profiled in the next issue of Node News please click here to make your submission. SIGVARIS - Experience the Difference At Morris Medical we measure, fit and supply SIGVARIS Medical Compression Garments which include circular knitted stockings and arm-sleeves as well as the new range of SIGVARIS Inelastic Compression Wraps for legs and arms. SIGVARIS is a recognised world leader in medical compression garments. Their extensive range of sizes and materials ensures an accurate and comfortable fit. Come and see the range for yourself. Call us or come to our showroom Unit 6 - 76 Enoggera Road, Newmarket QLD 4051 Phone: (07) 3356 6995 Fax: (07) 3356 6990 Email: sales@morrismedical.com.au www.morrismedical.com.au FOR STYLE AND FIT Node News | Lymphoedema Association of Queensland 21
IN THE LOOP ANNUAL GENERAL MEETING 2021 Please register on the following link or head to our website under special events. lymph.org.au/events/special- events/#!event/2021/10/30/laq- annual-general-meeting Allow 10 mins before the event to log on and get yourself set up.We look forward to seeing you on the night. P.S there are phone-in options as well if the internet connection is a little weak in your area, once registered the numbers will be Grab a cuppa and join us from the zoom. With QLD having such a vast sent through via email so make comfort of your home. landscape it is a great opportunity sure you save the details. for us all to come together and With the current turn of events connect on the evening which is a nation-wide restricting us meeting first for LAQ. in person, we now have the opportunity to meet with all of our We will have a special guest TICKET-ALT REGISTER NOW members at once with our AGM via speaker on the night so stay tuned. THE GIFT OF GIVING Thank you to the following sponsors who supported us for our website launch Haddenham Health The Joint Physiotherapy and Allied Plunkett Pharmaceuticals Health Morris Medical Coffee Education Network Essity Co.As.It Jocelyn’s Provisions Zonta Brisbane Sunrise Medi Australia Cr Davis Creative Flavours ImpediMed Ltd Cr Landers And a special thank you to Cr Davis for printing our Node News for those that don't have email. Australian Distributors of Bioflect Compression Garments Patented design, comfortable and effective in assisting lymphoedema, lipoedema, other oedema and lymphatic issues, lactic acid, aching legs, vascular conditions, post-surgery and rehabilitation. Easy sizing & donning More info at our online shop; Expert back up and service at; 03 97026027 lymphaticaustralia.com.au sales@lymphaticaustralia.com.au Node News | Lymphoedema Association of Queensland 22
SUPPORT SUPPORT GROUP MEETINGS SEPTEMBER 2021 Date: Wed, 22 September 2021 Time: 10:00am –11:30am We never want you to feel isolated or alone which is why we Venue: Revolution Espresso - Caboolture encourage you to come along to our Support Group Meetings. Host: Nerida Smith At these informal gatherings, you will meet others, just like yourself who are coping with the daily challenges of living with OCTOBER 2021 Lymphoedema. You'll get to share ideas, treatment options and Date: Tue, 5 October 2021 Time: 10:00am – 11:30am gain insights from the collective experiences. Venue: Luv a Coffee - Beenleigh Hosted by LAQ Ambassadors our Support Group Meetings are a great Host: Jess Billiau opportunity to network with members, make new friends and create Date: Mon, 18 October 2021 connections. It's also an opportunity to learn about the support and Time: 10:00am –11:30am Venue: Cancer Care Centre - services on offer as part of LAQ Membership. To RSVP or find more Bundaberg details about meetings visit our website www.lymph.org.au Host: Olga Beath If you are interested in being a guest speaker at future LAQ Support Date: Fri, 29 October 2021 Group Meetings, please call our office on 0403 782 795. Time: 10:00am –11:30am Venue: Revolution expresso - LAQ SUPPORT GROUP MEETING Caboolture Host: Nerida Smith AMBASSADORS NOVEMBER 2021 Date: Mon, 1 November 2021 Time: 10:00am –11:30am BRISBANE NORTH MORETON BAY Venue: @Beans - Cannon Hill Host: Pam O’Connor user-alt Uff. Hon. Teresa Gambaro user-alt Nerida Smith OAM Mobile-Alt 0409 849 718 Mobile-Alt 0412 498 106 Date: Mon, 8 November 2021 Time: 10:00am –11:30am LOGAN GOLD COAST Venue: Chermside Library - user-alt Jess Billiau user-alt Jess Billiau Chermside Mobile-Alt 0408 781 914 Mobile-Alt 0408 781 914 Host: Hon Teresa Gambaro BUNDABERG BRISBANE EAST Date: Fri, 26 November 2021 user-alt Olga Beath user-alt Pam O’Connor Time: 10:00am –11:30am Mobile-Alt 0429 877 100 Mobile-Alt 0403 683 963 Venue: Revolution Expresso - Caboolture Host: Nerida Smith Node News | Lymphoedema Association of Queensland 23
You can also read