Interagency Coordinating Council Meeting Minutes Thursday, March 24, 2022 via Teams Meetings - ND.gov

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Interagency Coordinating Council
                       Meeting Minutes
                  Thursday, March 24, 2022
                     via Teams Meetings

PRESENT

Mariah Hill                                  Angela McSweyn
Tina Bay                                     Amy Casavant
Carolyn Kueber                               Matt Nelson
Lisa Piche                                   Jodi Hulm
Kim Hruby                                    Janakate Walker
Shannon Grave                                Missi Baranko
Amanda Peterson                              Louise Greff
Karri Morris                                 Michelle Ragan
Rep. Brandy Pyle                             Jill Staudinger
Shantelle Petroff

STAFF
Jackie Adusumilli                            Colette Perkins

GUESTS
Roxane Romanick                              Laura Satrom
Daniel Hoff                                  Ashley Barnett
Kathleen Kottenbrock                         Valerie Bakken
Janelle Wiedrich                             Kennon Schmit

TOPIC:    INTRODUCTIONS
Members introduced themselves, what their role is, and where they reside.

TOPIC:      AGENDA OVERVIEW
Family Story and then Fetal Alcohol Screen Tool, but we are moving this to
after lunch. We will move the Experienced Parent Program Update to the
Fetal Alcohol morning spot and then some discussion on the REIL Grant.

TOPIC:     FAMILY STORY

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Ashley Barnett – her journey is awesome, experienced early intervention
but also healthy family services.
They are 1st time parents and big struggle with daughter in the beginning,.
Healthy at birth but troubles with keeping the weight on. Saw some different
Dr.s, and the pediatrician is a god send to us. Trouble with gaining weight,
bowel movements and other medical issues. Referred to BECEP and love
her visitor. Comes over once a month and ealthy Families visits once a
month. She is finally looking like a heathy child. Have seen specialists in
Mayo. Dr McDonough got her into the pediatric surgeon and needed
surgery and then passed bowels, gaining weight. Heathy 2-year-old girl
and very busy. Learning and talking very well.

BECEP has helped her to reach her milestones and Healthy Families and
had post-partum and lasted a long time and they offered many different
ways to cope with the stuff. They listened and provided support and trying
new things.

TOPIC:      NEW BUSINESS

Fetal Alcohol Screening Tool -
Julie Horntvedt is the Director of the State Council on Developmental
Disabilities, and which is a federally funded program and put the funding
back into the state to start initiatives, fill gaps, provide stipends to benefit
people with disabilities and their families. They just completed their 5-year
plan. Do research in the state to see what the needs are. Fetal Alcohol
Syndrome is raising to the top and impacting early intervention and
individuals being diagnosed. 1 in 20 kids to have a diagnose with FAS.
The DD Council decided to make this an initiative of ours for the next 5
years. What can we do for awareness, screening, and support for families?
Dr. Burd, UND, has a screening tool for birth to 3; would like to push out to
home visitors, early intervention, and Head Start to implement and for you
to know to refer families to UND fetal alcohol. Do training videos on 1 page
of questions. Missi will share the information from Julie with the members.

Wondering if people are willing to use the tool? Dr. Burd would do
trainings with staff through the DD Council and doing technical assistance
support with staff and him. Would this be something you could use, would
this work for your programs, will it overlap but it is more alcohol focused.

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You complete, send to UND and Dr. Burd provides an evaluation and to get
families linked up to services. Would like to screen as many people as
possible.

All services will be paid for through the DD Council grant for Dr Burd. This
would be free to programs to utilize, hoping to get the system of referrals
going. Screening tool has been validated for a long time. Is there
compensation to programs for using this tool? This has not been asked but
it is something for the DD Council to think about.

What is the data used for – help people get into services, utilizing services
earlier, showing a need for FAS diagnose to help with funding through the
legislature, wanting to meet needs earlier. Do we need to get consent from
families to share the information, more work for staff, and that is why the
comment on compensation for providers?

What would make a family want to participate – want to make sure getting
the correct diagnoses support and for future care. Do families consent to
drug abuse screenings? Early intervention doesn’t have an across-the-
board drug use screening. Diagnoses could help to clearer services
leading up to adulthood. Have had extensive conversations about families
not wanting to admit to using, but also this has helped the family to help
their child. Dr Burd has also worked with foster/adoptive parents and their
wanting more information and help for their child.

Would like to see a substance abuse screening tool. Is he looking at other
substance abuses, are there correlations, and are other substances
affecting children like alcohol does? Question – does a diagnose help? Do
you treat children differently from one diagnose to another? Missi shared
some information with the members that she received from Julie.

It might be more difficult for Right Track to do this screening. Feel you
need a stronger relationship with a parent such as through early
intervention.

Dr Burd is using the screener that Missi sent out in an email to the
members.

Medical records received from hospital/primary care physician and referred
for early intervention, statement that parent confirmed alcohol use. Could
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use this to start a conversation with the family; ask if they are interested in
support from this program. Does Dr. Burd have a connection with
physicians when this information is being shared or is that what he is
asking from us?

Julie will take this information back to Dr. Burd and bring back to this group
or decide if this is something you want to do, are there other ideas that we
could work on with you? The ICC is meeting on June 23 in-person and will
work with Julie and Dr Burd on presenting.

Future ICC Meeting Format – historically we meet for 1 day, 1½ days,
option for in-person, and video conferencing through the human service
centers. Pandemic started and now we have the Teams format. Some
people are questioning doing an all-day meeting, people popping in and
out, and having to have a quorum. Do a half day so we don’t have the in
and out issue with members; state workers have work that trumps the ICC
meeting. Want people to share ideas, barriers to how things are being
done, want the most participation, and conversation/feedback/input.
Understand all day in-person meetings – out of office and not at computer
and other meetings popping up and people traveling, and you want
meetings to be worthwhile.

Hard to stay engaged in a 7-hr. meeting. Benefits to smaller subcommittee
work to get engaged information.

Shorter virtual meetings would be better, engage more, some individuals
are not as engaged as in an in-person meeting, harder on chair/co-chair
would be more difficult, put more on subcommittees who can meet in
between, but overall, it would be better for everyone. Children have appts,
live in a rural area, enjoy networking and hearing from other parents and
regions about projects; shorter more frequent meetings; people having their
cameras on; many at state level tend to have to multi-task and pick and
choose which meeting trumps another meeting; more frequent meetings
would remind me what I need to follow up on; more frequent shorter
meetings would mean sharing information on a more timely basis for
discussion.

Agenda items – some are part of our role; some are for the good of the
group and/or more optional; some topics help build relationships and
further discussions. Shorter timeline and easier for other individuals to
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jump in and participate in the discussion. Guests to have more introduction
time. Using the chat well. Not all attendees can see the chat.

Would we want to keep the same day and meet every other month or
another way? Preferences over morning or afternoon. Maybe
Wednesdays and schedule out 2 ½ hours. Maybe send something out to
people to respond too.

Unanimous to meeting every other month, shorter time frame, certain day
of the week, and send out a simple survey to the group.

June meeting – talked about doing this in-person. June 23 for in-person?
Sept will be virtual. Joint meeting with IDEA – if it is in Sept, we don’t have
to meet as an ICC the day before the joint meeting. If we meet in-person,
do we another meeting virtual meeting so soon.

ICC/IDEA joint meeting – part training and part sharing information in Sept.
Start every other month meetings, but not until after June; starting in Aug
but we may cancel and/or change. Agenda – more specificity around times
for topics.

Any topics for June – how a bill becomes law; role of ICC in the legislative
action - what we can do, the impact. Rep. Pyle encouraged members to
come and sit with her during the session. Understanding where the funding
comes from, any matching dollars that are required; the outcomes that we
desire. Do we know what has happened with the possible federal Part C
changes? If these went through, give the members an update. An update
on workforce would be super helpful since it is a problem for all industries.
We want members to have input and provide ideas.

ICC Member Updates -
Carolyn – early childhood conference that is now open – 3 day – July 11 to
July 13; July 11 is focusing on early learning, getting presenters,
registration is now open for this. She will send a link for this. Waterford
Upstart – teaches preschool age children for teaching reading, math, and
science; free to families; those that stay in for a year keep a laptop; if there
is no internet access in home they will get free internet; for 5 days a week
for 15 minutes each day; and families are given materials to engage with
the child during the off time, not during the 15-minute screen time. Kim
utilized upstart, no longer need/want the device, can you donate the device
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back? Carolyn has a meeting with the Waterford group tomorrow and will
check into this and get back to Kim.

Angela – IDEA advisory meeting – put in the chat some opportunities for
development.

Wi-Fi device needs - Julie Horntvedt – put out COVID funding for $1000 for
funding for this and families impacted and need to continue
education/therapy/whatever. She put her email in chat so people can
contact her.

Missi – inclusion support work done – funded through state and legislatively
driven – support childcare providers with children with special health care
needs. Plan to provide training on ages and stages and monitor
development in the childcare facilities, COVID and cancelled, inspire ND
now has this and it is being rolled out. Wanted 30 registrations and got
more than 40 and ordered more materials. Part of the training, 3 sessions,
will be informing the participants about Right Track, early intervention-Part
C, early childhood special education.

Workforce – trying to hire a 2nd inclusion individual. Missi posted the link.
Call Missi if you want more information.

Lisa – development family services assessment – situation where child not
getting to school, what is the reason not getting to school, allows just to
expand we what we are doing. Category of need assessment – no data
information. April 1 added a new unit – licensing unit – family foster care,
level of care licensing, home on range for boys and girls, ready to roll
added 16 FTEs from zones to the Children & Family Services Division and
the unit will have 20 members and Kelsey Bless to be the administrator.
This will be statewide licensing. Putting emphasis on the needs of the
children and family.

Roxane – family scholarships for DEC conference are open – parents are
interested, the DD Council has consumer leadership grants available.
Parents will have their registration waived for the DEC conference.

Michelle – BECEP is scheduled out for finishing the 2nd cohort for their
training utilizing the grant funds to continue and 3rd trainer being trained

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and finish in June and in July start with Right Track. In the Fall do for
BECEP’s preschool staff and early childhood special ed.

Centers for Disease Control Updated Developmental Milestones -
Updated their developmental milestones.
Believe many programs use their information.
Will this change eligibility, will it change how we use the screening tools,
etc.

Is there an impact to Part C, Right Track, or Early Intervention Programs?
Does not impact eligibility. Tools are not criterion based on the CDC
milestones. Right Track – same situation, unless publisher changes based
on CDC milestones.

Early Intervention field open door to educate referral sources; what is the
definition of the milestones – at this age majority have mastered the skill
not talking about when they learn it; communicate with community partners
– physicians use terminology looking at growth and children close to mid-
range. Wanting to identify children earlier. Educate better on average
range, milestone, and typical range. Amy asked Jill to write this up and
send out to the members.

0-3 catch earlier and make the greatest impact and help people to
understand what milestones mean; 3-5 before kindergarten and not
needing additional help; and 7 - 9 – don’t catch by 3rd grade, they are on an
IEP through school.

How does it work to shift milestones to a certain age? Confused with an
effort to promote referring earlier. This is when the children should learn
the skill and not master it.

Right Track uses the ages and stages screening tool and use CDC
guidelines. Do we use the CDC information, do we give it out, encourage
families to use or not? The CDC books are not being changed, but
everything else that has the check lists are being changed.

We will need to spend more time educating, so parents are not confused.

Laura – CDC information was a free resource to share with families, nice
booklets, printed in multiple languages, with changes hesitancy to use it
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and how do we explain this. Takes away a resource that we have used or
makes it more challenging to use.

Have difficulty having pediatricians refer kids to us for screenings and no
connection with families will they make a referral.

A committee was formed to review the CDC Milestones and create a visual
regarding the milestones. Angela will Chair and other members are Jill,
Amy, Michelle, and Janakate.

Resilient Early Intervention Leadership Grant Update -
Roxane provides leadership around competencies and our advisory group.

This grant was awarded about 2 years ago and is to help build leadership
capacity in early childhood in North Dakota.

Competency assessment – revises leadership competency.

Advisory group provides feedback around the grant; potential to grow and
improve.

UND early intervention master’s certificate – 18 individuals are going
through this master’s certificate program, they have been going for a
couple months now, and they are taking 2 classes at a time.

Annual performance report for this grant is due in May and report on our
progress so far. It is 5 years’ worth of funding and $200,000 each year.

Roxane – competency work, we feel is a stable with the semantics. Send
out to stakeholders to review again and coming out with the survey and
targeted all of you and will work with Jackie and Missi to get out in an
email. Get rolled out and training to the field by this fall. Looking for 1
parent for the advisory group and maybe another position. They meet once
a quarter – generating ideas on promoting and ideas on early childhood.
Membership on both groups – we have higher ed, special education, and
early childhood and not typical too a lot of our groups and interested to
hear what they are taking away and sharing in their classrooms. Any
guidelines for the parent – close to the early intervention experience – a
child under 5, child in early intervention would be great. Any compensation

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– a $100 stipend for every meeting. Where can we find the information to
share the parent information – Roxane will get something out on this.

Hoping to get the next cohort information out this spring/summer and they
will start next January. Will find out in August if you are approved for the
master’s level certificate. There is no cost for this also; except if you are
approved to participate you need to complete an application which will cost
you about $35. There are only 18 slots available. They received between
25 and 30 applications for the 1st cohort. Those that didn’t get approved for
the 1st cohort will have their application reviewed for the 2nd cohort. It is a
master’s level certificate – have to have a bachelor’s degree to enroll. The
credits do count towards the master’s degree.

Experienced Parent Program Update -
Sent contracts out and have providers submitting reimbursement requests.
2 programs that have hired ex parent and providing visits. Interest from
programs that didn’t initially apply and received email from regions asking
about program updates. Initially put out the RFP and available to programs
who are licensed i.d. programs and received responses back but not from
every program. Work with funds to determine interest from other programs
and issue and if no one interested continue to support programs that
applied with additional funding.

Contracts are with Opportunity Foundation, HIT; BECEP, and Encompass
Fargo applied for funding.

BECEP hired and starting in April and had some amazing parents that
interviewed and excited to get the ball rolling. Funding didn’t support a full-
time position and using experience program as well as other grant and
technically still part time and 80 hours per month is what we can support.

Jill – last email from Mike came in January with the intent letter and haven’t
seen a contract but Jill will follow up. She has a list of parents asking about
this and ready to interview. Contract was sent in Feb and was just re-sent
to Mike.

Janakate – how did RFP go – Right Track in Ft. Yates who should have
received that email. RFP went out to all Infant Development programs and
Stefanie Yellow Hammer received. If it is re-opened, Jackie will follow up
with Janakate and Janakate will follow up with Stefanie.
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State did not reach out to see why programs did not apply.

Jill list from letter of intent and those programs that didn’t apply are Anne
Carlsen Center, Early Intervention Partners, Minot Infant Development.
Standing Rock Early Intervention, and T&K Intervention.

Opportunity Foundation – followed up and we did supply funding to them.

Coordinator/liaison with state – didn’t fund wanted as much money going
out; and we are considering both options.

Ask the experienced parent representative for Opportunity Foundation to
apply to be the parent representative on the ICC.

Right Track Update -
Referral data from last year didn’t change much. With COVID how many
visits authorized vs. visits used and discuss. Had discussion last year why
it is different based on different regions – presents of right track in the
region, knowledge of the population about the right track program. Jackie
shared a graph of visits authorized, visits used, and percentage used. 72%
of visits were utilized this year. Differences in program to program.
Discussion about getting screeners, doing, and not doing virtual
screenings. Region 7 stated that COVID is playing into the number of visits
and time taking to schedule, follow through and complete, cancelling and
rescheduling tie into the completion of the visits. Appreciate the ability to
use virtual screens. All children with a CAPTA referral should go to Right
Track regardless of case worker and the human service zone. Working on
getting the Right Track brochure into 8 different translations. Ages &
Stages, we have English and Spanish, to buy different translations and any
dollars to be able to purchase those other languages; or maybe after the
ASQ4 comes out. Missi will check into this and visit with Jackie. Get
access to written information in a certain language would be helpful for the
families also.

TOPIC:      STANDING NDICC AGENDA ITEMS

Part C Budge Report -
Tina shared summary of expenditure of Part C funds.
21 state fiscal year carried over (-$146,000) to 22.
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Will add the general funds to the Experienced Parent column.
Direct service fluctuates a lot up and down.
Part C grant application is out for public comment through April 1.

TOPIC:       ARP FUNDS
The Division ordered 14 OAEs and Tymps sets and received training last
week. MSI provides support around the machines.
Use funds towards translation of materials.
There are some unallocated funds and Jackie asked members to send her
an email if you have ideas/suggestions or questions for using the
unallocated funds and they have to be expended by Sept 2023.
Some suggestions were: a state early intervention brochure; Online
referral system – community referrals ask for this.

Online learning management system for the field and BECEP will be the
pilot region and provide feedback for everyone.

TOPIC:    COMMITTEE REPORTS
There were no committee reports.

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