Interagency Coordinating Council Meeting Minutes Thursday, March 24, 2022 via Teams Meetings - ND.gov
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Interagency Coordinating Council Meeting Minutes Thursday, March 24, 2022 via Teams Meetings PRESENT Mariah Hill Angela McSweyn Tina Bay Amy Casavant Carolyn Kueber Matt Nelson Lisa Piche Jodi Hulm Kim Hruby Janakate Walker Shannon Grave Missi Baranko Amanda Peterson Louise Greff Karri Morris Michelle Ragan Rep. Brandy Pyle Jill Staudinger Shantelle Petroff STAFF Jackie Adusumilli Colette Perkins GUESTS Roxane Romanick Laura Satrom Daniel Hoff Ashley Barnett Kathleen Kottenbrock Valerie Bakken Janelle Wiedrich Kennon Schmit TOPIC: INTRODUCTIONS Members introduced themselves, what their role is, and where they reside. TOPIC: AGENDA OVERVIEW Family Story and then Fetal Alcohol Screen Tool, but we are moving this to after lunch. We will move the Experienced Parent Program Update to the Fetal Alcohol morning spot and then some discussion on the REIL Grant. TOPIC: FAMILY STORY 1
Ashley Barnett – her journey is awesome, experienced early intervention but also healthy family services. They are 1st time parents and big struggle with daughter in the beginning,. Healthy at birth but troubles with keeping the weight on. Saw some different Dr.s, and the pediatrician is a god send to us. Trouble with gaining weight, bowel movements and other medical issues. Referred to BECEP and love her visitor. Comes over once a month and ealthy Families visits once a month. She is finally looking like a heathy child. Have seen specialists in Mayo. Dr McDonough got her into the pediatric surgeon and needed surgery and then passed bowels, gaining weight. Heathy 2-year-old girl and very busy. Learning and talking very well. BECEP has helped her to reach her milestones and Healthy Families and had post-partum and lasted a long time and they offered many different ways to cope with the stuff. They listened and provided support and trying new things. TOPIC: NEW BUSINESS Fetal Alcohol Screening Tool - Julie Horntvedt is the Director of the State Council on Developmental Disabilities, and which is a federally funded program and put the funding back into the state to start initiatives, fill gaps, provide stipends to benefit people with disabilities and their families. They just completed their 5-year plan. Do research in the state to see what the needs are. Fetal Alcohol Syndrome is raising to the top and impacting early intervention and individuals being diagnosed. 1 in 20 kids to have a diagnose with FAS. The DD Council decided to make this an initiative of ours for the next 5 years. What can we do for awareness, screening, and support for families? Dr. Burd, UND, has a screening tool for birth to 3; would like to push out to home visitors, early intervention, and Head Start to implement and for you to know to refer families to UND fetal alcohol. Do training videos on 1 page of questions. Missi will share the information from Julie with the members. Wondering if people are willing to use the tool? Dr. Burd would do trainings with staff through the DD Council and doing technical assistance support with staff and him. Would this be something you could use, would this work for your programs, will it overlap but it is more alcohol focused. 2
You complete, send to UND and Dr. Burd provides an evaluation and to get families linked up to services. Would like to screen as many people as possible. All services will be paid for through the DD Council grant for Dr Burd. This would be free to programs to utilize, hoping to get the system of referrals going. Screening tool has been validated for a long time. Is there compensation to programs for using this tool? This has not been asked but it is something for the DD Council to think about. What is the data used for – help people get into services, utilizing services earlier, showing a need for FAS diagnose to help with funding through the legislature, wanting to meet needs earlier. Do we need to get consent from families to share the information, more work for staff, and that is why the comment on compensation for providers? What would make a family want to participate – want to make sure getting the correct diagnoses support and for future care. Do families consent to drug abuse screenings? Early intervention doesn’t have an across-the- board drug use screening. Diagnoses could help to clearer services leading up to adulthood. Have had extensive conversations about families not wanting to admit to using, but also this has helped the family to help their child. Dr Burd has also worked with foster/adoptive parents and their wanting more information and help for their child. Would like to see a substance abuse screening tool. Is he looking at other substance abuses, are there correlations, and are other substances affecting children like alcohol does? Question – does a diagnose help? Do you treat children differently from one diagnose to another? Missi shared some information with the members that she received from Julie. It might be more difficult for Right Track to do this screening. Feel you need a stronger relationship with a parent such as through early intervention. Dr Burd is using the screener that Missi sent out in an email to the members. Medical records received from hospital/primary care physician and referred for early intervention, statement that parent confirmed alcohol use. Could 3
use this to start a conversation with the family; ask if they are interested in support from this program. Does Dr. Burd have a connection with physicians when this information is being shared or is that what he is asking from us? Julie will take this information back to Dr. Burd and bring back to this group or decide if this is something you want to do, are there other ideas that we could work on with you? The ICC is meeting on June 23 in-person and will work with Julie and Dr Burd on presenting. Future ICC Meeting Format – historically we meet for 1 day, 1½ days, option for in-person, and video conferencing through the human service centers. Pandemic started and now we have the Teams format. Some people are questioning doing an all-day meeting, people popping in and out, and having to have a quorum. Do a half day so we don’t have the in and out issue with members; state workers have work that trumps the ICC meeting. Want people to share ideas, barriers to how things are being done, want the most participation, and conversation/feedback/input. Understand all day in-person meetings – out of office and not at computer and other meetings popping up and people traveling, and you want meetings to be worthwhile. Hard to stay engaged in a 7-hr. meeting. Benefits to smaller subcommittee work to get engaged information. Shorter virtual meetings would be better, engage more, some individuals are not as engaged as in an in-person meeting, harder on chair/co-chair would be more difficult, put more on subcommittees who can meet in between, but overall, it would be better for everyone. Children have appts, live in a rural area, enjoy networking and hearing from other parents and regions about projects; shorter more frequent meetings; people having their cameras on; many at state level tend to have to multi-task and pick and choose which meeting trumps another meeting; more frequent meetings would remind me what I need to follow up on; more frequent shorter meetings would mean sharing information on a more timely basis for discussion. Agenda items – some are part of our role; some are for the good of the group and/or more optional; some topics help build relationships and further discussions. Shorter timeline and easier for other individuals to 4
jump in and participate in the discussion. Guests to have more introduction time. Using the chat well. Not all attendees can see the chat. Would we want to keep the same day and meet every other month or another way? Preferences over morning or afternoon. Maybe Wednesdays and schedule out 2 ½ hours. Maybe send something out to people to respond too. Unanimous to meeting every other month, shorter time frame, certain day of the week, and send out a simple survey to the group. June meeting – talked about doing this in-person. June 23 for in-person? Sept will be virtual. Joint meeting with IDEA – if it is in Sept, we don’t have to meet as an ICC the day before the joint meeting. If we meet in-person, do we another meeting virtual meeting so soon. ICC/IDEA joint meeting – part training and part sharing information in Sept. Start every other month meetings, but not until after June; starting in Aug but we may cancel and/or change. Agenda – more specificity around times for topics. Any topics for June – how a bill becomes law; role of ICC in the legislative action - what we can do, the impact. Rep. Pyle encouraged members to come and sit with her during the session. Understanding where the funding comes from, any matching dollars that are required; the outcomes that we desire. Do we know what has happened with the possible federal Part C changes? If these went through, give the members an update. An update on workforce would be super helpful since it is a problem for all industries. We want members to have input and provide ideas. ICC Member Updates - Carolyn – early childhood conference that is now open – 3 day – July 11 to July 13; July 11 is focusing on early learning, getting presenters, registration is now open for this. She will send a link for this. Waterford Upstart – teaches preschool age children for teaching reading, math, and science; free to families; those that stay in for a year keep a laptop; if there is no internet access in home they will get free internet; for 5 days a week for 15 minutes each day; and families are given materials to engage with the child during the off time, not during the 15-minute screen time. Kim utilized upstart, no longer need/want the device, can you donate the device 5
back? Carolyn has a meeting with the Waterford group tomorrow and will check into this and get back to Kim. Angela – IDEA advisory meeting – put in the chat some opportunities for development. Wi-Fi device needs - Julie Horntvedt – put out COVID funding for $1000 for funding for this and families impacted and need to continue education/therapy/whatever. She put her email in chat so people can contact her. Missi – inclusion support work done – funded through state and legislatively driven – support childcare providers with children with special health care needs. Plan to provide training on ages and stages and monitor development in the childcare facilities, COVID and cancelled, inspire ND now has this and it is being rolled out. Wanted 30 registrations and got more than 40 and ordered more materials. Part of the training, 3 sessions, will be informing the participants about Right Track, early intervention-Part C, early childhood special education. Workforce – trying to hire a 2nd inclusion individual. Missi posted the link. Call Missi if you want more information. Lisa – development family services assessment – situation where child not getting to school, what is the reason not getting to school, allows just to expand we what we are doing. Category of need assessment – no data information. April 1 added a new unit – licensing unit – family foster care, level of care licensing, home on range for boys and girls, ready to roll added 16 FTEs from zones to the Children & Family Services Division and the unit will have 20 members and Kelsey Bless to be the administrator. This will be statewide licensing. Putting emphasis on the needs of the children and family. Roxane – family scholarships for DEC conference are open – parents are interested, the DD Council has consumer leadership grants available. Parents will have their registration waived for the DEC conference. Michelle – BECEP is scheduled out for finishing the 2nd cohort for their training utilizing the grant funds to continue and 3rd trainer being trained 6
and finish in June and in July start with Right Track. In the Fall do for BECEP’s preschool staff and early childhood special ed. Centers for Disease Control Updated Developmental Milestones - Updated their developmental milestones. Believe many programs use their information. Will this change eligibility, will it change how we use the screening tools, etc. Is there an impact to Part C, Right Track, or Early Intervention Programs? Does not impact eligibility. Tools are not criterion based on the CDC milestones. Right Track – same situation, unless publisher changes based on CDC milestones. Early Intervention field open door to educate referral sources; what is the definition of the milestones – at this age majority have mastered the skill not talking about when they learn it; communicate with community partners – physicians use terminology looking at growth and children close to mid- range. Wanting to identify children earlier. Educate better on average range, milestone, and typical range. Amy asked Jill to write this up and send out to the members. 0-3 catch earlier and make the greatest impact and help people to understand what milestones mean; 3-5 before kindergarten and not needing additional help; and 7 - 9 – don’t catch by 3rd grade, they are on an IEP through school. How does it work to shift milestones to a certain age? Confused with an effort to promote referring earlier. This is when the children should learn the skill and not master it. Right Track uses the ages and stages screening tool and use CDC guidelines. Do we use the CDC information, do we give it out, encourage families to use or not? The CDC books are not being changed, but everything else that has the check lists are being changed. We will need to spend more time educating, so parents are not confused. Laura – CDC information was a free resource to share with families, nice booklets, printed in multiple languages, with changes hesitancy to use it 7
and how do we explain this. Takes away a resource that we have used or makes it more challenging to use. Have difficulty having pediatricians refer kids to us for screenings and no connection with families will they make a referral. A committee was formed to review the CDC Milestones and create a visual regarding the milestones. Angela will Chair and other members are Jill, Amy, Michelle, and Janakate. Resilient Early Intervention Leadership Grant Update - Roxane provides leadership around competencies and our advisory group. This grant was awarded about 2 years ago and is to help build leadership capacity in early childhood in North Dakota. Competency assessment – revises leadership competency. Advisory group provides feedback around the grant; potential to grow and improve. UND early intervention master’s certificate – 18 individuals are going through this master’s certificate program, they have been going for a couple months now, and they are taking 2 classes at a time. Annual performance report for this grant is due in May and report on our progress so far. It is 5 years’ worth of funding and $200,000 each year. Roxane – competency work, we feel is a stable with the semantics. Send out to stakeholders to review again and coming out with the survey and targeted all of you and will work with Jackie and Missi to get out in an email. Get rolled out and training to the field by this fall. Looking for 1 parent for the advisory group and maybe another position. They meet once a quarter – generating ideas on promoting and ideas on early childhood. Membership on both groups – we have higher ed, special education, and early childhood and not typical too a lot of our groups and interested to hear what they are taking away and sharing in their classrooms. Any guidelines for the parent – close to the early intervention experience – a child under 5, child in early intervention would be great. Any compensation 8
– a $100 stipend for every meeting. Where can we find the information to share the parent information – Roxane will get something out on this. Hoping to get the next cohort information out this spring/summer and they will start next January. Will find out in August if you are approved for the master’s level certificate. There is no cost for this also; except if you are approved to participate you need to complete an application which will cost you about $35. There are only 18 slots available. They received between 25 and 30 applications for the 1st cohort. Those that didn’t get approved for the 1st cohort will have their application reviewed for the 2nd cohort. It is a master’s level certificate – have to have a bachelor’s degree to enroll. The credits do count towards the master’s degree. Experienced Parent Program Update - Sent contracts out and have providers submitting reimbursement requests. 2 programs that have hired ex parent and providing visits. Interest from programs that didn’t initially apply and received email from regions asking about program updates. Initially put out the RFP and available to programs who are licensed i.d. programs and received responses back but not from every program. Work with funds to determine interest from other programs and issue and if no one interested continue to support programs that applied with additional funding. Contracts are with Opportunity Foundation, HIT; BECEP, and Encompass Fargo applied for funding. BECEP hired and starting in April and had some amazing parents that interviewed and excited to get the ball rolling. Funding didn’t support a full- time position and using experience program as well as other grant and technically still part time and 80 hours per month is what we can support. Jill – last email from Mike came in January with the intent letter and haven’t seen a contract but Jill will follow up. She has a list of parents asking about this and ready to interview. Contract was sent in Feb and was just re-sent to Mike. Janakate – how did RFP go – Right Track in Ft. Yates who should have received that email. RFP went out to all Infant Development programs and Stefanie Yellow Hammer received. If it is re-opened, Jackie will follow up with Janakate and Janakate will follow up with Stefanie. 9
State did not reach out to see why programs did not apply. Jill list from letter of intent and those programs that didn’t apply are Anne Carlsen Center, Early Intervention Partners, Minot Infant Development. Standing Rock Early Intervention, and T&K Intervention. Opportunity Foundation – followed up and we did supply funding to them. Coordinator/liaison with state – didn’t fund wanted as much money going out; and we are considering both options. Ask the experienced parent representative for Opportunity Foundation to apply to be the parent representative on the ICC. Right Track Update - Referral data from last year didn’t change much. With COVID how many visits authorized vs. visits used and discuss. Had discussion last year why it is different based on different regions – presents of right track in the region, knowledge of the population about the right track program. Jackie shared a graph of visits authorized, visits used, and percentage used. 72% of visits were utilized this year. Differences in program to program. Discussion about getting screeners, doing, and not doing virtual screenings. Region 7 stated that COVID is playing into the number of visits and time taking to schedule, follow through and complete, cancelling and rescheduling tie into the completion of the visits. Appreciate the ability to use virtual screens. All children with a CAPTA referral should go to Right Track regardless of case worker and the human service zone. Working on getting the Right Track brochure into 8 different translations. Ages & Stages, we have English and Spanish, to buy different translations and any dollars to be able to purchase those other languages; or maybe after the ASQ4 comes out. Missi will check into this and visit with Jackie. Get access to written information in a certain language would be helpful for the families also. TOPIC: STANDING NDICC AGENDA ITEMS Part C Budge Report - Tina shared summary of expenditure of Part C funds. 21 state fiscal year carried over (-$146,000) to 22. 10
Will add the general funds to the Experienced Parent column. Direct service fluctuates a lot up and down. Part C grant application is out for public comment through April 1. TOPIC: ARP FUNDS The Division ordered 14 OAEs and Tymps sets and received training last week. MSI provides support around the machines. Use funds towards translation of materials. There are some unallocated funds and Jackie asked members to send her an email if you have ideas/suggestions or questions for using the unallocated funds and they have to be expended by Sept 2023. Some suggestions were: a state early intervention brochure; Online referral system – community referrals ask for this. Online learning management system for the field and BECEP will be the pilot region and provide feedback for everyone. TOPIC: COMMITTEE REPORTS There were no committee reports. 11
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