IMPACT REPORT 2017 - EUROPEAN UNION OF THE DEAF
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02 ACKNOWLEDGEMENTS EUD would like to thank the European The EUD interns Gianluca Grioli, Bernadette Commission for funding this 2017 Impact Auersperg and Valeria Giura, along with all Report under the REC Work Programme. members of staff contributed to this up-to- Without their substantial financial date report with photos, texts and signed contributions, the publication of this report input. would not have been possible. Our member associations are at the heart of The support of the EUD Board and President our work and we thank them for assisting and have been of invaluable help to create an co-operating with us throughout the year. accurate and up-to-date account of the EUD activities in 2017: The European Disability Forum (EDF), our European disability umbrella organisation, Board 2014 - 2017: has been a great partner in all our work, President . . . . . . . . . . . Dr Markku Jokinen informing us and collaborating with our Vice-President . . . . . Dr Humberto Insolera board and staff via email and in person, in and Board Member . . . . . Louise “Lolo” Danielsson outside of Brussels. Board Member . . . . . Alfredo Gómez Fernández Board Member . . . . . Dr Gergely Tapolczai In support of its daily work, EUD has been in contact with a large number of Members of Board 2017 - 2021: the European Parliament (MEPs) and other President . . . . . . . . . . . Dr Markku Jokinen EU policymakers and aspires to continue this Vice-President . . . . . Dr Gergely Tapolczai fruitful co-operation in the coming years. Board Member . . . . . Louise “Lolo” Danielsson Board Member . . . . . Daniel Büter Board Member . . . . . Sofia Isari Dr Markku Jokinen Dr Gergely Tapolczai Louise “Lolo” Danielsson Sofia Isari Daniel Büter EUD IMPACT REPORT 2017
03 FOREWORD BY EUD PRESIDENT My mandate as president came to an end considered, and the Act looked positive. this year along with the other four board However, the European Parliament made members. We held board elections in many compromises that weakened the Valletta, Malta wherein I was re-elected as European Accessibility Act for not only our the President of EUD by our members. I am members, but for all persons with disabilities humbled and honoured to continue my work across the EU. Yet, we must remain positive for sign language users across the Europe. We about the proposed EAA, although we believe were saddened to see Dr Humberto Insolera there is much room for future amendments, and Alfredo Gómez Fernández finish their which we will continue to strive for. mandate, but are happy to welcome Daniel Büter (Germany) and Sofia Isari (Greece) as Putting the EAA aside, another main part of our new board members. We wish our two our work this year was the topic of education new board members the best of luck for their for deaf learners. We have released a coming term! position paper that has been voted on, and adopted by the official delegates of our EUD has once again recruited another National Associations of the Deaf (NADs). staff member, a policy assistant, Martyna The position paper focused on the UNCRPD Balčiūnaitė (Lithuania) to support Katja Committee’s General Comment No 4 on the Reuter, our Policy Officer. Right to Inclusive Education. This position could not have been published at a better There are two inspiring deaf and sign time, as the fourth book of the UNCRPD series language users who achieved great things this also focused on Article 24: Education and year, the first being MEP Helga Stevens, who was also published this year. It is 260 pages was nominated as one of the candidates for long, containing articles written by several the Presidency of the European Parliament. reputable authors, edited by our Policy The second was Dr Humberto Insolera, who Officer, Katja Reuter. It is available to be was elected to the Executive Committee of purchased online and on our website. the European Disability Forum (EDF). We are encouraged to see such amazing work and we Within the EUD’s working groups, we have hope to see more inspiring deaf individuals made some changes to keep up with current becoming role models and leaders. affairs, for instance, there is now a new working group focusing on Gender Equality. Focusing on our work for this year, there were several changes within our organisational I would like to finish my foreword by structure, including mentioned staff changes. announcing that EUD has been given the However, it did not end there, in our lobbying status of Special consultative with the United work we faced tricky situations, particularly Nations, which is a remarkable achievement. with regards to the European Accessibility We are very honoured to be one of the few Act (EAA). In the initial proposal given by NGOs around the world to have been given the European Commission, we were pleased this special status. to see that Deaf sign language users were Dr Markku Jokinen EUD President EUD IMPACT REPORT 2017
04 EUD INTRODUCTION EUROPEAN UNION Based in Brussels, Belgium, EUD is a not-for- with its member NADs. EUD also has participatory profit European non-governmental organisation status with the Council of Europe (CoE). OF THE DEAF (ENGO) comprising National Associations of the Deaf (NADs). It is the only supranational Furthermore, EUD is a full member of organisation representing deaf sign language the European Disability Forum (EDF), the users at European level and is one of the few umbrella organisation of Disabled People’s ENGOs representing associations in all 28 EU Organisations (DPOs) in Europe and has a Member States, including Iceland, Norway, Memorandum of Understanding (MoU) with and Switzerland. EU acceding, candidate and the World Federation of the Deaf (WFD) to potential member countries such as Serbia, can tackle issues of global importance. EUD also choose to become affiliated members with the has signed MoUs with both the European option to become full members as soon as they Forum of Sign Language Interpreters (efsli), the officially enter the EU. European Union of the Deaf Youth (EUDY), the European Deaf Sports Organisation (EDSO) and Aiming to establish and maintain EU level the European Deafblind Union (EDbU). Since dialogue with the European Union institutions 2017, it has Special consultative status with the and officials in consultation and co-operation United Nations. MISSION STATEMENT It is the core mission of EUD to promote, advance These key values are also mirrored in the and protect the rights of and opportunities for daily work of its Brussels headquarters. The deaf people (including sign language users) in office provides a fully accessible signing the European Union to ensure they can become environment with international staff from full citizens in their own right. many different countries across the EU. Most staff are deaf sign language users and all To achieve equality in both public and private hearing staff must know or learn one national life for deaf people, EUD has laid out three sign language as well as International Sign. main long-term objectives: Gender equality is also taken into account in all employment policies and when organising Recognition of the right to use an events and speakers. 1 indigenous sign language; Empowerment through 2 communication and information; and 3 Equality in education and employment. SIGN LANGUAGES Inherent to the work of EUD is the belief that equal education, information or to a fair the right to sign language is a basic Human trial. Without early access to sign language AS A HUMAN RIGHT Right. Sign language users, similarly with programmes and/or an educational system national minorities, are in need of specific that fosters the acquisition of the national targeted and coherent protection regarding and/or regional sign language(s) (and the their language and all human rights. National national written language), deaf children will and/or regional sign languages are the not be able to enjoy their basic human rights mother tongues of deaf sign language users as children or later in their adult life. across the EU and the world. EUD therefore advocates the right to sign The right to sign language in itself is a language as an essential prerequisite to human right, but access to sign language ensure full and equal citizenship for all deaf is also essential for the fulfilment of other people. basic human rights, such as the right to EUD IMPACT REPORT 2017
05 EUD INITIATIVES EUD regularly plans and carries out campaigns, to the wider hearing society and key European workshops and other pan-European events to and national policy-makers. reach out to the deaf community, in addition The EUD General Assembly took place in The delegates at the General Assembly GENERAL ASSEMBLY Valletta, Malta on the 20th and 21st of May welcomed the new board and witnessed AND EUD BOARD ELECTIONS, 2017. We also had workshops focusing on the departure of Alfredo Gómez Fernández Gender Equality and the EUD Membership and Dr Humberto Insolera after their 4-year VALLETTA, MALTA fees, which were moderated by Louise term. We thank them for their contribution to Danielsson, Berglind Stefánsdóttir and Dr achieving the goals of EUD. Gergely Tapolczai respectively. The hot topic of the General Assembly was the Furthermore, EUD board elections took place. membership fees. During the debate, many As there were only five candidates, the voting points were raised. After the debate was process was simplified. The delegates voted concluded, it was voted that the membership and approved all the candidates as follows: fee will increase by 5%, however the board will have the authority to discuss with NADs President . . . . . . . . . . . Dr Markku Jokinen who are facing financial difficulties on a case Vice-President . . . . . Dr Gergely Tapolczai by case basis. Board Member . . . . . Louise Danielsson Board Member . . . . . Daniel Büter Board Member . . . . . Sofia Isari The new EUD board 2017-2021, Valetta, Malta EUD Election Results, Valletta, Malta EUD IMPACT REPORT 2017
06 EUD INITIATIVES BOARD MEETINGS In 2017, the four quarterly board meetings co-operation of Deaf communities, as these of EUD took place in Rovaniemi, Finland; meetings, along with the General Assembly, Valletta, Malta; Brussels, Belgium and are the cornerstones of EUD’s democratic Budapest, Hungary. The board meetings structure. play an important role in the European-wide 1. Rovaniemi, Finland On the 3rd and 4th of February, EUD had their EUD board elections. Moreover, staff and first board meeting in 2017, which took place board discussed EUD’s policy and media in Rovaniemi, Finland. plans for 2017, recent development in EUD’s ongoing and new projects, for example During the meeting, board and staff planned emergency service accessibility, employment the upcoming general assembly in May, of deaf persons as well as other advocacy and including the workshops, seminar and the research work that EUD has been undertaking in 2017 on the topic of deaf education. EUD Board Meeting, Rovaniemi, Finland 2. Valletta, Malta The second board meeting took place as part for the board to reflect and ensure a smooth of the General Assembly in May. As it was transition for the new board. The focus of the the last meeting for the 2013- 2017 EUD board meeting was the implementation of the Board members, it was a good opportunity 2017 work programme. It also involved final preparations for the General Assembly. Steven Mulvaney, President, Maltese Association of the Deaf EUD IMPACT REPORT 2017
07 3. Brussels, Belgium The third board meeting of the year 2017 Accessibility Act and the UNCRPD publication brought together the new board for the on Article 24: Education. Furthermore, other first time. It took place in EUD’s office in topics linked to EUD’s 4-year programme Brussels over two days. The EUD Board proposal prior to the European Commission’s discussed important issues such as updates approval were addressed. on the adoption process of the European EUD Board Meeting, Brussels, Belgium 4. Budapest, Hungary The fourth board meeting of 2017 took meeting on behalf of the EUD staff, discussing place in Budapest, Hungary to coincide with activities of 2017 and the remaining work that the 3rd International Conference of the needed to be finished to be in full compliance World Federation of the Deaf. EUD Executive with EUD’s work programme for 2017. director Mark Wheatley attended the board Róbert Ormódi Director of Hungarian Association of the Deaf, Budapest, Hungary EUD IMPACT REPORT 2017
08 EUD INITIATIVES MEMBER WORKSHOPS As part of EUD’s commitment to building in a number of areas. These events are open the capacity of its members, the European to member association staff and boards, deaf community in general as well as regional representatives or other interested associated organisations, EUD regularly parties from the wider deaf community, organises trainings, seminars and workshops professionals and political stakeholders. Seminar, Seminar, Rovaniemi, Finland Valletta, Malta The Finnish Association of the Deaf organised The European Pillar of Social Rights seminar, a seminar, in in which the board and staff organised by the European Union of the participated and gave presentations. Up Deaf and Deaf People Association of Malta to 70 Members of the deaf community in was very successful with an attendance Rovaniemi and its surroundings as well as the of over 100 participants. Various experts President of the Finnish deaf association were gave presentations focusing on different present to follow presentations on EUD’s aspects of European social policy from a deaf work, inclusive education, employment, perspective, covering topics such as sign sign language recognition in the EU and the language recognition, political participation, UNCRPD and the rights that it confers to employment, interpreting and refugees persons with disabilities, including to deaf in Europe. We would like to share our people. Furthermore, it gave the board and appreciation and thanks to the Deaf People staff the opportunity to have direct animated Association of Malta and all their work to exchange with the members of the Finnish make this a successful event for us all. deaf community about their priorities, challenges and opportunities with regards to Seminar in Rovaniemi, accessibility and equal rights in all areas of Finland life. Seminar, Ghent, Belgium The EUD Board members gave a seminar to introduce EUD’s work to the Flemish Deaf community. The turnout was approximately 50 people. EUD’s interactive presentation explained EUD’s structure, its members, as well as its vision to achieve equality in public and private life for Deaf sign language users. There was a debate after the presentation during which all board members gave specific examples from their home countries with regards to education and employment. The Flemish Deaf community were given many opportunities to engage in the debate. We would like to express our appreciation and thanks for the hospitality from Fevlado. From left to right: Dr Markku Jokinen, Dr Humberto Insolera, Alistair de Gaetano, Hons. Dr Justyne Caruana, Steven Mulvaney, Helga Stevens MEP, Mark Wheatley, Oliver Scicluna EUD IMPACT REPORT 2017
09 There are three Working Groups at EUD which WORKING GROUPS focus on current issues of importance or topics that the General Assembly decides are a priority: Update on the Gender Equality Working Group The Gender Equality working group was and MEP Soraya Post on “Ending Forced recently established. Its coordinator, EUD Sterilisation of Women and Girls With board member, Lolo Danielsson, met a group Disabilities” at the European Parliament on of deaf women interested in working on the 5th of December 2017. She used the these topics during a World Federation of opportunity to present personal accounts of the Deaf conference in Budapest, Hungary to forced sterilisation of deaf women that the discuss advocacy topics of interest related to working group had collected in preparation gender equality as well as future activities in for this intervention. this regard. Lolo Danielsson also made an intervention on behalf of the working group and of deaf women across Europe during a public hearing organised by the European Disability Forum Press statement, Louise “Lolo” Danielsson, EUD Board member Update on the Deaf Lawyers Working Group The Deaf Lawyers Group was actively workshop on the Membership fees during involved in researching and preparing the EUD General Assembly in Malta and one several proposals related to the increase of the proposals was adopted by the EUD of the EUD membership fees. The results of membership. these discussions were presented during the Update on the ICT and Accesibilitiy Working Group At the EUD board meeting in Budapest, our worked on building up further networks, e.g. new board member Daniel Büter took over with experts in these fields. Finally, plans the leadership of this working group. In order have been established for recruiting new to follow up on on-going issues in this area as members to the working group to work on well as prepare new working group activities a variety of topics via email and webinars. for 2018, he attended a variety of lectures Current plans involve activities around on- on communication accessibility during the going accessibility related draft legislation, 3rd International Conference of the World such as the European Accessibility Act, the Federation of the Deaf, held in Budapest Audio-Visual Media Service directive and the on the 8th until the 10th of November European Electronic Communications Code as 2018, e.g. video relay service, new arising well as TV programmes for deaf sign language technologies with regards to sign language users, video relay services, the accessibility of interpretation videos, etc. Furthermore, he the European elections 2019, etc. EUD IMPACT REPORT 2017
10 EUD INITIATIVES BOARD MEMBER ACTIVITES Throughout the year, EUD board members among conference participants about EUD’s participated as speakers in a variety of activities and to discuss other topic areas, events across Europe to raise awareness such as education, from a deaf perspective. Flemish Deaf Seniors, Ghent, Belgium Dr Markku Jokinen attended the Flemish deaf and interpreter provision as well as many seniors conference. This was an incredibly other aspects crucial for social inclusion. important event considering that there is a growing population of senior citizens in De Gelderhorst from the Netherlands is Europe as well as in the deaf community. just one example of a service provider During an exchange, this issue was addressed who showcased examples of their services with regards to Europe in general, in the deaf during this conference to demonstrate their community and particularly in Flanders. The capabilities and services. It was fantastic to discussion was animated, as there was a see the Flemish Deaf community representing strong motivation from the participants to themselves, bringing their queries directly to improve living standards, built environments the government through a group of ministry representatives present at the event, who took notes on the current situation to improve the quality of life of these senior citizens. The discussion was very positive and we hope that in the future provisions and standards will improve not only in Flanders, but across Europe. Dr Markku Jokinen EUD President “Full Inclusion: With Sign Language” conference, New Dehli, India The Indian National Association of the Deaf International Week of the Deaf. EUD Vice- organised a conference on “Full Inclusion: President Dr Gergely Tapolczai attended with Sign Language” in Vishwa Yuvak this event and gave two lectures outlining Kendra, Chanakyapuri, New Delhi on the the Hungarian situation with regards to its 21st of September 2017 to celebrate the sign language law. Furthermore, he informed the audience about EUD’s work and had the opportunity to further discuss this in personal conversations with participants. “Full Inclusion: With Sign Language” conference, New Dehli, India EUD IMPACT REPORT 2017
11 World Deaf Day, Padova, Italy EUD Vice-President Dr Gergely Tapolczai the importance of recognising sign language attended the World Deaf Day that took place and advocated for the recognition of Italian in Padova, Italy from the 28th to the 30th of Sign Language (LIS). We were glad to see September. Its objective was to celebrate the that an Italian senator, who is a strong 85th anniversary of the creation of the Italian supporter of the recognition of LIS attended Association of the Deaf. Within this event, a the conference. The next day of the event, conference took place during which a variety a demonstration for sign language and of informative lectures were given. A number particularly LIS took place, which allowed of examples of positive policies with regards the organisers to draw attention to the to deafness were presented, including in deaf community and LIS as well as the the area of education and employment. Dr responsibility of the Italian Parliament to Tapolczai gave a presentation, highlighting move forward with the recognition bill. Dr Gergely Tapolczai EUD Vice-President SINOSZ 110 years Anniversary, Budapest, Hungary On the 11th of November, Executive Director with a theatrical recreation by deaf children of Mark Wheatley as well as board members the first meeting of the formation of SINOSZ. Sofia Isari, Lolo Danielsson and Daniel The Hungarian president attended the event Büter attended the event organised by the as well. It was a great networking opportunity Hungarian National Association of the Deaf with the deaf community of Hungary who had to celebrate its 110th anniversary. It opened gathered for this event. SINOSZ 110 Anniversary, Budapest, Hungary EUD IMPACT REPORT 2017
12 EUD INITIATIVES INTERNSHIP PROGRAMME EUD is one of the few European-level and their knowledge of European policy, media organisations that offer a regular remunerated production and administrative work. EUD’s internship programme. It is also the only interns have come from many different EU internship that provides a full signing countries to support and inspire the local deaf environment, enabling young sign language community and younger deaf people. users to improve their International Sign skills Gianluca Grioli Gianluca Grioli from Italy was the first intern joining us in Spring of 2017. He stayed with us to support the preparations of the General Assembly as well as EUD’s media production for this event. Bernadette Auersperg Bernadette Auersperg from Austria was the second intern joining us in Autumn of 2017. She worked with our In-House sign language interpreter and Administrative Officer, Romy O’Callaghan, on administrative and financial work. Valeria Giura Valeria Giura from Italy was our third intern in 2017, using funding she was able to obtain from the Italian government to join EUD for the internship. It enabled her to do research task that the EUD membership had voiced interest in. Concretely, she has been researching the right to disability benefits and sign language interpretation provision across the EU. She will continue this research work in January 2018. EUD IMPACT REPORT 2017
13 EUD is maintaining its determination to videos with selected feature(s) of: English MEDIA produce high quality and fully accessible subtitles; and/or a voiceover in English; and/ information to its members and other or a summary of the content of the video in interested parties to increase the visibility English text on the same page. The format of of its output, especially for the political dissemination is aimed to be fully accessible stakeholders and the wider deaf community. for all. It brings to life the slogan of the Dissemination of information generally takes disability movement, which is “Nothing about the form of International Sign Language us, without us”. The EUD website that was launched in 2015, a way to allow deaf citizens to contact EUD WEBSITE it allows us to release a variety of catalogued with video messages in sign language. The information, also enabling us to be more website’s new design already attracted more innovative with regards to accessibility, people after its decline in the past few years providing press statements in International due the emerging social media channels Sign and English. Furthermore, more video- within the EUD. friendly features were added, for instance Statistics There were 39,500 hits on the videos embedded on our website in 2017. We have increased the 48,500 ratings to this year. Stratgic Dialogue Meeting on the European Semester EUD IMPACT REPORT 2017
14 EUD INITIATIVES SOCIAL MEDIA Although the EUD website are valuable and time. EUD has grown to one of the most visible beneficial tools in connecting with Deaf people organisations at European level, surpassing many in Europe and around the world, EUD uses other equally sized associations in geographic social media to disseminate content in real and quantitative reach. Highlights Facebook The official EUD Facebook page is still EUD - The European Union of the Deaf December 6, 2017 53.398 Friends Like EUD - The European Union of the Deaf Good morning! We are in the hemicycle of the attracting new Facebook users and we are @EuropeanParliament for the 4th European Parliament of Persons with Disabilities! You can watch the conference live proud to say that we have increased our ‘likes’ with international sign interpretation on: https://buff.ly/2AsspsH from 47,000 to 53,000. The information that #EPdisability is being disseminated on our website is also EUD - The European Union of the Deaf May 20, 2017 shared on the Facebook page, along with The EUD Election took place but there were only five candidates additional photo albums of past events. The so the voting process was simplified. The delegates voted and approved all the candidates as follows: page is targeted at the general public and President- Dr Markku Jokinen Vice President – Dr Gergely Tapolzai its exposure illustrates our lobbying work in Board Members- Louise Danielsson, Sofia Issari and Daniel Büter addition to various events EUD attends and subjects it addresses. Facebook Infographic December 31, 2017 53,000 202 LIKES POSTS Twitter Twitter allows us to instantly inform about the daily activities of EUD Board members and staff. Many of the events that took place this year were strongly disseminated via Twitter. The NADs were especially proactive with regards to social media while attending the EUD General Assembly in Valletta, Malta, which made it the highlight on our Twitter account. EUD IMPACT REPORT 2017
15 Instagram The introduction of Instagram began back in September 2013. It is a distinctive way to capture political life through an artistic lens. This is a small, but growing niche audience for us. We have 1,147 followers this year. EUD IMPACT REPORT 2017
16 EUD INITIATIVES NEXES PROJECT In May 2015, the grant agreement for NEXES whose significant contributions will support was signed between the European Commission Europe’s standardisation effort on emergency and the NEXES partners, delivering almost 6 services. 17 organisations from 10 different million euro to the research and development countries participate in the project, including of next generation emergency services emergency physicians associations, police that integrate IP-based communication prefectures, telecommunication and technical technologies and interoperability. Its aim is to service companies, national ministries, a ensure that emergency services will become geolocalisation service company, university fully accessible for people of all abilities, institutes working in these fields and a including deaf persons across Europe. communication service provider for deaf and hard of hearing. Throughout the project, EUD The NEXES Consortium presents a strong multi- lends its expertise in the area of accessibility disciplinary and complementary collective, for the deaf as one of the consortium members, with solid competences and experience generally represented by EUD project officer developing research and innovation projects Frankie Picron. Nexes Review Meeting, Milan, Italy The first NEXES meeting of the year marked During this meeting, the NEXES project the halfway point of the 3 years-term of the partners had the opportunity to discuss with NEXES project. It took place in January at the two officials from the European Commission office of AREU in Milan, one of the NEXES about their review of the quality of work project partners, which is a company working that the NEXES consortium had done so far, on regional emergency services. providing feedback to ensure that the project does not deviate from its main goals. NEXES Project partners, Milan, Italy EUD IMPACT REPORT 2017
17 Nexes Testing Pilot, Ljubljana, Solvenia On the 11th of April 2017, in the framework enhanced location information, video calls, chat of a testing exercise in Ljubljana, Slovenia, messaging functionalities and of the exchange the consortium presented the NEXES System of enriched caller information, including and its capabilities to ensure that the personal data, video and photographs the caller emergency services provide efficient and is willing to share. effective support to the users. They used the opportunity to demonstrate the use of The outcome of this meeting was positive communication capabilities between citizens and showed gaps in technology, information and emergency services and to identify deficiencies and regulations amongst the possibilities of improvement of the NEXES different emergency response organisation and system and Apps. During the pilot, several good practices and future trends to be followed. storylines based on natural disasters were acted out. The participants, including the Slovenian deaf association, interacted and highlighted the benefits and challenges of the Participants in the testing exercise, Ljubljana, Solvenia NEXES Project Meeting, Bucharest, Romania During this event held in Bucharest on the services in Romania and representatives of the 16th and 17th of November, project partners national civil society and security industry. Our demonstrated through the pilot the full extent project officer Frankie Picron presented the of the new communication and information accessibility aspects of the NEXES system. After exchange capabilities of the NEXES system, this event, NEXES partners took the opportunity upon the conclusion of the NEXES action’s to have a milestone meeting to prepare for the development phase. This pilot was an crucial last months of the project which will end important activity of the NEXES project. Two in April 2018. workshops took place, with an audience composed of stakeholders in the establishment, management and operation of emergency Pilot testing, Bucharest, Romania EUD IMPACT REPORT 2017
18 EUD INITIATIVES DESIGNS PROJECT The newest project that EUD is involved in is best practices across Europe to facilitate greater “DESIGNS” which aims to improve labour market participation of Deaf sign language users in inclusion of deaf persons. Apart from financial employment. autonomy, work and paid employment serves to develop a sense of belonging with positive This will be achieved by: mental health benefits and identification Creating a training module for Deaf with the wider community. However, Deaf 1 job seeking graduates from higher people throughout the world continue to education who are reported to be face barriers in various areas of life, including underemployed and who have a lower employment. At the same time, research and propensity to get a job; data on unemployment is underreported and inaccurate. For instance, “deafness and hearing Creating a training module for employers 2 loss” is often used to report data, and sign to increase their awareness of deaf job language users who are Deaf are not sufficiently applicants and job candidates to so that researched. Deaf job applicants have a better chance in succeeding in employment; DESIGNS brings together partners from 4 EU countries, who are renowned experts in the Creating a training module for sign 3 fields of Employment, Education and Training, language interpreters as part of their Sign Language Interpreting and Training, and continuous professional development Deaf community advocacy to work on these to understand the nature of interpreting issues. The overall aim of the project is to create in education and employment (pre- VET and CPD training resources and exchange employment/during employment) settings. EUD IMPACT REPORT 2017
19 DESIGNS Project Meeting, Dublin, Ireland On the 11th and 12th of January, the first at the Town Hall Session at Deaf Village meeting of the DESIGN’s project took place Ireland. 10 presentations by the expert group in Dublin. It was organised by the chair of were given and the event was live-streamed the DESIGNS project, Haaris Sheikh from to more than 16,000 international viewers. Interesource Group Limited. The meeting was research work that EUD has been undertaking followed by the official launch of the project in 2017 on the topic of deaf education. DESIGNS Project Partners, Dublin, Ireland DESIGNS Workshop, Valletta, Malta During this event that took place of the about the project and the upcoming survey. EUD General Assembly (GA), the DESIGNS Frankie Picron then approached delegates project was presented to the EUD member to provide more specific information to associations. Furthermore, we took the distribute the survey. Following the workshop, opportunity to ask them to participate in a he analysed the received information and survey of 11 questions targeted to EUD’s followed up with our national and regional member associations. Prof Lorraine Leeson members to receive more detailed feedback (a member of the consortium) gave a from the survey. The received data was then presentation about, informing participants send to the DESIGNS partners. DESIGNS Project Meeting, Edinburgh, Scotland On the 16th and 17th of June, the second Picron and Executive Director Mark Wheatley consortium meeting took place at Heriot- summarised the data collected from the Watt University in Edinburgh, which is one of DESIGNS Deaf Employment project in the the project partners. Project officer Frankie above-mentioned Europe-wide survey. DESIGNS Partners, Edinburgh, Scotland EUD IMPACT REPORT 2017
20 EUD INITIATIVES SIGN TEACH PROJECT The SignTeach project is a three-year project the Common European Framework Reference that is co-funded by the EU Erasmus+ for sign languages, meta-linguistics, ICT and programme that finished in 2017 after running entrepreneurial skills, as well as interviews for three years. Its objective was to develop, with new and experienced teachers and their implement and evaluate an Open Educational learners. Resource (OER) for sign language teachers and their trainers in EU member states. The OER A bilingual online SignTeach Glossary with includes information for new and experienced didactic and linguistic terms explained in sign language teachers about a variety of International Sign and English text will aim at topics, such as didactics, class management, increasing the accessibility of the information on the website for deaf sign language users. Meeting, Siena, Italy The last meeting of the SignTeach project to finalise the valuable book named “Sign took place in Siena, Italy. All the partners Language Teaching in Europe – Report & of the consortium came together to discuss Recommendations”, one of the projects’ the last tasks to be completed. Concretely, outputs, as well as topics of a more managerial participants discussed the steps required nature. SignTeach Project Partners, Siena, Italy EUD IMPACT REPORT 2017
21 POLICY The United Nations Convention on UNCRPD the Rights of Persons with Disabilities UNCRPD The EU’s ratification of the United Nations implications have been widely discussed at an Convention on the Rights of Persons with institutional level. As a result, it has become Disabilities (UNCRPD) in 2010 means that evident that this is a new and complex area there is now an obligation to implement the where international, European and national enshrined rights in a timely manner. Its legal political responsibilities overlap. UNCRPD review sessions in Geneva, Switzerland EUD, as the only European-level NGO of countries presented how they have been representing deaf people and sign language working towards a full implementation of the users follows the UNCRPD review sessions of UNCRPD, and the committee pointed out its its members closely and provides information concerns about several shortcomings. to its members. The aim is to support and encourage our member associations to EUD was particularly pleased to see participate in the review process and to active engagement from their member provide up-to-date information, whilst organisation, the British Deaf Association simultaneously training the whole European (BDA) during the review of the United deaf community. EUD supports national Kingdom. Representatives from the BDA deaf associations of the countries that are travelled to Geneva as part of a delegation under review by the CRPD Committee and of the British Deaf and Disabled People’s we broadcast information through various Organisations (DDPOs) to highlight to the communication channels, such as our social UNCRPD committee that the deaf perspective media accounts and our website, to ensure must not be overlooked. The committee’s that the deaf perspective is mainstreamed recommendation to the UK government is throughout the review. EUD works in close to take steps to ensure the “full and equal co-operation with the World Federation participation” of deaf people on juries, of the Deaf (WFD) to provide information allocate funding for sign language courses to and to ensure that the accessibility of ensure full inclusion in family life/education/ each Committee session is guaranteed and work, and develop compulsory standards for maintained. securing access to information from public services and authorities. The chairman of Between the 14th and 30th of August, EUD the BDA Dr Terry Riley stated that he was followed the 18th UNCRPD session online glad to see that the committee has expressly to observe the committee’s review of Latvia, recommended that the UK government Luxembourg and the United Kingdom of create legislation protecting the language Great Britain and Northern Ireland. We closely rights of deaf people, and that so many of followed the committee’s assessment of the the committee’s remarks were related to this progress in implementing the Convention and important issue. supported Latvia, Luxembourg and the British and Northern Irish deaf communities through social media. A wide variety of issues were discussed during the review sessions. The delegations UNCRPD Review Session, Geneva, Switzerland EUD IMPACT REPORT 2017
22 POLICY Position paper on the UNCRPD committee’s General Comment No 4 on the right to inclusive education In the first quarter of 2017, EUD worked on its that, from the perspective of various deaf-led position paper on the UNCRPD committee’s organisations and academic researchers, are General Comment No 4 on the right to required to ensure that deaf children have inclusive education that had been published a meaningful, equitable and participatory by the UN in August 2016. learning experience, are socially included and are academically successful in inclusive While EUD had provided input to the General education. Therefore, our objective was Comment through a joint submission with to add detail on how to provide adequate the World Federation of the Deaf (WFD), the inclusive education for deaf learners. This World Federation of the Deaf Youth Section was achieved by highlighting positive aspects (WFDYS) and the European Union of the of the General Comment, aspects to be Deaf Youth (EUDY). We felt that the General improved upon and recommendations with Comment failed to include several elements regards to the deaf perspective on the topic of inclusive education. The draft position paper was provided to EUD’s national member associations in sign language and in writing ahead of the Annual General Assembly in May and was adopted during this meeting. David Hay EUD Communication & Media Officer Special consultative status with the United Nations We are pleased to announce that in 2017, we we will receive the provisional agenda of have been granted special consultative status the Economic and Social Council (ECOSOC), with the United Nations. From now on, we can which we may attend and additionally, we put forward our input at public meetings at now have the capability to submit our written the United Nations international conference statements and make presentations to and their preparatory bodies. Each year, governments represented at this council. EUD is one of the few ENGOs that has been granted consultative status with the United Nations. Mark Wheatley EUD Executive Director EUD IMPACT REPORT 2017
23 UNCRPD Publication series: Article 24: Education EUD, has been working over the last few Professionals from various disciplines years on a publication series on the topic have contributed to this volume, including of UNCRPD implementation from a deaf EUD Executive Director Mark Wheatley perspective, with each volume addressing a and the editor herself. In general, author’s different article of the Convention, exploring backgrounds span from academia and it from both an academic and best practice NGO work to education provision and sign perspective, and at all levels from European language interpretation. They explore how to regional. The aim of the series is to provide learning environments must be designed to possible interpretations of the UNCRPD be accessible for deaf learners, especially sign with regards to its implementation for deaf language users, to maximise their academic citizens, including deaf sign language users and social development, as enshrined in and hard of hearing people. Article 24. Thus, this book aims to support its implementation for deaf learners in the best In December 2017, EUD published its newest way possible. volume of this series addressing Article 24 on education, edited by EUD Policy Officer The book launch took place on the 4th Katja Reuter. The topic is explored from December during the European Commission various angles, including the importance of Day of Persons with Disabilities. We used legal foundations for bilingual education this opportunity to present the book to for deaf learners in Europe, interpreter use Commissioner Thyssen and provide her with in inclusive education, the need for early some information about education of deaf sign language access, and the accessibility learners in Europe. of teacher training. It also presents good practice examples, highlighting the diversity of settings in Europe that provide accessible bilingual quality education. UNCRPD Publication series: Article 24: Education. Edited by Katja Reuter From left to right: Katja Reuter, EUD Policy Officer, Marianne Thyssen, European Commissioner and Dr Gergely Tapolczai, EUD Vice President EUD IMPACT REPORT 2017
24 POLICY EU POLICY The European Accessibility Act INITIATIVES AND EVENTS Througout the year, EUD closely followed services in the internal market, making them the legislative procedure of the European accessible to persons with disabilities and Accessibility Act (EAA), which aims at persons with functional limitations. Below is providing a common EU definition of, and the timeline of the steps in the adoption of implementation framework for, accessibility the EAA that EUD has actively been involved requirements for a number of products and in through advocacy actions: 1. The EMPL committee adopted its report on the EAA In the course of the legislative procedure for was drafted by MEP Ádám Kósa who had the EAA, different committees of the European been chosen as the rapporteur within the Parliament gave their opinions in the form of committee. Previous to the its adoption, EUD a report. The Employment Committee (EMPL) had submitted input to the draft amendments adopted its report on the EAA in April, which to the EMPL report and followed the adoption process very closely. From left to right: Dr Humberto Insolera, EDF Executive Committee and Dr Adam Kosa, Member of European Parliament 2. The IMCO Committee adopted its report on the EAA The European Parliament’s Internal Market favouring business demands over the Committee (IMCO Committee), which is rights of people, including persons with the committee that is responsible for disabilities, older people and all consumers. this file, adopted a disappointing report EUD believes that the report has watered on the Accessibility Act in May. EUD and down the European Commission’s original the European Disability Forum expressed proposal. The IMCO Committee rejected their concerns about the IMCO Committee almost all amendments on issues that the disability movement had proposed. In the final vote, the report was adopted by a narrow majority of IMCO’s members: 20 in favour, 17 abstentions, 0 against. This motivated EUD to campaign strongly for ambitious legislation on the accessibility of products and services in Europe. Mark Wheatley EUD Executive Director EUD IMPACT REPORT 2017
25 3. EUD interview’s various MEPs about the EAA In the framework of our advocacy campaign Løkkegaard explained how the EAA could for a strong EAA, Executive Director, Mark improve the life of persons with disabilities Wheatley visited the European Parliament in and provided examples of the concrete Brussels to interview Ádám Kósa MEP about changes that the EAA could bring. EUD’s the results of the IMCO vote in May and to Mark Wheatley reminded MEP Løkkegaard get his expert opinion regarding the Act’s that the European deaf community requires impact on the deaf community in Europe. MEP subtitles and sign language interpretation in Kósa explained the legislative procedure for media outlets and needs the EAA to contain adopting the European Accessibility Act and clear requirements for broadcasters to create its potential benefits for deaf persons. accessible TV based on obligations that will be established in the Audiovisual Media Moreover, EUD was given an exclusive Service (AVMS) directive. The full interviews opportunity to have an interview with the are available on our website. rapporteur of the European Accessibility Act before it was voted on in the European Parliament in Strasbourg. MEP Morten Morten Løkkegaard Member of European Parliament 4. Preparation of the plenary vote on the EAA EUD wrote their position on how the MEPs persons across the EU. This document was should vote to ensure that the EAA can disseminated to all the MEPs before the have a positive impact on the lives of deaf plenary vote took place. Romy O’Callaghan In-house sign language i nterpreter EUD IMPACT REPORT 2017
26 POLICY 5. Plenary vote on the European Accessibility Act On September 17th, EUD was present in import or distribute products and provide Strasbourg and followed a very important and services that fall within its scope. This plenary vote on the European Accessibility means that microenterprises will not have Act. EUD regrets that, for deaf Europeans, to make their products and services (such as the EAA missed out on a big opportunity for e-commerce and e-books) accessible. a more accessible Europe, as the Parliament decided to keep obligations with regards On a positive note, the report voted on by to audio visual obligations in the draft the plenary states that telephony services, Audiovisual Media Services Directive rather including emergency services, must provide than covering it in the EAA and applying at least one mode of operation that does not its functional requirements for making the require hearing, which is progress towards services accessible. The current draft of the accessibility of these services for deaf the AVMS Directive obliges Member States Europeans. to ensure their broadcasters increase the accessibility of media content, but there are EUD regrets that several crucial points were no concrete EU level obligations mentioned. left out. We will continue to collaborate Therefore, countries will move at their own with the European Disability Forum in the speed and can get away with doing very next stages of the process to advocate for little and continue to exclude deaf people making the Act stronger. This process will from accessing audio-visual media services, continue during the negotiations between without breaching their obligations under the the European Parliament, the Council of the AVMS Directive. Moreover, the EAA will not European Union (henceforth referred to as apply to microenterprises that manufacture, the Council) and the European Commission. 6. The Council of the European Union general approach In December, the Council adopted a general the EECC, while the EAA would describe, approach for their trilogue negotiations through its functional requirements as stated with the European Parliament and the in its Annex I, how these services must be European Commission. While we were very made accessible. If emergency services are glad to see that the negotiations on the EAA deleted from the European Accessibility have progressed further with the adoption Act, there is a risk that EU Member States of the general approach, EUD was very might transpose the EECC in a way that is disappointed to see that the Council involve incomplete or insufficient, as there are no plans to remove emergency services from concrete functional requirements providing the scope of the directive, intending to only information on how to make these services address them in the European Electronic accessible. Communications Code (EECC), a directive that is being discussed in the EU institutions at the EUD will work on further advocacy actions, moment. informing Member States about this development so that they can meet with their EUD strongly opposes this decision. Our government representatives to advocate to objective was for obligations with regards keep emergency services as part of the EAA. to emergency services to be covered in EUD IMPACT REPORT 2017
27 In May 2016, the European Commission the current version of the article leaves it up to THE AUDIO-VISUAL MEDIA proposed a directive aimed at revising the the broadcasters to develop these measures SERVICE DIRECTIVE REVISION audio-visual media services (AVMS) directive “in consultation with relevant stakeholders, from 2010. The objective of the revision is including media service providers and to adapt the former directive to new market organisations of persons with disabilities” realities. While the directive deals with many at national level. While we strongly support aspects regarding audiovisual media services, the inclusion of organisations of persons its article 7 on the topic of accessibility is with disabilities in the negotiations for the of major importance to the deaf community development of these measures, we regret in Europe. Indeed, the adoption of a strong that the committee has decided to not set directive will oblige the Member states concrete European level accessibility targets, to adopt new binding laws improving the favouring interests of the broadcasting situation of media accessibility in their industry over the interests of the disability country. community. EUD has been advocating for establishing concrete percentages by which In cooperation with the European Disability broadcasters would have to increase the Forum, EUD has undertaken advocacy work accessibility of their services in regular to improve this article, with the objective time intervals, potentially starting from a of including EU level obligations for Europe-wide percentage of accessibility broadcasters to make their audiovisual media to be reached after a certain deadline. services more accessible for deaf persons Furthermore, we were disappointed to see through the provision of subtitles and sign that the concrete access services in question, language interpretation for deaf and hard i.e. subtitles and sign language interpretation of hearing persons. However, we met a lot for deaf and hard of hearing persons and of resistance from industry representatives audio-description and spoken subtitles for as well as some political stakeholders and blind and visually impaired persons, have not experienced problems with regards to the been included in the binding part of the text, accessibility of negotiations regarding this but are only mentioned in the non-binding file. For instance, a feedback session on the text, weakening the future impact of the draft AVMS directive trilogue negotiations in the legislation. European Parliament was done behind closed doors, and EUD was denied their request to Finally, it was unfortunate that the members receive meeting documents. of the Committee voted to move directly to inter-institutional trilogue talks with the On the 10th of May 2017, the European Council and the European Commission, with a Parliament’s Committee on Culture and view to finalising the legislation on the basis Education (CULT committee) voted to amend of the committee amendments, rather than the European Commission proposal towards on the basis of a plenary vote. This deprived an updated directive. We appreciate that the EUD from further interacting with other MEPs committee has included an obligation for to introduce amendments for a plenary vote broadcasters to ensure that their services are to make the article on accessibility stronger. “made continuously and progressively more accessible to persons with disabilities”. This EUD is continuously working with the was a big step forward from the previous European Disability Forum to see what version of the article that only contained an further advocacy actions are still feasible encouragement for broadcasters to make with regards to trilogue negotiations, and their services accessible, which has proven how it is interconnected with the European insufficient to create real change. However, Accessibility Act. EUD IMPACT REPORT 2017
28 POLICY THE EUROPEAN ELECTRONIC EUD has been following the legislative that access for end-users with disabilities procedure regarding the adoption of the to emergency services is available through COMMUNICATIONS CODE European electronic communications code emergency communications and that this (EECC). access must be equivalent to that enjoyed by other end-users, through total conversation On the 14th of September 2016, the services or third-party relay services. Commission proposed a new European Furthermore, we were glad to see it stated electronic communications code which that end-users with disabilities must be able would overhaul the existing legislative to access emergency services on an equal framework for telecommunications, including basis with others, whilst travelling in another emergency services. The code has been Member State, where feasible, without any designed to take into account changes in pre-registration. We also appreciate that markets, consumer trends and technology, Member States must ensure that citizens are all of which have significantly changed since adequately informed about the existence 2009, when the framework was last amended. and use of the single European emergency EUD drafted amendments on article 102 on number ‘112’, as well as its accessibility emergency services that supported EDF in features, including accessible initiatives writing their amendments, to which EUD specifically targeting persons travelling also provided input to ensure that access to between Member States, and persons emergency services through interoperable with disabilities. The Parliament took the total conversation technologies and third- decision to enter into interinstitutional party-relay services is ensured. negotiations confirmed by plenary (Rule 69c) in October. The Council mandated the The Industry, Research and Energy (ITRE) Estonian Presidency to commence trilogue committee of the European Parliament voted negotiations on the code. EUD will closely on its report on the 2nd of October 2017. EUD follow the trilogue negotiations, particularly was glad to see that a paragraph had been with regards to its interconnectivity with the included obliging Member States to ensure European Accessibility Act. CONFERENCE ON THE On the 7th of February, EUD participated accident or a trauma, meaning that they have in a workshop organised by the European the potential to save numerous lives. He also EUROPEAN EMERGENCY Emergency Number Association (EENA) introduced the public to the NEXES project in NUMBER 112 AND THE on the European emergency number 112 which EUD is a partner. EUROPEAN ELECTRONIC and the Electronic Communications Code. COMMUNICATIONS CODE The workshop was organised close to the A number of speakers covered various topics, European 112 Day, which takes place on including new technological advances, the 11th of February every year, to raise such as advanced mobile location (AML). awareness of the European emergency AML is a technology that already exists in number and the on-going negotiations android smartphones. It allows the phone, regarding the directive. after an emergency call to 112 has been placed from this phone, to automatically EUD’s project officer, Frankie Picron, was send a text message with the coordinates one of the speakers during the event, of the caller to the emergency service. This presenting how to make emergency services would allow emergency services to locate a accessible for deaf and hard of hearing person in need a lot quicker, as the margin persons. He highlighted that fully accessible of error is significantly reduced compared multi-channel emergency services are not to current technology used. However, only only crucial for persons with disabilities, a few countries in Europe have created the including deaf and hard of hearing persons, possibility for their emergency services to but for everybody who could find themselves receive, analyse and use these text messages. without the capacity to hear or speak after an EUD IMPACT REPORT 2017
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