HPV Vaccine for boys new Hse board meets - Significant experience and expertise

 
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HPV Vaccine for boys new Hse board meets - Significant experience and expertise
Hea th
staff magazine of the IRISH HEALTH SERVICE                   vol. 14 | issue 19 | AUTUMN 2019

New HSE
board meets
                                             HPV vaccine
Significant                                     for boys
experience                                      New school programme
and expertise                                              is rolled out

  features                 general news        you section                      lifestyle
HPV Vaccine for boys new Hse board meets - Significant experience and expertise
Welcome tO the                                      Contents                                                                    

latest edition of                               You                                   Features
Health Matters                                  6     HPV vaccine                     22   Annual report
                                                      Boys included for first time         Achievements of 2018
In this edition we speak to Dublin mum
                                                8     Life story books                24   Long-term suites open
Amanda Kenny who explains why she
                                                      Helping dementia patients            Minister in Castlebar
is grateful that her son will be among
                                                10    Steps to Health                 25   START at the GAA
the first boys in Ireland to receive the
                                                      Another epic year                    Parents and children learning
HPV vaccine.
                                                12    New board meets                 26   Social media
   Now as a first year in secondary
                                                      Momentum for change                  Use it to engage your audience
school, Charlie will get the HPV
                                                13    Therapy dog                     27   Breastfeeding
vaccine to protect against HPV-related
                                                      Cody is a big hit                    Heavy investment
cancers in later life.
                                                14    Senan’s story                   28   Good infection practice
   By Charlie receiving the HPV vaccine,
                                                      Vaccines save lives                  Be picture perfect
he will also be protecting any partners
                                                16    Values in Action                29   Traumadoc
he might have in the future, protecting
                                                      We are growing                       New clinical proforma
others as well as himself from life-
                                                18    Living with lymphoedema         30   HIV Fast-track cities
threatening diseases.
                                                      New model of care                    Irish quartet sign up
   Dementia can take away so much
                                                19    Know Check Ask                  31   Cyber security
from a person but a new initiative at a
                                                      Medication awareness campaign        How to recognise suspicious emails
community care home in Galway has
                                                20    Home sharing scheme             32   Genio collaboration
given their residents back their own
                                                      Families open their homes            Reforming social services
‘life story’.
                                                                                      34   Dementia
   Maria Donnellan tells us about the
                                                                                           Making the most of technology
life story books which are created for
                                                                                      36   Mental health
each person with dementia living in the
                                                                                           Primary care level
Creagh Suite in St Brigid’s Hospital,
Ballinasloe, to discover more about
them, their lives, likes and dislikes,
relationships and interests. She explains
how it has promoted greater empathy
and understanding between them and the
staff that care for them.
   We also meet some of the families in
the north-west who have been opening
their homes for years to children and
adults with a disability as part of the
amazing Home Sharing Scheme. Helena
Ryan says that her guests have become
part of the family over the years and they
get as much from the scheme as the
family they provide respite for.
   If there’s anything you would like to see
included in the magazine or if you have
any other feedback, you can contact us at
healthmatters@hse.ie
   Thank you to all those who have sent
in contributions to this edition and I hope
you find plenty of interesting reading in it.

Joanne Weston
Joanne Weston,
Editor

This magazine is produced by the
HSE Communications Division
Publishers: Celtic Media Group
www.celticmediagroup.ie

Feedback: Send your feedback to
healthmatters@hse.ie

                         autumn 2019
HPV Vaccine for boys new Hse board meets - Significant experience and expertise
HEALTH MATTERS   AUTUMN 2019

37   Healthy Ireland plan
     Community Healthcare East
38   Open Disclosure
     Vital we get it right
39   World Patient Safety Day
     We must speak up
40   LGBT training
     HSE launches elearning course
41   Rainbow badges
     CAMHS initiative
42   Pension Improvement Programme
     Enhancing communication
43   Robotic gynaeocological surgery
     Fertility preserved
44   Brexit
     Get your department ready
45   Quality improvement

                                                 11
     Shared experience in Ethiopia
46   PCERS award
     ISO 9001 certification
48   Strategic plan
     PCERS lays outs aims for next three years
49   Data centre
     Move one year on

                                                      50                   55

                       30                                              71
                                                           2019 autumn health matters   
HPV Vaccine for boys new Hse board meets - Significant experience and expertise
Contents                                                                

                                 News
                                 50  Hand hygiene                           61 	Accessibility
                                     Train the trainer                      	Ward space changed
                                 50 	Ghana trip                             62 Mental health
                                     Team from Limerick travel              	Engagement forum
                                 51 Health Passport                         62 	Smoking
                                 	Equal access to care                          Mental health and recovery
                                 52 	End-of-life care                       63 	EGovernment awards
                                 	Award for Kerry hospital                      HBS shortlisted
                                 52 	PJ paralysis                           63 	Cessation service
                                 	Commentator visits                            Tallaght staff to benefit
                                 53 Maternity outreach                      64 	Future leaders
                                 	New service for Sligo                         51 complete course

    43
                                 53 Medical career days                     65 	NAS symposium
                                     Joint initiative                       	Critical care
                                 54 	Self-management support                66 	Abortion numbers
                                 	New directory                             	Figures travelling to UK fall
                                 54 	Oncology unit                          67 	Going tobacco-free
                                 	Cancer care for south west                	Personal experience
                                 55 	Family room                            68 	Pioneering service
                                 	Elderly and stroke patients benefit           psychosis intervention
                                 56 Midwifery conference                    69 	Cork boost
                                 	Ethical issues                            	Primary care centre opens
                                 57 	Online training                        70 	Final journeys
                                     Handling complaints                        Training for staff
                                 58 	Patient booklets                       71 Mind Monsters
                                 	Enhancing experiences                     	Support for teens and young adults
                                 59 	Future health summit                   71 Text service
                                     HBS play pivotal role                  	Crisis service
                                 60 Midwife day                             72 	Prestigious award
                                     Lourdes staff celebrate                    Limerick cancer nurse honoured
                                 60 	Surfer’s ear                           73 	New guidelines

    33                           	Advice for sea swimmers                   	Dysphagia

    26                                40
   health matters autumn 2019
HPV Vaccine for boys new Hse board meets - Significant experience and expertise
HEALTH MATTERS   spring 2019   online

                                                       Sites we like        www. b4udecide.ie/

                     19                                                      www. myoptions.ie

Lifestyle
74  Creative arts
    Hospital partners with charity
75 	Swim markers
    Healthy Ireland initiative
76 Borrowbox
    Your always-open library
77 Celebration of art in community
	EVE talent showcased
78 Cork Summer Show                                                   www. hospicefoundation.ie
    HSE staff reach out

                                                                               www.hselibrary.ie

                                                                2019 autumn health matters   
HPV Vaccine for boys new Hse board meets - Significant experience and expertise
You
     Section

Mum Amanda Kenny explains why she is
grateful that her son will be among the first
boys in Ireland to receive the HPV vaccine.

Vaccine will
help boys
to protect
themselves
and others
                 t’s hard to believe that my son       have in the future, protecting others as well as

     I
                 Charlie is now a teenager and         himself from life-threatening diseases. Charlie
                 starting secondary school. It         and his generation are so lucky to have this
                 seems like only yesterday that        available to them, I would urge all children to
                 I was hugging him goodbye             get vaccinated. It’s normal to worry sometimes
(much to his embarrassment) on his first day of        about the safety and effectiveness of any
primary school.                                        medication but there’s lots of good scientific
   Not only that, but he is now taller than me         information available to read up about it. For
(not that it’s very difficult as I’m only 5 foot 2).   example, the HSE website www.hpv.ie has been
It’s wonderful to see how he has grown into an         really helpful.                                    ABOVE: Pictured with Minister Simon Harris as
intelligent, friendly and sporty boy, passionate         Thankfully, HPV vaccination is becoming          the HSE launches HPV vaccination programme for
                                                                                                          all first year secondary school students including
about soccer, basketball (and of course his            the norm in Ireland for girls with more than
                                                                                                          girls and for the first time boys were Michael Daly,
beloved Xbox).                                         seven out of ten receiving the vaccine. With the   Amanda Kenny with her son Charlie Wescott,
   Starting secondary school is a huge deal for        vaccine available from September for boys, I’m     Emma Daly, Fionn Teehan with his father Stu
any child, and Charlie is no different. His main       sure it will become the norm of the boys too.      Teehan. BELOW: Pictured as the HSE launches HPV
                                                                                                          vaccination programme for all first year secondary
concerns this September are finding his classes        Charlie and I had a good chat about the HPV        school students including girls and for the first time
on time, and how he will get on with so many           and other vaccines and he is well aware of how     boys were Michael and Emma Daly from Charleville
new teachers.                                          we can help protect his future.                    in Cork with Kevin Brennan, brother of the late HPV
   As he grows and matures, as his mum, I have           Like every other parent in Ireland I want the    vaccine campaigner Laura Brennan.
                                                                                                                   Pic: Marc O’Sullivan
to continue to make decisions about his future         best for my child. That’s why I’m grateful that
to try and give him the best possible outcomes         Charlie has the opportunity to receive these
now and later in life. After all, we all want          potentially life-saving vaccines in September.
what’s best for our children.
   Thankfully Charlie has always been a healthy
boy, and I did, and continue to do my best to
keep him that way. Amongst the million and one
things that parents need to do for their children,
I made sure he got all of his recommended
vaccines. This protected him and others from
infectious diseases. As Charlie is protected
it means he cannot pass on these diseases
to other people who may not be able to be
vaccinated for medical reasons.
   Now as a first year in secondary school, Charlie
will once again receive more vaccines to keep
him safe. As well as getting vaccines to protect
against tetanus, diphtheria, whooping cough
and meningitis, Charlie will be amongst the first
boys in Ireland to get the HPV vaccine to protect
against HPV-related cancers in later life.
   By Charlie receiving the HPV vaccine, he
will also be protecting any partners he might

     health matters autumn 2019
HPV Vaccine for boys new Hse board meets - Significant experience and expertise
Brennan family so proud of Laura’s role in promoting vaccine
The HPV vaccine is now being given to all first year students in               Endorsing the Vaccination Programme, Minister for Health Simon
secondary school, including girls and, for the first time, boys.              Harris said it was an ‘important milestone on the path to our ultimate
 HPV is a virus that can cause cervical cancer, and other cancers in          goal – the effective eradication of cervical cancer’.
both women and men. The HPV vaccine will protect young people                  “In all that we do to advance that goal, we continue to be inspired
from HPV related cancers when they grow up. The uptake of the HPV             by one incredible woman who is sadly no longer with us. Associated
vaccine has a participation rate of approximately 70pc, which is an           by many with the simple phrase ‘Thank you, Laura’, it is always with
increase of 20pc points since 2017.                                           great gratitude that we remember Laura Brennan,” he said.
 The increase is in no small part due to the tireless work of HPV              “We might have been launching this latest campaign with
vaccine campaigner Laura Brennan. Laura’s family are continuing her           uptake for the vaccine still as low as 50pc. But thanks to Laura’s
work following her death six months ago and were in attendance at             passionate advocacy, we are building now from an increased rate
the recent launch.                                                            of 70pc. Laura’s work has been so important and highlights why
 Speaking at the event her brother, Kevin Brennan said, “Laura                it remains so vital that parents are provided with accurate and
poured herself into this campaign, knowing every time she told her            credible information to help them to make a fully informed decision
story; it had the potential to save a life. The increase in the uptake        concerning HPV vaccination.
rates of the HPV vaccine in last year’s first year girls is bittersweet for    “I would also like to remind parents that it is not too late for girls
us – we’re delighted that Laura has played a part in helping to protect       who missed the vaccine in previous years. Any parents who have
so many more young people from HPV cancers. And the introduction              reconsidered their decision and are seeking the vaccine for their
of the boys to the vaccination programme is very welcome news too.            daughters can use the HSE catch-up service.”
But we’re all very aware of Laura’s absence today and how much she             The HSE is also promoting new and informative videos online and
would have loved to share this occasion.                                      on social media, in order to support parents’ decision to get their
 “As Laura would say, Get the Facts, Get the Vaccine. Protect Our             children vaccinated. The videos feature real families who have either
Future,” he added.                                                            received the vaccine or who will be getting vaccinated in the coming
 With high uptake of the HPV vaccine there is the potential to save           year. Participants include the Daly family from Cork, the Houston
112 lives each year by preventing the most common strains of HPV              Family from Donegal, Amanda Kenny and her son Charlie from
that cause cervical cancer and other cancers. The HPV vaccine now             Dublin and Stuart Teehan and his son Fionn, from Wicklow.
protects against nine out of 10 HPV cancers. The HPV virus can cause           The vaccine is endorsed by major medical and scientific bodies
cancers and conditions that can affect boys too, making it extremely          worldwide including the World Health Organization, the Centres
important for all young people to get the vaccine. This year Ireland          for Disease Control in the USA, the EU funded European Centre for
will join over 20 other countries including the UK in giving HPV              Disease Control and Prevention, and the International Federation of
vaccine to boys and girls in first year of secondary school.                  Obstetricians and Gynaecologists.

                                                                                                                  2019 autumn health matters            
HPV Vaccine for boys new Hse board meets - Significant experience and expertise
You
     Section

In iti ativ e promotes em pa th y an d un de rstan di ng
books give dementia patients
back their own life stories
                ementia can take away so much

     D
                from a person but a new initiative
                at a community care home in
                Galway has given their residents
                back their own ‘life story’.
  Life story books were created for each person
with dementia living in the Creagh Suite in
St Brigid’s Hospital, Ballinasloe, to discover
more about them, their lives, likes and dislikes,
relationships and interests. It has promoted
greater empathy and understanding between
them and the staff that care for them.
  The Creagh Suite is home to older adults
with a dementia diagnosis as well as a history
of mental health difficulties.
  “For some of the residents, St Brigid’s has
been home for many years and memories
of their earlier lives are forgotten or rarely
accessed. The aim of the Life Story book
initiative was to discover more about these
residents. For each resident, a physical
Life Story book was developed, containing
photographs, stories from their youth,
details of their childhood and major events
and relationships in their lives,” said Maria
Donnellan, CNM 3, Psychiatry, at the hospital,
who leads the project.
  “The process of obtaining this information
from family and friends resulted in increased
visits and parcels to the ward, as well as
deepening our knowledge and understanding
of the residents that we work with every day.
  “We use the Life Story books to engage
residents by looking through photos or talking
about aspects of their earlier lives. The
books also help us understand the needs and
                                                             Life Story books                      been in,” she said.
                                                                                                     Back in 2016, Maria Donnellan returned
preferences of residents, especially when                    have helped us                        to college to further her professional
verbal skills may be limited. As such, we can
adapt their environment or activities to better
                                                     see beyond the dementia                       development. Part of the course was to
                                                                                                   explore new ways to develop person-centred
suit their individual interests and needs.           and mental illness to                         care. She put forward the idea of the Life
  “Life Story books have helped us see beyond
the dementia and mental illness to the
                                                     the person, and this                          Story books to the dementia multi-disciplinary
                                                                                                   team (MDT) at the hospital, who gave the
person, and this naturally promotes greater          naturally promotes                            project the green light.
empathy and understanding between staff
and resident.”
                                                     greater empathy and                             A proof of concept was presented to
                                                                                                   the MDT so that all relevant professional
  Dr Diane O’Mahoney, clinical psychologist,         understanding between                         could give their input. They all volunteered
explained how information for the books was
gathered.
                                                     staff and resident                            their individual skill-sets so as to aid in the
                                                                                                   development of a working, content-based
  “You put in lots of information about the                                                        system to construct the Life Story books.
person’s early history, where they were born,        good, were they bold, what kind of outings      “The Life Story book has allowed us to
where they lived, where they went to school,         did you have. If somebody was a nurse, we     identify many of the likes and dislikes of the
how many siblings they had, what their               would talk about the training they had. If    residents as well as interests and hobbies
parents did and so on. For instance, if we knew      they are non-verbal, you can find out about   they may have had. This valuable information
somebody was a school teacher, we could              what the training would have been like back   now allows us to tailor the care we provide
ask what were the rhymes you used when               then and talk to them about it or show them   and helps preserves the personhood of the
you were teaching kids, were any of the kids         photographs from settings they may have       resident,” said Maria.

     health matters autumn 2019
HPV Vaccine for boys new Hse board meets - Significant experience and expertise
Maria Donnellan, the multi-disciplinary team, and her mother accepting the award from Tony Canavan, Chief Officer, Community Healthcare West

  “This accumulated insight into the life of        care plan. Due to Maria’s work, the Life Story       in the team is encouraged to champion their
the resident has also led to more harmonious        book is now reflected in the therapeutic and         own personal attributes. Recently we had
work environment. Now staff report feeling          recreational time table.                             two clinical nurse managers, Aislinn Gannon
more connected on a personal level and                While on a visit to the unit Helen Rockford        and Fergus McNicholas, who brought their
are more mindful of the things that make            Brennan, chair of the working group for              expertise in particular in computer technology
these residents people they can identify            dementia in Europe, recognised the work              to help transform the way we deliver care
with. Residents presenting with challenging         Maria was doing and invited her to speak             on a daily basis. This is only one example of
behaviour are now beginning to be viewed            because she was working as a change agent            which there is many. I would like to thank all
in a different light, where once viewed as          and a champion in the organisation.                  the staff of the entire Ballinasloe services in
troublesome, are today seen as someone with           The recent Mental Health Commission                their commitment and dedication providing an
something troubling them.”                          report found that there was ‘excellent               outstanding service.”
  All this has being done without the need for      overall compliance’ with regulations at                She highlighted the importance of good
extra funding. In the long-term, according to       97pc, an improvement from 73pc in 2018.              clinical governance.
Maria, this initiative could be cost-saving as      14 compliances with regulations were rated             “My role in this is the implementation of
incidents relating to challenging behaviour         excellent. There were no conditions attached         policy ensuring we are meeting our legislative
reduce, and residents’ quality of life is           to the registration of this approved centre at       requirements and evidence-based practice
enhanced by understanding their individual          the time of inspection.                              leading to highly professional practices. All
needs and wants.                                      Commenting on the reports, Dr Susan                of this is done through the line management
  The work Maria has done in implementing           Finnerty, Inspector of Mental Health Services,       structure and in collaboration with our
these Life Story books into residents care          said, “It is heartening to see Creagh Suite          assistant directors of nursing (ADON) Brian
plans has helped identify issues and highlight      reaching such a high level of compliance.            Murphy and Kathleen O’Malley, and colleague
information that could never have been              This provides an example to other approved           Siobhan Dooley.”
obtained through traditional methods. In many       centres and holds out the hope for patients            Maria paid tribute to the nursing staff on
cases, residents have being reunited with           and families that high levels of compliance          the Creagh suite who work ‘above and
friends and relatives they have not seen or         are possible and can be achieved.”                   beyond the call of duty to deliver such a
spoken to in years.                                   Maria said that if she was asked what the          high standard of care’.
  “We have received photos and items                secret to their success was, she would say             “Anyone can have an idea for change
relating to residents when they were only           ‘team-work, innovation and with a strong             but without the frontline staff, nothing
small children and some of these items have         emphasis on support’.                                can be achieved. All staff have a life
come from as far afield as America. I have            “The importance of support is vital, as it         story to tell. We are all individuals as our
documented interviews with these long lost          reassures staff of their value while giving          patients are. Like my patients, I am also a
friends and relatives as they recalled their        them the confidence to report issues in              mother, a wife, a daughter, a sister. What
childhood memories from when they were              a prompt manner when they arise. This                keeps me motivated is the confidence
close,” said Maria.                                 support for staff translates into benefits for       and trust my ADONs have in me and
  The Mental Health Commission has                  patients and the care they receive while also        my fellow dementia champions Carmel
commended this initiative on the last two           promoting positive change in organisational          Geoghegan and Siobhan Dooley. I thrive
visits while expressing how they felt moved         culture,” she said.                                  on human connection hence my belief in
by the archive of the patients’ lives. The            “Combine this with a strong clinical lead, Dr      the humanistic approach which I champion
Commission also remarked on well the Life           Sabina Fahy, and you have the ingredients of         and has allowed me to foster a positive
Story book was being implemented into the           highly productive team. Each and every person        relationships within the organisation.”

                                                                                                                   2019 autumn health matters        
HPV Vaccine for boys new Hse board meets - Significant experience and expertise
You
   Section

An epic year
for the Steps to
Health Challenge
               he Steps to Health

   T
               Challenge 2019 was a
               resounding success, we
               had almost 10,000 staff
               walking daily counting their
steps. We would like to sincerely thank
each and every person who took part in
the challenge, those of you who entered
our competitions and posted on our social
media channels.
  Much of the success can be attributed
to our team co-ordinators, many of you
made tremendous efforts to motivate
your colleagues creating Whatsapp
groups, leaderboards, sharing inspirational
messages and walking at breaks. Some
days when it was hard to get those steps
done, many reported that it was easier
when you had a supportive team behind you.
  We know that many of you want to
continue and run some further challenges
locally so we have put together                   The Challenge in numbers
some ideas together for you on hse.                 Year                                               2017            2018            2019
ie/stepschallenge/ where you can order
                                                    Participants                                       2,032           6,534           9,629
fresh Participant’s Guides to record your
steps on healthpromotion.ie. Go to: order           Team Coordinators                                  426             467             664
publications, log in as a professional and          % of HSE Staff                                     2%              6%              10%
search ‘physical activity’
                                                    Website Visits                                     6,767           6,629           6,629
  Best wishes from the organising team:
Clodagh Armitage, Norma Deasy, Meagan               Exit Survey Completion                             187             231             239
Hanley, Agatha Lawless, Adrienne Lynam,             Twitter followers                                                  251             559
Edel McNamara, Caroline Murray, Sarah
                                                    Yammer followers                                                   143             184
O’Brien and Muiriosa Ryan.

  Maureen encouraged others to                                               her local parkrun,” said Maureen.
                                                                               “I think Maureen deserves a prize for her hard work, motivation and
  join in too                                                                for encouraging both staff and her peers. Rose Higgins, staff nurse, and
  We ran a competition for staff who were inspired by the challenge          health care assistants Mary Lyttle and Kitty Dolan were other strong
  to get motivated and out walking. We had a great response from             team players.”
  participants on how the challenge positively impacted their lives both       Since the Challenge finished the team is still walking, Angela reported
  at work and at home.                                                       that she herself has a new habit too, “I wear my pedometer all the time!”
    Joint winner Maureen is a service user in Strokestown mental health
  services. She used to be very overweight and managed to lose three
  stone five years ago. However, since then she reported that she lost her   Cancer can’t stop Mary
  motivation for exercise and was ‘stuck in the same routine’ and did not    Joint winner Mary Holden, Communications Manager in the Coombe
  feel inspired to lose weight.                                              Hospital, gave everything she had in the Steps Challenge, all the while
    Angela Shally, CNM2 introduced the Steps to Health Challenge to          living with incurable cancer.
  Maureen and she was so excited that she wanted to start a week               “The last Steps Challenge I did was a couple of years ago, and my team
  ahead of time.                                                             was the winning team here in the Coombe. It was just months before I
    “Every day Maureen reported her step count to staff and smashed it.      was diagnosed with breast cancer which, on diagnosis, was also found to
  She was walking miles ahead of staff and her face was beaming with         have spread to my lungs and bones as well. My cancer is incurable but
  smiles. Every day she was beating her previous day’s steps. Maureen        treatable, and since November 2016, I have had treatment every 28 days
  also encouraged other service users to join in, and her goal was to join   but am still, thankfully, holding down my full-time job,” she said.

 10 health matters autumn 2019
Blogger Peter becomes the step king
                                                     The team also want to say a huge thanks to our           “No, knees are just there quietly doing their job
                                                     blogger Peter Dineen, who regaled us with his          and trying their best not to let us down. Mine
                                                     highs and lows during the five weeks, below is an      must be under constant pressure trying to support
                                                     extract from his sign-off blog:                        the upper part of the body but thankfully they
                                                      “This five-week challenge has been brilliant. My      haven’t given up yet. I think it was Wednesday that
                                                     health has definitely improved and I feel better for   I noticed something different about the essential
                                                     having decided to give it my best shot. Of course,     joints in my supporting pillars. I noticed that I still
                                                     there were days that were tougher than others but      actually had knees.
                                                     overall it wasn’t too bad.                               “You see, weight loss is a strange thing. I would
                                                      “The last week was my best one. I walked, I           ideally love to lose weight off the belly, that’s
                                                     jogged and I danced. Well I say I danced and to        where I have most of it but it doesn’t work like that.
                                                     be honest in my mind that’s what I was doing at my     You lose it everywhere. Your face, your neck and I
                                                     friend’s wedding, but in reality I imagined I looked   have even lost it from my wrist and now believe it
                                                     like a hippo on roller skates, moving, but not very    or not, around my knees.
                                                     gracefully. It got my steps in though.                   “I have begun to see my kneecaps again, the fat
                                                      “My best day last week was Thursday. I                around them has been pared back a bit and the
                                                     managed 20,009 steps. I walked in Killarney in the     shape of these bones have become visible after
                                                     morning, around Kenmare town in the afternoon          years of being covered up for so long.
                                                     and at home in the evening. But to reach the             “I wonder how many years and miles of walking
                                                     20,000 before midnight I had to walk around my         and sweating I’ll have to endure before I see my
                                                     kitchen about 50 times as the clock ticked down.       abs or even a rib.
                                                     I was delighted to reach it but not very proud           “I’ve really enjoyed the last five weeks and I hope
                                                     of the step monster I’ve become. I mowed the           to keep up the challenge of doing at least 10,000
                                                     lawn twice last week just to get the steps in. The     steps a day. I enjoy feeling fitter and healthier. I
                                                     garden that once looked like a ploughed field          enjoy the walking and I’m loving the challenge of
                                                     could now be mistaken for the 17th green at the        the Saturday morning Park Runs but I don’t think
                                                     Augusta golf course.                                   I’ll ever become a person obsessed with running
                                                      “I’ve lost weight over the last five weeks. My        or fitness and I don’t want to.
                                                     knees look different. I was getting dressed the          “I like walking, but like most people there are
                                                     other day and they just looked different, these        times when I’m lazy or tired or afraid of the rain or
                                                     knobbly unattractive things looked even more           the cold to get up from the desk or the couch and
                                                     knobbly. I never gave them that much thought           walk. I’m flawed, I eat scones and takeaways on
                                                     before now. I mean they are not the most               occasion, I park near the door some days, I sit in my
                                                     appealing part of the body and not the most            car and flick through social media while my young
                                                     shown off part either.                                 fella is at training and I look at the weeds growing
                                                      “I’ve never heard anyone saying that their knees      instead of getting out and digging them up.
                                                     are their best feature or how it was their partner’s     “But this challenge has meant that I do all
                                                     knees that first attracted them. You never see ads     these things less and I do hope that I can keep
                                                     on TV selling creams and other aids helping you to     all the good habits that I’ve started over the last
                                                     make your knees the best that they can be.             five weeks.”

  “Cancer is a bit of a menace but, as far as I’m concerned, is simply        ‘It was the motivation I needed
a chronic illness that I’m having to get on with. The oncologists
don’t recommend extreme dieting and extreme exercise and in any               at the right time’
event, cancer does give you the excuse to indulge in treats and be            For Sharon Crowley, a Medical Secretary in Mullingar, the start date
too tired to do anything but sit on the couch. So I indulged and my           for the Steps to Health Challenge was a sign that she needed to
weight went up.                                                               start looking after herself. “I am 36 years old and coincidentally was
  “To get it back down I need to reduce the treats and my                     scheduled for a breast clinic appointment for the start date for the
oncology team has allowed me to increase my limited exercise                  Steps to Health Challenge! I took it as a sign that I need to start doing
with the Step Challenge.                                                      whatever I can to try and ensure my own wellbeing,” said Sharon.
  “The Step Challenge has been a blessing. I’ve gone from an                    “As a Mammy to 7, 4 and 2-year-old children, together with working
average 8,000 or 9,000 steps a day pre Step Challenge to 20,000               four days a week, I find it difficult to find the time to put myself first
and over on some days.”                                                       and look after myself and always have an excuse not to! So I am now
  Mary was the team coordinator. She took a softly softly approach            fully committed to taking some time to look after myself. It was just the
to motivating team as she didn’t want to turn anyone off.                     motivation I needed at the right time.”
  “We had great fun conversations. We compared pedometer and                    Following the Challenge, her tests were thankfully all clear.
phones. If people didn’t get a good week I told them they were                  “I’m continuing the Steps to Health. Our Team - PCBrigade - plan to
brilliant no matter how low their count was. There was even an                walk every Thursday. I found the 10k very hard to reach daily but did get
almost informal competition among staff to be the first to send in            there by the end and really noticed how little I had been doing before I
their weekly step count to me,” she laughed.                                  started to count them,” she added.

                                                                                                                        2019 autumn health matters                    11
You
   Section

Signi fican t experience an d expe rti se
New HSE Board meets
   T
               he Health Service Executive                improve governance and accountability in the             · Supporting the leadership and staff of the
               (Governance) Act 2019                      health system.                                         HSE to continue to improve health outcomes
               commenced on June 28th                       Ciarán Devane has been appointed as the              of the public;
               2019 and on that day, the                  Chairperson of the Board with Professor                  · Developing and implementing an effective
newly established Board of the HSE met for                Deirdre Madden as Deputy Chairperson. There            performance management and accountability
the first time, with Minister for Health Simon            is provision for 10 other Board members. Nine          system in the HSE;
Harris in attendance.                                     of these have already been appointed with an             · Developing a plan for building public trust
  Under this Act, the Board is now the                    additional member to be announced shortly.             and confidence in the HSE and the wider
governing body of the HSE, accountable to the               The Board includes members with significant          health service;
Minister for Health, with the Chief Executive             experience and expertise across a range of               · Ensuring the HSE’s full support for
Paul Reid accountable to the Board. These                 competencies necessary to enable the Board             and implementation of the Government’s
changes in governance in the HSE were                     to govern and lead the HSE.                            programme of health reform as set out in the
recommended in Sláintecare in order to                      The key immediate priorities for the Board are:      Sláintecare Implementation Plan.

  ‘We must exploit the momentum for change’
  Health Matters caught up with Ciarán Devane                                                                    You have publicly set-out the Board’s
  to talk about taking up the role as Chairperson                                                                priorities. How soon will staff see the
  of the Board and his vision for how the Board’s                                                                influence of these priorities in their
  appointment will change the HSE.                                                                               day-to-day work?
                                                                                                                 Our key priorities revolve around: performance
  There are new 11 Board members                                                                                 management and accountability; public trust
  including you. What breadth of                                                                                 and confidence; implementing Sláintecare and
  experience will the new Board                                                                                  improved health outcomes through supporting
  members bring to the HSE?                                                                                      leadership and staff.
  The composition of the Board encompasses                                                                         While these priorities will take time to develop
  members with significant experience and                                                                        and fully implement, I am certain that those
  expertise across a range of competencies                                                                       working in the public health service will quickly
  necessary to enable the Board to govern and               We will do all we can to exploit the momentum        see the start of the gradual incremental changes
  lead the HSE including: corporate and clinical          for change that has been started in reaching           as we take the early steps to build a better
  governance; human resources; strategic planning         agreement on Sláintecare. We must, however,            health service.
  and financial management. There are also                ensure that there are appropriate systems and
  members with patient advocacy experience                controls in place to ensure that financial stability   And finally, what is your vision for the
  whose appointment was a key recommendation              and predictability of the HSE. The support of          HSE in the future?
  of the Scally report on the national cervical           the Board to the Executive is vital to ensuring        I suppose it is fair to say that my ultimate vision
  screening service ensuring the patient’s voice          we develop public confidence in our financial          for the HSE in the future would be to have a
  is kept at the heart of the future direction of         management and to ensuring we target scarce            health service that is valued and trusted by those
  Ireland’s health service.                               resources in the best possible manner.                 who we serve right across the country.
   It is important to acknowledge that the role of                                                                 While I know that major infrastructural
  the Board is not an executive one, we are here          You were a member of a Board of                        improvements need to be delivered, for me it’s is
  to oversee the operation of the organisation            NHS England from 2012 -2015. What                      even more important that we have the right mix
  through a regime of strong governance which             similarities if any do see between the                 of staff, in the right place, with the correct skills
  supports the executive in their operational role        journey the NHS has taken over the last                to deliver a world class service that we can be
  but also, importantly, holds them to account for        decade and the direction of the HSE?                   proud of.
  their actions. The phrase ‘noses in – fingers out’ is   In terms of similarities, I think one of the key         My vision is for a health system that values
  relevant here.                                          tasks will be the building of trust and confidence.    staff and empowers them to be the best that
                                                          In NHS England we held our meetings in public          they can be. I believe that we can build on the
  How will the Board impact the                           and published all the papers being considered          huge progress that we, as a health system, have
  running of the HSE?                                     by the Board. I would like to move in that             made in terms of increased life expectancy and
  While the Board does not have a day to                  direction with the HSE Board over the coming           reduced morbidity and that we can celebrate
  day operational role, it will provide robust            months. I believe that transparency is one of the      the achievements that we have made while
  governance structures that will ensure that the         keys to trust.                                         recognising that there is much to be improved on.
  significant taxpayers’ resource entrusted to the          Like the NHS, we are on a journey that will            And finally, of course, my vision is for a health
  HSE is spent in the most effective and efficient        have many twists and turns but, to have a              system that is focused more on self-care and care
  manner ensuing value for money and strong               long-term vision such as Sláintecare with its          in the community with a reduced dependency
  clinical outcomes that are on a par with other          cross-party support is a huge positive on our          on acute hospital care with improved access to
  OECD countries.                                         transformational journey.                              services and shorter waiting times.

 12 health matters autumn 2019
Therapy dog Cody brings
smiles to ICU patients
                Ody is a six-year-old old Golden

   C
                Retriever who lives a normal
                life like any other dog… mostly.
                Once a week, he puts on his
                Irish Therapy Dog uniform and
trots through the door of the ICU in Portiuncula
University Hospital (PUH), where his calming
and comforting influence is felt in abundance.
  Charlotte Carter, Clinical Nurse Manager, ICU
explains, “A patient in ICU faces a potentially
scary and dread-filled environment. The
isolation and loneliness of not being able
to interact with their own natural support
system, family and friends can have a huge
impact on their physical and psychological
status. We initiated pet therapy as a non-
pharmacological intervention for the mind
and body and to create a more humanised
environment for ICU patients and their families
along with health care professionals.
  “Cody made his first visit to the ICU in the      ABOVE: In the ICU at Portiuncula University Hospital, from left: Gary Mullin, Cody’s owner and handler;
                                                    patient PJ Connor from County Roscommon and Dr Vinod Sudhir, Consultant Anaesthetist. TOP OF
summer to meet patients and staff. He received
                                                    PAGE: In the ICU at Portiuncula University Hospital, from left: Dr Naser Shayoub, Anaesthetic Registrar;
a warm welcome and of course lapped up all          Gary Mullin, Cody’s owner and handler; Evelyn Mullin, Acting Clinical Nurse Manager; Charlotte Carter,
the attention. He is such a welcome visitor,        Clinical Nurse Manager and Dr Vinod Sudhir, Consultant Anaesthetist.
bringing with him so much warmth. This
interaction is a powerful thing to witness. You     so much joy into my life and into the life of          out to The Irish Therapy Dogs. Myself and Cody
can stand back and simply watch as the positive     others. He has such a unique way with people,          are so lucky to be the chosen visiting team for
energy fills the room.                              they just gravitate towards him. I felt there          Portiuncula University Hospital.”
  “He will continue to visit the ICU for one hour   was an opportunity to share the impact that              Every Thursday after a thorough brushing
every Thursday. Already he has brought a sense      Cody has on me with more people by becoming            and grooming, Cody puts on his uniform and
of healing along with all that unconditional        a volunteer with the Irish Therapy Dogs who            heads off to the hospital. He is warmly greeted
love. Improving the patients’ experience and        have been having a fantastic impact throughout         by all the staff and by the time he reaches ICU
decreasing their suffering is what we desire for    Ireland for many years,” says Gary.                    he has already made a number of new friends.
our unit,” says Charlotte.                             “We applied and were delighted to make              Once on the ward, like anyone else who visits
  Cody’s owner and handler Gary Mullin explains     it through the application process. We then            PUH, he knows that hygiene is essential and
how he found Cody when he was about five            became registered volunteers with Irish Therapy        clean paws are a priority. After a busy day
weeks old abandoned on the side of the road.        Dogs. Portiuncula University Hospital wanted           he heads home for a well-earned rest and
  “From that moment he has continued to bring       to take part in the programme and so reached           perhaps a little treat or two.

                                                                                                                     2019 autumn health matters 13
You
   Section

‘I felt sense of relief that fl
was available to protect o
                 iny Senan Fraser received
                                                            Would I have
   T
                 the first of his childhood
                 vaccinations in the Rotunda                regretted this
                 Hospital before he should have
                 even been born.
                                                    decision if Senan had
   At 63 days old, having been ventilated five      developed a severe
times endured countless procedures, his
parents Stuart and Caoimhe gave consent
                                                    infection? I’ll never know,
for their strong son to get the vaccines.           but I do know that every
Although it was difficult to see him endure
more needles, their feeling was one of relief.
                                                    person who took the
   “Was it difficult to consent? Of course I        time to take the vaccine
wished that he didn’t have to have more
injections in his tiny muscles and I wondered
                                                    increased the chance of
if his little body could respond effectively, but   survival for Senan
mostly I felt a sense of relief that vaccines
were available to protect our son from              had to make for Senan. We had both gotten
diseases that have caused so many deaths,”          the vaccine in October, and it was one way
said mum Caoimhe.                                   we knew we were protecting him.”
   Senan was delivered by emergency                   She said that they did not ask any staff
caesarean section in December at 25 weeks           members in the NICU had they received
and six days gestation.                             the influenza vaccine, nor did they request      the people that were working so skillfully to
   “He weighed just 765 grams after pregnancy       that they only wanted vaccinated staff to        keep our son alive. Would I have regretted
induced hypertension became a risk to both          care for Senan.                                  this decision if Senan had developed a severe
Senan and I,” said Caoimhe.                           “I did it for the same reasons that patients   infection? I’ll never know, but I do know that
   “As an Assistant Director of Nursing in          do not complain: I did not want to upset         every person who took the time to take the
Infection Prevention and Control in a large
teaching hospital in Dublin, I have spent years
educating about outbreak prevention. I have
had the opportunity to review the evidence
and know that vaccines work. There is little
you can control as a mother of a premature
baby that is covered in wires and tubes.
   “People often asked me at the beginning
‘how can you bear to leave him every night?’ I
coped by trying to be as practical as possible
to enable me to put one foot in front of
the other. Part of that was to rely on my
knowledge of what is safe care.
   “It soon became apparent that the quality of
the care in the Neonatal Intensive Care Unit
(NICU) was exceptional and all care provided
included and focused on reducing the risk
of Senan acquiring an infection as much as
is possible. I knew that providing safe care
during influenza season included having a
good staff uptake of the influenza vaccine.”
   She said that learning that the Rotunda
Hospital had over 80pc compliance rate of
uptake reassured her that staff were thinking
of how to protect little Senan before they
even walked through the door of the Neonatal
Intensive Care Unit (NICU).
   “High vaccination uptake rates indicated to
both my husband Stuart and I that the staff
believed in evidence-based care, which helped
us trust the other life-saving decisions they

 14 health matters autumn 2019
lu vaccine
our son’
  vaccine increased the chance of survival for
  Senan,” explained Caoimhe.
     “How can the result of that ever truly be
  measured? In the future, will the people that
  Senan loves or that love him, the people that
  he makes laugh, educates, or the impact his
  life will have in the world be attributed to
  vaccine uptake? Of course not. Healthcare
  has such complex delivery that there is
  millons of ‘what ifs’ that could have changed
  his path thus far. In addition to the superb
  skill of the staff, watching the scientific
  inventions and practices that have kept
  Senan alive has been somewhat terrifying,
  fascinating and most importantly successful
  as we finally brought Senan home after over
  three months in the NICU.
     “Senan and his comrades in the NICU
  receiving their vaccinations have to be the
  heroes of this story. The tenacity, strength and                                                    Protect your
  grace of the tiny babies in the unit is a truly
  unique thing to witness and very humbling.                                                          community,
  But the staff will always be my heroes too                                                          get the vaccine
  for protecting our son by getting vaccinated.
  You have made a difference and helped Senan                                                         Mum Julie Arnott explains why she and her son
  along his way. Thank you.”                                                                          be getting the flu vaccine
                                                                                                       In October 2018, my son Ronan was a bit
                                                                                                      under the weather so I took him to our GP.
                                                                                                      Ronan wouldn’t wake up by the time I got there.
                                                                                                      His eyes opened after a nebuliser, but he was
                                                                                                      still limp. The GP sent me straight to hospital
                                                                                                      where Ronan was admitted, given steroid
                                                                                                      inhaler, oral steroids and, after an x-ray, he got
                                                                                                      an antibiotic just in case. He was diagnosed with
                                                                                                      viral-induced asthma. Thankfully, he recovered.
                                                                                                       In January 2019, I collected Ronan from crèche
                                                                                                      Friday evening and he had a bit of a snuffle.
                                                                                                      The next day I heard his chest wasn’t great so I
                                                                                                      gave him his inhaler and thought I better bring
                                                                                                      him to the doctor. I arrived in K-doc and Ronan
                                                                                                      was taken straight from the waiting room by
                                                                                                      the nurse who called an ambulance. A doctor
                                                                                                      arrived and Ronan was given oral steroids and
                                                                                                      nebulisers. He was given more nebulisers in
                                                                                                      the ambulance on my lap on the stretcher. His
                                                                                                      eyes were rolling and he wasn’t conscious. He
                                                                                                      was carried into triage by a paramedic whilst
                                                                                                      the other held an oxygen tank. In triage, the
                                                                                                      two paramedics, two nurses and the paediatric
                                                                                                      doctor gave him more nebulisers and tried to
                                                                                                      stabilise him. I felt helpless. I was so glad when
                                                     CLOCKWISE FROM TOP:
                                                     Senan ready to go home after three months in     Ronan made a full recovery.
                                                     the hospital; a tiny Senan gets some precious     Ronan and I will be getting the flu vaccine
                                                     skin-to-skin time with mum Caoimhe and dad       this season. The more people that get the
                                                     Stuart; with the consultant neonatologist; the
                                                                                                      vaccine, the more people in our community
                                                     staff at the NICU in the Rotunda Hospital say
                                                     goodbye to Senan as his mum and dad were         can be protected.
                                                     finally able to bring him home.

                                                                                                               2019 autumn health matters 15
You
   Section

En ergised Bootcam p ta kes place
Values in Action is growing
Community Healthcare
East joins the movement
                ommunity Healthcare East

   C
                joined the growing Values
                in Action social movement
                this year, to empower staff
                to lead the change that we
need to create a better health service. This
commenced with an incredibly energised
Bootcamp that took place in June.
  Martina Queally, Chief Officer for Community
Healthcare East when speaking on the day
was keen to emphasise that “this is a grass
roots movement lead by you, the staff on the
ground. You are being empowered to make
a difference. It is all of our responsibilities to
help shape the future of our health service.”
  Martina expressed how excited and
optimistic she was to see Values in Action
begin at the bootcamp. She went on to focus
on the importance of improving the culture in
Community Healthcare East.
  “Yes it’s about creating better working
environments for staff that support
recruitment and retention. Yes it’s about
making people feel proud to work in the Irish
health system but most importantly we want
our patients, service users and their families
to have a positive experience when they come
into contact with the public health system.”
  Alice Harding, Director of Nursing, told us,
“I was invited to the two-day Bootcamp to
participate as a Champion. I was pleased that          The Project Team was established in              us understand the commitment the senior
my peers nominated me and thought of me              January. Vandana Iqbal, Acting Assistant           management team in Community Healthcare
in that way. I was also reluctant. However, I        Director of Nursing in Clonskeagh Community        East have for this.”
came away enthusiastic that Values in Action         Nursing Unit, explained, “For me, the lightbulb      Stephen said that it was an excellent
could be incorporated into our workplace. I          moment was when I realised that this project       opportunity to work collaboratively with
was amazed and surprised at the concepts             starts from transformation within. I might         colleagues from across the area, enhancing
that were teased out at Bootcamp - I loved the       be the only person representing the HSE            a sense of wider HSE belonging and of the
storytelling aspect and the power of one.            to a service user on a certain day. Have I         committed and dedicated staff. Over 100
                                                     represented the core values of the HSE?”           Champions attended and learnt about how the
introduce concepts                                                                                      social movement works. The core values of the
“When I returned after Bootcamp, the first           urban and rural areas                              HSE translated into nine behaviours and staff
thing I did was take out the local induction         Stephen Hayden, Assistant Director of              are empowered to live these behaviours.
policy and put in a piece regarding Values in        Nursing, a member of the Project Team and            In Clonskeagh, Stephen has seen evidence
Action. I thought, this is the place to introduce    Bootcamp MC, said, “Community Healthcare           of the social movement starting and there is a
the concepts. At the annual staff appraisal I        East provides services to both urban and           positive energy around the campus.
have put in a question about the values which        rural areas. The challenge was to be able            Vandana finished by saying, “Our social
now seeks for staff to know about the values         to initiate change and maintain momentum,          movement goes beyond ‘doing’ the daily tasks
and incorporate this into the workplace for all.     across this large geographical area, to enable     and ‘being’ the face of HSE. It has enabled
  “I have been using the 9 behaviours by doing       the 9 behaviours to become the norm in our         me to showcase the good work that is being
an extra kind thing and by putting myself in         everyday practice.”                                carried out every day within the silos. Values
other people’s shoes. If every staff member            Stephen remembered the first day when            in Action is the opportunity to tell people our
becomes involved, then culture will change.          he started on the Project Team. “The room          stories. To change the culture where people
This change will cost nothing but will be            was full of energy and enthusiasm, with a          can see, hear and feel the HSE core values.
powerful in bringing about change in the way         clear sense of expectation and ownership.          Champions from my area met the very next
we treat each other,” she added.                     Martina Queally, our Chief Officer really helped   day to plan the now and the next.”

 16 health matters autumn 2019
Happy 1st birthday DNCC!
Community Healthcare Organisation Dublin
North City & County (CHO DNCC) celebrated its
first Values in Action Birthday in June.
 Mellany McLoone, Chief Officer, said,
“Well done to all the staff in CHO DNCC
who have done a fantastic job to implement
Values in Action within our CHO over the
last year. It would not happen without the
support of our staff.”
 There were many activities to mark this
milestone across the CHO. We spoke to Derek
Clarke, Senior Clinical Engineer in Audiology, to
find out why he got involved in Values in Action
and the difference it is making to his department
and their clients.

What inspired you to get involved?
I was nominated back in March 2018, but was
very sceptical at first – as to whether or not this
really is something that would make any real
change in culture and perception of the health
service. But because I knew many like-minded
people in Audiology who had been to Bootcamp
already, and brought back a very positive
experience, I decided to become involved.

Tell us what Values in Action has
meant to you?
I like being involved and being part of a very
progressive movement that is trying to change
the way the HSE is perceived externally and to
create a positive vibe within the work place.

Have you seen any differences since
Values in Action was introduced?
I think the ‘Hello my name is….’ name badges
has been a great success, as now patients really
have a great reference point for feedback.
Where I work, some elderly patients who may
not remember names, can now visually see
names and I think the conversations feel more
personal and friendly. I also feel, for me, using
the now and the next behaviour, and just
explaining to the patient exactly what is or will
happen next leaves the patient understanding
our process and in what time frame they will be
seen. Also our colleagues are now more aware of
our busy and sometimes stressful environment.
Asking that simple question “can I help you”
“do you need any help” has now become more
the norm in our department.

Any stories where you have seen                       the clinician told the patient to take a seat   said initially I was quite sceptical, but there
the behaviours being demonstrated                     and would fit them in as soon as they had       are really many people just like you who are
or lived?                                             some spare time. The patient was seen over      willing to try to change our culture, and if
Recently a very elderly patient arrived a             the clinician’s lunch break.                    you read the nine behaviours they are really
couple of days early for an appointment, and                                                          not difficult to follow and implement in any
was upset when they realised they would not           What would you say to people                    department, and such small changes can
be seen as the clinics are booked up weeks            who might be sceptical of Values                have such a big impact on your own service
in advance.                                           in Action?                                      and you will immediately see a difference in
 But on hearing the distress of the patient,          I would say definitely get involved, as I       your workplace.

                                                                                                                 2019 autumn health matters 17
You
   Section

‘My lymphoedema
no longer
defines me’
New model of care for management
of chronic condition                                                                                         Lymphoedema and
                anaging her lymphoedema                                                                     Lipoedema Treatment
                                                           I just
  M                                                                                                         in Ireland
                is a full-time job for 33-year-
                old Dundalk woman Sarah                    couldn’t
                Walker. She is just one of an
                estimated 12,380 people in
                                                   cope. I was                                              A Model of Care for Irela
                                                                                                            Report
                                                                                                                                      nd – A Working Group

Ireland living with this chronic, progressive      told that I had
condition that causes swelling in the
body’s tissues.
                                                   the condition
  Sarah first developed lymphoedema                and then just                                                                                     2018
when she was 13. She had the lymph
nodes on her left leg removed when she
                                                   sent off by
was six which meant that her body’s                myself to deal
lymphatic system didn’t work properly.
The lymphatic system is a network of
                                                   with it
glands and channels in the body that helps
fight infection and remove excess fluid.
  As well as causing serious discomfort and        Lady of Lourdes Hospital in Drogheda for              The MOC proposes an integrated treatment
significantly curtailing her life, Sarah said      transforming her life.                              service involving specialist and non-specialist
managing the condition has had a major               “I used to think that I was just                  care provided in the community with links to
impact on her mental health.                       lymphoedema. That was the thing that                acute and palliative care services as follows:
  “I just couldn’t cope. I was told that I         defined me. Two years ago I got a referral            • Specialist lymphoedema clinics in each
had the condition and then just sent off           from my GP to the clinic. I was so down in          CHO to provide assessment and intensive
by myself to deal with it. It was incredibly       myself at that stage but Kay changed all that.      treatment and links to non-specialists in local
difficult but I just hid it by wearing baggy       She completely lifted me and my mental              Primary Care Teams to provide maintenance
clothes. Nobody told me what I should be           health. She got me into garments to help the        treatment and support self-care.
doing with it, nobody explained how I could        leg – I hadn’t even heard of them before that.        • Early detection services in high risk areas
make it better. Nothing. I just got used to        She showed me how to bandage the leg to             e.g. oncology, care of the elderly.
lugging it around,” she explained.                 help with manual drainage. These were all             • Links between acute and primary care
  She has never even been on a sun holiday         basic things that nobody had explained to me        services for patients with lower limb cellulitis
because it is too uncomfortable to manage          before,” said Sarah.                                associated with chronic oedema.
her leg in the heat and the travel is ‘too           “There are even surgeries available now
much hassle’.                                      that will be able to help me and I am hoping          “Investing in lymphoedema services
  However, a new model of care for people          to be able to get one in the future. It really is   now will have a significant impact on a
living with lymphoedema and lipoedema              a hidden condition and people like me need to       patient’s quality of life. With early detection
is changing the way they are supported to          be fully supported and not forgotten.”              and appropriate treatment there will be a
manage their condition.                              The need for improved lymphoedema/                reduction in severity and complications such
  Based on international best practice, project    lipoedema services and a model of care              as cellulitis that will reduce costs for the
population needs and results of a national         (MOC) was highlighted by Lymphoedema                health service,” said Kay.
survey, this new model of care will improve        Ireland, a patient advocacy group, and within         Setting up services in each CHO will
the quality of life of people living with these    the HSE Divisions (Acute and Primary Care)          have varying requirements depending on
chronic conditions.                                and the National Cancer Control Programme.          population, existing resources and demand.
  Project Manager for Lymphoedema                    It is essential that services are realigned         Since the publication of the model of care
Services, Kay Morris, said, “It’s important        and increased to manage the current                 this year, two proof of concept sites have
that lymphoedema is identified and treated         demand and also to introduce prevention             been approved; (i) at the Mater Hospital to
as soon as possible. Managing patients in          and early detection services to reduce              develop early detection services in oncology
the early stages can prevent lymphoedema.          future demand. For patients that develop            and (ii) in CHO 8 Laois/Offaly for a Specialist
Without treatment it can lead to an increase       lymphoedema, their needs can be met early           Lymphoedema Clinic. These projects
in secondary problems of pain, cellulitis,         by health care professionals in local primary       are in the planning phase and should be
hospitalisation, reduced mobility for patients.”   care centres with an emphasis on self-              implemented by the end of the year.
  Sarah credits Kay and her clinic in Our          management and support.                               The MOC is available on hse.ie

 18 health matters autumn 2019
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