Gout Taking control of your - A practical guide to treatments, services and lifestyle choices
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How can this booklet help you This booklet is designed for people who have gout. It will help you understand your • m ake healthy choices for your condition so that you can better general health and wellbeing manage your symptoms and continue • fi nd support and additional to lead an active and healthy life. information to cope with the This booklet offers information and impact of gout. practical advice to help you: The information inside is based • u nderstand what gout is and on the latest research and what it means for you recommendations, and has been reviewed by Australian experts in the • u nderstand how medicines can field of arthritis to make sure it is help treat gout attacks and current and relevant to your needs. prevent future attacks So go ahead — take control of • w ork with your healthcare team your gout! to manage the disease in the short and long term © Copyright Arthritis Australia 2014 Supported by: AstraZeneca Pty Limited ABN 54 009 682 311 Alma Road, North Ryde NSW 2113 2 Taking control of your Gout
Contents Understanding gout 4 Treating gout 10 Diet and lifestyle 16 Who can help? 21 Working with your GP 22 Seeing a rheumatologist 23 Other health professionals 24 Seeking support 26 Glossary of terms 28 Useful resources 29 Medical and consumer consultants Tanya deKroo, Information Resources Coordinator, Arthritis Australia Wendy Favorito, Arthritis Australia Consumer Representative and Board Member Assoc Prof Neil McGill, Rheumatologist Assoc Prof Julian McNeil, Rheumatologist and Chair of Australian Rheumatology Association’s Therapeutics Committee Assoc Prof Peter Youssef, Rheumatologist and Chair of Arthritis Australia’s Scientific Advisory Committee Arthritis Australia 3
Understanding gout What is gout? the main reason for more than Gout is an extremely painful form nine out of ten people with gout). of arthritis. Often referred to as the If uric acid levels remain high, small, ‘disease of kings’, it was thought that needle-like crystals of monosodium gout resulted from overeating and urate monohydrate (urate) start drinking too much alcohol. In fact, forming in and around the joints gout can affect anyone regardless (Refer figure 1 on page 5). These of diet and alcohol intake. crystals form slowly, over months or Gout occurs as a result of high levels even years. A gout attack occurs when of uric acid in the body. there is inflammation in the joints where these crystals have formed. What is uric acid? As the gout attack settles, the pain and inflammation will disappear but Uric acid is present in small the crystals still remain in the joint(s). amounts in our blood. It is made as our bodies break down natural substances called What are the symptoms purines. Purines are found in of gout? our bodies’ cells, as well as Generally, the first symptom of gout is some of the foods we eat. severe pain from a gout attack. Uric acid levels can be high for months or even years before a gout attack Our kidneys usually remove any occurs. An attack of gout usually comes excess uric acid from our bloodstream on very quickly, over just a few hours, into our urine. However, people and often overnight. The affected with gout have higher-than-normal joint(s) becomes inflamed, causing amounts of uric acid in their bodies. intense pain, redness, heat and swelling. This can be a result of: Often the joint is extremely sore to • producing too much uric acid touch – even just the light pressure of and/or the bed sheets can be excruciating. • t he kidneys being unable to Without treatment, a gout attack remove it quickly enough (this is usually lasts about one week. 4 Taking control of your Gout
While the affected joint(s) is What causes gout? inflamed, it can be extremely painful Gout occurs in people with to walk or use the joint normally. higher-than-normal levels of uric acid Gout commonly affects the big in their body. Some people with gout toe, although other joints can be may produce too much uric acid. More commonly, it results from the affected, including the ankles, knees, kidneys being unable to get rid of hands, wrists and elbows. enough of the excess uric acid. Some Urate crystals can also collect under of the known risk factors for having the skin forming small, solid, white high uric acid levels include: painless lumps called tophi (Refer • G enetic factors: Having figures 2 and 3 on page 6 and 7). higher-than-normal uric acid The most common places tophi form levels can run in families and are on the toes, ears, fingers, hands, is one of the most common forearms, knees and elbows. causes of gout FIGURE 1 Bone Cross-section Capsule of joint with (ligament) urate crystals Synovium Cartilage Urate crystals Cross-section of a joint showing urate crystals deposited in the cartilage Graphics used with kind permission of Arthritis Research UK. Arthritis Australia 5
Understanding gout • Being overweight or obese • O vereating, particularly certain foods that are linked with gout • H aving high cholesterol, high attacks, although this is still not blood pressure or glucose well understood from research. intolerance See page 16 for information • Having kidney disease about gout and diet • T aking certain diuretics (‘water • D rinking too much alcohol may tablets’): These medicines drain raise uric acid levels in the blood water from the body and can by increasing the production affect the kidney’s ability to get of uric acid and reducing how rid of uric acid. much is passed out in urine. Gout attacks seem to be more common Some people can have high uric acid in beer and spirits drinkers than in levels but do not experience gout people who drink wine. However attacks. However, if you’re prone to there is no scientific proof that gout, several factors have been linked only certain types of alcoholic to gout attacks including: drinks cause gout FIGURE 2 Gout affecting the big toe Gout most commonly affects the big toe. The joint becomes red, hot, swollen and extremely painful. Photography Photographyused usedwith withkind kind permission permission ofofElsevier. Elsevier.©©Elsevier Elsevier 2011. 2011. Taken Taken fromfrom Rheumatology, Rheumatology, fifth edition. fifth edition. Edited Edited byby MarcCCHochberg, Marc Hochberg, Alan Alan JJ Silman, Silman,Josef JosefS SSmolen, Smolen,Michael E Weinblatt Michael and and E Weinblatt Michael H Weisman. Michael H Weisman. Graphics used with kind permission of Arthritis Research UK. 6 Taking control of your Gout
Understanding gout • C onsuming large amounts of Who is affected by gout? fructose, a type of sugar, can Anyone can get gout. However, gout increase uric acid levels in the in pre-menopausal women is rare blood. It is found in high levels in and your doctor may wish to further soft drinks sweetened with corn investigate your symptoms. Gout most syrup (not used in soft drinks commonly affects the big toe. The manufactured in Australia) and Can gout cause jointlong-term becomes red, fruit juices problems? hot, swollen and extremely painful. • D ehydration (not drinking Once the inflammation of a gout enough water) attack settles down, your joints may Photography used with kind permission of Elsevier. © Elsevier 2011. Taken from Rheumatology, fifth edition. feel normal Edited by Marc C Hochberg, Alan J Silman, Josef S Smolen, Michael E Weinblatt and Michaelagain. H Weisman.However, the urate • Being ill with a fever crystals remain in the joints. • ‘Crash diets’ or fasting • Having an operation • Injury or trauma to the joint. FIGURE 3 Tophi caused by urate collecting under the skin Urate may collect under the skin, forming small white pimples (tophi), but these aren’t usually painful Photography Photography used with kind used with kindpermission permissionofof Elsevier. Elsevier. © Elsevier © Elsevier 2011. 2011. Taken Taken from from Rheumatology, Practical fifth Rheumatology, edition. third edition. Edited Editedby byMarc Marc C C Hochberg, AlanJ JSilman, Hochberg, Alan Silman, Josef Josef S Smolen, S Smolen, Michael Michael E Weinblatt E Weinblatt and Michael and Michael H Weisman. H Weisman. Graphics used with kind permission of Arthritis Research UK. Arthritis Australia 7
Understanding gout Another attack may not happen for are crucial in preventing long-term months or even years. If gout is not complications from gout. managed well and uric acid levels remain higher-than-normal, the time How will my doctor between attacks may get shorter, the diagnose gout? attacks may become more severe and Many people with gout do not more joints may be affected. receive the right treatment because The first few attacks of gout may not they have not been diagnosed cause any permanent damage to the properly in the first place. joint(s). However, if uric acid levels The only way to diagnose gout with remain high over time, gout can certainty is by your doctor looking at progress into a chronic (long-term) samples of your joint fluid under a condition causing: microscope. A needle is used to draw • F ormation of tophi (solid lumps a small amount of fluid from one of of urate crystals), especially on your affected joints. This fluid is then the toes, ears, fingers, hands, examined under a microscope to see forearms, knees, and elbows whether urate crystals are present. If (Refer figures 2 and 3 on pages the crystals are present, your doctor 6 and 7) can confirm that you have gout. If there are no crystals in your joint • P ermanent damage to the fluid, your doctor will consider other cartilage and bone due to the causes for your symptoms, such as an formation of tophi inside the joint. infection in the joint. This can lead to constant mild pain and inflammation, similar to A blood test can measure the osteoarthritis amount of uric acid in your blood. If uric acid levels are higher than • Kidney stones. normal, this can help support a The good news is that, although diagnosis of gout. However blood gout is very painful, it is extremely tests can sometimes show normal treatable for most people. Early uric acid levels during an attack. diagnosis and the right treatment Blood tests are most useful for 8 Taking control of your Gout
Understanding gout working out if your symptoms are due to other conditions, or to Top tip: Be certain it’s gout monitor your uric acid levels once you have started treatment for gout. X-rays are often normal in the early stages of gout so are not very useful in diagnosing gout. They may show signs of joint damage if you have had poorly managed gout over an extended period. Arthritis Australia 9
Treating gout There are two main parts to treating (needle) into a joint or muscle. gout: Corticosteroids are usually given only for a few days as a treatment 1. Treatment of the gout attack for gout and so do not normally 2. Treatment to lower uric acid levels cause any of the serious side and prevent future gout attacks. effects that can occur with long-term use of these medicines. Treating a gout attack • Colchicine: This medicine helps There are several medicines that to reduce pain and swelling can help reduce the pain and during gout attacks, particularly inflammation of a gout attack: if NSAIDs cannot be used for safety reasons. Side effects, such • N on-Steroidal as nausea, vomiting or diarrhoea, Anti-Inflammatory Drugs are common so your doctor will (NSAIDs): These medicines reduce usually recommend low dosages pain and inflammation in the joints. of this medicine. This typically Some NSAIDs can be bought involves 1mg (milligram) initially, over-the-counter while others are 0.5mg one hour later and then only available with a prescription. no further colchicine for 24 hours. Like all medicines, NSAIDs can Seek advice from your doctor if cause side effects so it is important you experience any side effects, to get advice from your doctor as he/she may alter the dose or before taking them. Your doctor will prescribe a different medicine. recommend the lowest dose for the Taking your prescribed medicine at shortest period of time to reduce the first sign of a gout attack can your risk of developing side effects. help reduce the length and severity • C orticosteroid injections or of the attack so work with your tablets: This type of medicine doctor to find the right treatment is also very effective in reducing plan for you. Have your prescribed gout pain and inflammation. medicines readily available so you can Corticosteroids can be given start treatment as early in the attack as a tablet or as an injection as possible. 10 Taking control of your Gout
Applying ice/cold packs to the Treatments to lower uric acid painful joint for ten to fifteen levels and prevent attacks minutes at a time, may help reduce There are several medicines that pain. You may also need to protect lower uric acid levels in the blood the affected joint. For example, if to prevent future gout attacks. Your your big toe is affected you may doctor may suggest taking these medicines if you are having frequent need to limit the amount of walking gout attacks, your blood tests show and standing you do, and create a high levels of uric acid, or you bed cradle to keep the bed sheets develop tophi, kidney stones or signs off your foot when sleeping. of permanent joint damage. Arthritis Australia 11
Treating gout These medicines need to be taken acid levels to work out the right every day, even if you are not having dose for you. It may take several a gout attack. They can be very months of gradually increasing the effective in lowering blood uric acid dose to find the right amount as levels and controlling gout, if: taking sudden, high doses of these medicines can actually cause a gout • Y ou continue taking the medicine. attack. Bringing uric acid levels down Keep in mind your doctor slowly, by starting with a low dose may recommend you take the of these medicines and gradually medicine forever increasing the dose, is much less • Y ou take the medicine and do not likely to trigger an attack and can miss doses reduce the risk of side effects. Your doctor may also suggest taking other • You take the full/correct dose. medicines, such as a very low dose of The medicines that reduce uric acid colchicine, to protect against a gout levels work in slightly different ways attack during the first few months of and can produce varying side effects. starting these medicines. Examples of medicines that can lower uric acid levels in the blood include: Top tip: Ask your doctor • A llopurinol, which decreases the about medicines to body’s production of uric acid lower your uric acid • P robenicid, which increases the levels for long-term gout kidney’s ability to remove uric management acid into the urine • O ther medicines may also be The medicines used to treat a gout available through specialist attack only treat the pain and doctors if your uric acid levels inflammation. They do not affect are not controlled with these uric acid levels so you must continue medicines. taking your regular dose of uric acid When first taking these medicines, lowering medicine (for example your doctor will monitor your uric allopurinol) during a gout attack. 12 Taking control of your Gout
Treating gout Know your target uric acid level The goal of treatments for gout is to lower uric acid levels to a level that prevents gout attacks and other long-term problems. Your uric acid levels can be checked with a blood test. For most people with gout, the target uric acid level (serum urate) level you are aiming to achieve is Less than 0.36 millimoles per litre (
Treating gout Call the Arthritis Helpline professional advice without knowing 1800 011 041 for copies or visit all the treatments you are using. This www.rheumatology.org.au or includes vitamin supplements, herbal www.arthritisaustralia.com.au medicines and other therapies. See Arthritis Australia’s Can natural or alternative Complementary therapies therapies help? information sheet for more about the There are many promises made for safe use of these types of treatments non-medical ‘cures’ or treatments at www.arthritisaustralia.com.au to ease gout – but there’s very little proof that any of these work and further research is needed. For example, there is very little evidence that supplements such as celery seed or garlic are helpful in reducing the symptoms of gout. Because herbal, homeopathic, ayurvedic or Chinese medicines may affect the treatments prescribed by your doctor, please tell your GP and specialist what other treatments you are thinking about using. You may feel concerned that your doctor or other members of your healthcare team will disapprove of complementary therapies. However it is very important to keep your healthcare team informed, even if they do not approve. Your healthcare team, particularly your doctor and pharmacist, can’t give you the best 14 Taking control of your Gout
Treating gout Arthritis Australia 15
Diet and lifestyle There are many beliefs and claims about the role of diet and other lifestyle factors in preventing and managing gout. Research has shown certain factors are associated with having gout. For example, people with gout may tend to eat similar types of foods or drinks. However it has not been proven that any of these factors actually cause someone to develop gout. Although there is little scientific proof about the usefulness of many of these lifestyle changes to prevent gout, there can be definite benefits for your general health and wellbeing. Purine-rich diet Several studies have shown that people who have gout are more likely to eat high amounts of purine-rich foods. These foods are often reported to trigger gout attacks as purines are made into uric acid by the body. Some of the purine-rich foods commonly linked to gout attacks include: • m eat – particularly red meat and offal, such as liver, kidneys and heart • s eafood – particularly shellfish, scallops, mussels, herring, mackerel, sardines and anchovies 16 Taking control of your Gout
• f oods containing yeast – such as are linked to gout. For example, a Vegemite and beer. number of vegetables (asparagus, mushrooms, cauliflower and spinach) However there is very little good are rich in purines but do not appear quality, scientific evidence to show to trigger gout attacks. Dairy foods that eating foods rich in purines (which can contain purines) actually actually causes gout. Additionally, appear to lower our risk of gout. there is little proof that avoiding the purine-rich foods in the list above can Completely cutting purine-rich foods reduce gout attacks. In fact, research from your diet may cause you to miss shows that not all purine-rich foods out on important nutrients and vitamins. Arthritis Australia 17
Diet and lifestyle For most people with gout, a healthy syrup may be beneficial for your balanced diet is all that is needed to overall health. However naturally manage gout, alongside medicines to occurring fructose in fruit and reduce uric acid levels. vegetables also provides general health benefits and should not be If you notice certain foods trigger completely avoided without advice your gout attacks, you may benefit from your doctor or dietitian. from cutting down the amounts of those foods in your diet. Most people taking medicines to reduce uric acid levels find they can still eat purine-rich foods without attacks of gout by being careful with the quantity they eat. Fructose Fructose is a sugar that is found in fruits and vegetables. High fructose corn syrup - a mixture of glucose and fructose - is often used as a sweetener in food products such as bread, cereal and soft drinks (not Australian-made soft drinks). An American study found that men who drank five to six servings of fructose-sweetened soft drinks per week were more likely to have gout. However there is no research showing that fructose actually causes gout or that other fructose-rich foods can be linked to gout. Cutting down on the amount of food artificially sweetened with high fructose corn 18 Taking control of your Gout
Diet and lifestyle Weight loss www.eatforhealth.gov.au. For help with weight loss, you can ask your GP to refer you to a dietitian or find one directly via the Dietitians Association of Australia - call 1800 812 942 or visit www.daa.asn.au Alcohol Drinking large amounts of alcohol may increase your risk of a gout attack. Alcohol affects the ability of the kidneys to remove uric acid from An obese person is four times more the blood. Some types of alcohol, likely to develop gout than someone such as beer, are rich in purines, with ideal body weight. If you are which can also lead to increased uric overweight, gradual weight loss can acid levels. However many people help lower uric acid levels and reduce with gout can control gout attacks the risk of gout attacks. However without completely cutting out it is important to avoid fasting or alcohol. Try reducing the amount of ‘crash’ dieting, where you go without alcohol you drink and avoid binge adequate food for long periods drinking (drinking a lot of alcohol and lose weight rapidly. This type at one time). Gout attacks are more of dieting can actually increase uric common in beer and spirits drinkers acid levels and trigger a gout attack. than in people who drink wine. A combination of balanced healthy However there is no scientific proof eating and regular physical activity that only these types of alcoholic is the best way to lose weight. The drinks lead to gout attacks. Talk to Australian Government provides your doctor for advice about advice about the amount and kinds your alcohol intake or see of foods that we need to eat for www.alcohol.gov.au for health and wellbeing including Australian Government Guidelines on Australian Dietary Guidelines at recommended alcohol consumption. Arthritis Australia 19
Diet and lifestyle Other healthy lifestyle choices Top tip: A healthy diet • D rink enough water: and lifestyle can help you Dehydration (not drinking enough manage your gout water) may be a risk factor for gout although this is not well proven in research. Drinking 1 – 1.5 litres of fluids a day is recommended for general health benefits. If you are taking diuretics (also known as ‘water pills’ or tablets which help the body get rid of water) or have heart or kidney problems, follow your doctor’s advice about how much water you should be drinking. • V itamin C: Vitamin C appears to reduce the risk of developing gout although it does not seem to reduce uric acid levels in people already with gout. • S tay active and try to fit in at least 30 minutes of physical activity most days of the week. • Quit smoking. 20 Taking control of your Gout
Who can help? The good news is that gout can practical advice. Contact your be effectively managed - and a State/Territory Arthritis Office on team approach is the best way to 1800 011 041. They can provide combat it. This involves you and your information and introduce you to healthcare professionals together support groups, exercise programs with support from family, friends and and other arthritis management community organisations. services. See Arthritis Australia’s range of information sheets at How can you help? www.arthritisaustralia.com.au Remember, you are the most important member of your healthcare team. By understanding your condition and how to stay on top of it, you can carry on living a normal life. Work closely with your healthcare team to develop a management plan for your gout. This will include medicines to treat a gout attack and possibly medicines to lower uric acid levels. This will help you be actively involved in your care and decision-making about treatments. With the right treatment, gout doesn’t have to get in the way of working, travelling, relationships, hobbies and leisure activities. Understand how your treatments will help and how to get the most out of them. Your healthcare team can address your concerns and provide Arthritis Australia 21
Working with your GP How can my GP help? When should I see my GP? Your GP is an important partner in • Y ou should visit your GP when managing your gout. They can also you have your first gout attack. help you to access other specialists, Your GP can prescribe the right health professionals and services. medicines to treat the initial gout Your GP will most likely make the attack and advise about medicines initial diagnosis of gout and may refer that lower uric acid levels to you to a rheumatologist (arthritis prevent future attacks. specialist) if required. • Y our GP should also regularly Once your gout is fully assessed, monitor your uric acid levels to your GP or specialist may prepare make sure they are staying below a care plan to manage the services the target levels described on and treatments you require. They page 13. This may take several will prescribe medicines and other visits when you are first taking lifestyle changes to improve your medicines to lower your uric acid symptoms and will also see you levels and then may require a regularly to monitor your uric acid blood test every six months. levels and check your treatment is • V isit your GP immediately if you still keeping your levels to the target notice your gout attacks are level. becoming more severe, more Your GP may employ a practice nurse frequent or affecting more joints. to coordinate your care and access to services. Top tip: Work with your How do I find a GP? doctor to develop a If you don’t have a regular GP, find management plan for one who can support you. Speak to your gout your local practice or medical centre. 22 Taking control of your Gout
Seeing a rheumatologist How can a rheumatologist • Y our GP may recommend a help? rheumatologist Rheumatologists are doctors who • Y ou can also contact the specialise in problems of the joints Australian Rheumatology such as gout. Your GP may refer you Association on (02) 9252 2334 or to a rheumatologist if: visit www.rheumatology.org.au to find a rheumatologist (but • it is unclear whether you have you will still need a referral gout or if your symptoms are from your GP). caused by another condition • y our gout attacks are not When should I see my prevented with medicines to rheumatologist? lower your uric acid levels or are becoming more severe • Y our rheumatologist may initially want to see you every few weeks • y ou require an injection into your to work out how well your uric joint acid levels are responding to • you and your GP wish to seek treatment. advice about newer treatments. • O nce the treatment is working While your GP may have prescribed well to control your gout, you some medicines to treat and prevent may only need to return to the gout attacks, the rheumatologist rheumatologist if your gout might also recommend other attacks or other symptoms start medications to control your symptoms. to worsen. How do I find a rheumatologist? • Y ou will need a referral from your GP to see a rheumatologist - they will then stay in touch to coordinate your care Arthritis Australia 23
Other health professionals Your GP or rheumatologist may also inserts or advice on footwear to refer you to other therapists for reduce pain in your toes and/or feet. further advice. See the section on Seeking support on page 26 for information on health How can other health professionals who can help you to professionals help? cope with the emotions you may A dietitian can give you tailored be feeling. advice about weight loss, if you are overweight, and provide advice about a healthy, balanced diet to improve How do I find a health your general wellbeing. professional? A physiotherapist (physio) can • Y our GP or rheumatologist can show you exercises to do at home to provide a referral, or you can strengthen and stretch the muscles contact a private therapist directly in your joints and improve your (see Useful resources on page 29). function. They will also show you • If your GP refers you to a health pain relief techniques to use at home, professional as part of a care including the use of heat packs and walking sticks, to keep your joints as plan, you may be able to have flexible and pain-free as possible. five sessions per year funded by Medicare. Ask your GP for more An exercise physiologist can give information. you advice about exercise, including how to get started safely and the • M ost health professionals are best type of exercise for your health available in the public health and ability. If you need to lose system (such as at a community weight, they can also design an health centre or public hospital). exercise program to work alongside There is often a waiting list and a healthy diet. you will usually need a referral A podiatrist can help take care of from your GP. Their services are your feet, perhaps by providing shoe usually free or low cost. 24 Taking control of your Gout
When should I see a health professional? • Y ou may be referred to one or more therapists soon after your diagnosis of gout by your GP or rheumatologist. • A sk your GP or rheumatologist about seeing a health professional if you notice your physical condition or abilities change. Arthritis Australia 25
Seeking support Why me? They may also refer you to a It’s perfectly normal to wonder why counsellor or psychologist, who you have developed gout, and to can talk to you about your worries, feel angry, worried, frightened or feelings and moods, then suggest confused about it. By taking control practical ways to work through of your gout and working with your them. If you want to contact a healthcare team, you can approach psychologist directly, call the Australian the disease with a positive attitude. Psychological Society on 1800 333 497 However, sometimes the condition or visit www.psychology.org.au can get you down, especially if beyondblue provides information repeated gout attacks are affecting and advice about depression, anxiety, your everyday life. It may also feel as available treatments and where to get though people around you, even close help. Visit www.beyondblue.org.au friends or family, don’t understand or call 1300 22 4636. what you’re going through. Lifeline provides a 24hr confidential telephone crisis support service for Who can help? anyone across Australia experiencing There are many people who can help a personal crisis. Call 13 11 14. you deal with the emotional side of gout. Your first step is to try to talk honestly with your partner, parents What about information or children about how you feel. Give from websites? them a chance to talk too – they The web can be a useful source of might have worries or feel that they information and support. However, don’t know enough about your not everyone who puts information disease and how it is affecting you. on the web is a qualified health practitioner. Visit your GP if you are worried that unwanted feelings are too strong or Some organisations make unrealistic have been there for a long time. Your promises in order to sell their GP may be able to suggest ways of products. Treatment options and coping, or may prescribe medicines if practices from overseas may also not you are especially worried or depressed. be relevant or approved in Australia. 26 Taking control of your Gout
Always check information from the is an excellent starting point for web web with a trusted member of your searches, as every site that healthcare team. Healthdirect links to has been The Australian Government’s checked for quality and accuracy Healthdirect www.healthdirect.gov.au of information. Arthritis Australia 27
Glossary of terms Arthritis are-thry-tiss A name for over 100 different conditions that affect the joints. Corticosteroid core-tick-o-ster- A type of medicine that is very effective in oyd reducing inflammation in the joints. Dietitian die-et-ish-un A health professional who can help you with a healthy diet and weight loss. Inflammation in-fla-may-shun The body’s response to damage or infection. Inflammation can cause pain, swelling, warmth, redness and difficulty moving the joint. NSAIDs en-sayds A group of medicines known as non-steroidal anti-inflammatory drugs. These can reduce inflammation and pain. Purines pyu-reens Natural substances found in the body’s cells and many different foods. Rheumatologist roo-ma-tol-o-jist A doctor who is a specialist in treating problems of the joints such as gout. Tophi toe-fi Hard lumps of urate crystals that form beneath the skin on the ears, fingers, hands, forearms, knees, and elbows. Uric acid you-rick a-sid A normal waste product found in the blood. It is made as our bodies break down substances called purines. Urate you-rayt A normal waste product found in the blood. It is made as our bodies break down substances called purines. 28 Taking control of your Gout
Useful resources Australian resources For access to quality online To find a podiatrist, contact the information about gout, start at Australasian Podiatry Council Healthdirect www.apodc.com.au www.healthdirect.gov.au Ph: (03) 9416 3111 For advice on healthy eating and To find an exercise physiologist, appropriate exercise, visit Healthy contact Exercise and Sports Science Australia www.essa.org.au Active www.healthyactive.gov.au Ph: (07) 3862 4122 To find a specialist, contact the To find a dietitian, contact the Australian Rheumatology Association Dietitians Association of Australia www.rheumatology.org.au www.daa.asn.au Ph: (02) 9252 2334 Ph: 1800 812 942 To find a physiotherapist, contact the To find a psychologist, contact the Australian Physiotherapy Association Australian Psychological Society www.physiotherapy.asn.au www.psychology.org.au Ph: 1300 306 622 Ph: 1800 333 497 International resources The public area on the website Arthritis Research UK also provides of the American College of a wide variety of information for Rheumatology contains many people with gout useful resources www.arthritisresearchuk.org www.rheumatology.org/public The Gout and Uric Acid Education Society (US) has information for both medical professionals and people with gout at www.gouteducation.org Please keep in mind that some issues and treatments from overseas may not be relevant in Australia. Arthritis Australia 29
Notes 30 Taking control of your Gout
My contact details My name:.................................................................................................. Telephone:................................................................................................. My GP Name:........................................................................................................ Telephone:................................................................................................. My specialist Name:........................................................................................................ Telephone: ................................................................................................ My support team Name:........................................................................................................ Telephone: ................................................................................................ Name:........................................................................................................ Telephone: ................................................................................................ My medicines Name Dosage Instructions Arthritis Australia 31
Arthritis Australia Arthritis Australia is a not-for-profit organisation that provides support and information for all Australians affected by arthritis. Contact your State/Territory Arthritis Office to find out about the range of awareness and education programs, support services and resources available. Arthritis Helpline: 1800 011 041 www.arthritisaustralia.com.au Arthritis ACT Arthritis South Australia Level 2B Grant Cameron 118-124 Richmond Road Community Centre Marleston SA 5033 27 Mulley Street Holder ACT 2611 PO Box 4017 Weston Creek ACT 2611 Arthritis Tasmania 19A Main Road Arthritis New South Wales Moonah TAS 7009 Suite 1.15 32 Delhi Road GPO Box 1843 Hobart TAS 7001 North Ryde NSW 2113 Locked Bag 2216 North Ryde NSW 1670 Arthritis Victoria 263–265 Kooyong Road Arthritis Northern Territory Elsternwick VIC 3185 Shop 18 Rapid Creek Business Village PO Box 130 Caulfield South VIC 3162 48 Trower Road, Millner NT 0810 PO Box 452 Nightcliff NT 0814 Arthritis Western Australia 17 Lemnos Street Arthritis Queensland Shenton Park WA 6008 1 Cartwright Street PO Box 34 Wembley WA 6913 Windsor QLD 4030 PO Box 2121 Windsor QLD 4030 Arthritis Australia Level 2, 255 Broadway Glebe NSW 2037 Mail: PO Box 550 Broadway NSW 2007 Phone: 02 9518 4441 Fax: 02 9518 4011 Email: info@arthritisaustralia.com.au Web: www.arthritisaustralia.com.au Arthritis Helpline: 1800 011 041 ISBN: 978-0-9923052-1-5
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