Gout Taking control of your - A practical guide to treatments, services and lifestyle choices

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Gout Taking control of your - A practical guide to treatments, services and lifestyle choices
Taking control of your

               Gout
A practical guide to treatments,
   services and lifestyle choices
Gout Taking control of your - A practical guide to treatments, services and lifestyle choices
How can this booklet help you

This booklet is designed for people
who have gout.

It will help you understand your           • m
                                              ake healthy choices for your
condition so that you can better             general health and wellbeing
manage your symptoms and continue
                                           • fi
                                              nd support and additional
to lead an active and healthy life.
                                             information to cope with the
This booklet offers information and          impact of gout.
practical advice to help you:
                                           The information inside is based
• u
   nderstand what gout is and             on the latest research and
  what it means for you                    recommendations, and has been
                                           reviewed by Australian experts in the
• u
   nderstand how medicines can
                                           field of arthritis to make sure it is
  help treat gout attacks and
                                           current and relevant to your needs.
  prevent future attacks
                                           So go ahead — take control of
• w
   ork with your healthcare team
                                           your gout!
  to manage the disease in the
  short and long term

    © Copyright Arthritis Australia 2014

    Supported by:

    AstraZeneca Pty Limited ABN 54 009 682 311
    Alma Road, North Ryde NSW 2113

2        Taking control of your Gout
Gout Taking control of your - A practical guide to treatments, services and lifestyle choices
Contents

Understanding gout                                                                     4
Treating gout                                                                         10
Diet and lifestyle                                                                    16
Who can help?                                                                         21
Working with your GP                                                                  22
Seeing a rheumatologist                                                               23
Other health professionals                                                            24
Seeking support                                                                       26
Glossary of terms                                                                     28
Useful resources                                                                      29

Medical and consumer consultants
Tanya deKroo, Information Resources Coordinator, Arthritis Australia
Wendy Favorito, Arthritis Australia Consumer Representative and Board Member
Assoc Prof Neil McGill, Rheumatologist
Assoc Prof Julian McNeil, Rheumatologist and Chair of Australian Rheumatology
Association’s Therapeutics Committee
Assoc Prof Peter Youssef, Rheumatologist and Chair of Arthritis Australia’s Scientific
Advisory Committee

                                                                Arthritis Australia        3
Gout Taking control of your - A practical guide to treatments, services and lifestyle choices
Understanding gout

What is gout?                                the main reason for more than
Gout is an extremely painful form            nine out of ten people with gout).
of arthritis. Often referred to as the    If uric acid levels remain high, small,
‘disease of kings’, it was thought that   needle-like crystals of monosodium
gout resulted from overeating and         urate monohydrate (urate) start
drinking too much alcohol. In fact,       forming in and around the joints
gout can affect anyone regardless         (Refer figure 1 on page 5). These
of diet and alcohol intake.               crystals form slowly, over months or
Gout occurs as a result of high levels    even years. A gout attack occurs when
of uric acid in the body.                 there is inflammation in the joints
                                          where these crystals have formed.
    What is uric acid?                    As the gout attack settles, the pain
                                          and inflammation will disappear but
    Uric acid is present in small         the crystals still remain in the joint(s).
    amounts in our blood. It is
    made as our bodies break
    down natural substances called        What are the symptoms
    purines. Purines are found in         of gout?
    our bodies’ cells, as well as         Generally, the first symptom of gout is
    some of the foods we eat.             severe pain from a gout attack.
                                          Uric acid levels can be high for months
                                          or even years before a gout attack
Our kidneys usually remove any            occurs. An attack of gout usually comes
excess uric acid from our bloodstream     on very quickly, over just a few hours,
into our urine. However, people
                                          and often overnight. The affected
with gout have higher-than-normal
                                          joint(s) becomes inflamed, causing
amounts of uric acid in their bodies.
                                          intense pain, redness, heat and swelling.
This can be a result of:
                                          Often the joint is extremely sore to
• producing too much uric acid           touch – even just the light pressure of
     and/or                               the bed sheets can be excruciating.
• t he kidneys being unable to           Without treatment, a gout attack
   remove it quickly enough (this is      usually lasts about one week.

4       Taking control of your Gout
Gout Taking control of your - A practical guide to treatments, services and lifestyle choices
While the affected joint(s) is                                 What causes gout?
inflamed, it can be extremely painful                          Gout occurs in people with
to walk or use the joint normally.                             higher-than-normal levels of uric acid
Gout commonly affects the big                                  in their body. Some people with gout
toe, although other joints can be                              may produce too much uric acid.
                                                               More commonly, it results from the
affected, including the ankles, knees,
                                                               kidneys being unable to get rid of
hands, wrists and elbows.
                                                               enough of the excess uric acid. Some
Urate crystals can also collect under                          of the known risk factors for having
the skin forming small, solid, white                           high uric acid levels include:
painless lumps called tophi (Refer                             • G
                                                                  enetic factors: Having
figures 2 and 3 on page 6 and 7).                                higher-than-normal uric acid
The most common places tophi form                                levels can run in families and
are on the toes, ears, fingers, hands,                           is one of the most common
forearms, knees and elbows.                                      causes of gout

                                                                                  FIGURE 1
         Bone                                                                Cross-section
       Capsule                                                               of joint with
   (ligament)                                                                urate crystals
    Synovium
      Cartilage
         Urate
       crystals                                                                 Cross-section of
                                                                                a joint showing
                                                                                urate crystals
                                                                                deposited in
                                                                                the cartilage

Graphics used with kind permission of Arthritis Research UK.

                                                                              Arthritis Australia   5
Gout Taking control of your - A practical guide to treatments, services and lifestyle choices
Understanding gout

• Being overweight or obese                                               • O
                                                                             vereating, particularly certain
                                                                            foods that are linked with gout
• H
   aving high cholesterol, high
                                                                            attacks, although this is still not
  blood pressure or glucose
                                                                            well understood from research.
  intolerance
                                                                            See page 16 for information
• Having kidney disease                                                     about gout and diet
• T aking certain diuretics (‘water                                      • D
                                                                             rinking too much alcohol may
   tablets’): These medicines drain                                         raise uric acid levels in the blood
   water from the body and can                                              by increasing the production
   affect the kidney’s ability to get                                       of uric acid and reducing how
   rid of uric acid.                                                        much is passed out in urine. Gout
                                                                            attacks seem to be more common
Some people can have high uric acid                                         in beer and spirits drinkers than in
levels but do not experience gout                                           people who drink wine. However
attacks. However, if you’re prone to                                        there is no scientific proof that
gout, several factors have been linked                                      only certain types of alcoholic
to gout attacks including:                                                  drinks cause gout

                                                                                                          FIGURE 2
                                                                                                  Gout affecting
                                                                                                   the big toe

                                                                                                          Gout most
                                                                                                          commonly affects
                                                                                                          the big toe. The
                                                                                                          joint becomes red,
                                                                                                          hot, swollen and
                                                                                                          extremely painful.

Photography
  Photographyused
              usedwith
                    withkind
                         kind permission
                              permission ofofElsevier.
                                              Elsevier.©©Elsevier
                                                           Elsevier 2011.
                                                                  2011.    Taken
                                                                        Taken fromfrom Rheumatology,
                                                                                    Rheumatology,        fifth edition.
                                                                                                  fifth edition.
  Edited
Edited byby MarcCCHochberg,
          Marc     Hochberg, Alan
                              Alan JJ Silman,
                                      Silman,Josef
                                               JosefS SSmolen,
                                                        Smolen,Michael  E Weinblatt
                                                                  Michael           and and
                                                                           E Weinblatt  Michael H Weisman.
                                                                                            Michael   H Weisman.
Graphics used with kind permission of Arthritis Research UK.

6           Taking control of your Gout
Gout Taking control of your - A practical guide to treatments, services and lifestyle choices
Understanding gout

• C
   onsuming large amounts of                                            Who is affected by gout?
  fructose, a type of sugar, can                                         Anyone can get gout. However, gout
  increase uric acid levels in the                                       in pre-menopausal women is rare
  blood. It is found in high levels in                                   and your doctor may wish to further
  soft drinks sweetened with corn                                        investigate your symptoms.
                                                                                           Gout most
  syrup (not used in soft drinks                                                     commonly affects
                                                                                     the big toe. The
  manufactured in Australia) and                                         Can gout cause
                                                                                     jointlong-term
                                                                                           becomes red,
  fruit juices                                                           problems? hot, swollen and
                                                                                     extremely painful.
• D
   ehydration (not drinking                                           Once the inflammation of a gout
  enough water)                                                        attack settles down, your joints may
 Photography used with kind permission of Elsevier. © Elsevier 2011. Taken from Rheumatology, fifth edition.
                                                                       feel normal
 Edited by Marc C Hochberg, Alan J Silman, Josef S Smolen, Michael E Weinblatt  and Michaelagain.
                                                                                           H Weisman.However, the urate
• Being ill with a fever
                                                                       crystals remain in the joints.
• ‘Crash diets’ or fasting
• Having an operation
• Injury or trauma to the joint.

                                                                                                         FIGURE 3
                                                                                               Tophi caused by
                                                                                               urate collecting
                                                                                                under the skin

                                                                                                     Urate may collect
                                                                                                     under the skin,
                                                                                                     forming small white
                                                                                                     pimples (tophi),
                                                                                                     but these aren’t
                                                                                                     usually painful

Photography
 Photography used with kind
             used with kindpermission
                            permissionofof    Elsevier.
                                           Elsevier.    © Elsevier
                                                     © Elsevier    2011.
                                                                2011.     Taken
                                                                      Taken from from   Rheumatology,
                                                                                  Practical            fifth
                                                                                            Rheumatology,     edition.
                                                                                                          third edition.
Edited
 Editedby
        byMarc
          Marc C
               C Hochberg,  AlanJ JSilman,
                 Hochberg, Alan      Silman,   Josef
                                            Josef    S Smolen,
                                                  S Smolen,      Michael
                                                             Michael      E Weinblatt
                                                                      E Weinblatt       and Michael
                                                                                  and Michael        H Weisman.
                                                                                               H Weisman.
Graphics used with kind permission of Arthritis Research UK.

                                                                                                     Arthritis Australia     7
Gout Taking control of your - A practical guide to treatments, services and lifestyle choices
Understanding gout

Another attack may not happen for         are crucial in preventing long-term
months or even years. If gout is not      complications from gout.
managed well and uric acid levels
remain higher-than-normal, the time       How will my doctor
between attacks may get shorter, the      diagnose gout?
attacks may become more severe and
                                          Many people with gout do not
more joints may be affected.
                                          receive the right treatment because
The first few attacks of gout may not     they have not been diagnosed
cause any permanent damage to the         properly in the first place.
joint(s). However, if uric acid levels
                                          The only way to diagnose gout with
remain high over time, gout can
                                          certainty is by your doctor looking at
progress into a chronic (long-term)
                                          samples of your joint fluid under a
condition causing:
                                          microscope. A needle is used to draw
• F ormation of tophi (solid lumps       a small amount of fluid from one of
   of urate crystals), especially on      your affected joints. This fluid is then
   the toes, ears, fingers, hands,        examined under a microscope to see
   forearms, knees, and elbows            whether urate crystals are present. If
   (Refer figures 2 and 3 on pages        the crystals are present, your doctor
   6 and 7)                               can confirm that you have gout. If
                                          there are no crystals in your joint
• P ermanent damage to the
                                          fluid, your doctor will consider other
   cartilage and bone due to the
                                          causes for your symptoms, such as an
   formation of tophi inside the joint.
                                          infection in the joint.
   This can lead to constant mild
   pain and inflammation, similar to      A blood test can measure the
   osteoarthritis                         amount of uric acid in your blood.
                                          If uric acid levels are higher than
• Kidney stones.                          normal, this can help support a
The good news is that, although           diagnosis of gout. However blood
gout is very painful, it is extremely     tests can sometimes show normal
treatable for most people. Early          uric acid levels during an attack.
diagnosis and the right treatment         Blood tests are most useful for

8      Taking control of your Gout
Gout Taking control of your - A practical guide to treatments, services and lifestyle choices
Understanding gout

working out if your symptoms
are due to other conditions, or to      Top tip: Be certain it’s gout
monitor your uric acid levels once
you have started treatment for gout.
X-rays are often normal in the early
stages of gout so are not very useful
in diagnosing gout. They may show
signs of joint damage if you have
had poorly managed gout over an
extended period.

                                                    Arthritis Australia   9
Gout Taking control of your - A practical guide to treatments, services and lifestyle choices
Treating gout

There are two main parts to treating         (needle) into a joint or muscle.
gout:                                        Corticosteroids are usually given
                                             only for a few days as a treatment
1. Treatment of the gout attack
                                             for gout and so do not normally
2.	Treatment to lower uric acid levels      cause any of the serious side
    and prevent future gout attacks.         effects that can occur with
                                             long-term use of these medicines.
Treating a gout attack                    • Colchicine: This medicine helps
There are several medicines that             to reduce pain and swelling
can help reduce the pain and                 during gout attacks, particularly
inflammation of a gout attack:               if NSAIDs cannot be used for
                                             safety reasons. Side effects, such
• N
   on-Steroidal
                                             as nausea, vomiting or diarrhoea,
  Anti-Inflammatory Drugs
                                             are common so your doctor will
  (NSAIDs): These medicines reduce           usually recommend low dosages
  pain and inflammation in the joints.       of this medicine. This typically
  Some NSAIDs can be bought                  involves 1mg (milligram) initially,
  over-the-counter while others are          0.5mg one hour later and then
  only available with a prescription.        no further colchicine for 24 hours.
  Like all medicines, NSAIDs can             Seek advice from your doctor if
  cause side effects so it is important      you experience any side effects,
  to get advice from your doctor             as he/she may alter the dose or
  before taking them. Your doctor will       prescribe a different medicine.
  recommend the lowest dose for the
                                          Taking your prescribed medicine at
  shortest period of time to reduce
                                          the first sign of a gout attack can
  your risk of developing side effects.
                                          help reduce the length and severity
• C
   orticosteroid injections or           of the attack so work with your
  tablets: This type of medicine          doctor to find the right treatment
  is also very effective in reducing      plan for you. Have your prescribed
  gout pain and inflammation.             medicines readily available so you can
  Corticosteroids can be given            start treatment as early in the attack
  as a tablet or as an injection          as possible.

10     Taking control of your Gout
Applying ice/cold packs to the        Treatments to lower uric acid
painful joint for ten to fifteen      levels and prevent attacks
minutes at a time, may help reduce    There are several medicines that
pain. You may also need to protect    lower uric acid levels in the blood
the affected joint. For example, if   to prevent future gout attacks. Your
your big toe is affected you may      doctor may suggest taking these
                                      medicines if you are having frequent
need to limit the amount of walking
                                      gout attacks, your blood tests show
and standing you do, and create a     high levels of uric acid, or you
bed cradle to keep the bed sheets     develop tophi, kidney stones or signs
off your foot when sleeping.          of permanent joint damage.

                                                     Arthritis Australia   11
Treating gout

These medicines need to be taken         acid levels to work out the right
every day, even if you are not having    dose for you. It may take several
a gout attack. They can be very          months of gradually increasing the
effective in lowering blood uric acid    dose to find the right amount as
levels and controlling gout, if:         taking sudden, high doses of these
                                         medicines can actually cause a gout
• Y
   ou continue taking the medicine.
                                         attack. Bringing uric acid levels down
  Keep in mind your doctor
                                         slowly, by starting with a low dose
  may recommend you take the             of these medicines and gradually
  medicine forever                       increasing the dose, is much less
• Y
   ou take the medicine and do not      likely to trigger an attack and can
  miss doses                             reduce the risk of side effects. Your
                                         doctor may also suggest taking other
• You take the full/correct dose.        medicines, such as a very low dose of
The medicines that reduce uric acid      colchicine, to protect against a gout
levels work in slightly different ways   attack during the first few months of
and can produce varying side effects.    starting these medicines.
Examples of medicines that can lower
uric acid levels in the blood include:     Top tip: Ask your doctor
• A
   llopurinol, which decreases the        about medicines to
  body’s production of uric acid           lower your uric acid
• P robenicid, which increases the        levels for long-term gout
   kidney’s ability to remove uric         management
   acid into the urine
• O
   ther medicines may also be
                                         The medicines used to treat a gout
  available through specialist
                                         attack only treat the pain and
  doctors if your uric acid levels
                                         inflammation. They do not affect
  are not controlled with these
                                         uric acid levels so you must continue
  medicines.
                                         taking your regular dose of uric acid
When first taking these medicines,       lowering medicine (for example
your doctor will monitor your uric       allopurinol) during a gout attack.

12     Taking control of your Gout
Treating gout

  Know your target uric acid level
  The goal of treatments for gout is to lower uric acid levels to a
  level that prevents gout attacks and other long-term problems.
  Your uric acid levels can be checked with a blood test. For most
  people with gout, the target uric acid level (serum urate) level you
  are aiming to achieve is

            Less than 0.36 millimoles per litre (
Treating gout

Call the Arthritis Helpline              professional advice without knowing
1800 011 041 for copies or visit         all the treatments you are using. This
www.rheumatology.org.au or               includes vitamin supplements, herbal
www.arthritisaustralia.com.au            medicines and other therapies.
                                         See Arthritis Australia’s
Can natural or alternative               Complementary therapies
therapies help?                          information sheet for more about the
There are many promises made for         safe use of these types of treatments
non-medical ‘cures’ or treatments        at www.arthritisaustralia.com.au
to ease gout – but there’s very little
proof that any of these work and
further research is needed. For
example, there is very little evidence
that supplements such as celery seed
or garlic are helpful in reducing the
symptoms of gout.
Because herbal, homeopathic,
ayurvedic or Chinese medicines may
affect the treatments prescribed by
your doctor, please tell your GP and
specialist what other treatments you
are thinking about using.
You may feel concerned that your
doctor or other members of your
healthcare team will disapprove of
complementary therapies. However
it is very important to keep your
healthcare team informed, even if
they do not approve. Your healthcare
team, particularly your doctor and
pharmacist, can’t give you the best

14     Taking control of your Gout
Treating gout

Arthritis Australia    15
Diet and lifestyle

                                   There are many beliefs and claims
                                   about the role of diet and other
                                   lifestyle factors in preventing and
                                   managing gout. Research has shown
                                   certain factors are associated with
                                   having gout. For example, people
                                   with gout may tend to eat similar
                                   types of foods or drinks. However
                                   it has not been proven that any of
                                   these factors actually cause someone
                                   to develop gout. Although there
                                   is little scientific proof about the
                                   usefulness of many of these lifestyle
                                   changes to prevent gout, there can
                                   be definite benefits for your general
                                   health and wellbeing.

                                   Purine-rich diet
                                   Several studies have shown that people
                                   who have gout are more likely to eat
                                   high amounts of purine-rich foods.
                                   These foods are often reported to
                                   trigger gout attacks as purines are
                                   made into uric acid by the body. Some
                                   of the purine-rich foods commonly
                                   linked to gout attacks include:
                                   • m
                                      eat – particularly red meat and
                                     offal, such as liver, kidneys and
                                     heart
                                   • s eafood – particularly shellfish,
                                      scallops, mussels, herring,
                                      mackerel, sardines and anchovies

16   Taking control of your Gout
• f oods containing yeast – such as      are linked to gout. For example, a
   Vegemite and beer.                     number of vegetables (asparagus,
                                          mushrooms, cauliflower and spinach)
However there is very little good
                                          are rich in purines but do not appear
quality, scientific evidence to show
                                          to trigger gout attacks. Dairy foods
that eating foods rich in purines
                                          (which can contain purines) actually
actually causes gout. Additionally,
                                          appear to lower our risk of gout.
there is little proof that avoiding the
purine-rich foods in the list above can   Completely cutting purine-rich foods
reduce gout attacks. In fact, research    from your diet may cause you to miss
shows that not all purine-rich foods      out on important nutrients and vitamins.

                                                          Arthritis Australia   17
Diet and lifestyle

For most people with gout, a healthy       syrup may be beneficial for your
balanced diet is all that is needed to     overall health. However naturally
manage gout, alongside medicines to        occurring fructose in fruit and
reduce uric acid levels.                   vegetables also provides general
                                           health benefits and should not be
If you notice certain foods trigger
                                           completely avoided without advice
your gout attacks, you may benefit
                                           from your doctor or dietitian.
from cutting down the amounts of
those foods in your diet. Most
people taking medicines to reduce
uric acid levels find they can still eat
purine-rich foods without attacks
of gout by being careful with the
quantity they eat.

Fructose
Fructose is a sugar that is found in
fruits and vegetables. High fructose
corn syrup - a mixture of glucose
and fructose - is often used as a
sweetener in food products such as
bread, cereal and soft drinks (not
Australian-made soft drinks). An
American study found that men who
drank five to six servings of
fructose-sweetened soft drinks
per week were more likely to have
gout. However there is no research
showing that fructose actually causes
gout or that other fructose-rich foods
can be linked to gout. Cutting down
on the amount of food artificially
sweetened with high fructose corn

18     Taking control of your Gout
Diet and lifestyle

Weight loss                              www.eatforhealth.gov.au. For
                                         help with weight loss, you can ask
                                         your GP to refer you to a dietitian
                                         or find one directly via the Dietitians
                                         Association of Australia - call
                                         1800 812 942 or visit www.daa.asn.au

                                         Alcohol
                                         Drinking large amounts of alcohol
                                         may increase your risk of a gout
                                         attack. Alcohol affects the ability of
                                         the kidneys to remove uric acid from
An obese person is four times more       the blood. Some types of alcohol,
likely to develop gout than someone      such as beer, are rich in purines,
with ideal body weight. If you are       which can also lead to increased uric
overweight, gradual weight loss can      acid levels. However many people
help lower uric acid levels and reduce   with gout can control gout attacks
the risk of gout attacks. However        without completely cutting out
it is important to avoid fasting or      alcohol. Try reducing the amount of
‘crash’ dieting, where you go without    alcohol you drink and avoid binge
adequate food for long periods           drinking (drinking a lot of alcohol
and lose weight rapidly. This type       at one time). Gout attacks are more
of dieting can actually increase uric    common in beer and spirits drinkers
acid levels and trigger a gout attack.   than in people who drink wine.
A combination of balanced healthy        However there is no scientific proof
eating and regular physical activity     that only these types of alcoholic
is the best way to lose weight. The      drinks lead to gout attacks. Talk to
Australian Government provides           your doctor for advice about
advice about the amount and kinds        your alcohol intake or see
of foods that we need to eat for         www.alcohol.gov.au for
health and wellbeing including           Australian Government Guidelines on
Australian Dietary Guidelines at         recommended alcohol consumption.

                                                         Arthritis Australia     19
Diet and lifestyle

Other healthy lifestyle
choices                                   Top tip: A healthy diet
• D
   rink enough water:                    and lifestyle can help you
  Dehydration (not drinking enough        manage your gout
  water) may be a risk factor for
  gout although this is not well
  proven in research. Drinking
  1 – 1.5 litres of fluids a day is
  recommended for general health
  benefits. If you are taking diuretics
  (also known as ‘water pills’ or
  tablets which help the body get
  rid of water) or have heart or
  kidney problems, follow your
  doctor’s advice about how much
  water you should be drinking.
• V
   itamin C: Vitamin C appears
  to reduce the risk of developing
  gout although it does not seem to
  reduce uric acid levels in people
  already with gout.
• S
   tay active and try to fit in
  at least 30 minutes of physical
  activity most days of the week.
• Quit smoking.

20     Taking control of your Gout
Who can help?

The good news is that gout can          practical advice. Contact your
be effectively managed - and a          State/Territory Arthritis Office on
team approach is the best way to        1800 011 041. They can provide
combat it. This involves you and your   information and introduce you to
healthcare professionals together       support groups, exercise programs
with support from family, friends and   and other arthritis management
community organisations.                services. See Arthritis Australia’s
                                        range of information sheets at
How can you help?                       www.arthritisaustralia.com.au
Remember, you are the most
important member of your
healthcare team. By understanding
your condition and how to stay on
top of it, you can carry on living a
normal life.
Work closely with your healthcare
team to develop a management
plan for your gout. This will include
medicines to treat a gout attack and
possibly medicines to lower uric
acid levels. This will help you be
actively involved in your care and
decision-making about treatments.
With the right treatment, gout
doesn’t have to get in the way of
working, travelling, relationships,
hobbies and leisure activities.
Understand how your treatments will
help and how to get the most out
of them. Your healthcare team can
address your concerns and provide

                                                       Arthritis Australia    21
Working with your GP

How can my GP help?                       When should I see my GP?
Your GP is an important partner in        • Y
                                             ou should visit your GP when
managing your gout. They can also           you have your first gout attack.
help you to access other specialists,       Your GP can prescribe the right
health professionals and services.          medicines to treat the initial gout
Your GP will most likely make the           attack and advise about medicines
initial diagnosis of gout and may refer     that lower uric acid levels to
you to a rheumatologist (arthritis          prevent future attacks.
specialist) if required.
                                          • Y
                                             our GP should also regularly
Once your gout is fully assessed,           monitor your uric acid levels to
your GP or specialist may prepare           make sure they are staying below
a care plan to manage the services          the target levels described on
and treatments you require. They            page 13. This may take several
will prescribe medicines and other          visits when you are first taking
lifestyle changes to improve your           medicines to lower your uric acid
symptoms and will also see you              levels and then may require a
regularly to monitor your uric acid         blood test every six months.
levels and check your treatment is
                                          • V
                                             isit your GP immediately if you
still keeping your levels to the target
                                            notice your gout attacks are
level.
                                            becoming more severe, more
Your GP may employ a practice nurse         frequent or affecting more joints.
to coordinate your care and access to
services.
                                            Top tip: Work with your
How do I find a GP?                         doctor to develop a
If you don’t have a regular GP, find        management plan for
one who can support you. Speak to           your gout
your local practice or medical centre.

22     Taking control of your Gout
Seeing a rheumatologist

How can a rheumatologist                 • Y
                                            our GP may recommend a
help?                                      rheumatologist
Rheumatologists are doctors who          • Y
                                            ou can also contact the
specialise in problems of the joints       Australian Rheumatology
such as gout. Your GP may refer you        Association on (02) 9252 2334 or
to a rheumatologist if:                    visit www.rheumatology.org.au
                                           to find a rheumatologist (but
• it is unclear whether you have
                                           you will still need a referral
   gout or if your symptoms are
                                           from your GP).
   caused by another condition
• y our gout attacks are not            When should I see my
   prevented with medicines to
                                         rheumatologist?
   lower your uric acid levels or are
   becoming more severe                  • Y
                                            our rheumatologist may initially
                                           want to see you every few weeks
• y ou require an injection into your     to work out how well your uric
   joint                                   acid levels are responding to
• you
    and your GP wish to seek             treatment.
  advice about newer treatments.         • O
                                            nce the treatment is working
While your GP may have prescribed          well to control your gout, you
some medicines to treat and prevent        may only need to return to the
gout attacks, the rheumatologist           rheumatologist if your gout
might also recommend other                 attacks or other symptoms start
medications to control your symptoms.      to worsen.

How do I find a
rheumatologist?
• Y
   ou will need a referral from
  your GP to see a rheumatologist
  - they will then stay in touch to
  coordinate your care

                                                        Arthritis Australia   23
Other health professionals

Your GP or rheumatologist may also       inserts or advice on footwear to
refer you to other therapists for        reduce pain in your toes and/or feet.
further advice.
                                         See the section on Seeking support
                                         on page 26 for information on health
How can other health                     professionals who can help you to
professionals help?                      cope with the emotions you may
A dietitian can give you tailored        be feeling.
advice about weight loss, if you are
overweight, and provide advice about
a healthy, balanced diet to improve      How do I find a health
your general wellbeing.                  professional?
A physiotherapist (physio) can           • Y
                                            our GP or rheumatologist can
show you exercises to do at home to        provide a referral, or you can
strengthen and stretch the muscles         contact a private therapist directly
in your joints and improve your            (see Useful resources on page 29).
function. They will also show you
                                         • If your GP refers you to a health
pain relief techniques to use at home,
                                            professional as part of a care
including the use of heat packs and
walking sticks, to keep your joints as      plan, you may be able to have
flexible and pain-free as possible.         five sessions per year funded by
                                            Medicare. Ask your GP for more
An exercise physiologist can give
                                            information.
you advice about exercise, including
how to get started safely and the        • M
                                            ost health professionals are
best type of exercise for your health      available in the public health
and ability. If you need to lose           system (such as at a community
weight, they can also design an            health centre or public hospital).
exercise program to work alongside         There is often a waiting list and
a healthy diet.                            you will usually need a referral
A podiatrist can help take care of         from your GP. Their services are
your feet, perhaps by providing shoe       usually free or low cost.

24    Taking control of your Gout
When should I see a health
professional?
• Y
   ou may be referred to one or
  more therapists soon after your
  diagnosis of gout by your GP or
  rheumatologist.
• A
   sk your GP or rheumatologist
  about seeing a health professional
  if you notice your physical
  condition or abilities change.

                                       Arthritis Australia   25
Seeking support

Why me?                                    They may also refer you to a
It’s perfectly normal to wonder why        counsellor or psychologist, who
you have developed gout, and to            can talk to you about your worries,
feel angry, worried, frightened or         feelings and moods, then suggest
confused about it. By taking control       practical ways to work through
of your gout and working with your         them. If you want to contact a
healthcare team, you can approach          psychologist directly, call the Australian
the disease with a positive attitude.      Psychological Society on 1800 333 497
However, sometimes the condition           or visit www.psychology.org.au
can get you down, especially if            beyondblue provides information
repeated gout attacks are affecting        and advice about depression, anxiety,
your everyday life. It may also feel as    available treatments and where to get
though people around you, even close       help. Visit www.beyondblue.org.au
friends or family, don’t understand        or call 1300 22 4636.
what you’re going through.
                                           Lifeline provides a 24hr confidential
                                           telephone crisis support service for
Who can help?                              anyone across Australia experiencing
There are many people who can help         a personal crisis. Call 13 11 14.
you deal with the emotional side of
gout. Your first step is to try to talk
honestly with your partner, parents
                                           What about information
or children about how you feel. Give       from websites?
them a chance to talk too – they           The web can be a useful source of
might have worries or feel that they       information and support. However,
don’t know enough about your               not everyone who puts information
disease and how it is affecting you.       on the web is a qualified health
                                           practitioner.
Visit your GP if you are worried that
unwanted feelings are too strong or        Some organisations make unrealistic
have been there for a long time. Your      promises in order to sell their
GP may be able to suggest ways of          products. Treatment options and
coping, or may prescribe medicines if      practices from overseas may also not
you are especially worried or depressed.   be relevant or approved in Australia.

26     Taking control of your Gout
Always check information from the      is an excellent starting point for web
web with a trusted member of your      searches, as every site that
healthcare team.                       Healthdirect links to has been
The Australian Government’s            checked for quality and accuracy
Healthdirect www.healthdirect.gov.au   of information.

                                                       Arthritis Australia   27
Glossary of terms

Arthritis            are-thry-tiss       A name for over 100 different conditions
                                         that affect the joints.
Corticosteroid       core-tick-o-ster-   A type of medicine that is very effective in
                     oyd                 reducing inflammation in the joints.
Dietitian            die-et-ish-un       A health professional who can help you with
                                         a healthy diet and weight loss.
Inflammation         in-fla-may-shun     The body’s response to damage or infection.
                                         Inflammation can cause pain, swelling,
                                         warmth, redness and difficulty moving the
                                         joint.
NSAIDs               en-sayds            A group of medicines known as non-steroidal
                                         anti-inflammatory drugs. These can reduce
                                         inflammation and pain.
Purines              pyu-reens           Natural substances found in the body’s cells
                                         and many different foods.
Rheumatologist       roo-ma-tol-o-jist   A doctor who is a specialist in treating
                                         problems of the joints such as gout.
Tophi                toe-fi              Hard lumps of urate crystals that form
                                         beneath the skin on the ears, fingers, hands,
                                         forearms, knees, and elbows.
Uric acid            you-rick a-sid      A normal waste product found in the
                                         blood. It is made as our bodies break down
                                         substances called purines.
Urate                you-rayt            A normal waste product found in the
                                         blood. It is made as our bodies break down
                                         substances called purines.

28      Taking control of your Gout
Useful resources

Australian resources
For access to quality online                      To find a podiatrist, contact the
information about gout, start at                  Australasian Podiatry Council
Healthdirect                                      www.apodc.com.au
www.healthdirect.gov.au                           Ph: (03) 9416 3111

For advice on healthy eating and                  To find an exercise physiologist,
appropriate exercise, visit Healthy               contact Exercise and Sports Science
                                                  Australia www.essa.org.au
Active www.healthyactive.gov.au
                                                  Ph: (07) 3862 4122
To find a specialist, contact the
                                                  To find a dietitian, contact the
Australian Rheumatology Association
                                                  Dietitians Association of Australia
www.rheumatology.org.au                           www.daa.asn.au
Ph: (02) 9252 2334                                Ph: 1800 812 942
To find a physiotherapist, contact the            To find a psychologist, contact the
Australian Physiotherapy Association              Australian Psychological Society
www.physiotherapy.asn.au                          www.psychology.org.au
Ph: 1300 306 622                                  Ph: 1800 333 497

International resources
The public area on the website                    Arthritis Research UK also provides
of the American College of                        a wide variety of information for
Rheumatology contains many                        people with gout
useful resources                                  www.arthritisresearchuk.org
www.rheumatology.org/public
The Gout and Uric Acid Education
Society (US) has information for
both medical professionals and
people with gout at
www.gouteducation.org

Please keep in mind that some issues and treatments from overseas may not be relevant in Australia.

                                                                     Arthritis Australia     29
Notes

30   Taking control of your Gout
My contact details
My name:..................................................................................................
Telephone:.................................................................................................

My GP
Name:........................................................................................................
Telephone:.................................................................................................

My specialist
Name:........................................................................................................
Telephone: ................................................................................................

My support team
Name:........................................................................................................
Telephone: ................................................................................................

Name:........................................................................................................
Telephone: ................................................................................................

My medicines
                Name                          Dosage                       Instructions

                                                                            Arthritis Australia         31
Arthritis Australia
Arthritis Australia is a not-for-profit organisation that provides support and
information for all Australians affected by arthritis.
Contact your State/Territory Arthritis Office to find out about the range of awareness
and education programs, support services and resources available.
Arthritis Helpline: 1800 011 041 www.arthritisaustralia.com.au

Arthritis ACT                                 Arthritis South Australia
Level 2B Grant Cameron                        118-124 Richmond Road
Community Centre                              Marleston SA 5033
27 Mulley Street Holder ACT 2611
PO Box 4017 Weston Creek ACT 2611             Arthritis Tasmania
                                              19A Main Road
Arthritis New South Wales                     Moonah TAS 7009
Suite 1.15 32 Delhi Road                      GPO Box 1843 Hobart TAS 7001
North Ryde NSW 2113
Locked Bag 2216 North Ryde NSW 1670           Arthritis Victoria
                                              263–265 Kooyong Road
Arthritis Northern Territory                  Elsternwick VIC 3185
Shop 18 Rapid Creek Business Village          PO Box 130 Caulfield South VIC 3162
48 Trower Road, Millner NT 0810
PO Box 452 Nightcliff NT 0814                 Arthritis Western Australia
                                              17 Lemnos Street
Arthritis Queensland                          Shenton Park WA 6008
1 Cartwright Street                           PO Box 34 Wembley WA 6913
Windsor QLD 4030
PO Box 2121 Windsor QLD 4030

Arthritis Australia Level 2, 255 Broadway Glebe NSW 2037
Mail: PO Box 550 Broadway NSW 2007
Phone: 02 9518 4441 Fax: 02 9518 4011
Email: info@arthritisaustralia.com.au
Web: www.arthritisaustralia.com.au
Arthritis Helpline: 1800 011 041                                        ISBN: 978-0-9923052-1-5
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