Featuring - Bringing Families and Carers Together - Turning Point
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2020 Edition 1 Bringing Families and Carers Together Featuring... Page Good News Stories - 02 Brian’s Race for the British Heart Foundation. Page Inspired by Possibility 03 Recognition Awards 2020 Page People’s Parliament 07 in Action
Contents 01 Clare’s Introduction 02 Good News Stories • Brian’s Race for the British Heart Foundation Clare’s Introduction 05 Inspired by Possibility Clare Taylor Recognition Awards 2020 Turning Point Director of Mental Health and Learning Disabilities 07 People’s Parliament I would like to welcome you all to We have established an internal in Action • National People’s our 2020 Edition 1 of the Family Microsite dedicated to our Parliament 2019 – Working Link. 2020 has proved to be a COVID–19 response and we Towards Co-production challenging year worldwide and ensure all up to date guidance I’d like to begin by explaining how for managers and staff is kept we are responding to Covid-19. in this place. All our guidance 10 Turning Point News We take the health and wellbeing of our staff and the people we is based on PHE guidance for working with people in residential settings, care homes and in the • Internal support extremely seriously community. This includes guidance • CQC Ratings and we’re doing everything we on prevention and minimising risk, • Growth can to minimise the spread of as well as guidance for staff on • Family Survey Coronavirus (Covid-19) while Personal Protective Equipment Initial Data 2019 continuing to offer support. Our (PPE) – what needs to be worn in services across the country are what situation and when carrying 14 operating quite differently from out different types of support normal in order to keep people and activities. We know what safe. This includes temporary each home and service needs Turning Point’s Contribution suspension of all non-essential and have made sure they have to Learning Disability face to face services including enough on site to work safely. Today Study Day 2019 group work, social activities, We have created regional PPE • How to Move Away drop-ins, outreach etc, moving to hubs to store stock – meaning from Psychotropics remote counselling and coaching we can get additional supply either via phone or video calls. out to homes and services in 15 This will run until further notice. a timely way when required. Turning Point News Clare’s Introduction • External continued... 01
Good News Clare’s Introduction continued... The link below will allow you to access resources to support families / carers of people with learning disabilities through the Coronavirus restrictions. Story Click here For this edition of the link, we have Brian’s Race for put a spot light on another successful National people’s parliament which the British Heart showcases how the people we support are making positive change for their Foundation immediate and wider communities, by advocating for their peers and For a very long time Brian’s aspiration executing co-produced projects. We are also celebrating six amazing was to compete in the local Cumbrian run. people who we support whom Brian finally had the chance to realise have received recognition for their that dream when he was supported to extraordinary progress at this years take part in the Cumbrian 5K. Brian fol- inspired by recognition awards. lowed a vigorous training regime leading up to the race so that when the big day came he was well prepared to smash the challenge. Brian did this in memory of his mum and raised over £100 which is a massive achievement. The British Heart Foundation recognised Brian’s passion for the cause and has since offered him a volunteering opportunity where he supports the As always, we also recruitment process for volunteers and staff for the British Heart Foundation. want to hear from This is a really important role which Brian you. You can send takes very seriously, this has given Brian an opportunity to continue to support in your photos of the charity which is close to his heart, and also build on his own skills and confidence. your visits to your Everyone is so proud of the contribution Brian is making to the great charity. loved ones and we will publish these in the next edition. Enjoy. 02
Inspired by Possibility Recognition Awards 2020 Turning Point launched our Inspired by Possibility Recognition Scheme for 2020 which celebrates those people we support who have achieved progress in their lives and have truly been inspired by possibility during 2019. This scheme sits alongside our Inspired by Possibility Awards for employees and our scheme for peer mentors and volunteers. People we support, family seem – we wanted this process candidates along with employees members and employees had to be as inclusive as possible. or family members, members the opportunity to nominate of the Turning Point leadership individuals who they believed We were very pleased by the team and non-executive members fit the criteria and were large response in nominations enjoyed a beautiful 3 course meal deserving of the recognition. and although we would love to and awards ceremony at the have awarded all nominees with prestigious Hotel Indigo ‘The Cube’ We know everyone goes on recognition, we were only able overlooking Birmingham city. a different journey and we’re to shortlist 18, 6 of who were inspired everyday by the changes individuals supported in the We are very proud to introduce the people we support are making, learning disabilities sector. To those individuals and share a no matter how big or small they celebrate, all of the shortlisted snapshot of their stories: Stacey Vincent I have recently met with Stacey, her mum and sister was something Stacey and her mum found funny but as Stacey wanted to tell me what her team could both were happy Stacey was speaking up in areas of do better. Stacey and her mum told me that it is her life! Stacey is very happy with what she is doing thanks to her support at Turning Point that Stacey at the moment and plans to help the local people’s now has the confidence to speak up when she isn’t parliament do some work in schools next year. happy as she would never have done this before. Stacey’s mum said she has noticed a huge difference in Stacey expressing her own opinion, Stacey has even told her mum the clothes she had suggested for Stacey to buy were frumpy and she didn’t want to wear it, this Nominated by Locality Manager, Louise Cripps 03
Ben Church Ben moved into his new home in January 2019. Ben had care and support of 1 to 1 hours 24 hours a day. Ben has worked on managing his behaviours when at home and in the community in his new home. Ben now has 42 hours 1 to 1 care and support and the rest is shared hours. Ben now attends a voluntary work placement twice a week and he does this independently. His parents never thought that this would be possible and are so very proud of what Ben has achieved. Ben would display numerous behaviours daily and it is now evident that this is now not the case. Through Ben’s determination and having a consistent staff team Ben is able to get through his day with no behaviours. Ben is a real success story to the work that Turning Point provides. Ben works voluntary once a week where he will Rhys Williams cook, prepare food and now serves customers Rhys began receiving support from Turning Point in who absolutely love his charm and wit! March 2018. We discovered straight away that Rhys had a passion for photography. Once he had settled in Ben would like to get a part time job as a chef and/ to his new home, Rhys was supported by staff to visit or a waiter. Ben is a real people person and does various places so that he could take photographs which turn on the charm with customers. Ben would like he edits his himself and he has also been supported to work towards qualifications in food and hygiene to sell some of his work, at the local cafe/farm shop. and to further his career in the hospitality sector. In November 2018 Rhys attended the Peoples Nominated by Locality Manager Jolene Instan Parliament and his work was used as Northumberland’s display, he was also asked by Dawn Cameron to be the photographer for the event. This led onto Rhys being invited to be the photographer at the Turning Point Leaders event in June 2019 and this year’s Peoples Parliament last month. We have had a lot of positive feedback about Rhys. One email from Corinne Foley said that Rhys was very professional at the events and that he was a pleasure to work with. Ben Church with Alison Hill, Turning In the future Rhys wants to continue with Point Non-Executive Director his photography, potentially turning it into a profession. He also would like to continue working with Turning Point at future events. Nomination by Team Leader of his support team, Jayne Clayton 04
Inspired by Possibility Recognition Awards 2020 Continued Ashley Smith Ashley was living in a residential care home with Ashley and his team have been challenging the little support and chose not to engage in many assessment of capacity in relation to his finances activities. Since moving to his new house, Ashley via the care manager and appointee for the past has engaged in every minute of his support and two years, this has been incredibly difficult for achieved a huge amount of community presence and Ashley as he had some serious restrictions placed control in his life, when moving in Ashley had been on him over the past year with his appointee assessed as lacking capacity to manage his own reducing his money and putting barriers in place. finances and so had a court appointed appointee Ashley at times has become understandably in place. It became apparent that Ashley did not very frustrated and had to learn how to deal with lack capacity but had not had the opportunity these emotions as he overcomes each hurdle. or information on how to manage his money. Ashley has just last month opened his own bank account as the courts have instructed the appointee to hand over all accounts to Ashley from the 23rd December! Ashley has been incredibly patient and is ready to take on the challenge of managing his own money. Ashley is a keen saver and so he is planning to save his money and have lots of holidays. Nominated by Locality Manager, Louise Cripps Daniel Mitchell Turning Point supported Dan to eat healthier and set a routine with his meals and snacks. This along with his own motivation and self-control at day services has led to the great achievement of losing an excessive of 3 stone. He has also been supported to part take in regular daily exercise and has taken this on board very well. He walks to and from his bus stop to day services and swims 10 laps a week at the local pool as part of his enabling. Dan hopes to lose more weight and ensure that Nominated by Team leader of he becomes healthier and more active. Support staff, Nasim Hajipo 05
Jacqueline Ball Jackie is 58 years old. She has cerebral palsy and a moderate learning disability. When Jackie was very young she lived with parents but as she and they got older it became more difficult for her family to support her. At this time Jackie started to access Stallington Hall, a Local Health Authority institution on a respite basis for a drug review. Jackie moved in permanently due to her dad’s deteriorating physical health and Jackie’s increasing need for support. Stallington Hospital was a large institution set in its own grounds. Jackie lived on large locked wards with 30 or more other women, sharing large Jackie still sees her family on a regular basis dormitories and communal areas. The wards had and likes to talk to her mum on the phone in the strict regimes and routines and did not allow ‘patients’ evenings. Jackie has recently had her own telephone much privacy, choice, independence or autonomy. line installed in her flat. Jackie and her family are Stallington Hospital was closed in 1998 and Jackie practicing Jehovah’s Witnesses and she attends moved to her new bungalow set in its own grounds. the Kingdom Hall most Sundays. Jackie goes to The door was still locked but Jackie had her own a day centre one and a half days a week. This is a bedroom. She still had to share a bathroom, lounge very important part of her life and has been going and dining room with 4 others who used to live at there for many years. Jackie considers this time Stallington. In January 2010 the bungalow closed as going to work. Jackie loves going out into the to be refurbished in to 6 self-contained flats. Jackie community maybe for lunch or to the theatre. moved back when it was completed in 2012. Jackie is a People’s Parliament champion and enjoys Jackie now has her own self-contained flat and going to meetings with her friend Helen and has is supported by Turning Point due to the NHS attended the National People’s Parliament. Jackie withdrawing provision of campus beds. Jackie enjoys loves Blackpool and has had many holidays there with having her own space and is a tenant in her own right; support from staff. This initially started from daytrips paying her own rent and bills with support. Jackie to overnight stays and gradually building to 5 night now has her own front door and a core team of staff stays. Jackie has her own mobility car and she can be who know her well and who support her on a daily winched straight in to it. Jackie has also chosen to use basis. Jackie has 12 hours a day 1:1 support and it is public transport to access the community which is a important for her that her choices, routine, likes and huge step for her. dislikes are followed. Jackie has ISF that will be used to support her to maintain her current level of health Jackie has always had 2:1 support in the community and wellbeing, in terms of personal care, managing but is now progressing to 1:1 support. Jackie money, keeping safe and supporting with her mobility. wants to increase her independence and reduce Jackie is developing a greater level of independence, the level of support she has at present. particularly in being able to enter and access her flat, and being able to spend more time independently in her flat with the aid of assistive technology. Nominated by Team Leader, Janet Holmes 06
People’s Parliament in Action National People’s Parliament 2019 – Working Towards Co-production The Local People’s Parliaments aim to maximise the involvement of people we support. They have been set up to ensure that all individuals supported by Turning Point are empowered to influence what the organisation does at a local and national level, as well as taking a more active role in their communities. The regional forums are a safe place where people can build confidence, talk about what is important to them and share their views in a way that is meaningful to them. The National People’s Parliament is an annual event which brings representatives from each Regional People’s Parliament together in one place. The aim of the day is to share and celebrate local achievements. National Peoples Parliament 2019 was celebrated at the Village Hotel in Coventry November 2019 and was attended by over 100 people, this included the people we support, employees, members of the leadership team and members of the governing board. This years’ theme, which all local parliaments worked on throughout the year was ‘working towards co- production’ as to promote and demonstrate an even higher level of involvement for the people we support. The day was co-facilitated by Dawn (Involvement Lead) and Richard who we support in Milton Keynes whose parliament was 2018 regional winner. The day kicked off with an ice breaker where every attendee brought an item representing something that is important to them to share with the people they shared a table with, and for others to explore, this inclusive activity really helped people to be comfortable with each other for the rest of the day. 07
Followed by 4 fantastic presentations from: Tameside, who introduced the concept of co- Northumberland, who worked together co- production, explaining that it is about problem produce a touching presentation which gave us solving so that people are being meaningful involved an insight into challenges faced by the people throughout every part of a project, promoting we support, and the fantastic positive solutions even greater control for people with disabilities. people use to combat those challenges to thrive. Tameside Northumberland Peterborough, who demonstrated how they adopted Kent, showcased how their people’s parliament a new approach called ‘working together for change’ had worked together to co-produce fantastic so that all of the people we support in Peterborough, resources, to raise disability awareness in their staff and family members co-produced a regional communities to combat negative attitudes. action plan using person centred approaches. Peterborough Kent We also enjoyed displays from all of the other This brought us to the end of a fantastic day, regional parliaments; this gave us the opportunity where Milton Keynes People’s Parliament were to learn about the wonderful ways they have been voted winners of National People’s Parliament working together to achieve common goals. 2020 for the second year on the run. And finally, all attendees voted on the display or presentation impressed them the most. 08
Turning Point Internal News Care Quality Commission Ratings Turning Point are celebrating fantastic CQC ratings, we are very proud to announce that the overall rating for good or outstanding is an amazing 95%, which is an improvement since our last edition of the Family Link magazine. We continuously strive to provide the best support possible and are constantly look for new ways to further enhance the lives of the people we support. Overall rating Safe rating Good or Outstanding Good or Outstanding 95% 91% Effective rating Caring rating Good or Outstanding Good or Outstanding 97% 98% Responsive rating Well-led rating Good or Outstanding Good or Outstanding 98% 97% 09
Growth The map illustrates growth since August 2019. It includes contracts that we have retained through a competitive process which – as well as retaining our existing services – now also offer us growth in the scope and scale of future service provision. In some cases we will be working in new localities albeit in the same local authority area as before. Northumberland Cumbria Learning Disabilities Framework for Care and Support Supported Living Service Services in Extra Care Homes and growth in Supported Living services North Tyneside Learning Disabilities Calderdale Accommodation and Care Learning Disabilities and Mental Framework retender Health Supported Living Framework Wakefield Lancashire Learning Disabilities Care Learning Disabilities Services in Supported Supported Living Services Housing Framework retender Peterborough Tameside Growth from Learning Learning Disabilities Supported Disabilities Supported Living growth Living Framework Derby Hertfordshire Learning Disabilities Support Living Carers Breaks Service and Accommodation Framework retender and growth Staffordshire Learning Disabilities Supported Living Framework Kent Learning Disabilities Walsall Supported Living Learning Disabilities Supported Framework retender Living for Complex Needs and growth Framework Warwickshire Growth from Learning Disabilities Supported Living Framework Bedford Growth from Learning Wiltshire Disabilities Supported Swindon Living Framework Learning Disabilities Supported Growth from Learning Disabilities Living Framework retender Supported Living Framework 10
Turning Point News Family Survey e would like to thank all W families who responded Initial Data 2019 to the family survey at the end of 2019 The family survey is an important feedback tool that ensures we are giving you, the families of the people we support the opportunity to express your views. Listening to your views allows us to Please see below the 83 responses received identify and share good practice, and identify from 2019, the data is measured against data areas which need further development. from 143 responses received in 2018. 1. Do you feel supported by Turning Point 2. Do you feel satisfied with the support to have access to and spend quality time your family member receives? with your family member if you wish? 2019 2018 2019 2018 Yes 95% n/a Yes 94% Yes 93% No 5% No 6% No 7% 3. Do you feel as a parent or family carer that 4. Do you feel that the support your family your views and wishes are taken into account? member receives is safe and has made a positive difference to their life? 2019 2018 2019 2018 Yes 90% Yes 97% Yes 92% Yes 99% No 10% No 3% No 8% No 1% 11
5. Do you feel that your family member has choice 6. Do you know who to contact with compliments, and control over the support they receive? complaints, comments or queries and are they dealt with in a timely matter? 2019 2018 2019 2018 Yes 86% Yes 71% Yes 85% Yes 87% No 14% No 29% No 15% No 13% 7. Do you feel there’s been any improvement since the last survey? 2019 2018 Yes 86% Yes 59% No 14% No 41% 2019 2018 Friends and Definitely 88% Definitely 87% Family Test No 4% No 0% Would family members Not Sure 8% Not Sure 13% recommend Turning Point? Turning Point managers are currently analysing the responses in more detail so we can create an action plan in response to your feedback. We will send out the full report and action plan with the next edition of the Family Link. 12
Turning Point’s Contribution to Learning Disability Today Study Day 2019 How to Move Away from Psychotropics Sarah Taie and Stephanie Draper, Turning Point Earlier last year we were and skills for their Continued to take. This was another very approached by a gentleman Professional Development use’. positive outcome for him. called Graham Hoare, Head of Business Relationships Health Ben is a gentleman that is Ben and his family agreed and Social Care for Pavilion supported by Turning Point who following this work, for us to Publishing regarding a national we had worked with closely to write Ben’s story up in a case event he was organising ‘Learning support him and his support team study to be able to share with Disability Today Study Day’. when Ben was going through others an example of how Graham told us ‘ I am helping put a difficult time in his life. By someone could make very together the programme for a one working in collaboration we had positive changes in their life. day conference called Learning been able to help Ben and his Disability Today Study Day in team look at different ways to Sarah and I were very pleased and Bournville, Birmingham on the support him when he was angry proud to be asked to share Ben’s 19th September. Researching and anxious and over time this story with others, although we for the event I read about had enabled Ben to cope better. both became more anxious as the Ben’s Story and felt this would This led to Ben being able to go day of the conference approached. be of great interest to other out more and do different and new However our presentation went professionals. My reason for activities and for him to be more really well and it was great contacting you is to see if you confident in himself. As things to have feedback from other could speak and provide a practice improved for Ben in his day to day people about how interesting development session on using life, his support team started to and motivating they found Positive Behaviour Support (PBS) have conversations with other Ben’s journey and story to be. in conjunction with the STOMP professionals about Ben not initiative to support the reduction having to take as much certain Stephanie Draper of psychotropic medication. The medications as he had done Practice Lead, Manager aim of the study day is to address previously when in crisis and over SCOT Team. relevant issues for professionals time Ben was able to reduce some and develop their knowledge of the medications he needed 13
Turning Point News External A review published in March 2020 people with learning disabilities using different communication has highlighted health inequalities and autism. These failings suggest methods for autistic people for people with learning a systemic failure to protect with sensory sensitivities. The disabilities. This is because people the right to a private and family specially designed training will with learning disabilities are more life, and right to live free from be named in memory of Oliver likely to be admitted to hospital inhuman or degrading treatment McGowan, in recognition of his with conditions that could be or punishment. This development family’s tireless campaigning prevented by better community may lead to a high court battle. for better training for staff. and primary health care. Among other recommendations, it In November it was announced Finally, increasing numbers of calls for more regular health that every inpatient with a older family carers, some in their checks for people with learning learning disability or autism in a 80s and 90s, are providing care to disabilities, so that GPs address mental health hospital will have support adult children with severe health problems that may result their case reviewed over the next learning disabilities or autism, in hospital admissions and 12 months. As part of the review, according to a significant new poor health in the long term. the government will commit to report that’s been published by providing each patient with a date the University of Bath. The report There have been longstanding for discharge, or where this is not entitled ‘Confronting a looming concerns about the rights of more appropriate, a clear explanation crisis’ highlights severe strains than 2,000 people with learning of why and a plan to move them placed on families as a result of disabilities and autism being closer towards being ready for our ageing population. It suggests detained in secure hospitals, discharge into the community. This much greater support is needed often far away from home and effort is being supported by the to help them cope. According to for many years. In February 2020 government through a Learning the National Institute for Health The Equality and Human Rights Disability and Autism Fund. The and Care Excellence (NICE), Commission (who investigates government will provide funding two-thirds of adults with learning these issues) sent a pre-action over the next three years to speed disabilities and / or autism live letter to the Secretary of State up the discharge of individuals with their families - mainly with for Health and Social Care with learning disabilities or autism parents. Yet, whereas in the Matt Hancock, arguing that the into the community from mental late 1940s, life expectancy for Department of Health and Social health inpatient care in England. people with conditions such as Care has failed to meet the Down’s syndrome was just 12 targets set in the Transforming In other positive news the years, today, thanks to medical Care programme and Building government has also confirmed advances, it has increased to the Right Support programme. that every NHS and social care 66 years. Whilst this is to be These targets included moving worker will now receive mandatory celebrated it has also created patients from inappropriate training on: 1) Understanding a situation in which many adult inpatient care to community- learning disability and autism 2) carers, some in their 80s and 90s, based settings, and reducing the Legislation and rights 3) Making are now caring for adult children, reliance on inpatient care for reasonable adjustments such as themselves in their 50s and 60s. 14
I hope you have enjoyed the Family LINK magazine. Each year you will receive two issues and I will strive to continue to share amazing stories and achievements from across Turning Point nationally. I am more than happy to take on any suggestions on how to improve the Family LINK. Moving forward I would like to capture experiences from family members, so if you have anything to share please contact me on clare.taylor@turning-point.co.uk Best wishes Clare Taylor Involvement Lead
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