CROSSING THE BORDER FOR HEALTH CARE: ADDING VALUE FOR PATIENTS AND HEALTH SYSTEMS
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Eurohealth 28(1) 51 CROSSING THE BORDER FOR HEALTH CARE: ADDING VALUE FOR PATIENTS AND HEALTH SYSTEMS By: Matthias Wismar, Robert Touret, Jonathan Clottes, Gabrielle Dubois, Apolline Damez-Fontaine, Vincent Rouvet and Ewout van Ginneken Summary: In the European Union, patients are able to receive health care in another Member State. This has made life much easier for people travelling, working, studying, and residing abroad and provided options for patients facing long waiting times at home or suffering from rare diseases. These opportunities have been especially important during the COVID-19 pandemic, which has led to increased demand for COVID-19 care as well as catch-up care following the disruption to routine health services. As we are progressing towards a European Health Union, we suggest where improvements to cross- border health care could be made. Keywords: Cross-Border Care, Border Regions, Bilateral Agreements, COVID-19 Introduction Cross-border health care helps European patients who fall sick abroad, increases Cross-border health care adds substantial options to receive planned care in another value for European patients and citizens. European Union (EU) country, can help It has been gradually developed since patients with rare diseases, and provides the beginning of the European Economic Matthias Wismar is Programme opportunities to develop cross-border Manager, European Observatory Community to ensure free movement collaboration between providers and on Health Systems and Policies, in the European labour market. Cross- Brussels, Belgium; Robert Touret payers. It also has the capacity to help border health care rests on various legal is Head of the Office of European, alleviate health system pressures in times frameworks. The two most important International and Overseas Affairs, of crisis. Jonathan Clottes is Project legal frameworks are: 1) the regulation Manager, Gabrielle Dubois on the coordination of social security is Project Manager and Learning from experiences during the systems (European Commission Apolline Damez-Fontaine COVID-19 crisis, Europe is moving is Project Manager, General Regulation 883/2004); and 2) the patients’ towards the creation of a European Health Directorate of Healthcare Services, rights directive (Directive 2011/24/EU) French Ministry of Solidarity and Union, in which EU countries work more (see Box 1). Cross-border care received an Health, Paris, France; Vincent closely together to protect the health of Rouvet is the General Director of important impetus when Directive 2011/24 Europeans and to collectively respond to the Hospital of Cerdanya, Puigcerdà, on the application of patients’ rights in Spain; Ewout van Ginneken is cross-border health crises (see the article cross border health care passed in 2011 Berlin Hub Coordinator, European by Mauer et al. in this issue on a European Observatory on Health Systems (Table 1 distinguishes between the Health Union). In this context, cross- and Policies, Berlin University of regulation and the directive), though border health care must not be forgotten Technology, Germany. further progress towards implementation Email: wismarm@obs.who.int and warrants further attention. in practice and user-friendliness is necessary. Eurohealth — Vol.28 | No.1 | 2022
52 Eurohealth 28(1) were reported up from 232,054 in 2018. The growth occurred predominantly in Box 1: The legal framework for cross-border health care in the EU: cross-border care not requiring prior general principles for better access to care authorisation. These numbers are not directly comparable because of variations The regulation on the coordination of social security systems (European in the number of countries reporting Commission Regulation 883/2004) provides the legal framework for unplanned each year. The total expenditure on all care and planned care organised by the competent authority (i.e. those with the reimbursements reported by the Member power to perform the designated function, such as a sickness fund or national States also rose in 2019 to €92 million government). The coordination of social security systems was introduced to up from €73.3 million in 2018. 3 The facilitate cross-border mobility for workers, which is a precondition for a European impact of the directive on national health labour market. Therefore, the predecessor or the regulation on the coordination budgets appears marginal estimated at of social security systems, Regulation of the Council Number 3 on social security only 0.004% of the EU-wide annual health of cross-border workers, came into force almost in parallel with the creation of the care budget. 4 However, as mentioned European Economic Community. The regulation has been reformed several times above, the data are incomplete. and renamed but retained its function in guaranteeing cross-border social security. The patients’ rights directive (Directive 2011/24/EU) is more recent and How does the cross-border European establishes the right to seek health care in another Member State. It was passed care framework benefit EU citizens? after a long political process in 2011 with an implementation period of three years. It codifies a series of landmark rulings from the European Court of Justice (CJEU) on It covers European patients who fall cross-border health care. The case law focused on demands of European citizens sick abroad that the free movement of services also applies to health services and goods EU nationals, who are crossing the border and therefore they derived from this an entitlement to access cross-border health to live, work, study or retire can rely on care. 1 In a series of rulings, the CJEU followed these demands with the exception the European Health Insurance Card of ‘hospital care’, or what is now called ‘planned care’ allowing pre-authorisation (EHIC) when falling sick. It allows anyone through competent authorities. 1 who has health coverage in their country Beyond codifying case law, the patient’s rights directive is of particular importance of origin to receive medical treatment to the development of cross-border health care as it stipulates provisions with in another Member State for free or at a regards to ‘cooperation in health care’. The topics addressed are instrumental reduced cost if that treatment becomes to the improvement and accessibility of cross-border health care for patients, necessary during their visit abroad. Pre- e.g. assistance and cooperation, recognition of a prescription issued in another existing chronic conditions which require Member State, the European Reference Networks (ERNs), action in the area of rare care, such as kidney dialysis, are also diseases, eHealth, and cooperation on Health Technology Assessment (HTA). covered. Students who study in another country can also use the EHIC for health There is a host of other hard- and soft-law instruments surrounding the regulation care. Posted workers, who are sent by their and the directive. Their purpose is to specify, implement or explain the legal employers for up to 24 months to another frameworks. EU Member State can use the EHIC to obtain health care in the country of work, though their employer needs to request a form prior to the posting as a statement The number of patients using cross- Switzerland, from Austria to Germany, of the applicable legislation. The same border health care is currently small from Luxembourg to Belgium, and from is applicable for workers, who work in Belgium to Luxembourg. 2 The number Overall, the number of patients using more than one country. Frontier workers, of patients using cross-border health care cross-border health care under both legal that commute on a daily or weekly basis under the regulation is difficult to assess frameworks – the regulation and the to another Member State may choose and clear trends cannot be identified. directive – appear small and the budgetary between health care in their country of There are many reasons for inaccuracies. impacts are very limited. residence or country of work. This right is There are severe data gaps 3 and some retained at retirement and extended to their Member States do not make a distinction It is estimated that unplanned health families and their survivors. between planned care under the regulation care under the regulation amounts to and the directive. Moreover, some of the around 2 million patients per year. Figure 1 It increases the option to receive bilateral agreements for cross-border provides an overview on the budgetary planned care abroad health care do not routinely report impact of cross-border health care under their data. EU nationals can also ask for access the regulation, which amounts to 0.4% of to cross-border health care for planned the total health care budget in the EU. For The numbers of patients using the directive procedures. This is particularly attractive planned health care, the most prominent for cross-border health care and the costs when long waiting lists exist in the flows took place from France to Belgium, reimbursed by the competent authorities country of residence or if the health care from Luxembourg to Germany, from is much smaller. In 2019, 290,890 cases facility may be closer to the place of Germany to Austria, from Germany to Eurohealth — Vol.28 | No.1 | 2022
Eurohealth 28(1) 53 Table 1: Cross-border health care legal frameworks in comparison Regulation on the coordination of social security Directive on patients’ rights in cross-border health care Countries included EEA and Switzerland EU Member States, Iceland, Norway and Liechtenstein Patients covered EU nationals, stateless people and refugees who reside in the Insured persons territory of a Member State Sectors covered Public health care Private and public health care Services covered Unplanned necessary care and planned care organised Planned and unplanned/necessary care initiated through through the competent authority the patient Expenditure covered Competent authority covers the expenditure incurred; Reimbursement of health care costs according to national travel expenses are not covered tariffs in country of affiliation; travel expenses are not covered Note: After the United Kingdom’s withdrawal from the EU, British citizens can continue to use their EHIC card until expiry date or they can apply for the Global Health Insurance Card which covers unplanned but not planned care in the countries covered by the regulation; Norway, Iceland and Liechtenstein joined the legal framework in 2015. Figure 1: Budgetary impact of cross-border health care under the regulation, rare diseases, which affect 30 million by type, 2019 European Union citizens. 5 While a number of countries have strategies or 0.45 % plans to address rare disease, the scarcity of cases and knowledge in this area 0.4% 0.40 makes a European approach necessary healthcare spending related to benefits in kind and cross-border cooperation is needed Cross-border healthcare as a share of total 0.35 to promote better, faster and more 0.3% 0.30 accurate diagnosis. According to a survey conducted by Eurordis, which covered 8 0.25 rare diseases, 25% of patients waited from 0.20 five to 30 years for a correct diagnosis, and during that time 41% received a 0.15 misdiagnosis. 6 To help patients with 0.10 0.1% rate diseases, the directive of 2011 led to the creation of 24 European Reference 0.05 Networks (ERNs), including 900 highly 0.02% specialized units from over 300 hospitals 0.00 in 26 EU countries. 7 Through the pooling Unplanned Health care provided to Planned Total cross-border health care persons living in a MS health care health care of medical expert knowledge, the ERNs other than the competent MS provide common expertise thus offering patients potential benefits in terms of 2 Source: early diagnosis and improved treatment. Note: No data is available on prior authorised care from countries with prior-authorisation procedures from Germany. No data Meanwhile, The Rare 2030 (Eurordis) is available on health care not requiring prior authorisation from Germany, Hungary, Luxembourg, the Netherlands. foresight study, initiated by the European Parliament and supported by the European residence. There is, however, always a procedure. Some Member States, Commission, emphasises the importance requirement to seek prior approval under however, require pre-authorisation for of European cross-border cooperation the regulation. But once authorisation has the obtained care subject to specific and innovation in this area and will help been granted, all financial aspects are conditions. In contrast to the previously guide a reflection on rare disease policy taken care of by the competent authority, mentioned process, the patient needs in Europe over the next decade. 8 be it a sickness fund or a health authority. to pay in advance and can only claim In case of undue delay, e.g. if care cannot reimbursement upon completion of Bilateral agreements have been be provided within a medical justifiable the procedure. developed to allow for cross-border time, the pre-authorisation requirement is collaboration across Member States not applicable. It can help patients with rare diseases and regions who cannot access treatment at home EU nationals can seek cross-border A mapping exercise commissioned by Cross-border health care under the health care on their own initiative under the European Commission in 2016/2017 9 directive also provides substantial benefits the directive. They are free to choose a identified 1,167 projects of which 423 for patients living with rare diseases at the provider across the border for a planned projects were listed, showcasing a great European level. There are more than 6000 Eurohealth — Vol.28 | No.1 | 2022
54 Eurohealth 28(1) a tri-national competence centre for cross-border collaboration between Box 2: The bi-national Hospital de Cerdanya /Hôpital de Cerdagne Germany, France and Switzerland in the Upper Rhine Region. TRISAN conducts The AECT-HC/GECT-HC is a cross border hospital, situated in the Est Pyrenees. studies, provides information, connects Its very name (AECT/GECT stands for European Grouping of Territorial stakeholders for best-practice exchanges, Cooperation) speaks of its vocation as a bi-national instrument, devised and supports the cross-border cooperation to facilitate access to specialised medical care for a local population of project. 10 around 33,000 (although this greatly increases during peak tourist seasons) inhabiting 50 municipalities on a 1340 km2 territory. Several Member States have bilateral The founding partners of the AECT-HC/GECT-HC are the public health care cross-border agreements for planned systems of France and Catalonia, Spain. The EU contributed 60% of the building health care in place. They help to costs through FEDER funds; CatSalut and ARS-Occitanie shared the rest, and overcome temporary capacity shortages funded 100% of the equipment. The facility is managed jointly by both health care and the long waiting lists resulting systems with a yearly operating budget of €20 million. from it. According to a study on the Franco-Belgian ZOAST-initiative The project for a bi-national, shared hospital that is pivotal to a future cross-border (Zones Organisées d’Accès aux Soins health care network, was long in the making. It originated in 2005 with a declaration Transfrontaliers), the largest share of intent signed by the French and Catalan authorities, and in 2007 the EGCT of inpatient interventions provided was registered. The need for a new hospital was particularly important for the were gastroplasty for the treatment local French population whose main reference hospital was in Perpignan, which of obesity, stent placement, treatment was difficult to access through mountain roads or by the helicopter emergency of diaphragmatic hernia or hiatal medical service. hernia, therapeutic ureteroscopy, hip Since its opening in September 2014, the centre offers access to 11 medical and replacement, pacemaker, knee prosthesis, surgical specialties to the local population and tourists in a small but modern local polysomnography, treatment of bilateral hospital that is well equipped. Through strategic alliances with sister organisations, inguinal, femoral or obturator hernia in Catalonia and Occitanie, a further 15 specialities, comprising facilities for and cholecystectomy. For outpatient haemodialysis and (soon to be available) for chemotherapy treatments have and ambulatory care, the most common also been made available. interventions involved ophthalmological operations, mainly for cataract. Can cross-border health care help variety in European collaboration in for France. In France, those agreements COVID-19 patients and alleviate health care, social care and public health. are intended to provide a legal framework pressure on health systems? These collaborations can provide concrete for the establishment of local cross-border advantages for EU citizens. The projects health or medico-social cooperation The COVID-19 pandemic has put great not only address patient mobility but agreements. The aim is to promote the stress on EU Member States’ health also target workforce mobility, sharing development of cooperation in health or systems, in some cases leading to of knowledge and infrastructure, medico-social care between France and situations in which acute beds, intensive emergencies, and joint investment in bordering countries and to ensure better care unit (ICU) beds and workforce medical infrastructure. access to quality care in border regions by: were not sufficient to meet the surge in demand for COVID-19-related care. – guaranteeing continuity of care and The findings show that most activity During the first wave of the pandemic in faster recourse to emergency assistance takes place in central and western Europe the spring of 2020, within a two month between countries, particularly those – optimising the organisation of the period, almost 300 European COVID-19 with similar welfare traditions (e.g. health care offer and by encouraging patients were treated in another Member Scandinavian countries), or a shared the sharing of capacities (material and State. Most transfers took place from the history (e.g. Italy and Slovenia or Italy human resources) French Region of Grand Est, Northern and Austria). Furthermore, cross border Italy and the Netherlands to Austria, – encouraging the sharing of knowledge, collaborations can be aimed at overcoming Germany, Luxembourg and Switzerland practices, and human and material gaps in regional provision, which occurs, (see the article by Winkelmann et al. in resources (see Box 3). for example, in the cross-border bi- this issue). These transfers were a measure national hospital of Cerdanya in the of last resort aimed to help countries These cross-border framework Pyrenees (see Box 2). and regions on the brink of collapse due agreements are intended to complement to capacity shortages. 11 Even though the measures already provided for by This type of bilateral cooperation can some of these initiatives were organised Regulations 883/2004 and 987/2009, take the form of cross-border framework outside the European frameworks, they and by Directive 2011/24 EU on cross- agreements and conventions, as is the case nevertheless serve as a reminder of the border care. An example is TRISAN, Eurohealth — Vol.28 | No.1 | 2022
Eurohealth 28(1) 55 Box 3: The case of Franco-German cross-border cooperation When the COVID-19 crisis began, cross-border cooperation before and during the COVID-19 crisis led the ARS Grand-Est and the Prefecture to reinforce their cooperation and to innovate actions on areas including France has several cross-border framework agreements that contact tracing and the exchange of practices. Indeed, allow, at the regional level, the directors of the Regional Health the Grand-Est region was very strongly affected at the Agencies (Agences Régionales de santé, ARS) to sign local beginning of the crisis in March 2020. Thanks to the solidarity health cooperation agreements in order to promote patient care provided by neighbouring countries, including Germany, and the mobility of health professionals in border regions. transfers of patients in intensive care units were organised. Thus, between 22 March and 5 April 2020, 160 patients ARS Grand-Est has four framework agreements for health were transferred from France to neighbouring countries of cooperation between France and Belgium, Luxembourg, the Grand-Est Region (Belgium, Luxembourg, Germany, Switzerland and Germany. Switzerland) or other EU countries (Austria), of which 74% of The Franco-German cross-border health cooperation which were transferred to Germany.‡ framework agreement,* covers the border area of the former In the same spirit, France has offered to receive patients in regions Alsace and Lorraine regions of the Grand-Est on intensive care if the health situation so requires. the one hand, and the German Länders (States) of Baden- Württemberg, Rhineland-Palatinate and Saarland on the other. Furthermore, in order to consolidate cross-border cooperation It aims to ensure better access to care for the populations of in light of the lessons learned from the COVID-19 crisis, ARS the border region, to guarantee continuity of care and faster Grand-Est has proposed to develop a joint cross-border access to emergency assistance, to optimise the supply of observatory on health data for the border areas § in order to care and promote the sharing of professional knowledge and facilitate a harmonised exchange between the parties. practices, and to facilitate crisis management. On the Franco-German border, with regard to the prospects Further conventions have also been added in specific areas. offered by the Treaty of Aix,¶ this common desire to work on For example, the field of cross-border emergency medical strengthening health cooperation would apply particularly to assistance, is the subject of several conventions between the cross-border living areas that are institutionally embodied the ARS Grand-Est, the health structures concerned, the by the Eurodistricts. SAMU (Service d’Aide Médicale Urgente; Emergency medical service) and fire departments and the neighbouring Länder.† These specific conventions allow the emergency call centre responsible for the region to call on the emergency resources of the neighbouring region to shorten the response time or to compensate for the temporary unavailability of means. 13 ‡ Data from the ARS Grand-Est. § Bassins de vie frontaliers. * Signed in 2005 and entered into force in April 2007. ¶ Treaty between the French Republic and the Federal Republic of Germany on Franco- † Between Alsace and Rhineland-Palatinate as well as between Alsace and German cooperation and integration, signed on 22 January 2019 and entered into force Baden-Württemberg both on 10 February 2009. on 22 January 2020. potential of cross- border care in crisis Cerdanya Hospital between France and there are pending issues that need to be situations. Countries could explore the Spain cooperates with French hospitals addressed for cross-border health care to European frameworks better to facilitate to share intensive care capacity and be realised in its full potential: the continued demand for COVID-19- personnel, working with the border police related services as well as new demand to ensure access for patients and health ●E HIC needs improvement: In 2019, for backlog care (see the article by van professionals. 12 there were close to 250 million EHIC Ginneken et al.). cards issues amounting only to 53.1% of insured persons in the EU. The What needs to be done to reap the full Furthermore, several countries have been EHIC has also faced some acceptance potential of cross-border care? working together, with assistance from problems with health care providers. 2 the EU and its frameworks, in providing Cross-border health care adds value ● Better information for patients and emergency care for COVID-19 patients for patients in many circumstances. At health professionals: Patients and in the Interreg regions. For example, present, there is limited utilisation of health professionals are not always the Euregio Meuse-Rhine confronted cross-border care and the budgetary informed on the options for cross- with the pandemic set up a trilateral impact is negligible. The European border health care, even in border crisis management centre (Task Force Commission is carrying out an evaluation regions. 14 The expansion of cross-border Corona)*. Furthermore, the cross- border of the cross-border health care directive digital services for both patients and to assess its effects (see Box 4). However, * The Euregio fosters regional cross-border collaboration professionals will be important. on all economic, social, and cultural aspects. It was created in 1976, with judicial status achieved in 1991. Eurohealth — Vol.28 | No.1 | 2022
56 Eurohealth 28(1) ● Strengthening the evidence base and 5 Nguengang Wakap S, Lambert DM, Olry A, et al. monitoring of bilateral agreements: Estimating cumulative point prevalence of rare 255 Box 4: Evaluation of the patients’ information on the prevalence and diseases: analysis of the Orphanet database. Eur J right directive analysis on the effectiveness of Hum Genet 2020;28(2):165 – 73. bilateral agreements and a continuous 6 EURORDIS. Survey of the delay in diagnosis for The European Commission is 8 rare diseases in Europe (‘eurordiscare 2’), 2007. monitoring would help to provide a carrying out an evaluation of the Available at: https://www.eurordis.org/sites/default/ stronger evidence base. files/publications/Fact_Sheet_Eurordiscare2.pdf cross-border health care directive to assess how the rules are working ●B etter integrate and support the 7 European Commission. European Reference (or not working) in the interests of possibility of having bilateral Networks, 2017. Available at: https://ec.europa.eu/ patients. 16 It will focus, in particular, agreements within the European health/ern_fr on patients access to safe and framework: Similar to the agreements 8 Rare 2030. Foresight in Rare Disease Policy. high-quality health care in another between France and some of its border Recommendations from the Rare 2030 Foresight country and how it encourages countries, the measures provided are Study. The future of rare diseases starts today. 2021. Available at: http://download2.eurordis.org/ cooperation between national health already complimented by the regulation rare2030/Rare2030_recommendations.pdf care providers, also on rare diseases and the directive mentioned above, while addressing local issues. 9 Bobek J, Schmidt AE, Bachner F, Röhrling I, and ERNs. Following an extensive Seethaler J. Cross-border. Care – Study on consultation of stakeholders cross-border cooperation: capitalising on existing across the EU including national Conclusion initiatives for cooperation in cross-border regions. and regional authorities, health Main Results, 2018. Cross-border health care adds value professionals, health insurers, patient for patients and helps to provide timely 10 TRISAN web site. Available at: https://www.trisan. organisations and citizens, its report access to high quality health care. This org/ is expected to be published in the may be especially important during the 11 Winkelmann J, Scarpetti G, Hernadez-Quevedo C, Spring of 2022. COVID-19 pandemic which has led to van Ginneken E. How do the worst-hit regions increased demand for COVID-19 care manage COVID-19 patients when they have no spare capacity left? 23 April 2020. Available at: https:// as well as catch-up care following the eurohealthobservatory.who.int/monitors/hsrm/ ● End financial risk for patients: disruption to routine health services. If we analyses/hsrm/how-do-the-worst-hit-regions- In many countries, the directive is are to strive towards a European Health manage-covid-19-patients-when-they-have-no- implemented in a way that discourages Union, we should continue to invest in spare-capacity-left patients to use it; in particular, it does cross-border health care by improving 12 European Commission. Communication from the not contain information on tariffs the user-friendliness, providing help for Commission: Guidelines on EU Emergency Assistance and levels of reimbursement. Patients cross-border collaboration, strengthening on Cross-Border Cooperation in Healthcare related therefore often prefer to use cross- the ERNs, and further expanding the to the COVID-19 crisis. Available at: https://eur-lex. europa.eu/legal-content/EN/ TXT/?uri=celex%3A520 border health care under the regulation. cooperation of cross-border regions, 20XC0403%2802%29 Member States, and at European level. ● Improve continuity of care: Cross- 13 France-Germany cooperation agreements border hand-over and continuity of care (Conventions de coopération France-Allemagne). remains a difficult task. In general, References Available at: https://www.cleiss.fr/docs/cooperation/ electronic patient records or paper 1 Wismar M, Palm W, Figueras J, Ernst K, Van cc-france-allemagne.html records do not travel with the patient Ginneken E. Cross-border health care in the European 14 Beuken JA, Bouwmans ME, Verstegen DM, or is inadequately acknowledged. 15 Union: mapping and analysing practices and policies. Dolmans DH. Out of sight, out of mind? 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BMJ quality and Inclusion, 2021. & safety 2020 ;29(12):980 – 7. provisions are complicated and deter potential patients from using cross- 3 Wilson P, Andoulsi I, Wilson C. Member State 16 Cross-border healthcare – evaluation of patients’ border health care. Data on cross-border healthcare following Directive rights web site. Available at: https://ec.europa. 2011/24/EU. European Commission, 2019. eu/info/law/better-regulation/have-your-say/ ● Strengthening the ERNs: The 4 initiatives/12844-Cross-border-healthcare- European Commission. Report from the ERNs had a promising start. With Commission to the European Parliament and the evaluation-of-patients%E2%80%99-rights_en the expansion of the networks and Council on the operation of Directive 2011/24/ the uptake of more patients with EU on the application of patients’ rights in rare disease in the virtual panel cross-border healthcare. COM(2018) 651 final. Available at: https://eur-lex.europa.eu/resource. consultations the question of additional html?uri=cellar:bc5ac6d2-bd7c-11e8-99ee- investment in infrastructure and 01aa75ed71a1.0019.02/DOC_1&format=PDF expertise needs to be answered. Eurohealth — Vol.28 | No.1 | 2022
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