Covid 19 Vaccination for Clinically Extremely Vulnerable Children and Young People - Webinar - Public Health England 16th August 2021
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Covid 19 Vaccination for Clinically Extremely Vulnerable Children and Young People - Webinar Public Health England 16th August 2021
Welcome to the session! We are recording this session and are working out the best way to share it with you. Slides will be shared in a pdf shortly after the session. Whilst every care has been taken to ensure this is up to date the guidance does change so please make sure you check the NHS, Public Health England and Department for health and Social Care Websites. The Chat function will open up after the main presentations. 2 Educational settings and COVID-19
Agenda Section for the Session Details Delivered by Chairs Welcome Introductions Welcome to the Session by the Chair Alison Markwell Senior Designated and Housekeeping What we need to share & how we want to continue the Clinical Officer Hammersmith and conversation. Fulham & Dan Devitt CYP Health & 18.30 to 18.35 • Housekeeping Wellbeing Programme Leader London • Questions in the chat box Region Public Health England • What we will and will not be covering today Two Vaccine Journeys Fazilla Amide - Learning Disability 18.35 to 45 Parents and Carer reflections on Covid 19 Vaccination Family Carer Advisor NHS England Reflections, Personalisation and Informed Consent Ros Luff - National Network of Parent and Carer Forums Main Session Update 1: PHE (London Region) Dan Devitt PHE Updates on Covid 19 Wider Impacts of Covid on CYP with SEND and CEV Vaccinations for Clinically Update 2: CEV Vaccination Update – overview of the advice Alison Markwell Senior Designated Extremely Vulnerable Children & and some details of delivery Clinical Officer Hammersmith and Young People Update 3: Experiences from North West London Fulham Panel Discussion/Q &A Facilitated Dialogue and prompts - Core Questions arising for Dan Devitt and All panel members 19.00 to 19.25 vaccination of CEV/SEND CYP, and staff Close of session Thanks for Contributions, Rapid summary of the session and Alison Markwell 19.30 next steps Senior Designated Clinical Officer Hammersmith and Fulham 3 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Chair’s Welcome and Housekeeping Welcome to the session! What we need to share & how we want to continue the conversation Parents and Carers are the experts on their own Children and Young People – together we can work to protect and support them 4 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Working with Parents, Carers and CYP – Equity and Pragmatism • Emphasis is on explaining the offer to all Parents, Carers and CYP • Parents, Carers & CYP have the right to decline • Informed consent Balance of equity of the offer and personalised assessment of risk/impacts • Vaccinations work and continue to work across all ranges of needs/complexity • The approach/delivery will need to be planned and sensitivity for needs built in to the offer • Communicate early, communicate often – Partnership Approach 5 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Chair’s Welcome and Housekeeping Housekeeping • Format for the session - brief updates and Q& A • The session is being recorded – we will share a link to this shortly • Slides will be shared – There are a lot more slides here – mostly covering resources – that we wont talk to but you will get them all • The Covid 19 response changes very quickly and the publication of new guidance from the Government or NHS changes quickly too • We have tried to make the resource completely up to date –16th August 2021 - but please do make sure you are checking the .Gov or NHS websites regularly as changes in policy are introduced and new guidance are published 6 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Chair’s Welcome and Housekeeping What we will and will not be covering today We are aiming to give you an update on the changes to the Covid 19 vaccination programme for clinically extremely vulnerable children and young people and some ideas of how this might look in your local area We want to ensure that you know that take up of the offer is Voluntary and that parent and carer informed choice and discussion with your local health providers is central to the programme We are starting from the position that the Covid 19 Pandemic is a real and continuing health emergency and with confidence in the principles, processes and science behind both the Covid 19 vaccination programme and vaccination as a positive public health offer - and will not be debating this or related areas 7 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Two Vaccine Journeys Parents and Carer reflections on Covid 19 Vaccination Reflections, Personalisation and Informed Consent Fazilla Amide - Learning Disability Family Carer Advisor NHS England Ros Luff - National Network of Parent and Carer Forums 8 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Update 1 Wider Impacts of Covid 19 On Children and Young People with SEND • Report from the PHE London regional team June 2021 • Looks at a wide range of priority areas for London’s Children • Aimed to give an early insight into the direct and indirect impacts from the pandemic • Alongside what we know - suggestions for what we do about it • Specific section on CYP with SEND – but transferrable lessons across all the areas The Impact of Covid 19 on London’s CYP PHE 2021 considered – SEND as a “Golden Thread”. 9 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Update 1 Wider Impacts of Covid 19 On Children and Young People with SEND - RCPH Research Ladhani SN, Amin-Chowdhury Z, Davies HG, et al. COVID-19 in children: analysis of the first pandemic peak in England. Arch Dis Child. 2020;105(12):1180-1185 • Children represent less than 5% of COVID-19 cases and generally develop a mild and transient illness; severe disease, hospitalisation and deaths are rare in children. COVID-19 - research evidence summaries | RCPCH • Clinically Extremely Vulnerable groups continue to be a concern • Deaths in children due to COVID-19 have been extremely rare: mortality seems to be consistent at around 0.01-0.1% • Children with co-morbidities, notably respiratory and complex neurodisability, appear more likely to suffer complications and need hospital +/- PICU admission, but not obviously more than would be expected from infection with other respiratory viruses. • Emerging evidence and research is ongoing on impacts over time 10 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Update 1 Wider Impacts of Covid 19 On Children and Young People with SEND Why is it Important? The challenges already faced by children and young people with special educational needs and disabilities (SEND) and the parents and carers who support them have been exacerbated by the COVID-19 pandemic A small group of CYP with SEND, specifically those with complex respiratory and neurological disorders, are clinically extremely vulnerable and at greater risk of morbidity and mortality if they contract the virus The Impact of Covid 19 on London’s CYP PHE 2021 11 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Update 1 Wider Impacts of Covid 19 On Children and Young People with SEND Children with SEND have been disproportionately impacted by the pandemic. The impacts on CYP and their families include: Reduced access to healthcare • Reduced access to services and disruption of healthcare such as cancellation of routine rehabilitation appointments • Delays for new equipment such as leg gaiters to enable physical therapy at home Reduced access to support • Social care failures to respond effectively, such as closure of day centres and an increased reliance on family and informal carers • Funding stopped for normal support services without any alternatives • Support stopped or reduced • Absence of trusted key worker staff The Impact of Covid 19 on London’s CYP PHE 2021 12 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Update 1 Wider Impacts of Covid 19 On CYP with SEND Slide by Dr Marilena Korkodilos PHE 2021 13 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Update 1 Wider Impacts of Covid 19 On CYP with SEND Education • CYP with education, health and care plans (EHCPs) had lower levels of attendance in schools than all pupils in autumn 2020 • Education learning materials for CYP who were learning from home were inaccessible or inappropriate • Specialist resources and support that are available for CYP with SEND at school cannot be replicated at home • Social aspects of education were affected by the learning at home during lockdown • Delays to the ECHP process have had a detrimental effect on CYP’s education Inequalities • CYP with SEND are likely to live in socially disadvantaged households, so are less likely to have internet access and the ability to use digital materials Inequalities Two in five disabled children in the UK live in poverty, around 51,000 CYP in London • Families with disabled children are more likely be on lower incomes due the difficulty of combining working and caring • 17% of families with disabled children go without food • 21% of families with disabled children go without heating • CYP with SEND often experience poorer health, social and education outcomes and challenges in terms of access to social, leisure, employment and training opportunities 14 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Update 2 JCVI Statement on Covid 19 Vaccination “That includes children aged 12 to 15 with severe neurodisabilities, Down’s syndrome, immunosuppression and multiple or severe learning disabilities. The JCVI also recommends that children and young people aged 12 to 17 who live with an immunosuppressed person should be offered the vaccine. This is to indirectly protect their immunosuppressed household contacts, who are at higher risk of serious disease from COVID-19 and may not generate a full immune response to vaccination. Under existing advice, young people aged 16 to 17 with underlying health conditions which put them at higher risk of serious COVID-19 should have already been offered vaccination. The JCVI is not currently advising routine vaccination of children outside of these groups, based on the current evidence.” JCVI statement on COVID-19 vaccination of children and young people aged 12 to 17 years: 4 August 2021 - GOV.UK (www.gov.uk) 15 Educational settings and COVID-19
Update 2 Joint Committee on Vaccination and Immunisation Advice Children under 16 years of age, even if they are clinically extremely vulnerable, are at low risk of serious illness and death from COVID-19 and are not routinely recommended for vaccination. However, the JCVI has advised that the following groups of children should be offered vaccination against COVID-19: •12- to 15-year-olds with the following health conditions: •severe neuro-disabilities •Down’s syndrome •underlying conditions resulting in immunosuppression •those with profound and multiple learning disabilities, severe learning disabilities or who are on the learning disability register •12- to 17-year-olds who are healthy, but who live with individuals (adults or children) who are immunosuppressed All 16- and 17-year-olds who are either clinically extremely vulnerable or have underlying health conditions were included in Phase One of the vaccine deployment programme and should therefore already have been offered a COVID-19 vaccine. The NHS will contact eligible children to invite them for vaccination. If a parent or guardian thinks that their child is eligible but has not been contacted by the end of August, they should contact their GP. 16 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Update 2 JCVI Statement on Covid 19 Vaccination JCVI statement on COVID-19 vaccination of children and young people aged 12 to 17 years: 4 August 2021 - GOV.UK (www.gov.uk) 17 Educational settings and COVID-19
Update 2: CEV Vaccination Update – overview of the advice and some details of delivery Who can get a coronavirus Visit : Who can get the coronavirus (COVID- (COVID-19) vaccine? 19) vaccine - NHS (www.nhs.uk) If your child is eligible for vaccination, • Some children aged 12 you'll be contacted by a local NHS service to 15 such as their GP surgery to arrange their • If you're aged 16 or 17 appointments. See • ALL People aged 18 How you will be contacted for your and over – they can coronavirus (COVID-19) vaccination - NHS book their (www.nhs.uk) appointments 18 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Update 2: CEV Vaccination Update – overview of the advice and some details of delivery JCVI advises that children and young people aged 12 years and over who are household contacts of persons (adults or children) who are immunosuppressed should be offered COVID- 19 vaccination on the understanding that the main benefits from vaccination are related to the potential for indirect protection of their household contact who is immunosuppressed. JCVI statement on COVID-19 vaccination of children and young people aged 12 to 17 years: 15 July 2021 - GOV.UK (www.gov.uk) COVID-19: the green book, chapter 14a - GOV.UK (www.gov.uk) 19 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Update 2: CEV Vaccination Update – Overview Children aged 12 to 15 can get vaccinated against COVID-19 if either: • they live with someone who is more likely to get infections (such as someone who has HIV, has had a transplant or is having certain treatments for cancer, lupus or rheumatoid If your child is eligible for arthritis) vaccination, you'll be • they have a condition that means they're at high risk from contacted by a local NHS COVID-19 service such as their GP surgery to arrange their Conditions that mean your child may be at high risk and can get appointments. vaccinated are: • a severe problem with the brain or nerves, such as cerebral palsy The NHS will contact eligible • Down's syndrome severe or multiple learning disabilities (or children to invite them for they're on the learning disability register) vaccination. If a parent or • a condition that means they're more likely to get infections (such guardian thinks that their child as some genetic conditions or types of cancer) is eligible but has not been See Visit : Who can get the coronavirus (COVID-19) vaccine - NHS (www.nhs.uk) contacted by the end of August, they should contact also Guidance on protecting people who are clinically extremely vulnerable from COVID-19 - GOV.UK (www.gov.uk) their GP. 20 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Clinical Extremely Vulnerable Groups Which Children are Clinically Extremely Vulnerable? COVID-19 - guidance on clinically extremely vulnerable children and young people RCPCH: Royal College of Paediatrics and Child Health Report COVID-19 - guidance on clinically extremely vulnerable children and young people | RCPCH 21 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Covid 19 Vaccine Side Effects Coronavirus (COVID-19) vaccines side effects and safety Millions of people have had a coronavirus (COVID-19) vaccine and the safety of the vaccines continues to be monitored. Reports of serious side effects are very rare. Common side effects Like all medicines, the COVID-19 vaccines can cause side effects, but not everyone gets them. Most side effects are mild and should not last longer than a week, such as: • a sore arm from the injection • feeling tired • a headache • feeling achy • feeling or being sick You may also get a high temperature or feel hot or shivery 1 or 2 days after your vaccination. You can take painkillers such as paracetamol if you need to. If your symptoms get worse or you're worried, call 111. If you have a high temperature that lasts longer than 2 days, a new, continuous cough or a loss or change to your sense of smell or taste, you may have COVID-19. Stay at home and get a test. You cannot catch COVID-19 from the vaccine, but you may have caught it just before or after your vaccination. See Coronavirus (COVID-19) vaccines side effects and safety - NHS (www.nhs.uk) 22 Educational settings and COVID-19
Experiences from North West London • Overview of the CEV roll out in North West London • This is specific to NWL – Please see Coronavirus (COVID-19) vaccination - NHS (www.nhs.uk) Coronavirus (COVID-19) - NHS (www.nhs.uk) 23 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Covid vaccinations for CYP in Hammersmith and Fulham 16th August 2021
The Hammersmith and Fulham approach • NWL CYP Covid Vaccination Task & Finish group established as one of the specialist working groups reporting to the NWL Vaccination Board • Eight borough-based Task and Finish groups to ensure delivery model reflects local needs and landscape • Multi-agency involvement including: Director of Public Health Senior DCO Asst Director SEND Special School Heads Parent Carer Forum Disabled Children’s and Short Breaks teams Children’s Community Nursing and School Nursing services Commissioners, Community Aid Network and Communications Primary Care LA Covid lead and vaccination centre 25
The Hammersmith & Fulham approach Key Area Activity Governance Multi-agency tasks and finish group reports to NWL CYP Covid Vaccinations group Identification of Used a range of means to identify eligible CYP: CYP • Short breaks and social care caseloads, Special school pupil lists, Children’s Community Nursing and School Nursing teams • GPs to undertake searches of clinical system, particularly for immunosuppressant conditions • Offer extended to 16-19 yr olds who have not been vaccinated and accompanying family members/carers Venue • Disabled Children’s Resource Centre for initial sessions during school holidays. Assurance and oversight from mass vaccination centre • Special schools once term begins. • Access to the vaccination bus if required • Roving team for housebound/specific circumstances Staffing • Registered health professionals who are experienced vaccinators and have completed Level 2 Safeguarding and Paediatric Basic Life Support. • Staff from the short breaks service, OTs, Social Workers and EPs on site to support with waiting and recovery areas and distraction 26
The Hammersmith and Fulham Approach Key Area Activity Booking • Booking via Eventbrite to manage flow • Free taxi or SEN transport available via H&F CAN if required Communication • Letter from Direct of Public Health emailed and posted to parents along with PHE leaflet and information about tonight’s webinar • Consent questions provided in advance • Phone calls from named staff to discuss letter, answer any questions and support with booking if required • Script/FAQ developed for staff for use during calls • DPH is recording a video for the Local Offer and Eventbrite site Support for • Skilled staff to support on the day individual young • Activities for the recovery area people • Individual desensitisation work if required once schools return following training by Adult LD team Sharing the learning • Learning from the first vaccination events will inform further sessions and arrangements for second doses & learning from • Resources and learning shared via NWL CYP vaccination group others • Learning from best practice elsewhere 27
Coronavirus Vaccines in London – Local Programmes Area Weblink North Central London COVID-19 vaccinations in North Central London - North Central London CCG North East London COVID-19 Vaccination programme | North East London Health & Care Partnership (eastlondonhcp.nhs.uk) North West London The NHS COVID-19 Vaccination Programme :: North West London Clinical Commissioning Groups (nwlondonccg.nhs.uk) South East London COVID-19 vaccine - South East London CCG (selondonccg.nhs.uk) South West London COVID-19 vaccination - South West London CCG (swlondonccg.nhs.uk) NHS England National Book or manage your coronavirus (COVID-19) vaccination - NHS System (www.nhs.uk) 28 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Thank You – Discussion - Questions and Queries The Chat is open – we have received some queries already… Dan.Devitt@phe.gov.uk https://www.gov.uk/government/publicatio ns/covid-19-vaccination-resources-for- children-and-young-people 29 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
Next Steps Thank you for coming along today We are working out the best way to share the recording with you. Slides will be shared in a pdf shortly after the session. Whilst every care has been taken to ensure this is up to date the guidance does change so please make sure you check the NHS, Public Health England and Department for health and Social Care Websites. If you want a copy of the slides please email Dan.Devitt@PHE.gov.uk 30 COVID-19 Vaccination for CEV Children and Young People 16th August 2021
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