HELP SAVE A LIFE DONATE YOUR - University Hospitals of Leicester
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Anthony Nolan HOW DO I TAKE PART? Please follow these simple steps: Cord Blood 1 Peel off the attached Pre-Consent PRE-CONSENT sticker and stick this to the front of Anthony Nolan your medical notes. This helps us to Cord Blood Donation identify you as a cord donor when you come on to the maternity ward. Donation PROGRAMME 2 Complete and return the attached form on this leaflet. Alternatively Programme you can fill in our online form at www.anthonynolan.org/cordblood 3 If you want to ask further questions Please peel off and stick to the before completing the form please front of your medical notes. Did you know that following the safe birth of your baby, call us on 0303 303 0303. you could save a person’s life just by donating your Once we receive your completed form we will contact you to discuss any questions umbilical cord? The blood from your placenta and you may have. We’ll then arrange an appointment for your formal consent. The sticker on this leaflet gives you the option of ‘pre-consent’. If you stick it on the front of your cord is rich in stem cells. We can use these in medical notes, it shows you intend to donate. Ideally we will arrange a meeting to take your formal consent before your labour starts. If this isn’t possible, the sticker on your stem cell transplants to help people suffering notes gives us permission to collect your baby’s cord blood. We’d then take your formal from leukaemia and serious blood disorders. consent after your baby’s birth. For someone who needs a transplant, it’s often their last chance at life. The stem cells in cord blood have the potential to save countless lives. Anthony Nolan’s cord blood programme is a pioneering initiative to collect and bank stem cells from donated umbilical cords. Caitlin received her lifesaving cord blood donation through the work of Anthony Nolan. Freepost Plus RSJZ-CRCR-LYKE Anthony Nolan Cord Collection UHL Anthony Nolan finds matches for leukaemia patients Maternity Unit who need a lifesaving transplant. For someone with Leicester General Hospital leukaemia, a bone marrow transplant can be their Gwendolen Road only hope of life. We use our register, cord blood LEICESTER bank and research to find remarkable people who can give them that hope by donating their stem cells. LE5 4PW By doing this, we save lives. Every day.
WHAT IS CORD BLOOD? It’s the blood that remains in your placenta and umbilical cord. After you Sorrel had leukaemia but because someone give birth, your umbilical cord is clamped. With the placenta, it’s normally donated their cord blood, she got the lifesaving thrown away as clinical waste. As it’s rich in stem cells, saving more cord transplant she urgently needed. She’s full blood means saving more lives. To do this, we need your help. of energy, and loves swimming and PE. She leads a full and active life at school. WHY IS CORD BLOOD IMPORTANT? Currently, there are 16,000 people who desperately need a lifesaving stem cell transplant, but can’t find a match. As the stem cells in your cord blood could be used for transplants, your donation may one day save a life. Called ARE THERE ANY RISKS? cord blood transplantation, it’s an alternative to bone marrow transplants. The advantage is that that they are immediately available. Time is often Collecting your baby’s cord blood is a risk free, a crucial factor for a person who needs a stem cell transplant, so it could painless procedure which does not interfere in any mean the difference between life and death. We especially need donations way with you giving birth. The safety of you and your from non-Caucasian communities as we’re more likely to find a match baby takes priority over all other considerations. amongst people who share the same ethnic background. After giving birth, we will need to take a maternal blood sample from you (not your baby). It may result in slight WHAT HAPPENS WHEN I DONATE discomfort, bruising or possibly fainting. MY CORD BLOOD? WHAT ARE THE BENEFITS? Donating your cord blood is a risk free procedure. Once your baby has been safely delivered, the umbilical cord will be clamped as normal. • The immense satisfaction of knowing that your umbilical cord donation Then the cord and placenta will be passed to one of our could help save someone’s life. If it isn’t used in a transplant, it could be dedicated collecting staff. They’ll take it to a separate used for essential stem cell research into helping a much wider variety room to extract the blood from the cord. of conditions including diabetes and Alzheimers. Be assured – the procedure does not • If one of your family needs a transplant in the future and your baby’s interfere with the safe birth of your baby cord blood is still available, it could provide a match. However, there are in any way. Following your donation no guarantees for this. we will need to take a maternal blood sample from you. WHAT HAPPENS TO THE CORD BLOOD? After collection, we process it to make sure it can be used for a transplant. Approximately half of the units we collect will be suitable. We then store these until needed by a patient. Sometimes, donated cords are not usable for transplant. For example, if the amount of blood collected is too small. If it isn’t suitable, we’ll dispose Winifred donated her cord blood of it as clinical waste or use it in research approved by an appropriate when she gave birth to her daughter Ethics Committee. If used for research, your identity or you baby’s, will Sophie. As we’re also researching not be known. stem cell cures for a wider range By joining this programme you are agreeing to allow us to use the donation of conditions, she could end up for research if it doesn’t meet our standards for clinical use. Using your helping a lot more people. baby’s cord blood for research still means your donation could help towards saving lives.
Anthony Nolan researchers and others are trying to analyse the different cellular components in cord blood to be used as an immune or stem cell PRE-CONSENT FORM source. Stem cells have regenerative properties. Research undertaken at our Remember donating your cord costs you nothing research institute and by others, will allow us to see if we can create new therapies for other conditions such as stroke, heart attacks and brain injury. but could help save a life. The cord blood will not be cloned. If you’re interested in donating your cord blood, please complete this form and return it to us (no stamp required). On receipt we will contact you to We cannot guarantee that your cord blood will be collected and stored. discuss your consent and answer any questions that you might have. This may be because an accredited collector is unavailable or other situations arise during labour, which make the collection inappropriate. Please print clearly Name DO I HAVE TO TAKE PART? Your Date of Birth No. Your participation is completely voluntary. You will not receive any financial reward for the donation. House number and Street WHY DO I NEED TO CONSENT? Town Postcode Consent is central in all forms of healthcare and tissue donation in the EU, Home Tel Mobile and a legal requirement of cord blood collection. Without your consent we cannot process your cord and it will be thrown away. Email Maternity Hospital WILL MY TAKING PART BE CONFIDENTIAL? Hospital No Your baby’s due date Yes. Authorised personnel from this hospital and from Anthony Nolan may look at parts of your or your baby’s Please tick as appropriate medical records and the data collected. But they will not disclose any details outside the programme. I have attached my pre-consent sticker to my notes. I would like you to contact me to arrange an appointment so that I can consent to WILL THIS COST ME ANYTHING? donate my baby’s cord blood. No. I would like to receive more information before I decide to donate and I am happy for you to telephone me. WHAT IF I HAVE ANY FURTHER moisten here moisten here IMPORTANT: You should not offer to donate your cord blood if you are under QUESTIONS? 17 years of age or if you have ever knowingly: • injected drugs for non-medical reasons Discuss them with your midwife/doctor • received money or drugs in exchange for sex • been diagnosed with HIV, hepatitis B or hepatitis C Please call us on 0303 303 0303 or visit our website www.anthonynolan.org/cordblood In the last 12 months you have had sex knowingly with: • a partner who has had sex with someone in exchange for money or drugs • a partner who injects drugs for non-medical reasons • a partner who has been diagnosed with HIV, hepatitis B or hepatitis C Kate was one of the first mothers to donate • a man who has had sex with another man her cord blood and now is about to donate a I agree to Anthony Nolan and its NHS Trust partners holding second time. “It’s wonderful to be able to help my personal details in their donor database and processing others who aren’t fortunate enough to be as this information as necessary for the proper administration healthy as me and my family. It’s something of Anthony Nolan. All personal information will be handled that every pregnant woman should consider.” in accordance with the Data Protection Act 1998. moisten here
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